2026-05-14T12:01:18-05:00 2025-06-30 205991824 SC&H GROUP INC 226 SCHILLING CIRCLE SUITE 300 HUNT VALLEY MD 21031 990 2024-07-01 520607971 KENNEDY KRIEGER CHILDREN'S HOSPITAL INC KENN 4439239200 707 N BROADWAY BALTIMORE MD 21205 MICHAEL J NEUMAN SVP OF FINANCE 4439231810 2026-05-13 1 1 LORI S BURGHAUSER P00370694 4104031500 2026-05-13 2024 2025-03-06 01:10:19Z BRAD L SCHLAGGAR MD PHD 707 N BROADWAY BALTIMORE MD 21205 278481957 0 X WWW.KENNEDYKRIEGER.ORG X 1937 MD TO IMPROVE THE LIVES OF CHILDREN AND ADOLESCENTS WITH PEDIATRIC DEVELOPMENTAL DISABILITIES AND OTHER NEUROLOGICAL ISSUES. 10 9 2519 1181 0 0 4883081 7047248 246356651 270477461 181673 265572 174698 691676 251596103 278481957 360000 360000 0 0 182677956 200059623 0 0 0 62077409 67461342 245115365 267880965 6480738 10600992 128499010 148187317 48127087 53978014 80371923 94209303 X KENNEDY KRIEGER CHILDREN'S HOSPITAL (KKCH) OFFERS CLINICAL PROGRAMS TO MEET THE SPECIALIZED NEEDS OF CHILDREN AND ADOLESCENTS WITH DEVELOPMENTAL DISABILITIES. MORE THAN 35 DIFFERENT OUTPATIENT PROGRAMS AND FOUR INPATIENT UNITS ADDRESS THE SPECIFIC CONDITIONS OF CHILDREN WITH A WIDE RANGE OF DISORDERS. KKCH IS RECOGNIZED FOR THE RANGE OF SERVICES IN AREAS INCLUDING AUTISM, CEREBRAL PALSY, SPINA BIFIDA, NEUROREHABILITATION, SPINAL CORD INJURY AND FEEDING DISORDERS. AS A PROVIDER OF SPECIALTY PEDIATRIC HEALTHCARE SERVICES, KKCH IS VIEWED AS A "NICHE" PROVIDER. MANY SERVICES PROVIDED AT KKCH ARE NOT DUPLICATED THROUGHOUT THE GENERAL HEALTHCARE SYSTEM IN THE CITY, REGION OR WORLD. 0 0 182340028 360000 210077152 OUTPATIENT PROGRAMSPATIENTS ARE SEEN ON AN OUTPATIENT BASIS IN ONE OF MORE THAN 35 DIFFERENT CLINICS. A CHILD MAY BE SEEN BY A SINGLE PROFESSIONAL OR AN INTERDISCIPLINARY TEAM DEPENDING UPON THE NATURE OF THE CHILD'S NEEDS. CLINICS PROVIDE DIAGNOSTIC AND TREATMENT SERVICES IN THE FOLLOWING AREAS: ASSISTIVE TECHNOLOGY, ATAXIA TELAGIECTASIA, AUDIOLOGY, BEHAVIOR MANAGEMENT, BOTULINUM TOXIN TREATMENT, AUTISM AND RELATED DISORDERS, DEVELOPMENT AND LEARNING PROBLEMS, GENETIC MUSCLE DISORDERS, CEREBRAL PALSY, FEEDING DISORDERS, DEVELOPMENTAL COGNITIVE NEUROLOGY, DOWN SYNDROME, ENVIRONMENT HEALTH PROBLEMS, FRAGILE X, HOLOPROSENCEPHALY, SPINAL CORD INJURIES, MOVEMENT DISORDERS, NICU FOLLOW-UP, NEUROGENETICS, NEUROPHYSIOLOGY, NUTRITION, OCCUPATIONAL THERAPY, ORTHOPEDICS, OSTEOGENESIS IMPERFECT, CHILD PSYCHIATRY, REHABILITATION, PHYSICAL THERAPY, SOCIAL WORK AND SPEECH AND LANGUAGE. 52695282 60400307 INPATIENT PROGRAMS ARE MADE UP OF 3 UNITS:THE NEUROBEHAVIORAL UNIT (NBU) PROVIDES SERVICES FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES WHO ARE SELF-INJURIOUS, AGGRESSIVE AND DISPLAY OTHER SEVERE BEHAVIORS.THE PEDIATRIC FEEDING DISORDERS UNIT (PFDU) SERVES CHILDREN WITH SEVERE FEEDING PROBLEMS. MEDICAL ASSESSMENTS, NUTRITIONAL MONITORING, ORAL MOTOR ASSESSMENTS AND INTENSE BEHAVIORAL INTERVENTIONS CAN BE CONDUCTED.THE PEDIATRIC REHABILITATION UNIT (PRU) OPERATES ONE OF THE MOST SUCCESSFUL NEUROREHABILITATION PROGRAMS IN THE WORLD AND INCLUDES THE BRAIN INJURY PROGRAM AND THE INTERNATIONAL SPINAL CORD INJURY PROGRAM. 4015103 691678 PROFESSIONAL TRAINING PROGRAMSKENNEDY KRIEGER DEDICATES SUBSTANTIAL RESOURCES TO INCREASING THE NUMBER OF QUALIFIED SPECIALISTS IN THE FIELDS OF NEUROLOGICAL AND DEVELOPMENTAL DISABILITIES. WE ALSO TAKE SERIOUSLY OUR RESPONSIBILITY NOT ONLY TO IMPROVE CARE THROUGH RESEARCH, BUT TO SHARE THAT KNOWLEDGE WITH OTHERS. THAT IS WHY MORE THAN 400 INDIVIDUALS COME HERE TO TRAIN IN A WIDE VARIETY OF DISCIPLINES EACH YEAR. THE GOALS OF THE INSTITUTE'S CLINICAL TRAINING PROGRAMS ARE TWOFOLD: 1) TO TRAIN LEADERS IN THE FIELD OF NEURODEVELOPMENTAL DISABILITIES AND 2) TO HELP ENSURE THAT THERE IS A SUFFICIENT NUMBER OF QUALIFIED PROFESSIONALS TO MEET THE NEEDS OF CHILDREN WITH SPECIAL HEALTH CARE NEEDS AND THEIR FAMILIES. BY TRAINING FUTURE GENERATIONS OF RESEARCHERS AND PROFESSIONALS FROM UNDERGRADUATE STUDENTS TO CURRENT STAFF WE ARE ENSURING THAT CHILDREN EVERYWHERE CAN RECEIVE THE BEST POSSIBLE CARE. 239050413 1 1 0 1 0 0 0 0 0 0 0 1 0 1 1 0 0 1 0 0 0 0 0 0 0 0 1 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 66 0 2519 1 0 0 0 0 0 0 0 0 0 0 1 0 X 10 9 0 0 0 0 1 1 1 1 1 0 0 1 1 0 1 1 1 1 1 0 MD X MICHAEL J NEUMAN 4439231810 1741 ASHLAND AVE 7TH FLOOR BALTIMORE MD 21205 BRADLEY L SCHLAGGAR MD PHD PRESIDENT & CEO 23.00 17.00 X X 664910 423404 56145 RONALD PETERSON CHAIRMAN 1.00 5.00 X X 0 0 0 MATTHEW GOTLIN CFA VICE CHAIR 1.00 5.00 X X 0 0 0 RICHARD W CASS DIRECTOR 1.00 5.00 X 0 0 0 RENEE R JENKINS MD FAAP DIRECTOR 1.00 2.00 X 0 0 0 MAYNARD MCALPIN DIRECTOR 1.00 2.00 X 0 0 0 STEPHANIE REEL DIRECTOR 1.00 2.00 X 0 0 0 KENNETH SCHUBERTH DIRECTOR 1.00 2.00 X 0 0 0 ANDREW H SEGAL MD DIRECTOR 1.00 3.00 X 0 0 0 PAUL THESIGER DIRECTOR 1.00 3.00 X 0 0 0 JAMES M ANDERS JR COO/ADMINISTRATOR/SECRETARY 23.00 17.00 X 642405 409075 40940 MICHAEL J NEUMAN SVP-FINANCE/TREASURER 23.00 17.00 X 339808 216385 40068 SEYED ALI FATEMI MD MBA CHIEF MEDICAL OFFICER 20.00 20.00 X 315936 315935 23327 MICHAEL F CATALDO PHD SVP/PROGRAM DIRECTOR 30.00 10.00 X 591187 0 33520 JACQUELINE STONE CHIEF CLINICAL OFFICER 27.00 13.00 X 334304 166902 40240 RAYMOND SHORT SVP - HUMAN RESOURCES 23.00 17.00 X 290049 184699 57946 VALERIE BONHAM VP - GENERAL COUNSEL (PART YEAR) 23.00 17.00 X 307034 195515 21966 MICHELLE MELICOSTA ASSOC CHIEF MEDICAL OFFICER 38.00 2.00 X 352147 0 52949 REBECCA LANDA VP PROFESSOR 40.00 0.00 X 414968 0 38952 MELISSA TROVATO PROGRAM DIRECTOR, EX OFFICIO MEMBER 40.00 0.00 X 385251 0 31878 STEVEN LINDAUER PROGRAM DIRECTOR 40.00 0.00 X 367025 0 21281 JAY SALPEKAR DIRECTOR, ASSOC PROFESSOR 39.00 1.00 X 368743 0 17513 ROMA VASA PROGRAM DIRECTOR 40.00 0.00 X 341364 0 27755 NANCY S GRASMICK ED D FORMER CHAIRPERSON 0.00 18.00 X 0 93212 10253 HAROLYN BELCHER MD MHS FORMER PRES MED STAFF/PROG DIR 40.00 0.00 X 307309 0 39243 PAUL LIPKIN FORMER PRES MED STAFF/PROG DIR 40.00 0.00 X 304836 0 37016 CARMEN LOPEZ-ARVISU MD FORMER PRES MED STAFF 40.00 0.00 X 324631 0 17191 CRISTINA SADOWSKY FORMER PRES MED STAFF/PROG DIR 40.00 0.00 X 295788 0 34528 6947695 2005127 642711 427 1 1 0 JOHNS HOPKINS UNIVERSITY 3400 N CHARLES ST BALTIMORE MD 21218 MEDICAL SERVICES 13681381 RESPITECH MEDICAL INC 250 RANCK AVE LANCASTER PA 17602 PROFESSIONAL SERVICE 1939209 EPIC HOSTING LLC 1979 MILKY WAY VERONA WI 31942 PROFESSIONAL SERVICE 1454383 JOHNS HOPKINS HOSPITAL 600 NORTH WOLFE STREET BALTIMORE MD 21287 FOOD SERVICE STAFFING 299321 TEKSYSTEMS INC PO BOX 215507 ATLANTA GA 30384 CONTRACT STAFFING 254891 10 1102465 5860755 84028 7047248 OUTPATIENT SERVICES 624100 210077152 210077152 INPATIENT SERVICES 624100 60400309 60400309 270477461 265572 265572 MISCELLANEOUS 900099 454675 454675 REIMBURSABLE COSTS REVENUE 900099 143724 143724 MEDICAL RECORD FEES 900099 93277 93277 691676 278481957 271169137 0 265572 360000 360000 4095373 4095373 1360542 330315 1030227 152946254 143555184 9391070 9875015 9029504 845511 20555113 18790121 1764992 11227326 10266029 961297 375371 5109 370262 251829 251829 81569 81569 16392401 14163066 2229335 425946 207807 218139 10085441 7762549 2322892 1028792 682976 345816 31413643 29316921 2096722 953075 