2025-12-15T11:11:16-06:00 2025-02-28 131577780 SCHULTHEIS & PANETTIERI LLP 450 WIRELESS BLVD HAUPPAUGE NY 11788 990 2024-03-01 237191992 TOURETTE ASSOCIATION OF AMERICA INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612332 ANDREW JULIA VP OF FINANCE & ADMINISTRATION 7182242999 2025-12-15 1 1 CAROL WESTFALL P00539069 6312734778 2024 2025-03-06 01:10:19Z ANDREW JULIA 42-40 BELL BOULEVARD BAYSIDE NY 113612332 9853155 0 7202 X TOURETTE.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 19 19 38 52 0 0 4466745 4694677 138528 105365 486666 436522 -43744 0 5048195 5236564 972793 673396 0 0 3192989 3208563 0 0 734776 2438755 1917620 6604537 5799579 -1556342 -563015 10414671 9502751 2262774 1714865 8151897 7787886 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. 0 0 2225237 105365 PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS. 949883 600000 0 RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFICUNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BYPROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OFNEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS. 1124707 73396 CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION ANDCDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROMETO PHYSICIANS AND ALLIED PROFESSIONALS AND TO ENCOURAGE PHYSICIANS TOAPPLY TO THE ASSOCIATION'S REFERRAL LISTS. INCLUDES PROGRAMS TOEDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME. 126255 PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OFTOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS,SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 126255 4426082 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 40 0 1 38 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 19 19 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X ANDREW JULIA 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612332 STEPHEN BARRON CHAIRMAN OF THE BOARD 2.00 X X 0 0 0 DAVID SCHOENHAAR FIRST VICE CHAIR 2.00 X X 0 0 0 JASMINE TARKOFF SECOND VICE CHAIR 2.00 X X 0 0 0 JEFFREY KRAMER THIRD VICE CHAIR 2.00 X X 0 0 0 ALICE KANE FOURTH VICE CHAIR 2.00 X X 0 0 0 CHERI DAVID CPA DIRECTOR 2.00 X 0 0 0 MONTE REDMAN DIRECTOR 2.00 X 0 0 0 PAUL DEVORE DIRECTOR 2.00 X 0 0 0 MARC BENSON DIRECTOR 2.00 X 0 0 0 BRUCE OCHSMAN DIRECTOR 2.00 X 0 0 0 DANIEL MCGARVEY DIRECTOR 2.00 X 0 0 0 CINDY KURTZ DIRECTOR 2.00 X 0 0 0 ROVENA SCHIRLING DIRECTOR 2.00 X 0 0 0 RANDI ZEMSKY DIRECTOR 4.00 X 0 0 0 KARL VALENTINI DIRECTOR 2.00 X 0 0 0 JOHN WALKUP MD DIRECTOR 2.00 X 0 0 0 SUSAN COUREY PHD DIRECTOR 2.00 X 0 0 0 ANTHONY ACAMPORA EFF 22425 DIRECTOR 2.00 X 0 0 0 DASH MIHOK EFF 22425 DIRECTOR 2.00 X 0 0 0 AMANDA TALTY PRESIDENT & CEO 40.00 X 295326 0 14500 SONJA MASON-VIDAL VP OF FINANCE & ADM. 40.00 X 157479 0 24262 JAMES NICHOLS VP OF PUBLIC POLICY 40.00 X 92129 0 14620 SCOTT STERLING VP OF RESOURCE DEVELOPMENT & AFFILIATE SERVICES 40.00 X 69689 0 0 DIANA FELNER - THRU 12024 VP OF PUBLIC POLICY 40.00 X 10943 0 0 KARON HARRISON - THRU 101624 VP OF RESOURCE DEVELOPMENT & AFFILIATES SERVICES 40.00 X 134312 0 23059 KATRINA HERMETET VP, MEDICAL & SCIENTIFIC AFFAIRS 40.00 X 104186 0 9583 JAMES SARACINI VP, MARKETING & COMMUNICATIONS 40.00 X 145815 0 4862 1009879 0 90886 5 0 1 0 0 778099 1221509 2695069 146626 4694677 CONFERENCE INCOME 900099 105365 105365 105365 268282 268282 4582605 4414365 168240 168240 168240 202226 778099 202226 0 5236564 105365 0 436522 673396 673396 829858 590454 138701 100703 1801215 1306049 186868 308298 45652 36702 3702 5248 348614 280270 28269 40075 183224 147303 14858 21063 12819 3668 7623 1528 46000 46000 47544 47544 34988 34988 220853 176281 9311 35261 245419 153765 11723 79931 161578 108270 8965 44343 82850 40565 28809 13476 287536 249663 2512 35361 335573 335573 6597 6597 6296 3083 2189 1024 54392 30340 21334 2718 MISCELLANEOUS 224240 183772 1204 39264 UNCOLLECTABLE RECEIVABL 80000 80000 REGISTRATION FEES 40504 33803 3891 2810 CHAPTER SUPPORT 15777 15777 14654 9804 1177 3673 5799579 4426082 638721 734776 125327 115751 2605365 191049 916497 1700367 43958 252556 159664 168185 158105 16376 10080 6100707 7062228 34519 319366 263612 10414671 9502751 445542 419481 822300 699299 18327 35715 539586 200763 158810 158810 278209 200797 2262774 1714865 X 6993959 5654225 1157938 2133661 8151897 7787886 10414671 9502751 -563015 199004 0 X X 0 1 X 1 1 1 X 3462232 3971216 4496697 4466745 4694676 21091566 3462232 3971216 4496697 4466745 4694676 21091566 2308322 18783244 120737 150792 190767 280265 268282 1010843 3185 81614 197637 178630 202226 663292 22765701 592796 0.82510 0.86390 X SCHEDULE A, PART II, LINE 10 EXPLANATION FOR OTHER INCOME: 2021 AMOUNT: $61,295 2022 AMOUNT: $91,446 2023 AMOUNT: $178,630 2024 AMOUNT: $202,226 MISCELLANEOUS INCOME: 2020 AMOUNT: $3,185 2021 AMOUNT: $20,319 2022 AMOUNT: $106,191 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 35698 0 0 1 227378 0 0 263076 0 PART I-A, LINE 1: TAA ADVOCATES TO ENSURE GOVERNMENT OFFICIALS UNDERSTAND TOURETTE SYNDROME (TS) AND TIC DISORDERS (TD) AND TO ENSURE POLICIES AND REGULATIONS BEING DRAFTED, RELEASED AND FINALIZED OR SIGNED INTO LAW ARE IN THE BEST INTERESTS OF THOSE WITH TS OR TD. WE ALSO ADVOCATE TO ENSURE ADEQUATE GOVERNMENT FUNDING IS PROVIDED FOR THE CDC TOURETTE SYNDROME PUBLIC HEALTH EDUCATION AND RESEARCH PROGRAM AND AT THE NATIONAL INSTITUTES OF HEALTH'S NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE AND THE NATIONAL INSTITUTE OF MENTAL HEALTH. 580458 9053 9053 580458 474000 106458 7166 7166 580458 474000 4795 4795 474000 334000 140000 5146 5146 474000 334000 5518 5518 334000 1.00000 1 0 168185 158105 10080 10080 OPERATING LEASE LIABILITY 182908 FINANCING LEASE LIABILITY 17889 200797 X 5821240 199004 459924 -39264 619664 5201576 34988 34988 5236564 6185251 459924 459924 5725327 34988 39264 74252 5799579 PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. PART X, LINE 2: THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2025 AND FEBRUARY 29, 2024 IN ACCORDANCE WITH FASB ASC TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. PART XI, LINE 2D - OTHER ADJUSTMENTS: INDIRECT FUNDRAISING EXPENSE -39,264. PART XII, LINE 4B - OTHER ADJUSTMENTS: INDIRECT FUNDRAISING EXPENSE 39,264. GALA 772120 700000 72120 21126 58720 2900 GOLF - LI 208205 78099 130106 4017 99221 8314 7928 980325 778099 202226 25143 157941 8314 10828 202226 0 1 REGENTS OF THE UNIVERSITY OF CA (UCSD) 9500 GILMAN AVENUE LA JOLLA CA 92093 956006144 501 (C)(3) 150000 0 RESEARCH YALE UNIVERSITY 55 COLLEGE STREET NEW HAVEN CT 06520 060646973 501 (C)(3) 150000 0 RESEARCH UNIVERSITY OF MINNESOTA 2221 UNIVERSITY AVENUE SE STE 100 MINNEAPOLIS MN 55414 416007513 501 (C)(3) 150000 0 RESEARCH RUTGERS 33 KNIGHTSBRIDGE RD PISCATAWAY NJ 08854 226001086 501 (C)(3) 150000 0 RESEARCH 4 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X X 0 0 0 0 0 0 0 0 0 AMANDA TALTY PRESIDENT & CEO 294500 0 0 0 826 0 9000 0 5500 0 309826 0 0 0 SONJA MASON-VIDAL VP OF FINANCE & ADM. 157026 0 0 0 453 0 4800 0 19462 0 181741 0 0 0 KARON HARRISON - THRU 101624 VP OF RESOURCE DEVELOPMENT & AFFILIA 133880 0 0 0 432 0 4132 0 18927 0 157371 0 0 0 JAMES SARACINI VP, MARKETING & COMMUNICATIONS 145561 0 0 0 254 0 3115 0 1747 0 150677 0 0 0 X 7 146626 FMV 0 0 0 SCHEDULE M, PART I, COLUMN (B): THE NUMBER IN COLUMN B REPRESENTS THE NUMBER OF CONTRIBUTIONS. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE FORM 990. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15A THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE FOR THE OFFICERS. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR.