2026-02-04T14:38:51-06:00 2024-12-31 991856619 GRANT THORNTON ADVISORS LLC 757 THIRD AVENUE 9TH FLOOR NEW YORK NY 100172013 990 2024-01-01 136193105 CROHN'S & COLITIS FOUNDATION INC CROH 8009322423 733 THIRD AVENUE 510 NEW YORK NY 10017 MICHAEL OSSO PRESIDENT & CEO 8009322423 2026-02-04 1 0 SCOTT THOMPSETT P00741490 2125990100 2024 2025-03-06 01:10:19Z X MICHAEL OSSO 733 THIRD AVENUE NEW YORK NY 10017 105303732 0 X WWW.CROHNSCOLITISFOUNDATION.ORG X 1967 NY TO CURE CROHN'S DISEASE AND ULCERATIVE COLITIS. (CONTINUED ON SCHEDULE O) 26 26 372 6005 0 0 68707768 73888862 11417426 9112274 729260 1327009 910794 854203 81765248 85182348 23694643 23680607 0 0 41392158 39220848 651257 334625 6004020 20799921 20268743 86537979 83504823 -4772731 1677525 54000124 50647406 52035314 47415737 1964810 3231669 X FOR OVER FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. (SEE SCHED O)THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). 0 0 34993675 23680607 8790214 SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $500 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). (CONTINUED IN SCHEDULE O)THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION'S INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US AND THE MOST COMPREHENSIVE IBD DATABASE IN THE WORLD. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 30,000 PATIENTS, INCLUDING 250,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD, WITH OVER 50 CENTERS PARTICIPATING. 32995237 0 322060 THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE MILLIONS OF INDIVIDUALS WITH IBD AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL INCLUDING IN-PERSON AND WEB-BASED EDUCATION, SUPPORT PROGRAMS INCLUDING PEDIATRIC AND ADULT FOCUS INITIATIVES, IBD HELP CENTER ANSWERING QUESTIONS AND PROVDING SUPPORT FOR THOSE WITH IBD, AND NUMEROUS PRINTED MATERIALS PROVIDINGACCURATE AND UP-TO-DATE INFORMATION. IN A RECENT IMPACT STUDY, OVER 85% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. (CONTINUED IN SCHEDULE O)THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL EDUCATION PROGRAMS BOTH IN-PERSON AND WEB-BASED. IN ADDITION THE FOUNDATION HOSTS THE ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN THE PAST YEAR, THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY OF IBD WITH THE GENERAL PUBLIC AND REDUCE THE STIGMA FOR THOSE INDIVIDUALS WITH IBD. 67988912 1 1 0 1 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 1 1 0 1 1 1 0 1 0 1 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 372 0 1 372 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 26 26 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI DE X X X GLEN LAWRENCE 6469437437 733 THIRD AVENUE NEW YORK NY 100178804 MICHAEL OSSO PRESIDENT/CEO(NON-VOTING) 35.00 0.00 X X 604255 0 157943 DANIEL STONE TREASURER 1.00 0.00 X X 0 0 0 JODI YELLEN SECRETARY (THRU 03/2024) 1.00 0.00 X X 0 0 0 JEFFREY MITTLEMAN SECRETARY (AS OF 03/2024) 1.00 0.00 X X 0 0 0 BRENT POLK MD CHAIRMAN (THRU 03/2024) 1.00 0.00 X X 0 0 0 AMBER BACKHAUS CHAIRMAN (AS OF 03/2024) 1.00 0.00 X X 0 0 0 RHONDA BOLDING TRUSTEE 1.00 0.00 X 0 0 0 NOEL BROWN TRUSTEE (AS OF 03/2024) 1.00 0.00 X 0 0 0 JOHN CAPODILUNO TRUSTEE 1.00 0.00 X 0 0 0 CHASE CARPENTER TRUSTEE 1.00 0.00 X 0 0 0 ROCIO CASTRILLON TRUSTEE (AS OF 03/2024) 1.00 0.00 X 0 0 0 DEBORAH CRAWFORD TRUSTEE 1.00 0.00 X 0 0 0 TOLULOPE FALAIYE MD TRUSTEE 1.00 0.00 X 0 0 0 BECKY FLAHERTY TRUSTEE (AS OF 03/2024) 1.00 0.00 X 0 0 0 ALEX FUNDERBURG TRUSTEE (THRU 03/2024) 1.00 0.00 X 0 0 0 CHERYL GUERIN TRUSTEE 1.00 0.00 X 0 0 0 KEVIN HARLEN TRUSTEE 1.00 0.00 X 0 0 0 PETER HIGGINS MD PHD MSC NSAC CHAIR ELECT 1.00 0.00 X X 0 0 0 KELLY ISSOKSON MSRDCNSC TRUSTEE 1.00 0.00 X 0 0 0 SEAN KELLEY TRUSTEE (THRU 03/2024) 1.00 0.00 X 0 0 0 SANDRA KIM MD TRUSTEE (AS OF 03/2024) 1.00 0.00 X 0 0 0 MICHELE KISSOUS-HUNT TRUSTEE (THRU 03/2024) 1.00 0.00 X 0 0 0 ANNETTE MARTINEZ TRUSTEE 1.00 0.00 X 0 0 0 AUDRA MILLER TRUSTEE 1.00 0.00 X 0 0 0 JOE MONK TRUSTEE (THRU 03/2024) 1.00 0.00 X 0 0 0 MARK MURRAY PHD TRUSTEE (THRU 03/2024) 1.00 0.00 X 0 0 0 ARMIN RAHMANIAN TRUSTEE 1.00 0.00 X 0 0 0 MEGAN RIEHL PSYD TRUSTEE (AS OF 03/2024) 1.00 0.00 X 0 0 0 JONATHAN ROSE TRUSTEE (AS OF 07/2024) 1.00 0.00 X 0 0 0 DAVID RUBIN MD TRUSTEE 1.00 0.00 X 0 0 0 FRANK RUSSOMANO TRUSTEE (THRU 03/2024) 1.00 0.00 X 0 0 0 LORI SIEGEL RABINOWITZ TRUSTEE 1.00 0.00 X 0 0 0 ANDREW STERN TRUSTEE (AS OF 03/2024) 1.00 0.00 X 0 0 0 NICHOLAS UZL TRUSTEE (THRU 06/2024) 1.00 0.00 X 0 0 0 TROY VOLLERTSEN TRUSTEE 1.00 0.00 X 0 0 0 DOUGLAS WOLF MD TRUSTEE (AS OF 03/2024) 1.00 0.00 X 0 0 0 SHARON LUNGRIN CHIEF OP. OFF./CHIEF FIN. 35.00 0.00 X 267379 0 70733 ALAN MOSS CHIEF SCIENTIFIC OFFICER 35.00 0.00 X 450466 0 13858 ROHIT SURI CHIEF TECHNOLOGY OFFICER 35.00 0.00 X 304578 0 78567 ALLISON COFFEY CHIEF DEVELOPMENT OFFICER 35.00 0.00 X 273205 0 22804 CHRIS FIDYK EVP, BUSINESS DEVELOPMENT 35.00 0.00 X 213952 0 4083 CHRISTY DESANTIS CHIEF MKTNG. & COMM. OFFCR. 35.00 0.00 X 256701 0 26914 LAURA WINGATE CHIEF EDU. SUPP. & ADVOC. OFFICER 35.00 0.00 X 219544 0 43880 SARAH WEAVER VP, CLINICAL QUALITY & INNOVATION 35.00 0.00 X 206702 0 16415 ANGELA DOBES VICE PRESIDENT, IBD PLEXUS 35.00 0.00 X 259396 0 17475 MARISA MAYER CHIEF LEGAL OFFICER 35.00 0.00 X 259396 0 76835 LEANA PATEL VP, PEOPLE & CULTURE 35.00 0.00 X 202086 0 26800 JACK MATARASSO SVP, DIGITAL MARKETING 35.00 0.00 X 202684 0 15941 3720344 0 572248 105 0 1 0 NAGARRO INC 1737 N FIRST STREET SUITE 590 SAN JOSE CA 95112 PROJECT SUPPORT 2510209 SRIJAN TECHNOLOGIES USA INC 2430 HIGHWAY 34 BUILDING B SUITE MANASQUAN NJ 08736 WEB DEVELOPMENT SERVICES 1686221 SALESFORCECOM INC PO BOX 203141 