2026-04-22T11:17:45-05:00 2025-06-30 881478669 CBIZ ADVISORS LLC 1899 L STREET NW 850 WASHINGTON DC 20036 990 2024-07-01 824218205 ASH REGISTRY INC ASHR 2027760544 2021 L STREET NW 900 WASHINGTON DC 20036 MATTHEW GERTZOG EXECUTIVE DIRECTOR 2027760544 2026-04-21 1 1 AARON FOX P01365820 2022274000 2026-04-21 2024 2025-03-06 01:10:19Z ASH RESEARCH COLLABORATIVE MATTHEW GERTZOG 2021 L STREET NW 900 WASHINGTON DC 20036 4973130 0 X WWW.ASHRESEARCHCOLLABORATIVE.ORG X 2017 DC ASH RC ACCELERATES HEMATOLOGY RESEARCH THROUGH REAL-WORLD DATA, NETWORKS, AND INCLUSIVE STUDY ACCESS. 11 11 0 79 0 0 2596845 4358950 382119 614180 0 0 0 0 2978964 4973130 763278 730473 0 0 2355405 3092881 0 0 0 6559437 6215261 9678120 10038615 -6699156 -5065485 2501839 3937364 45049715 51550725 -42547876 -47613361 THE ASH RESEARCH COLLABORATIVE (ASH RC) IS WORKING TO ACCELERATE CHANGE BY MAKING IT MORE EFFICIENT TO CONDUCT RESEARCH, FROM INCREASING ACCESS TO HIGH-QUALITY CLINICAL DATA TO MAKING IT EASIER FOR INDIVIDUALS WITH HEMATOLOGIC CONDITIONS TO PARTICIPATE IN STUDIES. 0 0 7998220 730473 614180 THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS IN SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON PATIENTS WITH MULTIPLE MYELOMA (MM) AND SICKLE CELL DISEASE (SCD). THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 24,000 PATIENTS WITH SCD AND 6,300 PATIENTS WITH MM. 7998220 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 19 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 X TIFFANY AKE 2027760544 2021 L STREET NW 900 WASHINGTON DC 20036 MARK CROWTHERMDMSCFRCPCFRSC BOARD CHAIR 2.00 0.00 X X 0 0 0 GARY SHILLER SECRETARY/TREASURER 2.00 0.00 X X 0 0 0 LINDA BURNS MD APPOINTED MEMBER 2.00 2.00 X 0 0 0 ROY SILVERSTEIN MD LIAISON TO ASH EC 2.00 2.00 X 0 0 0 CHRISTOPHER BOONE PHD FACHE FHIMSS - APPOINTED MEMBER 2.00 0.00 X 0 0 0 HELEN BURSTIN MD MPH APPOINTED MEMBER 2.00 0.00 X 0 0 0 ANDREW EVENS DO MBA MSC APP MEM TILL 03/25, VICE CHAIRPERSON 2.00 0.00 X X 0 0 0 MARC GINSKY JD APPOINTED MEMBER 2.00 0.00 X 0 0 0 BOB LOWENBERG MD PHD APPOINTED MEMBER 2.00 0.00 X 0 0 0 CHRIS MCENTEE APPOINTED MEMBER AS OF 05/25 2.00 0.00 X 0 0 0 MARTHA LIGGETT ESQ EX-OFFICIO 2.00 2.00 X 0 0 0 MATTHEW GERTZOG EXECUTIVE DIRECTOR 18.00 17.00 X 324492 324492 95076 KATHLEEN TORRES SENIOR DIRECTOR, DATA HUB 40.00 0.00 X 398919 0 87188 CHRISTOPHER DOWD DEPUTY DIR., BUSINESS DEVELOPMENT 40.00 0.00 X 412041 0 101266 MICHELLE WALSER DEPUTY DIRECTOR, OPERATIONS 40.00 0.00 X 278287 0 73820 SUSAN ROGERS SENIOR MANAGER LEARNING COMMUNITY PROGRAMS 40.00 0.00 X 192116 0 25098 EMILY SEMMEL DEPUTY DIRECTOR, DATA HUB 40.00 0.00 X 177432 0 40911 1783287 324492 423359 10 0 1 0 IQVIA RDS INC 4820 EMPEROR BLVD DURHAM NC 27703 DATA AGGREGATION/DATA MGMT 1517692 NEW YORK CITY HEALTH & HOSPITAL CORPORAT 50 WATER STREET NEW YORK NY 10004 RESEARCH STUDY FUNDING COST 262694 DELOITTE CONSULTING LLP 4022 SELLS DRIVE HERMITAGE TN 37076 CONSULTING 252000 STRATEGIC RESEARCH SOLUTIONS 108 S PINE STREET FENTON MI 48430 PROGRAM MGMT SUPPORT/CONSULTING 237975 BREAKTHROUGH HEALTHCARE 2803 MANHATTAN AVE BALTIMORE MD 21215 DATA INFO./ ANALYTICS & GRANT MGMT 224147 10 607837 3751113 4358950 PROJECTS 900099 614180 614180 614180 4973130 614180 0 0 X 730473 730473 351567 