2013-11-13T11:34:57-06:00 2013-06-30 KOESTER DISALVO AND FRIED 5587 TURNEY ROAD GARFIELD HTS OH 44125 990 2012-07-01 341018501 THE NORTHERN OHIO HEMOPHILIA FOUNDATION NORT 2168340051 5000 ROCKSIDE ROAD ROOM/SUITE 230 INDEPENDENCE OH 44131 JANET TOOLEY 2168340051 2013-11-15 true KC KOESTER 2164757844 2013-11-07 2012 2016-02-24 21:20:13Z JANET TOOLEY 5000 ROCKSIDE ROAD INDEPENDENCE OH 44131 548867 false X WWW.NOHF.ORG X 1998 OH THE NORTHERN OHIO HEMOPHILIA FOUNDATION, INC. (NOHF) IS A NON-PROFIT ORGANIZATION THAT SERVES 24 COUNTIES IN NORTHERN OHIO. NOHF IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR PEOPLE WITH GENETIC BLEEDING DISORDERS AND THEIR FAMILIES, THROUGH ADVOCACY, EDUCATION, RESEARCH AND OTHER CONSTITUENCY SERVICES. NOHF PROVIDES GROUP WORKSHOPS, INDIVIDUAL EDUCATION AND COUNSELING, EDUCATIONAL SCHOLARSHIPS, CAMPERSHIPS, EMERGENCY FINANCIAL ASSISTANCE, AND SUPPORT GROUPS FOR NEWLY DIAGNOSED FAMILIES, CHILDREN, TEENS, AND WOMEN. THE ORGANIZATION ALSO ADVOCATES FOR THE HEALTH AND OTHER NEEDS OF THE BLEEDING DISORDERS COMMUNITIES. 15 15 4 0 433971 446801 3812 3615 -1961 11470 51388 26499 487210 488385 29931 32701 0 239102 250934 0 30024 223168 207400 492201 491035 -4991 -2650 420876 406686 22648 11108 398228 395578 X THE NORTHERN OHIO HEMOPHILIA FOUNDATION, INC. (NOHF) IS A NON-PROFIT ORGANIZATION THAT SERVES 24 COUNTIES IN NORTHERN OHIO. NOHF IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR PEOPLE WITH GENETIC BLEEDING DISORDERS AND THEIR FAMILIES, THROUGH ADVOCACY, EDUCATION, RESEARCH AND OTHER CONSTITUENCY SERVICES. NOHF PROVIDES GROUP WORKSHOPS, INDIVIDUAL EDUCATION AND COUNSELING, EDUCATIONAL SCHOLARSHIPS, CAMPERSHIPS, EMERGENCY FINANCIAL ASSISTANCE, AND SUPPORT GROUPS FOR NEWLY DIAGNOSED FAMILIES, CHILDREN, TEENS, AND WOMEN. THE ORGANIZATION ALSO ADVOCATES FOR THE HEALTH AND OTHER NEEDS OF THE BLEEDING DISORDERS COMMUNITIES. false false 409736 32701 THE OBJECTIVE OF THE NORTHERN OHIO HEMOPHILIA FOUNDATION (NOHF) IS TO EQUIP ADULTS AND CHILDREN, DIAGNOSED WITH BLEEDING DISORDERS, WITH THE KNOWLEDGE, TOOLS, AND COPING SKILLS NECESSARY TO MANAGE THEIR BLEEDING DISORDERS. THIS OBJECTIVE IS ADDRESSED THROUGH THE PROVISION OF GROUP EDUCATIONAL PROGRAMS ON A WIDE VARIETY OF SUBJECTS. THE OBJECTIVE IS ALSO ACHIEVED THROUGH THE PROVISION OF SUPPORT GROUPS FOR NEWLY DIAGNOSED FAMILIES, CHILDREN AND TEENS, MALE RELATIVES, AND WOMEN. LASTLY, THE OBJECTIVE IS ADDRESSED BY PROVIDING OPPORTUNITIES FOR SELF-ADVOCACY FOR PERSONS WITH BLEEDING DISORDERS, SUPPLEMENTED BY EDUCATIONAL SCHOLARSHIPS AND OPPORTUNITIES TO ATTEND SPECIALIZED CAMPING PROGRAMS. (CONTINUED ON SCHEDULE O) THE NOHF HOSTS 12-15 GROUP EDUCATIONAL PROGRAMS EACH YEAR. TOPICS INCLUDE MANAGING JOINT DISEASE, FINANCIAL HEALTH PLANNING, MANAGING INHIBITORS AND OTHER COMPLICATIONS OF HEMOPHILIA, AND INSURANCE ISSUES. SUPPORT GROUPS INCLUDE FIRST STEP FOR