2014-06-26T13:54:11-05:00 2014-02-28 113518842 MARKS PANETH LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2013-03-01 237191992 TOURETTE SYNDROME ASSOCIATION INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 11361 ANNETTA HEWKO PRESIDENT 7182242999 2014-06-26 1 ROBERT R LYONS CPA P00227472 2125038800 2013 2015-11-30 17:44:51Z ANNETTA HEWKO 42-40 BELL BOULEVARD BAYSIDE NY 11361 9987125 0 X TSA-USA.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 15 15 31 64 0 0 4301410 4750321 131231 72593 415997 345443 443 36281 4849081 5204638 1858357 1729156 0 0 2630888 2827020 0 0 677764 1960575 1551170 6449820 6107346 -1600739 -902708 18600148 19286904 1268226 1511335 17331922 17775569 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 0 0 2439258 1729156 RESEARCH - IDENTIFY THE CAUSES OF TOURETTE SYNDROME, IMPROVE PATIENT CARE AND ULTIMATELY FIND A CURE FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES AND CLINICAL CARE. 1269829 72593 PUBLIC EDUCATION - PROVIDES FOR EDUCATION AND AWARENESS TO THE PUBLIC ON TOURETTE SYNDROME, AMONG OTHER THINGS, MAILING OF TOURETTE SYNDROME PAMPHLETS, BROCHURES, VIDEOS AND FILMS. 718519 CENTER FOR DISEASE CONTROL PROGRAM - THE ASSOCIATION AND CENTERS FOR DISEASE CONTROL PREVENTION (CDC) MEDICAL EDUCATION PARTNERSHIP IS PART OF A LARGER APPROPRIATION FROM THE US CONGRESS TO PROMOTE EXPERT MEDICAL EDUCATION ON TOURETTE SYNDROME (TS). THE GOALS OF THE MEDICAL EDUCATION PROGRAM ARE TO PROVIDE EXPERT EDUCATION IN TS TO PHYSICIANS AND TO ALLIED PROFESSIONALS, AND TO ENCOURAGE PHYSICIANS APPLICATION TO THE ASSOCIATION'S REFERRAL LISTS. NEW YORK COUNSELING PROGRAM - PROVIDES CASE MANAGEMENT, ADVOCACY, COUNSELING AND GROUP SESSION SERVICES TO PERSONS WITH TOURETTE SYNDROME WHO RESIDE IN NEW YORK CITY. 177848 PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 177848 4605454 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 29 0 31 1 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 1 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X JULIE NOULAS 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612820 MICHAEL WOLFF CHAIR 2.00 X X 0 0 0 ROVENA SCHIRLING FIRST VICE CHAIR 2.00 X X 0 0 0 BRUCE D OCHSMAN SECOND VICE CHAIR 2.00 X X 0 0 0 ALICE KANE THIRD VICE CHAIR 2.00 X X 0 0 0 CINDY KURTZ FOURTH VICE CHAIR 2.00 X X 0 0 0 MARCIE KIRKPATRICK LIPSITZ SECRETARY 2.00 X X 0 0 0 FRED COOK FINANCE COMMITTEE CHAIR 2.00 X X 0 0 0 BRIAN KEMPNER SECRETARY (FORMER) 2.00 X X 0 0 0 REID ASHINOFF DIRECTOR 2.00 X 0 0 0 SOL BARER DIRECTOR 2.00 X 0 0 0 PAUL S DEVORE DIRECTOR 2.00 X 0 0 0 ROBIN JOSEPHS DIRECTOR (FORMER) 2.00 X 0 0 0 LISA MATLIN DIRECTOR 2.00 X 0 0 0 KENNETH D MOELIS DIRECTOR 2.00 X 0 0 0 MONTE REDMAN DIRECTOR 2.00 X 0 0 0 ROBIN SMALL DIRECTOR 2.00 X 0 0 0 RANDI ZEMSKY DIRECTOR 2.00 X 0 0 0 JUDIT UNGAR PRESIDENT (FORMER)/SENIOR ADVISOR 35.00 X 338218 0 43573 GARY FRANK EXECUTIVE VP 35.00 X 122822 0 21487 JULIE NOULAS VP, FINANCE & TREASURER 35.00 X 117891 0 9362 KEVIN MCNAUGHT VP, MEDICAL & SCIENCE PROG 35.00 X 111617 0 20875 JOSEPH MARK LEVINE VP, DEVELOPMENT 35.00 X 100102 0 20168 DANIEL ROSTAN VP, FIELD SERVICES 35.00 X 98369 0 20001 ELRIDGE PROCTOR VP, PUBLIC POLICY 35.00 X 89941 0 7561 ANNETTA HEWKO PRESIDENT 35.00 X 142028 0 12013 1120988 0 155040 6 0 1 0 0 64020 150363 1728236 1511337 1296365 4750321 CONFERENCE INCOME 900099 58369 58369 SALE OF INFO MATERIAL 900099 14224 14224 72593 345085 345085 4125145 4124787 358 358 358 657700 1728236 657700 0 MISCELLEANEOUS INCOME 900099 36281 36281 36281 5204638 72593 0 381724 1429156 1429156 300000 300000 1315316 782560 282308 250448 1104504 726270 207463 170771 59311 38145 12848 8318 192537 127352 42787 22398 155352 100017 32169 23166 34500 34500 60125 60125 47457 5319 38193 3945 86500 85936 564 276963 182420 22212 72331 189995 99009 61263 29723 214806 161836 26357 26613 174193 174193 21705 9836 9232 2637 44202 33373 9282 1547 PRINTING AND PUBS. 191466 155820 35646 GENETIC ANALYSIS & LAB 62713 62713 MISCELLANEOUS 46086 7180 21723 17183 CHAPTER SUPPORT 45551 45551 54908 18643 23791 12474 6107346 4605454 824128 677764 396279 395764 11868407 10597427 85688 115546 185301 594015 168883 226322 230014 187057 47318 42957 5848272 7314873 18600148 19286904 580811 607676 681915 832812 5500 70847 1268226 1511335 X 16839090 16777822 166832 671747 326000 326000 17331922 17775569 18600148 19286904 -902708 1346355 0 X X 0 1 X 1 1 1 X 6716325 6910924 6586765 4301410 4750321 29265745 6716325 6910924 6586765 4301410 4750321 29265745 290215 28975530 578979 524023 467734 413354 345085 2329175 -86606 -95765 40000 443 36281 -105647 31489273 379471 0.92020 0.91830 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 19530 0 0 1 40595 0 0 60125 0 326000 1953 1953 326000 326000 3417 3417 326000 326000 5841 5841 326000 326000 6437 6437 326000 326000 8194 8194 326000 1.00000 0 0 230014 187057 42957 42957 X 6696235 1346355 145242 1491597 5204638 0 5204638 6252588 145242 145242 6107346 0 6107346 PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. PART X, LINE 2: THE ASSOCIATION HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2014 AND 2013 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. THE ASSOCIATION IS NO LONGER SUBJECT TO FEDERAL OR STATE AND LOCAL TAX EXAMINATIONS BY TAX AUTHORITIES FOR YEARS ENDED BEFORE 2011. 0 AUSTRALIA 0 0 GRANT RECIPIENT RESEARCH 75000 PORTUGAL 0 0 GRANT RECIPIENT RESEARCH 75000 ISRAEL 0 0 GRANT RECIPIENT RESEARCH 150000 0 0 0 0 0 0 300000 0 300000 ISRAEL RESEARCH GRANT 150000 CHECK AUSTRAILIA RESEARCH GRANT 75000 CHECK PORTUGAL RESEARCH GRANT 75000 CHECK 3 0 0 0 0 0 0 0 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. DINN. DANCE/JOURNALS 1254850 1148450 106400 63728 17712 14588 GOLF TOURNAMENTS 722076 478181 243895 224310 102793 3 409010 101605 307405 234569 2385936 1728236 657700 224310 63728 17712 351950 657700 0 1 JOHN HOPKINS UNIVERSITY JHU CENTRAL LOCKBOX BANK OF AMERICA 12529 COLLECTION CENTER DRIVE CHICAGO IL 60695 520595110 501(C)(3) 149912 RESEARCH YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 065081873 060646973 501(C)(3) 40000 RESEARCH UNIVERSITY OF KANSAS CENTER FOR RESEARCH ACCOUNTING SERVICES 2385 IRVING HILL ROAD LAWRENCE KS 66049 480680117 501(C)(3) 149998 RESEARCH VANDERBILT UNIVERSITY MEDICAL CENTER ACADEMIC AND RESEARCH ENTERPRISE DEPT AT 40303 ATLANTA GA 311920303 620476822 501(C)(3) 150000 RESEARCH WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY 575 LEXINGTON AVENUE 9TH FLOOR NEW YORK NY 10022 131623978 501(C)(3) 50000 RESEARCH UNIVERSITY OF FLORIDA 123 GRINTER HALL PO BOX 113001 PROJECT 105523 GAINESVILLE FL 326113001 596002052 501(C)(3) 75000 RESEARCH RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 249 UNIVERSITY AVENUE SUITE 206 NEWARK NJ 07102 226001086 501(C)(3) 40000 RESEARCH UCLA NEUROSCIENCE GENOMICS CORE UNIVERSITY OF CALIFORNIA LOS ANGELES 695 CHARLES E YOUNG DRIVE SOUTH LOS ANGELES CA 90095 946036493 501(C)(3) 301781 NIH GRANT - RESEARCH CENTER FOR HUMAN GENETIC RESEARCH - MASSACHUSETTS GENERAL HOSPITAL 185 CAMBRIDGE STREET BOSTON MA 02114 042697893 501(C)(3) 80687 NIH GRANT - RESEARCH BROAD INSTITUTE 7 CAMBRIDGE CENTER CAMBRIDGE MA 02142 263428781 501(C)(3) 381079 NIH GRANT - RESEARCH 10 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X X 0 0 0 0 0 0 0 0 0 JUDIT UNGAR PRESIDENT (FORMER)/SENIOR ADVISOR 287640 0 0 0 50578 0 0 0 43573 0 381791 0 0 0 ANNETTA HEWKO PRESIDENT 142028 0 0 0 0 0 0 0 12013 0 154041 0 0 0 FORM 990, PART VI, SECTION A, LINE 1 THIS IS A MEMBERSHIP ORGANIZATION FORM 990, PART VI, SECTION A, LINE 6 THIS IS A MEMBERSHIP ORGANIZATION FORM 990, PART VI, SECTION B, LINE 11 THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER EITHER FORMALLY APPROVES THE 990 OR OTHERWISE RAISES QUESTIONS DURING A PRESCRIBED TIME PERIOD. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 15 THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE. THE CHAIRMAN TAKES THE AMOUNTS TO THE FULL BOARD FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 FINANCIAL STATEMENTS AND ANNUAL REPORT ARE ON THE WEB. ALL OTHER POLICIES ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF INDEPENDENT ACCOUNTANT HAS NOT BEEN CHANGED FROM PRIOR YEAR.