2026-05-14T13:01:06-05:00 2025-06-30 410746749 CLIFTONLARSONALLEN LLP TWO INTERNATIONAL PLACE 22ND FLOOR BOSTON MA 02110 990 2025-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1300 WILSON BLVD 600 ARLINGTON VA 22209 CALANEET BALAS PRESIDENT AND CEO 2024078580 2026-05-14 1 1 LINDSEY PIGG P01268923 7819821001 2026-05-05 2024 2025-03-06 01:10:19Z CALANEET BALAS 1300 WILSON BLVD 600 ARLINGTON VA 22209 22010637 0 X WWW.ALS.ORG X 1985 DE LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. 20 20 0 20 0 0 65814797 20291104 0 0 1640602 614359 1127652 33638 68583051 20939101 16679289 6230875 0 0 43300438 12415660 1004746 544654 6441259 21255164 6835495 82239637 26026684 -13656586 -5087583 107245128 100352304 18270156 15035467 88974972 85316837 X LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. 0 0 11142906 3561117 0 PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. 3229230 2669758 0 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). 3181196 0 THE ALS ASSOCIATION DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. THE ALS ASSOCIATION'S ADVOCACY EFFORTS HELP SECURE FEDERAL AND STATE FUNDING IN SUPPORT OF ALS RESEARCH AND SUPPORT FOR PEOPLE LIVING WITH ALS. THE ADVOCACY EFFORTS INCLUDE ADVANCES IN LEGISLATION TO HELP THOSE LIVING WITH ALS NAVIGATE INSURANCE AND OTHER GOVERNMENT PROGRAMS. 17553332 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 0 0 0 0 0 1 1 0 1 1 0 0 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 X 20 20 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WV WY X X CALANEET BALAS 2024078580 1300 WILSON BLVD 600 ARLINGTON VA 22209 X LARRY FALIVENA CHAIR 5.00 X X 0 0 0 NANCY LEAMOND VICE CHAIR 5.00 X X 0 0 0 STEVE HANON SECRETARY 4.00 X X 0 0 0 MARK STANCIL TREASURER 4.00 X X 0 0 0 SCOTT KAUFFMAN IMMEDIATE PAST CHAIR 4.00 X 0 0 0 PETER MCKOWN TRUSTEE 2.00 X 0 0 0 REBECCA MOSS TRUSTEE 2.00 X 0 0 0 DANIELLE BOISVERT TRUSTEE 2.00 X 0 0 0 ANNETTE BOWMAN TRUSTEE 2.00 X 0 0 0 EVE DRYER TRUSTEE 2.00 X 0 0 0 SEDA GOFF TRUSTEE 2.00 X 0 0 0 KELLY HALL TRUSTEE 2.00 X 0 0 0 MICHAEL BENATAR TRUSTEE 2.00 X 0 0 0 DOUG BUTCHER TRUSTEE 2.00 X 0 0 0 WILLIAM SOFFELL TRUSTEE 2.00 X 0 0 0 CHRIS TONNIGES TRUSTEE 2.00 X 0 0 0 JESSE YBARRA TRUSTEE 2.00 X 0 0 0 BERNIE ZIPPRICH TRUSTEE 2.00 X 0 0 0 SANDRA PIERSOL TRUSTEE 2.00 X 0 0 0 CALANEET BALAS PRESIDENT AND CEO 37.50 X 0 0 0 GREG MITCHELL CHIEF FINANCIAL OFFICER 37.50 X 0 0 0 0 0 0 0 0 0 0 0 371570 3048766 3815683 13055085 244080 20291104 612078 612078 6256 6256 211089 208808 2281 2281 2281 849320 3048766 862728 -13408 -13408 REGISTRATION FEES 900099 18127 18127 22663 22663 40790 20939101 0 0 647997 3281485 3281485 1720806 1720806 1228584 1228584 918081 292424 379524 246133 8749416 5412458 568748 2768210 635120 401190 44374 189556 1449726 923453 141017 385256 663317 412482 42611 208224 243233 132675 58557 52001 93307 93307 231371 231371 544654 544654 88704 88704 847754 652014 94281 101459 397070 327436 504 69130 665373 157292 14958 493123 1611635 845206 205939 560490 621005 342071 56634 222300 470700 223083 25682 221935 192537 76574 61805 54158 7280 7280 294649 221702 30194 42753 104362 56347 10260 37755 CREDIT CARD FEES 199527 187 42 199298 TELECOMMUNICATIONS 97539 52755 9521 35263 BAD DEBT EXPENSES 25000 25000 644449 561737 80431 2281 26026684 