2014-05-02T15:52:29-05:00 2013-12-31 264677183 DZH PHILLIPS LLP 1330 BROADWAY SUITE 630 OAKLAND CA 94612 990 2013-01-01 942780249 NATIONAL ALOPECIA AREATA FOUNDATION NATI 4154723780 14 MITCHELL BLVD SAN RAFAEL CA 94903 DORY KRANZ PRESIDENT & CEO 4154723780 2014-05-02 1 HYDEH GHAFFARI P01228587 5108346542 X 2013 2015-11-30 17:44:51Z DORY KRANZ 14 MITCHELL BLVD SAN RAFAEL CA 94903 2653810 0 X WWW.NAAF.ORG X 1981 CA PROVIDE EDUCATION, SUPPORT,FUND MEDICAL RESEARCH REGARDING CAUSES & TREATMENT OF ALOPECIA AREATA 10 10 9 200 0 0 3980244 1871318 293864 462443 62664 84071 -18606 0 4318166 2417832 288950 286440 0 0 621083 755788 0 0 154369 918086 1018003 1828119 2060231 2490047 357601 3678366 4319519 25628 24491 3652738 4295028 SUPPORTS RESEARCH TO FIND A CURE OR ACCEPTABLE TREATMENT FOR ALOPECIA AREATA, SUPPORTS THOSE WITH THE DISEASE, AND EDUCATES THE PUBLIC ABOUT ALOPECIA AREATA. 0 0 1001862 0 462443 AWARENESS AND SUPPORT - PROVIDED EMOTIONAL SUPPORT AND MEDICAL UPDATES FOR PERSONS SUFFERING FROM ALOPECIA AREATA. SERVICES PROVIDED INCLUDE NEWSLETTERS, VIDEO & AUDIO TAPES, WORKSHOPS AND BROCHURES. SPONSORED ANNUAL PATIENT CONFERENCE, WHICH FEATURED SUPPORT SESSIONS AND WHICH WAS ATTENDED BY APPROXIMATELY 1,000 PERSONS FROM THE US AND OTHER COUNTRIES. PROVIDED DVD'S FOR CHILDREN AND ADULTS. PROVIDED A SCHOOL GUIDE FOR PARENTS AND SCHOOL PERSONNEL, AND A COSMETIC GUIDE. ALSO THE ASCOT FUND PROGRAM PROVIDES HAIR PIECES FOR THOSE WHO CANNOT AFFORD ONE. HELPED OVER 10,000 PEOPLE WITH INFORMATION REQUESTS. HAD OVER 20 AWARENESS EVENTSAT MAJOR AND MINOR LEAGUE BALL PARKSTO RAISE AWARENESS OF ALOPECIA AREATA. 789347 286440 0 FUNDED MEDICAL RESEARCH REGARDING CAUSES AND TREATMENT OF ALOPECIA AREATA. CONDUCTED ALOPECIA AREATA TREAMENT DEVELOPMENT MEETINGS. 1791209 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 14 0 1 9 1 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT DC FL GA IL KS KY LA ME MD MA MI MN MS MO NH NJ NM NY NC RI PA OR OK OH SC TN TX UT VA WA WV WI X X X DORY KRANZ 4154723780 14 MITCHELL BLVD SAN RAFAEL CA 94903 MAUREEN MCGETTIGAN CHAIR 5.00 X X 0 0 0 ROBERT FLINT CHIEF FINANCIAL OFFICER 3.00 X X 0 0 0 HOY LANNING JR SECRETARY 2.00 X X 0 0 0 ALLISON WAGGONER DIRECTOR 2.00 X 0 0 0 ANN S HEDGES DIRECTOR 2.00 X 0 0 0 DONNA HAKIM DIRECTOR 2.00 X 0 0 0 BRIAN TER HAAR DIRECTOR 2.00 X 0 0 0 GARY GORDON DIRECTOR 2.00 X 0 0 0 MARIA BECKETT DIRECTOR 2.00 X 0 0 0 DEBORA PELLICANO DIRECTOR 2.00 X 0 0 0 VICTORIA KALABOKES CHIEF EXECUTIVE OFFICER 40.00 X X 127923 0 19560 127923 0 19560 1 0 0 0 0 1871318 1871318 CONFERENCE 624100 213311 213311 AWARENESS CAMPAIGN AND 611710 210154 210154 NEWSLETTER & BROCHURES 624100 29076 29076 ALOPECIA AREATA MARKET 446199 9902 9902 462443 86749 86749 233300 235978 -2678 -2678 -2678 2417832 459765 0 86749 