2014-08-05T10:18:46-05:00 2013-12-31 042571780 ALEXANDER ARONSON FINNING & CO PC 21 EAST MAIN STREET WESTBORO MA 01581 990 2013-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET NO 200 NEWTON MA 02458 MICHAEL CORKIN TREASURER 6179249997 2014-08-05 1 JOHN BUCKLEY CPA P00830631 5083669100 2014-08-04 2013 2015-11-30 17:44:51Z MICHAEL CORKIN 55 CHAPEL STREET NO 200 NEWTON MA 02458 12741681 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY (NBTS) IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS THROUGH THOUGHTFUL ENGAGEMENT WITH WORLD-RENOWNED LEADERS IN THE FIELD, OUR STAFF STRIVE TO DEEPLY UNDERSTAND THE STATE OF BRAIN TUMOR RESEARCH IN ORDER TO DESIGN TARGETED, HIGH-IMPACT RESEARCH AND PUBLIC POLICY INITIATIVES. 18 17 72 1250 0 0 8815314 9293204 0 0 143547 173742 -959220 -1123216 7999641 8343730 1570523 1672243 0 0 3805613 4103047 0 0 1104693 3011469 3755376 8387605 9530666 -387964 -1186936 7941767 6921834 2833423 3031590 5108344 3890244 X NATIONAL BRAIN TUMOR SOCIETY (NBTS) IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.THROUGH THOUGHTFUL ENGAGEMENT WITH WORLD-RENOWNED LEADERS IN THE FIELD, OUR CHIEF SCIENTIFIC OFFICER AND STAFF STRIVE TO DEEPLY UNDERSTAND THE STATE OF BRAIN TUMOR RESEARCH IN ORDER TO DESIGN TARGETED, HIGH-IMPACT RESEARCH INITIATIVES. 0 0 3240412 1579474 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY, INC. (NBTS) FOCUSES ON FUNDING TRANSFORMATIVE RESEARCH FOR BOTH ADULT AND PEDIATRIC BRAIN TUMORS WITHIN NORTH AMERICA AND DOES NOT RESTRICT ITS FUNDING BY CITY, STATE, OR INSTITUTION. ALL RESEARCH GRANTS GO THROUGH A RIGOROUS REVIEW PROCESS IN ORDER TO FUND EFFICIENT, TRANSLATIONAL, AND IMPACTFUL PROGRAMS, WHICH WILL DELIVER NEW THERAPIES AND TREATMENTS, AND ULTIMATELY THE DISCOVERY OF A CURE AS QUICKLY AS POSSIBLE. NATIONAL BRAIN TUMOR SOCIETY IS COMMITTED TO BUILDING RESEARCH PROGRAMS WHICH FOSTER COLLABORATION AND ACCELERATE SCIENTIFIC DISCOVERY, TO CREATE SIGNIFICANT IMPROVEMENTS IN THE FIELD OF BRAINTUMORS/CANCER RESEARCH. AS RESULTS, FINDINGS, AND DISCOVERIES FROM CURRENT RESEARCH PROGRAMS ARE MADE AVAILABLE, OTHER INDIVIDUALS AND ORGANIZATIONS CAN LEVERAGE THESE FINDINGS FOR ADDITIONAL AND FUTURE BRAIN TUMOR-SPECIFIC RESEARCH. 3609082 CONSTUTUENT ENGAGEMENT & COMMUNICATIONS: NATIONAL BRAIN TUMOR SOCIETY SEEKS TO INCREASE PUBLIC AWARENESS OF THE BRAIN TUMOR CAUSE, AS WELL AS EDUCATE AND CONNECT MEMBERS OF THE BRAIN TUMOR COMMUNITY TO EACH OTHER TO BRING FORTH BETTER TREATMENTS AND A CURE.NBTS OFFERS THE FOLLOWING AS A PART OF THIS PROGRAM:(1) TIMELY & RELEVANT BRAIN TUMOR NEWS & UPDATES THROUGH OUR MONTHLY NEWSLETTER (ENEWS),(2) COMPREHENSIVE WEBSITE,(3) EXTERNAL COMMUNICATIONS AND AWARENESS/EDUACTIONAL CAMPAIGNS,(4) ONLINE RESOURCES AND BRAIN TUMOR INFORMATION(5) CONFERENCES, WORKSHOPS, AND EVENTS TO FOSTER COLLABORATION AMONG KEY STAKEHOLDERS AND DELIVER EDUCATION TO PATIENTS, SURVIVORS AND FAMILIES(6) CLINICAL TRIALS MATCHING DATABASE (WITH EMERGINGMED),(7) THE ESSENTIAL GUIDE TO BRAIN TUMORS AND OTHER HELPFUL PUBLICATIONS(8) SPANISH-LANGUAGE RESOURCES AND INFORMATION, AND (11) A WIDE ARRAY OF OTHER RESOURCES FOR THOSE AFFECTED BY A BRAIN TUMOR. 