17553332 2032093 6441259 2558923 2299913 2737275 108137 38222377 20419974 4039888 30031 1429577 1193958 17655274 16070469 1792679 1584805 50260252 68820941 6204157 5894545 107245128 100352304 7262521 6539498 2772243 236010 468502 941635 7766890 7318324 18270156 15035467 X 4771710 2247915 84203262 83068922 88974972 85316837 107245128 100352304 -5087583 1429448 0 X 0 0 0 X 37557524 53676289 124090097 65814797 17242338 298381045 37557524 53676289 124090097 65814797 17242338 298381045 48584762 249796283 2158934 1850075 2409226 4277779 618334 11314348 21419 119699 3120901 1562403 3938877 8763299 318458692 0.78440 0.80150 X PART II, SHORT YEAR EXPLANATION: THE ORGANIZATION CHANGED ITS TAX YEAR AND IS THEREFORE SUBMITTING A SHORT PERIOD FORM 990 TO REFLECT THE CHANGE. THE COLUMN FOR 2024 ON SCHEDULE A, PART II REFLECTS THE PERIOD FEBRUARY 1, 2025 THROUGH JUNE 30, 2025. THE COLUMN FOR 2023 ON SCHEDULE A, PART II REFLECTS THE FULL YEAR PERIOD ENDING JANUARY 31, 2025. THE COLUMN FOR 2022 ON SCHEDULE A, PART II REFLECTS THE FULL YEAR PERIOD ENDING JANUARY 31, 2024. THE COLUMN FOR 2021 ON SCHEDULE A, PART II REFLECTS THE FULL YEAR PERIOD ENDING JANUARY 31, 2023. THE COLUMN FOR 2020 ON SCHEDULE A, PART II REFLECTS THE FULL YEAR PERIOD ENDING JANUARY 31, 2022. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 30817 217408 248225 17379164 17627389 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 872335 1147968 1085078 248225 3353606 250000 250000 250000 250000 1000000 1500000 183829 152636 147081 30817 514363 233415 233415 233415 233415 700961 18056 485602 233415 6509730 -503564 5305205 700961 6516315 429109 435694 6509730 0.00000 1.00000 0.00000 0 0 1327429 596785 730644 2396495 1744592 651903 13931350 13729092 202258 1584805 RIGHT-OF-USE ASSET - OPERATING 4872494 BENEFICIAL INTEREST IN PERPETUAL TRUSTS 930965 CONTRIBUTIONS RECEIVABLE FROM REMAINDER TRUSTS 91086 5894545 ANNUITY PAYMENT LIABILITY 859775 LEASE LIABILITIES - OPERATING 6458549 7318324 PART V, LINE 4: IN 2013 AND 2014, THE ASSOCIATION RECEIVED A BEQUEST TOTALING $6,276,315, ESTABLISHING A TERM ENDOWMENT ACCORDING TO DESIGNATIONS MADE BY THE DONOR. THE PROCEEDS OF THIS BEQUEST ARE TO BE MAINTAINED BY THE ASSOCIATION IN AN ENDOWMENT FUND FOR A PERIOD OF TEN YEARS. EARNINGS FROM THE FUND ARE RESTRICTED TO SUPPORT RESEARCH AND MAY BE SPENT ON A CURRENT BASIS. UPON EXPIRATION OF THE ENDOWMENT TERM, THE CORPUS OF THE FUND MUST ALSO BE USED TO SUPPORT RESEARCH. DURING THE YEAR ENDED JANUARY 31, 2024, THE ASSOCIATION RELEASED THE REMAINDER OF THE FUNDS FROM THIS GIFT. IN ADDITION, THE ASSOCIATION HAS ANOTHER DONOR-RESTRICTED ENDOWMENT FUND. THE PRINCIPAL OF THE ENDOWMENT FUND IS TO BE HELD IN PERPETUITY AND THE NET EARNINGS USED TO SUPPORT RESEARCH EXPENDITURES. 1 EAST ASIA AND THE PACIFIC 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RESEARCH 199984 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RESEARCH 810474 NORTH AMERICA 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RESEARCH 168126 SOUTH ASIA 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RESEARCH 50000 0 0 0 0 0 0 1228584 0 1228584 EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, ASSISTIVE TECHNOLOGY 199984 WIRE TRANSFER 0 N/A N/A EUROPE ASSISTIVE TECHNOLOGY 199994 WIRE TRANSFER 0 N/A