2012-11-15T08:58:05-06:00 2011-12-31 043443262 WALSH & ASSOCIATES PC 71 JUNCTION SQUARE DRIVE CONCORD MA 01742 990 2011-01-01 043565765 SANFILIPPO RESEARCH FOUNDATION INC SANF 6178994158 225 OAKLAND STREET WELLESLEY MA 02481 STUART SIEDMAN 6178994158 2012-11-13 1 MICHAEL J WALSH P01286273 9783692151 2012-11-13 2011 2016-02-24 21:20:13Z STUART SIEDMAN 225 OAKLAND STREET WELLESLEY MA 02481 227120 0 X WWW.BENSDREAM.ORG X 2001 NY TO PROMOTE AWARENESS OF SANFILIPPO SYNDROME AND RAISE FUNDS TO SUPPORT RESEARCH AIMED AT FINDING A CURE. 3 1 0 70 0 0 0 226956 0 0 0 164 0 0 0 227120 0 150700 0 0 0 0 0 0 7091 0 15209 0 165909 0 61211 100159 161370 0 0 100159 161370 TO PROMOTE AWARENESS OF SANFILIPPO SYNDROME AND RAISE FUNDS TO SUPPORT RESEARCH AIMED AT FINDING A CURE. 0 0 158818 150700 223556 THE ORGANIZATION HELD VARIOUS ON-GOING FUNDRAISING ACTIVITIES THROUGHOUT THE YEAR, INCLUDING, BUT NOT LIMITED TO THE "LINKS FOR LUKE" FUNDRAISING GOLF TOURNAMENT. THE ORGANIZATION WAS ABLE TO ISSUE A $150,000 GRANT TO DR. HAIYAN FU AT THE RESEARCH INSTITUTE-NATIONWIDE CHILDREN'S HOSPITAL AND A $700 GRANT TO FRANCIS GARBER, MS,CGC FOR SANFILIPPO FAMILY COUNSELING. 158818 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 X 3 1 1 0 0 0 0 0 0 1 1 0 0 1 1 0 0 0 0 0 0 0 MA NY X STUART SIEDMAN 6178994158 225 OAKLAND STREET WELLESLEY MA 02481 X SARAH SHELBY PHD 1.00 X 0 0 0 EDWARD BOKHOUR PHD 1.00 X 0 0 0 THOMAS FITZGERALD MD 1.00 X 0 0 0 LEONARD ZON PHD 1.00 X 0 0 0 DR DAVID LOUIS MD 1.00 X 0 0 0 JENNIFER SIEDMAN 5.00 X 0 0 0 STUART SIEDMAN 5.00 X 0 0 0 HOWARD CARPENTER JR 2.00 X 0 0 0 0 0 0 0 0 0 0 0 13138 213818 3400 226956 164 164 0 13138 0 0 227120 0 0 164 150700 150700 3400 3400 1429 1429 952 952 758 758 GOLF TOURNAMENT 7091 7091 POSTAGE & DELIVERY 778 778 TELEPHONE 381 381 WEB HOSTING 250 250 170 170 165909 158818 0 7091 100159 161370 100159 161370 0 0 X 0 0 0 0 100159 161370 100159 161370 100159 161370 61211 0 X 1 0 0 X 0 X 79397 12540 15099 12246 223720 343002 79397 12540 15099 12246 223720 343002 0 0 0 343002 6298 5293 1255 519 164 13529 6298 5293 1255 519 164 13529 85695 17833 16354 12765 223884 356531 0.96210 0.03790 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 DR HAIYAN FU AT THE RESEARCH INSTITUTE - NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 311036370 150000 TO HELP WITH RESEARCH FOR SANFILIPPO SYNDROME 1 Procedure for Monitoring Grants in the U.S.: Part I, Line 2: Schedule I, Part I, Line 2: THE SCIENTIFIC ADVISORY BOARD, APPOINTED BY THE BOARD OF DIRECTORS, REVIEWS THE WRITTEN PROPOSALS FOR GRANT FUNDS AND UPON COMPLETION OF THEIR REVIEW, MAKE THEIR RECOMMENDATION TO THE BOARD FOR ACTION. Form 990, Part VI, Section A, line 2 MARITAL RELATIONSHIP Form 990, Part VI, Section B, line 11 FORM 990 IS REVIEWED BY THE PRESIDENT OF THE ORGANIZATION BEFORE IT IS FILED. Form 990, Part VI, Section C, line 19 UPON REQUEST