NEWLY DIAGNOSED FAMILIES; CLUB CHAMPS FOR 8-12 YEAR OLD CHILDREN; TEEN EXTREME FOR YOUTH AGES 13-18; DADS IN ACTION FOR MALE RELATIVES OF CHILDREN WITH BLEEDING DISORDERS; AND THE WOMEN'S TASK FORCE. EACH SUPPORT GROUP MEETS AT LEAST FOUR TIMES PER YEAR. THE WOMEN'S TASK FORCE PROVIDES OUTREACH TO IDENTIFY UNDIAGNOSED WOMEN. IT ALSO EDUCATES HEALTHCARE PROFESSIONALS, SUCH AS DENTAL HYGIENISTS, ABOUT THE SIGNS AND SYMPTOMS OF WOMEN'S BLEEDING DISORDERS. IN ADDITION TO GROUP EDUCATION PROGRAMS AND SUPPORT GROUPS, NOHF PROVIDES APPROXIMATELY 50 EDUCATIONAL SCHOLARSHIPS AND CAMPERSHIPS TO HELP CHILDREN AND YOUTH ACHIEVE SELF- SUFFICIENCY. 409736 true true false false false false false false false true true false false false true false true false false false false false false false true false false false true false false false false false true false false false false false false false false false false false false true 0 0 true 4 true false false false false true false true true false false false false X 15 15 false false false false false false false true true false false true true true true true false true false false OH X X JANET TOOLEY 2168340051 5000 ROCKSIDE ROAD INDEPENDENCE OH 44131 LYNNE CAPRETTO 40.00 X 76017 0 0 MARLENE PIATAK 6.00 X X 0 0 0 MICHELLE ZAWADSKI 6.00 X X 0 0 0 KATELYN VANDERWYST 6.00 X X 0 0 0 JORDAN BLACK 6.00 X X 0 0 0 KENDRA ADAMS 3.00 X 0 0 0 PATSY CARMAN 3.00 X 0 0 0 CHRIS JACKOVITZ 3.00 X 0 0 0 DEBRA JONES 3.00 X 0 0 0 DAN LAZUTA 3.00 X 0 0 0 FRED LAMBERT 3.00 X 0 0 0 DAVID LINDNER 3.00 X 0 0 0 TODD PITTMAN 3.00 X 0 0 0 LISA PRADO 3.00 X 0 0 0 CHET RAMEY 3.00 X 0 0 0 DAVE RIEGER 3.00 X 0 0 0 JANET TOOLEY 40.00 X 0 0 0 76017 false false false 125348 321453 446801 MEMBERSHIP 3615 3615 3615 11470 11470 86981 125348 60482 26499 488385 3615 11470 32701 32701 77051 50083 19263 7705 132850 120984 2150 9716 24627 19702 2955 1970 16406 13125 1969 1312 3600 3600 13915 13915 20842 20842 32831 27334 2543 2954 4475 3580 537 358 21039 15996 2621 2422 24467 21810 1777 880 7560 6047 908 605 4047 3238 485 324 EDUCATIONAL PROGRAMING 54399 54399 BAD DEBTS 14702 11762 1764 1176 MISCELLANEOUS 3228 2582 388 258 AWARDS AND VOLUNTEER RECO 2295 1951 344 491035 409736 51275 30024 33734 53362 31984 21827 177001 142215 2867 1501 50633 36299 20521 14334 154769 173447 420876 406686 14141 4079 8507 7029 22648 11108 X 226799 220752 171429 174826 398228 395578 420876 406686 -2650 X true X true X true false X 308930 302940 304200 433971 446801 1796842 214563 139760 212058 98025 90596 755002 523493 442700 516258 531996 537397 2551844 2551844 4119 3493 9334 -1961 11470 26455 4119 3493 9334 -1961 11470 26455 527612 446193 525592 530035 548867 2578299 0.98970 0.98790 0.01000 0.01000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 163991 -426 1574 161991 136433 29080 1522 163991 121583 16655 1805 136433 148338 -24324 2431 121583 false false 