2026-02-06T10:12:31-06:00 2025-06-30 541487262 MATTHEWS CARTER & BOYCE 12730 FAIR LAKES CIRCLE SUITE 510 FAIRFAX VA 22033 990 2024-07-01 113485631 THE CHILDREN'S CANCER CAUSE INC CHIL 2025527392 1455 PENNSYLVANIA AVENUE NW 400 WASHINGTON DC 20004 STEVE WOSAHLA CHIEF EXECUTIVE OFFICER 2025527392 2026-02-02 1 0 X KATHLEEN M FLAHERTY P00969957 7032183600 2026-02-02 2024 2025-03-06 01:10:19Z X STEVE WOSAHLA 1455 PENNSYLVANIA AVENUE NW 400 WASHINGTON DC 20004 1170294 0 X WWW.CHILDRENSCANCERCAUSE.ORG X 1999 NY THE MISSION OF CHILDREN'S CANCER CAUSE IS TO CHAMPION POLICIES AND PROGRAMS THAT IMPROVE THE LIVES OF CHILDREN WITH CANCER AND SURVIVORS. 21 21 2 1500 0 0 558254 1061999 0 0 76335 85707 0 0 634589 1147706 20000 20000 0 0 529565 515608 0 0 204302 361069 435688 910634 971296 -276045 176410 992476 1182778 67959 70285 924517 1112493 X THE MISSION OF CHILDREN'S CANCER CAUSE IS TO CHAMPION POLICIES AND PROGRAMS THAT IMPROVE THE LIVES OF CHILDREN WITH CANCER AND SURVIVORS. 0 0 693444 20000 ADVOCACY EDUCATION: THE ORGANIZATION LEADS SEVERAL ACTIVITIES FOCUSED ON EDUCATING PATIENTS, SURVIVORS, AND THEIR FAMILIES ABOUT THE IMPACT OF FEDERAL AND STATE HEALTH POLICY ON CHILDHOOD CANCER AND SURVIVORSHIP CARE. EDUCATIONAL PROGRAMS INCLUDE MONTHLY NEWSLETTERS, EMAIL ALERTS ON PENDING LEGISLATION AND A TOOLKIT PROVIDING STRATEGIES AND TACTICS ON EFFECTIVE ADVOCACY. THE ORGANIZATION WORKS TO EDUCATE LEGISLATIVE AND REGULATORY DECISION MAKERS ON THE CHILDHOOD CANCER EXPERIENCE AND POLICY NEEDS. EACH MONTH THE ORGANIZATION ENGAGES IN A THOUGHTFUL, ANALYTICAL PROCESS REVIEWING TIMELY AND RELEVANT POLICY ISSUES IMPACTING CHILDREN WITH CANCER. THIS INFORMATION IS DISTRIBUTED THROUGH A VARIETY OF ELECTRONIC MEDIA TO PATIENTS, SURVIVORS AND FAMILIES AND INFORMS THE POLICY AGENDA FOR THE ORGANIZATION AND OTHER CHILDHOOD CANCER FOUNDATIONS.WE PROMOTE POLICIES AND PROGRAMS THAT AIM TO ACCELERATE THE DEVELOPMENT OF SAFER, MORE EFFECTIVE CANCER THERAPIES FOR CHILDREN AND BETTER ADDRESS THE UNIQUE NEEDS AND LIFELONG HEALTH CHALLENGES EXPERIENCED BY CHILDHOOD CANCER SURVIVORS AND THEIR FAMILIES.CHILDREN'S CANCER AWARENESS AND ADVOCACY DAY: THIS DAY BRINGS TOGETHER PEDIATRIC PATIENTS, YOUNG ADULT SURVIVORS, AND FAMILIES FOR A DAY OF MOBILIZING AGAINST CHILDHOOD CANCER. THE ORGANIZATION PARTNERS WITH OTHER ORGANIZATIONS TO OFFER A TRAINING WORKSHOP FOR THE LOBBY DAY WHICH FAMILIARIZES SURVIVORS WITH THE FEDERAL LEGISLATIVE AND APPROPRIATIONS PROCESS AND INSTRUCTS ATTENDEES ON EFFECTIVE MESSAGING STRATEGIES FOR VISITS WITH CONGRESSIONAL MEMBERS AND STAFF. PUBLIC POLICY ADVOCACY: WORKING CLOSELY WITH LEADERS IN CONGRESS, FEDERAL AGENCIES, INDUSTRY, AND THE BROADER CANCER COMMUNITY, WE SERVE AS A DEDICATED VOICE OF CHILDREN WITH CANCER, FAMILIES, AND SURVIVORS IN NATIONAL DEBATES ON HEALTH CARE AND CANCER POLICY. THROUGH GRASSROOTS ADVOCACY AND PRESENTATIONS TO GOVERNMENT AGENCIES, POLICY MAKERS, COALITIONS, AND STAKEHOLDERS, THIS PROGRAM PROVIDES INFORMATION ON THE IMPACT OF FEDERAL POLICY ON CHILDREN WITH CANCER AND SURVIVORS. THE PURPOSE IS TO FACILITATE THE DEVELOPMENT AND APPROVAL