2026-04-14T09:32:31+00:00 2025-06-30 440160260 Forvis Mazars LLP 1201 Walnut Street Suite 1700 Kansas City MO 641062246 990 2024-07-01 431266906 PKD Foundation PKDF 8169312600 1001 E 101st Ter 220 Kansas City MO 64131 Susan Bushnell President, Chief Executive Officer 8169312600 2026-04-14 true Matthew C Hall P01573021 8162216300 2026-04-14 2024 2025-03-06 01:10:19Z SUSAN BUSHNELL 1001 E 101st Ter 220 Kansas City MO 64131 16070525 false X WWW.PKDCURE.ORG X 1982 MO WE GIVE HOPE. WE FUND RESEARCH, ADVOCATE FOR PATIENTS, AND BUILD A COMMUNITY FOR ALL IMPACTED BY PKD. 14 13 35 800 0 0 8184664 9705474 0 0 652841 1272154 -17675 31494 8819830 11009122 3153559 3060000 0 3901227 4079801 44667 0 928396 2546581 2732496 9646034 9872297 -826204 1136825 34638627 36993653 940318 804212 33698309 36189441 WE GIVE HOPE. WE FUND RESEARCH, ADVOCATE FOR PATIENTS, AND BUILD A COMMUNITY FOR ALL IMPACTED BY PKD. false false 4751680 3060000 0 RESEARCH - SEE SCHEDULE O 1551994 0 0 AWARENESS AND ADVOCACY - SEE SCHEDULE O 951944 0 0 EDUCATION AND SUPPORT - SEE SCHEDULE O 7255618 true true false true false false false false false true true false false false true false true false false false true true false false true false false true false true false false false false false false false false false false true false false false false false false false false false true 17 0 35 true false false false false false true true false false false false true false false false X 14 13 false false false false false false false true true false false false true true true true true true true true false false CA CO CT FL GA AL HI IL KS KY ME AK MD MA MI MN MS NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA AR WA WV WI X X X MICHAEL NIEKAMP 9133450440 1001 E 101ST TERRACE SUITE 220 KANSAS CITY MO 64131 AMANDA YEN DIRECTOR, SECRETARY 1.0 0.0 X X 0 0 0 CHRIS WESS DIRECTOR, VICE CHAIR 1.0 0.0 X X 0 0 0 NAVIN MANGLANI DIRECTOR, CHAIR 1.0 0.0 X X 0 0 0 STU CAPLAN DIRECTOR, TREASURER 1.0 0.0 X X 0 0 0 SUSAN BUSHNELL PRESIDENT & CEO 40.0 0.0 X X 291886 0 72690 ALIX PICCIRILLI DIRECTOR 1.0 0.0 X 0 0 0 DEBORA PLUNKETT DIRECTOR 1.0 0.0 X 0 0 0 FOUAD CHABIB MD FASN DIRECTOR 1.0 0.0 X 0 0 0 GLENN FROMMER DIRECTOR 1.0 0.0 X 0 0 0 JULIE MARSHALL DIRECTOR 1.0 0.0 X 0 0 0 MEYEON PARK MD DIRECTOR 1.0 0.0 X 0 0 0 MICHAEL HAGGARD DIRECTOR 1.0 0.0 X 0 0 0 SHAWNA WEBB DIRECTOR 1.0 0.0 X 0 0 0 VISHAL PATEL MD DIRECTOR 1.0 0.0 X 0 0 0 CARMEN GLEASON CHIEF OPERATING OFFICER 40.0 0.0 X 225341 0 63733 CRAIG ROBERTSON CHIEF GROWTH OFFICER 40.0 0.0 X 233611 0 40943 MATTHEW BECKA CHIEF RESEARCH OFFICER 40.0 0.0 X 217647 0 54261 DESIREE WHITE VP, INFORMATION SERVICES 40.0 0.0 X 126775 0 29047 KRYSTN KUCKLEMAN VP, COMMUNITY DEVELOPMENT 40.0 0.0 X 151713 0 56338 NICOLE HARR SR. DIRECTOR OF COMMUNITY PROGRAMS & EDUCATION 40.0 0.0 X 100782 0 26216 TANYA BISSEN VP, LEADERSHIP GIVING 40.0 