2026-05-18T14:39:56-05:00 2025-12-31 351356555 DONOVAN PC 5151 E US HWY 36 AVON IN 46123 990 2025-01-01 842173231 PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE INC PEDI 9713694690 205 SE SPOKANE STREET 300 PORTLAND OR 97202 MICHAEL SIEGEL EXECUTIVE DIRECTOR 9713690373 2026-05-18 1 ABIGAIL HEDGES CPA P02058156 3177456411 2026-05-18 2025 2025-03-06 01:10:19Z MICHAEL SIEGEL 205 SE SPOKANE STREET 300 PORTLAND OR 97202 2470280 0 X HTTPS://PEDRARESEARCH.ORG X 2019 IN CREATE, INSPIRE, AND SUSTAIN RESEARCH TO PREVENT, TREAT, AND CURE CHILDHOOD SKIN DISEASE. 15 15 9 50 0 0 1747126 2395454 29440 31388 35766 39381 3017 4057 1815349 2470280 388967 608387 0 0 591317 759562 0 0 0 680816 794762 1661100 2162711 154249 307569 1637456 2001658 487637 490044 1149819 1511614 CREATE, INSPIRE, AND SUSTAIN RESEARCH TO PREVENT, TREAT, AND CURE CHILDHOOD SKIN DISEASE. 0 0 627779 35445 ANNUAL CONFERENCE - THE PEDRA ANNUAL CONFERENCE WELCOMES DEDICATED SCIENTISTS, PARTNERS FROM INDUSTRY AND GOVERNMENT, PATIENTS, ADVOCATES, AND CAREGIVERS TO LEARN, SHARE, AND ADVANCE DIRECT RESEARCH THAT IMPROVES THE LIVES OF CHILDREN AND FAMILIES FACING THE BURDEN OF PEDIATRIC SKIN DISEASES. 858165 606387 DIRECT RESEARCH - PEDRA IS DEDICATED TO ACCELERATING THE PACE OF RESEARCH AND EQUIPPING HEALTH CARE PROVIDERS WITH TREATMENT OPTIONS THAT IMPROVE PATIENTS' LIVES ON A MEANINGFUL TIMELINE. PEDRA PROVIDES RESOURCES TO RESEARCHERS INTERESTED IN IMPROVING THE LIVES OF CHILDREN WIHT SKIN DISEASE AND ALSO PROVIDES FUNDING IN SUPPORT OF STUDIES, INVESTIGATORS, AND IMPORTANT INITIATIVES. 305939 2000 OUTREACH AND EDUCATION - PEDRA PROVIDES DIRECT RESEARCH-RELATED EDUCATION AND OUTREACH TO THOSE WHO TREAT CHILDHOOD SKIN DISEASE, PATIENTS, PARENTS, AND SCIENTISTS. 1791883 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 26 0 9 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 15 15 0 0 0 0 1 1 0 1 1 0 0 1 1 1 1 1 1 1 1 0 IN X X SUSAN MATLACK JONES & ASSOCIATES LLC 5032429360 200 SW MARKET STREET STE 1777 PORTLAND OR 97201 MICHAEL SIEGEL PHD EXECUTIVE DIRECTOR 40.00 X 198018 0 18192 KEITH CHOATE MD PHD PRESIDENT 5.00 X X 0 0 0 MEGHA TOLLEFSON MD PRESIDENT-ELECT 5.00 X X 0 0 0 ANNA BRUCKNER MD IMMEDIATE PAST PRESIDENT 1.00 X X 0 0 0 LESLIE LAWLEY MD TREASURER 5.00 X X 0 0 0 HEATHER BRANDLING-BENNETT MD DIRECTOR 1.00 X 0 0 0 YVONNE CHIU MD DIRECTOR 1.00 X 0 0 0 COLLEEN COTTON MD DIRECTOR 1.00 X 0 0 0 CARRIE COUGHLIN MD DIRECTOR 1.00 X 0 0 0 JENNIFER HUANG MD DIRECTOR 1.00 X 0 0 0 RAEGAN HUNT MD PHD DIRECTOR 1.00 X 0 0 0 LARA WINE LEE MD PHD DIRECTOR 1.00 X 0 0 0 JEFFREY SUGARMAN MD PHD DIRECTOR 1.00 X 0 0 0 MEREDITH WEISS JD DIRECTOR 1.00 X 0 0 0 JIADE YU MD DIRECTOR 1.00 X 0 0 0 ANDREA ZAENGLEIN MD DIRECTOR 1.00 X 0 0 0 198018 0 18192 1 0 1 0 0 41033 74999 2279422 2395454 ANNUAL CONFERENCE 541700 31388 31388 31388 39381 39381 OTHER INCOME 900099 4057 4057 4057 2470280 35445 0 39381 608387 608387 216210 149185 67025 432592 298489 134103 20624 14437 6187 42074 29633 12441 48062 33643 14419 3353 3353 31772 31772 96069 85805 10264 6667 3014 3653 82797 40293 42504 97524 90338 7186 90665 69217 21448 380677 367382 13295 100 100 5138 2060 3078 2162711 1791883 370828 0 336307 298086 1013678 903184 282851 364558 4620 20635 1195 100 0 1095 414100 1637456 2001658 86749 111585 226488 371364 174400 7095 487637 490044 X 992031 1164368 157788 347246 1149819 1511614 1637456 2001658 307569 54226 0 X X 0 1 X 1 0 X 1345859 1362310 1479451 1747126 2395454 8330200 1345859 1362310 1479451 1747126 2395454 8330200 2890238 5439962 5122 10983 26805 35766 39381 118057 7000 3017 10017 4057 4057 8462331 141177 0.64280 0.58400 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1195 100 1095 1095 X 2524506 54226 54226 2470280 0 2470280 2162711 0 2162711 0 2162711 PART X, LINE 2: PEDRA IS EXEMPT FROM FEDERAL AND STATE INCOME TAX UNDER THE PROVISIONS OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE; THEREFORE, NO PROVISION FOR INCOME TAXES IS MADE IN THE FINANCIAL STATEMENTS. PEDRA IS CLASSIFIED AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) AND QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS AS PROVIDED IN SECTION 170(B)(1)(A)(VI). GENERALLY ACCEPTED ACCOUNTING PRINCIPLES IN THE UNITED STATES REQUIRE PEDRA TO EXAMINE ITS TAX POSITIONS FOR UNCERTAIN POSITIONS. PEDRA IS NOT AWARE OF ANY TAX POSITIONS THAT ARE MORE LIKELY THAN NOT TO CHANGE IN THE NEXT 12 MONTHS, OR THAT WOULD NOT SUSTAIN AN EXAMINATION BY APPLICABLE TAXING AUTHORITIES. PEDRA'S POLICY IS TO RECOGNIZE PENALTIES AND INTEREST AS INCURRED IN ITS STATEMENT OF ACTIVITIES AS A COMPONENT OF OPERATING EXPENSES, WHICH TOTAL $0 FOR THE YEARS ENDED DECEMBER 31, 2025 AND 2024. PEDRA'S FEDERAL AND STATE INCOME TAX RETURNS ARE SUBJECT TO EXAMINATION BY THE APPLICABLE TAX AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THE LATER OF THE ORIGINAL OR EXTENDED DUE DATE. 1 BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 042774441 20000 0 3D ENDOTHELIAL SPHEROID MODEL OF CAPILLARY MALFORMATIONS CEDARS-SIANI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES CA 90048 951644600 50000 0 EXPLORING THE PATHOGENESIS OF JUVENILE SYSTEMIC SCLEROSIS CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 25000 0 LEVERAGING ARTIFICIAL INTELLIGENCE FOR DRUG DISCOVERY IN EPIDERMAL REPAIR (LADDER) CHILDREN'S NATIONAL HOSPITAL 111 MICHIGAN AVE NW WASHINGTON DC 20010 530196580 60000 0 SPARC AA: SPATIAL PATTERNING ANALYSIS AND RELAPSE IN CHILDREN WITH ALOPECIA AREATA EMORY UNIVERSITY 201 DOWMAN DR NE ATLANTA GA 30322 580566258 25000 0 ADOLESCENT ACNE EXPERIENCE AND MANAGEMENT IN ADOLESCENT-CAREGIVER DYADS ICAHN SCHOOL OF MEDICINE 1 GUSTAVE L LEVY PL NEW YORK NY 10029 136171197 29000 0 CHARACTERIZING THE INFLAMMATORY SIGNATURE OF PEDIATRIC ATOPIC DERMATITIS AND CONCOMITANT ATOPIC DISEASES IN THAI PATIENTS INDIANA UNIVERSITY 1024 EAST 3RD STREET ROOM 132 BLOOMINGTON IN 47405 356001673 32200 0 SHARED DECISION MAKING IN PROCEDURAL PEDIATRIC DERMATOLOGY RELATING TO NEOPLASM DIAGNOSIS AND MANAGEMENT JOHNS HOPKINS UNIVERSITY 3400 N CHARLES ST BALTIMORE MD 21218 520595110 40000 0 ATOPIC DERMATITIS, SLEEP, AND COGNITIVE SKILLS IN EARLY CHILDHOOD KENNEDY KRIEGER INSTITUTE 707 NORTH BROADWAY BALTIMORE MD 21205 520607971 12500 0 ADVANCING SCREENING AND EDUCATION FOR ECZEMA IN CHILDREN WITH NEURODEVELOPMENTAL AND COMPLEX MEDICAL NEEDS PENN STATE AND HERSHEY MEDICAL CENTER 500 UNIVERSITY DR HERSHEY PA 17033 251854772 53940 0 THE EFFECT OF SYSTEMIC THERAPY ON STIGMA AND MENTAL HEALTH IN ADOLESCENT PATIENTS WITH HIDRADENITIS SUPPURATIVA: A PROSPECTIVE COHORT STUDY THE HOSPITAL FOR SICK CHILDREN 555 UNIVERSITY AVE TORONTO ONTARIO CA 530204670 19669 0 QUANTITATIVE NANOHISTOLOGY PROFILING OF EXTRACELLULAR MATRIX ALTERATIONS IN PEDIATRIC STIFF SKIN SYNDROME AND EHLERSDANLOS SYNDROME UNIVERISTY OF CALIFORNIA SAN DIEGO 9500 GILMAN DR LA JOLLA CA 92093 472452128 20000 0 DECIPHERING THE IMMUNOPATHOGENESIS OF REACTIVE INFECTIOUS MUCOCUTANEOUS ERUPTIONS UNIVERSITY OF CALIFORNIA SAN FRANCISCO 505 PARNASSUS AVE SAN FRANCISCO CA 94143 946036493 25000 0 CHILDHOOD ADVERSITY AND PEDIATRIC SKIN DISEASE: INVESTIGATING THE ROLE OF ADVERSE CHILDHOOD EXPERIENCES AND SOCIOECONOMICS UNIVERSITY OF COLORADO 552 UCB BOULDER CO 80309 846000555 25000 0 CHARACTERIZING DEFICITS IN EARLY-STAGE AUTOPHAGY AND LIPID ACCUMULATION IN IPSC-DERIVED FIBROBLASTS AND KERATINOCYTES FROM INDIVIDUALS WITH RECESSIVE DYSTROPHIC EPIDERMOLYSIS BULLOSA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST PHILADELPHIA PA 19104 231352685 25000 0 IDENTIFYING RELIABLE MEASURES OF DISEASE ACTIVITY IN CRANIOFACIAL MORPHEA UNIVERSITY OF WISCONSIN 500 LINCOLN DR MADISON WI 53706 391805963 20000 0 AREA DEPRIVATION AND DISEASE SEVERITY IN PEDIATRIC PATIENTS WITH DLE AND SLE VIRGINIA COMMONWEALTH UNIVERSITY 910 W FRANKLIN STREET RICHMOND VA 23284 546453690 10000 0 CONSENSUS GUIDELINES FOR THE MANAGEMENT AND TREATMENT OF STAPH SCALDED SKIN SYNDROME IN CHILDREN YALE UNIVERSITY 38 HILLHOUSE AVENUE NEW HAVEN CT 06520 060646973 25000 0 LEVERAGING LARGE-SCALE ELECTRONIC HEALTH RECORDS AND PATIENT SURVEYS TO IDENTIFY COMORBIDITIES IN ICHTHYOSIS TO FACILITATE TRANSITION FROM PEDIATRIC TO ADULT CARE PART I, LINE 2 - PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS THE BOARD RECEIVES FINANCIAL REPORTS RELATED TO ALL ACTIVITY AND IS OVERSEEN BY AN EXECUTIVE DIRECTOR. X X X X 0 0 0 0 0 0 0 0 0 MICHAEL SIEGEL PHD EXECUTIVE DIRECTOR 198018 0 0 0 0 0 0 0 18192 0 216210 0 0 0 AMY PALLER FORMER BOARD MEMBER 4000 GRANT CONSENSUS GRANT ALBERT YAN FORMER BOARD MEMBER 29000 GRANT RESEARCH FELLOWSHIP LESLIE CASTELO-SOCCIO FORMER BOARD MEMBER 30000 GRANT RESEARCH GRANT JIADE YU FORMER BOARD MEMBER 5000 GRANT RESEARCH FELLOWSHIP ELENA POPE BOARD MEMBER 19669 GRANT RESEARCH GRANT LISA ARKIN FORMER BOARD MEMBER 20000 GRANT CONSENSUS GRANT ANDREA ZAENGLEIN BOARD MEMBER 49940 GRANT RESEARCH GRANT KEITH CHOATE BOARD MEMBER 25000 GRANT RESEARCH GRANT RAEGAN HUNT BOARD MEMBER 1500 GRANT RESEARCH GRANT JENNIFER HUANG BOARD MEMBER 4000 GRANT RESEARCH GRANT FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A ORGANIZATION HAS MEMBERS THAT HAVE LIMITED VOTING AUTHORITY ACCORDING TO THE BYLAWS, INLCUDING ELECTION OF OFFICERS. FORM 990, PART VI, SECTION B, LINE 11B DRAFT OF THE RETURN IS REVIEWED BY THE EXECUTIVE DIRECTOR AND SHARED WITH THE BOARD BEFORE BEING FINALIZED AND FILED. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD OF DIRECTORS (BOARD) REVIEWS THE FINANCIAL STATEMENTS. THE BOARD IS PROVIDED COPIES OF THE FINANCIAL STATEMENTS AT THE TIME OF REVIEW AND AT YEAR-END. FORM 990, PART VI, SECTION B, LINE 12C PEDRA REQUIRES ALL BOARD MEMBERS AND STAFF TO REVIEW THE CONFLICT OF INTEREST POLICY, EVALUATE ACTIVITIES WITH RESPECT TO THE POLICY, AND COMMUNICATE ANY POTENTIAL CONFLICTS TO THE PRESIDENT OR EXECUTIVE DIRECTOR ON AN ANNUAL BASIS. THE IDENTIFICATION, EVALUATION AND RESOLUTION OF THOSE ISSUES ARE DISCUSSED WITH THE APPROPRIATE INDEPENDENT MEMBERS OF MANAGEMENT AND THE EXECUTIVE COMMITTEE. FORM 990, PART VI, SECTION B, LINE 15 PEDRA'S KEY EMPLOYEES ARE PROVIDED A FORMAL EVALUATION AT LEAST ONCE EVERY FIVE YEARS. THE EXECUTIVE COMMITTEE OF THE BOARD REVIEWS AND APPROVES COMPENSATION PRIOR TO THE ANNUAL EVALUATION. COMPENSATION IS DETERMINED BASED ON COMPARABLE DATA, COMPILED FROM INDEPENDENT SOURCES, AND EVALUATED AGAINST THE ANNUAL BUDGET. FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS AVAILABLE UPON REQUEST AND SHARED ON THE WEBSITE FOR PUBLIC ACCESS. FORM 990, PART XII, LINE 2C: THE ORGANIZATION'S BOARD OF DIRECTORS ASSUMES THE OVERSIGHT OF THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT. THE SELECTION AND REVIEW PROCESS HAS NOT CHANGED FROM THE PREVIOUS YEAR.