SCLERODERMA RESEARCH FOUNDATION: Form 990, tax year 2025
View the entire original 990 at ProPublica ↗
- Organization
- SCLERODERMA RESEARCH FOUNDATION (EIN 68-0087234)
- Tax period
- 2025-01-01 to 2025-12-31
- Filed
- 2026-06-18
- IRS object ID
- 202601699349301445
- Schema version
- 2025v4.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2026-06-18T16:09:53-07:00 | ReturnTs |
| Tax Period End | 2025-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Crosby & Kaneda CPAs LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 548 Market St PMB 97503 | AddressLine1Txt |
| City | San Francisco | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 94104 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2025-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 680087234 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Scleroderma Research Foundation | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SCLE | BusinessNameControlTxt |
| Phone | 4158349444 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 220 Montgomery St Ste 484 | AddressLine1Txt |
| City | San Francisco | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 94104 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Luke Evnin PhD | PersonNm |
| Person Title | Chairman | PersonTitleTxt |
| Signature | 2026-06-18 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Felix Gorrindo | PreparerPersonNm |
| PTIN | P01658413 | PTIN |
| Phone | 5108352727 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2025 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Joanne Gold | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 220 Montgomery St Ste 484 | AddressLine1Txt |
| City | San Francisco | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 94104 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $13,278,097 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.srfcure.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1987 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | The SRF is laser-focused on finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the worlds top scientists and institutions to drive innovation, and raising awareness about this rare disease. | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 10 | TotalEmployeeCnt |
| Total Volunteers | 255 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $4,457,144 | PYContributionsGrantsAmt |
| CY Contributions Grants | $5,730,652 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $6,657,855 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $5,907,254 | CYProgramServiceRevenueAmt |
| PY Investment Income | $1,211,667 | PYInvestmentIncomeAmt |
| CY Investment Income | $1,584,991 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$153,505 | PYOtherRevenueAmt |
| CY Other Revenue | -$91,808 | CYOtherRevenueAmt |
| PY Total Revenue | $12,173,161 | PYTotalRevenueAmt |
| CY Total Revenue | $13,131,089 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $3,392,838 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $3,733,185 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,606,446 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,698,512 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $575,396 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $4,623,237 | PYOtherExpensesAmt |
| CY Other Expenses | $4,893,828 | CYOtherExpensesAmt |
| PY Total Expenses | $9,622,521 | PYTotalExpensesAmt |
| CY Total Expenses | $10,325,525 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $2,550,640 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $2,805,564 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $32,999,784 | TotalAssetsBOYAmt |
| Total Assets EOY | $42,239,970 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $18,916,787 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $25,351,409 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $14,082,997 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $16,888,561 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $4,446,116 | ExpenseAmt |
| Desc | CONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for scleroderma. CONQUEST is designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from phase 2b to phase 3 clinical trials. CONQUEST will make an enduring contribution to the scleroderma community by creating an ecosystem designed to enable rapid and efficient development of novel drugs for scleroderma patients. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $4,314,557 | ExpenseAmt |
| Grant | $3,733,185 | GrantAmt |
| Revenue | $5,907,254 | RevenueAmt |