0.0 X 153148 0 18378 1500903 0 361606 8 false true false TRINET ONE PARK PLACE SUITE 600 DUBLIN CA 94568 PROFESSIONAL EMPLOYER SERVICES 3893201 MAINFEST LLC 228 E 45TH ROOM 701 NEW YORK NY 10017 PKDF LIFE MAGAZINE PRINTING & DISTRIBUTION 213041 CURA STRATEGIES LLC 2011 CRYSTAL DRIVE STE 1005 ARLINGTON VA 22202 GOVERNMENT RELATIONS 178387 3 1615196 8090278 1293277 9705474 0 0 0 0 0 821512 821512 0 0 5430039 4979397 450642 0 450642 450642 72500 1615196 82006 -9506 -9506 MISCELLANEOUS REVENUE 900099 41000 41000 0 0 0 0 41000 11009122 0 0 1303648 2620000 2620000 440000 440000 1077625 567130 336065 174430 2213053 1285214 536066 391773 189214 102480 59348 27386 376424 218487 96860 61077 223485 135112 47891 40482 301008 240219 36933 23856 89492 37356 52136 42791 42791 183800 183800 123566 123566 292218 169193 74746 48279 247153 224264 22889 144503 78397 42498 23608 705533 583318 61548 60667 62902 49734 6924 6244 160304 79511 50177 30616 38457 18421 17447 2589 1105 1105 136101 119610 14099 2392 32602 26249 1645 4708 BANK FEES 7109 4023 1875 1211 STATE FILING FEES 21036 11903 5549 3584 DUES & SUBSCRIPTIONS 67835 61197 4033 2605 74981 0 74981 0 9872297 7255618 1688283 928396 1704138 711572 6037910 8098817 3934513 2740561 15423 133110 0 0 0 0 157031 168386 1110395 353399 450196 756996 20610752 22615574 1521390 1623723 0 207274 144914 34638627 36993653 740452 472951 0 70000 0 126184 0 0 199866 135077 940318 804212 X 18593893 22324268 15104416 13865173 33698309 36189441 34638627 36993653 1136825 1354307 0 X true X true X true false X 7628307 18319682 9493464 8184664 9705474 53331591 0 0 7628307 18319682 9493464 8184664 9705474 53331591 7313638 46017953 512170 456850 770004 920478 821512 3481014 0 61450 553 4 15011 41000 118018 56930623 0 0.80832 0.73606 X Schedule A, Part II, Line 10 Other Income DESCRIPTION - MISC INCOME, COLUMN A - 61450.0, COLUMN B - 553.0, COLUMN C - 4.0, COLUMN D - 15011.0, COLUMN E - 41000.0, COLUMN F - 118018.0; RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 183800 183800 9630750 9814550 640728 0 160182 0 0 false 517916 603757 632302 640728 2394702 3592053 174062 197348 170572 183800 725782 129479 150939 158075 160182 598676 898013 0 0 0 0 22759824 3394049 2339923 116228 28377568 19744975 719113 2404163 108427 22759824 17101843 1464490 1267075 88433 19744975 18972089 1081064 -2726381 115136 109793 17101843 14598334 569425 3894361 90031 18972089 0.624 0.0352 0.3408 false false 1110395 353399 756996 756996 Federal Income Taxes OPERATING LEASE LIABILITY 135077 135077 12568633 1354307 246764 82006 1683077 10885556 123566 0 123566 11009122 10077501 246764 82006 328770 9748731 123566 0 123566 9872297 Schedule D, Part X, Line 2 UNCERTAIN TAX POSITIONS THE FOUNDATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE U.S. INTERNAL REVENUE CODE. THE FOUNDATION DOES NOT OPERATE AS A PRIVATE FOUNDATION. ALTHOUGH