N/A EUROPE ASSISTIVE TECHNOLOGY 196000 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 98960 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 75000 WIRE TRANSFER 0 N/A N/A EUROPE POST DOCTORAL FELLOWSHIP 43291 WIRE TRANSFER 0 N/A N/A EUROPE PARTNERSHIP GRANT 100000 WIRE TRANSFER 0 N/A N/A EUROPE SEED GRANTS PROGRAM 47229 WIRE TRANSFER 0 N/A N/A EUROPE SEED GRANTS PROGRAM 50000 WIRE TRANSFER 0 N/A N/A NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES ASSISTIVE TECHNOLOGY 168126 WIRE TRANSFER 0 N/A N/A SOUTH ASIA SEED GRANTS PROGRAM 50000 WIRE TRANSFER 0 N/A N/A 0 11 0 0 0 0 0 0 PART I, LINE 2: GRANTS OUTSIDE OF THE UNITED STATES ARE FOR RESEARCH GRANTS. EACH AWARD HAS SPECIFIC MILESTONE REPORTING REQUIREMENTS AS WELL AS A FINAL REPORT THAT IS SUBMITTED UPON THE END OF THE GRANT PERIOD. THESE REPORTS SHOW THAT THE WORK BEING PERFORMED CONFORMS WITH THE PURPOSE OF THE GRANT AWARD AND THAT FUNDS ARE BEING SPENT APPROPRIATELY. X X X X X X X 1 LAUTMAN MASKA NEILL & COMPANY 1730 RHODE ISLAND AVE NW SUITE 301 WASHINGTON DC 20036 FUNDRAISING COUNSEL 0 968730 174500 794230 STREETLIGHT DIGITAL PO BOX 75 CONIFER CO 80433 FUNDRAISING COUNSEL 0 0 198786 -198786 968730 373286 595444 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY LIGHT THE JOURNEY GALA 294155 241714 52441 14836 27892 9713 13086 JACKSONVILLE WALK 215830 207370 8460 1618 6442 722 128 3388101 2599682 788419 68109 310363 67737 47764 294446 3898086 3048766 849320 69727 331641 95629 58199 307532 862728 -13408 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. 1 BAYLOR COLLEGE OF MEDICINE PO BOX 301207 DALLAS TX 753031207 741613878 501(C)3 99884 0 N/A N/A QUALITY OF CARE PROGRAM, SEED GRANTS PROGRAM BETH ISRAEL DEACONESS MEDICAL CENTER INC 330 BROOKLINE AVE OV-540 BOSTON MA 02215 042103881 501(C)3 48477 0 N/A N/A SEED GRANTS PROGRAM CONTROL BIONICS INC 745 CENTER ST SUITE 303 MILFORD OH 45150 260765235 501(C)3 179492 0 N/A N/A ASSISTIVE TECHNOLOGY FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH INC 11400 ROCKVILLE PIKE SUITE 600 NORTH BETHESDA MD 20852 521986675 501(C)3 100000 0 N/A N/A STRATEGIC INITIATIVE HOLY CROSS HOSPITAL 4725 NORTH FEDERAL HIGHWAY FT LAUDERDALE FL 33308 590791028 501(C)3 12741 0 N/A N/A BITNER PLANTE QUARTERLY GRANT INOVA HEALTH SYSTEM FOUNDATION 8095 INNOVATION DR FAIRFAX VA 22031 541071867 501(C)3 25000 0 N/A N/A CLINIC GRANT - VA DOH FUND JOHNS HOPKINS UNIVERSITY CENTERAL LOCKBOX BANK OF AMERICA 12529 COLLECTIONS CENTER DR CHICAGO IL 60693 520595110 501(C)3 100000 0 N/A N/A SEED GRANTS PROGRAM MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 BOSTON MA 022414876 042697983 501(C)3 124890 0 N/A N/A STRATEGIC INITIATIVE MAYO CLINIC ARIZONA 13400 E SHEA BLVD SCOTTSDALE AZ 85259 860800150 501(C)3 250000 0 N/A N/A QUALITY OF CARE PROGRAM MAYO CLINIC FLORIDA 200 FIRST ST SW ROCHESTER MN 55905 590714831 501(C)3 97293 0 N/A N/A BITNER PLANTE QUARTERLY GRANT MCV PHYSICIANS PO BOX 786546 PHILADELPHIA PA 19178 541581185 501(C)3 37500 0 N/A N/A CLINIC GRANT - VA DOH FUND MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL 3800 RESERVOIR ROAD NW 7PHC WASHINGTON DC 20007 522218584 501(C)3 22500 0 N/A N/A CLINIC GRANT - MD DOH FUND NOVA SOUTHEASTERN UNIVERSITY 3300 S UNIVERSITY DR 5TH FL FORT LAUDERDALE FL 33328 591083502 501(C)3 41697 0 N/A N/A BITNER PLANTE QUARTERLY GRANT OHIOHEALTH FOUNDATION INC 300 POLARIS PARKWAY STE 210 WESTERVILLE OH 43082 237446919 501(C)3 99834 0 N/A N/A HOFFMAN ALS CLINIC CAPACITY AWARD ORLANDO HEALTH INC 76 W UNDERWOOD ST 2ND FL MP67 ORLANDO FL 32806 591726273 501(C)3 35906 0 N/A N/A BITNER PLANTE QUARTERLY GRANT PARDEE MEMORIAL HOSPITAL FOUNDATION INC 561 FLEMING ST HENDERSONVILLE NC 287394215 561930028 501(C)3 172863 0 N/A N/A HOFFMAN ALS CLINIC DEVELOPMENT AWARD PITT COUNTY MEMORIAL HOSPITAL INC PO BOX 6028 GREENVILLE NC 27835 560585243 501(C)3 144000 0 N/A N/A HOFFMAN ALS CLINIC CAPACITY AWARD REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS PO BOX 741816 LOS ANGELES CA 900741816 946036494 501(C)3 198341 0 N/A N/A ASSISTIVE TECHNOLOGY REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO UCSD CAMPUS MAIN DEPOSITORY PO BOX 741539 LOS ANGELES CA 90074 956006144 501(C)3 49892 0 N/A N/A SEED GRANTS PROGRAM REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO PO BOX 748872 LOS ANGELES CA 900744872 946036493 501(C)3 96613 0 N/A N/A QUALITY OF CARE PROGRAM REGENTS OF THE UNIVERSITY OF MINNESOTA NW5957 PO BOX 1450 MINNEAPOLIS MN 55485 416007513 501(C)3 136010 0 N/A N/A STRATEGIC INITIATIVE SENTARA DEPARTMENT OF NEUROLOGY 1950 GLENN MITCHELL DR SUITE 200 VIRGINIA BEACH VA 23456 541547408 501(C)3 25000 0 N/A N/A CLINIC GRANT - VA DOH FUND SYNAPTICURE INC 3752 N SHEFFIELD AVE 3S CHICAGO IL 60613 842468810 501(C)3 142020 0 N/A N/A HOFFMAN ALS CLINIC CAPACITY AWARD TACONIC BIOSCIENCES INC 273 HOVER AVE GERMANTOWN NY 12526 141381104 501(C)3 38524 0 N/A N/A STRATEGIC INITIATIVE THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN BOX 78538 MILWAUKEE WI 532788538 396006492 501(C)3 49999 0 N/A N/A SEED GRANTS PROGRAM THE JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DR CHICAGO IL 60693 520595110 501(C)3 48343 0 N/A N/A CLINIC GRANT - MD DOH FUND/ANNUAL CLINIC SUPPORT /KAHLERT GRANT THE MEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION 18 BEE ST MSC 450 CHARLESTON SC 29425 576028985 501(C)3 50000 0 N/A N/A CLINIC GRANT - STATE OF SC CLINICS FUND THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO PO BOX 748872 LOS ANGELES CA 900744872 946036493 501(C)3 144000 0 N/A N/A HOFFMAN ALS CLINIC CAPACITY AWARD THE REGENTS OF THE UNIVERSITY OF MICHIGAN 777 E EISENHOWER PKWY STE 650 ANN ARBOR MI 48108 386006309 501(C)3 49999 0 N/A N/A SEED GRANTS PROGRAM THOMAS JEFFERSON UNIVERSITY 125 SOUTH 9TH ST STE 600 PHILADELPHIA PA 19107 231352651 501(C)3 50000 0 N/A N/A TRIAL CAPACITY PROGRAM TIDAL HEALTH ALS CLINIC 100 E CARROLL ST SALISBURY MD 21801 511851935 501(C)3 6750 0 N/A N/A CLINIC GRANT - MD DOH FUND UNIVERSITY MEDICAL GROUP - PRISMA HEALTH NEUROLOGY 200 PATEWOOD DR SUITE B350 GREENVILLE SC 29615 571004971 501(C)3 50000 0 N/A N/A CLINIC GRANT - STATE OF SC CLINICS FUND UNIVERSITY MEDICAL SERVICE ASSOCIATION INC PO BOX 917492 ORLANDO FL 32891 237313346 501(C)3 115825 0 N/A N/A BITNER PLANTE QUARTERLY GRANT UNIVERSITY OF ALABAMA BOX 870135 TUSCALOOSA AL 35487 636001138 501(C)3 48520 0 N/A N/A QUALITY OF CARE PROGRAM UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES 4301 WEST MARKHAM ST SLOT 560 LITTLE ROCK AR 72205 716046242 501(C)3 169817 0 N/A N/A HOFFMAN ALS CLINIC DEVELOPMENT AWARD UNIVERSITY OF CALIFORNIA DAVIS 4860 Y ST STE 1700 LAWRENCE J ELLISON CARE CTR SACRAMENTO CA 95817 946036494 501(C)3 41667 0 N/A N/A CA GOVT GRANT UNIVERSITY OF FLORIDA 33 TIGERT HALL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)3 24323 0 N/A N/A BITNER PLANTE QUARTERLY GRANT UNIVERSITY OF MARYLAND 110 S PACA ST 3RD FL BALTIMORE MD 21201 526002033 501(C)3 25000 0 N/A N/A CLINIC GRANT - MD DOH FUND UNIVERSITY OF MIAMI 1120 NW 14 ST RM 1373 MIAMI FL 33136 590624458 501(C)3 142465 0 N/A N/A BITNER PLANTE QUARTERLY GRANT UNIVERSITY OF NORTH CAROLINA CHAPEL HILL PO BOX 402420 ATLANTA GA 303842420 566001393 501(C)3 50000 0 N/A N/A SEED GRANTS PROGRAM UNIVERSITY OF VIRGINIA RICHARD R DART ALS CLINIC PO BOX 37963 BOONE IA 50037 546001796 501(C)3 37500 0 N/A N/A CLINIC GRANT - VA DOH FUND VIRGINIA COMMONWEALTH UNIVERSITY 800 E LEIGH ST STE 3100 RICHMOND VA 232843039 546001758 501(C)3 126885 0 N/A N/A HOFFMAN ALS CLINIC CAPACITY AWARD 42 0 PATIENT GRANTS 1556 1720806 N/A N/A PART I, LINE 2: GRANT APPLICATIONS ARE REVIEWED BY COMMITTEES AND STAFF FOR APPROVAL. ALL GRANT AWARDED RESEARCHERS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT. THE ASSOCIATION REQUIRES PROGRESS REPORTS THROUGHOUT THE AWARD TO CONTINUE TO RECEIVE FUNDS. X 32 36326 NET PROCEEDS X 1397 207754 AVG HIGH/LOW AT DATE 0 0 1 1 PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, ADVANCED REMARKETING SERVICES INC., TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. THE ASSOCIATION USES THE SERVICES OF THE GIVING BLOCK TO ACCEPT, PROCESS AND SELL CRYPTO CURRENCY DONATIONS. THE ASSOCIATION USES BANK OF AMERICA MERRILL LYNCH TO ACCEPT, PROCESS AND SELL STOCK DONATIONS. FORM 990, PART VI, SECTION A, LINE 1A THE EXECUTIVE COMMITTEE MADE UP OF ONLY BOARD OF TRUSTEE MEMBERS CAN ACT AS A GOVERNING SUBSET OF THE BOARD WITH POWER TO MAKE DECISIONS FOR THE FULL BOARD. FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS REVIEWED IN ITS ENTIRETY BY THE FINANCE COMMITTEE OF THE BOARD OF TRUSTEES AND ONCE ACCEPTED AND APPROVED, THE RETURN IS PRESENTED TO THE ENTIRE BOARD OF TRUSTEES PRIOR TO THE SUBMISSION TO THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY BOARD MEMBERS SIGN A NEW CONFLICT OF INTEREST STATEMENT AS WELL AS ALL STAFF. MANAGEMENT TRACKS THE CONFLICT OF INTEREST STATEMENTS FOR ALL BOARD AND COMMITTEE MEMBERS AS WELL AS STAFF. WHERE IT IS DETERMINED THAT AN ACTUAL CONFLICT OF INTEREST EXITS, THE RESPONSIBLE PERSON HAVING THE CONFLICT OF INTEREST SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE ON THAT CONTRACT OR TRANSACTION. SUCH RESPONSIBLE PERSON MAY MAKE A STATEMENT OR PRESENTATION REGARDING THE MATTER OR RESPOND TO QUESTIONS, BUT SUCH RESPONSIBLE PERSON (I) SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR ASSOCIATION COMMITTEE'S DISCUSSION OF THE MATTER; (II) SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING; (III) SHALL NOT VOTE ON THE CONTRACT OR TRANSACTION; AND (IV) SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THE PROCESS DESCRIBED HERE WAS LAST COMPLETED FOR THE FISCAL YEAR 01/31/25. THE PRESIDENT AND CEO REVIEWS ALL SENIOR LEVEL MANAGEMENT AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE PROCESS DESCRIBED HERE WAS LAST COMPLETED IN 2025. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL.