2026-05-05T03:08:09-00:00 2025-12-31 232808145 Michael Rosen & Company 261 Old York Road Suite 511 Jenkintown PA 19046 990 2025-01-01 453768161 Cystic Fibrosis Research Fund Inc CYST 2153416720 100 St Georges Road STE G1 Ardmore PA 19003 Michael Golinkoff President 2153416720 2026-05-05 true Michael Rosen P00793659 2158866060 2026-05-05 X 2025 2025-03-06 01:10:19Z Emily's Entourage Michael Golinkoff 100 St Georges Road STE G1 Ardmore PA 19003 3208355 false X www.emilysentourage.org X 1987 PA Research and drug development for the 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies. 14 14 11 0 3250951 2953840 0 225287 207704 -25071 -128256 3451167 3033288 1656187 1270594 0 895352 823516 0 268933 407884 668499 2959423 2762609 491744 270679 5958828 5622025 632731 25249 5326097 5596776 The organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies. false false 2302449 1281477 The organization raises money for cystic fibrosis research through direct solicitation activities. 2302449 true true false false false false false false false false true false false false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 13 0 true 11 true false false false false false false false false false false false false false X 14 14 true false false false false false false true true false false true false false true false false false X Michael Golinkoff 2153416720 100 St Georges Road Ardmore PA 19003 X Greg Reh Director 000.50 X 0 0 0 Jessica Rutstein Lazarus Director 000.50 X 0 0 0 Beth Shapiro Lavin Director 002.00 X 0 0 0 Julie Wertheimer Director 000.20 X 0 0 0 Coby Kramer Golinkoff Director 005.00 X 0 0 0 Danielle Selber Director 000.50 X 0 0 0 Doug Young Director 000.20 X 0 0 0 Nickie Boston Director 001.00 X 0 0 0 Emily Kramer Golinkoff Director 010.00 X 0 0 0 Nick Dinges Director 001.00 X 0 0 0 Joan Denenberg Director 002.00 X 0 0 0 Michael Golinkoff President 010.00 X X 0 0 0 Elizabeth Kramer Secretary 020.00 X X 0 0 0 Nancy Astor Fox Director 000.20 X 0 0 0 false false false 1672363 1281477 2953840 207704 207704 1672363 175067 -175067 Other 900099 46811 46811 46811 3033288 254515 1270594 1270594 0 0 0 0 0 799335 554578 94904 149853 0 24181 9037 14622 522 0 0 0 0 0 0 37690 31644 2706 3340 76156 56361 19795 9231 1872 6622 737 31646 20471 1103 10072 0 0 57051 54306 2745 0 0 0 0 241 241 4784 2976 1509 299 Contract Services 139580 37049 46690 55841 Science Subcontracting 84978 84978 Recruitment 109661 72440 17363 19858 Scientific Conferences 98338 98338 19143 7805 5467 5871 2762609 2302449 191227 268933 55951 61782 5872817 5538243 17307 30060 2520 2414 241 2173 5958828 5622025 575231 20249 57500 5000 632731 25249 X 5326097 5596776 5326097 5596776 5958828 5622025 270679 X false true X false false X 2094534 1898859 1324905 1814147 1281477 8413922 2094534 1898859 1324905 1814147 1281477 8413922 8413922 28868 21442 162753 225287 207704 646054 9059976 0.92870 0.92570 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false 2414 241 2173 2173 Financial derivatives and other financial products Closely-held equity interests Federal income taxes 3033288 3033288 3033288 2762609 2762609 2762609 Annual Gala 1672363 1672363 32700 30342 1005 111020 1672363 1672363 32700 30342 1005 111020 175067 -175067 true University of Massachusetts 181 Presidents Drive Amherst MA 01003 043167352 501c3 220000 San Diego State University 5500 Campanile Drive San Diego CA 92182 330373293 501c3 110000 Trustees of Boston University 1 Silber Way Boston MA 02215 042103547 501c3 55000 The University of Texas at Austin 100 Inner Campus Drive Austin TX 78712 746000203 501c3 99407 University of Rochester 500 Joseph C Wilson Blvd Rochester NY 14627 160743209 501c3 84922 Childrens Hospital of Philadelphia Research Institute 3401 Civic Center Blvd Philadelphia PA 19104 231352166 501c3 183138 University of IA 105 Jessup Hall Iowa City IA 52242 426004813 501c3 160628 Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501c3 55000 Regents of the University of Michigan 500 S State Street Ann Arbor MI 48109 386006309 501c3 55000 University of California San Diego 9500 Gilman Drive San Diego CA 92093 472452128 501c3 247500 10 Form 990, Part VI, Section A, Line 2 Four Board Members are related, 2 Parents and 2 Children. Form 990, Part VI, Line 11 Form 990 is distributed to Board Members prior to its filing with the Internal Revenue Service Form 990, Part VI, Line 19 Documents are issued to the public upon request.