IT IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON ITS PRINCIPAL OPERATIONS, THE FOUNDATION IS SUBJECT TO FEDERAL INCOME TAXES ON THE NET INCOME FROM ANY OPERATIONS IDENTIFIED BY THE INTERNAL REVENUE SERVICE TO GENERATE UNRELATED BUSINESS INCOME. NO SUCH UNRELATED BUSINESS INCOME TAX WAS INCURRED DURING 2023 OR 2022. THE FOUNDATION FOLLOWS THE STANDARDS FOR EVALUATING UNCERTAIN TAX POSITIONS AND HAS DETERMINED NO LIABILITY SHOULD BE RECORDED FOR UNCERTAIN TAX POSITIONS. Schedule D, Part V, Line 4 Intended uses of endowment funds THE FOUNDATION'S ENDOWMENT CONSISTS OF MULTIPLE INDIVIDUAL FUNDS THAT ARE USED TO SUPPORT RESEARCH FUNDING. Schedule D, Part XI, Line 2(d) Other revenues in audited financial statements not in form 990 SPECIAL EVENT EXPENSES - 82006 Schedule D, Part XII, Line 2(d) Other expenses in audited financial statements not in form 990 SPECIAL EVENT EXPENSES - 82006 true Europe (Including Iceland and Greenland) 0 0 Grantmaking 240000 Middle East and North Africa 0 0 Grantmaking 80000 North America (Canada & Mexico only) 0 0 Grantmaking 120000 0 0 0 0 0 0 440000 0 440000 Europe (Including Iceland and Greenland) RESEARCH GRANT 80000 WIRE Europe (Including Iceland and Greenland) RESEARCH GRANT 80000 WIRE Middle East and North Africa RESEARCH GRANT 80000 WIRE North America (Canada & Mexico only) RESEARCH GRANT 70000 WIRE North America (Canada & Mexico only) RESEARCH GRANT 50000 WIRE Europe (Including Iceland and Greenland) RESEARCH GRANT 80000 WIRE 6 0 false false false false false false Schedule F, Part I, Line 2 Procedures for monitoring use of grant funds GRANTS ARE TWO YEAR COMMITMENTS AND REQUIRE AN INTERIM REPORT AFTER YEAR ONE AND A FINAL REPORT AFTER YEAR TWO. BOTH REPORTS REQUIRE A SUMMARY OF RESEARCH ACCOMPLISHMENTS VERSUS THE SPECIFIC AIMS OF THE GRANT, AND A RECONCILIATION OF THE USE OF GRANT FUNDS VERSUS THE APPROVED BUDGET. Schedule F, Part I, Line 3 Method used to account for expenditures on org's financial statements EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual; MIDDLE EAST AND NORTH AFRICA-Accrual; NORTH AMERICA (CANADA & MEXICO ONLY)-Accrual Schedule F, Part II, Line 1 Method used to account for expenditures on org's financial statements EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual; MIDDLE EAST AND NORTH AFRICA-Accrual; NORTH AMERICA (CANADA & MEXICO ONLY)-Accrual MIAMI CASINO 287339 249839 37500 0 0 0 7520 0 0 SARASOTA GOLF 134626 99626 35000 0 0 1000 0 0 10856 39 1265731 1265731 0 0 0 27712 556 3008 31354 1687696 1615196 72500 0 0 28712 8076 3008 42210 82006 -9506 true YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 06508 060646973 501(C)(3) 60000 CARE CENTER GRANT Childrens National Medical Center 111 Michigan Ave NW WASHINGTON DC 20010 521654453 501(C)(3) 70000 Care Center Grant Tufts Medical Center 800 Washington St BOSTON MA 02111 043400617 501(C)(3) 65000 Care Center Grant Mayo Clinic Jacksonville FL 4500 San Pablo Road JACKSONVILLE FL 32224 593337028 501(C)(3) 65000 Care Center Grant Emory University 1599 Clifton Rd NE ATLANTA GA 30322 580566256 501(C)(3) 73000 Care Center Grant U Wisconsin Medical System 21 N Park St Ste 6301 MADISON WI 53715 396006492 501(C)(3) 60000 Care Center Grant Columbia University 615 W 131st St 3RD FLOOR NEW YORK NY 10027 135598093 501(C)(3) 62000 Care Center Grant Rogosin Institute 504 E 74th St New York NY 10021 133184198 501(C)(3) 28000 Care Center Grant Kansas University PO Box 928 Lawrence KS 66044 480547734 501(C)(3) 60000 Care Center Grant Regents University of California San Francisco 1855 Folsom Street Suite 425 SAN FRANCISCO CA 94143 946036493 501(C)(3) 70000 Care Center Grant Regents of the University of Colorado 1800 Grant Street Suite 200 DENVER CO 80203 846000555 501(C)(3) 67000 Care Center Grant Swedish Medical Center 747 Broadway Seattle WA 98122 910983214 501(C)(3) 67000 Care Center Grant UC San Diego 9500 Gilman Dr LA JOLLA CA 92093 956006144 501(C)(3) 63000 Care Center Grant U Maryland 220 N Arch St Office Level 2 BALTIMORE MD 21201 526002033 501(C)(3) 60000 Care Center Grant Loyola University of Chicago 820 N Michigan Ave LT SPA 1300 CHICAGO IL 60611 361408475 501(C)(3) 60000 Fellowship Grant Mayo Clinic 200 First Street ROCHESTER MN 55905 593337028 501(C)(3) 60000 Fellowship Grant Mayo Clinic 200 First Street ROCHESTER MN 55905 593337028 501(C)(3) 70000 Fellowship Grant Regents of the University of Colorado 1800 Grant Street SUITE 200 DENVER CO 80203 846000555 501(C)(3) 60000 Fellowship Grant University of Kansas Medical Center Research Institute 3901 Rainbow Blvd KANSAS CITY KS 66160 480547734 501(C)(3) 70000 Fellowship Grant Regents of the University of Colorado 1800 Grant Street SUITE 200 DENVER CO 80203 846000555 501(C)(3) 30000 Research Grant Mayo Clinic 200 First Street ROCHESTER MN 55905 593337028 501(C)(3) 40000 Research Grant Mayo Clinic 200 First Street ROCHESTER MN 55905 593337028 501(C)(3) 80000 Research Grant University of Alabama Birmingham 1720 2nd Ave South AB 990 BIRMINGHAM AL 35294 636005396 501(C)(3) 80000 Research Grant University of Kansas Medical Center Research Institute 3901 Rainbow Blvd KANSAS CITY KS 66160 480547734 501(C)(3) 80000 Research Grant State of Maryland - University of Maryland Baltimore PO Box 41428 BALTIMORE MD 21203 526002033 501(C)(3) 80000 Research Grant University of Kansas Medical Center Research Institute 3901 Rainbow Blvd KANSAS CITY KS 66160 480547734 501(C)(3) 80000 Research Grant University of Kansas Medical Center Research Institute 3901 Rainbow Blvd KANSAS CITY KS 66160 480547734 501(C)(3) 80000 Research Grant Mayo Clinic 200 First Street ROCHESTER NY 55905 593337028 501(C)(3) 80000 Research Grant Regents of the University of Colorado 1800 Grant Street SUITE 200 DENVER CO 80203 846000555 501(C)(3) 80000 Research Grant University of Kansas Medical Center Research Institute 3901 Rainbow Blvd KANSAS CITY KS 66160 480547734 501(C)(3) 80000 Research Grant National Institutes of Health 31 Center Dr BETHESDA MD 20892 521847251 501(C)(6) 80000 Research Grant Regents University of California San Francisco 1855 Folsom Street SUITE 425 SAN FRANCISCO CA 94143 946036493 501(C)(3) 80000 Research Grant Rutgers 33 Knightsbridge Road PISCATAWAY NJ 08854 226001086 501(C)(3) 80000 Research Grant University of Vermont and State Ag College 85 South Prospect Street BURLINGTON VT 05405 030179440 501(C)(3) 80000 Research Grant University of Colorado Denver 1800 Grant Street SUITE 200 DENVER CO 80203 846000555 501(C)(3) 80000 Research Grant Mayo Clinic 200 First Street ROCHESTER MN 55905 593337028 501(C)(3) 80000 Research Grant State of Maryland - University of Maryland Baltimore PO Box 41428 BALTIMORE MD 21203 526002033 501(C)(3) 80000 Research Grant Augusta University Research Institute 1120 5th Street AUGUSTA GA 30912 581418202 501(C)(3) 80000 Research Grant 38 1 Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds ALL GRANTEES ARE REQUIRED TO SUBMIT AN ANNUAL RESEARCH PROGRESS REPORT AND AN ANNUAL INSTITUTIONAL FINANCIAL REPORT. X X X X true false false false false false false false false SUSAN BUSHNELL PRESIDENT & CEO 273394 0 18492 0 0 0 35026 0 37664 0 364576 0 0 0 CARMEN GLEASON CHIEF OPERATING OFFICER 208961 0 16380 0 0 0 27041 0 36692 0 289074 0 0 0 CRAIG ROBERTSON CHIEF GROWTH OFFICER 219636 0 13975 0 0 0 28033 0 12910 0 274554 0 0 0 MATTHEW BECKA CHIEF RESEARCH OFFICER 176018 0 0 0 41629 0 26118 0 28143 0 271908 0 0 0 TANYA BISSEN VP, LEADERSHIP GIVING 153148 0 0 0 0 0 18378 0 0 0 171526 0 0 0 KRYSTN KUCKLEMAN VP, COMMUNITY DEVELOPMENT 151713 0 0 0 0 0 18206 0 38132 0 208051 0 0 0 DESIREE WHITE VP, INFORMATION SERVICES 126775 0 0 0 0 0 15213 0 13834 0 155822 0 0 0 Schedule J, Part I, Line 4a Severance or change-of-control payment THE FOLLOWING SEVERANCE PAYMENTS WERE MADE DURING THE YEAR: MATTHEW BECKA $41,629 9 5493 Market value 31 1230036 Market value X MISCELLANEOUS WALK SUPPLIES 57748 Market value 0 false true true Schedule M, Part I, Line 32b Third parties used to solicit, process, or sell noncash contributions A third party was engaged to sell the vehicles. Schedule M, Part I Explanations of reporting method for number of contributions Cars and other vehicles - The numbers in this column are the number of contributions Securities - Publicly traded - The numbers in this column are the number of contributions Form 990, Part III, Line 4a PROGRAM SERVICE DESCRIPTION RESEARCH: SINCE ITS FOUNDING IN 1982, THE FOUNDATION HAS INVESTED MORE THAN $50 MILLION IN RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, AWARDS, FELLOWSHIPS AND SCIENTIFIC MEETINGS, MAKING IT