2012-08-15T07:54:19-05:00 2011-12-31 135381590 BDO USA LLP 7101 WISCONSIN AVE SUITE 800 BETHESDA MD 208144827 990 2011-01-01 131665552 MUSCULAR DYSTROPHY ASSOCIATION INC MUSC 5205292000 3300 EAST SUNRISE DRIVE TUCSON AZ 85718 STEPHEN P EVANS CPA 5205292000 2012-08-15 1 MICHAEL SORRELLS CPA P00001737 3016544900 2011 2016-02-24 21:20:13Z GERALD C WEINBERG 3300 EAST SUNRISE DRIVE TUCSON AZ 85718 309690497 0 X WWW.MDA.ORG X 1950 NY MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION. 20 19 1554 15000000 244459 0 171494101 157086290 0 0 2233083 -1772204 899855 1274531 174627039 156588617 50095415 46352169 0 0 70690451 70159258 0 86908 24632642 58957390 58995870 179743256 175594205 -5116217 -19005588 121222970 98307873 53951327 84950677 67271643 13357196 X MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION. 0 0 74563817 12406866 HEALTH CARE AND COMMUNITY SERVICES: SEE SCHEDULE O 38126006 33945303 RESEARCH: SEE SCHEDULE O 22909284 PROFESSIONAL AND PUBLIC HEALTH EDUCATION - IN THE YEAR ENDED DECEMBER 31, 2011, THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) EXPENDED $22,909,284 ON ITS PROFESSIONAL AND PUBLIC HEALTH EDUCATION PROGRAM. MDA ANNUALLY PROVIDES THE MEDICAL PROFESSION, SCIENTIFIC COMMUNITY, GENERAL PUBLIC, AND PEOPLE AFFECTED BY NEUROMUSCULAR DISEASES WITH TIMELY AND THOROUGH INFORMATION ABOUT MDA'S PROGRAMS AND THE MORE THAN 40 DISEASES THEY COVER. 135599107 1 0 0 1 0 0 0 1 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 1 0 1 0 1 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 1 816 24 1 1554 1 1 1 0 0 0 0 1 1 1 16 0 0 0 X 20 19 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DC DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X STEPHEN P EVANS VP FINANCE 5205292000 3300 E SUNRISE DR TUCSON AZ 857183299 STANLEY H APPEL MD 1.00 X 0 0 0 ROBERT M BENNETT 1.00 X 0 0 0 BART CONNER 1.00 X 0 0 0 BENJAMIN F CUMBO III 1.00 X 0 0 0 HAROLD C CRUMP 1.00 X 0 0 0 STEVE FARELLA 1.00 X 0 0 0 DANIEL G FRIES 1.00 X 0 0 0 HONORABLE BRAD HENRY 1.00 X 0 0 0 R RODNEY HOWELL MD 5.00 X X 0 0 0 DAVE HUTTON 1.00 X 0 0 0 LOUIS M KUNKEL PHD 1.00 X 0 0 0 SUZANNE LOWDEN 2.00 X X 0 0 0 TIMMI MASTERS 1.00 X X 0 0 0 MAUREEN MCGOVERN 1.00 X 0 0 0 EDWARD M NIGRO 1.00 X 0 0 0 OLIN F MORRIS 2.00 X X 0 0 0 CHRISTOPHER J ROSA PHD 1.00 X 0 0 0 CHARLES D SCHOOR ESQ 1.00 X 0 0 0 LOIS R WEST 1.00 X X 0 0 0 GERALD C WEINBERG 60.00 X 381022 0 5983 STEPHEN P EVANS CPA 50.00 X 121159 0 11672 JODI WALTERS 50.00 X 74051 0 6022 CHRISTINA C KENNEDY 50.00 X 62894 0 6016 GAIL SCHMERTZ KERNER ESQ 50.00 X 194460 0 11672 VALERIE A CWIK MD 50.00 X 200578 0 6026 PETER MORGAN 50.00 X 168280 0 11671 JOHN WALSH 50.00 X 154295 0 11672 KEVIN W MORAN 50.00 X 144705 0 11672 BRADLEY J BARGHOLS 50.00 X 145936 0 6592 SANJAY I BIDICHANDANI 50.00 X 184741 0 11650 ROBERT M GRINSFELDER 50.00 X 134703 0 11105 1966824 0 111753 25 0 1 0 MOORE WALLACE NORTH AMERICA INC PO BOX 73774 CHICAGO IL 60673 PRINTER 1387852 METROGROUP MARKETING SERVICES INC PO BOX 87618 CHICAGO IL 60680 LETTERSHOP SERVICES 1269447 EXPERIAN MARKETING SOLUTIONS INC 21221 NETWORK PLACE CHICAGO IL 60673 MAINTAIN DATABASE 1027004 EXPRESS SERVICES INC PO BOX 281533 ATLANTA GA 30384 TEMP AGENCY 912865 UNITED ENVELOPE LLC PO BOX 951431 CLEVELAND OH 44193 PRINTER 867527 62 778888 127089289 29218113 1053100 157086290 1887619 1887619 161652 161652 123993845 127653668 -3659823 -3659823 -3659823 25309899 127089289 25309899 0 711830 138313 573517 573517 LIST RENTALS 900002 294503 294503 QUEST ADVERTISING 541800 244459 244459 REGISTRATION FEES 900099 400 400 539362 156588617 0 244459 -742132 41012252 41012252 5339917 5339917 1261506 1072162 125386 63958 54339568 46183532 5401039 2754997 9752104 8457406 797213 497485 4806080 4147858 409704 248518 443818 443818 292637 292637 428715 428715 86908 86908 229770 229770 13554234 2803030 52724 10698480 2903743 1582935 1050557 270251 656069 656069 10306002 9082685 671754 551563 7200000 6152349 557582 490069 373637 348302 11022 14313 1570316 821813 713830 34673 POSTAGE & SHIPPING 7445584 3213085 592358 3640141 PRINTING & PUBLICATION 6588692 2450259 91229 4047204 TELEPHONE 3404769 2701542 167257 535970 3597884 229980 2669792 698112 175594205 135599107 15362456 24632642 X 7085000 3029000 514000 3542000 21809108 12168782 5917002 3255370 3158123 2243603 23289373 7186601 14984610 16102772 75354127 64537346 121222970 98307873 7779948 10067863 26132145 24878925 20039234 50003889 53951327 84950677 X 66114022 7652691 1157621 5374272 330233 67271643 13357196 121222970 98307873 X -19005588 -34908859 X X 0 1 1 X 0 X 137586210 182595766 175900213 171247359 157086289 824415837 137586210 182595766 175900213 171247359 157086289 824415837 824415837 4246332 3946932 2794744 1555153 1887167 14430328 838846165 0.98280 0.97980 X 12650 416065 428715 175165490 175594205 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 395794 254554 368927 428715 1447990 250000 250000 250000 250000 1000000 1500000 10393 11500 13300 12650 47843 X X 0 125667 50000 -239 175428 115000 11313 646 125667 1.00000 0 0 1955436 1955436 13437006 4195085 9241921 25255 7997 17258 7871676 2983519 4888157 16102772 PENSION POSTRETIREMENT PLAN OBLIGATIONS 50003889 50003889 156588617 175594205 -19005588 520037 -35428896 -34908859 -53914447 157108654 520037 520037 156588617 0 156588617 175594205 0 175594205 0 175594205 PART III, LINE 4: THE MUSCULAR DYSTROPHY ASSOCIATION ART COLLECTION WAS ESTABLISHED IN 1992 TO FOCUS ATTENTION ON THE ACHIEVEMENTS OF ARTISTS WITH DISABILITIES AND TO EMPHASIZE THAT PHYSICAL DISABILITY IS NO BARRIER TO CREATIVITY. THE COLLECTION, ON PERMANENT DISPLAY AT MDA NATIONAL HEADQUARTERS IN TUCSON, ARIZ., COMPRISES NEARLY 400 ORIGINAL WORKS BY ADULTS AND CHILDREN WHO HAVE ANY OF THE NEUROMUSCULAR DISORDERS IN MDA'S PROGRAM. ARTISTS IN THE COLLECTION REPRESENT ALL 50 STATES, THE DISTRICT OF COLUMBIA AND PUERTO RICO, AND RANGE IN AGE FROM 2 TO 82. THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES, AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: THE ASSOCIATION IS A NONPROFIT ORGANIZATION AND IS EXEMPT FROM TAXATION UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND NEW YORK CODES, RULES AND REGULATIONS (NCRR20 SECTION 1-3.4(B)(6)). GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN THEIR FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2011, 2010, AND 2009 ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. PART XI, LINE 8 - OTHER ADJUSTMENTS: CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -35,428,896. 1 EAST ASIA AND THE PACIFIC 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 1108464 EUROPE (INCLUDING ICELAND AND GREENLAND) 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 2158864 NORTH AMERICA 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 1656377 CENTRAL AMERICA AND THE CARIBBEAN 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 125000 SOUTH AMERICA 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 71312 MIDDLE EAST AND NORTH AFRICA 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 219900 0 0 0 0 0 0 5339917 0 5339917 EAST ASIA AND THE PACIFIC RESEARCH 1108464 CHECK EUROPE (INCLUDING ICELAND AND GREENLAND) RESEARCH 2158864 CHECK NORTH AMERICA RESEARCH 1656377 CHECK CENTRAL AMERICA AND THE CARIBBEAN RESEARCH 125000 CHECK SOUTH AMERICA RESEARCH 71312 CHECK MIDDLE EAST AND NORTH AFRICA RESEARCH 219900 CHECK 6 0 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. 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RESEARCH MAYO CLINIC ROCHESTER 200 FIRST ST SW ROCHESTER MN 55905 416011702 501(C)(3) 100713 RESEARCH WASHINGTON UNIVERSITY IN ST LOUIS 660 S EUCLID AVE CAMPUS BOX 8018 ST LOUIS MO 63110 430653611 501(C)(3) 507808 RESEARCH UNIVERSITY OF MISSOURI 310 JESSE HALL COLUMBIA MO 65211 436003859 STATE-MISSOURI 382145 RESEARCH WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM NC 27157 223849199 501(C)(3) 280755 RESEARCH DUKE UNIVERSITY MEDICAL CENTER STE 820 ERWIN SQ 2200 W MAIN ST DURHAM NC 27705 560532129 501(C)(3) 263863 RESEARCH CAROLINAS MEDICAL CENTER 1221 E MOREHEAD CHARLOTTE NC 28204 561398929 501(C)(3) 249907 RESEARCH UMDNJ-NEW JERSEY MEDICAL SCHOOL 185 S ORANGE AVENUE MSB C-690 NEWARK NJ 07101 221775306 501(C)(3) 125000 RESEARCH AMICUS THERAPEUTICS INC 6 CEDAR BROOK DRIVE CRANBURY NJ 03851 710869350 111256 RESEARCH REGENTS OF THE UNIVERSITY OF NEW MEXICO 1700 LOMAS BLVD NE STE 2200 MSC01 1247 1 ALBUQUERQUE NM 87131 856000642 STATE-NEW MEXICO 113187 RESEARCH COLD SPRING HARBOR LABORATORY P0 BOX 100 1 BUNGTOWN ROAD COLD SPRING HARBOR NY 11724 112013303 60000 RESEARCH JOAN & SANFORD I WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY 1300 YORK AVE BOX 89 NEW YORK NY 10065 131623978 501(C)(3) 96025 RESEARCH MEMORIAL SLOAN-KETTERING CANCER CENTER 1275 YORK AVENUE NEW YORK NY 10065 131924236 501(C)(3) 50525 RESEARCH COLUMBIA UNIVERSITY MEDICAL CENTER 630 WEST 168TH STREET BOX 49 NEW YORK NY 10032 135598093 501(C)(3) 1228193 RESEARCH RESEARCH FOUNDATION OF SUNY - UNIVERSITY AT ALBANY MSC 312 1400 WASHINGTON AVE ALBANY