316411 35156 2103370 1414681 688689 185756 126444 59312 271628 186779 84849 180560 126392 54168 65577 65475 102 3972586 3965256 7330 89058 89058 4735 2952 1783 48279 26909 21370 53421 29776 23645 61444 61444 311112 311112 COST AGREEMENT 980000 980000 STIPENDS 367005 367005 HONORARIA 205859 205859 SUBSCR/PUBLICATIONS 32499 32448 51 23686 1190 22496 10038615 7998220 2040395 0 515987 472074 1813209 3333171 51500 72420 307220 247521 121143 59699 2501839 3937364 251143 430180 44798572 51120545 45049715 51550725 X -42548922 -50829407 1046 3216046 -42547876 -47613361 2501839 3937364 -5065485 0 X X 0 1 X 1 0 X X 1 AMERICAN SOCIETY OF HEMATOLOGY INC 237080568 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 307220 247521 59699 59699 DUE TO RELATED PARTY 51120545 51120545 X 4973130 0 4973130 0 4973130 10038615 0 10038615 0 10038615 PART X, LINE 2: THE SOCIETY EVALUATED ITS UNCERTAINTY IN INCOME TAXES FOR THE YEAR ENDED JUNE 30, 2025 AND 2024, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS; AND THERE ARE CURRENTLY NO EXAMINATIONS PENDING OR IN PROGRESS. 1 THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 47 52ND STREET OAKLAND CA 94609 946036493 501(C)(3) 50000 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL MONTEFIORE MEDICAL CENTER 111 210TH STREET BRONX NY 10467 131740114 501(C)(3) 50000 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL UNIVERSITY OF CONNECTICUT HEALTH CENTER 263 FARMINGTON AVENUE DEPARTMENT OF MEDICINE MC 1628 FARMINGTON CT 06030 521725543 501(C)(3) 50000 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE MLC 4900 CINCINNATI OH 45229 310833936 501(C)(3) 50000 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL EMORY UNIVERSITY WOODRUFF EXTENSION BLDG SUITE 144 ATLANTA GA 30322 580566256 501(C)(3) 50000 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE BIRMINGHAM AL 35294 636005396 501(C)(3) 50000 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS TX 75390 756002868 501(C)(3) 50000 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501(C)(3) 50000 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL NEWARK BETH ISRAEL MEDICAL CENTER 201 LYONS AVENUE NEWARK NJ 07112 223452311 501(C)(3) 48847 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL BAYLOR COLLEGE OF MEDICINE 1102 BATES STREET SUITE 1570 HOUSTON TX 77030 741613878 501(C)(3) 48251 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL DUKE UNIVERSITY UMC 3939 CLINIC 2N 40 MEDICINE CIRCLE DURHAM NC 27710 560532129 501(C)(3) 47205 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL MEDICAL COLLEGE OF WISCONSIN 8733 WATERTOWN PLANK ROAD PO BOX 26509 MILWAUKEE WI 53226 390806261 501(C)(3) 44968 0 ASH RC RESEARCH NETWORK SITE GRANT ANN & ROBERT H LURIE CHILDREN'S HOSP CHICAGO 225 E CHICAGO AVE BOX 30 CHICAGO IL 60611 362170833 501(C)(3) 41143 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE WASHINGTON DC 20010 521654453 501(C)(3) 30034 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL AUGUSTA UNIVERSITY RESEARCH INSTITUTE 1120 15TH STREET AUGUSTA GA 30912 581418202 501(C)(3) 28691 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL NEW YORK CITY HEALTH & HOSPITAL CORPORATION 1400 PELHAM PARKWAY SOUTH SUITE 303 NEW YORK NY 10461 132655001 501(C)(3) 19161 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL BOSTON MEDICAL CENTER 72 E CONCORD ST R-304 BOSTON MA 02118 043314093 501(C)(3) 13800 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL PRISMA HEALTH-UPSTATE 900 W FARIS ROAD GREENVILLE SC 29605 811723202 501(C)(3) 13584 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL WASHINGTON UNIVERSITY 660 SOUTH EUCLID MSC 8505-45-01 LOUIS MO 63110 430653611 501(C)(3) 9538 0 ASH RC SCD RESEARCH NETWORK ANNUAL GRANT RENEWAL 19 0 PART I, LINE 2: ASH RC COLLECTS AND STORES THE RESEARCH SITE'S REPORTED PLANNED USE OF THE GRANT/ASSISTANCE AT THE BEGINNING OF THE GRANT YEAR AND ALSO COLLECTS AND STORES THE RESEARCH SITE'S REPORTED ACTUAL USE OF THE FUNDS AT THE END OF THE YEAR CYCLE. THE AWARD IS PROVIDED BASED ON A CONTRACTUAL AGREEMENT WITH THE SITES TO PROVIDE SITE SUPPORT. THEY WENT THROUGH A SITE SELECTION PROCESS WHEN THE SCD CLINICAL TRIALS NETWORK WAS ESTABLISHED TO ENSURE THEY MET THE CRITERIA NEEDED TO PARTICIPATE IN THIS PROGRAM. CHECK IN CALLS ARE CONDUCTED THROUGHOUT THE YEAR WITH RESEARCH SITE PERSONNEL AND THEY HAVE TARGETS TO MEET THROUGHOUT THE YEAR. WE ARE TRACKING PROGRESS ON KEY PERFORMANCE METRICS THAT ARE OUTLINED IN THEIR AWARD LETTER. THEIR FINAL REPORTING IS ALSO INCLUDES THIS INFORMATION AND A BREAKDOWN OF HOW THE FUNDS WERE USED. X 1 0 0 0 0 0 0 0 0 1 0 MATTHEW GERTZOG EXECUTIVE DIRECTOR 286568 286568 20000 20000 17924 17924 29250 29250 18288 18288 372030 372030 0 0 CHRISTOPHER DOWD DEPUTY DIR., BUSINESS DEVELOPMENT 367893 0 40000 0 4148 0 58496 0 42770 0 513307 0 0 0 KATHLEEN TORRES SENIOR DIRECTOR, DATA HUB 392545 0 0 0 6374 0 57800 0 29388 0 486107 0 0 0 MICHELLE WALSER DEPUTY DIRECTOR, OPERATIONS 260601 0 15000 0 2686 0 40924 0 32896 0 352107 0 0 0 EMILY SEMMEL DEPUTY DIRECTOR, DATA HUB 175866 0 0 0 1566 0 14099 0 26812 0 218343 0 0 0 SUSAN ROGERS SENIOR MANAGER LEARNING COMMUNITY PROGRAMS 188561 0 0 0 3555 0 18856 0 6242 0 217214 0 0 0 PART I, LINE 1A THE ORGANIZATION PROVIDED HEALTH CLUB DUES AS PART OF ITS WELLNESS PROGRAM. PART I, LINE 3 ASH RC RELIED ON AMERICAN SOCIETY OF HEMATOLOGY, INC. (ASH), A RELATED ORGANIZATION, TO DETERMINE COMPENSATION. ASH USED THE FOLLOWING METHODS TO DETERMINE COMPENSATION: - INDEPENDENT COMPENSATION CONSULTANT - COMPENSATION SURVEY OR STUDY - APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE - FORM 990 OF OTHER ORGANIZATIONS - COMPENSATION COMMITTEE PART I, LINE 7 MATTHEW GERTZOG AND CHRISTOPHER DOWD RECIEVED NON-FIXED DISCRETIONARY BONUS OF $40,000 EACH IN CALENDAR YEAR 2025. PARTS I AND II: ASH RC DOES NOT DIRECTLY HIRE OR COMPENSATE EMPLOYEES. AMERICAN SOCIETY OF HEMATOLOGY, INC., A RELATED ORGANIZATION EXEMPT UNDER IRS SECTION 501(C)(3), IS RESPONSIBLE FOR FILING FORMS W-2S FOR ALL EMPLOYEES. THE COMPENSATION AND RELATED NON-TAXABLE BENEFITS ARE REPORTED ON PART VII, SECTION A AS WELL AS PART IX OF EACH ORGANIZATION AS INCURRED. FORM 990, PART I, LINE 1 THE ASH RC IS CURRENTLY FOCUSED IN TWO DISEASE AREAS: ONE CLASSICAL HEMATOLOGIC CONDITION, SICKLE CELL DISEASE (SCD), AND ONE MALIGNANT HEMATOLOGIC DISEASE, MULTIPLE MYELOMA (MM). AT THE HEART OF BOTH PROGRAMS ARE SITE-BASED RESEARCH NETWORKS CONSISTING OF EXPERTS IN THEIR RESPECTIVE FIELDS. THE SCD RESEARCH NETWORK FOSTERS COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN CLINICAL RESEARCH AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SCD BY EXPEDITING THE DEVELOPMENT OF THERAPEUTICS AND GENERATING HIGH-QUALITY EVIDENCE TO SUPPORT CLINICAL DECISION-MAKING. LEARN ABOUT THE SCD RESEARCH NETWORK. THE MM RESEARCH NETWORK IS COMMITTED TO BUILDING RELATIONSHIPS WITHIN THE MYELOMA COMMUNITY, LEVERAGING THE POWER OF REAL-WORLD EVIDENCE, AND PRIORITIZING RESEARCH TO IMPROVE THE LIVES OF INDIVIDUALS LIVING WITH MULTIPLE MYELOMA. LEARN ABOUT THE MM RESEARCH NETWORK. BOTH NETWORKS ARE POWERED BY REAL-WORLD DATA (RWD) WHICH WE CALL THE DATA HUB. THE DATA HUB IS DESIGNED TO BE THE LARGEST SHARED INFORMATION RESOURCE WITH REAL-WORLD DATA TO SERVE THE HEMATOLOGY COMMUNITY. ACCESS TO THESE DATA CAN ACCELERATE RESEARCH AND DEVELOPMENT, SUPPORT REGULATORY DECISION-MAKING, AND HELP CLINICS IDENTIFY OPPORTUNITIES FOR QUALITY IMPROVEMENT. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED FIRST BY THE CHIEF FINANCIAL OFFICER, AND THEN BY THE EXECUTIVE DIRECTOR. IT WAS THEN SENT TO THE ENTIRE BOARD PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ASH RC'S CONFLICT OF INTEREST POLICY QUESTIONNAIRE IS FILLED OUT ELECTRONICALLY BY ALL BOARD MEMBERS AND OFFICERS. BEFORE EACH BOARD OR COMMITTEE MEETING A MEMBER IS PUT IN CHARGE OF REVIEWING ALL CONFLICT OF INTEREST STATEMENTS FOR THE MEMBERS ATTENDING. FURTHERMORE, MEMBERS ARE ASKED TO DISCLOSE ANY CHANGES BEFORE EVERY MEETING. WHEN AN ASH RC MEMBER HAS A CONFLICT, S/HE WILL NOT: 1. TAKE ANY ACTION ON BEHALF OF ASH CONCERNING THE SUBJECT IN CONFLICT OR ANY ISSUE RELEVANT TO THE SUBJECT IN CONFLICT; 2. PARTICIPATE IN DISCUSSIONS ON THE SUBJECT WITHOUT FULL DISCLOSURE; 3. PARTICIPATE IN DECISION-MAKING DISCUSSIONS OR CAST A VOTE; 4. IMPLY THAT HE/SHE IS ACTING ON BEHALF OF ASH RC WHEN DISCUSSING THE RELEVANT SUBJECT WITH THIRD PARTIES; OR 5. FAIL TO CLARIFY WITH THIRD PARTIES WITH WHOM HE/SHE DEALS ON THE RELEVANT SUBJECT THAT HE/SHE IS NOT ACTING ON BEHALF OF ASH RC. FORM 990, PART VI, SECTION B, LINE 15 ASH RC RELIES ON A RELATED ORGANIZATION, ASH, TO DETERMINE COMPENSATION. AS PART OF THE PROCESS FOR DETERMINING THE COMPENSATION FOR ALL OF ITS EMPLOYEES, THE COMPENSATION FOR KEY EMPLOYEES OF THE ORGANIZATION (INCLUDING THE EXECUTIVE DIRECTOR OF ASH RC) IS REVIEWED BY AN OUTSIDE HR GROUP AND APPROVED BY THE EXECUTIVE DIRECTOR OF ASH. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE CONFLICT OF INTEREST POLICY IS LOCATED ON THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G CONSULTANTS: PROGRAM SERVICE EXPENSES 3,504,423. MANAGEMENT AND GENERAL EXPENSES 5,470. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 3,509,893. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 460,833. MANAGEMENT AND GENERAL EXPENSES 1,860. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 462,693. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR. AMERICAN SOCIETY OF HEMATOLOGY INC 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 237080568 SEE PART VII DC 501(C)(3) LINE 10 N/A 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 1 0 1 0 0 PART II LINE (B) PROFESSIONAL SOCIETY SERVING BOTH CLINICIANS & SCIENTISTS AROUND THE WORLD WHO ARE WORKING TO CONQUER BLOOD DISEASES.