| Desc | The mission of the Scleroderma Research Foundation (SRF) is to find, fund, and facilitate the most promising, highest-quality research to cure scleroderma. We recruit the best and the brightest researchers to understand the causes, discover treatments, and ultimately eradicate this disease . At the SRF, research is at the center of all we do. Our Research Program is governed by the Board of Directors and supported by a volunteer Scientific Advisory Board comprised of some of the world's most highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing improved therapies to help patients live longer, fuller lives - and, ultimately, to find a cure for scleroderma. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $639,412 | ExpenseAmt |
| Desc | SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed. We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date, trusted and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | The SRF Research Program: Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $9,400,085 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (true) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 64 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 10 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Form8282 Filed | 0 | Form8282FiledCnt |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | false | MinutesOfGoverningBodyInd |
| Minutes Of Committees | false | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Cindy Young Neha Pamboo | PersonNm |
| Phone | 4158349444 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 220 Montgomery St Ste 484 | AddressLine1Txt |
| City | SF | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 94104 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (18 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|
| Gregory Gordon | |||||||
| Chief Medical Officer | 40.00 | 0.00 | $526,440 | $0 | $935 | ||
| Joanne Gold | |||||||
| Executive Dir. | 40.00 | 0.00 | $220,205 | $0 | $18,062 | Yes (X) | |
| Gloria Blecha | |||||||
| VP Communications | 40.00 | 0.00 | $179,263 | $0 | $15,879 | ||
| Hannah Young | |||||||
| Dir. Communication | 40.00 | 0.00 | $130,689 | $0 | $7,851 | ||
| Neha Pamboo | |||||||
| Sr. Acct. Manager | 40.00 | 0.00 | $118,965 | $0 | $10,521 | ||
| Anoushka Donnelley | |||||||
| Dir. Philanthropy | 40.00 | 0.00 | $112,854 | $0 | $7,656 | ||
| Luke Evnin PhD | |||||||
| Chairman | 40.00 | 0.00 | $0 | $0 | $0 | Yes (X) | Yes (X) |
| Susan Feniger | |||||||
| Secretary | 10.00 | 0.00 | $0 | $0 | $0 | Yes (X) | Yes (X) |
| Deann Wright | |||||||
| Treasurer | 10.00 | 0.00 | $0 | $0 | $0 | Yes (X) | Yes (X) |
| Omar Baker MD | |||||||
| Board Member | 2.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Sharon Dobie MD | |||||||
| Board Member | 2.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Eric Kau MD | |||||||
| Board Member | 2.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| David Knoller | |||||||
| Board Member | 1.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Violetta Merin | |||||||
| Board Member | 1.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Mark Scher | |||||||
| Board Member | 1.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Regina Hall | |||||||
| Board Member | 1.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Jeff Seaman | |||||||
| Board Member | 2.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Dan Schimberg | |||||||
| Board Member | 2.00 | 0.00 | $0 | $0 | $0 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,288,416 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $60,904 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 6 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| Kelly Oliver | |||||
| 838 61st St | Oakland | CA | 94608 | CONQUEST consultant | $390,625 |
| Lauretta Sue Fredrick | |||||
| 1121 Pinehurst Dr | Chapel Hill | NC | 27517 | CONQUEST consultant | $288,000 |
| Amy Swanson | |||||
| 2111 W Waveland Avenue | Chicago | IL | 60618 | CONQUEST consultant | $227,500 |
| Kevin OShea | |||||
| 1500 Great Highway | San Francisco | CA | 94122 | CONQUEST consultant | $209,238 |
| Dinesh Khanna | |||||
| 3930 Waldenwood Drive | Ann Arbor | MI | 48105 | CONQUEST consultant | $195,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 11 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $16,685 | FederatedCampaignsAmt |
| Fundraising | $1,147,628 | FundraisingAmt |
| All Other Contributions | $4,566,339 | AllOtherContributionsAmt |
| Noncash Contributions | $684,425 | NoncashContributionsAmt |
| Total Contributions | $5,730,652 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Clinical trial platform | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $5,907,254 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $5,907,254 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $5,907,254 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,584,991 | TotalRevenueColumnAmt |
| Exclusion | $1,584,991 | ExclusionAmt |
Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $55,200 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,147,628 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $147,008 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$91,808 | TotalRevenueColumnAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $0 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $13,131,089 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $5,907,254 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $1,584,991 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,683,185 | TotalAmt |
| Program Services | $3,683,185 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $50,000 | TotalAmt |
| Program Services | $50,000 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $838,486 | TotalAmt |
| Program Services | $701,146 | ProgramServicesAmt |
| Management And General | $68,670 | ManagementAndGeneralAmt |
| Fundraising | $68,670 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $713,417 | TotalAmt |
| Program Services | $524,506 | ProgramServicesAmt |
| Management And General | $75,916 | ManagementAndGeneralAmt |
| Fundraising | $112,995 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $58,029 | TotalAmt |
| Program Services | $43,037 | ProgramServicesAmt |
| Management And General | $5,268 | ManagementAndGeneralAmt |
| Fundraising | $9,724 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $88,580 | TotalAmt |
| Program Services | $66,530 | ProgramServicesAmt |
| Management And General | $9,489 | ManagementAndGeneralAmt |
| Fundraising | $12,561 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $188,128 | TotalAmt |
| Program Services | $187,828 | ProgramServicesAmt |
| Management And General | $300 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $160,243 | TotalAmt |
| Management And General | $160,243 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,947,747 | TotalAmt |
| Program Services | $2,849,991 | ProgramServicesAmt |
| Management And General | $1,630 | ManagementAndGeneralAmt |
| Fundraising | $96,126 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $211,369 | TotalAmt |
| Program Services | $166,787 | ProgramServicesAmt |
| Management And General | $4,195 | ManagementAndGeneralAmt |
| Fundraising | $40,387 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $24,055 | TotalAmt |
| Program Services | $9,202 | ProgramServicesAmt |
| Management And General | $11,579 | ManagementAndGeneralAmt |
| Fundraising | $3,274 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $113,032 | TotalAmt |
| Program Services | $95,808 | ProgramServicesAmt |
| Management And General | $4,429 | ManagementAndGeneralAmt |
| Fundraising | $12,795 | FundraisingAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $88,272 | TotalAmt |
| Program Services | $71,595 | ProgramServicesAmt |
| Management And General | $4,389 | ManagementAndGeneralAmt |
| Fundraising | $12,288 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $845,514 | TotalAmt |
| Program Services | $829,002 | ProgramServicesAmt |
| Management And General | $2,597 | ManagementAndGeneralAmt |
| Fundraising | $13,915 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,880 | TotalAmt |
| Program Services | $9,623 | ProgramServicesAmt |
| Management And General | $594 | ManagementAndGeneralAmt |
| Fundraising | $1,663 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $114,580 | TotalAmt |
| Program Services | $111,845 | ProgramServicesAmt |
| Management And General | $745 | ManagementAndGeneralAmt |
| Fundraising | $1,990 | FundraisingAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | FundraisingFundraisingAmt |
|---|---|---|
| Special event expenses | $143,786 | $143,786 |
| Bank and card fees | $33,105 | $33,105 |
| State registrations | $12,117 | $12,117 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,325,525 | TotalAmt |
| Program Services | $9,400,085 | ProgramServicesAmt |
| Management And General | $350,044 | ManagementAndGeneralAmt |
| Fundraising | $575,396 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,929,113 | BOYAmt |
| EOY | $21,303,569 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,012,726 | BOYAmt |
| EOY | $2,993 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,269,620 | BOYAmt |
| EOY | $4,760,968 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $203,741 | BOYAmt |
| EOY | $132,659 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $59,398 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $51,743 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $19,535 | BOYAmt |
| EOY | $7,655 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,267,844 | BOYAmt |
| EOY | $15,792,402 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $297,205 | BOYAmt |
| EOY | $239,724 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $32,999,784 | BOYAmt |
| EOY | $42,239,970 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,245,249 | BOYAmt |