1049241 PUBLIC POLICY: ADVOCACY: HAVING A UNIFIED VOICE IS CRITICAL IN IMPACTING PUBLIC POLICIES AND FUNDING FOR THE BRAIN TUMOR CAUSE. FOCUSING ON CREATING LEGISLATIVE, REGULATORY, AND POLICY CHANGE, THIS PROGRAM TAKES BOTH WHAT WE KNOW AND BELIEVE ABOUT BRAIN TUMOR RESEARCH AND THE NEEDS OF PEOPLE AFFECTED BY BRAIN TUMORS AND PUTS IT TO WORK IN THE PUBLIC POLICY ARENA. 92769 92769 7898735 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 56 0 72 1 0 0 0 0 0 0 0 0 0 0 0 0 X 18 17 0 0 1 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MA CA X X X JAMES CHARNLEY CFO 6173932816 55 CHAPEL STREET NEWTON MA 02458 MICHAEL CORKIN TREASURER 2.00 X X 0 0 0 KEN GREY BOARD MEMBER 2.00 X 0 0 0 SHEILA KILLEEN BOARD MEMBER 2.00 X 0 0 0 JEFFREY KOLODIN BOARD MEMBER 2.00 X 0 0 0 SUSAN PANNULLO MD BOARD MEMBER 2.00 X 0 0 0 ALISON ROSS ESQ BOARD MEMBER 2.00 X 0 0 0 RICHARD GENDERSON BOARD MEMBER 2.00 X 0 0 0 MICHAEL NATHANSON CHAIR 2.00 X X 0 0 0 RABBI ERIC B WISNIA BOARD MEMBER 2.00 X 0 0 0 CORD SCHLOBOHM VICE CHAIR 2.00 X X 0 0 0 SCOTT MEMMOTT ESQ BOARD MEMBER 2.00 X 0 0 0 SARAH DURHAM CLERK 2.00 X X 0 0 0 KRISTEN CAMPANA BOARD MEMBER 2.00 X 0 0 0 MICHAEL DURBIN BOARD MEMBER 2.00 X 0 0 0 JOHN FRISHKOPF BOARD MEMBER 2.00 X 0 0 0 CHANDRI NAVARRO BOARD MEMBER 2.00 X 0 0 0 STEPHEN SADLER JD BOARD MEMBER 2.00 X 0 0 0 BONNIE FELDMAN BOARD MEMBER 2.00 X 0 0 0 N PAUL TONTHAT EXECUTIVE DIRECTOR 40.00 X 212960 0 18295 JAMES CHARNLEY CFO 40.00 X 102900 0 0 CARRIE TREADWELL DIRECTOR OF RESEARCH 40.00 X 123620 0 3709 DAVID ARONS DIRECTOR OF PUBLIC POLICY 40.00 X 115394 0 14956 554874 0 36960 7 0 1 0 MORGAN LEWIS & BOCKIUS LLP 1111 PENNSYLVANIA AVE NW WASHINGTON DC 20004 LEGAL 230351 HORWITZ & COMPANY LLC 18 DURANT ST NEWTON MA 02458 CONSULTANT 134000 FILCO EVENTS 343 PALMETTO ST 3 BROOKLYN NY 11237 EVENT CONSULTING 129155 3 21679 7023850 2247675 9293204 114572 114572 3333905 3274735 59170 59170 59170 0 7023850 1123216 -1123216 -1123216 8343730 0 0 -949474 1672243 1672243 334155 230556 63501 40098 3058388 2646172 124047 288169 72380 63201 3091 6088 377212 320965 20369 35878 260912 219985 15242 25685 295434 289665 2122 3647 29540 29540 48585 48585 630665 519877 37026 73762 404596 255067 405 149124 483502 302696 43716 137090 581842 442296 39632 99914 402203 305308 40261 56634 474523 369707 22226 82590 21939 21939 140673 133890 2526 4257 20252 15709 1692 2851 TRAINING & RECRUITING 92546 73368 7122 12056 SPECIAL EVENTS 84454 0 0 84454 DUES AND SUBSCRIPTIONS 41709 38030 1283 2396 MISCELLANEOUS 2913 0 2913 0 9530666 7898735 527238 1104693 1268160 2214006 250718 50765 460534 732784 7757 6363 105860 71680 950594 670192 212299 280402 5577065 3511073 59374 54761 7941767 6921834 535421 679928 2232728 2321630 65274 30032 2833423 3031590 X 3679259 1842111 1132431 1751479 296654 296654 5108344 3890244 7941767 6921834 -1186936 -31164 0 X X 0 1 X 1 0 X 6778425 7626704 2907695 8815314 9293204 35421342 6778425 7626704 2907695 8815314 9293204 35421342 35421342 274679 338285 126698 132366 114572 986600 36407942 0.97290 0.96180 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 92331 92331 10605296 10697627 684881 171220 0 0 518852 289399 617341 684881 2110473 3165710 25481 4170 52426 92331 174408 129713 72350 154335 171220 527618 791427 298412 1987 0 300399 307008 3404 12000 298412 306106 2071 1169 