2026-03-24T08:27:12-05:00 2025-06-30 260794367 UHY ADVISORS MID-ATLANTIC INC 8601 ROBERT FULTON DRIVE SUITE 210 COLUMBIA MD 21046 990 2024-07-01 223115041 HHT FOUNDATION HHTF 4103579932 PO BOX 329 MONKTON MD 21111 MARIANNE CLANCY CEO AND MANAGING DIRECTOR 4103579932 2026-03-09 1 0 HSUANYI WANG P03292356 4107205220 2026-03-09 2024 2025-03-06 01:10:19Z CURE HHT MARIANNE CLANCY PO BOX 329 MONKTON MD 21111 10713422 0 X WWW.CUREHHT.ORG X 1990 MD FIND A CURE FOR HHT WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT. 13 13 19 13 0 0 6587947 9245580 104766 470997 134583 134970 -36985 -10031 6790311 9841516 2930944 2385005 0 0 1209237 1354761 0 134000 370532 1111280 3255409 5251461 7129175 1538850 2712341 5213609 8133180 809199 962042 4404410 7171138 X HHT FOUNDATION INTERNATIONAL, INC. IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO SERVING INDIVIDUALS AFFECTED BY HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT). THE ORGANIZATION PROVIDES INFORMATION TO PATIENTS, FAMILY MEMBERS, AND HEALTHCARE PROFESSIONALS; OFFERS SUPPORT AND COMMUNITY FOR PATIENTS AND THEIR FAMILIES; RAISES FUNDS TO ADVANCE BASIC AND CLINICAL RESEARCH; AND SPONSORS RESEARCH GRANTS TO PROMOTE SCIENTIFIC STUDIES FOCUSED ON HHT. 0 0 5435882 2385005 RESEARCH - THE RESEARCH PROGRAM SUPPORTS FUNDING FOR STUDIES THAT ADVANCE UNDERSTANDING OF THE UNDERLYING MECHANISMS OF HHT, FOSTERS THE DEVELOPMENT OF NOVEL THERAPEUTIC APPROACHES FOR TREATMENT AND DISEASE MANAGEMENT, AND PROMOTES TRANSLATIONAL RESEARCH THAT LEADS TO MULTI-CENTER CLINICAL TRIALS. IN ADDITION, THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD BIENNIALLY TO FACILITATE COLLABORATION AND THE EXCHANGE OF SCIENTIFIC KNOWLEDGE AMONG RESEARCHERS AND CLINICIANS. 390312 470997 EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO ADVANCE AWARENESS, ACCURATE DIAGNOSIS, AND BEST-PRACTICE TREATMENT OF HHT BY SUPPORTING PATIENT EDUCATION AND OUTREACH, SPONSORING EDUCATIONAL CONFERENCES AND PROFESSIONAL MEETINGS, AND STRENGTHENING A NETWORK OF COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE. 290891 PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE AWARENESS OF HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) AMONG THE GENERAL PUBLIC, PRIVATE SECTOR, AND GOVERNMENTAL AUDIENCES THROUGH STRATEGIC ENGAGEMENT WITH THE PRESS AND OTHER MEDIA CHANNELS. 29023 ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO REPRESENT AND SUPPORT INDIVIDUALS AFFECTED BY HHT BY ADVANCING RECOGNITION OF THE DISORDER AND SECURING FUNDING TO EXPAND AWARENESS EFFORTS, IMPROVE ACCESS TO EXPERT CARE, AND PROMOTE PARTICIPATION IN CLINICAL TRIALS. 29023 6146108 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 1 0 0 1 1 0 0 1 1 1 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 1 37 0 1 19 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AK AR CA CO CT DC FL GA IL KS LA ME MD MA MN MI NH NJ NM NY NC OH OK OR PA RI SC TN UT VA WA WV AZ IA KY MS MO TX WI AL DE HI ID IN MT NE NV ND SD VT WY X X HILLEARY ABBRUZZESE 4103579932 PO BOX 329 MONKTON MD 21111 JOHN DUNN PRESIDENT 1.00 X X 0 0 0 GABRIELLA CHOI VICE PRESIDENT 1.00 X X 0 0 0 