200000 200000 86440 86440 145635 109226 14563 21846 449120 403510 27459 18151 49432 43197 3618 2617 64141 55626 4446 4069 47460 41392 3171 2897 26681 10220 16461 120553 91088 17617 11848 243237 187306 1957 53974 43662 40317 1162 2183 63401 47551 9510 6340 192366 189055 3311 3003 1235 1768 8880 5328 2664 888 REGISTRY & TREATMENT DE 176959 176959 0 0 ALOPECIA AWARENESS, LIN 47498 34825 0 12673 SUPPORT GROUPS & ASCOT 35365 35365 0 0 FED - STATE TAX & REGIS 14467 0 4340 10127 41931 32569 2606 6756 2060231 1791209 114653 154369 281479 104884 853111 826396 1896 26981 24413 28198 16498 8374 8154 8124 2430209 3234113 79104 90823 3678366 4319519 25628 24491 25628 24491 X 944037 1082699 2708701 3212329 3652738 4295028 3678366 4319519 357601 284689 0 X X 0 1 X 1 0 X 845174 978999 1016631 1230244 941318 5012366 845174 978999 1016631 1230244 941318 5012366 617661 4394705 15266 13320 13044 59681 86749 188060 2717 2490 5207 5205633 1454974 0.84420 0.81690 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 16498 8374 8124 0 8124 2702520 284688 284688 2417832 0 2417832 2060231 0 2060231 0 2060231 1 NORTH AMERICA 0 0 GRANTS TO RECIPIENTS 46440 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTS TO RECIPIENTS 40000 0 0 0 0 0 0 86440 0 86440 NORTH AMERICA SKIN CELL THERAPY RESEARCH 46440 WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) T CELL RESEARCH 25000 WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) CONGRESS ON AUTOIMMUNITY 15000 WIRE TRANSFER 3 0 0 0 0 0 0 0 PART I, LINE 2: GRANTS ARE AWARDED BASED UPON RECOMMENDATIONS OF INDEPENDENT SCIENTIFIC ADVISORY COMMITTEE WHICH EVALUATES RESPONSES TO REQUESTS FOR PROPOSALS. ONE FOURTH OF GRANT AWARD IS PAID WHEN CONTRACT IS SIGNED AND THE REMAINING THREE FOURTHS ARE PAID UPON SUBMISSION OF INTERIM AND FINAL REPORTS. FINAL PAYAMENT IS NOT MADE UNTIL SCIENTIFIC ADVISORY COMMITTEE APPROVES FINAL REPORT. AWARDEE IS REQUIRED TO SUBMIT THE REPORTS TO NAAF AS SET FORTH BELOW. SUBMISSION OF REPORTS AND THEIR APPROVAL BY NAAF ARE NECESSARY CONDITIONS FOR FURTHER FUNDING UNDER THIS AWARD. THE FOLLOWING REPORTS ARE REQUIRED: (A) SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC PROGRESS REPORTS WHICH DESCRIBE PROGRESS AND CHALLENGES RELATED TO MILESTONES OUTLINED AND AN ACCOUNTING OF EXPENSES INCURRED ("PROGRESS REPORTS") ARE REQUIRED ON THE FOLLOWING SCHEDULE. THE FIRST ONE-PAGE PROGRESS REPORT SHALL BE SUBMITTED TO NAAF WITHIN FOUR MONTHS OF THE GRANT AWARD, THE SECOND ONE PAGE PROGRESS REPORT SHALL BE SUBMITTED TO NAAF WITHIN EIGHT MONTHS OF THE GRANT AWARD, AND THE FINAL REPORT SHALL BE SUBMITTED TO NAAF WITHIN 30 DAYS OF THE COMPLETION OF THE WORK. THE AWARDEE WILL RECEIVE 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES SIGNED AWARD AGREEMENT, 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES 4 MONTH PROGRESS REPORT IF MILESTONES ARE MET OR CHALLENGES SATISFACTORILY EXPLAINED, 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES 8 MONTH PROGRESS REPORT IF MILESTONES ARE MET AND/OR CHALLENGES SATISFACTORILY EXPLAINED, AND 25% PAYMENT AFTER NAAF RECEIVES FINAL REPORT IF MILESTONES ARE MET AND/OR CHALLENGES SATISFACTORILY EXPLAINED. (B) SUMMARY PROGRESS REPORTS. SUMMARY PROGRESS REPORTS MAY ALSO BE REQUESTED FROM TIME TO TIME TO HELP NAAF IN ITS CONTINUED EFFORTS TO RAISE FUNDS, ATTRACT MAJOR DONORS, AND MEET OTHER OPERATIONAL NEEDS. THESE MUST BE PROVIDED PROMPTLY WHEN REQUESTED. (C) FINAL REPORTS. WITHIN THIRTY (30) DAYS AFTER THE AWARD END DATE, AWARDEE SHALL SUBMIT A FINAL REPORT, NOT TO EXCEED TEN (10) PAGES WHICH INCLUDES: (I) A FINAL SCIENTIFIC NARRATIVE PROGRESS REPORT SUMMARIZING ALL THE DATA GENERATED DURING THE AWARD RESEARCH, THE ACTIVITIES SUPPORTED BY THE AWARD, THE SUCCESSES AND DIFFICULTIES THE AWARDEE HAD IN ACHIEVING THE GOALS AND A FINANCIAL EXPENDITURE REPORT ITEMIZING ALL EXPENSES INCURRED DURING THE ENTIRE AWARD PERIOD. AWARDEE ACKNOWLEDGES AND AGREES THAT REPORT SHALL BE TREATED AS AWARDEE CONFIDENTIAL INFORMATION. THE OBLIGATION TO PROVIDE THE ABOVE REPORTS SHALL SURVIVE TERMINATION OF THIS AWARD AGREEMENT. SUBMISSION OF THE FINAL REPORT SHALL BE A CONDITION PRECEDENT TO RECEIVING THE LAST MILESTONE PAYMENT. 1 MD ANDERSON CANCER CENTER UNIVERSITY OF TEXAS 1400 PRESSLER STREET UNIT 1452 HOUSTON TX 770304009 746001118 U. OF TEXAS 150000 ALOPECIA AREATA REGISTRY LEAVITT MEDICAL ASSOCIATES OF FLORIDA INC DBA AMERIDERM RESEARCH 725 WEST GRANADA BLOULEVARD SUITE 44 ORMOND BEACH FL 32174 593549147 50000 ALOPECIA AREATA PROTOCOL 1 1 PART I, LINE 2: GRANTS ARE AWARDED BASED UPON RECOMMENDATIONS OF INDEPENDENT SCIENTIFIC ADVISORY COMMITTEE WHICH EVALUATES RESPONSES TO REQUESTS FOR PROPOSALS. ONE FOURTH OF GRANT AWARD IS PAID WHEN CONTRACT IS SIGNED AND THE REMAINING THREE FOURTHS ARE PAID UPON SUBMISSION OF INTERIM AND FINAL REPORTS. FINAL PAYAMENT IS NOT MADE UNTIL SCIENTIFIC ADVISORY COMMITTEE APPROVES FINAL REPORT. AWARDEE IS REQUIRED TO SUBMIT THE REPORTS TO NAAF AS SET FORTH BELOW. SUBMISSION OF REPORTS AND THEIR APPROVAL BY NAAF ARE NECESSARY CONDITIONS FOR FURTHER FUNDING UNDER THIS AWARD. THE FOLLOWING REPORTS ARE REQUIRED: (A) SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC PROGRESS REPORTS WHICH DESCRIBE PROGRESS AND CHALLENGES RELATED TO MILESTONES OUTLINED AND AN ACCOUNTING OF EXPENSES INCURRED ("PROGRESS REPORTS") ARE REQUIRED ON THE FOLLOWING SCHEDULE. THE FIRST ONE-PAGE PROGRESS REPORT SHALL BE SUBMITTED TO NAAF WITHIN FOUR MONTHS OF THE GRANT AWARD, THE SECOND ONE PAGE PROGRESS REPORT SHALL BE SUBMITTED TO NAAF WITHIN EIGHT MONTHS OF THE GRANT AWARD, AND THE FINAL REPORT SHALL BE