819640 133435 107974 107974 221645 221645 1525708 1525708 PERMITS AND LICENSES 857322 594527 262795 PROFESSIONAL DVLPMT 532948 532948 REPAIRS AND MAINTENANCE 402196 402196 NON-CAPITAL EQUIPMENT 361923 335468 26455 2443559 1896053 547506 267880965 239050413 28830552 0 1681491 1496003 290012 2795728 31232274 33696270 4628252 4781050 9192654 10500168 81474327 94918098 128499010 148187317 44327921 40770486 127259 8517476 0 3799166 4562793 48127087 53978014 X 73554421 84593648 6817502 9615655 80371923 94209303 128499010 148187317 X 10600992 641765 2594623 X X 0 1 X 1 1 1 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 1 0 0 0 0 1 81569 0 1 58066 139635 0 PART II-B, LINE 1: KENNEDY KRIEGER INSTITUTE, INC. PAYS ITS LOBBYISTS THORN RUN PARTNERS, HARRIS, JONES & MALONE LLC, AND CORNERSTONE GOVERNMENT AFFAIRS TO DIRECTLY CONTACT LEGISLATORS ON MATTERS AFFECTING HEALTH CARE, EDUCATION, COMMUNITY SERVICES, AND RESEARCH PROGRAMS. A PORTION OF THIS EXPENSE ($76,033) HAS BEEN ALLOCATED TO THIS ENTITY. THE ORGANIZATION PAYS DUES TO MARYLAND HOSPITAL ASSOCIATION AND NATIONAL ASSOCIATION OF CHILDREN'S HOSPITALS. A PORTION OF THESE DUES ($4,981) ARE USED FOR LOBBYING ACTIVITIES. EMILY ARNESON PERFORMS STATE LOBBYING ACTIVITIES AS AN EMPLOYEE. A PORTION OF HER COMPENSATION ($58,066) HAS BEEN ALLOCATED TO LOBBYING EXPENSES FOR HER LOBBYING RESPONSIBILITIES ON BEHALF OF THE ORGANIZATION. OTHER LOBBYING COSTS FOR TRANSPORTATION TOTALED $554. 0 RESTRICTED ASSETS 10500168 F 10500168 DUE FROM AFFILIATES 84720852 PENSION ASSET 10197246 94918098 ACCRUED WORKERS COMPENSATION 1051051 RETIREMENT LIABILTY 457(B) 3511742 4562793 1 1 1 X 1 X 1 1 1 0 1 1 6212088 6212088 0.02320 112274895 107863514 4411381 0.01650 8685208 2876703 5808505 0.02170 127172191 110740217 16431974 0.06140 3015999 3015999 0.01130 5186536 3505019 1681517 0.00630 230000 230000 0.00090 8432535 3505019 4927516 0.01850 135604726 114245236 21359490 0.07990 2708576 1782771 925805 0.00350 461178 458552 2626 0.00000 85000 85000 0.00030 3254754 2241323 1013431 0.00380 1 7481318 150000 11225459 10226393 999066 X 1 1 1 1 KENNEDY KRIEGER CHILDREN'S HOSPITAL INC 707 N BROADWAY BALTIMORE MD 21205 WWW.KENNEDYKRIEGER.ORG 30-036 X KENNEDY KRIEGER CHILDREN'S HOSPITAL INC 1 0 0 1 X X X X X X X X X 24 1 0 1 1 X KENNEDYKRIEGER.ORG/COMMUNITY-HEALTH-NEEDS-ASSESSMENT X X 1 24 1 KENNEDYKRIEGER.ORG/COMMUNITY-HEALTH-NEEDS-ASSESSMENT 0 1 X 200.000000000000 400.000000000000 X X X X 1 1 X X X X X 1 X HTTP://WWW.KENNEDYKRIEGER.ORG/FINANCIAL-ASSISTANCE X HTTP://WWW.KENNEDYKRIEGER.ORG/FINANCIAL-ASSISTANCE X HTTP://WWW.KENNEDYKRIEGER.ORG/FINANCIAL-ASSISTANCE X X X X X X 1 0 X X X X 0 X X 0 0 KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC PART V, SECTION B, LINE 3J: THE CHNA REPORT PROVIDED INFORMATION ON HEALTH NEEDS SPECIFIC TO THE POPULATION SERVED. FOR THE POPULATION SERVED BY KKCH, THE APPROACH TO OPTIMAL HEALTH OUTCOMES INCLUDES HEALTH CARE SERVICES, RESOURCES TO SUPPORT COMMUNITY NEEDS - INCLUDING BUT NOT LIMITED TO SOCIAL ECONOMIC FACTORS, PHYSICAL ENVIRONMENT, HEALTH BEHAVIORS, AND HEALTH CARE - EDUCATION, KNOWLEDGE TO SUPPORT SELF-ADVOCACY APPROACHES, EVIDENCE-INFORMED/BASED INTERVENTIONS THROUGH RESEARCH ACTIVITIES, AND TRAINING TO BUILD CAPACITY ACROSS THE MARYLAND COMMUNITIES. KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC PART V, SECTION B, LINE 5: INPUT FOR THIS CHNA WAS WIDESPREAD AND DIVERSE. THROUGH THE MARYLAND CENTER FOR DEVELOPMENTAL DISABILITIES (MCDD) AND THEIR PARTNERSHIP WITH PEOPLE ON THE GO MARYLAND (POG) MULTIPLE PROJECTS WERE ASSESSED. POG CONDUCTED MULTIPLE LEADERSHIP GROUP MEETINGS AND TRAININGS WHERE INPUT WAS RECEIVED DIRECTLY FROM SELF-ADVOCATES ACROSS MARYLAND. THE MCDD'S COMMUNITY ADVISORY COUNCIL MET QUARTERLY AND INCLUDED REPRESENTATIVES FROM MANY MARYLAND AGENCIES SUCH AS MARYLAND DEPARTMENT OF HEALTH - DEVELOPMENTAL ABILITIES ADMINISTRATION, THE DEPARTMENT OF AGING, BEHAVIORAL HEALTH ADMINISTRATION, AND THE MATERNAL AND CHILD HEALTH BUREAU; MARYLAND STATE DEPARTMENT OF EDUCATION - THE FAMILY SURVEY; THE MARYLAND DISABILITY NETWORK - DISABILITY RIGHTS MARYLAND, THE DEVELOPMENTAL DISABILITIES COUNCIL, AND THE MCDD; COMMUNITY ORGANIZATIONS ACROSS THE STATE - PARENTS PLACE OF MARYLAND, ANNIE E. CASEY FOUNDATION - KIDS COUNT DATA BOOK, SPECIAL OLYMPICS OF MARYLAND, THE MARYLAND COALITION FOR FAMILIES, THE CONSORTIUM OF CARE-EASTERN SHORE FOR CHILDREN/YOUTH WITH SPECIAL HEALTH CARE, AND INPUT FROM A VARIETY OF STAFF, COMMUNITY GROUPS, SELF-ADVOCATES AND CAREGIVERS. INPUT INTO THE CHNA WAS RECEIVED THROUGH EXCHANGE OF INFORMATION AT MEETINGS AND A SUMMARY OF THE FINDINGS PRIOR TO PUBLICATION WAS PROVIDED AT THE MCDD/CAC MEETING IN JUNE 2025. KENNEDY KRIEGER STAFF, FACULTY AND OUR CORE IS AN INCLUSIVE COMMUNITY OF EMPOWERED WOMEN DEDICATED TO IMPROVING THE LIVES OF THE PATIENTS AND STUDENTS, AND THEIR FAMILIES, SERVED BY KENENDY KRIEGER INSTITUTE THROUGH ADVOCACY, FUNDRAISING AND VOLUNTEERISM. IN FY2025 OUR WOMEN INITIATIVE NETWORK (WIN) SUPPORTED THE FOLLOWING ACTIVITIES THAT WERE IDENTIFIED AS NEEDS BY THE FAMILIES WE SERVED FROM ACROSS BALTIMORE AND THE STATE OF MARYLAND: - SCHOOL SUPPLY EVENT- EDEC TOUR AND WINTER FEST - TOYS, BLANKETS, COATS, FOR STUDENTS- SUMMER BBQ FOR STAFF, FAMILIES, AND PATIENTS: THIS PROVIDED AN ENVIRONMENT WHERE FAMILIES COULD ENGAGE AND CONNECT WITH ONE ANOTHER TO DEVELOP ONGOING PARTNERSHIPS AND SUPPORT- MULTIPLE FUNDRAISERS TO SUPPORT NEW PATIENT AND STUDENT NEEDED EQUIPMENT.SIXTY (60) PHILANTHROPY STAFF FROM KENNEDY KRIEGER ENGAGED IN 407 HOURS OF ACTIVITIES DURING FY 2025 THAT SUPPORTED THE WIN ACTIVITIES. KKCH LEVERAGED ENGAGEMENT OF ITS CORE COMMUNITIES TO CONNECT WITH POPULATIONS PREDOMINANTLY IN BALTIMORE CITY AND THE SURROUNDING METRO AREA. CORE COMMUNITIES ARE COMPRISED OF STAFF WHO VOLUNTEER THEIR TIME TO ENGAGE IN COMMUNITY EVENTS IN SUPPORTING THOSE WITH AND WITHOUT DISABILITIES. THE ORGANIZATION HAS 9 COMMUNITIES TO DATE SUPPORTED BY SEVEN (7) SENIOR ADVISORS AND TWENTY-TWO LEADERS ACROSS THE ORGANIZATION IN ADDITION TO A VAST NUMBER OF MEMBERS REPRESENTING EACH COMMUNITY. SEVERAL COMMUNITY ACTIVITIES THAT SUPPORTED THE COMMUNITY INCLUDED: - JUNETEENTH VOLUNTEERING- SCHOOL SUPPLY DRIVE WITH PHILANTHROPY- WINTER COAT DRIVE- BOOK FAIR- INTERNAL MENTORING COHORT VIA BLIO- HIGH SCHOOL OUTREACHTHE WOMEN'S INITIATIVE NETWORK (WIN) HAS MULTIPLE REPRESENTATIVES THAT ATTEND THE MEETINGS REGULARLY. IN ADDITION, COORDINATION IS PROVIDED WHEN SPEAKERS ARE SOUGHT BY THE ENTITY FROM OUR PROVIDER BASE. KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC PART V, SECTION B, LINE 6B: THE MARYLAND CENTER FOR DEVELOPMENTAL DISABILITIES (MCDD) AT KENNEDY KRIEGER INSTITUTE SERVES AS MARYLAND'S UNIVERSITY CENTER FOR EXCELLENCE IN DEVELOPMENTAL DISABILITIES EDUCATION, RESEARCH, AND SERVICE (UCEDD). THE MCDD IS ONE OF THE OLDEST UCEDDS IN THE NATION AND IS PART OF THE AUCD NETWORK. THE MCDD AIMS TO IMPROVE THE LIVES OF PEOPLE WITH DISABILITIES THROUGH FOUR CORE FUNCTIONS: INTERDISCIPLINARY PRE-SERVICE PREPARATION, CONTINUING EDUCATION AND TRAINING; COMMUNITY SERVICES AND TECHNICAL ASSISTANCE; RESEARCH AND EVALUATION; AND PRODUCT DEVELOPMENT