2025-12-11T13:41:56-06:00 2025-01-31 410746749 CLIFTONLARSONALLEN LLP 950 NORTH GLEBE ROAD SUITE 1200 ARLINGTON VA 22203 990 2024-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1300 WILSON BLVD 600 ARLINGTON VA 22209 GREGORY MITCHELL CHIEF FINANCIAL OFFICER 2024078580 2025-12-10 1 1 ROBERT WILLIAMS P01345960 5712279500 2025-12-10 2024 2025-03-06 01:10:19Z THE ALS ASSOCIATION CALANEET BALAS 1300 WILSON BLVD 600 ARLINGTON VA 22209 102429753 0 X WWW.ALS.ORG X 1985 DE THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT. 25 25 528 25 0 0 124090097 65814797 0 0 1597516 1640602 762625 1127652 126450238 68583051 22892366 16679289 0 0 48337612 43300438 724225 1004746 18975773 26885374 21255164 98839577 82239637 27610661 -13656586 127891549 107245128 29759323 18270156 98132226 88974972 X THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT. 0 0 34218725 9893993 0 PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. 14717404 0 0 THE ALS ASSOCIATION DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. THE ALS ASSOCIATION'S ADVOCACY EFFORTS HELP SECURE FEDERAL AND STATE FUNDING IN SUPPORT OF ALS RESEARCH AND SUPPORT FOR PEOPLE LIVING WITH ALS. THE ADVOCACY EFFORTS INCLUDE ADVANCES IN LEGISLATION TO HELP THOSE LIVING WITH ALS NAVIGATE INSURANCE AND OTHER GOVERNMENT PROGRAMS. 7548065 6785296 0 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). 56484194 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 1 414 0 1 528 1 0 0 0 0 1 1 1 1 0 0 0 0 0 0 X 25 25 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WV WY X X GREGORY MITCHELL 2024078580 1300 WILSON BLVD SUITE 600 ARLINGTON VA 22209 SCOTT KAUFFMAN CHAIR 5.00 X X 0 0 0 LARRY FALIVENA CHAIR-ELECT 5.00 X X 0 0 0 NANCY LEAMOND VICE CHAIR (AS OF 07/24) 5.00 X X 0 0 0 FRED M DEGRANDIS VICE CHAIR (THRU 07/24)/TRUSTEE 2.00 X X 0 0 0 FRED M DEGRANDIS TRUSTEE 5.00 X X 0 0 0 SANDRA PIERSOL SECRETARY 4.00 X X 0 0 0 MARK STANCIL TREASURER 4.00 X X 0 0 0 CONNIE HOUSTON TRUSTEE 2.00 X X 0 0 0 EUGENE BRANDON PHD TRUSTEE 2.00 X 0 0 0 DAVID VAN DE RIET TRUSTEE 2.00 X 0 0 0 CHRISTI L KOLARCIK PHD TRUSTEE (THRU 07/24) 2.00 X 0 0 0 J THOMAS MAY TRUSTEE 2.00 X 0 0 0 MARK CALMES TRUSTEE (THRU 07/24) 2.00 X 0 0 0 PAUL INGHOLT TRUSTEE (THRU 07/24) 2.00 X 0 0 0 TOM CARROLL TRUSTEE 2.00 X 0 0 0 MICHAEL BENATAR TRUSTEE 2.00 X 0 0 0 PETER MCKOWN TRUSTEE 2.00 X 0 0 0 REBECCA MOSS TRUSTEE 2.00 X 0 0 0 KENTON VAN HARTEN TRUSTEE (THRU 10/24) 2.00 X 0 0 0 DOUGH BUTCHER TRUSTEE 2.00 X 0 0 0 WILLIAM SOFFELL TRUSTEE 2.00 X 0 0 0 CHRIS TONNIGES TRUSTEE 2.00 X 0 0 0 JESSE YBARRA TRUSTEE 2.00 X 0 0 0 BERNIE ZIPPRICH TRUSTEE 2.00 X 0 0 0 DANIELLE BOISVERT TRUSTEE 2.00 X 0 0 0 ANNETTE BOWMAN TRUSTEE 2.00 X 0 0 0 EVE DRYER TRUSTEE 2.00 X 0 0 0 SEDA GOFF TRUSTEE 2.00 X 0 0 0 KELLY HALL TRUSTEE 2.00 X 0 0 0 STEVE HANON TRUSTEE 2.00 X 0 0 0 CALANEET BALAS PRESIDENT AND CEO 37.50 X 491499 0 54769 GREG MITCHELL CHIEF FINANCIAL OFFICER 37.50 X 288086 0 35917 NEIL THAKUR CHIEF MISSION OFFICER 37.50 X 195440 0 36588 DEAN FEENER CHIEF INFORMATION & TECHNOLOGY OFFICER 37.50 X 264616 0 26338 BRIAN FREDERICK CHIEF MARKETING & COMMUNICATIONS OFFICER 37.50 X 250253 0 15417 PATRICK REEDY CHIEF DEVELOPMENT OFFICER 37.50 X 270892 0 81038 JENNIFER HJELLE CHIEF COMMUNITY ENGAGEMENT OFFICER 37.50 X 244313 0 31456 NICOLE ECK CHIEF STRATEGY OFFICER 37.50 X 231124 0 18093 LANCE SLAUGHTER SVP STRATEGIC ALLIANCES & GOVERNANCE 37.50 X 245671 0 46889 VICKIE LOBELLO SENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE 37.50 X 237001 0 19437 KULDIP DAVE SENIOR VICE PRESIDENT RESEARCH 37.50 X 232488 0 75573 KIMBERLY HARDING-MAGINNIS SENIOR VICE PRESIDENT CARE SERVICES 37.50 X 221492 0 32600 KEITH GARY VICE PRESIDENT MISSION ACCELERATION 37.50 X 219020 0 45964 3391895 0 520079 85 0 1 0 A NEW DIRECTION INC 1140 ELM STREET EAST SAINT JOSEPH MN 56374 SUPPORTIVE CARE 684166 BARNES & THORNBURG LLP 11 SOUTH MERIDIAN ST INDIANAPOLIS IN 46204 ATTORNEY (LEGAL SERVICES) 368718 YES& HOLDINGS LLC 1700 DIAGONAL RD SUITE 700 ALEXANDRIA VA 22314 PROFESSIONAL SERVICES IT 210300 BEACON HILL SOLUTIONS GROUP LLC PO BOX 846193 BOSTON MA 02284 TEMPORARY HELP 202964 FAEGRE DRINKER BIDDLE & REATH LLP 90 SOUTH 7TH ST PITTSBURGH PA 15253 LOBBYING CONSULTING 195300 20 1218531 17744649 10226717 36624900 1280027 65814797 1625003 1625003 2652776 2652776 30770635 30755036 15599 15599 15599 1427484 17744649 3091666 -1664182 -1664182 REGISTRATION FEES 900099 85604 85604 53454 53454 139058 68583051 0 0 2768254 8385939 8385939 5441263 5441263 2852087 2852087 2535838 962782 951865 621191 32777595 21089362 2129132 9559101 1945560 1259033 126168 560359 3432305 2205996 259241 967068 2609140 1636171 222265 750704 523847 271847 156176 95824 120967 3509 115429 2029 877487 877487 1004746 1004746 155939 152617 3322 4472748 2629996 578085 1264667 1242689 914877 566 327246 4316534 2382793 546214 1387527 1797824 1083313 158279 556232 1280625 725856 57669 497100 2964649 1407449 53221 1503979 13231 13231 1792690 568858 1072135 151697 222571 126918 22115 73538 CREDIT CARD FEES 800153 1652 2407 796094 TELECOMMUNICATIONS 431244 262318 35196 133730 BAD DEBT EXPENSE 145694 75000 69916 778 96272 1319688 57743 -1281159 82239637 56484194 6779670 18975773 X 2587000 432000 0 2155000 907434 2558923 4912160 2737275 58562559 38222377 3083190 4039888 1622166 1429577 17568500 15775821 3070233 1792679 48852801 50260252 6881006 6204157 127891549 107245128 10766484 7262521 9152201 2772243 1066957 468502 8773681 7766890 29759323 18270156 X 12447847 4771710 85684379 84203262 98132226 88974972 127891549 107245128 X -13656586 4380240 119092 X 0 1 X 1 0 X 33002036 37557524 53676289 124090097 65814797 314140743 33002036 37557524 53676289 124090097 65814797 314140743 48320619 265820124 1985828 2158934 1850075 2409226 4277779 12681842 18824 21419 119699 3120901 1562403 4843246 331665831 34050 0.80150 0.78610 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2020 AMOUNT: $ 18,824. 2021 AMOUNT: $ 21,419. 2022 AMOUNT: $ 119,699. 2023 AMOUNT: $ 89,789. 2024 AMOUNT: $ 49,315. GROSS FUNDRAISING REVENUE - 2023 AMOUNT: $ 3,031,112. 2024 AMOUNT: $ 1,427,484. REGISTRATION FEES - 2024 AMOUNT: $ 85,604. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 147081 937997 1085078 54622789 55707867 1000000 250000 0 85078 1 1000000 1000000 1000000 1000000 4000000 6000000 177409 872335 1147968 1085078 3282790 250000 250000 250000 250000 1000000 1500000 183829 152636 147081 483546 233415 233415 700961 18056 485602 233415 6509730 -503564 5305205 700961 6516315 429109 435694 6509730 6516315 669572 669572 6516315 0.00000 1.00000 0.00000 0 0 1327429 454997 872432 2309721 1610308 699413 13931350 13710516 220834 1792679 BENEFICIAL INTEREST IN PERPETUAL TRUSTS 930965 CONTRIBUTIONS RECEIVABLE FROM REMAINDER TRUSTS 91086 RIGHT OF USE ASSET 5182106 6204157 ANNUITY PAYMENT LIABILITY 910220 LEASE LIABILITIES - OPERATING 6856670 7766890 X 81987528 4380240 9061084 119092 13560416 68427112 155939 155939 68583051 91144782 9061084 9061084 82083698 155939 155939 82239637 PART V, LINE 4: IN 2013 AND 2014, THE ASSOCIATION RECEIVED A BEQUEST TOTALING $6,276,315, ESTABLISHING A TERM ENDOWMENT ACCORDING TO DESIGNATIONS MADE BY THE DONOR. THE PROCEEDS OF THIS BEQUEST ARE TO BE MAINTAINED BY THE ASSOCIATION IN AN ENDOWMENT FUND FOR A PERIOD OF TEN YEARS. EARNINGS FROM THE FUND ARE RESTRICTED TO SUPPORT RESEARCH AND MAY BE SPENT ON A CURRENT BASIS. UPON EXPIRATION OF THE ENDOWMENT TERM, THE CORPUS OF THE FUND MUST ALSO BE USED TO SUPPORT RESEARCH. DURING THE YEAR ENDED JANUARY 31, 2024, THE ASSOCIATION RELEASED THE REMAINDER OF THE FUNDS FROM THIS GIFT. IN ADDITION, THE ASSOCIATION HAS ANOTHER DONOR-RESTRICTED ENDOWMENT FUND. THE PRINCIPAL OF THE ENDOWMENT FUND IS TO BE HELD IN PERPETUITY AND THE NET EARNINGS USED TO SUPPORT RESEARCH EXPENDITURES. PART X, LINE 2: THE ASSOCIATION DID NOT HAVE ANY UNRELATED TAXABLE INCOME FOR THE YEARS ENDED JANUARY 31, 2025 AND 2024. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED THAT ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. THE ASSOCIATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 107,612. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 11,480. 1 EAST ASIA & THE PACIFIC 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RESEARCH 250000 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RESEARCH 2602087 0 0 0 0 0 0 2852087 0 2852087 EAST ASIA AND THE PACIFIC DRUG DEVELOPMENT CONTRACT 250000 WIRE TRANSFER 0 N/A N/A EUROPE CLINICAL TRIAL AWARD 500000 WIRE TRANSFER 0 N/A N/A EUROPE CLINICAL TRIAL AWARD 443374 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 300000 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 250000 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 250000 WIRE TRANSFER 0 N/A N/A EUROPE PREVENTION PROGRAM 197963 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 150000 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 150000 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 100000 WIRE TRANSFER 0 N/A N/A EUROPE STRATEGIC INITIATIVE 100000 WIRE TRANSFER 0 N/A N/A EUROPE POST DOCTORAL FELLOWSHIP 75000 WIRE TRANSFER 0 N/A N/A EUROPE POST DOCTORAL FELLOWSHIP 75000 WIRE TRANSFER 0 N/A N/A EUROPE STRATEGIC INITIATIVE 5750 WIRE TRANSFER 0 N/A N/A 15 0 0 0 0 0 0 0 PART I, LINE 2: GRANTS OUTSIDE OF THE UNITED STATES ARE FOR RESEARCH. EACH AWARD HAS SPECIFIC MILESTONE REPORTING REQUIREMENTS AS WELL AS A FINAL REPORT THAT IS SUBMITTED UPON THE END OF THE GRANT PERIOD. THESE REPORTS SHOW THAT THE WORK BEING PERFORMED CONFORMS WITH THE PURPOSE OF THE GRANT AWARD AND THAT FUNDS ARE BEING SPENT APPROPRIATELY. X X X X X X X 1 LAUTMAN MASKA NEILL & COMPANY 1730 RHODE ISLAND AVE NW SUITE 301 WASHINGTON DC 20036 FUNDRAISING COUNSEL 0 4353114 438750 3914364 STREETLIGHT DIGITAL PO BOX 75 CONIFER CO 80433 FUNDRAISING COUNSEL 0 0 565996 -565996 4353114 1004746 3348368 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY ST. LOUIS WALK TO DEFEAT ALS (WALK) 491850 453658 38192 11917 25275 NIGHT OF HOPE (GALA) 620524 452646 167878 46345 36047 76073 9413 21141 164 18059759 16838345 1221414 260812 850499 265645 109409 1379090 19172133 17744649 1427484 319074 911821 341718 118822 1400231 3091666 -1664182 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. 1 ALABAMA NEUROLOGY ASSOCIATES 3105 INDEPENDENCE DR STE 105 BIRMINGHAM AL 35209 630976742 501(C)3 35000 0 N/A N/A ANNUAL CLINIC FUNDING FY25 - STATE OF AL GRANT/ANNUAL GRANT PAYMENT FY25 RECOGNIZED TREATMENT CENTER ALLEGHENY HEALTH NETWORK 320 E NORTH AVE HEMLOCK BLDG 3RD FL PITTSBURGH PA 15212 453674924 501(C)3 25000 0 N/A N/A ANNUAL CLINIC FUNDING FY25 - PA DOH FUND AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)3 323000 0 N/A N/A CLINICAL SCIENTIST DEVELOPMENT AWARD/CLINICAL RESEARCH TRAINING FELLOWSHIP/SHELIA ESSEY AWARD ASHA THERAPEUTICS 3802 SPECTRUM BLVD STE 146 TAMPA FL 33612 873411389 501(C)3 250000 0 N/A N/A DRUG DEVELOPMENT CONTRACT ATRIUM HEALTH FOUNDATION 208 EAST BOULEVARD CHARLOTTE NC 28203 566060481 501(C)3 15000 0 N/A N/A ANNUAL GRANT PAYMENT FY25 CENTER OF EXCELLENCE/RESEARCH AUGUSTA UNIVERSITY FOUNDATION INC 1120 15TH ST EMG LAB BP-4390 AUGUSTA GA 30912 586038134 501(C)3 15000 0 N/A N/A ANNUAL GRANT PAYMENT FY25 CENTER OF EXCELLENCE/RESEARCH AUSTIN NEUROMUSCULAR CENTER 4705 SPICEWOOD SPRINGS RD AUSTIN TX 78759 463937517 501(C)3 28500 0 N/A N/A ANNUAL GRANT/DEDICATED SOCIAL WORKER FY25 AVERA MCKENNAN 1301 S CLIFF AVE STE 506 SIOUX FALLS SD 57105 460224743 501(C)3 20000 0 N/A N/A ANNUAL GRANT PAYMENT FY25 RECOGNIZED TREATMENT CENTER BAYLOR COLLEGE OF MEDICINE - 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ALL RESEARCH GRANT RECIPIENTS ARE REQUIRED TO PROVIDE PROGRESS REPORTS THROUGHOUT THE GRANT, TO CONTINUE RECEIVING ADDITIONAL PAYMENTS, AS WELL AS A FINAL REPORT DETAILING ALL EXPENDITURES UPON TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ASSOCIATION. ANY CHANGES TO THE RESEARCH GRANT BUDGET OR TIMING OF THE PROJECT MUST BE APPROVED BY ASSOCIATION STAFF. X X X X X 1 0 0 0 0 0 0 0 0 CALANEET BALAS PRESIDENT AND CEO 491499 0 0 0 0 0 25150 0 29619 0 546268 0 0 0 PATRICK REEDY CHIEF DEVELOPMENT OFFICER 270892 0 0 0 0 0 23350 0 57688 0 351930 0 0 0 GREG MITCHELL CHIEF FINANCIAL OFFICER 288086 0 0 0 0 0 21368 0 14549 0 324003 0 0 0 KULDIP DAVE SENIOR VICE PRESIDENT RESEARCH 232488 0 0 0 0 0 17717 0 57856 0 308061 0 0 0 LANCE SLAUGHTER SVP STRATEGIC ALLIANCES & GOVERNANCE 245671 0 0 0 0 0 17696 0 29193 0 292560 0 0 0 DEAN FEENER CHIEF INFORMATION & TECHNOLOGY OFFIC 264616 0 0 0 0 0 24536 0 1802 0 290954 0 0 0 JENNIFER HJELLE CHIEF COMMUNITY ENGAGEMENT OFFICER 244313 0 0 0 0 0 18052 0 13404 0 275769 0 0 0 BRIAN FREDERICK CHIEF