2013-10-31T10:39:11-05:00 2013-06-30 930900579 MCDONALD JACOBS PC 520 SW YAMHILL STE 500 PORTLAND OR 97204 990 2012-07-01 930571472 NATIONAL PSORIASIS FOUNDATION NATI 5032447404 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 RANDY BERANEK 5032447404 2013-10-17 1 SANG AHN P00540880 5032270581 2012 2016-03-07 17:11:31Z RANDY BERANEK 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 8128906 0 X WWW.PSORIASIS.ORG X 1968 OR TO FIND A CURE FOR PSORIASIS AND PSORIATIC ARTHRITIS AND TO ELIMINATE THEIR DEVASTATING EFFECTS THROUGH RESEARCH, ADVOCACY AND EDUCATION. 16 16 62 8241 637381 0 8320465 6743692 820067 672786 82622 277184 -262042 -134118 8961112 7559544 1661989 1463175 0 0 3495676 3585051 25820 27384 1127599 2485734 2595758 7669219 7671368 1291893 -111824 7453451 7393252 367661 499099 7085790 6894153 X TO FIND A CURE FOR PSORIASIS AND PSORIATIC ARTHRITIS AND TO ELIMINATE THEIR DEVASTATING EFFECTS THROUGH RESEARCH, ADVOCACY, AND EDUCATION. 0 0 6113842 1463175 35405 EDUCATION, OUTREACH, AND PATIENT SERVICES:PROVIDED COMPREHENSIVE RESOURCES AT WWW.PSORIASIS.ORG AND OTHER SITES FOR MORE THAN 2.9 MILLION VISITORS, INCLUDING MORE THAN 1.4 MILLION WHO CONNECTED THROUGH OUR ONLINE COMMUNITIES AND SOCIAL MEDIA.PUBLISHED INFORMATION ON LIVING WELL WITH PSORIATIC DISEASES, AS WELL AS THE LATEST SCIENCE AND TREATMENT UPDATES FOR SOME 165,000 READERS OF PSORIASIS ADVANCE MAGAZINE AND OTHER PRINT PUBLICATIONS.SENT EDUCATIONAL E-NEWSLETTERS TO MORE THAN 225,000 SUBSCRIBERS.HOSTED 20 MORE THAN SKIN DEEP AND 4 BE JOINT SMART EDUCATIONAL EVENTS, ATTRACTING MORE THAN 850 PARTICIPANTS.PRODUCED EIGHT WEBINARS TO PROVIDE NEARLY 4,000 VIEWERS WITH DETAILED INFORMATION FROM LEADING EXPERTS ON SPECIFIC ASPECTS OF PSORIATIC DISEASES.PROVIDED SUPPORT AND INFORMATION FOR NEARLY 3,500 THROUGH ONE TO ONE MENTOR PROGRAM AND DIRECT RESPONSES TO INDIVIDUAL REQUESTS FOR INFORMATION ON HEALTH, TREATMENT, INSURANCE AND OTHER ISSUES. RESEARCH AND PROFESSIONAL EDUCATION:ANNOUNCED 25 GRANT AWARDS TO DIRECTLY FUND CUTTING-EDGE RESEARCH: FIVE ONE-YEAR DISCOVERY GRANTS; ONE TWO-YEAR TRANSLATIONAL GRANTS (YEAR 1); SIX TWO-YEAR TRANSLATIONAL GRANTS (YEAR 2) AND 13 ONE-YEAR RESEARCH FELLOWSHIPS--TOTALING MORE THAN $1.46 MILLION.SAW SUCCESS FROM PREVIOUS YEARS' GRANTS AS RECIPIENTS PUBLISHED GROUND-BREAKING RESULTS OF FOUNDATION-FUNDED RESEARCH AND EARNED GRANTS FROM THE NATIONAL INSTITUTES OF HEALTH TO CONTINUE THEIR STUDIES.SURPASSED A TOTAL 2,500 DNA SAMPLES COLLECTED FOR THE NATIONAL PSORIASIS VICTOR HENSCHEL BIOBANK, THE PRIMARY SOURCE OF GENETIC MATERIAL FOR PSORIATIC DISEASE RESEARCHERS.PUBLISHED PSORIASIS FORUM, A PEER-REVIEWED MEDICAL JOURNAL, TO PROVIDE APPROXIMATELY 6,000 RHEUMATOLOGISTS, DERMATOLOGISTS AND OTHER MEDICAL PROFESSIONALS WITH THE LATEST RESEARCH AND TREATMENT INFORMATION.HOSTED A CONFERENCE TO BRING LEADING PSORIASIS RESEARCHERS AND CLINICIANS TOGETHER TO SHARE THEIR KNOWLEDGE WITH MORE THAN 100 DERMATOLOGY RESIDENTS. ADVOCACY AND GOVERNMENT RELATIONS:SINCE 2010, APPROXIMATELY 547,875 PEOPLE WITH PSORIATIC DISEASE RECEIVED BETTER INSUANCE COVERAGE AND ACCESS TO CARE AS A DIRECT RESULT OF NPF ADVOCACY EFFORTS.BROUGHT NEARLY 30 PATIENT ADVOCATES, TOP RESEARCHERS AND NPF EXPERTS TO WASHINGTON D.C. TO MEET WITH 50 CONGRESSIONAL OFFICES FROM 13 STATES TO URGE CONTINUED FEDERAL SUPPORT OF PSORIASIS AND PSORIATIC ARTHRITIS RESEARCH AND THE IMPLEMENTATION OF THE FIRST EVER PSORIASIS AND PSORIATIC ARTHRITIS PUBLIC HEALTH AGENDA (RELEASED BY THE CENTERS FOR DISEASE CONTROL AND PREVENTION IN FEBRUARY 2013). ADDITIONALLY, THE SCIENTIST PARTICIPANTS MET WITH 12 LEADERS FROM FIVE DIFFERENT INSTITUTES OF THE NATIONAL INSTITUTES OF HEATH (NIH) IN BETHESDA, MD TO DISCUSS ADVANCING PSORIATIC DISEASE RESEARCH.NATIONAL PSORIASIS FOUNDATION AND THE AMERICAN HEART ASSOCIATION HOSTED A CONGRESSIONAL BRIEFING WITH MORE THAN 30 CONGRESSIONAL STAFF TO HIGHLIGHT THE ELEVATED RISK OF OTHER CHRONIC AND SERIOUS HEALTH CONDITIONS FOR PEOPLE LIVING WITH PSORIASIS AND PSORIATIC ARTHRITIS. THE DIRECTOR OF THE NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN DISEASES (NIAMS) KEYNOTED THE BRIEFING AND SHARED THE LATEST IN PSORIATIC DISEASE RESEARCH FROM THE NATIONAL INSTITUTES OF HEALTH.THE NPF'S NETWORK OF MORE THANK 80,000 ADVOCATES WORKED TO SHAPE LAWS AND POLICIES THAT WILL POSITIVELY IMPACT PEOPLE LIVING WITH PSORIATIC DISEASES, NPF ADVOCATES WORKED TO INCREASE FUNDING FOR RESEARCH, IMPROVE ACCESS TO CARE AND NEW TREATMENTS AND REDUCE OUT-OF-POCKET MEDICAL EXPENSES. PROFESSIONAL EDUCATION PROGRAMS DESIGNED TO IMPROVE THE DELIVERY OF PSORIASIS CARE BY HEALTH PROFESSIONALS. THE FOUNDATION'S PROGRAMS INCLUDE PSORIASIS FORUM NEWSLETTER AND EXHIBITS AT PROFESSIONAL CONVENTIONS. 6113842 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 0 0 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 44 0 62 1 1 1 0 0 0 0 1 1 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X BETTE DRAKE 5032447404 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 DANIEL E FARRINGTON 1.00 X X 0 0 0 KRISTA KELLOGG 1.00 X X 0 0 0 MARK S LILLIE 1.00 X X 0 0 0 CHIP NEWTON 1.00 X X 0 0 0 ERIC KIMBLE 1.00 X X 0 0 0 RICK SEIDEN 1.00 X X 0 0 0 STEVE BISHKOFF 1.00 X 0 0 0 COLBY EVANS MD 1.00 X 0 0 0 KATHLEEN GALLANT 1.00 X 0 0 0 LAWRENCE GREEN MD 1.00 X 0 0 0 HOLLY FIELDS KRAFSUR 1.00 X 0 0 0 SARAH KURTS PA-C 1.00 X 0 0 0 MIKE LAUB 1.00 X 0 0 0 MARK LEBWOHL MD 1.00 X 0 0 0 PETE REDDING 1.00 X 0 0 0 TERRI THEISEN 1.00 X 0 0 0 RANDY BERANEK 40.00 X 276613 0 18552 WILLIAM CARDAMON 40.00 X 206014 0 16812 SALLY NORBY 40.00 X 102189 0 15653 584816 0 51017 3 0 1 0 DRINKER BIDDLE REATH LLP ONE LOGAN SQUARE SUITE 2000 PHILIDELPHIA PA 19103 CONSULTING 199248 INTEGRATED PUBLISHING SALES LLC 519 SPICEBUSH LANE CHAGRIN FALLS OH 44023 CONSULTING 124453 2 86310 1694071 4963311 117407 6743692 ADVERTISING INCOME 541800 637381 637381 FEES FROM SURVEY PANEL 561000 21380 21380 EDUCATION CONFERENCES 532000 13700 13700 CONFERENCE REGISTRATIO 611710 325 325 672786 84774 84774 617484 425074 192410 192410 192410 0 1694071 137512 -137512 -137512 10170 6776 3394 3394 7559544 38799 637381 139672 1226175 1226175 237000 237000 504850 393783 30291 80776 2279780 1778228 136787 364765 99276 77435 5957 15884 466341 363746 27980 74615 234804 183147 14088 37569 18659 15915 1087 1657 181052 181052 27384 27384 564687 478389 45020 41278 24112 21785 2327 628673 357026 30925 240722 259162 202031 15541 41590 394861 217130 78293 99438 349048 292653 39237 17158 10456 8156 627 1673 32780 25568 1967 5245 SPECIAL EVENTS 53689 53689 DUES & SUBSCRIPTIONS 45387 34807 832 9748 