2014-04-23T15:38:15-05:00 2013-12-31 POYSTI & ADAMS LLC 400 S COLORADO BLVD STE 690 DENVER CO 80246 990 2013-01-01 202112635 PSC PARTNERS SEEKING A CURE PSCP 5237 SOUTH KENTON WAY ENGLEWOOD CO 80111 RICKY SAFER CEO 2014-04-14 true CHARLES W POYSTI CPA CGMA P00070003 3037333796 2014-04-14 2013 2015-11-30 17:44:51Z RICKY SAFER 5237 SOUTH KENTON WAY ENGLEWOOD CO 80111 794453 false X WWW.PSCPARTNERS.ORG X 2005 CO THE MISSION OF THE PSC PARTNERS SEEKING A CURE FOUNDATION IS TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. OTHER SIGNIFICANT ACTIVITIES THE MEMBERS OF THE PSCP SCIENTIFIC/MEDICAL ADVISORY COMMITTEE ARE ACTIVELY ENGAGED IN DECIDING WHERE TO ALLOCATE OUR FUNDS FOR PSC RESEARCH. THROUGH THIS COMPETITIVE PROGRAM, PSCP HAS AWARDED RESEARCH GRANTS TO PROMINENT PSC RESEARCHERS. THE PSC PARTNERS SEEKING A CURE LITERATURE SITE IS THE PREMIER AND MOST EXTENSIVE WEBSITE FOR INFORMATION ON PSC AND CONTINUES TO BE UPDATED WEEKLY TO PROVIDE PSC PATIENTS, CAREGIVERS, PHYSICIANS, AND RESEARCHERS WITH EASY ACCESS TO A VAST BODY OF INFORMATION CONCERNING PSC AND ALLIED DISEASES. SINCE 2005 PSCP HAS HELD ANNUAL PATIENT CONFERENCES FOR PSC PATIENTS AND CAREGIVERS AT DIFFERENT MEDICAL CENTERS THROUGHOUT THE COUNTRY. THESE WEEKEND CONFERENCES OFFER THE OPPORTUNITY TO LEARN AB 11 11 3 375 0 422979 490953 112314 119781 14756 12131 -1370 550049 621495 163000 333000 0 71082 84742 0 52538 93234 105567 327316 523309 222733 98186 1325775 1444515 104 17947 1325671 1426568 X THE MISSION OF THE PSC PARTNERS SEEKING A CURE FOUNDATION IS TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. OTHER SIGNIFICANT ACTIVITIES THE MEMBERS OF THE PSCP SCIENTIFIC/MEDICAL ADVISORY COMMITTEE ARE ACTIVELY ENGAGED IN DECIDING WHERE TO ALLOCATE OUR FUNDS FOR PSC RESEARCH. THROUGH THIS COMPETITIVE PROGRAM, PSCP HAS AWARDED RESEARCH GRANTS TO PROMINENT PSC RESEARCHERS. THE PSC PARTNERS SEEKING A CURE LITERATURE SITE IS THE PREMIER AND MOST EXTENSIVE WEBSITE FOR INFORMATION ON PSC AND CONTINUES TO BE UPDATED WEEKLY TO PROVIDE PSC PATIENTS, CAREGIVERS, PHYSICIANS, AND RESEARCHERS WITH EASY ACCESS TO A VAST BODY OF INFORMATION CONCERNING PSC AND ALLIED DISEASES. SINCE 2005 PSCP HAS HELD ANNUAL PATIENT CONFERENCES FOR PSC PATIENTS AND CAREGIVERS AT DIFFERENT MEDICAL CENTERS THROUGHOUT THE COUNTRY. THESE WEEKEND CONFERENCES OFFER THE OPPORTUNITY TO LEARN AB false false 440287 333000 PROVIDE EDUCATION AND SUPPORT TO PRIMARY SCLEROSING CHOLANGITIS (PSC) PATIENTS AND THEIR FAMILIES THROUGH WEBSITE AND OUR ANNUAL CONFERENCE FOR PATIENTS AND CAREGIVERS. TO RAISE FUNDS AND SUPPORT RESEARCH TO FIND THE CAUSE, BETTER TREATMENTS AND A CURE FOR PSC. ALL GRANTS AWARDED BY OUR SCIENTIFIC/MEDICAL ADVISORY COMMITTEE PURSUE THESE EFFORTS. 