AND INFORMATION DISSEMINATION. THE MCDD IS FUNDED BY THE U.S. ADMINISTRATION ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES. KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC PART V, SECTION B, LINE 7D: IN ADDITION TO DISSEMINATION OF THE CHNA ON THE HOSPITAL'S WEBSITE, THE REPORT WAS SHARED THROUGH MULTIPLE PRESENTATIONS INTERNALLY AT THE HOSPITAL TO INCLUDE A SUMMARY AND A LINK TO THE FULL REPORT FOR EXTERNAL DISSEMINATION. THE REPORT WAS SHARED INTERNALLY VIA BOARD MEETINGS, THE WEEKLY DIRECTORS' MEETING, INSTITUTE-WIDE MEETINGS, EMPLOYEE/STAFF COMMUNICATIONS, AND THROUGH PAPER AND DIGITAL COPIES IN THE RESOURCE FINDER. THE CHNA IS USED FOR REPORTS, TO GUIDE PROJECT PRIORITIES, PRESENTATIONS AND DATA ELEMENTS REQUESTED BY OUTSIDE ORGANIZATIONS FOR LEGISLATION, GRANT APPLICATIONS AND OTHER ACCESS TO THE REPORT IS AVAILABLE THROUGH A SIMPLE VANITY URL: WWW.KENNEDYKRIEGER.ORG/CHNA KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC PART V, SECTION B, LINE 11: THE CHNA IMPLEMENTATION PLAN OUTLINES THE ACTIONS THE INSTITUTE WILL TAKE TO ADDRESS THE NEEDS THAT WERE IDENTIFIED IN PARTNERSHIP WITH OTHERS ACROSS MARYLAND. SOME OF THE AREAS ARE ABLE TO BE ADDRESSED SOLELY BY KENNEDY KRIEGER WHILE OTHERS WILL REQUIRE PARTNERSHIP AND ALL WILL REQUIRE INPUT TO DETERMINE ACHIEVEMENTS FROM PATIENTS AND FAMILIES SERVED. FOR THE POPULATION SERVED IN MARYLAND AND BEYOND, ACCESS TO CARE AND ENSURING CAPACITY IS A SIGNIFICANT NEED. KENNEDY KRIEGER CHILDREN'S HOSPITAL IS ADDRESSING THESE NEEDS BY IDENTIFYING ACCESS TO SERVICES PROVIDED AS A HOSPITAL AND DEVELOPING SOLUTIONS FOR AREAS WHERE NEEDED. BUILDING THE CAPACITY OF SPECIALTY PROVIDERS IN ALL DISCIPLINE AREAS AND THE COMMUNITY IS IMPORTANT. SUFFICIENT NUMBERS OF PROVIDERS AND NEEDED SKILLS TO MEET THE NEEDS OF CHILDREN TODAY ARE NOT SUFFICIENT TO MEET THE NEED. EXPERIMENTAL TRAINING IS ESSENTIAL TO ENSURE HIGHLY KNOWLEDGEABLE AND TRAINED PROVIDERS ARE DEVELOPED TO SUPPORT THE ESSENTIAL AREAS OF HEALTH RELATED SOCIAL FACTORS. ADVOCACY SERVES TO HELP PATIENTS BETTER UNDERSTAND THEIR HEALTH & HOW TO IMPROVE THEIR HEALTH AND HEALTH OUTCOMES, AND THE PLAN INCLUDES STRATEGIES NECESSARY TO PROGRESS INTO ADULTHOOD. BY SUPPORTING AND ADVOCATING FOR IMPROVED HEALTH WE WANT TO SEE OUR PATIENTS REACH THE NEXT LEVEL OF ADULTHOOD AND INDEPENDENCE. IN ADDITION TO THE IMPLEMENTATION ACTION PLAN TO ADDRESS THE IDENTIFIED PRIORITY AREAS, THE ORGANIZATION HAS CONDUCTED A COMPREHENSIVE REVIEW OF ACCESS RELATED FACTORS INCLUDING SERVICES, OPERATIONS, LANGUAGE SUPPORT, AND HOW TO PROVIDE FEEDBACK MECHANISMS DURING WAIT PERIODS. THE INSTITUTE HAS EXAMINED TECHNOLOGY ENABLEMENT, CAPACITY, INTAKE, TRIAGE, AND SCHEDULING, BENEFIT CLEARANCE & AUTHORIZATION, EXTERNAL CONSTITUENT EXPERIENCE, REFERRAL PROCESSES - INTERNAL & EXTERNAL, AND, MOST CRITICALLY IN TODAY'S ENVIRONMENT, OUR WORKFORCE. THE INSTITUTE CONTINUES TO SEE INCREASING VOLUMES OF PATIENTS ANNUALLY WITH VARYING DIAGNOSIS BUT AN OVERWHELMING NUMBER OF CHILDREN ON THE SPECTRUM AND WITH SOCIAL/EMOTIONAL DISORDERS. WHILE WE CONTINUE TO RECRUIT, HIRE, AND EXPAND PHYSICALLY, TO BEST SUPPORT THE COMMUNITY OF MARYLAND THERE IS A NEED TO BUILD CAPACITY IN A VARIETY OF WAYS BEYOND BEING A DIRECT PROVIDER OF SERVICES. KKCH CONDUCTS A PODCAST FOR THE COMMUNITY - INVITING ALL COMERS - HEALTH PROVIDERS, FAMILIES, EDUCATIONAL STAFF, PUBLIC HEALTH PROVIDERS, ETC. ENTITLED "EXPLORING THE BRAIN". THIRTEEN (13) HEALTH PROVIDERS FROM KENNEDY KRIEGER ENGAGED IN THE PODCAST SERIES. WE CONDUCTED 12 PODCASTS DURING FISCAL YEAR 2025, ONE EPISODE PER MONTH. THE PODCASTS OVER ALL HAD 11,930 HITS ACROSS ALL WEB CHANNELS POST LIVE EVENT. ADDITIONALLY, WE PROVIDED 13 VIRTUAL EVENTS THAT WERE OPEN TO THE COMMUNITY FOCUSED ON INCREASING KNOWLEDGE AND LEARNING TO BETTER SERVE PERSONS WITH DISABILITIES.WHILE OUR GRAND ROUNDS IS TYPICALLY CLOSED, WE HAVE CONDUCTED 4 GRAND ROUND EVENTS OPENED TO THE COMMUNITY. ALL OF OUR EVENTS ARE OPENED TO ALL JOHNS HOPKINS FACULTY AND STUDENTS ENGAGED IN TRAINING EXPERIENCES ACROSS THE SCHOOLS OF MEDICINE, NURSING, AND PUBLIC HEALTH. ATTENDANCE AVERAGES 90-110 ATTENDIES WEEKLY.FOOD INSECURITY CONTINUES TO BE A GROWING NEED EXPERIENCED BY OUR FAMILIES AND CHILDREN. AS THE ECONOMY SHIFTS, NEEDS TO MAINTAIN DAY TO DAY LIVING BECOMES MORE CHALLENGING. WE LAUNCHED A FOOD PANTRY SEVERAL OF YEARS AGO AND IT HAS GROWN AND IS UTILIZED BY MANY CLINICS. WE SCREENED OVER 13,000 PATIENTS LAST YEAR AND SLIGHTLY OVER 800 WERE POSITIVE FOR FOOD INSECURITY, APPROXIMATELY 6% OF THOSE SCREENED. WHILE WE ARE NOT ABLE TO OFFER THE PANTRY TO ALL FAMILIES SEEN AT KENNEDY KRIEGER, WE PROVIDE COMMUNITY RESOURCES TO EVERYONE. THESE RESOURCES DIRECT FAMILIES TO OTHER PANTRIES AND RESOURCES THAT CAN PROVIDE DIRECT SUPPORT. BUILDING CAPACITY INCLUDES ENGAGEMENT WITH THE FAMILIES. AS WE HAVE SUPPORTED FAMILIES IN SIGNING UP FOR MYCHART, THEY ARE USING THE SYSTEM TO COMMUNICATE WITH THEIR HEALTH PROVIDERS. WE HAVE EXPERIENCED A SIGNIFICANT INCREASE IN MYCHART MESSAGING: - MEDICATION ADVICE MESSAGES = 93,070- REQUEST FOR MEDICATION RENEWALS = 37,086- USER MESSAGES = 12,919POST-SECONDARY LIFE & EXPERIENCES CONTINUE TO BE A MAJOR CHALLENGE FOR OUR PATIENTS AND FAMILIES. THROUGH PROJECT HEAL, WE GUIDE FAMILIES TO A PLACE WHERE THEY CAN CONSIDER WHAT ADULT LIFE MAY LOOK LIKE FOR THEIR LOVED ONE. SOME PATIENTS ARE ABLE TO MAKE THEIR OWN DECISIONS AT THE AGE OF ADULTHOOD AND OTHERS ARE NOT. KENNEDY KRIEGER CREATED A CAPACITY CLINIC FOR PATIENTS WHO HAD NOT ADDRESSED DECISION MAKING AND TO ENSURE CONSENT FOR SERVICES TO CONTINUE. WE ESTABLISHED A PROCESS THAT SHARES INFORMATION WITH FAMILIES AND SUPPORTS THEM IN HAVING THEIR LOVED ONE BE ABLE TO MAKE DECISIONS AND UNDERSTAND THEIR OVERALL HEALTH AND WELLNESS WHEN APPROPRIATE ON THEIR OWN RELATED TO HEALTH CARE. THIS IS CORE TO HELPING TO PREPARE FOR ADULTHOOD. AS HEALTH CARE PROVIDERS WE HAVE AN ETHICAL AND LEGAL RESPONSIBILITY TO DETERMINE IF AN ADULT PATIENT (>18 YEARS) CAN MAKE INFORMED DECISIONS ABOUT THEIR CARE. WE SEND POST CARDS QUARTERLY TO PATIENTS WHO WILL TURN WITHIN 13.6 YEARS. THE POST CARD PROVIDES A LETTER OF TRANSITION AND THE TRANSITION BROCHURE. FOR FISCAL YEAR 2025 WE HAD 2,354 POST CARDS AND BROCHURES ON TRANSITION THAT TOTALED OVER $2,787. DURING FY 2025 WE CONDUCTED 253 CAPACITY EVALUATIONS (82 SINGLE PHYSICIAN ASSESSMENTS AND 83 MULTIPLE EVAULATIONS WHICH COULD HAVE RESULTED IN MORE THAN ONE PROVIDER.)THE SPECIALIZED HEALTH NEEDS INTERAGENCY COLLABORATION PROJECT (SHNIC) IS A COMMUNITY-BASED PROGRAM THAT PROVIDES ON-SITE TRAINING AND TECHNICAL ASSISTANCE TO PARENTS AND PERSONNEL FROM SCHOOLS AND COMMUNITY SERVICE PROGRAMS THROUGHOUT MARYLAND AT NO COST. IT CREATES A COLLABORATIVE PARTNERSHIP BETWEEN KENNEDY KRIEGER AND THE MARYLAND STATE DEPARTMENT OF EDUCATION, WITH THE GOAL TO PROVIDE COMMUNITY EDUCATION THAT FACILITATES THE INCLUSION OF CHILDREN AGES 0-21 WITH SPECIALIZED HEALTH NEEDS THROUGH A FREE GRANT PROGRAM. SHNIC NURSES WORK TO EDUCATE SCHOOL PERSONNEL ABOUT A CHILD'S SPECIALIZED HEALTH NEED, WITHIN THE EDUCATIONAL ENVIRONMENT, RELATED TO HOW TO MANAGE IT, OR HOW THE DIAGNOSIS MAY AFFECT HIS/HER EDUCATION. IN FY 2025 SHNIC PROVIDED EDUCATION TO 1,633 HEALTH PROFESSIONALS, 1,838 EDUCATIONAL PROFESSIONALS, AND 366 PARENTS/CAREGIVERS. TECHNICAL ASSITANCE WAS PROVIDED TO 57 STUDENTS SPECIFIC TO THEIR HEALTH NEEDS.KENNEDY KRIEGER PROJECT ECHO PROGRAMS CONTINUE TO ACCELERATE AND REACH MANY INDIVIDUALS ACROSS THE STATE ACROSS ALL AGE GROUPS AND DISABILITIES. IT IS ABOUT MOVING KNOWLEDGE, NOT PEOPLE WHENEVER FEASIBLE. NEW CONTENT INCLUDES THE FOLLOWING PROGRAMS: - THE KENNEDY KRIEGER INSTRUCTION IN NEURODEVELOPMENTAL DISORDERS (KIND) CURRICULUM- EXPERT MULTIDISCIPLINARY TEAM(S): - MARYLAND EARLY CHILDHOOD DEVELOPMENT AND MENTAL HEALTH ECHO - MILITARY CHILD DEMYSTIFYING CHALLENGING BEHAVIOR IN EARLY CHILDHOOD ECHO; AND - PEDIATRIC LONG COVID ECHO.