| EOY | $7,837,334 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $500,000 | BOYAmt |
| EOY | $574,148 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $156,432 | BOYAmt |
| EOY | $100,000 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,015,106 | BOYAmt |
| EOY | $16,839,927 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,916,787 | BOYAmt |
| EOY | $25,351,409 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,823,997 | BOYAmt |
| EOY | $16,562,026 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $259,000 | BOYAmt |
| EOY | $326,535 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $14,082,997 | BOYAmt |
| EOY | $16,888,561 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $32,999,784 | BOYAmt |
| EOY | $42,239,970 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $2,805,564 | ReconcilationRevenueExpnssAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,549,644 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,376,802 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,932,952 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,457,144 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,730,652 | CurrentTaxYearAmt |
| Total | $23,047,194 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,549,644 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,376,802 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,932,952 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,457,144 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,730,652 | CurrentTaxYearAmt |
| Total | $23,047,194 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $5,164,940 | SubstantialContributorsTotAmt |
| Public Support Total170 | $17,882,254 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $98,683 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $116,754 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $309,318 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $781,524 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,102,750 | CurrentTaxYearAmt |
| Total | $2,409,029 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $16,529 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $7,255 | CurrentTaxYearMinus2YearsAmt |
| Total | $23,784 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $25,480,007 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $16,582,873 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.70180 | PublicSupportCY170Pct |
| Public Support PY170 | 0.70950 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $2,912,843 | BeginningYearBalanceAmt |
| Contributions | $306,163 | ContributionsAmt |
| Other Expenditures | $302,000 | OtherExpendituresAmt |
| End Year Balance | $2,917,006 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $2,953,901 | BeginningYearBalanceAmt |
| Contributions | $190,225 | ContributionsAmt |
| Other Expenditures | $231,283 | OtherExpendituresAmt |
| End Year Balance | $2,912,843 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $3,069,771 | BeginningYearBalanceAmt |
| Contributions | $276,423 | ContributionsAmt |
| Other Expenditures | $392,293 | OtherExpendituresAmt |
| End Year Balance | $2,953,901 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributions | $3,453,956 | ContributionsAmt |
| Other Expenditures | $384,185 | OtherExpendituresAmt |
| End Year Balance | $3,069,771 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 1.00000 | BoardDesignatedBalanceEOYPct |
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
| Related Org List Sch R | false | RelatedOrgListSchRInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $59,398 | OtherCostOrOtherBasisAmt |
| Depreciation | $51,743 | DepreciationAmt |
| Book Value | $7,655 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $7,655 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| Due to partners | $16,593,991 |
| Operating lease liability | $245,936 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $16,839,927 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $13,131,089 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Subtotal | $13,131,089 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $13,131,089 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $10,325,525 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $10,325,525 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $10,325,525 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part V, Line 4: Intended uses of the endowment fund. | The Bob Saget Memorial Scleroderma Research Fund was established as a board designated fund to hold contributions made to the Organization in tribute to Bob Saget and will be used to fund research grants. The intention of the board is that the fund maintain a minimum balance of $500,000. |
| Part X : FIN48 Footnote | The Internal Revenue Service and the California Franchise Tax Board have determined that the Organization is exempt from federal and state income taxes under IRC 501(c)(3) and California RTC 23701(d). The Organization has evaluated its current tax positions as of December 31, 2025 and is not aware of any significant uncertain tax positions for which a reserve would be necessary. The Organizations tax returns are generally subject to examination by federal and state taxing authorities for three and four years, respectively, after they are filed. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | Europe | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 0 | EmployeeCnt |
| Type Of Activities Conducted | Grants to recipients | TypeOfActivitiesConductedTxt |
| Specific Services Provided | Project funding | SpecificServicesProvidedTxt |
| Region Total Expenditures | $50,000 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $50,000 | SubtotalSpentAmt |
| Total Spent | $50,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | Europe | RegionTxt |
| Purpose Of Grant | Project funding | PurposeOfGrantTxt |
| Cash Grant | $50,000 | CashGrantAmt |
| Manner Of Cash Disbursement | Wire | MannerOfCashDisbursementTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US | FormAndLineReferenceDesc |
| Explanation | As part of the extensive continuing grant application process, grantees are required to provide a summary accounting of the grant from the prior funding year along with any remaining balances. This information, along with the proposed budget for the next funding cycle is reviewed by our Scientific Advisory Board (SAB) during the annual scientific workshop. The Board of Directors meets to discuss the SAB recommendations and funding decisions are agreed upon. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Agrmt Prof Fundraising Acty | false | AgrmtProfFundraisingActyInd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Cool Comedy | Event1Nm |
| Gross Receipts Event1 | $1,202,828 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,147,628 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $55,200 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $15,000 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $108,984 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $4,680 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $18,344 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $1,202,828 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,147,628 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $55,200 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $15,000 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $108,984 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $4,680 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $18,344 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $147,008 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$91,808 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (26 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| Boston Childrens Hospital Co | ||||||||
| 410 Park Dr Ste 602 | Boston | MA | 02215 | 042774441 | 501c3 | $147,103 | $0 | Research |
| Columbia University | ||||||||
| PO Box 29789 Gen Post Office | New York | NY | 10087 | 135598093 | 501c3 | $84,376 | $0 | Research |
| Duke University | ||||||||
| PO Box 602651 | Charlotte | NC | 28260 | 560532129 | 501c3 | $103,057 | $0 | Research |
| Georgetown Univ Medical Ctr | ||||||||
| PO Box 571164 | Washington | DC | 20057 | 522218584 | 501c3 | $21,769 | $0 | Research |
| Hospital for Special Surgery | ||||||||
| 535 E 70th St | New York | NY | 10021 | 131624135 | 501c3 | $191,356 | $0 | Research |
| John Hopkins University | ||||||||
| 12529 Collections Center Dr | Chicago | IL | 60693 | 520595110 | 501c3 | $212,416 | $0 | Research |
| Massachusetts GeneralHospital | ||||||||
| 55 Fruit St YAW2C | Boston | MA | 02114 | 042697983 | 501c3 | $26,638 | $0 | Research |
| Mayo Clinic | ||||||||
| PO Box 860334 | Minneapolis | MN | 55486 | 416011702 | 501c3 | $16,482 | $0 | Research |
| Medical Univ of SouthCarolina | ||||||||
| 1 South Park Cir B1 Ste 506 | Charleston | SC | 29407 | 576028985 | 501c3 | $11,344 | $0 | Research |
| Northwestern University | ||||||||
| 633 N St Clair 18-041 | Chicago | IL | 60611 | 362167817 | 501c3 | $78,587 | $0 | Research |
| NYU Grossman School Medicine | ||||||||
| 435 30th St 8th Fl | New York | NY | 10016 | 135562309 | 501c3 | $150,000 | $0 | Research |
| Regents of the Univ Minnesota | ||||||||
| NW 5957 PO Box 1450 | Minneapolis | MN | 55485 | 208367098 | 501c3 | $12,068 | $0 | Research |
| Regents of UCLA | ||||||||
| 1125 Murphy Hall | Los Angeles | CA | 90095 | 956006143 | Government | $114,950 | $0 | Research |
| Regents of Univ of CA-UCSF | ||||||||
| 505 Parnassus Ave Box 0111 | San Francisco | CA | 94143 | 946036493 | Government | $466,635 | $0 | Research |
| Regents of Univ of Michigan | ||||||||
| Box 223131 | Pittsburgh | PA | 15251 | 386006309 | 501c3 | $218,440 | $0 | Research |
| Stanford School of Medicine | ||||||||
| PO Box 44253 | San Francisco | CA | 94144 | 941156365 | 501c3 | $459,985 | $0 | Research |
| The Feinstein Institute | ||||||||
| 350 Community Drive | Manhasset | CA | 11030 | 112673595 | 501c3 | $110,000 | $0 | Research |
| Trustees of Dartmouth College | ||||||||
| 11 Rope Ferry Rd Ste 6210 | Hanover | NH | 03755 | 020222111 | 501c3 | $132,338 | $0 | Research |
| Trustees of the Univ of PA | ||||||||
| PO Box 785541 | Philadelphia | PA | 19178 | 231352685 | 501c3 | $25,810 | $0 | Research |
| Univ of TX Health Science Ctr | ||||||||
| PO Box 301418 | Dallas | TX | 75303 | 741761309 | Government | $314,255 | $0 | Research |
| University of Colorado Denver | ||||||||
| 13001 East 17th Place Bldg | Aurora | CO | 80045 | 454552631 | 501c3 | $32,197 | $0 | Research |
| University of Pittsburgh | ||||||||
| 3100 Cathedral of Learning | Pittsburgh | PA | 15260 | 250965591 | 501c3 | $176,500 | $0 | Research |
| University of Utah | ||||||||
| PO Box 581374 | Salt Lake City | UT | 84158 | 876000525 | Government | $365,618 | $0 | Research |
| USC | ||||||||
| S Figueroa St Ste 102 | Los Angeles | CA | 90089 | 951642394 | 501c3 | $75,000 | $0 | Research |
| Vanderbilt University Med Ctr | ||||||||
| PO Box 121236 | Dallas | TX | 75312 | 352528741 | 501c3 | $93,884 | $0 | Research |
| Yale University | ||||||||
| PO Box 208011 TAC 5669 | New Haven | CT | 06520 | 060646973 | 501c3 | $125,000 | $0 | Research |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 22 | Total501c3OrgCnt |
| Total Other Org | 4 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Grantmaker's Description of How Grants are Used | FormAndLineReferenceDesc |
| Explanation | As part of the extensive continuing grant application process, grantees are required to provide a summary accounting of the grant from the prior funding year along with any remaining balances. This information, along with the proposed budget for the next funding cycle is reviewed by our Scientific Advisory Board (SAB) during the annual scientific workshop. The Board of Directors meets to discuss the SAB recommendations and funding decisions are agreed upon. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt |
|---|---|---|---|---|
| Gloria Blecha | ||||
| VP Communications | $165,984 | $13,279 | $15,879 | $195,142 |
| Gregory Gordon | ||||
| Chief Medical Officer | $401,640 | $124,800 | $935 | $527,375 |
| Joanne Gold | ||||
| Executive Dir. | $197,200 | $23,005 | $18,062 | $238,267 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 6 | ContributionCnt |
| Noncash Contributions Rpt F990 | $643,585 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | Auction items | Desc |
| Contribution | 6 | ContributionCnt |
| Noncash Contributions Rpt F990 | $40,840 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | false | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | false | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section A, Line 2 | Luke Evnin (Chairman) is married to Deann Wright (Treasurer). |
| Form 990, Part VI, Section B, Line 11b | The Executive Director distributes it to the entire Board of Directors to review. |
| Form 990, Part VI, Section B, Line 12c | Conflict of interest policy is discussed with all BOD members in annual review of Bylaws, members are asked to disclose any updates or changes that may conflict with the stated policy. |
| Form 990, Part VI, Section B, Line 15a | Market comparisons were done during initial recruitment. Recommendations for bonus/salary increases were based on industry standards and discussed/voted on during an executive session of the BOD meeting. |
| Form 990, Part VI, Section B, Line 15b | Process included review of publicly available compensation data, discussions with BOD to set salary max and bonus allowances as part of annual budgeting. If there is a request to exceed budgeted salary, BOD approval is required by vote. |
| Form 990, Part VI, Section C, Line 19 | Financial statements, bylaws, and conflict of interest policy are available upon request |
| 990 Part IX, Statement of Functional Expenses | In addition to the activity reflected in the financial statements, the Organization launched a platform clinical trial in 2023. As part of the launch, the Organization became responsible for significant clinical trial costs. Under agreements with external partnering corporations, the Organization receives funds in advance to be paid for clinical trial costs. The Organization reports such funds as Due to Clinical Trial. $10,427,237 in funds received and disbursed were related to this platform clinical trial; they were accounted for on a pass-through basis during the year ended December 31, 2025. |