OF MORE EFFECTIVE AND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER AND ENSURES APPROPRIATE CARE FOR SURVIVORS THROUGH EDUCATION ON THE BARRIERS TO DRUG DEVELOPMENT AND THE CONSEQUENCES OF CURRENT TREATMENTS. WORKING CLOSELY WITH LEADERS IN CONGRESS, FEDERAL AGENCIES, INDUSTRY, AND THE BROADER CANCER COMMUNITY, WE SERVE AS A DEDICATED VOICE OF CHILDREN WITH CANCER, FAMILIES, AND SURVIVORS IN NATIONAL DEBATES ON HEALTH CARE AND CANCER POLICY. THE ORGANIZATION ALSO UTILIZES WEBSITE EDUCATION, AN ADVOCACY TOOLKIT AND MONTHLY NEWSLETTERS TO FACILITATE ITS CAUSE. IN ADDITION THE ORGANIZATION HAS INITIATED A 'COLLEGE SCHOLARS' PROGRAM PROVIDING SCHOLARSHIPS TO SURVIVORS OF CHILDHOOD CANCER. 693444 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 1 2 1 0 0 0 0 0 0 0 0 0 0 0 0 X 21 21 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 1 0 MD NY X X STEVE WOSAHLA 2025527392 1455 PENNSYLVANIA AVENUE NW 400 WASHINGTON DC 20004 SUSAN L WEINER PHD FOUNDER 3.00 X X 0 0 0 SUSAN SCHERR BOARD SECRETARY 0.50 X X 0 0 0 ADAM ROSEN JD CHAIR 0.50 X X 0 0 0 WYLIE D CHEN TREASURER 0.50 X X 0 0 0 MARY MCCABE RN MA VICE CHAIR 0.50 X X 0 0 0 LARRY HAUSNER VICE CHAIR 0.50 X X 0 0 0 MARK CORNFELD MD MPH DIRECTOR 0.25 X 0 0 0 DANIELLE FRIEDMAN MD DIRECTOR (EFFECTIVE 6/9/25) 0.25 X 0 0 0 ALBERT AJ ALLEN MD PHD DIRECTOR (EFFECTIVE 6/9/25) 0.25 X 0 0 0 JENNIFER NIEDERMEYER DIRECTOR 0.25 X 0 0 0 BETH SILBER DIRECTOR 0.25 X 0 0 0 NANCY STEWART DIRECTOR 0.25 X 0 0 0 ERIC KOBRICK DIRECTOR 0.25 X 0 0 0 LYNN BAYARD JD DIRECTOR 0.25 X 0 0 0 LEANN JACKSON DIRECTOR 0.25 X 0 0 0 MICHAEL P LINK MD DIRECTOR 0.25 X 0 0 0 LORI SALLEY RING DIRECTOR 0.25 X 0 0 0 JASON YUSTEIN MD PHD DIRECTOR 0.25 X 0 0 0 DANIEL WECHSLER MD PHD DIRECTOR 0.25 X 0 0 0 GREGORY H REAMAN MD FASCO DIRECTOR 0.25 X 0 0 0 PAMELA HINDS RN PHD FAAN DIRECTOR (EFFECTIVE 6/9/25) 0.25 X 0 0 0 STEVE WOSAHALA CHIEF EXECUTIVE OFFICER 40.00 X 246100 0 29386 CHARLCIE STEUBLE DIRECTOR, DONOR ENGAGEMENT 40.00 X 126880 0 16854 372980 0 46240 2 0 1 0 0 1061999 10918 1061999 20995 20995 87300 22588 64712 64712 64712 1147706 0 0 85707 10000 10000 10000 10000 276008 199430 20977 55601 202513 146326 15391 40796 3807 2751 289 767 7377 5330 561 1486 25903 18716 1969 5218 16513 16513 80938 61362 16825 2751 162603 77826 84777 44469 20540 13725 10204 1937 1410 138 389 7307 4767 1973 567 49122 49122 563 274 215 74 1163 16 1147 COGS-PROGRAMS/EVENTS 59597 59320 277 0 DUES AND SUBSCRIPTIONS 11476 9741 63 1672 971296 693444 73550 204302 106404 106993 21281 239843 21241 29455 10537 10292 808 245 842662 806162 80 80 992476 1182778 67959 70285 67959 70285 X 726810 634167 197707 478326 924517 1112493 992476 1182778 176410 11566 0 X 0 1 X 0 0 X 996581 615031 717275 558254 1061999 3949140 996581 615031 717275 558254 1061999 3949140 215053 3734087 20448 29791 35604 26454 20995 133292 4082432 0.91470 0.94640 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 10537 10292 245 245 X 1180272 11566 21000 32566 1147706 0 1147706 992296 21000 21000 971296 0 971296 PART X, LINE 2: THE ORGANIZATION HAS ADOPTED FASB ASC 740, INCOME TAXES. FASB ASC 740 