NY 12222 141368361 STATE-NEW YORK 301993 RESEARCH UNIVERSITY OF ROCHESTER 518 HYLAN BLDG BOX 270140 ROCHESTER NY 14627 160743209 501(C)(3) 234708 RESEARCH ST PETER'S HOSPITAL FOUNDATION 319 S MANNING BLVD SUITE 309 ALBANY NY 12208 222262982 501(C)(3) 50000 RESEARCH UNIVERSITY OF CINCINNATI 51 GOODMAN DRIVE PO BOX 210222 CINCINNATI OH 45221 316000989 STATE OF OHIO 95967 RESEARCH THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316025986 STATE OF OHIO 230815 RESEARCH RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 316056230 501(C)(3) 727648 RESEARCH THE UNIVERSITY OF TOLEDO 2801 WEST BANCROFT STREET TOLEDO OH 43606 346401483 STATE OF OHIO 110679 RESEARCH PHILADELPHIA HEALTH AND ED CORP DBA DREXEL UNIV COLLEGE OF MED 3201 ARCH ST STE 100 PHILADELPHIA PA 19104 231352630 501(C)(3) 110000 RESEARCH THOMAS JEFFERSON UNIVERSITY 900 WALNUT STREET PHILADELPHIA PA 19107 231352651 501(C)(3) 168720 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET FRANKLIN BUILDING P-221 PHILADELPHIA PA 19104 231352685 PENNSYLVANIA 540256 RESEARCH TEMPLE UNIVERSITY 3400 NORTH BROAD STREEET PHILADELPHIA PA 19140 231365971 501(C)(3) 125000 RESEARCH ALS BIOPHARMA LLC 3805 OLD EASTON ROAD DOYLESTOWN PA 18902 270191545 90000 RESEARCH GORDON RESEARCH CONFERENCES 512 LIBERTY LANE WEST KINGSTON RI 02892 050300482 501(C)(3) 10000 RESEARCH TIVORSAN PHARMACEUTICALS INC 3 DAVOL SQUARE A301 PROVIDENCE RI 02903 770702642 550000 RESEARCH ST JUDE CHILDREN'S RES HOSP 262 DANNY THOMAS PLACE MEMPHIS TN 38105 620646012 501(C)(3) 180000 RESEARCH BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA PO BOX 201361 HOUSTON TX 77030 741613878 501(C)(3) 536042 RESEARCH THE UNIV OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON POST OFFICE BOX 20036 HOUSTON TX 77225 741761309 STATE OF TEXAS 95252 RESEARCH THE UNIV OF TEXAS MEDICAL BRANCH AT GALVESTON 301 UNIVERSITY BLVD REBECCA SEALY HOSPITAL GALVESTON TX 77555 746000949 STATE OF TEXAS 130000 RESEARCH UT SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS TX 75390 756002868 STATE OF TEXAS 889182 RESEARCH METHODIST NEUROLOGICAL INSTITUTE 6560 FANNIN STREET HOUSTON TX 77030 870721923 501(C)(3) 41667 RESEARCH THE METHODIST HOSPITAL RESEARCH INSTITUTE 6565 FANNIN MGJ4-024 HOUSTON TX 77030 870721923 501(C)(3) 138598 RESEARCH UNIVERSITY OF UTAH 75 S 2000 E RM 111 SALT LAKE CITY UT 84112 876000525 STATE OF UTAH 159484 RESEARCH SFIDA BIOLOGIC INC 615 ARAPEEN DR SUITE 310 SALT LAKE CITY UT 84108 900513929 16020 RESEARCH UNIVERSITY OF VIRGINIA PO BOX 400195 CHARLOTTESVILLE VA 22904 546001796 STATE OF VIRGNIA 285676 RESEARCH LEWIN GROUP 3130 FAIRVIEW PARK DRIVE STE 800 FALLS CHURCH VA 22042 561970224 118025 RESEARCH SEATTLE INSTITUTE FOR BIOMEDICAL AND CLINICAL RESEARCH 1660 S COLUMBIAN WAY S-151F SEATTLE WA 98108 911452438 501(C)(3) 105519 RESEARCH WASHINGTON STATE UNIVERSITY ROOM 423 NEILL HALL PULLMAN WA 99164 916001108 STATE-WASHINGTON 130346 RESEARCH UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE SEATTLE WA 98195 916001537 STATE-WASHINGTON 603023 RESEARCH UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES SCHOOL OF MEDICINE GPO BOX 5067 SAN JUAN RQ 660433762 PUERTO RICO 45000 MEDICAL DIAGNOSIS & FOLLOW-UP HOSP ESPANOL DE AUXILIO MUTUO INC PO BOX 191227 HATO REY RQ 660486907 49500 MEDICAL DIAGNOSIS & FOLLOW-UP PONCE SCHOOL OF MEDICINE PO BOX 7004 PONCE RQ 660379122 501(C)(3) 36000 MEDICAL DIAGNOSIS & FOLLOW-UP HOSPITAL DE LA CONCEPCION PO BOX 285 SAN GERMAN RQ 660227304 501(C)(3) 28800 MEDICAL DIAGNOSIS & FOLLOW-UPMEDICAL DIAGNOSIS & FOLLOW-UP 255 30 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. X X X 1 1 X X X 0 0 0 0 0 0 0 0 0 GERALD C WEINBERG 381022 0 0 0 0 0 0 0 5983 0 387005 0 0 0 GAIL SCHMERTZ KERNER ESQ 194460 0 0 0 0 0 0 0 11672 0 206132 0 0 0 VALERIE A CWIK MD 200578 0 0 0 0 0 0 0 6026 0 206604 0 0 0 PETER MORGAN 168280 0 0 0 0 0 0 0 11671 0 179951 0 0 0 JOHN WALSH 154295 0 0 0 0 0 0 0 11672 0 165967 0 0 0 KEVIN W MORAN 144705 0 0 0 0 0 0 0 11672 0 156377 0 0 0 BRADLEY J BARGHOLS 145936 0 0 0 0 0 0 0 6592 0 152528 0 0 0 SANJAY I BIDICHANDANI 184741 0 0 0 0 0 0 0 11650 0 196391 0 0 0 DANIEL G FRIES MDA BOARD MEMBER 270518 MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. 0 STEVE FARELLA MDA BOARD MEMBER 210285 MDA BOARD MEMBER STEVE FARELLA IS CHIEF EXECUTIVE OFFICER OF TARGETCAST. TARGETCAST PROVIDES MDA WITH PLACEMENT OF FREE PUBLIC SERVICE ANNOUNCEMENTS IN NATIONAL MEDIA PUBLICATIONS. STEVE FARELLA IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. 0 X 9 0 X 26 408827 X MEDICAL EQUIPMENT 35 644273 APPRAISAL 35 0 1 0 FORM 990, PART VI, SECTION B, LINE 11 EACH BOARD MEMBER IS PROVIDED WITH A PAPER VERSION OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH THE MDA LEGAL DEPARTMENT. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION IS COMPARATIVE TO OTHER NATIONAL AGENCIES AND IS APPROVED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED GAINS ON INVESTMENTS: 520,037. CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -35,428,896. TOTAL TO FORM 990, PART XI, LINE 5: -34,908,859. OVERSIGHT OF AUDIT: FORM 990, PART XI, LINE 2C THERE HAVE BEEN NO CHANGES DURING THE YEAR IN THE PROCESS FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS. PROGRAM SERVICE ACCOMPLISHMENTS: FORM 990, PART III, LINE 4A: HEALTH CARE AND COMMUNITY SERVICES - MDA MAINTAINS THE MOST COMPREHENSIVE SERVICES PROGRAM OF ANY VOLUNTARY HEALTH AGENCY IN THE COUNTRY, HELPING INDIVIDUALS AND THEIR FAMILIES MEET THE PROBLEMS IMPOSED BY CHRONIC, PROGRESSIVE NEUROMUSCULAR DISEASES. THIS ASPECT OF THE ASSOCIATION'S PROGRAM ACCOUNTED FOR OVER $74,963,817 OF ITS 2011 EXPENDITURES. THE ASSOCIATION MAKES AVAILABLE A BROAD PROGRAM OF SERVICES RANGING FROM A NATIONWIDE NETWORK OF CLINICS PROVIDING ACCESS TO TOP HEALTH PROFESSIONALS SKILLED IN THE DIAGNOSIS AND MEDICAL MANAGEMENT OF NEUROMUSCULAR DISEASES TO ASSISTANCE WITH ESSENTIAL SUPPORT SERVICES, INCLUDING THE FOLLOWING: > DIAGNOSTIC CONSULTATIONS AND FOLLOW-UP EXAMINATIONS BY NEUROMUSCULAR SPECIALISTS THROUGH A NATIONWIDE NETWORK OF 200 MDA CLINICS > A NATIONAL MEDICAL EQUIPMENT PROGRAM PROVIDING GENTLY-USED ITEMS, SUCH AS WHEELCHAIRS, COMMUNICATION TECHNOLOGIES, WALKERS, HOSPITAL BEDS, BATH AIDS AND OTHER ASSISTIVE DEVICES, TO ENHANCE INDEPENDENCE > ASSISTANCE WITH REPAIRS TO PRESCRIBED DURABLE MEDICAL EQUIPMENT > NEARLY 80 WEEK-LONG SUMMER CAMP PROGRAMS ACROSS THE COUNTRY PROVIDING FUN AND FRIENDSHIP FOR CHILDREN AFFECTED BY NEUROMUSCULAR DISEASE > ANNUAL PHYSICAL, OCCUPATIONAL, RESPIRATORY AND SPEECH THERAPY CONSULTATIONS > FREE FLU SHOTS > TRANSITIONAL SERVICES DESIGNED TO PROVIDE SUPPORT AND RESOURCES FOR YOUTH WITH NEUROMUSCULAR DISEASE WHO ARE ENTERING ADULTHOOD, INCLUDING AN ONLINE TRANSITIONS CENTER AT HTTP://TRANSITIONS.MDA.ORG/ > REFERRALS TO FEDERAL, STATE AND COMMUNITY-BASED RESOURCES THAT OFFER ASSISTANCE TO THOSE LIVING WITH DISABILITIES > SUPPORT GROUPS TO ASSIST FAMILIES AND INDIVIDUALS IN COPING WITH THE SPECIAL PROBLEMS IMPOSED BY NEUROMUSCULAR DISEASES > ONLINE CARE COORDINATION TOOL FOR FAMILIES SERVED BY MDA, WWW.MDA.ORG/MYMUSCLETEAM/ > EDUCATIONAL SEMINARS THAT PROVIDE INFORMATION ABOUT NEUROMUSCULAR DISEASES AND OFFER A FORUM TO DISCUSS SUBJECTS OF IMPORTANCE TO FAMILIES LIVING WITH THESE DISORDERS MDA CLINICS MDA MAINTAINS A NETWORK OF 200 HOSPITAL-AFFILIATED NEUROMUSCULAR CLINICS LOCATED AT MEDICAL INSTITUTIONS AND UNIVERSITY-BASED FACILITIES ACROSS THE UNITED STATES AND PUERTO RICO. EACH YEAR MDA PROVIDES TENS OF THOUSANDS OF MEDICAL VISITS THROUGH ITS CLINIC PROGRAM. INDIVIDUALS AFFECTED BY ANY OF THE DISORDERS IN MDA'S PURVIEW HAVE ACCESS TO THESE CLINICS STAFFED BY TOP HEALTH PROFESSIONALS USING A MULTIDISCIPLINARY TEAM APPROACH. THESE EXPERTS ADVISE ABOUT ALL ASPECTS OF MEDICAL MANAGEMENT OF NEUROMUSCULAR DISEASE, INCLUDING RESPIRATORY CARE AND PHYSICAL THERAPY. ANYONE WHOSE PHYSICIAN SUSPECTS A NEUROMUSCULAR DISORDER, UPON REFERRAL BY THE PERSON'S PHYSICIAN, IS ELIGIBLE FOR A DIAGNOSTIC EVALUATION AT AN MDA CLINIC. SHOULD THE DIAGNOSIS INDICATE A DISEASE OTHER THAN ONE INCLUDED IN MDA'S PROGRAM, THE ASSOCIATION WILL THEN REFER THE INDIVIDUAL TO AN APPROPRIATE COMMUNITY RESOURCE. ALSO, MDA CLINICS ARE ESSENTIAL TO THE ADVANCEMENT OF NEUROMUSCULAR DISEASE RESEARCH AND SERVE AS FOCAL POINTS FOR THE CLINICAL APPLICATION OF SCIENTIFIC ADVANCES DESIGNED TO TREAT THESE DISORDERS. THEY SERVE AS KEY CENTERS FOR ONGOING CLINICAL TRIALS FOR THE DEVELOPMENT OF POTENTIAL THERAPIES, WHICH IS THE ULTIMATE GOAL OF MDAS RESEARCH PROGRAM. AS PART OF ITS CLINIC PROGRAM, THE ASSOCIATION HAS ESTABLISHED OVER 40 AMYOTROPHIC LATERAL SCLEROSIS (ALS) CENTERS ACROSS THE COUNTRY TO FOCUS ATTENTION ON THIS VERY RAPIDLY PROGRESSIVE DEBILITATING NEUROMUSCULAR DISORDER THAT STRIKES ADULTS IN THE PRIME OF LIFE. SITES OF MDAS ALS CENTERS ARE AS FOLLOWS: * THE ELEANOR AND LOU GEHRIG MDA/ALS CENTER AT COLUMBIA UNIVERSITY MEDICAL CENTER IN NEW YORK, NY; * FORBES NORRIS MDA/ALS CENTER AT CALIFORNIA PACIFIC MEDICAL CENTER IN SAN FRANCISCO, CA; * JERRY LEWIS