THE LARGEST PRIVATE FUNDER OF POLYCYSTIC KIDNEY DISEASE (PKD) RESEARCH. THE FOUNDATION'S FINANCIAL COMMITMENT OVER THE YEARS HAS SEEN RESULTS ON A LOCAL, NATIONAL AND EVEN GLOBAL LEVEL, INCLUDING INITIATING FUNDING FOR YOUNG INVESTIGATORS FROM AROUND THE WORLD; SUPPORTING INNOVATIVE RESEARCH IDEAS; AND PROVIDING SEED FUNDING TO ALLOW RESEARCHERS WORLD-WIDE TO APPLY FOR LARGER NATIONAL INSTITUTE OF HEALTH (NIH) GRANTS. INITIATIVES INCLUDED IN RESEARCH ARE OUTLINED BELOW. RESEARCH GRANTS: SUPPORT FOR BASIC LABORATORY RESEARCH AIMED AT INCREASING UNDERSTANDING OF THE GENETIC AND PATHOLOGICAL PROCESSES INVOLVED IN PKD AS WELL AS RESEARCH WITH AN OBVIOUS OR DIRECT POTENTIAL TO ACCELERATE THE DEVELOPMENT OF POTENTIAL THERAPIES. RESEARCH FELLOWSHIPS: SUPPORT AND RECOGNIZE EARLY-CAREER SCIENTISTS WHOSE ACHIEVEMENTS AND POTENTIAL IDENTIFY THEM AS RISING STARS - THE NEXT GENERATION OF SCIENTIFIC LEADERS IN PKD RESEARCH. OUR FELLOWSHIPS AIM TO ATTRACT PROMISING TRAINEES WHO WILL OBTAIN SIGNIFICANT RESEARCH EXPERIENCE AS THEY INITIATE AND - WE HOPE - SPEND LONG AND PRODUCTIVE CAREERS IN PKD RESEARCH. PKD OUTCOMES CONSORTIUM (PKDOC): A SIGNIFICANT COLLABORATION BETWEEN THE FOUNDATION, CRITICAL PATH INSTITUTE, REPRESENTATIVES OF THE PHARMACEUTICAL INDUSTRY, PKD CLINICIANS, AND THE U.S. FOOD AND DRUG ADMINISTRATION (FDA). IT WAS CREATED TO FACILITATE CLINICAL TRIAL DEVELOPMENT FOR PKD THERAPIES BY ESTABLISHING A CLEAR REGULATORY PATHWAY FOR THE PHARMACEUTICAL INDUSTRY TO EVALUATE THE EFFECTIVENESS OF POTENTIAL TREATMENTS. ADPKD REGISTRY: AN ONLINE, DIRECT-TO-PATIENT, LONGITUDINAL REGISTRY FOR INDIVIDUALS DIAGNOSED WITH ADPKD IN THE UNITED STATES. THE REGISTRY ALSO PROVIDES TARGETED CLINICAL STUDY RECRUITMENT FOR BOTH ACADEMIC AND INDUSTRY-SPONSORED STUDIES IN PATIENTS. Form 990, Part III, Line 4b PROGRAM SERVICE DESCRIPTION AWARENESS AND ADVOCACY: THE FOUNDATION USES MARKETING TO INCREASE DISEASE AWARENESS, PROMOTE THE FOUNDATION'S SERVICES, AND INSPIRE THE PUBLIC TO SUPPORT THE FOUNDATION'S MISSION. MARKETING MATERIALS INCLUDE PKD LIFE MAGAZINE, A MONTHLY EMAIL NEWSLETTER, SOCIAL MEDIA, THE PKD BLOG, AND PKDCURE.ORG. IN ADDITION, FOUNDATION REPRESENTATIVES AND VOLUNTEERS DIRECTLY ENGAGE LEGISLATORS TO ENCOURAGE SUPPORT OF LEGISLATION THAT INCREASES FUNDING FOR AND AWARENESS OF PKD. THE FOUNDATION ADVOCATES FOR PKD PATIENTS IN POLICYMAKING, DRUG DEVELOPMENT, AND REGULATORY DECISION-MAKING AT THE STATE AND FEDERAL LEVEL. OUR GOALS ARE TO RAISE AWARENESS AND FURTHER LEGISLATION, REGULATION, AND FEDERAL FUNDING OPPORTUNITIES THAT IMPROVE THE LIVES OF EVERYONE IN THE PKD COMMUNITY. Form 990, Part III, Line 4c PROGRAM SERVICE DESCRIPTION EDUCATION AND SUPPORT: THE PKD FOUNDATION SUPPORTS THE PKD COMMUNITY THROUGH MORE THAN 55 VOLUNTEER-LED CHAPTERS ACROSS THE UNITED STATES. CHAPTERS PROVIDE MEANINGFUL OPPORTUNITIES FOR THE LOCAL COMMUNITY