STAFF EDUCATION & TRAIN 13569 10966 710 1893 REPORTING & FILING FEES 9734 7593 585 1556 9889 1257 8632 7671368 6113842 429927 1127599 X 161438 94502 0 66936 995915 81475 2712006 1339286 968614 1051609 172777 180491 25290 21585 92854 182247 553926 519728 38078 34198 2420519 4476414 27398 25947 7453451 7393252 348291 439659 19370 53675 0 5765 367661 499099 X 5223157 5064501 1862633 1829652 7085790 6894153 7453451 7393252 -111824 -79812 0 X X 0 1 X 1 0 X 4497080 5509700 6190828 8320464 6743692 31261764 4497080 5509700 6190828 8320464 6743692 31261764 10651626 20610138 112826 73409 82130 82622 84774 435761 31697525 0.65020 0.62610 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 28318 333055 361373 6182395 6543768 477188 119297 0 0 472758 496550 477977 477188 1924473 2886710 347625 456996 354968 361373 1520962 118190 124138 119494 119297 481119 721679 11906 13135 18016 28318 71375 4433255 506647 159508 260000 4839410 2578880 1872185 72190 90000 4433255 2193590 288450 202725 105885 2578880 431146 1749437 13007 2193590 428946 3259 1059 431146 1 0 12898 11406 1492 541028 508322 32706 34198 DEFERRED RENT 5765 5765 7486508 -73036 -73036 7559544 0 7559544 7678145 6776 6776 7671369 0 7671369 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE ENDOWMENT WILL BE USED FOR SUPPORT OF THE ORGANIZATION'S EXEMPT PURPOSE, LIMITED TO FIVE PERCENT OF PRINCIPAL PER YEAR, AS WELL AS SUBJECT TO APPROVAL. PART XI, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES 6,776. UNREALIZED LOSSES ON INVESTMENTS -79,812. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES 6,776. 1 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTS TO RECIPIENTS RESEARCH 237000 0 0 0 0 0 0 237000 0 237000 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 50000 CHECK COST EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 50000 CHECK COST EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 100000 CHECK COST EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 37000 CHECK COST 0 4 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE CHIEF SCIENCE AND MEDICAL OFFICER OF THE NATIONAL PSORIASIS FOUNDATION. X X X X X X 1 ARIA COMMUNICATIONS 717 WEST ST GERMAIN STREET ST CLOUD MN 56301 12 MONTH PHONE CAMPAIGN, FROM MAY 2012 TO APRIL 2013 0 117231 27384 89847 117231 27384 89847 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY WALK FOR A CURE 1265021 1265021 65261 10389 38824 COMMIT TO CURE GALA 429050 429050 1694071 1694071 65261 10389 38824 114474 -114474 EXPLANATION OF FUNDRAISING PAYMENTS SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE AGREEMENT WITH FUNDRAISER PROVIDED THAT POSTAGE AND PRINTING WERE PAID SEPARATELY FROM OTHER FEES, IN THE AMOUNT OF $7,384. ENTIRE AMOUNT PAID TO FUNDRAISER IS LISTED ABOVE. 1 CASE WESTERN RESERVE UNIVERSITY CWRU 10900 EUCLID AVE CLEVELAND OH 44106 341018992 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST RM P-221 PHILADELPHIA PA 19104 231352685 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS NYU SCHOOL OF MEDICINE PO BOX 4105026 BOSTON MA 02241 135562308 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS MEDICAL COLLEGE OF WISCONSIN FEC 4100 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)(3) 100000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 S STATE ST ROOM 1054 ANN ARBOR MI 98109 