- ECHO SESSIONPROJECT ECHO SUPPORTS MANAGING THE PATIENT IN THEIR OWN COMMUNITY, BUILDING PROVIDER CAPACITY AND KNOWLEDGE, AND SUPPORTS FAMILIES THROUGH THE FAMILY NEW KIND CURRICULUM. THE NEW CURRICULUM INCLUDES:- DIAGNOSTIC ODYSSEY- HEALTH MAINTENANCE- FAMILY IMPACT- EDUCATIONAL CONSIDERATIONS- LEGAL CONSIDERATIONSWITH 30 MODULESAREAS NOT ADDRESSED FROM THE ASSESSMENT BUT CLEARLY NOTED AS NEEDS BY FAMILIES AND PROVIDERS ACROSS MARYLAND INCLUDE THE FRAGMENTATION OF BEHAVIORAL HEALTH AND MEDICAL SERVICES FOR CHILDREN AND YOUTH WITH MEDICAL AND BEHAVIORAL/MENTAL HEALTH NEEDS. THE ABILITY TO FULLY ADDRESS THESE ADDITIONAL NEEDS REQUIRE INTEGRATION AND COORDINATION OUTSIDE THE SCOPE OF THE MEDICAL AND BEHAVIORAL HEALTH PROGRAMS AT KENNEDY KRIEGER, I.E., REQUIRING SYSTEMS CHANGE VERSUS SOLELY ACCESS THE SERVICES. WE ACCESS COMMUNITY SERVICES WHEN PATIENTS OR FAMILIES OF OUR PATIENTS ARE IN NEED OF SERVICES BEYOND OUR PROFESSIONAL SCOPE. ADDRESSING NEEDS NOT IDENTIFIED IN THE CHNA HAS BEEN ADDRESSED BY PARTNERING WITH COMMUNITY ENTITIES HAVING COMMON VALUES RELATED TO HEALTH OF THE COMMUNITY. KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC PART V, SECTION B, LINE 13H: DURING INTAKE, ALL SELF-PAY PATIENTS ARE INFORMED OF KENNEDY KRIEGER'S FINANCIAL ASSISTANCE POLICY. THIS INFORMATION IS ALSO PROVIDED AT THE TIME OF APPOINTMENT, REGISTRATION AND THROUGHOUT THE BILLING PROCESS. KENNEDY KRIEGER CONTINUES TO ENHANCE OUTREACH EFFORTS TO ENSURE BROADER AWARENESS AMONG PATIENTS AND FAMILIES. KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC PART V, SECTION B, LINE 15E: THE RESOURCE FINDER: HTTPS://WWW.KENNEDYKRIEGER.ORG/COMMUNITY/INITIATIVES/RESOURCE-FINDER PART I, LINE 3C: PATIENTS WHOSE FAMILY INCOME EXCEEDS THE THRESHOLDS FOR MEDICAL INDIGENCY ARE ELIGIBLE FOR CATASTROPHIC ASSISTANCE IF MEDICAL BILLS AFTER PAYMENT BY THIRD-PARTY PAYERS EXCEED 60% OF THE INDIVIDUAL OR FAMILY ANNUAL GROSS INCOME; OR PATIENTS WHOSE MEDICAL BILLS EXCEED 60% OF THE INDIVIDUAL OR FAMILY ANNUAL GROSS INCOME AND THAT INCOME EXCEEDS 400% OF THE FEDERAL POVERY GUIDELINES AND ARE UNABLE TO PAY THE REMAINING BALANCE ON THE BILL. PART I, LINE 7: LINE A - CHARITY CARE AND UNREIMBURSED MEDICAID WERE DETERMINED BY USING A COST TO CHARGE RATIO. THIS COST TO CHARGE RATIO WAS DETERMINED BASED UPON THE HOSPITAL'S COSTS AND CHARGES FROM ITS MEDICAID COST REPORT AND FURTHER DOCUMENTED THROUGH THE MARYLAND DEPARTMENT OF HEALTH AND MENTAL HYGIENE AGREEMENT WITH THE ORGANIZATION. ALL OF THE OTHER AMOUNTS WERE REPORTED AT COST UTILIZING THE ORGANIZATION'S COST ACCOUNTING SYSTEM. CHARITY CARE IS DETERMINED BY THE HOSPITAL'S FINANCIAL ASSISTANCE POLICY AND IS BASED UPON COST. THE HOSPITAL USES THE FEDERAL POVERTY GUIDELINES (AS UPDATED ANNUALLY) IN DETERMINING FREE AND DISCOUNTED CARE. IN ADDITION, THE HOSPITAL CONSIDERS FREE OR DISCOUNTED CARE FOR THE MEDICALLY INDIGENT.LINE B - THE NET COMMUNITY BENEFIT FOR MEDICAID IS BASED UPON MEDICAID COSTS NET OF MEDICAID REIMBURSEMENT AND DISPROPORTIONATE SHARE REVENUE.LINE C - THE NET COMMUNITY BENEFIT FOR OTHER MEANS-TESTED PROGRAMS IS BASED UPON MEDICARE COSTS NET OF MEDICARE REIMBURSEMENT FROM THE FY 2025 MEDICARE COST REPORT.LINE E - COMMUNITY HEALTH IMPROVEMENT SERVICES AND COMMUNITY BENEFIT OPERATIONS INCLUDE GRANTS, THE COST OF PATIENT TRANSPORTATION, AND THE COSTS OF PROVIDING GUEST RELATIONS AND TRAINING SERVICES.PATIENT TRANSPORTATION: ACCESS TO SERVICES IS A KEY PRIORITY IDENTIFIED IN THE KKCH COMMUNITY HEALTH NEEDS ASSESSMENT. TRANSPORTATION REMAINS A SIGNIFICANT BARRIER TO HEALTHCARE, EDUCATION, AND EMPLOYMENT-PARTICULARLY FOR INDIVIDUALS WITH DISABILITIES AND UNDERREPRESENTED POPULATIONS. KKCH CLINICAL PROGRAMS OFFER TRANSPORTATION SUPPORT FOR PATIENTS WHO LACK OTHER MEANS TO ATTEND THEIR HEALTHCARE APPOINTMENTS. IN FY25, PROGRAMS SUCH AS THE CENTER FOR CHILD AND FAMILY TRAUMATIC STRESS (CCFTS), CHILD AND FAMILY SUPPORT CENTER (CFSC) AND THE DEPARTMENT OF BEHAVIORAL HEALTH PROVIDED OVER 731 RIDES FOR PATIENTS AND FAMILIES TO ACCESS SERVICES. KENNEDY KRIEGER INSTITUTE CONDUCTED MANY COMMUNITY HEALTH IMPROVEMENT SERVICES DURING THE FISCAL YEAR 2025. THE HOSPITAL CONTINUES TO PROVIDE MENTAL AND BEHAVIORAL TELEHEALTH SERVICES, TOTALING OVER 77,000 SESSIONS (PSYCHOLOGY AND SOCIAL WORK) IN 2025. THE MCDD'S RESOURCE FINDER PROVIDES DIRECT ACCESS TO CONNECT COMMUNITY MEMBERS WITH RESOURCES. RESOURCE FINDER INFORMS INDIVIDUALS, FAMILIES, STAFF MEMBERS TRAINEES ABOUT COMMUNITY SERVICES, SERVICE PROVIDERS AND OTHER INFORMATION ON INTELLECTUAL, DEVELOPMENTAL AND OTHER DISABILITIES ACROSS THE LIFESPAN. INPUT FROM INQUIRIES AND VOLUMES ARE USED TO DRIVE IDENTIFYING NEEDS IN THE TARGET AREA. THE RESOURCE FINDER RESPONDED TO 1,308 INQUIRIES, HELPING INDIVIDUALS FROM 30 STATES AND WASHINGTON, D.C..FOR FY25, THE TOP NEEDS IDENTIFIED THROUGH RESOURCE FINDER INQUIRIES:- REQUEST FOR SPECIALTY SERVICES (INCLUDING KENNEDY KRIEGER SERVICES)- REQUEST TO FURTHER UNDERSTAND DIAGNOSIS- INCREASE ACCESS TO RECREATIONAL RESOURCES- INCREASE ACCESS TO APPROPRIATE EDUCATION RESOURCES ACROSS THE AGE CONTINUUMPROJECT HEAL (HEALTH, EDUCATION, ADVOCACY, AND LAW) AT KENNEDY KRIEGER IS MARYLAND'S ONLY MEDICAL-LEGAL PARTNERSHIP AND A COMMUNITY-BASED PROGRAM OF THE MCDD. PROJECT HEAL PROVIDES ADVOCACY AND CIVIL LEGAL SERVICES FOR CHILDREN WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES AND THEIR FAMILIES. PROJECT HEAL SUBMITTED 5 LEGISLATIVE TESTIMONIES DURING THE 2025 LEGISLATIVE SESSION AND PARTICIPATED IN 3 POLICY DEVELOPMENT DISCUSSIONS. THE TESTIMONIES REFLECT THE INPUT FROM FAMILIES SERVED THROUGH REPRESENTATION AND LIMITED REPRESENTATION RELATED TO SPECIAL EDUCATION MATTERS: CASE CONSULTATION WITH KENNEDY KRIEGER PROVIDERS RELATED TO ADVICE THAT SUPPORTS ENGAGEMENT, ADVOCACY, AND SERVICE FOR PATIENTS AND FAMILIES: AND PROFESSIONAL AND COMMUNITY TRAINING FROM WHICH EVALUATION FEEDBACK IS RECEIVED THAT SUPPORTS AREAS OS NEED SPECIFIC TO THE POPULATION SERVED. PROJECT HEAL IS COMPRISED OF ATTORNEYS WHO PROVIDE FREE OR INCOME-ADJUSTED SERVICES TO PATIENTS AND FAMILIES ASSOCIATED WITH KENNEDY KRIEGER. PROJECT HEAL PROVIDED 47 PROFESSIONAL AND COMMUNITY TRAININGS/PRESENTATIONS IN TRHE COMMUNITY DURING THE FISCAL YEAR. THE PRESENTATIONS AND TRAININGS WERE PROVIDED ON A VARIETY OF TOPICS INCLUDING GUARDIANSHIP, EARLY CHILDHOOD TRANSITION AND MEDICAL-LEGAL PARTNERSHIPS. KENNEDY KRIEGER'S