TO GATHER TOGETHER TO LEARN FROM EXPERTS OR IN SUPPORT OF EACH OTHER. CHAPTERS RAISE FUNDS FOR THE FOUNDATION THROUGH EVENTS LIKE COCKTAILS FOR A CURE AND THE WALK FOR PKD, THE FOUNDATION'S SIGNATURE EVENT TO RAISE FUNDS AND AWARENESS. WALKS TAKE PLACE IN MORE THAN 50 CITIES ACROSS THE NATION EACH YEAR AND HAVE RAISED OVER $33 MILLION SINCE 2000. ON A NATIONAL LEVEL, THE PKD FOUNDATION EMPOWERS PKD PATIENTS AND CAREGIVERS TO MANAGE PKD WHILE MAINTAINING A HIGH QUALITY OF LIFE. THE FOUNDATION PROVIDES RESOURCES ACROSS THE CONTINUUM OF DISEASE PROGRESSION FOR PATIENTS, CAREGIVERS, PARENTS, ETC. RESOURCES INCLUDE WEBINARS, ENDURING WEBCASTS, VIDEOS, A COMPREHENSIVE WEBSITE (PKDCURE.ORG/EDUCATION), HANDBOOKS AND OTHER PRINT MATERIALS. THE ANNUAL PKD NATIONAL CONFERENCE (PKDCON) IS THE FOUNDATION'S LARGEST EDUCATION EVENT BRINGING TOGETHER THE ENTIRE PKD COMMUNITY INCLUDING, PATIENTS, CAREGIVERS, VOLUNTEERS, RESEARCHERS AND CLINICIANS. Form 990, Part VI, Line 15a 15B -PROCESS TO ESTABLISH COMPENSATION THE EXECUTIVE COMMITTEE OF THE BOARD LOOKS AT COMPENSATION SURVEYS AND ALSO COMPARES SALARIES IN SIMILAR ORGANIZATIONS TO DETERMINE THE REASONABLENESS OF SALARIES FOR OFFICERS. THE EXECUTIVE COMMITTEE ALSO CONSIDERS OTHER PERFORMANCE-BASED CRITERIA WHICH INCLUDES A WRITTEN PERFORMANCE APPRAISAL OF THE EXECUTIVE DIRECTOR. Form 990, Part VI, Line 11b Review of form 990 by governing body THE INITIAL DRAFT OF THE IRS FORM 990 IS REVIEWED BY MANAGEMENT FOR COMPLETENESS AND ACCURACY. ONCE MANAGEMENTS REVIEW IS COMPLETE, THE DRAFT IS SENT TO EACH MEMBER OF THE BOARD OF DIRECTORS FOR REVIEW, COMMENT, AND APPROVAL. IF ANY CHANGES ARE MADE, THE REVISED DRAFT IS RESENT TO THE BOARD FOR REVIEW AGAIN. UPON FINAL APPROVAL, THE RETURN IS FILED WITH THE INTERNAL REVENUE SERVICE ELECTRONICALLY. Form 990, Part VI, Line 12c Conflict of interest policy THE BOARD REVIEWS THE CONFLICT OF INTEREST POLICY ANNUALLY AND ASKS ALL BOARD MEMBERS AND EMPLOYEES TO DISCLOSE ANY CONFLICTS OR POTENTIAL CONFLICTS. IN ADDITION, ALL CONTRACTS ARE REVIEWED FOR KNOWN OR POTENTIAL CONFLICTS BY THE EXECUTIVE DIRECTOR, SR. DIRECTOR FINANCE & ADMINISTRATION AND THE EXECUTIVE COMMITTEE ON AN ON-GOING BASIS. Form 990, Part VI, Line 19 Required documents available to the public FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY, AND DONOR PRIVACY POLICY ARE AVAILABLE ON THE ORGANIZATIONS WEBSITE OR BY WRITTEN REQUEST. Form 990, Part VII, Section A, Line 1a PKD FOUNDATION CONTRACTS WITH TRINET, A PROFESSIONAL EMPLOYER ORGANIZATION, TO PROVIDE CERTAIN EMPLOYEE BENEFITS AND PAYROLL SERVICES. EMPLOYEES ARE CONSIDERED TO BE JOINTLY EMPLOYED BY BOTH PKD FOUNDATION AND TRINET. IN ORDER TO COMPLY WITH TRANSPARENCY DIRECTIVES AS A PART OF THE FORM 990, THE FOUNDATION HAS DECIDED TO REPORT COMPENSATION IN PART VII TO INCLUDE AMOUNTS PAID AND REPORTED ON W-2S BY TRINET.