2026-04-08T03:26:29-00:00 2025-12-31 363614997 Eccezion 5400 W Elm Street Suite 203 McHenry IL 60050 990 2025-01-01 364253176 Citizens United for Research in Epilepsy CITI 3122551801 420 N Wabash Ave STE 650 Chicago IL 60611 Beth Dean CEO 3122551801 2026-04-08 true Cheryden Juergensen P01252676 8153441300 2026-04-08 2025 2025-03-06 01:10:19Z CURE Epilepsy Beth Dean 420 N Wabash Ave STE 650 Chicago IL 60611 6719515 false X www.cureepilepsy.org X 1998 IL To find a cure for epilepsy by promoting and funding patient focused research. 16 16 20 330 0 6067462 4941461 0 492012 567508 -508827 -519797 6050647 4989172 2900590 2274098 0 2236039 2332251 0 707715 1059980 922836 6196609 5529185 -145962 -540013 10689964 10409120 3693856 3714249 6996108 6694871 To find a cure for epilepsy by promoting and funding patient focused research. false false 3497893 Since its inception in 1998, CURE Epilepsy has raised more than 100 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and to date has awarded more than 300 grants in 19 countries around the world. 998335 CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness. 4496228 true true false true false false false false false false true false false false true true true false false false true true false false true false false true false true false false false false false false false false false false false false false false false false false true 13 0 true 20 true false false false false false true true false false false false false false X 16 16 false false false false false false false true true false false true true true true true true true false false AL AR CA CT FL GA HI IL KS KY MA MD MI MN MS NH NJ NM NY OK OR PA RI SC TN TX WI WV X X X John Anderluh 3122551801 420 N Wabash Ave Suite 650 Chicago IL 60611 Beth Dean CEO 037.50 X X 344007 0 0 Laura Lubbers CSO 037.50 X X 343883 0 0 Alysha Biehl Director of Development 037.50 X 170346 0 0 Dana Vielmetti Director of Marketing and Communications 037.50 X 164251 0 0 Priya Balasurbramanian Director of Research 037.50 X 138007 0 0 Elaine O'Loughlin Associate Director of Research Initiatives 037.50 X 134338 0 0 John Anderluh CFO 030.00 X 106400 0 0 Angela Mota Director of Major Gifts 037.50 X 100904 0 0 Lisa Cotton Immediate Past Chair 004.00 X 0 0 0 Shalee Cunneen Secretary 004.00 X X 0 0 0 Steve Austin Director 002.00 X 0 0 0 Irina Colon Director 001.00 X 0 0 0 Kim Borden Director 002.00 X 0 0 0 Roger Heldman Treasurer 004.00 X X 0 0 0 Carrie Garman Director 001.00 X 0 0 0 Maureen Flood Rabus Director 001.00 X 0 0 0 David Reifman Director 001.00 X 0 0 0 Walter Kelly Director 001.00 X 0 0 0 Matt Schneider Director 004.00 X 0 0 0 Kelly Cervantes Director 004.00 X 0 0 0 Michael Alexrod Director 001.00 X 0 0 0 Greg Mayes Director 001.00 X 0 0 0 Jonathan Tuteur Director 004.00 X 0 0 0 Justin Gover Chair 006.00 X X 0 0 0 1502136 8 false true false 2372560 245669 2323232 4941461 239084 239084 1466520 1138096 328424 328424 328424 72450 2372560 592247 -519797 4989172 567508 1403086 1403086 0 871012 871012 0 379849 235506 41783 102560 0 1541279 1054982 177699 308598 0 274814 167487 33351 73976 136309 83834 14304 38171 0 0 17200 11173 1654 4373 0 23059 23059 9546 6201 918 2427 0 26954 12390 1834 12730 170814 142678 8950 19186 0 113737 73882 10939 28916 50898 14740 1553 34605 0 79242 74239 5003 0 0 19843 12890 1908 5045 14250 9256 1371 3623 Advocacy and Awareness 123016 123016 Subcontractors 205169 159924 302 44943 Dues and Subscriptions 10119 4313 35 5771 Bank, Merchant, Investment Fees 38056 24721 3660 9675 20933 10898 1922 8113 5529185 4496228 325242 707715 677181 382980 667938 1226240 712303 33080 47724 443908 317095 160840 126813 8281560 8185042 311063 286320 10689964 10409120 176048 177800 3166290 3215330 351518 321119 3693856 3714249 X 4865184 5235674 2130924 1459197 6996108 6694871 10689964 10409120 -540013 238776 X false true X true false X 6172734 5937146 6403752 6067462 4941461 29522555 6172734 5937146 6403752 6067462 4941461 29522555 2322309 27200246 124018 140351 245340 268531 239084 1017324 30539879 431145 0.89060 0.90700 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 439656 439656 659484 10000 10000 109914 109914 164871 false 100519 87245 13274 214539 195490 19049 128850 34360 94490 126813 Financial derivatives and other financial products Closely-held equity interests Federal income taxes Operating Lease Liabilities 321119 321119 X 5252595 238776 47706 286482 4966113 23059 23059 4989172 5553832 47706 47706 5506126 23059 23059 5529185 X 2 The Organization is exempt from federal income taxes under Section 501c3 of the Internal Revenue Code and reported no unrelated business income for the year ended December 31, 2025. Management represents there are no uncertain tax positions or other provision for income taxes that should be recognized in these financial statements. In addition, the Organization qualifies to receive deductible charitable contributions pursuant to Section 170b1Avi. true Europe Including Iceland and Greenland Grants to recipients in region 399903 Middle East and North Africa Grants to recipients in region 249587 North America Grants to recipients in region 221522 871012 871012 Europe Including Iceland and Greenland Research Grant 399903 Wire Middle East and North Africa Research Grant 249587 Wire North America Research Grant 221522 Wire 3 false false false false false false Part I Line 2 Grantees are required to make periodic progress reports Chicago Benefit 1618953 1562553 56400 598 160422 115526 169102 NYC Benefit 207399 191349 16050 478 30374 7921 33291 2 618658 618658 19184 55351 2445010 2372560 72450 1076 19184 190796 123447 257744 592247 -519797 true Gordon Research Conferences 5586 Post Rd G02 East Greenwich RI 02818 260150662 501c3 15000 Research Conference American Epilepsy Society 135 South LaSalle Suite 2850 Chicago IL 60603 046112600 501c3 15000 Research Conference Nucleus Healthcare Consulting 900 Sunwood Court Eagan MN 55123 920768771 Individual 10566 Research Grant Stanford University PO Box 884253 Los Angeles CA 90088 941156365 501c3 258324 Research Grant Childrens Hospital of Philadelphia PO Box 8500 Philadelphia PA 19178 222237932 501c3 50000 Research Grant Bruker Spatial Biology 530 Fairview Avenue Seattle WA 98109 992603682 C Corp 9673 Research Grant Mid-Atlantic Sleep and Epilepsy Center 6410 Rockledge Dr Bethesda MD 20817 300767458 S Corp 6300 Research Grant Research Foundation for Mental Hygiene 150 Broadway Suite 301 Menands NY 12204 141410842 501c3 250000 Research Grant Trustees of the University of Pennsylvania 3451 Walnut Street Philadelphia PA 19104 231352685 501c3 125000 Research Grant University of California Riverside 200 University Office Building Riverside CA 92521 856006142 501c3 125000 Research Grant University of Southern California 3551 Trousdale Pkwy Los Angeles CA 90089 951642394 501c3 125000 Research Grant Seattle Children's Hospital 4800 Sand Point Way NE Seattle WA 98105 910564748 501c3 100000 Research Grant Northwestern University 633 Clark Street Room G-547 Evanston IL 60208 362167817 501c3 100000 Research Grant The Jackson Laboratory 600 Main Street Bar Harbor ME 04609 010211513 501c3 100000 Research Grant 11 3 X X X X X false false false false false false false false false Alysha Biehl Director of Development 170346 5184 8755 184285 Beth Dean CEO 312977 31030 10519 25323 379849 Laura Lubbers CSO 313267 30616 10379 8721 362983 Dana Vielmetti Director of Marketing and Communications 164251 5145 25394 194790 Form 990, Part VI, Section B, Line 11b Form 990 is reviewed by the finance manager, treasurer and chief executive officer. When the draft is approved, it is sent to the entire board Form 990, Part VI, Section B, Line 12c Each board member signs it annually and expects to self-monitor. Conflicts are dealt with on a case-by-case basis. Form 990, Part VI, Section C, Line 19 Governing documents and conflict of interest policy are not generally available to the public. The organizations financial statements are available on its website. Form 990, Part VI, Section B, Line 15a Comparable salary information is obtained and reviewed using an outside executive search firm. The board of directors has final approval and review compensation annually.