NATIONAL ORGANIZATION FOR RARE DISORDERS INC: Form 990, tax year 2025
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL ORGANIZATION FOR RARE DISORDERS INC (EIN 13-3223946)
- Tax period
- 2025-01-01 to 2025-12-31
- Filed
- 2026-05-28
- IRS object ID
- 202621489349300522
- Schema version
- 2025v4.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2026-05-28T09:31:47-05:00 | ReturnTs |
| Tax Period End | 2025-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 042571780 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | AAFCPAS INC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 50 WASHINGTON STREET | AddressLine1Txt |
| City | WESTBOROUGH | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01581 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2025-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 133223946 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NATIONAL ORGANIZATION FOR RARE | BusinessNameLine1Txt |
| Business Name Line2 | DISORDERS INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | NATI | BusinessNameControlTxt |
| Phone | 6172497300 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 120 LONGWATER DRIVE 105 | AddressLine1Txt |
| City | NORWELL | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 02061 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | NEETA KOTECHA | PersonNm |
| Person Title | VP AND CHIEF FINANCIAL OFFICER | PersonTitleTxt |
| Phone | 6172497300 | PhoneNum |
| Signature | 2026-05-27 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | CAITLIN LIMOGES CPA | PreparerPersonNm |
| PTIN | P01633588 | PTIN |
| Phone | 5083669100 | PhoneNum |
| Preparation | 2026-05-27 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2025 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | NEETA KOTECHA | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 120 LONGWATER DRIVE 105 | AddressLine1Txt |
| City | NORWELL | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 02061 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $43,838,797 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.RAREDISEASES.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY. | ActivityOrMissionDesc |
| Voting Members Governing Body | 16 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 15 | VotingMembersIndependentCnt |
| Total Employee | 116 | TotalEmployeeCnt |
| Total Volunteers | 1308 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $40,390,497 | PYContributionsGrantsAmt |
| CY Contributions Grants | $23,944,805 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $7,674,762 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $7,935,317 | CYProgramServiceRevenueAmt |
| PY Investment Income | $2,611,539 | PYInvestmentIncomeAmt |
| CY Investment Income | $2,697,074 | CYInvestmentIncomeAmt |
| PY Other Revenue | $0 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $50,676,798 | PYTotalRevenueAmt |
| CY Total Revenue | $34,577,196 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $23,396,846 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $22,081,890 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $12,577,235 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $12,244,648 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $3,705,242 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $7,060,381 | PYOtherExpensesAmt |
| CY Other Expenses | $6,074,573 | CYOtherExpensesAmt |
| PY Total Expenses | $43,034,462 | PYTotalExpensesAmt |
| CY Total Expenses | $40,401,111 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $7,642,336 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$5,823,915 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $72,321,740 | TotalAssetsBOYAmt |
| Total Assets EOY | $66,900,297 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $3,745,803 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $3,268,208 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $68,575,937 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $63,632,089 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $25,200,680 | ExpenseAmt |
| Grant | $22,081,890 | GrantAmt |
| Revenue | $4,936,057 | RevenueAmt |
| Desc | NORD'S PATIENT ASSISTANCE PROGRAMS PROVIDE ELIGIBLE INDIVIDUALS WITH FINANCIAL ASSISTANCE TO SUPPORT THE BROAD RANGE OF CARE AND TREATMENT NEEDS ASSOCIATED WITH MANAGING A RARE DISEASE. EACH DISEASE-SPECIFIC PROGRAM IS DESIGNED TO ADDRESS THE NUANCES OF THE INDIVIDUAL CONDITION AND THE UNIQUE NEEDS OF ITS PATIENT COMMUNITY. ASSISTANCE MAY INCLUDE SUPPORT FOR HEALTH INSURANCE PREMIUMS, COPAYMENTS, AND COINSURANCE, AS WELL AS CERTAIN COVERED OUT-OF-POCKET MEDICAL EXPENSES. NORD'S APPROACH ENSURES THAT ELIGIBLE INDIVIDUALS, WHETHER COMMERCIALLY INSURED, PUBLICLY INSURED, UNDERINSURED, OR UNINSURED, RECEIVE THE FINANCIAL SUPPORT NECESSARY TO ACCESS THE CARE AND TREATMENT PRESCRIBED BY THEIR HEALTH CARE PROVIDER(S). IN 2025, NORD'S PATIENT ASSISTANCE PROGRAMS PROVIDED FINANCIAL ASSISTANCE TO 6,880 INDIVIDUALS, INCLUDING 6,602 INDIVIDUALS SUPPORTED THROUGH OUR PAP AND 278 INDIVIDUALS WHO RECEIVED TRAVEL AND LODGING ASSISTANCE TO PARTICIPATE IN CLINICAL TRIALS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,921,195 | ExpenseAmt |
| Revenue | $2,046,711 | RevenueAmt |
| Desc | NORD'S EDUCATIONAL INITIATIVES STRIVE TO EMPOWER PATIENTS AND THEIR FAMILIES, INFORM AND EDUCATE STUDENTS ACROSS DISCIPLINES FROM HIGH SCHOOL THROUGH GRADUATE SCHOOL, AND SUPPORT THE VITALLY IMPORTANT WORK OF PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS IN IMPROVING THE RECOGNITION OF SYMPTOMS OF RARE DISEASE AND EARLY, ACCURATE DIAGNOSIS AS WELL AS IMPROVING CLINICIAN KNOWLEDGE AND COMPETENCE IN TREATING RARE DISEASES. THIS IS DONE THROUGH THE DEVELOPMENT OF NORD'S RARE DISEASE DATABASE OF MORE THAN 1,480 COMPREHENSIVE EXPERT-WRITTEN REPORTS ON SPECIFIC RARE DISORDERS, THE DELIVERY OF RARE DISEASE VIDEOS AND WEBINARS, AND THROUGH ROBUST EDUCATIONAL PROGRAMMING WITH NORD'S CME PROGRAM AND AT THE NORD RARE DISEASES AND ORPHAN PRODUCTS BREAKTHROUGH SUMMIT. IN 2025, 759 PEOPLE ATTENDED THE NORD SUMMIT IN PERSON, AND 60 PEOPLE REGISTERED TO ATTEND VIRTUALLY. ALSO, IN 2025, THERE WERE OVER 15 MILLION VISITORS TO NORD'S RARE DISEASE DATABASE. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,000,676 | ExpenseAmt |
| Revenue | $952,549 | RevenueAmt |
| Desc | IN 2025, NORD CONTINUED TO ADVANCE THE IAMRARE NATURAL HISTORY AND REGISTRY PLATFORM TO STRENGTHEN RARE DISEASE RESEARCH AND IMPROVE THE PATIENT EXPERIENCE IN SUPPORT OF THERAPEUTIC DEVELOPMENT. MAJOR PLATFORM ENHANCEMENTS INCLUDED THE LAUNCH OF A REDESIGNED UI TO STREAMLINE NAVIGATION AND IMPROVE CROSS-BROWSER CONSISTENCY, AND THE RELEASE OF THE IAMRARE MOBILE APP WITH FEATURES SUCH AS PUSH NOTIFICATIONS FOR SURVEY REMINDERS AND DEVICE-LEVEL ACCESSIBILITY CONTROLS. AS OF DECEMBER 2025, THERE WERE 22,142 CONSENTED PARTICIPANTS ACROSS 51 REGISTRIES. IN ADDITION, DURING 2025, 10 NEW RARE DISEASE REGISTRIES WERE LAUNCHED, REPRESENTING THE LARGEST NUMBER INITIATED IN A SINGLE YEAR, AND THE RESEARCH TEAM WAS SUPPORTING THE DEVELOPMENT OF 24 ADDITIONAL REGISTRIES. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (3 entries)
| ExpenseExpenseAmt | DescDesc |
|---|---|
| $1,085,277 | THE NATIONAL ORGANIZATION FOR RARE DISORDERS ENGAGES IN ADVOCACY EFFORTS THAT SERVE AS A LIAISON BETWEEN THE RARE DISEASE COMMUNITY AND THE ORGANIZATIONS AND INSTITUTIONS THAT HAVE A DIRECT IMPACT ON THE LIVES OF THE APPROXIMATELY 30 MILLION AMERICANS LIVING WITH RARE DISEASES. NORD WORKS WITH A WIDE RANGE OF STAKEHOLDERS, INCLUDING STATE AND FEDERAL AGENCIES AND LEGISLATORS, NONPROFIT ORGANIZATIONS, AND PRIVATE SECTOR PARTNERS TO RAISE AWARENESS OF THE NEEDS OF RARE DISEASE PATIENTS AND TO ADVANCE POLICIES AND INITIATIVES THAT IMPROVE CARE, TREATMENT, AND SUPPORT FOR THE RARE DISEASE COMMUNITY. |