MARC TOPAZ ESQ TREASURER 1.00 X X 0 0 0 KAREN SILBER WEISSEL PHD SECRETARY 1.00 X X 0 0 0 ANTHONY ANZELL PHD MEMBER 1.00 X 0 0 0 SCOTT BOATWRIGHT MEMBER 1.00 X 0 0 0 HOWARD LICHTIG MEMBER 1.00 X 0 0 0 MARIJO MCCUNE MEMBER 1.00 X 0 0 0 MIKE NOLAN MEMBER 1.00 X 0 0 0 BRANDON PROBST PHD MEMBER 1.00 X 0 0 0 DENNIS SPRECHER MD MEMBER 1.00 X 0 0 0 TERRY THOMPSON JR MEMBER 1.00 X 0 0 0 DENNIS ROUTLEDGE MEMBER EMERITUS 1.00 X 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 40.00 X 199190 0 35561 STEFANIE-NICOLE SCHAEFER CHIEF OPERATING OFFICER 40.00 X 114106 0 22165 MELISSA DICKEY DIRECTOR, NAT'L HHT COORDINATING CENTER 40.00 X 145845 0 13525 459141 0 71251 3 0 1 0 BIORASI LLC 18851 NE 29TH AVE SUITE 800 MIAMI FL 33180 CLINICAL TRIALS AND RESEARCH 709889 Q SQUARED SOLUTIONS LLC 2400 ELLIS ROAD DURHAM NC 27703 CONSULTING SERVICES 179085 ALICIA LYNN KREUL HALL 3311 CANOE BROOK PKWY RALEIGH NC 27614 CLINICAL TRIALS AND RESEARCH 157413 3 30036 4416977 4798567 207396 9245580 CONFERENCE FEES 900099 470997 470997 470997 110501 110501 866571 842102 24469 24469 24469 11942 30036 29804 -17862 -17862 OTHER INCOME 900099 7831 7831 7831 9841516 470997 0 124939 X 2350067 2350067 34938 34938 420856 240300 111218 69338 758456 625698 85792 46966 17102 15277 1253 572 70550 60909 6117 3524 87797 64603 14764 8430 59747 59747 134000 134000 3567 3567 1985514 1851192 133866 456 60294 31784 409 28101 168644 95796 49313 23535 387447 222337 161343 3767 14171 14171 91656 41507 22438 27711 428622 428497 125 1864 1864 MISCELLANEOUS AND CREDI 32366 13750 4869 13747 SUBSCRIPTIONS AND DUES 11485 1100 10385 PAZOPANIB 8606 8606 OTHER GRANTS AND AWARDS 1426 1426 7129175 6146108 612535 370532 501341 786548 2030724 3729712 158211 84089 14487 12784 3567 1703 2420226 3430897 99540 100231 5213609 8133180 658420 962042 150779 809199 962042 X 1934700 3347720 2469710 3823418 4404410 7171138 5213609 8133180 2712341 54387 0 X X 0 1 X 1 1 1 X 2144594 2356154 3267105 6587947 9245580 23601380 2144594 2356154 3267105 6587947 9245580 23601380 1796549 21804831 7772 13736 55714 104940 110501 292663 48958 -22807 -11211 -36985 -10031 -32076 23861967 1012806 0.91380 0.93720 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: NET INCOME FROM FUNDRAISING EVENTS AND OTHER INCOME RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 1 59747 59747 0 PART II-B, LINE 1, LOBBYING ACTIVITIES THE FOUNDATION CONTRACTED WITH A FIRM TO SUPPORT ITS EFFORTS TO INCREASE AWARENESS OF HHT AT THE FEDERAL LEVEL, BUILD STRATEGIC PARTNERSHIPS WITH KEY DECISION-MAKERS IN WASHINGTON, AND SECURE INCREASED FUNDING FOR RESEARCH TOWARD A CURE FOR HHT. 390387 52599 442986 327159 63228 390387 285033 42126 327159 307864 7308 -30139 285033 226950 2500 78414 307864 0.53800 0.46200 0 0 6050 5792 258 8437 6992 1445 1703 X 9892336 54387 54387 9837949 3567 3567 9841516 7125608 0 7125608 3567 3567 7129175 PART X, LINE 2: THE INCOME TAX POSITIONS TAKEN BY CURE HHT FOR ANY YEAR OPEN UNDER THE VARIOUS STATUTES OF LIMITATIONS ARE THAT THE ORGANIZATION CONTINUES TO BE EXEMPT FROM INCOME TAXES AND THAT THE ORGANIZATION HAS PROPERLY REPORTED UNRELATED BUSINESS INCOME THAT IS SUBJECT TO INCOME TAXES. CURE HHT BELIEVES THAT THERE ARE NO TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD SIGNIFICANTLY INCREASE UNRECOGNIZED TAX BENEFITS WITHIN 12 MONTHS OF THE REPORTING DATE. NONE OF THE CURE HHT'S INCOME TAX RETURNS ARE CURRENTLY UNDER EXAMINATION. PART V, LINE 4 NET ASSETS PERMANENTLY RESTRICTED RESULT FROM CONTRIBUTIONS TO BE USED TO GENERATE INCOME TO PROVIDE FOR MEDICAL RESEARCH AND/OR EDUCATION. INCOME EARNED FROM THESE NET ASSETS MUST BE USED FOR MEDICAL RESEARCH AND/OR EDUCATIONAL PROJECTS AS DETERMINED BY THE FOUNDATION'S MANAGEMENT AND BOARD OF DIRECTORS. EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 PROGRAM SERVICES INTERNATIONAL SCIENTIFIC CONFERENCE 489764 0 0 0 0 0 0 489764 0 489764 0 0 0 0 0 0 PART I, LINE 3: ACCRUAL BASIS X X X X X X X 1 NPL IMPACT AGENCY 590 WEST CROSSVILLE ROAD 103 ROSWELL GA 30075 IN-PERSON SOLICITATIONS, BUILD INTERNAL PROCESSES 0 0 134000 -134000 134000 -134000 AL AK AR CA CO CT DC FL GA HI IL KS KY ME MD MA MI MN MS MO NV NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI STONER GOLF 19158 7216 11942 17547 GRASSROOTS 17820 17820 12257 1 5000 5000 41978 30036 11942 29804 29804 -17862 1 AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC PO BOX 945552 ATLANTA GA 303945552 581418202 501(C)(3) 151338 0 HHT-RELATED RESEARCH CLEVELAND CLINIC FOUNDATION 6801 BRECKVILLE RD RK1-85 INDEPENDENCE OH 44131 340714585 501(C)(3) 118974 0 HHT-RELATED RESEARCH COLUMBIA UNIVERSITY PO BOX 29789 NEW YORK CITY NY 10087 135598093 501(C)(3) 169911 0 HHT-RELATED RESEARCH JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 501(C)(3) 74747 0 HHT-RELATED RESEARCH MASSACHUSETTS GENERAL HOSPITAL 125 NASHUA STREET SUITE 540 BOSTON MA 02114 041564655 501(C)(3) 135793 0 HHT-RELATED RESEARCH MAYO CLINIC 200 1ST STREET SOUTHWEST ROCHESTER MN 55905 416011702 501(C)(3) 106707 0 HHT-RELATED RESEARCH OREGON HEALTH SCIENCE UNIVERSITY - OFFICE OF PROPOSAL & AWARD MANAGEMENT PO BOX 3003 PORTLAND OR 97208 931176109 79872 0 HHT-RELATED RESEARCH THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY REDWOOD CITY CA 94063 941156365 501(C)(3) 130000 0 HHT-RELATED RESEARCH THE BROAD INSTITUTE INC 415 MAIN STREET NE30-7031 CAMBRIDGE MA 02142 263428781 501(C)(3) 177045 0 HHT-RELATED RESEARCH THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL OFFICE OF SPONSORED PROGRAM 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL NC 275991350 566001393 127255 0 HHT-RELATED RESEARCH TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA PA 191046205 231352685 501(C)(3) 86466 0 HHT-RELATED RESEARCH UCSF REGENTS OF THE UNIVERSITY OF CALIFORNIA 220 MONTGOMERY ST FL 5 SAN FRANCISCO CA 94104 946036493 137195 0 HHT-RELATED RESEARCH UNIVERSITY OF CALIFORNIA LOS ANGELES EXTRAMURAL FUND MANAGEMENT 10889 WILSHIRE BOULEVARD SUITE 700 LOS ANGELES CA 900951406 956006143 251639 0 HHT-RELATED RESEARCH UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS 12700 E 19TH AVE C272 AURORA CO 80045 846000555 123553 0 HHT-RELATED RESEARCH UNIVERSITY OF UTAH 201 S 1460 EAST RM 406 SALT LAKE CITY UT 84112 876000525 80218 0 HHT-RELATED RESEARCH UT SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS TX 75390 756002868 126071 0 HHT-RELATED RESEARCH WASHINGTON UNIVERSITY IN ST LOUIS 7425 FORSYTH BOULEVARD ST LOUIS MT 63105 430653611 501(C)(3) 133986 0 HHT-RELATED RESEARCH YALE UNIVERSITY OFFICE OF SPONSORED PROJECTS PO BOX 208239 NEW HAVEN CT 065208239 060646973 501(C)(3) 113034 0 HHT-RELATED RESEARCH THEUNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 990 BIRMINGHAM AL 352940109 636005396 501(C)(3) 25397 0 HHT-RELATED RESEARCH 12 7 TRAVEL AWARDS 32 34938 PART I, LINE 2: CURE HHT MONITORS THE USE OF GRANT FUNDS THROUGH REGULAR COMMUNICATIONS WITH THE ORGANIZATION AND PERFORMANCE REPORTS ON THE RESEARCH. X 0 0 0 0 0 0 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 199190 0 0 0 0 0 5792 0 29769 0 234751 0 0 0 MELISSA DICKEY DIRECTOR, NAT'L HHT COORDINATING CEN 145845 0 0 0 0 0 4408 0 9117 0 159370 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 13200 LEASE OF OFFICE SPACE 0 X 6 207396 FAIR MARKET VALUE 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE EXECUTIVE DIRECTOR REVIEWS THE 990 BEFORE FILING. THE FORM 990 IS DISTRIBUTED AND REVIEWED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C HHT FOUNDATION INTERNATIONAL, INC. MAINTAINS A CONFLICT-OF-INTEREST POLICY, WHICH IS REVIEWED ANNUALLY BY MANAGEMENT WITH THE BOARD OF DIRECTORS. BOARD MEMBERS DISCUSS THE POLICY AND SIGN A DISCLOSURE AGREEMENT EACH YEAR TO CONFIRM UNDERSTANDING AND ENSURE THE POLICY REMAINS CURRENT. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR'S SALARY IS APPROVED ANNUALLY BY THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, AS PART OF THE BUDGET APPROVAL PROCESS. THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, ALSO CONDUCTS AN ANNUAL PERFORMANCE REVIEW COVERING THE PRIOR TWELVE-MONTH PERIOD. BASED ON THE RESULTS OF THIS PERFORMANCE REVIEW, AS WELL AS ADDITIONAL ANALYSES - INCLUDING, BUT NOT LIMITED TO, COMPARISONS OF THE EXECUTIVE DIRECTOR'S COMPENSATION WITH THAT OF INDIVIDUALS IN COMPARABLE POSITIONS WITHIN THE NONPROFIT SECTOR - THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, DETERMINES ANY APPLICABLE BONUSES AND ADJUSTMENTS TO THE SUBSEQUENT YEAR'S BASE SALARY. ONCE COMPENSATION DECISIONS ARE APPROVED, A MEMBER OF THE EXECUTIVE COMMITTEE COMMUNICATES THE APPROVAL TO THE FINANCIAL ADMINISTRATOR. THE FINANCIAL ADMINISTRATOR RETAINS DOCUMENTATION SUPPORTING THE EXECUTIVE COMMITTEE'S DETERMINATIONS AND PROCESSES THE APPROVED COMPENSATION THROUGH THE PAYROLL SYSTEM. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST ONLY. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 92,023. MANAGEMENT AND GENERAL EXPENSES 133,866. FUNDRAISING EXPENSES 456. TOTAL EXPENSES 226,345. MEDICAL DIRECTOR CONSULTING: PROGRAM SERVICE EXPENSES 19,100. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 19,100. SCIENTIFIC DIRECTOR CONSULTING: PROGRAM SERVICE EXPENSES 63,475. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 63,475. SUBCONTRACTORS: PROGRAM SERVICE EXPENSES 1,676,594. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,676,594. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.