DALLAS TX 75320 DATABASE/IT SERVICES 969096 RUE CLAIR DIGITAL LLC DBA STREETLIGHT DI PO BOX 75 CONIFER CO 80433 MARKETING SERVICES 959576 DELOITTE CONSULTING LLP 4022 BELLE DRIVE HERMINTAGE TN 37076 IT SUPPORT 733714 22 X 1121690 26975616 551064 45240492 1435765 73888862 IBD PLEXUS DATABASE AC 900099 8790214 8790214 EDUCATION & CAMP REG. 900099 322060 322060 9112274 182204 182204 492767 492767 14491590 13346785 1144805 1144805 1144805 6151320 26975616 6461774 -310454 -310454 623279 312825 310454 310454 IBD JOURNAL STIPENDS 900099 333309 333309 REBATES/REFUNDS 900099 14189 14189 VEHICLE DONATION PRGM 900099 11150 11150 2788 2788 361436 85182348 9112274 0 2181212 20231236 20231236 3449371 3449371 3677782 2737705 576306 363771 25592246 19050619 4010286 2531341 1258979 937172 197281 124526 5031245 3745210 788392 497643 3660596 2724912 573613 362071 37265 37265 200380 200380 101800 101800 334625 334625 7481895 6493723 161918 826254 832503 554310 170544 107649 330844 221403 67092 42349 2075033 1762676 302532 9825 1597179 1062733 327638 206808 760301 520283 147141 92877 389355 387340 1235 780 127158 127158 1185865 788398 243664 153803 443197 443197 SOFTWARE LICENSES 1052978 988523 64455 DATABASE MANAGEMENT 648386 172202 476184 PUBLICATIONS 606369 403292 124495 78582 POSTAGE 368278 245424 75315 47539 2029957 1410580 395800 223577 83504823 67988912 9511891 6004020 9517214 11093876 12397945 16433532 2024846 7567840 328281 302774 1281499 1248306 12854367 8028066 6000274 4826301 12848228 967721 581681 240754 9020156 7966302 54000124 50647406 5068454 5019918 30248553 28564769 1750389 5345469 600000 5989390 8978528 7885581 52035314 47415737 X -6495911 -6300153 8460721 9531822 1964810 3231669 54000124 50647406 X 1677525 -789127 378461 X 0 1 X 1 0 X 68767470 70283703 73149330 68707768 73888862 354797133 68767470 70283703 73149330 68707768 73888862 354797133 16380781 338416352 1068979 785188 1179657 1073415 674971 4782210 2853979 4304157 6482374 7006236 7136035 27782781 387362124 40147294 0.87360 0.87270 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GROSS INCOME FROM FUNDRAISING ACTIVITY - 2020 AMOUNT: $ 1,976,400. 2021 AMOUNT: $ 3,518,883. 2022 AMOUNT: $ 5,536,023. 2023 AMOUNT: $ 6,047,358. 2024 AMOUNT: $ 6,151,320. GROSS INCOME FROM GAMING ACTIVITY - 2020 AMOUNT: $ 491,848. 2021 AMOUNT: $ 631,617. 2022 AMOUNT: $ 665,424. 2023 AMOUNT: $ 645,938. 2024 AMOUNT: $ 623,279. MISCELLANEOUS - 2020 AMOUNT: $ 76,393. 2021 AMOUNT: $ 11,659. 2022 AMOUNT: $ 55,324. 2023 AMOUNT: $ 459. 2024 AMOUNT: $ 2,788. VEHICLE DONATION PROGRAM - 2020 AMOUNT: $ 23,225. 2021 AMOUNT: $ 27,421. 2022 AMOUNT: $ 6,297. 2023 AMOUNT: $ 27,688. 2024 AMOUNT: $ 11,150. IBD JOURNAL STIPENDS - 2020 AMOUNT: $ 232,480. 2021 AMOUNT: $ 114,577. 2022 AMOUNT: $ 112,551. 2023 AMOUNT: $ 242,704. 