| $649,212 | THE NATIONAL ORGANIZATION FOR RARE DISORDERS IS THE LEADING RARE DISEASE UMBRELLA ORGANIZATION IN THE UNITED STATES, PROVIDING ITS MEMBER ORGANIZATIONS WITH SUPPORT IN ADVOCACY, EDUCATION, RESEARCH, PROFESSIONAL DEVELOPMENT, ORGANIZATIONAL LEADERSHIP, AND COMMUNICATIONS. THROUGH THESE PROGRAMS AND SERVICES, NORD EQUIPS LEADERS OF PATIENT ORGANIZATIONS WITH THE TOOLS AND RESOURCES NEEDED TO REMAIN INFORMED, CONNECTED, AND EFFECTIVE AS THEY ESTABLISH, GROW, AND STRENGTHEN THEIR ORGANIZATIONS. AS OF DECEMBER 2025, NORD SUPPORTED 360 MEMBER PATIENT ORGANIZATIONS. |
| $920,169 | THE NORD RARE DISEASE CENTERS OF EXCELLENCE PROGRAM IDENTIFIES AND COLLABORATES WITH A NETWORK OF U.S. MEDICAL INSTITUTIONS THAT HAVE EXCEPTIONAL CLINICAL AND RESEARCH PROGRAMS SERVING PATIENTS WITH RARE DISEASES. THESE INSTITUTIONS WORK IN PARTNERSHIP WITH NORD, WITH ONE ANOTHER, AND WITH THEIR LOCAL COMMUNITIES OF PHYSICIANS, CAREGIVERS, AND PATIENTS TO SHARE EXPERT KNOWLEDGE, DEFINE STANDARDS OF PRACTICE FOR RARE DISEASES, ACCELERATE DIAGNOSIS, AND IMPROVE PATIENT CARE, TREATMENT, AND RESEARCH. THROUGH THIS COLLABORATIVE NETWORK, THE PROGRAM HELPS ADVANCE BEST PRACTICES AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH RARE DISEASES. AS OF DECEMBER 2025, THERE WERE 46 DESIGNATED RARE DISEASE CENTERS OF EXCELLENCE. |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $2,654,658 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $32,777,209 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | Yes (1) | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 60 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 116 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 16 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 15 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NEETA KOTECHA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 6172497300 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 120 LONGWATER DRIVE | AddressLine1Txt |
| City | NORWELL | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 02061 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (24 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| PAMELA GAVIN | |||||||
| CEO | 35.00 | Yes (X) | Yes (X) | $479,961 | $0 | $32,088 | |
| KATHLEEN HOLCOMBE | |||||||
| CHAIR | 10.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| DENNIS JACKMAN | |||||||
| VICE CHAIR | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| MARK SKINNER | |||||||
| TREASURER | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| LORNA WEIR | |||||||
| SECRETARY | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| KIM ISENBERG | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PAUL LYONS | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SUSAN BERRY MD | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SHAFALI JESTE MD | |||||||
| DIRECTOR (UNTIL 12/2025) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PHILIP PEARL MD | |||||||
| DIRECTOR (UNTIL 12/2025) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MIKE PORATH | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| TOM KELLY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| STEVEN MAH PHD | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ALAN MILLER MD PHD | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SHELDON SCHUSTER PHD | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JIM PALMA | |||||||
| DIRECTOR (UNTIL 12/2025) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PETER SALTONSTALL | |||||||
| SENIOR ADVISOR & CEO EMERITUS | 17.00 | Yes (X) | $47,303 | $0 | $2,358 | ||
| NEETA KOTECHA | |||||||
| VP & CFO | 35.00 | Yes (X) | $186,375 | $0 | $38,387 | ||
| KELLEEN ESPERIAS | |||||||
| CHIEF STRATEGY & OPERATIONS OFFICER | 35.00 | Yes (X) | $294,239 | $0 | $29,613 | ||
| EDWARD NEILAN | |||||||
| CHIEF MEDICAL & SCIENTIFIC OFFICER | 35.00 | $270,662 | $0 | $60,560 | Yes (X) | ||
| PRASHANT GOEL | |||||||
| VP INFORMATION TECHNOLOGY | 35.00 | $293,256 | $0 | $15,368 | Yes (X) | ||
| TRACEY SIKORA | |||||||
| VP OF RESEARCH & CLINICAL PROGRAMS | 35.00 | $194,233 | $0 | $24,588 | Yes (X) | ||
| ALEXANDRA MOORE | |||||||
| VP OF DEVELOPMENT | 35.00 | $254,340 | $0 | $12,713 | Yes (X) | ||
| JILL POLLANDER | |||||||