ACCESSIBILITY INITIATIVE CREATES OPPORTUNITIES THAT REDUCE BARRIERS TO ACCESS, WORKS TO IMPROVE UNIVERSAL DESIGN FOR FACULTY, STAFF, AND OUR PATIENTS AND THEIR FAMILIES. THE TEAM HAS DEVELOPED AN ONLINE PORTAL ENTRY SYSTEM TO CAPTURE ACCESSIBILITY NEEDS AND OPPORTUNITIES ACROSS THE INSTITUTE AND THE COMMMUNITY WE SERVE. THE TEAM HAS WORKED ON OVER 50 REQUESTS IN FY25. THE LEADERSHIP GROUP MEETS WEEKLY WITH SUBGROUPS MEETING QUARTERLY FOR A TOTAL OF 124 MEETINGS AND AN AVERAGE 250 HOURS SPENT ON THIS INITIATIVE. THE INSTITUTE HAS LAUNCHED A PROGRAM - ACCESSITY - AND BEGUN A PARTNERSHIP WITH AN OUTSIDE NON-PROFIT, AIMED AT PROVIDING THE MARYLAND COMMUNITY AND BEYOND WITH A PLACE TO SEEK INFORMATION REGARDING ACCESSIBILE PLACES OF BUSINESS AND LEISURE. THIS LEADERSHIP GROUP MEETS EVERY OTHER WEEK AND INCLUDES A MULTIDISCIPLINARY GROUP AND REPRESENTATION FROM KENNEDY KRIEGER AND HAS SPENT OVER 300 HOURS ON ACCESSITY.KENNEDY KRIEGER CONDUCTS AN ANNUAL NATIONAL CONFERENCE, ROOM TO GROW: JOURNEY TO CULTURAL AND LINGUISTIC COMPETENCY TO SUPPORT CAPACITY BUILDING AND FURTHER RECRUIT SPECIALTY PROVIDERS. FOR FY25, THE CONFERENCE WAS HELD ON SEPTEMBER 24, 2024 WITH 379 PARTICIPANTS.LINE F - KKCH PROVIDED EXTENSIVE EDUCATION FOR HEALTH PROFESSIONALS THROUGH A WIDE RANGE OF PROGRAMMING ACROSS THE INSTITUTE, ACCOUNTING FOR NEARLY 50% OF ALL EDUCATIONAL OFFERINGS. THE PARTICIPANT BASE FOR THESE PROGRAMS IS BOTH DIVERSE AND SIGNIFICANT. OVER 15 YEARS AGO, WE BEGAN MANY OF OUR HEALTH PROFESSIONS TRAININGS TO INCLUDE PATIENTS, FAMILIES, AND THE COMMUNITY MEMBERS IN ADDITION TO HEALTHCARE PROFESSIONALS. THIS INTEGRATED AUDIENCE HAS ENRICHED THE LEARNING ENVIRONMENT, FOSTERING BROADER PERSPECTIVES AND MORE ROBUST DISCUSSIONS. WHILE SEVERAL EDUCATIONAL EVENTS WERE REPEATED TO INCREASE ACCESSIBILITY, WE OFFERED APPROXIMATELY 700 UNIQUE SESSIONS.DURING FISCAL YEAR 2025, THE ORGANIZATION OFFERED TRAINING TO APPROXIMATELY 1,000 TRAINEES AT VARIOUS LEVELS - UNDERGRADUATE, GRADUATE, PRE- & POST-DOCTORAL, AND FELLOWSHIP RESIDENCIES. LINE I - CASH AND IN-KIND CONTRIBUTIONS FROM THE HOSPITAL PROVIDE FUNDING FOR ACTIVITIES TO ACHIEVE THE MISSION OF THE HOSPITAL. PART II, COMMUNITY BUILDING ACTIVITIES: THIS NARRATIVE CORRESPONDS TO PARTS I AND II. SEE ADDITIONAL NARRATIVE FOR COMMUNITY HEALTH IMPROVEMENT SERVICES AND COMMUNITY BENEFIT OPERATION IN PART VI, LINE 5.COMMUNITY BUILDING ACTIVITIES CONDUCTED DURING FY 2025 INCLUDE THE FOLLOWING:LEADERSHIP DEVELOPMENT: PEOPLE ON THE GO (POG) IS A STATEWIDE SELF-ADVOCACY GROUP OPERATING IN PARTNERSHIP WITH THE MARYLAND DEVELOPMENTAL DISABILITIES COUNCIL AND THE MARYLAND CENTER FOR DEVELOPMENTAL DISABILITIES (MCDD) AT KENNEDY KRIEGER INSTITUTE. POG SUPPORTS THE MCDD'S CORE FUNCTION OF COMMUNITY SERVICE AND TECHNICAL ASSISTANCE AND INFORMATION DISSEMINATION. IT IS A GROUP LEAD BY ABD FOR THOSE WITH INTELLECTUAL AND/OR DEVELOPMENTAL DISABILITIES. POG PLAYS A KEY ROLE IN DRIVING LEGISLATIVE SESSIONS, EDUCATING ELECTED OFFICIALS ABOUT COMMUNITY AND WORKFORCE NEEDS. THE GROUP ALSO TRAINS SELF-ADVOCATES TO EFFECTIVELY ENGAGE WITH LEGISLATORS AND HAS DEVELOPED TIP SHEETS AND OTHER RESOURCES TO SUPPORT BROADER COMMUNITY INVOLVEMENT IN THE LEGISLATIVE PROCESS. IN 2025, POG DELIVERED 48 PRESENTATIONS AND ATTENDED 17 CONFERENCES. POG HELD 17 LEGISLATIVE ADVOCACY COMMITTEE MEETINGS THAT INCLUDED ON AVERAGE 10 MEMBERS, SELF-ADVOCATES DISCUSSED LEGISLATION THAT WOULD IMPACT THE MARYLAND COMMUNITY. POG HELD LEGISLATIVE POLICY COMMITTEE MEETINGS WHERE MEMBERS GATHERED TO DISCUSS THE LEGISLATIVE SESSION AND ACTIVELY WORK ON MARYLAND'S POLICIES. THEIR GOAL IS TO ADVOCATE FOR CHANGES OR INTRODUCE NEW POLICIES THAT BETTER SERVE THEIR CONSTITUENTS. THESE EFFORTS ARE FACILITATED BY POG'S PUBLIC POLICY ASSISTANT, WHO LEADS THE LEGISLATIVE POLICY COMMITTEE AND SUPPORTS MEMBERS IN THEIR ADVOCACY WORK. THESE COMMITTEE MEETINGS AVERAGE 10 ATTENDEES PER WEEK AND TESTIFIED ON MANY PIECES OF LEGISLATION TO INCLUDE 22 TESTIMONIES.COMMUNITY HEALTH ADVOCACY: THE MARYLAND DEPARTMENT OF DEVELOPMENTAL DISABILITIES (MCDD) IS MARYLAND'S UNIVERSITY CENTERS FOR EXCELLENCE IN DEVELOPMENTAL DISABILITIES, PART OF A NATIONAL NETWORK, FUNDED BY THE ADMINISTRATION ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES. THE MCDD'S MISSION IS TO PROVIDE LEADERSHIP THAT ADVANCES THE INCLUSION OF PEOPLE WITH INTELLECTUAL, DEVELOPMENTAL, AND OTHER DISABILITIES. UCEDDS WORK TO IMPROVE THE LIVES OF PERSONS WITH DISABILITIES THROUGH FOUR CORE FUNCTIONS: INTERDISCIPLINARY PRE-SERVICE TRAINING AND CONTINUING EDUCATION, COMMUNITY SERVICE AND TECHNICAL ASSISTANCE, RESEARCH AND EVALUATION, AND INFORMATION SHARING/DISSEMINATION. THE MCDD INCLUDES VARIOUS PROGRAMS, PROJECTS, AND INITIATIVES THAT ADVOCATE FOR PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES IN SOCIETY. THE PROGRAMS OF THE MCDD ADD VALUE AND INPUT FROM THE COMMUNITY SERVED BY KENNEDY KRIEGER. THE MCDD'S COMMUNITY ADVISORY COUNCIL (CAC) MEETS QUARTERLY AND INCLUDES REPRESENTATIVES FROM MANY MARYLAND AGENCIES - MARYLAND DEPARTMENT OF HEALTH - DEVELOPMENTAL ABILITIES ADMINISTRATION AND THE DEPARTMENT OF AGING, MARYLAND STATE DEPARTMENT OF EDUCATION, THE DISABILITY NETWORK - DISABILITY RIGHTS MARYLAND, THE DEVELOPMENTAL DISABILITIES COUNCIL, COMMUNITY ORGANIZATIONS ACROSS THE STATE, SELF-ADVOCATES, AND CAREGIVERS TO PROVIDE GUIDANCE AND INPUT TO PROJECTS, PROGRAMS AND ACTIVITIES IN THE COMMUNITY HEALTH NEEDS ASSESSMENT.CORE COMMUNITIES ARE EMPLOYEE-LED GROUPS AT KENNEDY KRIEGER INSTITUTE THAT ACTIVELY COMMUNICATE AND GATHER AROUND A CENTRAL UNIFYING PURPOSE, MISSION, BACKGROUND, AND ACTIVITIES. KENNEDY KRIEGER INSTITUTE CONSIDERS THESE GROUPS TO BE A VITAL COMPONENT CONNECTING VARIOUS MEMBERS OF THE KENNEDY KRIEGER WORKFORCE WITH EACH OTHER AND THE INSTITUTE. THESE GROUPS PROVIDE OPPORTUNITIES TO GAIN INSIGHT AND EXCHANGE PERSPECTIVES, EXPERIENCES, AND IDEAS BETWEEN INSTITUTE LEADERSHIP AND EMPLOYEES ACROSS THE INSTITUTE. CORE COMMUNITIES MAY HELP INCREASE MORALE, PROVIDE SUPPORT AND INSIGHTS INTO DIVERSE AREAS, BUILD BRIDGES TO THE COMMUNITY, IMPROVE CARE, TRAINING, EDUCATION, AND RESEARCH, AND PROMOTE SELF-EFFICACY. IN ADDITION, THEY CAN ASSIST THE INSTITUTE WITH RECRUITING, RETAINING, AND PROMOTING TALENT. CORE COMMUNITIES INCLUDE BAG (BUILDING AND ADVANCING GREATNESS), GLOBAL HEALTH OUTREACH, LA FAMILIA, EMBRACE, SPEEDI, WOMENS LEADERSHIP INITIATIVE AND VETERANS ALLIANCE.BLIO: BUILDING LEADERS INSIDE AND OUT, MISSION IS TO:- PROVIDE GREATER ACCESS TO LEARNING OPPORTUNITIES AND SUPPORTIVE RELATIONSHIPS TO BUILD LEADERSHIP, SELF-EFFICACY, AND PROFESSIONAL SKILLS THROUGHOUT THE KENNEDY KRIEGER COMMUNITY.- PROVIDE MENTORSHIP THAT EQUIPS EMPLOYEES WITH TRAINING OPPORTUNITIES, RESOURCES AND STRATEGIES FOR PROFESSIONAL DEVELOPMENT FOCUSING ON THOSE IN ENTRY-LEVEL AND DIRECT CARE POSITIONS.