SUBMITTED TO NAAF WITHIN 30 DAYS OF THE COMPLETION OF THE WORK. THE AWARDEE WILL RECEIVE 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES SIGNED AWARD AGREEMENT, 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES 4 MONTH PROGRESS REPORT IF MILESTONES ARE MET OR CHALLENGES SATISFACTORILY EXPLAINED, 25% PAYMENT WITHIN 30 DAYS AFTER NAAF RECEIVES 8 MONTH PROGRESS REPORT IF MILESTONES ARE MET AND/OR CHALLENGES SATISFACTORILY EXPLAINED, AND 25% PAYMENT AFTER NAAF RECEIVES FINAL REPORT IF MILESTONES ARE MET AND/OR CHALLENGES SATISFACTORILY EXPLAINED. (B) SUMMARY PROGRESS REPORTS. SUMMARY PROGRESS REPORTS MAY ALSO BE REQUESTED FROM TIME TO TIME TO HELP NAAF IN ITS CONTINUED EFFORTS TO RAISE FUNDS, ATTRACT MAJOR DONORS, AND MEET OTHER OPERATIONAL NEEDS. THESE MUST BE PROVIDED PROMPTLY WHEN REQUESTED. (C) FINAL REPORTS. WITHIN THIRTY (30) DAYS AFTER THE AWARD END DATE, AWARDEE SHALL SUBMIT A FINAL REPORT, NOT TO EXCEED TEN (10) PAGES WHICH INCLUDES: (I) A FINAL SCIENTIFIC NARRATIVE PROGRESS REPORT SUMMARIZING ALL THE DATA GENERATED DURING THE AWARD RESEARCH, THE ACTIVITIES SUPPORTED BY THE AWARD, THE SUCCESSES AND DIFFICULTIES THE AWARDEE HAD IN ACHIEVING THE GOALS AND A FINANCIAL EXPENDITURE REPORT ITEMIZING ALL EXPENSES INCURRED DURING THE ENTIRE AWARD PERIOD. AWARDEE ACKNOWLEDGES AND AGREES THAT REPORT SHALL BE TREATED AS AWARDEE CONFIDENTIAL INFORMATION. THE OBLIGATION TO PROVIDE THE ABOVE REPORTS SHALL SURVIVE TERMINATION OF THIS AWARD AGREEMENT. SUBMISSION OF THE FINAL REPORT SHALL BE A CONDITION PRECEDENT TO RECEIVING THE LAST MILESTONE PAYMENT. FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11 FORM 990 IS REVIEWED BY DIRECTORS AT MEETING SCHEDULED FOR THAT PURPOSE - RETURN PREPARER IS AVAILABLE TO EXPLAIN FORM AND ANSWER QUESTIONS. FORM 990, PART VI, SECTION B, LINE 12C OFFICERS & DIRECTORS & STAFF COMPLETE ANNUAL DISCLOSURE STATEMENT FORM 990, PART VI, SECTION B, LINE 15A WHEN HIRING THE EXECUTIVE DIRECTOR AND OTHER KEY EMPLOYEES, AND THEREAFTER ON AN ANNUAL BASIS, THE BOARD PERFORMS A THOROUGH REVIEW TO DETERMINE SUITABLE COMPENSATION. THIS PROCESS INCLUDES A REVIEW OF COMPARABILITY DATA BY THE BOARD OF DIRECTORS. COMPARABILITY DATA INCLUDES COMPENSATION SURVEYS, WRITTEN EMPLOYMENT CONTRACTS AND FORMS 990 OF SIMILAR ORGANIZATIONS. THE BOARD RETAINS DOCUMENTATION OF THEIR DELIBERATIONS AND FINAL DECISION. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE THROUGH THE SECRETARY OF STATE. CONFLICT OF INTEREST POLICY IS AVAILABLE UPON REQUEST. FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE AND ALSO INCLUDED IN ANNUAL REPORT. FORM 990, PART XII, LINE 2C THE FINANCE & GOVERNANCE COMMITTEE SELECTS AND OVERSEES AN INDEPENDENT ACCOUNTING FIRM TO CONDUCT THE AUDIT. NO CHANGE IN THE SELECTION METHOD OCCURRED THIS YEAR.