| VP PATIENT SERVICES | 35.00 | $187,802 | $0 | $24,142 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $2,208,171 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $239,817 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 32 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| FUTURE DMZ FUTURE LIMO | |||||
| 67-1185 MAMALAHOA HWY D104 | KAMUELA | HI | 96743 | GROUND TRANSPORTATION/PATIENT SERVICE | $318,676 |
| MANATT PHELPS AND PHILLIPS LLP | |||||
| 2049 CENTURY PARK EAST SUITE 1700 | LOS ANGELES | CA | 90067 | LEGAL SERVICES | $195,000 |
| ZUCKERMAN SPAEDER LLP | |||||
| 1800 M STREET NW SUITE 1000 | WASHINGTON | DC | 20036 | LEGAL SERVICES | $175,494 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| Membership Dues | $1,808,455 | MembershipDuesAmt |
| Government Grants | $1,172,580 | GovernmentGrantsAmt |
| All Other Contributions | $20,963,770 | AllOtherContributionsAmt |
| Total Contributions | $23,944,805 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (5 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| PATIENT ASSISTANCE FEE | 624100 | $3,679,368 | $3,679,368 |
| REGISTRY AND OTHER FEE | 624100 | $2,181,754 | $2,181,754 |
| PROGRAMMATIC EVENTS AN | 624100 | $1,682,814 | $1,682,814 |
| RESEARCH FEES | 624100 | $260,291 | $260,291 |
| DRUG, TRAVEL AND LODGI | 624100 | $131,090 | $131,090 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $7,935,317 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,650,236 | TotalRevenueColumnAmt |
| Exclusion | $2,650,236 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $9,308,439 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $9,261,601 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $46,838 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $46,838 | TotalRevenueColumnAmt |
| Exclusion | $46,838 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $34,577,196 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $7,935,317 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $2,697,074 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $106,388 | TotalAmt |
| Program Services | $106,388 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,588,798 | TotalAmt |
| Program Services | $21,588,798 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $386,704 | TotalAmt |
| Program Services | $386,704 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,110,324 | TotalAmt |
| Program Services | $564,010 | ProgramServicesAmt |
| Management And General | $315,135 | ManagementAndGeneralAmt |
| Fundraising | $231,179 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,884,911 | TotalAmt |
| Program Services | $5,340,759 | ProgramServicesAmt |
| Management And General | $2,066,955 | ManagementAndGeneralAmt |
| Fundraising | $1,477,197 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $346,468 | TotalAmt |
| Program Services | $270,465 | ProgramServicesAmt |
| Management And General | $18,191 | ManagementAndGeneralAmt |
| Fundraising | $57,812 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,189,929 | TotalAmt |
| Program Services | $913,325 | ProgramServicesAmt |
| Management And General | $68,826 | ManagementAndGeneralAmt |
| Fundraising | $207,778 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $713,016 | TotalAmt |
| Program Services | $346,350 | ProgramServicesAmt |
| Management And General | $259,322 | ManagementAndGeneralAmt |
| Fundraising | $107,344 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $465,611 | TotalAmt |
| Program Services | $55,297 | ProgramServicesAmt |
| Management And General | $397,864 | ManagementAndGeneralAmt |
| Fundraising | $12,450 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $82,022 | TotalAmt |
| Management And General | $82,022 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $90,000 | TotalAmt |
| Program Services | $90,000 | ProgramServicesAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $24,389 | TotalAmt |
| Management And General | $24,389 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,310,124 | TotalAmt |
| Program Services | $962,674 | ProgramServicesAmt |
| Management And General | $61,441 | ManagementAndGeneralAmt |
| Fundraising | $286,009 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $658,469 | TotalAmt |
| Program Services | $117,218 | ProgramServicesAmt |
| Management And General | $445,684 | ManagementAndGeneralAmt |
| Fundraising | $95,567 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $458,499 | TotalAmt |
| Program Services | $183,171 | ProgramServicesAmt |
| Management And General | $234,926 | ManagementAndGeneralAmt |
| Fundraising | $40,402 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $77,846 | TotalAmt |
| Program Services | $48,432 | ProgramServicesAmt |
| Management And General | $1,465 | ManagementAndGeneralAmt |
| Fundraising | $27,949 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,410,724 | TotalAmt |
| Program Services | $492,715 | ProgramServicesAmt |
| Management And General | $35,638 | ManagementAndGeneralAmt |
| Fundraising | $882,371 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,126,877 | TotalAmt |
| Program Services | $948,247 | ProgramServicesAmt |
| Management And General | $2,296 | ManagementAndGeneralAmt |
| Fundraising | $176,334 | FundraisingAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| MISCELLANEOUS | $370,012 | $88,734 | $178,428 | $102,850 |
| OVERHEAD ALLOCATION | $0 | $273,922 | -$273,922 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $40,401,111 | TotalAmt |
| Program Services | $32,777,209 | ProgramServicesAmt |
| Management And General | $3,918,660 | ManagementAndGeneralAmt |
| Fundraising | $3,705,242 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,343,127 | BOYAmt |
| EOY | $4,240,335 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,924,597 | BOYAmt |
| EOY | $5,720,047 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,405,783 | BOYAmt |
| EOY | $6,302,307 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $371,002 | BOYAmt |
| EOY | $322,083 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $8,047,579 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $6,152,080 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,068,982 | BOYAmt |
| EOY | $1,895,499 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $44,477,084 | BOYAmt |
| EOY | $47,633,554 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $102,597 | BOYAmt |
| EOY | $130,704 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $628,568 | BOYAmt |
| EOY | $655,768 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $72,321,740 | BOYAmt |
| EOY | $66,900,297 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,716,009 | BOYAmt |
| EOY | $1,457,619 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $675,513 | BOYAmt |
| EOY | $527,863 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $527,082 | BOYAmt |
| EOY | $423,085 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $827,199 | BOYAmt |
| EOY | $859,641 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,745,803 | BOYAmt |
| EOY | $3,268,208 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,013,533 | BOYAmt |
| EOY | $10,464,343 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $58,562,404 | BOYAmt |
| EOY | $53,167,746 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $68,575,937 | BOYAmt |
| EOY | $63,632,089 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $72,321,740 | BOYAmt |
| EOY | $66,900,297 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$5,823,915 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $880,067 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $36,851,836 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $51,401,122 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $55,591,572 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $40,390,497 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $23,944,805 | CurrentTaxYearAmt |
| Total | $208,179,832 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $36,851,836 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $51,401,122 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $55,591,572 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $40,390,497 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $23,944,805 | CurrentTaxYearAmt |