- PARTNER WITH BALTIMORE CITY PUBLIC HIGH SCHOOL STUDENTS AND THEIR FAMILIES TO PROVIDE STUDENT-CENTERED MENTORSHIP, ACADEMIC AND PROFESSIONAL DEVELOPMENT, AND WORK EXPERIENCE.DURING FY25, CORE COMMUNITIES COLLECTIVELLY INVESTED OVER 29,000 HOURS IN ENGAGING WITH MORE THAN 500 INDIVIDUALS - BOTH INTERNAL AND EXTERNAL - THROUGH THE STRATEGIC PLANNING AND EXECUTION OF EVENTS AND ACTIVITIES WHILE ADVANCING ORGANIZATIONAL INITIATIVES. PART III, LINE 2: SEE NARRATIVE FOR PART III, LINE 4 PART III, LINE 3: SEE NARRATIVE FOR PART III, LINE 4 PART III, LINE 4: BASED UPON THE HOSPITAL'S BILLING AND COLLECTION POLICY, BAD DEBT EXPENSE IS RECORDED AT COST. AN ALLOWANCE FOR DOUBTFUL ACCOUNTS IS RECORDED FOR RECEIVABLES WHICH ARE ANTICIPATED TO BECOME UNCOLLECTIBLE IN FUTURE PERIODS. THE $150,000 OF BAD DEBT EXPENSE, VALUED AT COST, REPRESENTS THOSE ACCOUNTS WRITTEN OFF IN WHICH THE PATIENT WOULD HAVE QUALIFIED FOR THE ORGANIZATION'S FINANCIAL ASSISTANCE POLICY DUE TO THEIR INCOME LEVEL. PLEASE SEE PAGES 11 THROUGH 13 OF THE ATTACHED FINANCIAL STATEMENTS. PART III, LINE 8: THE MEDICARE ALLOWABLE COSTS OF CARE AMOUNTS WERE OBTAINED FROM THE FISCAL YEAR 2025 MEDICARE COST REPORT AND PROVIDER STATISTICAL REPORTS PROVIDED BY MEDICARE. PART III, LINE 9B: THE ORGANIZATION'S DEBT COLLECTION POLICY SPECIFICALLY ADDRESSES PATIENTS THAT QUALIFY FOR FINANCIAL ASSISTANCE. ONCE A PATIENT QUALIFIES FOR FINANCIAL NEED, THEIR FINANCIAL OBLIGATION IS REDUCED OR WRITTEN OFF BASED UPON THE FINANCIAL ASSISTANCE POLICY GUIDELINES. A SEPARATE FINANCIAL CLASS IS UTILIZED IN WHICH BILLS ARE NOT GENERATED. THESE ACCOUNTS ARE NOT PLACED WITH COLLECTION AND NO FURTHER DEBT COLLECTION EFFORTS ARE PURSUED. ADDITIONALLY, THE HOSPITAL DOES NOT CHARGE INTEREST, LATE FEES OR PENALTIES. FOR FAMILIES THAT MAY NOT HAVE SUFFICIENT COVERAGE TO ACCESS SERVICES AT KENNEDY KRIEGER, THEY ARE OFFERED ELIGIBILITY INFORMATION ON OUR FINANCIAL ASSISTANCE PROGRAM. PART VI, LINE 2: KENNEDY KRIEGER CREATED A CHNA TEAM IN 2025. THE TEAM INCLUDES: A MANAGER OF POPULATION HEALTH, A CLINICAL LEADER/ADMINISTRATOR, COMMUNITY OUTREACH PROFESSIONALS, OTHER CORE MEMBERS THAT CONTRIBUTE TO THE COMMUNITY BENEFIT ACTIVITIES AND OUTCOMES. WE HAVE IDENTIFIED OTHER MEMBERS THAT CONTRIBUTE TO THE WORK IN OUR COMMUNITY: (1) ASSISTANT VICE PRESIDENT ENGAGEMENT, (2) DIRECTOR PATIENT-FAMILY EXPERIENCE AND EMPLOYEE ACTIVITIES, (3) DIRECTOR, ORGANIZATIONAL INITIATIVES, (4) DISSEMINATION PROGRAM COORDINATOR, AND (5) FOOD PANTRY STAFF AND VOLUNTEERS. THE TEAM SUPPORTS ENGAGEMENT WITH PARTNERS ACROSS AND BEYOND THE ORGANIZATION TO ASSESS HEALTH NEEDS OF THE COMMUNITY WE SERVE. STAFF PARTICIPATED IN NUMEROUS MEETINGS AND CONFERENCES, BOTH VIRTUALLY AND NOW INCREASINGLY IN PERSON. THESE ENGAGEMENTS, ALONG WITH THE COLLECTION AND ANALYSIS OF DATA FROM STATE, NATIONAL, AND PRIVATE SOURCES, INFORMED THE DEVELOPMENT OF THE IMPLEMENTATION PLAN. THE ORGANIZATION CONTINUES TO RELY ON STRONG PARTNERSHIPS THAT ENABLE ACCESS TO AND SHARING DATA METRICS OVER TIME, HELPING ALL CORPORATE ENTITIES IDENTIFY AND RESPOND TO EVOLVING COMMUNITY NEEDS. PARTNERSHIPS HAVE ALLOWED INTERNAL AND EXTERNAL LEVERAGING OF RESOURCES TO PROVIDE AND ADVOCATE WITH AND FOR CHILDREN, ADOLESCENTS AND ADULTS WITH DISABILITIES AND THEIR FAMILIES. KEY ORGANIZATIONS THAT SHARED DATA INCLUDED: (1) KENNEDY KRIEGER'S MCDD; (2) DEVELOPMENTAL DISABILITIES COUNCIL; (3) DISABILITY RIGHTS MARYLAND; (4) MARYLAND EASTERN SHORE CONSORTIUM OF CARE; AND (5) MARYLAND LEGISLATIVE COMMUNITY, AMONG OTHERS. PART VI, LINE 3: ALL PATIENTS ARE INFORMED OF THEIR FINANCIAL RESPONSIBILITY PRIOR TO THEIR APPOINTMENT OR ADMISSION. IF THEY CANNOT MEET THIS RESPONSIBILITY, THEY ARE INFORMED OF THE FINANCIAL ASSISTANCE POLICY DURING PRE-ADMISSION, AT THE TIME OF THE APPOINTMENT, AT REGISTRATION AND BY PATIENT ACCOUNTING DURING THE BILLING AND COLLECTION PROCESS. THE FINANCIAL ASSISTANCE POLICY AND BILLING AND COLLECTION POLICIES ARE POSTED ON THE HOSPITAL'S WEBSITE AND AT INTERNAL CARE CENTERS ACROSS THE ORGANIZATION. THE HOSPITAL ALSO WORKS WITH FAMILIES TO EXPLORE QUALIFICATION FOR GOVERNMENT PROGRAMS OR OTHER FINANCIAL ASSISTANCE PROGRAMS. THE HOSPITAL HAS DEDICATED PATIENT FINANCIAL ASSISTANCE STAFF WHO WORK WITH PATIENTS AND THEIR FAMILIES WHO REQUIRE FINANCIAL ASSISTANCE. THE HOSPITAL HAS COMPLIED WITH THE REQUIREMENTS UNDER SECTION 501(R) FOR HOSPITALS UNDER THE AFFORDABLE CARE ACT. WRITTEN FINANCIAL ASSISTANCE POLICIES HAVE BEEN ESTABLISHED, REASONABLE EFFORTS ARE MADE TO DETERMINE IF AN INDIVIDUAL IS ELIGIBLE FOR FINANCIAL ASSISTANCE AND THE HOSPITAL DOES NOT EMPLOY EXTRAORDINARY COLLECTION EFFORTS.THE HOSPITAL HAS ON STAFF FINANCIAL COUNSELORS WHO CONSULT WITH FAMILIES REGARDING THEIR INSURANCE AUTHORIZATION, COVERAGE, RESPONSIBLE PORTION, AND A BENEFIT AND FINANCIAL SERVICE FOR FAMILIES AND PATIENTS. THE FINANCIAL COUNSELORS INFORM AND ASSIST FAMILIES IN UNDERSTANDING THEIR INSURANCE POLICY, FINANCIAL ASSISTANCE OPTIONS THROUGH THE HOSPITAL AND OTHER COMMUNITY RESOURCES THAT MAY BE AVAILABLE. IN ADDITION, THE RESOURCE FINDER IS AVAILABLE TO AID FAMILIES IN FINDING RESOURCES FOR NEEDED SERVICES OR EQUIPMENT NOT COVERED BY INSURANCE. SOME DEPARTMENTS ACROSS THE ORGANIZATION HAVE SECURED GRANTS OR BEEN THE RECIPIENT OF PHILANTROPIC FUNDS THAT ARE USED TO FILL IN THE GAP WHEN NEEDED SERVICES ARE NOT PARTIALLY OR FULLY COVERED BY INSURANCE. PART VI, LINE 4: KENNEDY KRIEGER INSTITUTE SERVES CHILDREN, ADOLESCENTS, AND ADULTS FROM MARYLAND, ACROSS THE UNITED STATES, AND INTERNATIONALLY. DATA FROM THE FISCAL YEARS 2022, 2023, AND 2024 INDICATE THAT 60 PERCENT OF ALL INPATIENT AND 87 PERCENT OF OUPATIENTS SERVED BY KENNEDY KRIEGER ARE MARYLAND RESIDENTS, ALTHOUGH GEOGRAPHIC DEMOGRAPHICS VARY SIGNIFICANTLY BY PROGRAM. KENNEDY KRIEGER VIEWS THE ENTIRE STATE OF MARYLAND AS ITS COMMUNITY, WITH AN ESTIMATED POPULATION OF 6.26 MILLION, MARYLAND RANKS AS THE 18TH MOST POPULOUS STATE IN THE NATION. COVERING 9,774 SQUARE MILES, IT IS THE 5TH MOST DENSELY POPULATED STATE, WITH APPROXIMATELY 636 RESIDENTS PER SQUARE MILE. DESPITE THIS DENSITY, MARYLAND INCLUDES RURAL AND LESS POPULATED AREAS, PARTICULARLY IN THE SOUTHERN, WESTERN, AND EASTERN SHORE REGIONS. THE STATE IS DIVIDED INTO 24 COUNTIES/COUNTY-EQUIVALENTS ACROSS FIVE DISTINCT REGIONS, EACH WITH UNIQUE NEEDS AND RESOURCES. KENNEDY KRIEGER CHILDREN'S HOSPITAL (KKCH) IS LOCATED IN THE CENTRAL REGION, WHICH CAN PRESENT ACCESS CHALLENGES FOR INDIVIDUALS IN THE SOUTHER, WESTERN, AND EASTERN SHORE REGIONS.WITHIN MARYLAND COMMUNITIES, OVER 12% OF RESIDENTS HAVE A REPORTED DISABILITY (2022, CENSUS BUREAU). KKCH SUPPORTS PERSONS WITH DEVELOPMENTAL DISABILITIES AND OTHER WITH RELATED DISABILITIES SUCH AS SPINAL CORD INJURY, USE INDIVIDUALLY PLANNED AND COORDINATED SERVICES AND SUPPORTS OF THEIR CHOOSING (E.G., HOUSING, EMPLOYMENT, EDUCATION, CIVIL AND HUMAN RIGHTS PROTECTION, HEALTH CARE) TO LIVE IN AND TO PARTICIPATE IN ACTIVITIES IN THE COMMUNITY. THE KKCH MAIN CAMPUS IS LOCATED IN THE EAST BALTIMORE COMMUNITY. THE DISABILITY RATE OF SCHOOL-AGED CHILDREN ENROLLED IN PUBLIC SCHOOLS (US CENSUS, 2010) THAT HAVE A COGNITIVE DISABILITY (I.E., LEANING DISABILITY, ADHD, ETC.) FOR THE BALTIMORE METROPOLITAN AREA IS 4.0% AND WITH A GENERAL DISABILITY RATE OF 5.3%. OUR CONTRIBUTIONS TO THE COMMUNITY TARGET A WIDE GEOGRAPHIC REACH MIRRORING OUR MARYLAND PATIENT POPULATION.KKCH SERVED PERSONS RANGING FROM LESS THAN ONE YEAR TO OVER 75 YEARS OF AGE. APPROXIMATELY 49% OF