7058 7058 43575 36299 7276 14334 ACCRUED PAYROLL EXPENSES 7029 7029 488385 488385 488385 491035 491035 491035 BLACK AND BLUE 87971 52000 35971 30508 GOLF OUTING 74171 34000 40171 29790 2 50187 39348 10839 184 212329 125348 86981 60482 60482 26499 false MEDICAL SUPPLIES 25 32701 LISA PRADO BOARD MEMBER 1093 TODD PITTMAN SON-BOARD MEMBER 526 CHET RAMEY SPOUSE-BOARD MEMBER 500 COLTON CITIES STAFF- SON 1020 ORGANIZATION'S MISSION FORM 990 - ORGANIZATION'S MISSION THE NORTHERN OHIO HEMOPHILIA FOUNDATION, INC. (NOHF) IS A NON-PROFIT ORGANIZATION THAT SERVES 24 COUNTIES IN NORTHERN OHIO. NOHF IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR PEOPLE WITH GENETIC BLEEDING DISORDERS AND THEIR FAMILIES, THROUGH ADVOCACY, EDUCATION, RESEARCH AND OTHER CONSTITUENCY SERVICES. NOHF PROVIDES GROUP WORKSHOPS, INDIVIDUAL EDUCATION AND COUNSELING, EDUCATIONAL SCHOLARSHIPS, CAMPERSHIPS, EMERGENCY FINANCIAL ASSISTANCE, AND SUPPORT GROUPS FOR NEWLY DIAGNOSED FAMILIES, CHILDREN, TEENS, AND WOMEN. THE ORGANIZATION ALSO ADVOCATES FOR THE HEALTH AND OTHER NEEDS OF THE BLEEDING DISORDERS COMMUNITIES. EXPLANATION ON VOLUNTEERS AND TYPES OF SERVICES OR BENEFITS FORM 990, PAGE 1, PART I, LINE 6 VOLUNTEERS HELP WITH FUND RAISERS FIRST ACCOMPLISHMENT DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4A MANAGING JOINT DISEASE, FINANCIAL HEALTH PLANNING, MANAGING INHIBITORS AND OTHER COMPLICATIONS OF HEMOPHILIA, AND INSURANCE ISSUES. SUPPORT GROUPS INCLUDE FIRST STEP FOR NEWLY DIAGNOSED FAMILIES; CLUB CHAMPS FOR 8-12 YEAR OLD CHILDREN; TEEN EXTREME FOR YOUTH AGES 13-18; DADS IN ACTION FOR MALE RELATIVES OF CHILDREN WITH BLEEDING DISORDERS; AND THE WOMEN'S TASK FORCE. EACH SUPPORT GROUP MEETS AT LEAST FOUR TIMES PER YEAR. THE WOMEN'S TASK FORCE PROVIDES OUTREACH TO IDENTIFY UNDIAGNOSED WOMEN. IT ALSO EDUCATES HEALTHCARE PROFESSIONALS, SUCH AS DENTAL HYGIENISTS, ABOUT THE SIGNS AND SYMPTOMS OF WOMEN'S BLEEDING DISORDERS. IN ADDITION TO GROUP EDUCATION PROGRAMS AND SUPPORT GROUPS, NOHF PROVIDES APPROXIMATELY 50 EDUCATIONAL SCHOLARSHIPS AND CAMPERSHIPS TO HELP CHILDREN AND YOUTH ACHIEVE SELF- SUFFICIENCY. ORGANIZATION'S PROCESS USED TO REVIEW FORM 990 FORM 990, PAGE 6, PART VI, LINE 11B THE FEDERAL FORM 990 WAS REVIEWED BY THE EXECUTIVE DIRECTOR AND TREASURER, THE PRESENTED TO THE BOARD FOR APPROVAL BEFORE FILING. ENFORCEMENT OF CONFLICTS POLICY FORM 990, PAGE 6, PART VI, LINE 12C WHEN A NEW BOARD MEMBER JOINS THEY ARE REQUESTED TO READ AND THEN SIGN A COPY OF THE ORGANIZATIONS CONFLICT INTEREST POLICY. ON AN ANNUAL BASIS ALL BOARD MEMBERS ARE REQUESTED TO UPDATE ANY CONFLICTS IF ANY. COMPENSATION PROCESS FOR TOP OFFICIAL FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE DIRECTOR'S SALARY IS DETERMINED BY AND APPROVED BY THE BOARD. GOVERNING DOCUMENTS DISCLOSURE EXPLANATION FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC VIA WRITTEN REQUEST.