| Total | $208,179,832 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $138,342,037 | SubstantialContributorsTotAmt |
| Public Support Total170 | $69,837,795 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $223,148 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $415,150 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,751,860 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,489,178 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,650,236 | CurrentTaxYearAmt |
| Total | $7,529,572 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $215,709,404 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $38,259,040 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.32380 | PublicSupportCY170Pct |
| Public Support PY170 | 0.35020 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests PY170 | Yes (X) | ThirtyThrPctSuprtTestsPY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $19,730 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $229,201 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $248,931 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $40,152,180 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $40,401,111 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $1,000,000 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $250,000 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $1,000,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $1,000,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $1,000,000 | CurrentYearMinus1Amt |
| Current Year | $1,000,000 | CurrentYearAmt |
| Total | $4,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $6,000,000 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $154,106 | CurrentYearMinus3Amt |
| Current Year Minus2 | $145,323 | CurrentYearMinus2Amt |
| Current Year Minus1 | $263,130 | CurrentYearMinus1Amt |
| Current Year | $248,931 | CurrentYearAmt |
| Total | $811,490 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $250,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $250,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $250,000 | CurrentYearMinus1Amt |
| Current Year | $250,000 | CurrentYearAmt |
| Total | $1,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $1,500,000 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $5,779 | CurrentYearMinus3Amt |
| Current Year Minus2 | $5,450 | CurrentYearMinus2Amt |
| Current Year Minus1 | $9,867 | CurrentYearMinus1Amt |
| Current Year | $19,730 | CurrentYearAmt |
| Total | $40,826 | TotalAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $221,500 | BeginningYearBalanceAmt |
| End Year Balance | $221,500 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $221,500 | BeginningYearBalanceAmt |
| End Year Balance | $221,500 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $221,500 | BeginningYearBalanceAmt |
| End Year Balance | $221,500 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $221,500 | BeginningYearBalanceAmt |
| End Year Balance | $221,500 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $200,000 | BeginningYearBalanceAmt |
| Contributions | $21,500 | ContributionsAmt |
| End Year Balance | $221,500 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $37,726 | OtherCostOrOtherBasisAmt |
| Depreciation | $35,918 | DepreciationAmt |
| Book Value | $1,808 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $8,009,853 | OtherCostOrOtherBasisAmt |
| Depreciation | $6,116,162 | DepreciationAmt |
| Book Value | $1,893,691 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $1,895,499 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| DEFERRED COMPENSATION | $192,920 |
| OPERATING LEASE LIABILITY | $666,721 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $859,641 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $35,474,624 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $880,067 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $41,750 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $921,817 | RevenueNotReportedAmt |