REQUIRES CHANGES IN RECOGNITION AND MEASUREMENT FOR UNCERTAIN TAX POSITIONS. THE ORGANIZATION HAS ANALYZED ITS TAX POSITIONS, AND HAS CONCLUDED THAT NO LIABILITY SHOULD BE RECORDED RELATED TO ANY UNCERTAIN TAX POSITIONS. THE ORGANIZATION IS NOT AWARE OF ANY TAX POSITIONS WHICH IT BELIEVES WILL CHANGE MATERIALLY IN THE NEXT TWELVE MONTHS. IF THIS POSITION CHANGES, THE ORGANIZATION WILL ASSESS THE IMPACT OF ANY SUCH MATTERS ON ITS FINANCIAL POSITION AND RESULTS OF OPERATIONS. 1 PENN STATE HEALTH CHILDREN'S HOSPITAL 500 UNIVERSITY DRIVE HERSHEY PA 17033 473769205 501 (C)(3) 10000 0 MAKING SIGNIFICANT ADVANCES IN PROGRAMS AND SERVICES TO PROVIDE LIFE-LONG HEALTH MAINTENANCE FOR SURVIVORS OF PEDIATRIC CANCERS. 2 RESEARCH AWARD 1 10000 OUTSTANDING ACHIEVEMENT IN PEDIATRIC POLICY AND ADVOCACY PART I, LINE 2: THE GRANT IS A RECOGNITION AWARD TO MEDICAL OR SCIENTIFIC PROFESSIONALS WHO HAVE MADE NOTEWORTHY CONTRIBUTIONS TO THE FIELD OF PEDIATRIC CANCER RESEARCH OR CARE. AWARDEES ARE SELECTED THROUGH A COMPETITIVE PROCESS AND GRANT FUNDING IS INTENDED TO SUPPORT ADDITIONAL CHILDHOOD CANCER RESEARCH OR CARE INITIATIVES. X 0 0 0 0 0 0 0 0 0 STEVE WOSAHALA CHIEF EXECUTIVE OFFICER 246100 0 0 0 0 0 7383 0 22003 0 275486 0 0 0 FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION WILL PROVIDE A COPY OF THIS FORM 990 TO MEMBERS OF THE GOVERNING BODY BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C THE PROCEDURES SECTION OF THE CONFLICTS OF INTEREST POLICY PROVIDES A DUTY TO DISCLOSE REQUIRING THAT UPON FIRST KNOWLEDGE BY AN INTERESTED PERSON THAT THE BOARD OR A COMMITTEE THEREOF IS CONSIDERING OR HAS CONSIDERED A TRANSACTION OR ARRANGEMENT WITH AN ENTITY OR INDIVIDUAL WITH WHICH THE INTERESTED PERSON HAS AN INTEREST, THE INTERESTED PERSON MUST DISCLOSE THE EXISTENCE AND NATURE OF HIS OR HER INTEREST TO THE BOARD OR THE COMMITTEE OF THE BOARD CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. FURTHER, THE POLICY PROVIDES FOR PERIODIC REVIEWS TO ENSURE THAT THE CORPORATION OPERATES IN A MANNER CONSISTENT WITH ITS CHARITABLE PURPOSES AND THAT IT DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS STATUS AS AN ORGANIZATION EXEMPT FROM FEDERAL TAX, PERIODIC REVIEWS SHALL BE CONDUCTED THAT SHALL, AT A MINIMUM, CONSIDER WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE AND ARE THE RESULT OF ARM'S-LENGTH BARGAINING. IN ADDITION, OUTSIDE EXPERTS MAY BE USED IN CONDUCTING PERIODIC REVIEWS, BUT THEIR USE SHALL NOT RELIEVE THE BOARD OF ITS RESPONSIBILITY FOR ENSURING THAT PERIODIC REVIEWS ARE CONDUCTED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR THE ORGANIZATION'S CHIEF EXECUTIVE OFFICER (CEO) IS DETERMINED BY THE ORGANIZATION'S BOARD OF DIRECTORS. THE BOARD SETS THE CEO'S COMPENSATION AND REVIEWS COMPENSATION PLANS, POLICIES, AND PROGRAMS OF THE ORGANIZATION. THE ORGANIZATION'S COMPENSATION PACKAGES ARE SET AND GOVERNED BY ITS BOARD, WHICH INITIALLY APPROVES THEM AND HAS DISCRETION TO CHANGE THEM. THE BOARD DOES UTILIZE INDEPENDENT SOURCES AND OTHER TIMELY AND COMPARABLE DATA TO REACH ITS RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC.