2013-11-15T07:52:01-08:00 2012-12-31 Abbott Frenyea & Russell 134 Boynton Ave Plattsburgh NY 129011237 990 2012-01-01 450593226 HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC HANN 5185635008 PO BOX 206 MORRISONVILLE NY 12962 CARRIE FAVARO 2013-11-15 true HOLLY A MORROW P00067534 5185617030 2012 2016-02-25 16:41:14Z 633849 false false X HANNAHSHOPEFUND.ORG X 2008 NY DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY. 10 8 2 75 0 335546 628350 0 3878 3182 201359 -31721 540783 599811 357001 1381693 0 51473 77760 0 4512 76745 86523 485219 1545976 55564 -946165 1690681 1297783 221510 751827 1469171 545956 DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY. false false 1524903 GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSION. 1524903 true true false false false false false false false false true false false false false false true false false false false true false false true false false true false false false false false false false false false false false false false false false false false false false false false false false true 1 0 true 2 true false false false false false false false false 0 false false false false false false false false false false X 10 8 true false false false false false false true true true false true true true true false false false false false NY X LORI SAMES 5182755359 19 BLUE JAY WAY REXFORD NY 12148 TODD SILAIKA 0.00 0.00 0 0 0 ERIKA LIGUORI 0.00 0.00 X 0 0 0 LORI SAMES 40.00 0.00 X 47376 0 0 JOSEPH KAKATY 0.00 0.00 X 0 0 0 BETH HAIG 0.00 0.00 X X 0 0 0 MIKE ELLIS 0.00 0.00 X 0 0 0 SCOTT DAVIDOFF ESQ 0.00 0.00 X 0 0 0 KAREN ARMSTRONG 0.00 0.00 X X 0 0 0 CARRIE FAVARO 0.00 0.00 X X 0 0 0 MATT SAMES 0.00 0.00 X 0 0 0 47376 0 false false false 0 234591 393759 628350 0 3182 3182 0 0 0 0 234591 34038 -34038 -34038 0 0 OTHER INCOME 2317 2317 2317 599811 2317 -30856 1352553 1352553 0 29140 29140 0 47376 47376 0 24960 21216 3744 0 0 5424 4610 814 1800 1530 270 0 6000 5100 900 0 0 0 0 330 330 0 0 0 0 0 0 56280 47838 8442 270 230 40 0 370 315 55 4259 3620 639 SUPPLIES 2153 1981 172 BANK CHARGES 2703 2298 405 COMPUTER EXPENSES 2797 2377 420 DONATED GIFTS 4010 4010 5551 4719 832 1545976 1524903 16561 4512 146455 405362 1484575 840838 55300 50000 0 0 0 0 0 0 6356 4773 341 1583 0 0 0 0 4010 0 1690681 1297783 221510 751827 221510 751827 X 1469171 545956 1469171 545956 1690681 1297783 -946165 22950 X false true X false false X 511661 671680 1735534 405599 628350 3952824 0 0 0 0 511661 671680 1735534 405599 628350 3952824 0 0 3952824 259 1617 3430 3878 3182 12366 0 259 1617 3430 3878 3182 12366 0 205890 2317 208207 511920 673297 1738964 615367 633849 4173397 0.94710 0.00300 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 6356 4773 1583 1583 599811 599811 599811 1545976 1545976 1545976 true FRANCE RESEARCH 29140 WIRE TRANSFE FMV 1 false false false false false false Grantmaker's Description of How Grants are Used in Foreign Country THE ORGANIZATION RECEIVES STATUS REPORTS FROM THE INSTITUTION WHICH OUTLINE WHAT THEY WERE ABLE TO ACCOMPLISH WITH FUNDING DURING THE YEAR. false HOPE AND LOVE BALL 62746 62746 25817 MONTANA 56651 56651 5 110557 110557 8221 229954 229954 34038 34038 -34038 true UNIVERSITY OF NORTH CAROLINA 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL NC 27599 566001393 501 (c) (3) 320653 0 FMV RESEARCH PROJECT ALS 3960 BROADWAY 4TH FLOOR NEW YORK NY 10032 134019464 501 (C) (3) 22800 0 FMV RESEARCH NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON IL 60208 362167817 501 (C) (3) 80000 0 FMV RESEARCH MPI RESEARCH 54943 NORTH MAIN ST MATTAWAN MI 49071 854600 0 FMV RESEARCH COLUMBIA UNIVERSITY PO BOX 29789 NEW YORK NY 10087 135598093 501 (C) (3) 74500 0 FMV RESEARCH 3 2 Grantmaker's Description of How Grants are Used THE TAXPAYER RECEIVES PROGRESS REPORTS AND IS ABLE TO MONITOR PROGRESS THROUGH WEBSITES. Form 990, Part VI, Line 19 Form 990, Part VI, Line 19: Other Organization Documents Publicly Available THE FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE FROM THE ORGANIZATION UPON REQUEST. Form 990, Part VI, Line 12c Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts THE BY-LAWS CLEARLY STATE THAT ALL DIRECTORS AND OFFICERS MUST DISCLOSE ANY POTENTIAL CONFLICTS. THE BY-LAWS STATE THAT SUCH CONFLICTS DO NOT PRECLUDE THE ORGANIZATION FROM CONTRACTING WITH RELATED COMPANIES, BUT THAT CONFLICTED BOARD MEMBERS MUST RECUSE THEMSELVES FROM DISCUSSIONS INVOLVING THEIR INTERESTS. Form 990, Part VI, Line 11b Form 990, Part VI, Line 11b: Form 990 Review Process FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR BEFORE IT IS ELECTRONICALLY FILED. Form 990, Part VI, Line 9 Form 990, Part VI, Line 9: Officer, Director, Trustee, Key Employee Mailing Address KELLY OBERMEYER15 MAPLEWOOD DRIVEQUEENSBURY, NY 12804 Form 990, Part VI, Line 2 Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et Director Matt Sames is married to Executive Director Lori Sames. Board President Carrie Favro is sister to Executive Director Lori Sames. Treasurer Karen Armstrong is aunt to Executive Director Lori Sames.