440287 true true false false false false false false false true true false false false false true true false false false true true false false true false false true false false false false false false false false false false false false false false false false false false false true 0 0 3 true false false false false true true false X 11 11 false false false false false false false true true false false true true true true true true true false false CO X X X THE ORGANIZATION 3037715227 5237 SOUTH KENTON WAY ENGLEWOOD CO 80111 JOANNE HATCHETT MEMBER 5.00 X 0 0 0 RACHEL GOMEL MEMBER 35.00 X 0 0 0 JOANNE GRIEME BOARD CHAIR 9.00 X X 0 0 0 AUBREY GOLDSTEIN MEMBER 2.00 X 0 0 0 SCOTT MALAT TREASURER 2.00 X X 0 0 0 RICKY SAFER CEO 50.00 X X 0 0 0 KEN SHEPHERD VICE BOARD C 4.00 X 0 0 0 DEBORAH WENTE SECRETARY 2.00 X X 0 0 0 ROSALIND PARRY MEMBER 5.00 X 0 0 0 FRED SABERNICK MEMBER 4.00 X 0 0 0 MONICA CROWLEY MEMBER 3.00 X 0 0 0 MEEGAN CAREY EXECUTIVE DI 40.00 X 65000 0 0 65000 false false false 29500 461453 15060 490953 CONFERENCE INCOME 900099 119781 119781 119781 12131 12131 165393 165393 6195 29500 7565 -1370 621495 119781 12131 183000 183000 150000 150000 65000 19500 9750 35750 14046 11987 2059 5696 2409 903 2384 5653 5653 7219 7219 710 710 3053 306 2747 12563 4359 3692 4512 4994 1748 749 2497 62564 59436 3128 715 214 286 215 2840 568 1988 284 FUNDRAISING EXPENSES 4149 4149 OTHER PROGRAM 1107 1107 523309 440287 30484 52538 36976 172527 2284 16287 3575 2072 2218 1503 1284297 1254198 1325775 1444515 104 17947 104 17947 X 955105 1154258 370566 272310 1325671 1426568 1325775 1444515 98186 2711 X false true X true false X 259417 429367 451976 422979 490953 2054692 85080 112314 125976 323370 259417 429367 537056 535293 616929 2378062 2378062 6510 10711 12403 13986 12131 55741 6510 10711 12403 13986 12131 55741 26390 26390 292317 440078 549459 549279 629060 2460193 0.96660 0.95150 0.02000 0.03000 X PART II, LINE 12 26,390 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 370566 273296 371552 272310 366004 175520 170958 370566 193122 357569 184687 366004 366122 173000 193122 1.00000 false false 3575 2072 1503 1503 624206 2711 2711 621495 621495 523309 523309 523309 SCHEDULE D, PAGE 3, PART X NO PROVISION FOR INCOME TAXES HAS BEEN MADE IN THE ACCOMPANYING FINANCIAL STATEMENTS BECAUSE THE ORGANIZATION HAS QUALIFIED AS EXEMPT FROM INCOME TAX UNDER SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE (CODE) AND COMPARABLE STATE LAW, AND CONTRIBUTIONS TO IT ARE TAX DEDUCTIBLE WITHIN THE LIMITATIONS PRESCRIBED BY THE CODE. THE ORGANIZATION DID NOT HAVE ANY MATERIAL UNRELATED BUSINESS INCOME TAX LIABILITY OR SIGNIFICANT UNCERTAIN TAX POSITIONS FOR THE YEARS ENDED DECEMBER 31, 2013 OR 2012. THE ORGANIZATIONS TAX FILINGS ARE SUBJECT TO AUDIT BY VARIOUS TAXING AUTHORITIES. THE ORGANIZATIONS ENDING OPEN AUDIT PERIODS ARE DECEMBER 31, 2010, 2011, 2012, AND 2013. true EUROPE 5 5 GRANT RESEARCH 150000 5 5 5 5 150000 150000 UNITED KINGDOM RESEARCH 30000 NETHERLANDS RESEARCH 30000 GERMANY RESEARCH 30000 UNITED KINGDOM RESEARCH 30000 ITALY RESEARCH 30000 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 150,000 0 SPECIAL EVENT 35695 