386006309 501(C)(3) 100000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS UNIVESITY OF LOUISVILLE SCHOOL OF MEDICINE 505 S HANCOCK STREET STE 319 LOUISVILLE KY 40202 611029626 501(C)(3) 100000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS BAYLOR RESEARCH INSTITUTE 3310 LOVE OAK STE 501 DALLAS TX 75204 751921898 501(C)(3) 140000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS THE BRIGHAM & WOMEN'S HOSPITAL INC 75 FRANCIS ST BOSTON MA 02115 042312909 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS UNIVERSITY OF UTAH 30 N 1900 E 4A330 SCHOOL OF MEDICINE SALT LAKE CITY UT 84132 876000525 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DR 0041 LA JOLLA CA 92093 956006144 501(C)(3) 80000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS TUFTS MEDICAL CENTER 200 HARRISON AVE BOSTON MA 02111 042103634 501(C)(3) 100000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS UNIVERSITY HOSPITALS OF CLEVELAND PO BOX 74420 CLEVELAND OH 44194 341567805 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS NORTHWESTERN UNIVERSITY 1801 MAPLE AVE 2ND FL STE 2410 CHICAGO IL 60611 362167817 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS MOUNT SINAI SCHOOL OF MEDICINE 5 EAST 98TH ST BOX 1048 NEW YORK NY 10029 136171197 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS TUFTS MEDICAL CENTER 800 WASHINGTON ST BOX 817 BOSTON MA 02111 043400617 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS LELAND STANFORD JUNIOR UNIVERSITY 3145 PORTER DRIVE PALO ALTO CA 94304 941156365 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS OHIO STATE UNIVERSITY 300 W 10TH AVE COLUMBUS OH 43210 316025986 501(C)(3) 40000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS COLUMBIA UNIVERSITY 1150 ST NICHOLAS AVR ROOM 313 NEW YORK NY 10032 135598093 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS PORTLAND VA RESEARCH FOUNDATION PO BOX 69539 PORTLAND OR 97239 943090170 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010211513 501(C)(3) 63000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS 20 0 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE CHIEF SCIENCE AND MEDICAL OFFICER OF THE NATIONAL PSORIASIS FOUNDATION. X X X 0 0 0 0 0 0 0 0 0 RANDY BERANEK 254363 0 22250 0 0 0 11354 0 7198 0 295165 0 0 0 WILLIAM CARDAMON 192652 0 13362 0 0 0 9633 0 7179 0 222826 0 0 0 X 10 117407 SELLING PRICE 0 1 1 THIRD PARTY USE: PART I, LINE 32B: THE ORGANIZATION USES AN OUTSIDE COMPANY THAT RECEIVES DONATED AUTOMOBILES AND SELLS THEM ON BEHALF OF THE ORGANIZATION. FORM 990, PART VI, SECTION B, LINE 11 A COMPLETE COPY OF THE FORM 990 IS E-MAILED TO ALL TRUSTEES PRIOR TO BEING FILED ELECTRONICALLY. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED BY ALL TRUSTEES ANNUALLY. ALL TRUSTEES AND KEY EMPLOYEES REFRAIN FROM VOTING OR COMMENTING ON ANYTHING WHERE THERE COULD BE A CONFLICT. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF TRUSTEES ANNUALLY REVIEWS AND APPROVES THE CEO'S COMPENSATION. THE FOUNDATION UTILIZES AN INDEPENDENT COMPENSATION CONSULTANT AND SUBSCRIBES TO A SALARY SURVEY FOR COMPARABLE INFORMATION FOR SALARIES. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AUDTIED FINANCIAL STATEMENTS ARE ALSO DISPLAYED ON THE WEBSITE. FROM 990, PART XII, LINE 2C PROCESS HAS NOT CHANGED FROM PRIOR YEAR.