2024 AMOUNT: $ 333,309. REBATES/REFUNDS - 2020 AMOUNT: $ 53,633. 2021 AMOUNT: $ 0. 2022 AMOUNT: $ 18,940. 2023 AMOUNT: $ 42,089. 2024 AMOUNT: $ 14,189. SETTLEMENT PROCEEDS - 2020 AMOUNT: $ 0. 2021 AMOUNT: $ 0. 2022 AMOUNT: $ 87,815. 2023 AMOUNT: $ 0. 2024 AMOUNT: $ 0. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 1 0 0 1 89910 0 1 182915 272825 0 PART II-B, LINE 1: (I) IN 2024, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES OF A PROFESSIONAL CONSULTANT TO KEEP THE ORGANIZATION UP-TO-DATE ON WHAT IS TRANSPIRING WITH FEDERAL LEGISLATION ON CAPITOL HILL CONCERNING HEALTH AND MEDICINE. DURING THE YEAR ENDED 2024, EXPENSES INCURRED TOTALLED $101,800. THE FOUNDATION ENGAGES IN STATE-BASED ADVOCACY CAMPAIGNS ENSURING THAT THE NEEDS OF PATIENTS ARE ADDRESSED THROUGH LEGISLATION THAT TARGETS THE COST OF HEALTH CARE AND ACCESS TO CARE. TOTAL PAYMENTS MADE IN CALENDAR YEAR 2024 WERE $89,910. ALSO INCLUDED IN PART II-B, LINE 1(I) ARE AMOUNTS THAT THE FOUNDATION INCURRED FOR TWO PROGRAMS DESIGNED TO MOBILIZE PATIENTS AND CAREGIVERS IMPACTED BY THE DISEASES WE LOOK TO TREAT. THE FOUNDATION WORKS TO INFORM PATIENTS AND VOLUNTEERS ABOUT HOW TO LOBBY THEIR REPRESENTATIONS. OUR EFFORTS INCLUDE EMPOWERING VOLUNTEERS TO ADDRESS ACCESS TO CARE ISSUES INCLUDING THE STEP-UP FOR STEP-THERAPY. THE MARCH WEEK OF ACTION IS A GRASSROOTS EFFORT TO ORGANIZE PATIENTS AND VOLUNTEERS TO ADVOCATE FOR THEMSELVES ON MATTERS SURROUNDING ACCESS TO CARE AND COVERAGE FOR THEIR DISEASES. 704582 480633 223949 1843122 1738951 104171 10306663 5808482 4498181 4826301 OPERATING LEASE - RIGHT OF USE ASSET 7699200 REINSURANCE CONTRACTS 179995 CHARITABLE REMAINDER TRUST 87107 7966302 OPERATING LEASE LIABILITY 7705586 REINSURANCE CONTRACTS 179995 7885581 X 91601746 -789127 7180862 27663 6419398 85182348 0 85182348 90334887 7180862 -350798 6830064 83504823 0 83504823 PART X, LINE 2: THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (THE "CODE") AND HAS BEEN CLASSIFIED AS A PUBLICLY SUPPORTED CHARITABLE ORGANIZATION UNDER SECTION 509(A)(1) OF THE CODE AND QUALIFIES FOR THE MAXIMUM CHARITABLE CONTRIBUTION DEDUCTION BY DONORS. CONTRIBUTIONS TO THE FOUNDATION ARE TAX DEDUCTIBLE WITHIN THE LIMITATIONS PRESCRIBED BY THE CODE. THE FOUNDATION IS ALSO EXEMPT FROM STATE AND LOCAL TAXES UNDER SIMILAR STATUTES. ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, INCLUDING ISSUES RELATING TO FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT, PROVIDES THAT THE TAX EFFECTS FROM AN UNCERTAIN TAX POSITION CAN BE RECOGNIZED IN THE FINANCIAL STATEMENTS ONLY IF THE POSITION IS MORE LIKELY THAN NOT TO BE SUSTAINED IF THE POSITION WERE TO BE CHALLENGED BY A TAXING AUTHORITY. THE ASSESSMENT OF THE TAX POSITION IS BASED SOLELY ON THE TECHNICAL MERITS OF THE POSITION, WITHOUT REGARD TO THE LIKELIHOOD THAT THE TAX POSITION MAY BE