MDA/ALS CLINICAL AND RESEARCH CENTER IN LOS ANGELES, CA; * MDA/ALS CENTER AT THE UNIVERSITY OF WISCONSIN IN MADISON, WI; * MDA/ALS CENTER AT METHODIST NEUROLOGICAL INSTITUTE IN HOUSTON, TX; * MDA/ALS CENTER AT MASSACHUSETTS GENERAL HOSPITAL IN BOSTON, MA; * MDA/ALS CENTER AT THE UNIVERSITY OF ILLINOIS AT CHICAGO IN CHICAGO, IL; * MDA/ALS CENTER AT UCLA IN LOS ANGELES, CA; * MDA/ALS CENTER AT THE UNIVERSITY OF COLORADO IN DENVER, CO; * MDA/ALS CENTER AT YALE UNIVERSITY IN NEW HAVEN, CT; * MDA/ALS CENTER AT EMORY UNIVERSITY SCHOOL OF MEDICINE IN ATLANTA, GA; * MDA/ALS CENTER AT JOHNS HOPKINS UNIVERSITY IN BALTIMORE, MD; * MDA/ALS CENTER AT WASHINGTON UNIVERSITY SCHOOL OF MEDICINE IN ST. LOUIS, MO; * MDA/ALS CENTER AT THE UNIVERSITY OF TEXAS IN DALLAS, TX; * KESSENICH FAMILY MDA/ALS CENTER AT THE UNIVERSITY OF MIAMI, FL; * MDA/ALS CENTER AT THE UNIVERSITY OF UTAH IN SALT LAKE CITY, UT; * MDA/ALS CENTER AT CAROLINAS MEDICAL CENTER IN CHARLOTTE, NC; * MDA/ALS CENTER AT SUNY UPSTATE MEDICAL UNIVERSITY IN SYRACUSE, NY; * MDA/ALS CENTER AT THE UNIVERSITY OF KANSAS MEDICAL CENTER IN KANSAS CITY, KS; * THE MDA/ALS CENTER AT THE MICHIGAN INSTITUTE FOR NEUROLOGICAL DISORDERS IN FARMINGTON, MI; * MDA/ALS CENTER OF HOPE AT DREXEL UNIVERSITY COLLEGE OF MEDICINE IN PHILADELPHIA, PA; * MDA/ALS CENTER AT ST. JOSEPH'S HOSPITAL AND MEDICAL CENTER IN PHOENIX, AZ; * MDA/ALS CENTER AT UPH HOSPITAL IN TUCSON, AZ; * MDA/ALS CENTER AT THE UNIVERSITY OF NEW MEXICO HEALTH SCIENCES CENTER IN ALBUQUERQUE, NM; * MDA/ALS CENTER AT THE UNIVERSITY OF CALIFORNIA, IRVINE, CA; * MDA/ALS CENTER THROUGH THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO, TX; * MDA/ALS CENTER AT THE UNIVERSITY OF WASHINGTON MEDICAL CENTER IN SEATTLE, WA; * MDA/ALS CENTER AT VANDERBILT UNIVERSITY MEDICAL CENTER IN NASHVILLE, TN; * MDA/ALS CENTER AT OHIO STATE UNIVERSITY IN COLUMBUS, OH; * MDA/ALS CENTER AT THE UNIVERSITY OF ROCHESTER MEDICAL CENTER IN ROCHESTER, NY; * MDA/ALS CENTER AT THE UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES IN LITTLE ROCK, AR; * MDA/ALS CENTER AT THE UNIVERSITY OF PITTSBURGH MEDICAL CENTER IN PITTSBURGH, PA; * MDA/ALS CENTER AT THE UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER IN WORCESTER, MA; * MDA/ALS CENTER AT INTEGRIS SOUTHWEST MEDICAL CENTER IN OKLAHOMA CITY, OK; * MDA/ALS CENTER AT OREGON HEALTH & SCIENCE UNIVERSITY IN PORTLAND, OR; * MDA/ALS CENTER OF MEMPHIS MID-SOUTH IN CORDOVA, TN; * MDA/ALS CENTER AT UCSF MEDICAL CENTER IN SAN FRANCISCO, CA; * THE MICHIGAN STATE UNIVERSITY MDA/ALS CENTER WITH TWO CLINICAL SITES AT MICHIGAN STATE UNIVERSITY IN EAST LANSING AND MARY FREE BED REHABILITATION HOSPITAL IN GRAND RAPIDS, MI; * MDA/ALS CENTER AT HOSPITAL FOR SPECIAL CARE IN NEW BRITAIN, CT; * MDA/ALS CENTER AT WEST VIRGINIA UNIVERSITY IN MORGANTOWN, WV; * MDA/ALS CENTER AT TEXAS NEUROLOGY IN DALLAS, TX MDA'S SERVICES PROGRAM IS ADMINISTERED THROUGH ITS NETWORK OF 200 FIELD OFFICES LOCATED IN THE UNITED STATES AND PUERTO RICO. MDA HEALTH CARE SERVICE COORDINATORS, WHO ARE KNOWLEDGEABLE ABOUT FEDERAL, STATE AND LOCAL COMMUNITY RESOURCES, ALSO ASSIST FAMILIES WITH NEUROMUSCULAR DISEASE BY ADVISING THEM ABOUT OTHER SERVICES FOR WHICH THEY MAY BE ELIGIBLE. MDA PROVIDES ASSISTANCE TO THOSE IT SERVES IN NEED OF PRESCRIBED MEDICAL EQUIPMENT. IN 2011, THOUSANDS OF ADAPTIVE DEVICES WERE PROVIDED TO INDIVIDUALS THROUGH MDA'S EQUIPMENT PROGRAM -- INCLUDING, BUT NOT LIMITED TO, WALKERS, CANES, BATH EQUIPMENT, WHEELCHAIRS, HYDRAULIC LIFTS, COMMUNICATION TECHNOLOGIES AND HOSPITAL BEDS. MDA ALSO ASSISTED WITH REPAIRS TO ALL TYPES OF DURABLE MEDICAL EQUIPMENT FOR THOSE IT SERVES. IN 2011, NEARLY 3,400 CHILDREN AGES 6-17 ENJOYED A WEEK OF FUN AND FRIENDSHIP THROUGH MDA SUMMER CAMPS WHICH OFFER ACTIVITIES GEARED TO THE SPECIAL NEEDS AND ABILITIES OF THOSE WITH NEUROMUSCULAR DISEASE. THOUSANDS OF INDIVIDUALS AND THEIR FAMILIES RECEIVED SUPPORT THROUGH MDA'S NATIONWIDE NETWORK OF NEARLY 200 SUPPORT GROUPS, AS WELL AS THROUGH MDA-SPONSORED EDUCATIONAL SEMINARS, REFERRAL SERVICES, ONLINE CHAT SESSIONS AT WWW.MDA.ORG/CHAT/CALENDAR.HTML AND LIVE EXPERT-HOSTED WEBINARS WHICH ARE ARCHIVED AT WWW.MDA.ORG. SUPPORT ALSO WAS AVAILABLE THROUGH MDA'S CARE COORDINATION TOOL, WWW.MDA.ORG/MYMUSCLETEAM/, WHICH ENABLES FAMILIES TO POST JOURNAL ENTRIES TO KEEP FRIENDS AND LOVED ONES UPDATED AND TO LIST TASKS FOR WHICH ASSISTANCE MAY BE NEEDED SUCH AS TRANSPORTATION TO MEDICAL APPOINTMENTS, MEAL PREPARATION, HOUSEHOLD CHORES AND MORE. ADDITIONAL INFORMATION ABOUT MDA'S HEALTH CARE AND COMMUNITY SERVICES PROGRAM IS AVAILABLE THROUGH MDA'S WEB SITE AT WWW.MDA.ORG/SERVICES.HTML. PROGRAM SERVICE ACCOMPLISHMENTS: FORM 990, PART III, LINE 4B: RESEARCH - MDA IS CURRENTLY SPONSORING RESEARCH GRANTS IN THE UNITED STATES AND A DOZEN FOREIGN COUNTRIES. THE ASSOCIATION'S RESEARCH PROGRAM ACCOUNTED FOR SOME $38,126,006 OF ITS EXPENDITURES FOR THE 2011 CALENDAR YEAR. MDA'S SCIENTIFIC AND MEDICAL ADVISORY COMMITTEES, WHOSE MEMBERS ARE AMONG THE NATION'S FOREMOST SCIENTISTS AND PHYSICIANS IN THE FIELD OF NEUROMUSCULAR DISEASE, CAREFULLY EVALUATE ALL RESEARCH GRANT AND DEVELOPMENT GRANT PROPOSALS SUBMITTED TO THE ASSOCIATION. MDA MAINTAINS A DIVERSE PROGRAM OF BASIC RESEARCH, WHICH ADVANCES INVESTIGATIONS OF POSSIBLE TREATMENTS FOR NEUROMUSCULAR DISEASES, MUSCLE FUNCTION, REGULATION AND REGENERATION; BIOCHEMICAL CHANGES INVOLVED IN MUSCLE DISEASE; THE GENETICS OF NEUROMUSCULAR DISEASE; AND THE INTERACTION OF NERVE AND MUSCLE. THIS WORK IS CRUCIAL FOR PROVIDING A SOUND SCIENTIFIC FOUNDATION UPON WHICH PRACTICAL ADVANCES AGAINST DISEASE CAN BE BUILT. ADDITIONALLY, THE ASSOCIATION'S TRANSLATIONAL RESEARCH PROGRAM IS FOCUSED ON MILESTONE DRIVEN CONTRACTS WITH THE BIOTECH INDUSTRY, PHARMACEUTICAL COMPANIES AND ACADEMIC INVESTIGATORS FOR RESEARCH THAT IS DIRECTLY RELEVANT TO BRINGING NEW THERAPIES TO MARKET. ADVISORS TO MDA'S TRANSLATIONAL RESEARCH PROGRAM INCLUDE A NUMBER OF TOP NEUROMUSCULAR DISEASE RESEARCHERS, AS WELL AS REPRESENTATIVES OF NIH AND INDUSTRY.