307008 302499 8283 4676 306106 308473 5845 11819 302499 0.00000 0.98750 0.01250 0 0 149002 94830 54172 195197 174202 20995 606395 401160 205235 280402 X 9748771 -31163 361573 1123216 1453626 8295145 48585 48585 8343730 10966870 361573 1123216 1484789 9482081 48585 48585 9530666 PART V, LINE 4: THE SOCIETY HAS PERMANENTLY RESTRICTED NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2013 WAS INVESTED IN BOND FUNDS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS. PART X, LINE 2: THE SOCIETY FOLLOWS THE STANDARDS FOR ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH REQUIRES THE SOCIETY TO REPORT ANY UNCERTAIN TAX POSITIONS AND TO ADJUST ITS FINANCIAL STATEMENTS FOR THE IMPACT THEREOF. AS OF DECEMBER 31, 2013, THE SOCIETY DETERMINED THAT IT HAD NO TAX POSITIONS THAT DID NOT MEET THE "MORE LIKELY THAN NOT" THRESHOLD OF BEING SUSTAINED BY THE APPLICABLE TAX AUTHORITY. THE SOCIETY FILES TAX AND INFORMATION RETURNS IN THE UNITED STATES FEDERAL AND VARIOUS STATE JURISDICTIONS. THESE RETURNS ARE GENERALLY SUBJECT TO EXAMINATION BY TAX AUTHORITIES FOR THE LAST THREE YEARS. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. SCHEDULE D PART XI LINE 2D DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. ($ 1,123,216) WALK - RACE FOR HOPE - PA 959245 959245 150275 WALK - RACE FOR HOPE - DC 1467745 1467745 185950 20 4596860 4596860 786990 7023850 7023850 1123215 1123215 -1123215 1 UNIVERSITY OF MINNESOTA 420 DELAWARE STREET SE MINNEAPOLIS MN 55455 501 (C) 3 98544 RESEARCH DANA FARBERHCC 500 MAIN STREET 76-158 CAMBRIDGE MA 02139 501 (C) 3 75000 RESEARCH KOCH INSTITUTEMIT 500 MAIN STREET 76-158 CAMBRIDGE MA 02139 501 (C) 3 75000 RESEARCH AMERICAN ASSOC FOR CANCER RESEARCH 615 CHESTNUT ST 17TH FLOOR PHILADELPHIA PA 19106 501 (C) 3 90000 RESEARCH CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 501 (C) 3 137324 RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVENUE BOX 701 NEW YORK NY 10065 501 (C) 3 187500 RESEARCH SANFORD-BURNHAM MEDICAL RESEARCH INSTITUTE 10901 N TORREY PINES ROAD LA JOLLA CA 92037 501 (C) 3 187500 RESEARCH CBTRUS 244 EAST OGDEN AVENUE HINSDALE IL 60521 501 (C) 3 15000 RESEARCH MASS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 501 (C) 3 75000 RESEARCH UC SANFRANCISCO 3333 CALIFORNIA STREET - SUITE 315 SAN FRANCISCO CA 94143 501 (C) 3 70302 RESEARCH BRIGHAM AND WOMEN'S HOSPITAL 75 FRANCIS STREET BOSTON MA 02115 501 (C) 3 69000 RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVENUE BOX 701 NEW YORK NY 10065 501 (C) 3 69000 RESEARCH MOUNT SINAI SCHOOL OF MEDICINE 1 GUSTAVE L LEVY PLACE NEW YORK NY 10029 501 (C) 3 69000 RESEARCH REGENTS OF THE UNIVERSITY OF CA SAN DIEGO 9500 GILMAN DRIVE MC 0934 LA JOLLA CA 92093 501 (C) 3 69000 RESEARCH UNIVERSITY OF ALABAMA AT BIRMINGHAM 701 2OTH STREET BRIMINGHAM AL 35293 501 (C) 3 68789 RESEARCH UNIVERSITY OF FLORIDA PO BOX 115500 GAINESVILLE FL 32611 501 (C) 3 67957 RESEARCH 16 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY'S RESEARCH GRANT APPLICATION REVIEW IS A TWO-STEP PROCESS BUILT ON STANDARDS SET BY THE NATIONAL INSTITUTES OF HEALTH. LETTERS OF INTENT (LOI) ARE SUBMITTED ELECTRONICALLY AND IMMEDIATELY UNDERGO AN ADMINISTRATIVE REVIEW TO ENSURE THAT APPLICATION GUIDELINES ARE MET. MEMBERS