THE POPULATION SERVED ARE 11 YEARS AND OLDER. GENERALLY, KKCH SERVES ALMOST TWICE AS MANY MALES AS FEMALES.OUR TARGET POPULATION INCLUDES CHILDREN, ADOLESCENTS AND ADULTS WITH DISABILITIES AND THOSE AT THE HIGHEST RISK FOR DISORDERS OF THE NERVOUS SYSTEM. IN MARYLAND, 19.7% OF CHILDREN 0-17 YEARS OF AGE HAVE A SPECIAL HEALTHCARE NEED, AS ADOPTED BY THE HEALTH RESOURCES AND SERVICES ADMINISTRATION. THESE INCLUDE CHILDREN AND YOUTH WHO, ALONG WITH THEIR FAMILIES, OFTEN NEED SERVICES FROM MULTIPLE SYSTEMS HEALTHCARE, PUBLIC HEALTH, EDUCATION, MENTAL HEALTH AND SOCIAL SERVICES. NARROWING THE FOCUS, WE KNOW THAT APPROXIMATELY 20% OF U.S. CHILDREN EXPERIENCE DEVELOPMENTAL DELAYS OR DISABILITIES, WHICH RANGE IN SEVERITY AND SCOPE FROM ISOLATED DELAYS IN ACHIEVING CERTAIN DEVELOPMENTAL MILESTONES TO FUNCTIONAL IMPAIRMENTS IN HEARING OR VISION, AS WELL AS DIAGNOSABLE LEARNING, EMOTIONAL, AND BEHAVIORAL DISORDERS. PART VI, LINE 5: KENNEDY KRIEGER INSTITUTE PARTNERS WITH MULTIPLE AGENCIES ACROSS THE MARYLAND COMMUNITIES. SOME EXAMPLES OF OUR PARTNERSHIPS ARE:- MARYLAND FOOD BANK WHO SUPPORT OUR FOOD PANTRY PROJECT- PARENTS PLACE OF MARYLAND- EASTERN SHORE CONSORTIUM OF CARE (COC)- BALTIMORE CITY INFANTS AND TODDLERS PROGRAM- BALTIMORE CITY HEALTH DEPARTMENT- JOHNSON SQUARE ELEMENTARY SCHOOL/BALTIMORE CITY PUBLIC SCHOOLS- SPECIAL OLYMPICS OF MARYLAND - THREAD - JOHNS HOPKINS MEDICAL INSTITUTIONS - LIVING CLASSROOMS - MARYLAND FAMILY NETWORK - GRANTEE OF SEEHS. PROVIDING ONGOING SUPPORT OF PROGRAM STAFF AND PROGRAM ADMINISTRATION. -MARYLAND DEPARTMENT OF HEALTH: DEVELOPMENTAL DISABILITIES ADMINISTRATION, MATERNAL AND CHILD HEALTH BUREAU, TITLE V, BEHAVIORAL HEALTH ADMINISTRATIONKENNEDY KRIEGER PROVIDES TRAINING TO HEALTH PROVIDERS, FAMILIES, AND INDIVIDUALS WITH DISABILITIES ACROSS THE STATE. THESE TRAININGS ARE OFFERED THROUGH BOTH IN PERSON AND VIRTUAL FORMATS TO ENSURE ACCESSIBILITY AND BROAD REACH. KENNEDY KRIEGER IS INVOLVED IN THE COMMUNITY THROUGH EXHIBITING AT LOCAL HEALTH FAIRS, EXPOS, COMMUNITY PARTNERSHIPS, PROVIDING TRAININGS, AND OTHER SELECTED COMMUNITY EVENTS, ACTIVITIES, AND PROGRAMS SUCH AS WHAT ARE LISTED BELOW:1. THE ORGANIZATION HOSTS IMMUNIZATION EVENTS THAT ARE OPEN TO THE COMMUNITY, OFFERING VACCINATIONS INCLUDING COVID-19 AND INFLUENZA.2. BACK TO SCHOOL DRIVE INCLUDING BACKPACKS (OVER $5,000 IN DONATION)3. THE PATIENT FOOD PANTRY FUNDED 52 THANKSGIVING MEALS (TURKEY AND ALL THE SIDES) THROUGH THE MARYLAND FOOD BANK. THE MEALS WERE PICKED UP FROM THE FOOD BANK AND WERE DISTRIBUTED TO FAMILIES IN THE COMMUNITY REHAB PROGRAMS. EACH MEAL WAS $15 FOR A TOTAL OF $780 PAID THROUGH THE PANTRY FUNDS.4. MCDD LEARNING SERIES 5. MCDD PROJECT HEAL TRAININGS 6. OTHER MCDD TRAININGS 7. PROJECT ECHO STATEWIDE 8. UPDATED COUNTY RANKINGS 9. 2024 KIDS COUNT DATA BOOK 10. LEGISLATIVE MEETINGS AND TESTIMONIES 11. MARYLAND COALITIONS AND COMMISSION MEMBERSHIPS PART VI, LINE 6: THE COMMUNITY BENEFIT ACTIVITIES NOTED IN THIS REPORT ARE EXCLUSIVELY RELATED TO KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC. IMPORTANT TO NOTE IS THAT KENNEDY KRIEGER INSTITUTE IS COMPRISED OF OTHER NON-PROFIT ENTITIES THAT CONTRIBUTE SIGNIFICANTLY TO THE HEALTH, WELLNESS, OUTCOMES OF THE PATIENTS SERVED BY KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC. IT IS DIFFICULT TO SEPARATE THE ENTITIES, AS THEY ALL CONTRIBUTE TO THE OUTCOMES OF PATIENTS AND FAMILIES SERVED BY THE HOSPITAL. AS WE CONSIDER HEALTH FACTORS AND OUTCOMES, WE KNOW THAT EVIDENCED-INFORMED/BASED INFORMATION USED TO PROVIDE THE CLINICAL CARE PROVIDED AT THE HOSPITAL, ARE DERIVED FROM RESEARCH ACTIVITIES GENERATED BY ACTIVITIES FROM THE HUGO W. MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER, INC. OUR PATIENTS LIVE IN COMMUNITIES WITH THEIR CAREGIVER(S). IN THE COMMUNITY ARE SCHOOLS, EARLY CHILDHOOD CENTERS, AND ADVOCACY. THESE SIT UNDER KENNEDY KRIEGER EDUCATION & COMMUNITY SERVICES, INC. AND THE EARLY CHILDHOOD DEVELOPMENT & EDUCATION CENTER, FORMERLY PACT, HELPING CHILDREN WITH SPECIAL NEEDS, INC.KENNEDY KRIEGER INSTITUTE IS AN INTERNATIONALLY RECOGNIZED INSTITUTION LOCATED IN BALTIMORE, MARYLAND DEDICATED TO IMPROVING THE LIVES OF CHILDREN AND ADOLESCENTS WITH DEVELOPMENTAL DISABILITIES THROUGH PATIENT CARE, SPECIAL EDUCATION, RESEARCH, AND PROFESSIONAL TRAINING. OUR CLINICAL PROGRAMS OFFER AN INTERDISCIPLINARY APPROACH IN TREATMENT TAILORED TO THE INDIVIDUAL NEEDS OF EACH CHILD. SERVICES INCLUDE OVER 40 OUTPATIENT CLINICS; NEUROBEHAVIORAL, REHABILITATION, AND PEDIATRIC FEEDING DISORDERS INPATIENT UNITS; PLUS SEVERAL HOME AND COMMUNITY PROGRAMS PROVIDING SERVICES TO ASSIST FAMILIES. IN ADDITION TO PROVIDING EVALUATION, REHABILITATION, EDUCATIONAL SERVICES AND CUTTING EDGE RESEARCH ON BEHALF OF CHILDREN WITH BRAIN, SPINAL CORD AND MUSCULOSKELETAL RELATED DISORDERS, THE HOSPITAL ALSO PROVIDES PROFESSIONAL TRAINING INCREASING THE NUMBER OF QUALIFIED SPECIALISTS IN THE UNITED STATES AND ABROAD. THE FOLLOWING ARE SOME OF THE AFFILIATES OF KENNEDY KRIEGER AND A SUMMARY OF THEIR RESPECTIVE ROLES:KENNEDY KRIEGER FOUNDATION, INC. - THE ORGANIZATION SUPPORTS THE CHARITABLE, SCIENTIFIC AND EDUCATIONAL PURPOSES OF THE KENNEDY KRIEGER GROUP BY CONDUCTING FUNDRAISING, MANAGING ENDOWMENT FUNDS, AND DISTRIBUTING THE FUNDS RAISED TO KENNEDY KRIEGER INSTITUTE AFFILIATES.HUGO W. MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER, INC. - THE RESEARCH INSTITUTE IS AN INTERNATIONALLY RECOGNIZED RESEARCH FACILITY FINDING ANSWERS TO PROBLEMS AND INJURIES THAT AFFECT A CHILD'S DEVELOPING BRAIN. RESEARCHERS HAVE MADE MEDICAL DISCOVERIES ABOUT THE HUMAN BRAIN AND HAVE INFLUENCED TREATMENT PROGRAMS FOR THOUSANDS OF INDIVIDUALS WITH DISABILITIES. THE MANY STUDIES CURRENTLY BEING CONDUCTED IN AREAS SUCH AS LEARNING DISABILITIES, DOWN SYNDROME, ADRENOLEUKODYSTROPHY, CEREBRAL PALSY AND AUTISM WILL AFFECT AN ENTIRELY NEW GENERATION.KENNEDY KRIEGER EDUCATION & COMMUNITY SERVICES, INC. - THIS AFFILIATE OPERATES SPECIAL EDUCATION SCHOOLS FOR CHILDREN WITH DISABILITIES; COMMUNITY OUTREACH PROGRAMS AND TRAINING; ADVOCACY PROGRAMS FOR SELF-ADVOCATES; AND POST SECONDARY PROGRAMS RELATED TO EMPLOYMENT, AND COMMUNITY INDEPENDENCE.PACT: HELPING CHILDREN WITH SPECIAL NEEDS, INC. DBA EARLY CHILDHOOD DEVELOPMENT AND EDUCATION CENTER - PROMOTES THE DEVELOPMENT OF TYPICALLY DEVELOPING AND CHILDREN WITH SPECIAL NEEDS AND THEIR FAMILIES THROUGH COMPREHENSIVE ASSESSMENTS, EARLY INTERVENTION SERVICES, FAMILY SUPPORT SERVICES, PARENT EDUCATION, COUNSELING, QUALITY EARLY LEARNING, AND PROFESSIONAL TRAINING. PART VI, LINE 7, REPORTS FILED WITH STATES MD 0 PACT HELPING CHILDREN WITH SPECIAL NEEDS INC 7000 TUDSBURY ROAD BALTIMORE MD 21244 521230183 501(C)(3) 360000 0 TO HELP AID IN THE OPERATIONS OF PACT: HELPING CHILDREN WITH SPECIAL NEEDS, INC. 1 0 PART I, LINE 2: GRANTS ARE ONLY MADE TO RELATED ENTITIES TO SUPPORT CHARITABLE PURPOSES. X 1 1 X X X X 1 0 0 0 0 0 0 0 0 BRADLEY L SCHLAGGAR MD PHD PRESIDENT & CEO 383925 244477 117303 74697 163682 104230 12189 7761 22113 14082 699212 445247 0 0 JAMES M ANDERS JR COO/ADMINISTRATOR/SECRETARY 387374 246674 117303 74697 137728 87704 12647 8053 12366 7874 667418 425002 0 0 SEYED ALI FATEMI MD MBA CHIEF MEDICAL OFFICER 245651 245651 53000 53000 17285 17284 10350 10350 1314 1313 327600 327598 0 0 MICHAEL F CATALDO PHD SVP/PROGRAM DIRECTOR 344245 0 150000 0 96942 0 20700 0 12820 0 624707 0 0 0 MICHAEL J NEUMAN SVP-FINANCE/TREASURER 266024 169400 39712 25288 34072 21697 12542 7986 11938 7602 364288 231973 0 0 JACQUELINE STONE CHIEF CLINICAL OFFICER 269901 134748 43355 21645 21048 10509 13807 6893 13033 6507 361144 180302 0 0 RAYMOND SHORT SVP - HUMAN RESOURCES 214948 136876 36657 23343 38444 24480 12647 8053 22755 14491 325451 207243 0 0 VALERIE BONHAM VP - GENERAL COUNSEL (PART YEAR) 70514 44902 21383 13617 215137 136996 4916 3131 8504 5415 320454 204061 0 0 REBECCA LANDA VP PROFESSOR 331141 0 55000 0 28827 0 20623 0 18329 0 453920 0 0 0 MELISSA TROVATO PROGRAM DIRECTOR, EX OFFICIO MEMBER 292366 0 45722 0 47163 0 20700 0 11178 0 417129 0 0 0 MICHELLE MELICOSTA ASSOC CHIEF MEDICAL OFFICER 293656 0 25000 0 33491 0 20063 0 32886 0 405096 0 0 0 STEVEN LINDAUER PROGRAM DIRECTOR 184033 0 142355 0 40637 0 20605 0 676 0 388306 0 0 0 JAY SALPEKAR DIRECTOR, ASSOC PROFESSOR 259294 0 86924 0 22525 0 17223 0 290 0 386256 0 0 0 ROMA VASA PROGRAM DIRECTOR 280597 0 18047 0 42720 0 17985 0 9770 0 369119 0 0 0 HAROLYN BELCHER MD MHS FORMER PRES MED STAFF/PROG DIR 273772 0 15000 0 18537 0 17703 0 21540 0 346552 0 0 0 PAUL LIPKIN FORMER PRES MED STAFF/PROG DIR 283622 0 539 0 20675 0 16042 0 20974 0 341852 0 0 0 CARMEN LOPEZ-ARVISU MD FORMER PRES MED STAFF 243188 0 51436 0 30007 0 16515 0 676 0 341822 0 0 0 CRISTINA SADOWSKY FORMER PRES MED STAFF/PROG DIR 279695 0 0 0 16093 0 15482 0 19046 0 330316 0 0 0 NANCY S GRASMICK ED D FORMER CHAIRPERSON 0 93212 0 0 0 0 0 10253 0 0 0 103465 0 0 PART I, LINE 1A OFFICERS AND KEY EMPLOYEES WERE PROVIDED ADDITIONAL COMPENSATION TO OFFSET THE TAX IMPACT OF EXECUTIVE LIFE INSURANCE AND LONG TERM DISABILITY PREMIUMS MADE ON THEIR BEHALF. THIS BENEFIT WAS TREATED AS TAXABLE COMPENSATION TO THESE INDIVIDUALS. PART I, LINE 4A DURING CALENDAR YEAR 2024, VALERIE BONHAM RECEIVED SEVERANCE PAYMENTS TOTALING $327,600. FORM 990, PART VI, SECTION A, LINE 6 THE SOLE MEMBER OF THE KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC. IS THE KENNEDY KRIEGER INSTITUTE, INC. (THE "INSTITUTE"), A SECTION 501(C)(3) ENTITY THAT SERVES AS THE PARENT CORPORATION OF THE INTEGRATED INSTITUTION. FORM 990, PART VI, SECTION A, LINE 7A THE SOLE MEMBER OF THE KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC. IS THE KENNEDY KRIEGER INSTITUTE, INC. (THE "INSTITUTE"), A SECTION 501(C)(3) ENTITY THAT SERVES AS THE PARENT CORPORATION OF THE INTEGRATED INSTITUTION. THE INSTITUTE HAS THE POWER TO ELECT AND REMOVE BOARD MEMBERS OF THE ORGANIZATION. FORM 990, PART VI, SECTION A, LINE 7B THE SOLE MEMBER OF THE KENNEDY KRIEGER CHILDREN'S HOSPITAL, INC. IS THE KENNEDY KRIEGER INSTITUTE, INC. THE KENNEDY KRIEGER INSTITUTE, INC. HAS THE POWER AND RESPONSIBILITY TO APPROVE DECISIONS OF THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11B THE IRS FORM 990 WAS PREPARED FROM THE AUDITED FINANCIAL STATEMENTS FOR KENNEDY KRIEGER INSTITUTE, INC. AND AFFILIATES WHICH WAS APPROVED BY THE AUDIT AND FINANCE COMMITTEE OF THE BOARD AND THE BOARD OF DIRECTORS. A FINAL VERSION OF FORM 990 HAS BEEN MADE AVAILABLE TO THE AUDIT AND FINANCE COMMITTEE AND THE BOARD OF DIRECTORS THROUGH A WEB PORTAL OR EMAIL ATTACHMENT PRIOR TO ITS FILING. FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS SUBMIT A CONFLICT OF INTEREST DISCLOSURE QUESTIONNAIRE UPON ELECTION TO THE BOARD AND ARE REQUIRED TO INFORM MANAGEMENT OF ANY CONFLICT ARISING DURING THEIR TERM. WHEN AN ACTUAL CONFLICT INVOLVING A BOARD MEMBER IS IDENTIFIED, THE DIRECTOR WILL ABSTAIN FROM VOTING AND NOT USE HIS/HER PERSONAL INFLUENCE ON THE MATTER. EMPLOYED OFFICERS AND KEY EMPLOYEES SUBMIT A CONFLICT OF INTEREST DISCLOSURE QUESTIONNAIRE EVERY 2 YEARS BEGINNING IN 2025 TO DISCLOSE EXISTING OR POTENTIAL CONFLICTS THAT MAY RELATE TO FUTURE DECISION MAKING. ANY INDENTIFIED CONFLICTS WITH THESE OFFICERS AND KEY EMPLOYEES ARE BROUGHT TO THE BOARD CHAIRMAN. RELATIONSHIPS WITH OTHER PROVIDERS, EDUCATIONAL INSTITUTIONS, MANUFACTURERS AND PAYORS ARE REVIEWED TO DETERMINE WHETHER CONFLICTS OF INTEREST EXIST. ANY CONFLICTS ARE ADDRESSED WHEN THEY ARISE. POLICIES DESIGNED TO IDENTIFY AND PREVENT POTENTIAL CONFLICTS OF INTEREST PERTAINING TO CONTRACTUAL BUSINESS RELATIONSHIPS ARE ADDRESSED THROUGH THE POLICY ON FAIR BUSINESS PRACTICES. FORM 990, PART VI, SECTION B, LINE 15 THE PRESIDENT/CEO AND OTHER SENIOR EXECUTIVES COMPENSATION IS REVIEWED AND APPROVED ANNUALLY BY THE EXECUTIVE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS. INDEPENDENTLY DEVELOPED EXECUTIVE COMPENSATION SURVEYS ARE USED TO DETERMINE REASONABLENESS OF COMPENSATION LEVELS. FORM 990, PART VI, SECTION C, LINE 19 KKCH'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, FORM 990 AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. IN ADDITION, CERTAIN FINANCIAL DOCUMENTS ARE AVAILABLE THROUGH THE ORGANIZATION'S WEBSITE. ALSO, A COPY OF THE FORM 990 IS AVAILABLE VIA WWW.GUIDESTAR.ORG. FORM 990, PART XI, LINE 9: CHANGE IN FUNDED STATUS OF DEFINED BENEFIT PLAN 2,594,623. FORM 990, PAGE 12, PART XII, LINE 2C THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. FORM 990 - INFORMATION REGARDING TAX-EXEMPT BOND ISSUE THE ORGANIZATION IS PART OF AN OBLIGATED GROUP UNDER CERTAIN TAX-EXEMPT BOND ISSUES. SCHEDULE K HAS BEEN COMPLETED IN ITS ENTIRETY FOR MADISON STREET PROPERTIES, INC. KENNEDY KRIEGER INSTITUTE INC 707 N BROADWAY BALTIMORE MD 21205 521524965 PARENT ORGANIZATION TO RELATED ENTITIES; SUPPORTS HEALTHCARE MD 501(C)(3) LINE 12C, III-FI N/A 0 HUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC 707 N BROADWAY BALTIMORE MD 21205 521524967 BIO-MEDICAL RESEARCH MD 501(C)(3) LINE 4 KENNEDY KRIEGER INSTITUTE INC 0 KENNEDY KRIEGER EDUCATION & COMMUNITY SERVICES INC 707 N BROADWAY BALTIMORE MD 21205 521753040 SPECIAL EDUCATION SCHOOLS AND COMMUNITY SUPPORT PROGRAMS MD 501(C)(3) LINE 7 KENNEDY KRIEGER INSTITUTE INC 0 KENNEDY KRIEGER ASSOCIATES INC 707 N BROADWAY BALTIMORE MD 21205 521633229 SUPPORTS KENNEDY KRIEGER INSTITUTE AND ITS AFFILIATES MD 501(C)(3) LINE 12B, II KENNEDY KRIEGER INSTITUTE INC 0 MADISON STREET PROPERTIES INC 707 N BROADWAY BALTIMORE MD 21205 521949813 PROPERTY HOLDING COMPANY MD 501(C)(3) LINE 12B, II KENNEDY KRIEGER FOUNDATION INC 0 PACT HELPING CHILDREN WITH SPECIAL NEEDS INC 7000 TUDSBURY ROAD BALTIMORE MD 21244 521230183 MEDICAL DAY CARE & OTHER SERVICES FOR CHILDREN WITH SPECIAL NEEDS MD 501(C)(3) LINE 7 KENNEDY KRIEGER INSTITUTE INC 0 KENNEDY KRIEGER FOUNDATION INC 707 N BROADWAY BALTIMORE MD 21205 521734695 RAISES FUNDS TO SUPPORT KENNEDY KRIEGER INSTITUTE AND ITS AFFILIATES MD 501(C)(3) LINE 7 KENNEDY KRIEGER INSTITUTE INC 0 MADISON GROUP VENTURES 707 N BROADWAY BALTIMORE MD 21205 900743111 RESEARCH & DEVELOPMENT MD N/A C 0 CHARITABLE REMAINDER TRUSTS (3) CHARITABLE REMAINDER TRUSTS MD N/A T 0 0 1 1 1 1 0 0 0 0 0 1 0 1 1 1 1 1 0 1 PACT HELPING CHILDREN WITH SPECIAL NEEDS INC B 360000 FMV KENNEDY KRIEGER FOUNDATION INC C 1102465 FMV MADISON STREET PROPERTIES INC K 31413643 FMV