CHALLENGED. THE FOUNDATION IS EXEMPT FROM INCOME TAX UNDER THE CODE, HOWEVER, IS SUBJECT TO TAX ON INCOME UNRELATED TO ITS EXEMPT PURPOSES, UNLESS THAT INCOME IS OTHERWISE EXCLUDED UNDER THE CODE. THE FOUNDATION HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. IN ADDITION, THE FOUNDATION HAS NOT RECORDED A PROVISION FOR INCOME TAXES AS IT HAS NO MATERIAL TAX LIABILITY FROM UNRELATED BUSINESS INCOME ACTIVITIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN CHARITABLE REMAINDER TRUSTS VALUATION 27,663. PART XII, LINE 2D - OTHER ADJUSTMENTS: UNCOLLECTIBLE PLEDGES 658,713. REFUNDED/RESCINDED GRANTS -1,009,511. 1 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTMAKING RESEARCH 2659570 NORTH AMERICA 0 0 GRANTMAKING RESEARCH 601136 EAST ASIA AND THE PACIFIC 0 0 GRANTMAKING RESEARCH 188665 0 0 0 0 0 0 3449371 0 3449371 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 72991 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 33000 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 1410345 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 198946 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 47093 BANK WIRE 0 NORTH AMERICA RESEARCH 175174 BANK WIRE 0 NORTH AMERICA RESEARCH 300000 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 250000 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 93750 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 246795 BANK WIRE 0 NORTH AMERICA RESEARCH 109914 BANK WIRE 0 NORTH AMERICA RESEARCH 16048 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 99982 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 206668 BANK WIRE 0 MIDDLE EAST AND NORTH AFRICA RESEARCH 188665 BANK WIRE 0 15 0 0 0 0 0 0 0 PART I, LINE 1: GRANTS THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") IS A NON-PROFIT ORGANIZATION DEDICATED TO FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS. TO ACCOMPLISH THIS, THE FOUNDATION SUBSIDIZES RESEARCH INTO BOTH DISEASES. GRANTS ARE AWARDED FOR SPECIFIC PROJECTS FOR SPECIFIC RESEARCH AND THE FOUNDATION REQUIRES THE RESEARCHER TO ISSUE PROGRESS REPORTS ANNUALLY AS THE PROJECT IS BEING COMPLETED. MOST AWARDS ARE GIFTED FOR A PERIOD OF 2 TO 3 YEARS WITH AN ANNUAL PROGRESS REPORT PRESENTED TO THE CHIEF SCIENTIFIC OFFICER AND THE NATIONAL SCIENTIFIC ADVISORY COMMITTEE FOR REVIEW AND APPROVAL. IF THE PROGRESS REPORTS DO NOT SHOW SIGNIFICANT STRIDES IN THE RESEARCH, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED. 