| Revenue Subtotal | $34,552,807 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $24,389 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $24,389 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $34,577,196 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $40,418,472 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $41,750 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $41,750 | ExpensesNotReportedAmt |
| Expenses Subtotal | $40,376,722 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $24,389 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $24,389 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $40,401,111 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | NORD DEVELOPED A FORMAL ENDOWMENT SPENDING POLICY WHERE AS THE CORPUS SHALL NOT BE USED TO PAY CURRENT EXPENSES, OTHER THAN INVESTMENT SERVICE FEES. THE CORPUS SHALL BE INVESTED AND RETURNS MAY BE USED BY NORD ON AN ANNUAL BASIS, STARTING THREE YEARS AFTER THE FUNDS ARE INVESTED. THE ANNUAL SPENDING WILL BE CALCULATED AS THE GREATER OF ZERO OR HALF OF THE AVERAGE ANNUAL RETURN OVER THE PRIOR THREE YEARS, CALCULATED FROM THE CALENDAR YEAR-END BALANCE. NORD MAY DECIDE AT ITS DISCRETION TO DELAY OR FOREGO THE ANNUAL WITHDRAWAL FROM THE PORTFOLIO. NORD WILL NOT SPEND ENDOWED FUNDS FROM THE ENDOWMENT UNTIL AFTER MARCH 2024, THREE YEARS AFTER THE INITIAL INVESTMENT. |
| PART X, LINE 2: | NORD ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. NORD HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS AT DECEMBER 31, 2025. NORD'S INFORMATION RETURNS ARE SUBJECT TO EXAMINATION BY THE FEDERAL AND STATE JURISDICTIONS. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (6 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | 0 | 0 | GRANTS TO RECIPIENTS | $30,887 |
| NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES | 0 | 0 | GRANTS TO RECIPIENTS | $110,689 |
| SOUTH ASIA - AFGHANISTAN, BANGLADESH, BHUTAN, INDIA, MALDIVES, NEPAL, | 0 | 0 | GRANTS TO RECIPIENTS | $240,063 |
| EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, | 0 | 0 | GRANTS TO RECIPIENTS | $2,635 |
| MIDDLE EAST AND NORTH AFRICA | 0 | 0 | GRANTS TO RECIPIENTS | $1,362 |
| SOUTH AMERICA | 0 | 0 | GRANTS TO RECIPIENTS | $1,068 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $386,704 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $386,704 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|---|
| SOUTH ASIA - AFGHANISTAN, BANGLADESH, BHUTAN, INDIA, MALDIVES, NEPAL, | MOBILE DEVELOPMENT | $239,364 | BANK OF AMERICA INTERNATIONAL WIRE | $0 | FMV |
| NORTH AMERICA | SEED GRANT AWARD | $21,250 | BANK OF AMERICA INTERNATIONAL WIRE | $0 | FMV |
| EUROPE (INCLUDING ICELAND & GREENLAND) | AMYLOIDOSIS RESEARCH GRANT AWARD | $21,000 | BANK OF AMERICA INTERNATIONAL WIRE | $0 | FMV |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 2 | Total501c3OrgCnt |
| Total Other Org | 1 | TotalOtherOrgCnt |
Foreign Individuals Grants ForeignIndividualsGrantsGrp (7 entries)
| Type Of AssistanceTypeOfAssistanceTxt | RegionRegionTxt | RecipientRecipientCnt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|---|
| CONSULTANT | NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES | 1 | $82,148 | WIRE | FMV |
| TRAVEL REIMBURSEMENT | NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES | 6 | $3,249 | WIRE | FMV |
| TRAVEL REIMBURSEMENT | EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIU | 3 | $4,215 | WIRE | FMV |
| TRAVEL REIMBURSEMENT | EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, | 6 | $2,635 | WIRE | FMV |
| TRAVEL REIMBURSEMENT | MIDDLE EAST AND NORTH AFRICA | 1 | $1,362 | WIRE | FMV |
| TRAVEL REIMBURSEMENT | SOUTH AMERICA | 2 | $1,068 | WIRE | FMV |
| TRAVEL SCHOLARSHIP | SOUTH ASIA | 7 | $699 | WIRE | FMV |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ANY GRANTS AND SUPPORT GIVEN ARE CLOSELY MONITORED VIA REVIEW OF BACKUP DOCUMENTATION AND PROOF OF EXPENSE. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (4 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|---|