MARKETING & COMMUNICATIONS OFF 250253 0 0 0 0 0 13652 0 1765 0 265670 0 0 0 KEITH GARY VICE PRESIDENT MISSION ACCELERATION 219020 0 0 0 0 0 16091 0 29873 0 264984 0 0 0 VICKIE LOBELLO SENIOR VICE PRESIDENT ORGANIZATIONAL 183376 0 0 0 53625 0 9926 0 9511 0 256438 0 0 0 KIMBERLY HARDING-MAGINNIS SENIOR VICE PRESIDENT CARE SERVICES 221492 0 0 0 0 0 15327 0 17273 0 254092 0 0 0 NICOLE ECK CHIEF STRATEGY OFFICER 231124 0 0 0 0 0 16378 0 1715 0 249217 0 0 0 NEIL THAKUR CHIEF MISSION OFFICER 73028 0 0 0 122412 0 8319 0 28269 0 232028 0 0 0 PART I, LINE 3 THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES THE SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. PART I, LINE 4A NEIL THAKUR RECEIVED A $122,412 SEVERANCE PAYMENT. VICKIE LOBELLO RECEIVED A $53,625 SEVERANCE PAYMENT. X 52 72483 NET PROCEEDS X 80 1207435 AVG HIGH/LOW AT DATE X CRYPTO CURRENCY 1 109 NET PROCEEDS 0 0 1 1 PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, ADVANCED REMARKETING SERVICES INC., TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. THE ASSOCIATION USES THE SERVICES OF THE GIVING BLOCK TO ACCEPT, PROCESS AND SELL CRYPTO CURRENCY DONATIONS. THE ASSOCIATION USES BANK OF AMERICA MERRILL LYNCH TO ACCEPT, PROCESS AND SELL STOCK DONATIONS. FORM 990, PART I, REVENUE: REVENUE ACTIVITY FOR THE YEAR ENDING JANUARY 31, 2024 INCLUDES A SIGNIFICANT BEQUEST GIFT FOR APPROXIMATELY $55 MILLION. THERE IS NO CORRESPONDING ACTIVITY FOR THE YEAR ENDING JANUARY 31, 2025. FORM 990, PART VI, SECTION A, LINE 1A THE BOT SHALL ESTABLISH AND MAINTAIN THE FOLLOWING STANDING COMMITTEES: A) EXECUTIVE COMMITTEE; B) FINANCE COMMITTEE; C) AUDIT COMMITTEE; D) GOVERNANCE COMMITTEE; E) CEO COMPENSATION COMMITTEE. EACH STANDING COMMITTEE, EXCEPT THE EXECUTIVE COMMITTEE, SHALL BE AN ADVISORY COMMITTEE OF THE BOT AND THE MEMBERS OF EACH STANDING COMMITTEE, EXCEPT THE EXECUTIVE COMMITTEE, MAY OR MAY NOT BE TRUSTEES. THE MEMBERS OF THE EXECUTIVE COMMITTEE SHALL BE TRUSTEES. IN ADDITION TO THE STANDING COMMITTEES, THE BOT SHALL ESTABLISH AND MAINTAIN AT LEAST THREE MISSION COMMITTEES: CARE SERVICES, ADVOCACY AND RESEARCH. EACH MISSION COMMITTEE SHALL BE AN ADVISORY COMMITTEE OF THE BOT AND THE MEMBERS OF EACH MISSION COMMITTEE MAY OR MAY NOT BE TRUSTEES. FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS REVIEWED IN ITS ENTIRETY BY THE FINANCE COMMITTEE OF THE BOARD OF TRUSTEES AND ONCE ACCEPTED AND APPROVED, THE RETURN IS PRESENTED TO ENTIRE BOARD OF TRUSTEES PRIOR TO THE SUBMISSION TO THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C ON AN ANNUAL BASIS, BOARD MEMBERS AND STAFF ARE REQUIRED TO COMPLETE A CONFLICT OF INTEREST STATEMENT, WHICH ARE TRACKED FOR COMPLETION BY MANAGEMENT. WHEN A CONFLICT IS DETERMINED TO EXIST, THE INDIVIDUAL IS NOT PERMITTED TO BE PRESENT AND VOTE ON THE MATTER IN WHICH THE CONFLICT IS PRESENT. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THE PRESIDENT AND CEO REVIEWS ALL SENIOR LEVEL MANAGEMENT AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. FORM 990, PART XI, LINE 9: CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 107,612. GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 11,480.