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ONLY PARTAKES IN GAMING ACTIVITIES TO THE EXTENT THE ORGANIZATION HOLDS A RAFFLE OR GAME OF CHANCE DURING A GALA, DINNER OR OTHER SPECIAL EVENT. EACH CHAPTER IS RESPONSIBLE FOR CONDUCTING ITS OWN EVENT ACTIVITIES AND, AS SUCH, THE ORGANIZATION DOES NOT HAVE ONE PERSON WHO OVERSEES ALL GAMING ACTIVITIES FOR PURPOSES OF SCHEDULE G, PART III, LINES 14 & 16. RAFFLES ARE CONDUCTED AS PART OF SPECIAL EVENTS AND NOT AS SEPARATE FUNDRAISING ACTIVITIES. CHAPTERS, IN COLLABORATION WITH NATIONAL STAFF, ARE RESPONSIBLE FOR SECURING APPLICABLE LICENSES AND COMPLYING WITH REPORTING REQUIREMENTS. FOR THE PERIOD COVERED BY THIS RETURN, ONLY 35 CHAPTERS HELD RAFFLES IN 25 STATES: ALABAMA, ARKANSAS, CALIFORNIA, COLORADO, CONNECTICUT, FLORIDA, GEORGIA, ILLINOIS, INDIANA, KANSAS, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSOURI, NEBRASKA, NEW JERSEY, NEW YORK, NORTH CAROLINA, OHIO, PENNSYLVANIA, TEXAS, VIRGINIA, WASHINGTON, WISCONSIN. 1 ADA SCIENCE & RESEARCH INSTITUTE LLC 211 EAST CHICAGO AVENUE CHICAGO IL 60611 844338889 501(C)3 9750 0 RESEARCH AETION INC 5 PENN PLAZA 7TH FLOOR NEW YORK NY 10001 461291862 501(C)3 315500 0 RESEARCH ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVENUE NEW YORK NY 10461 830621846 501(C)3 57915 0 RESEARCH AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC 1120 15TH STREET AUGUSTA GA 30912 581418202 501(C)3 90000 0 RESEARCH BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON TX 770303411 741613878 501(C)3 12100 0 RESEARCH BAYLOR SCOTT & WHITE RESEARCH INSTITUTE 3434 LIVE OAK STREET DALLAS TX 75204 751921898 501(C)3 269345 0 RESEARCH BENAROYA RESEARCH INSTITUTE OF VIRGINIA 1201 NINTH AVENUE SEATTLE WA 98101 910653422 501(C)3 32485 0 RESEARCH BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET SUITE 6401 MADISON WI 53715 396006492 501(C)3 115709 0 RESEARCH BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM - 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TO ACCOMPLISH THIS, THE FOUNDATION SUBSIDIZES RESEARCH INTO BOTH DISEASES. GRANTS ARE AWARDED FOR SPECIFIC PROJECTS FOR SPECIFIC RESEARCH AND THE FOUNDATION REQUIRES THE RESEARCHER TO ISSUE PROGRESS REPORTS ANNUALLY AS THE PROJECT IS BEING COMPLETED. MOST AWARDS ARE GIFTED FOR A PERIOD OF 2 TO 3 YEARS WITH AN ANNUAL PROGRESS REPORT PRESENTED TO THE CHIEF SCIENTIFIC OFFICER AND THE NATIONAL SCIENTIFIC ADVISORY COMMITTEE FOR REVIEW AND APPROVAL. IF THE PROGRESS REPORTS DO NOT SHOW THAT THE RESEARCH HAS MET ITS PROPOSED OBJECTIVES, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED. THE FOUNDATION ALSO SUPPORTS ORGANIZATIONS SEEKING TO ACCELERATE THE DEVELOPMENT OF RESEARCH-BASED PRODUCTS WITH POTENTIAL FOR POSITIVE IMPACT FOR PATIENTS. FUNDED PROJECTS ARE APPROXIMATELY 12 MONTHS IN DURATION, WITH SPECIFIC INTERMEDIATE AND FINAL MILESTONES IDENTIFIED AT PROJECT ONSET. PROJECT INVESTMENTS MAY BE RENEWED IN ADDITIONAL INCREMENTS IF MILESTONES ARE ACHIEVED AND IF THE APPLICANT SUBMITS A PROPOSAL FOR ADDITIONAL FUNDING. X X X X X 0 1 0 0 0 0 0 0 0 MICHAEL OSSO PRESIDENT/CEO(NON-VOTING) 479255 0 0 0 125000 0 129750 0 28193 0 762198 0 125000 0 ALAN MOSS CHIEF SCIENTIFIC OFFICER 450466 0 0 0 0 0 10125 0 3733 0 464324 0 0 0 ROHIT SURI CHIEF TECHNOLOGY OFFICER 304578 0 0 0 0 0 18885 0 59682 0 383145 0 0 0 SHARON LUNGRIN CHIEF OP. OFF./CHIEF FIN. 267379 0 0 0 0 0 9663 0 61070 0 338112 0 0 0 MARISA MAYER CHIEF LEGAL OFFICER 259396 0 0 0 0 0 18909 0 57926 0 336231 0 0 0 ALLISON COFFEY CHIEF DEVELOPMENT OFFICER 273205 0 0 0 0 0 19058 0 3746 0 296009 0 0 0 CHRISTY DESANTIS CHIEF MKTNG. & COMM. OFFCR. 256701 0 0 0 0 0 5200 0 21714 0 283615 0 0 0 ANGELA DOBES VICE PRESIDENT, IBD PLEXUS 259396 0 0 0 0 0 13796 0 3679 0 276871 0 0 0 LAURA WINGATE CHIEF EDU. SUPP. & ADVOC. OFFICER 219544 0 0 0 0 0 15866 0 28014 0 263424 0 0 0 LEANA PATEL VP, PEOPLE & CULTURE 202086 0 0 0 0 0 6126 0 20674 0 228886 0 0 0 SARAH WEAVER VP, CLINICAL QUALITY & INNOVATION 206702 0 0 0 0 0 12736 0 3679 0 223117 0 0 0 JACK MATARASSO SVP, DIGITAL MARKETING 202684 0 0 0 0 0 12087 0 3854 0 218625 0 0 0 CHRIS FIDYK EVP, BUSINESS DEVELOPMENT 213952 0 0 0 0 0 2138 0 1945 0 218035 0 0 0 PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON THE MOST RECENT SURVEY AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION COMMISSIONED ITS LAST STUDY IN 2021. PART I, LINE 4B IN CALENDAR YEAR 2024, THE PRESIDENT RECEIVED A PAYOUT FROM THE 457(F) PLAN IN THE AMOUNT OF $125,000. THIS AMOUNT IS REPORTED IN SCHEDULE J, PART (III) AND, LIKEWISE, IN COLUMN (F) TO REFLECT THAT IT WAS REPORTED AS DEFERRED COMPENSATION ON PRIOR YEAR FORM 990'S. PRESIDENT OSSO'S PARTICIPATION IN THE SECTION 457(F) PLAN TERMINATED WITH THE FINAL PAYOUT IN 2024. DANIEL STONE BOARD TRUSTEE SHORT TERM CASH FLOW X 1000000 600000 0 1 1 600000 SCHEDULE L, PART II: IN CALENDAR YEAR 2024, MR. STONE FORGAVE $400,000 OF THE LOAN TO THE FOUNDATION; THE FORGIVEN AMOUNT WAS RECORDED AS A CONTRIBUTION. X 117 1435765 MARKET PRICE 0 1 1 PART I, LINE 32B: TO THE EXTENT THAT THE FOUNDATION RECEIVES GIFTS OF SECURITIES OR OTHER NON-CASH INSTRUMENTS, IT UTILIZES ITS INVESTMENT BROKER TO SELL THOSE NON-CASH INSTRUMENTS TO HELP SUBSIDIZE THE FOUNDATION'S ONGOING CHARITABLE ACTIVITIES. REASON FOR AMENDMENT: THE FOUNDATION IS AMENDING THIS FORM 990 TO REFLECT THE ACCURATE ALLOCATION OF FUNCTIONAL EXPENSES IN FORM 990, PART IX, THAT ALIGNS WITH ITS AUDITED FINANCIAL STATEMENTS. THE ADJUSTMENT TO EXPENSES IN PART IX REQUIRE A MODIFICATION IN THE PROGRAMMATIC EXPENDITURES REPORTED IN FORM 990, PART III AS WELL. THESE REPRESENT THE ONLY MODIFICATIONS TO THE ORIGINALLY FILED FORM 990. FORM 990, PART I, LINE 1, DESCRIPTION OF ORGANIZATION MISSION: OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. THE FOUNDATION SPONSORS BASIC AND CLINICAL RESEARCH OF THE HIGHEST QUALITY. WE ALSO OFFER A WIDE RANGE OF EDUCATIONAL PROGRAMS FOR PATIENTS AND HEALTHCARE PROFESSIONALS, WHILE PROVIDING SUPPORTIVE SERVICES TO HELP PEOPLE COPE WITH THESE CHRONIC INTESTINAL DISEASES. THESE PROGRAMS ARE SUPPORTED SOLELY THROUGH OUR DONORS, GRANTS, FUNDRAISING EFFORTS, AND SPONSORS. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY A NATIONAL ACCOUNTING FIRM IN CONJUNCTION WITH THE ORGANIZATION'S FINANCE DEPARTMENT. A COPY OF THE DRAFT FORM 990 WAS CIRCULATED AND REVIEWED WITH THE AUDIT COMMITTEE FOR DISCUSSION AND COMMENT. A COPY OF THE 990 IS DISTRIBUTED TO ALL BOARD OF TRUSTEES PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C ALL OFFICERS, DIRECTORS, TRUSTEES, AND KEY EMPLOYEES OF THE CROHN'S & COLITIS FOUNDATION ARE REQUIRED TO ANNUALLY DISCLOSE ANY CONFLICTS OF INTEREST THAT ARISE BY VIRTUE OF EMPLOYMENT, BOARD SERVICE, OR POSITION WITH THE FOUNDATION. THE FOUNDATION MONITORS COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY THROUGH AN ANNUAL QUESTIONNAIRE/DISCLOSURE STATEMENT THAT IS DISTRIBUTED TO THESE INDIVIDUALS. POTENTIAL CONFLICTS ARE INVESTIGATED IMMEDIATELY. FORM 990, PART VI, SECTION B, LINE 15 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON THE MOST RECENT SURVEY AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS FORM 990 AVAILABLE TO THE PUBLIC BY RETAINING A COPY AT ITS PLACE OF BUSINESS AND ON ITS WEBSITE AT WWW.CROHNSCOLITISFOUNDATION.ORG. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE POSTED ON ITS WEBSITE. GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY WILL BE PROVIDED UPON REQUEST AT MANAGEMENT'S DISCRETION. PART VIII - DONATED SERVICES THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS UTILIZED THE SERVICES OF CAR PROGRAM, INC., AN ORGANIZATION THAT RECEIVES DONATED VEHICLES, SELLS THEM AND REMITS THE NET PROCEEDS TO SEVERAL CHARITABLE ORGANIZATIONS. THE VEHICLES ARE NOT DONATED DIRECTLY TO THE FOUNDATION NOR DOES THE FOUNDATION HAVE OWNERSHIP RIGHTS TO THEM. IN 2024, THE FOUNDATION RECEIVED $19,788 IN REVENUES FROM THIS PROGRAM. ADDITIONALLY, THE FOUNDATION RECEIVES CONSIDERABLE IN-KIND CONTRIBUTIONS IN THE FORM OF DONATED PUBLIC SERVICE ANNOUNCEMENTS ON TELEVISION AND RADIO STATEMENTS AND SERVICES RECEIVED FROM PHYSICIANS AND HEALTH PROFESSIONALS THAT HAVE MADE SIGNIFICANT CONTRIBUTIONS OF THEIR TIME IN FURTHERANCE OF THE FOUNDATION'S MISSION. THE FAIR VALUE OF SUCH IN-KIND CONTRIBUTIONS IS REFLECTED IN THE STATEMENT OF ACTIVITIES AS CONTRIBUTED SERVICES AND AIRTIME REVENUE AND HEALTH PROFESSIONAL EDUCATION AND PUBLIC INFORMATION PROGRAM SERVICE EXPENSE. SINCE DONATED SERVICES ARE NOT REPORTED ON THE FORM 990, THE FOUNDATION HAS NOT REPORTED THE CONTRIBUTED SERVICES AND AIRTIME ON SCHEDULE M OR PART VIII, LINE 1(G). FOR THE YEAR ENDING DECEMBER 31, 2024, CONTRIBUTED SERVICES AND AIRTIME AMOUNTED TO $7,180,862. FORM 990, PART XI, LINE 9: CHANGES IN GIFT ANNUITIES 27,663. REFUNDED/RESCINDED GRANTS 1,009,511. UNCOLLECTIBLE PLEDGES -658,713.