| REGENTS REGENTS OF THE UNIVERSITY OF CALIFORNIA | |||||||||
| PO BOX 743315 | LOS ANGELES | CA | 90074 | 956006143 | 501C3 | $25,000 | $0 | SEED GRANT AWARD - ACPMP | |
| REGENTS OF THE UNIVERSITY OF COLORADO | |||||||||
| GRANTS AND CONTRACTS MAIL STOP F428 | AURORA | CO | 80045 | 846000555 | $17,275 | $0 | BILIARY ARTESIA SEED GRANT AWARD | ANSCHUTZ MEDICAL CAMPUS BLDG 500 | |
| DUKE UNIVERSITY OFFICE OF SPONSORED PROGRAMS | |||||||||
| PO BOX 602651 | CHARLOTTE | NC | 28260 | 560532129 | 501C3 | $17,500 | $0 | AVM RESEARCH AT DUKE UNIVERSITY | |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | |||||||||
| 3451 WALNUT STREET 5TH FLOOR | PHILADELPHIA | PA | 19104 | 231352685 | 501C3 | $41,807 | $0 | TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | FRANKLIN BUILDING |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Total Other Org | 1 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | PATIENT ASSISTANCE PROGRAMS | GrantTypeTxt |
| Recipient | 6880 | RecipientCnt |
| Cash Grant | $21,588,798 | CashGrantAmt |
| Valuation Method Used | BOOK | ValuationMethodUsedDesc |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ANY GRANTS AND SUPPORT GIVEN ARE CLOSELY MONITORED VIA REVIEW OF BACKUP DOCUMENTATION AND PROOF OF EXPENSE. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| PAMELA GAVIN | ||||||||||||||
| CEO | $457,461 | $0 | $22,500 | $0 | $0 | $0 | $17,500 | $0 | $14,588 | $0 | $512,049 | $0 | $0 | $0 |
| EDWARD NEILAN | ||||||||||||||
| CHIEF MEDICAL & SCIENTIFIC OFFICER | $270,662 | $0 | $0 | $0 | $0 | $0 | $14,420 | $0 | $46,140 | $0 | $331,222 | $0 | $0 | $0 |
| KELLEEN ESPERIAS | ||||||||||||||
| CHIEF STRATEGY & OPERATIONS OFFICER | $294,239 | $0 | $0 | $0 | $0 | $0 | $15,000 | $0 | $14,613 | $0 | $323,852 | $0 | $0 | $0 |
| PRASHANT GOEL | ||||||||||||||
| VP INFORMATION TECHNOLOGY | $293,256 | $0 | $0 | $0 | $0 | $0 | $14,696 | $0 | $672 | $0 | $308,624 | $0 | $0 | $0 |
| ALEXANDRA MOORE | ||||||||||||||
| VP OF DEVELOPMENT | $234,340 | $0 | $20,000 | $0 | $0 | $0 | $12,713 | $0 | $0 | $0 | $267,053 | $0 | $0 | $0 |
| NEETA KOTECHA | ||||||||||||||
| VP & CFO | $186,375 | $0 | $0 | $0 | $0 | $0 | $9,647 | $0 | $28,740 | $0 | $224,762 | $0 | $0 | $0 |
| TRACEY SIKORA | ||||||||||||||
| VP OF RESEARCH & CLINICAL PROGRAMS | $194,233 | $0 | $0 | $0 | $0 | $0 | $10,000 | $0 | $14,588 | $0 | $218,821 | $0 | $0 | $0 |
| JILL POLLANDER | ||||||||||||||
| VP PATIENT SERVICES | $187,802 | $0 | $0 | $0 | $0 | $0 | $9,554 | $0 | $14,588 | $0 | $211,944 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 7 | FormAndLineReferenceDesc |
| Explanation | THE BOARD OF DIRECTORS REVIEWS EXTERNAL SURVEYS, DOL, BLS, AND ACCOUNTEMP SURVEYS FOR DECISIONS ON THE EXECUTIVE DIRECTOR'S COMPENSATION. THERE IS ALSO A SALARY ADMINISTRATION PLAN THAT TAKES INTO CONSIDERATION GEOGRAPHIC SETTINGS, SKILLS, AND EDUCATION. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE 990 IS REVIEWED BY THE VP OF FINANCE, CEO, FINANCE COMMITTEE, AND AUDIT COMMITTEE PRIOR TO FILING. THE 990 IS PROVIDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO BEING FILED. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE BOARD OF DIRECTORS ARE REQUIRED TO COMPLETE AN ANNUAL REVIEW OF THE ORGANIZATION'S CONFLICT OF INTEREST POLICY. THE MEMBERS OF THE BOARD ARE ANNUALLY REQUIRED TO REPORT IF THEY HAVE OR DO NOT HAVE ANY KNOWN CONFLICTS OF INTEREST. THE EXECUTIVE COMMITTEE IS ALSO REQUIRED TO ANNUALLY SIGN OFF AS TO ANY KNOWN CONFLICTS THAT EXIST. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE BOARD OF DIRECTORS REVIEWS EXTERNAL MARKET SURVEYS, DOL, BLS, AND ACCOUNTEMP SURVEYS FOR DECISIONS ON THE EXECUTIVE DIRECTOR COMPENSATION. THERE IS ALSO A SALARY ADMINISTRATION PLAN THAT TAKES INTO CONSIDERATION GEOGRAPHIC SETTINGS, SKILLS, AND EDUCATION. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS ARE MADE AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THE BOARD OF DIRECTORS ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT. |