29500 6195 7565 35695 29500 6195 7565 7565 -1370 true MAYO CLINIC PO BOX 40082 ROCHESTER MN 55903 416011702 501C3 60000 RESEARCH YALE UNIVERSITY 333 CEDAR STREET NEW HAVEN CT 06510 060646973 501C3 30000 RESEARCH CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVE CINCINNATI OH 45229 310833936 501C3 30000 RESEARCH SCOTT AND WHITE MEMORIAL HOSPITAL 2401 SOUTH 31ST ST TEMPLE TX 76508 741166904 501C3 30000 RESEARCH REGENTS OF THE UNIVERSITY OF CA DEPARTMENT OF INTERNAL MEDICINE PO BOX 179002 SACRAMENTO CA 95817 946036494 501C3 30000 RESEARCH SCHEDULE I, PAGE 1, PART I, LINE 2 GRANT AWARDEES MUST PROVIDE A ONE TO TWO PAGE SUMMARY OF RESULTS OBTAINED WITH FUNDS PROVIDED BY PCS PARTNERS SEEKING A CURE AFTER THEIR 1ST AND 2ND YEARS OF RESEARCH. THE SUMMARY IS REVIEWED BY THE SCIENTIFIC MEDICAL ADVISORY COMMITTEE. THE RELEASE OF THE SECOND YEAR OF FUNDING IS CONTINGENT UPON SATISFACTORY REVIEW OF THE RESEARCHER'S FIRST YEAR REPORT BY THE SCIENTIFIC/MEDICAL ADVISORY COMMITTEE. FORM 990 - ORGANIZATION'S MISSION THE MISSION OF THE PSC PARTNERS SEEKING A CURE FOUNDATION IS TO PROVIDE EDUCATION AND SUPPORT TO PSC PATIENTS, FAMILIES AND CAREGIVERS AND TO RAISE FUNDS TO RESEARCH CAUSES, TREATMENTS AND POTENTIAL CURES FOR PRIMARY SCLEROSING CHOLANGITIS. OTHER SIGNIFICANT ACTIVITIES THE MEMBERS OF THE PSCP SCIENTIFIC/MEDICAL ADVISORY COMMITTEE ARE ACTIVELY ENGAGED IN DECIDING WHERE TO ALLOCATE OUR FUNDS FOR PSC RESEARCH. THROUGH THIS COMPETITIVE PROGRAM, PSCP HAS AWARDED RESEARCH GRANTS TO PROMINENT PSC RESEARCHERS. THE PSC PARTNERS SEEKING A CURE LITERATURE SITE IS THE PREMIER AND MOST EXTENSIVE WEBSITE FOR INFORMATION ON PSC AND CONTINUES TO BE UPDATED WEEKLY TO PROVIDE PSC PATIENTS, CAREGIVERS, PHYSICIANS, AND RESEARCHERS WITH EASY ACCESS TO A VAST BODY OF INFORMATION CONCERNING PSC AND ALLIED DISEASES. SINCE 2005 PSCP HAS HELD ANNUAL PATIENT CONFERENCES FOR PSC PATIENTS AND CAREGIVERS AT DIFFERENT MEDICAL CENTERS THROUGHOUT THE COUNTRY. THESE WEEKEND CONFERENCES OFFER THE OPPORTUNITY TO LEARN ABOUT THE MOST RECENT ADVANCES IN PSC TREATMENTS AND RESEARCH AND ALSO TO SHARE EXPERIENCES, ADVICE, AND CONCERNS WITH OTHER PSCERS. PSCP HAS STARTED HOLDING LOCAL FORUMS FOR PSC PATIENTS AND CAREGIVERS. THE PSC PARTNERS SEEKING A CURE WEBSITE INCLUDES ADVICE AND PERSONAL STORIES FROM OUR MEMBERS, SO THAT WE CAN OFFER VALUABLE EVERYDAY LIVING SUGGESTIONS TO PSCERS IN ADDITION TO UPDATES ON TREATMENTS AND MEDICAL RESEARCH. IN ADDITION, PSCP PUBLISHES A FREE ONLINE NEWSLETTER WITH UPDATES ABOUT THE LATEST TREATMENTS, RESEARCH RESULTS, AND COPING SUGGESTIONS. FORM 990, PAGE 6, PART VI, LINE 11B ALL MEMBERS OF THE BOARD OF DIRECTORS RECEIVE A COPY OF THE 990 PRIOR TO IT BEING FILED. FORM 990, PAGE 6, PART VI, LINE 12C ANNUAL DISCLOSURE OF CONFLICTS OF INTEREST REQUIRED. FORM 990, PAGE 6, PART VI, LINE 15A CEO AND BOARD OF DIRECTORS DO NOT RECEIVE COMPENSATION COMPENSATION POLICY FOR EXECUTIVE DIRECTOR THE CORPORATION'S PRIMARY OBJECTIVE IS TO PROVIDE REASONABLE AND COMPETITIVE EXECUTIVE TOTAL COMPENSATION CONSISTENT WITH MARKET-BASED COMPENSATION PRACTICES FOR INDIVIDUALS POSSESSING THE EXPERIENCE AND SKILLS NEEDED TO IMPROVE THE OVERALL PERFORMANCE OF THE ORGANIZATION. THE ORGANIZATION'S EXECUTIVE COMPENSATION POLICY IS DESIGNED TO: A) ENCOURAGE THE ATTRACTION AND RETENTION OF HIGH-CALIBER EXECUTIVES. B) PROVIDE A COMPETITIVE TOTAL COMPENSATION PACKAGE, INCLUDING BENEFITS. C) ENSURE THAT PAY IS PERCEIVED TO BE FAIR AND EQUITABLE. D) ENSURE THAT THE POLICY COMPLIES WITH I.R.S. REGULATIONS AND STATE AND FEDERAL LEGISLATION. ESTABLISHMENT OF COMPENSATION COMMITTEE A COMPENSATION COMMITTEE OF THE BOARD WILL BE ESTABLISHED ANNUALLY BY THE BOARD CHAIR AS AN AD HOC COMMITTEE. THE COMPENSATION COMMITTEE WILL ADMINISTER THIS POLICY. THE FOLLOWING COMPONENTS WILL BE PRESENT IN THE PROCESS OF SETTING EXECUTIVE COMPENSATION: REVIEW/APPROVAL BY THE BOARD. NO INVOLVEMENT OF PERSONS WITH CONFLICTS OF INTEREST. COLLECTION AND USE OF COMPENSATION DATA FOR SIMILARLY QUALIFIED PERSONS IN COMPARABLE POSITIONS AT SIMILARLY SITUATED ORGANIZATIONS. CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING. REVIEW/APPROVAL BY THE BOARD THE CORPORATION'S EXECUTIVE COMPENSATION POLICY IS ADMINISTERED BY THE COMPENSATION COMMITTEE OF THE BOARD. THE COMPENSATION COMMITTEE IS RESPONSIBLE FOR ESTABLISHING AND MAINTAINING A COMPETITIVE COMPENSATION POLICY FOR THE KEY EXECUTIVES OF THE ORGANIZATION. THE COMMITTEE MEETS AS NEEDED TO REVIEW THE COMPENSATION POLICY AND MAKE RECOMMENDATIONS FOR ANY CHANGES TO THE BOARD, AS APPROPRIATE. NO INVOLVEMENT OF PERSONS WITH CONFLICTS OF INTEREST THE BOARD CHAIR, IN APPOINTING THE COMPENSATION COMMITTEE WILL ENSURE THAT NO MEMBER OF THE COMPENSATION COMMITTEE HAS A CONFLICT OF INTEREST THAT WOULD IMPAIR THEIR ABILITY TO BE FAIR AND IMPARTIAL TO THE COMPENSATION PROCESS. FURTHER, THE COMPENSATION COMMITTEE WILL ENGAGE AN INDEPENDENT FIRM TO REVIEW COMPARABLE COMPENSATION DATA, ALONG WITH THE PROPOSED COMPENSATION FOR KEY EXECUTIVES. COLLECTION AND USE OF COMPENSATION DATA COMPENSATION MUST BE COMMENSURATE WITH THE DUTIES AND RESPONSIBILITIES OF THE PERSON BEING COMPENSATED. REASONABLE COMPENSATION IS THE AMOUNT THAT WOULD ORDINARILY BE PAID FOR LIKE SERVICES BY LIKE ENTERPRISES, WHETHER TAXABLE OR TAX-EXEMPT, UNDER LIKE CIRCUMSTANCES. IN ORDER TO SATISFY THE REBUTTABLE PRESUMPTION SAFE HARBOR PROCEDURE, THE COMPENSATION COMMITTEE WILL RELY ON THE FOLLOWING DEFINITIONS WHEN SEEKING COMPARABILITY DATA TO MAKE ITS DETERMINATION REGARDING COMPENSATION ISSUES. LIKE SERVICES. IN COMPARING AN INDIVIDUAL'S COMPENSATION TO ANOTHER INDIVIDUAL'S COMPENSATION, THE COMPARISON MUST BE BASED ON SUBSTANTIALLY SIMILAR DUTIES AND RESPONSIBILITIES. THE I.R.S. HAS STATED THAT THE KEY IS COMPARING DUTIES AND RESPONSIBILITIES, A FUNCTIONAL COMPARISON, AND NOT THE JOB TITLE. TO DETERMINE WHETHER THE INDIVIDUAL'S COMPENSATION IS COMMENSURATE WITH OTHERS IN THE SAME POSITION AND THUS REASONABLE, THE I.R.S. CONSIDERS, AMONG OTHER FACTORS: THE INDIVIDUAL'S DUTIES AND RESPONSIBILITIES. THE NUMBER OF EMPLOYEES THE INDIVIDUAL MANAGES. THE SIZE OF THE BUDGET OR ASSETS THE INDIVIDUAL MANAGES. THE NUMBER OF HOURS WORKED. WHETHER THE JOB IS NATIONAL OR LOCAL IN SCOPE. WHETHER THE INDIVIDUAL MANAGES MULTIPLE FUNCTIONS OR DEPARTMENTS. LIKE ENTERPRISES. COMPARISONS OF ENTERPRISES NEED TO BE BASED ON ENTITIES OF SIMILAR SIZE. INDICATORS OF SIZE INCLUDE NUMBER OF EMPLOYEES, NUMBER OF PERSONS SERVED BY THE ORGANIZATION, BUDGET AND REVENUES. ADDITIONALLY, THE COMPARABLES SHOULD COME FROM THE SAME INDUSTRY SO AS TO BEST MATCH THE INDIVIDUAL'S DUTIES AND RESPONSIBILITIES. TAX-EXEMPT ORGANIZATIONS CAN LOOK TO BOTH THE FOR-PROFIT AND NON-PROFIT SECTORS TO DETERMINE REASONABLE COMPENSATION. LIKE CIRCUMSTANCES. COMPENSATION PACKAGES BEING COMPARED MUST CONSIST OF A SIMILAR MIX OF COMPENSATION ITEMS. ALL FORMS OF COMPENSATION MUST BE PROPERLY AGGREGATED AND ACCOUNTED AND INCLUDED IN TOTAL COMPENSATION. THE ORGANIZATION SHOULD ALSO USE COMPARABLES FROM THE SAME GEOGRAPHIC AREA WHERE POSSIBLE. THE AVAILABILITY OF SIMILAR SERVICES IN THE GEOGRAPHIC AREA OF THE ORGANIZATION IS RELEVANT TO DETERMINING THE APPROPRIATE LEVEL OF COMPENSATION. IF THERE ARE NOT COMPARABLES IN THE GEOGRAPHIC AREA, THE TAX-EXEMPT ORGANIZATION CAN GO OUTSIDE OF THAT GEOGRAPHIC AREA FOR COMPARABLES BUT MUST MAKE APPROPRIATE COST-OF-LIVING ADJUSTMENTS. THE COMPENSATION COMMITTEE WILL USE AT LEAST THREE COMPARABLES IN THE SAME OR SIMILAR COMMUNITIES FOR SIMILAR SERVICES. THE TARGET RANGE FOR TOTAL COMPENSATION FOR KEY EXECUTIVES IS AT OR BELOW THE FIFTIETH PERCENTILE FOR THE RELEVANT MARKET. CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING THE COMPENSATION COMMITTEE WILL ADEQUATELY DOCUMENT THE BASIS FOR ITS DETERMINATION. TO "ADEQUATELY DOCUMENT" THE DECISION FOR PURPOSES OF THE REBUTTABLE PRESUMPTION PROCESS, THE RECORDS OF THE COMPENSATION COMMITTEE MUST STATE THE TERMS OF THE COMPENSATION PACKAGE THAT WERE APPROVED, THE DATE IT WAS APPROVED, THE MEMBERS OF THE BOARD WHO WERE PRESENT DURING THE DEBATE ON THE COMPENSATION ARRANGEMENT THAT WAS APPROVED AND THOSE WHO VOTED TO APPROVE OR REJECT IT. THE DOCUMENTATION SHOULD ALSO NOTE THE COMPARABILITY DATA OBTAINED AND RELIED UPON BY THE COMPENSATION COMMITTEE, HOW IT WAS OBTAINED. ADDITIONALLY, THE COMPENSATION COMMITTEE WILL RECORD THE BASIS FOR ITS DETERMINATION WHENEVER IT DECIDES THAT REASONABLE COMPENSATION IS HIGHER OR LOWER THAN THE RANGE OF COMPARABLE DATA RECEIVED. THE DOCUMENTATION MUST BE MADE CONCURRENTLY WITH THE DETERMINATION OF THE COMPENSATION ARRANGEMENT. RECORDS MUST BE PREPARED BY THE NEXT MEETING OR WITHIN 60 DAYS OF THE COMPENSATION COMMITTEE MEETING AND MUST BE REVIEWED AND APPROVED BY THE BOARD AS REASONABLE, ACCURATE AND COMPLETE WITHIN A REASONABLE TIME THEREAFTER. FORM 990, PAGE 6, PART VI, LINE 19 UPON REQUEST