OF THE NBTS SCIENTIFIC ADVISORY COUNCIL (SAC), LED BY THE CHAIR AND VICE CHAIR, OVERSEE THE REVIEW PROCESS FOR EACH NBTS GRANT PROGRAM. TWO REVIEWERS ARE ASSIGNED TO EACH APPLICATION: A PRIMARY REVIEWER AND SECONDARY REVIEWER. CAREFUL CONSIDERATION IS MADE TO PREVENT CONFLICT OF INTEREST BETWEEN THE REVIEWERS AND THE APPLICANTS. REVIEWERS ARE RESPONSIBLE FOR SCORING THE APPLICATION BASED ON SCIENTIFIC MERIT AND PRESENTING THE PROJECT DURING THE REVIEW TELECONFERENCES. THE REVIEW CONFERENCE IS COMPRISED OF ALL MEMBERS OF THE SAC, KEY MEMBERS OF THE RESEARCH COMMITTEE, AND SENIOR RESEARCH STAFF MEMBERS. THE SAC CHAIR FACILITATES PROJECT PRESENTATIONS (MADE BY THE REVIEWERS) AND THE ENSUING DISCUSSION AMONG SAC MEMBERS. DURING THIS REVIEW, THOSE REVIEWERS WHO ARE RECOGNIZED AS HAVING A CONFLICT OF INTEREST WITH THE APPLICANT AND/OR THE PROJECT ARE ASKED TO DISCONNECT FROM THE CALL. THEY DO NOT PARTICIPATE IN THE DISCUSSION, NOR ARE THEY PERMITTED TO SUBMIT A SCORE. AT THE END OF THE DISCUSSION, ALL SAC MEMBERS (WHO DO NOT HAVE A RECOGNIZED CONFLICT OF INTEREST) ASSIGN THE LOI A COLLECTIVE, FINAL SCORE. WHEN DISCUSSION CONCLUDES, THE FINAL SCORES ARE REVIEWED. WITH THESE SCORES, THE SAC DETERMINES THE LOIS THAT WILL BE INVITED TO SUBMIT A FULL APPLICATION. THE SCORING AND DISCUSSION PROCESS (DURING A SECOND TELECONFERENCE) OF FULL APPLICATIONS FOLLOWS THE PHASES OF THE LOI REVIEW. THE RESEARCH COMMITTEE OF THE NBTS BOARD OF DIRECTORS, IN CONSULTATION WITH SENIOR RESEARCH STAFF, REVIEWS THE SAC RECOMMENDATIONS, DISCUSSES THE FINANCIAL CONSIDERATIONS OF EACH, AND DETERMINES IF THE RESEARCH FURTHERS NBTS'S RESEARCH PORTFOLIO. THE RESEARCH COMMITTEE THEN PRESENTS THEIR FINDINGS TO THE FULL NBTS BOARD OF DIRECTORS FOR THE FINAL VOTE. SELECTED RESEARCH GRANT AWARDS ARE FORMALLY ANNOUNCED AND DISTRIBUTED AT THE NBTS ANNUAL MEETING IN THE FALL OF EACH YEAR. X X X X 0 0 0 0 0 0 0 0 0 N PAUL TONTHAT EXECUTIVE DIRECTOR 212960 0 0 0 0 0 6611 0 11684 0 231255 0 0 0 FORM 990, PART VI, SECTION A, LINE 4 THE BYLAWS WERE UPDATED TO INCREASE THE NUMBER OF BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 11 A COPY OF THE FEDERAL FORM 990 AND MASSACHUSETTS FORM PC IS EMAILED TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVEIW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE CHAIR OF THE BOARD OF DIRECTORS, IN CONJUNCTION WITH THE EXECUTIVE COMMITTEE DETERMINES THE EXECUTIVE DIRECTOR'S SALARY. IN ORDER TO DETERMINE HIS SALARY, COMPARABILITY FIGURES WERE PROVIDED TO THE EXECUTIVE COMMITTEE AND CHAIR OF THE BOARD, WHICH REPRESENTED COMPARABLE POSITIONS IN SCOPE, RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET, AND SIMILAR INDUSTRY. THE SALARY DELIBERATION WAS MADE BY THE CHAIR IN CONJUNCTION WITH THE CHAIR OF THE HR/COMPENSATION COMMITTEE. IN REGARDS TO OTHER OFFICERS AND KEY EMPLOYEES - THE H.R. MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE EXECUTIVE DIRECTOR TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE SOCIETY'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C: THE AUDIT COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITORS. CURE GBM 124 WATERTOWN STREET SUITE 2D WATERTOWN MA 02472 371703878 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC