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HYDROCEPHALUS ASSOCIATION INCORPORATED: Form 990, tax year 2025

View the entire original 990 at ProPublica ↗

Organization
HYDROCEPHALUS ASSOCIATION INCORPORATED (EIN 94-3000301)
Tax period
2025-01-01 to 2025-12-31
Filed
2026-07-07
IRS object ID
202641889349301104
Schema version
2025v4.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-07-07T09:17:29-05:00ReturnTs
Tax Period End2025-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN541342298PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1KOSITZKA WICKS AND COMPANYBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line14405 COX ROAD SUITE 200AddressLine1Txt
CityGLEN ALLENCityNm
State AbbreviationVAStateAbbreviationCd
ZIP23060ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2025-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN943000301EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1HYDROCEPHALUS ASSOCIATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlHYDRBusinessNameControlTxt
Phone3012023811PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line16903 ROCKLEDGE DRIVE SUITE 740AddressLine1Txt
CityNORTH BETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20817ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonDIANA GRAYPersonNm
Person TitlePRESIDENT AND CEOPersonTitleTxt
Phone3012023811PhoneNum
Signature2026-07-02SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonKRISTEN P BAIETTI CPAPreparerPersonNm
PTINP03245768PTIN
Phone8048551200PhoneNum
FieldValueIRS element (for citing)
Tax2025TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerDIANA GRAYPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line16903 ROCKLEDGE DRIVE SUITE 740AddressLine1Txt
CityNORTH BETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20817ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$5,557,635GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.HYDROASSOC.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1986FormationYr
Legal Domicile StateDELegalDomicileStateCd
Activity Or MissionFIND A CURE FOR HYDROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED BY THE CONDITION.ActivityOrMissionDesc
Voting Members Governing Body12VotingMembersGoverningBodyCnt
Voting Members Independent12VotingMembersIndependentCnt
Total Employee23TotalEmployeeCnt
Total Volunteers1500TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$3,350,909PYContributionsGrantsAmt
CY Contributions Grants$4,277,866CYContributionsGrantsAmt
PY Program Service Revenue$73,155PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$180,343PYInvestmentIncomeAmt
CY Investment Income$209,480CYInvestmentIncomeAmt
PY Other Revenue-$45,743PYOtherRevenueAmt
CY Other Revenue-$104,102CYOtherRevenueAmt
PY Total Revenue$3,558,664PYTotalRevenueAmt
CY Total Revenue$4,383,244CYTotalRevenueAmt
PY Grants And Similar Paid$879,590PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$711,292CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$2,248,081PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$2,202,948CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$83,861CYTotalFundraisingExpenseAmt
PY Other Expenses$1,284,320PYOtherExpensesAmt
CY Other Expenses$870,592CYOtherExpensesAmt
PY Total Expenses$4,411,991PYTotalExpensesAmt
CY Total Expenses$3,784,832CYTotalExpensesAmt
PY Revenues Less Expenses-$853,327PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$598,412CYRevenuesLessExpensesAmt
Total Assets BOY$3,458,025TotalAssetsBOYAmt
Total Assets EOY$4,447,001TotalAssetsEOYAmt
Total Liabilities BOY$488,203TotalLiabilitiesBOYAmt
Total Liabilities EOY$918,837TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,969,822NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$3,528,164NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionFIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$1,319,818ExpenseAmt
Grant$711,292GrantAmt
DescRESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) IS DEDICATED TO ADVANCING HIGH-QUALITY RESEARCH. EACH YEAR THE HA FUNDS TALENTED RESEARCHERS THROUGH DIRECT GRANT FUNDING ENABLING THEM TO LEVERAGE THESE PROJECTS AND SECURE LARGER FEDERAL GRANTS FOR GREATER IMPACT. THE HA FUNDS RESEARCH THAT IS ALIGNED WITH PATIENT-IDENTIFIED PRIORITIES TO IMPROVE UNDERSTANDING OF THE CONDITION, IDENTIFY AND TEST NEW TREATMENTS, MOVE DISCOVERIES TOWARDS CLINICAL USE, ENHANCE DIAGNOSIS, IMPROVE ACCESS TO CARE, AND ULTIMATELY ELEVATE THE QUALITY OF LIFE OF THOSE LIVING WITH HYDROCEPHALUS. GRANT PROGRAMS INCLUDE THE INNOVATOR AWARD, ACCELERATOR AWARD, NEUROPSYCHOLOGY AND COGNITION AWARD, ENGINEERING PRIZE, RESIDENTS PRIZE, AND THE NEXT GENERATION AWARD. HA'S IMPACT IS AMPLIFIED THROUGH THE MANY RESEARCH NETWORKS THAT WE SUPPORT: THE HA PATIENT-POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS WITH ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE RESEARCH, WHILE THE PEDIATRIC-FOCUSED HCRN AND ADULT- FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY FUNDING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,606,110ExpenseAmt
DescSUPPORT AND EDUCATION THE HYDROCEPHALUS ASSOCIATION IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY HYDROCEPHALUS BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2024, HA STAFF PROVIDED ONE-ON-ONE SUPPORT THROUGH PHONE CALLS, EMAILS, AND INTERACTIONS ON SOCIAL MEDIA TOTALING OVER 3,744 TOUCHES. HA CONDUCTED A TOTAL OF 216 VIRTUAL SOCIAL GATHERINGS AND/OR EDUCATIONAL MEETINGS WITH MEDICAL AND OTHER PROFESSIONALS JOINING AS GUEST SPEAKERS IN OUR LOCAL SUPPORT GROUPS - COMMUNITY NETWORKS. THESE EVENTS PROVIDED OUR COMMUNITY WITH THE OPPORTUNITY TO FIND FRIENDSHIP AND RECEIVE EDUCATION. OUR PEER SUPPORT VOLUNTEERS MADE 65 CONNECTIONS TO PROVIDE FIRST-HAND KNOWLEDGE AND EXPERIENCE ON LIVING WITH HYDROCEPHALUS.THE ASSOCIATION PROMOTES FREE USAGE OF OUR HYDROASSIST MOBILE APP, TO INCLUDE SELF-REPORTED HEALTH INFORMATION AND SYMPTOM LOGS TO ENABLE PATIENTS TO HAVE ACCESS TO THIS INFORMATION AT THEIR FINGERTIPS.THE ASSOCIATION CONTINUES TO SUPPORT OUR YOUNG ADULTS' ACADEMIC PURSUITS THROUGH OUR SCHOLARSHIP PROGRAM. ESTABLISHED IN 1994, HA HAS AWARDED 265 SCHOLARSHIPS TO DESERVING FUTURE LEADERS OF THE HYDROCEPHALUS COMMUNITY. IN 2025, HA OFFERED 13 EDUCATIONAL SCHOLARSHIPS TO YOUNG ADULTS LIVING WITH HYDROCEPHALUS WHO EXHIBIT PROMISING LEADERSHIP SKILLS AND ARE INVOLVED IN THEIR COMMUNITIES.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$133,949ExpenseAmt
DescADVOCACY THE HYDROCEPHALUS ASSOCIATION ADVOCACY COMMITTEE HAS CONTINUED TO MONITOR AND SUPPORT KEY LEGISLATION THAT WILL BENEFIT THE HYDROCEPHALUS COMMUNITY. HYDROCEPHALUS WAS ONCE AGAIN INCLUDED ON THE LIST OF ELIGIBLE CONDITIONS TO RECEIVE FUNDING UNDER THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) AND ADMINISTERED BY THE DEPARTMENT OF DEFENSE (DOD). THE CDMRP HAS APPROPRIATIONS OF $1.27 BILLION, WHICH ARE USED TO FUND THE BEST SCIENTIFIC AND MEDICAL RESEARCH. WE ARE PROUD OF THIS CONTINUED ACCOMPLISHMENT. HA CO-LEADS THE AMERICAN ASSOCIATION OF NEUROLOGICAL SURGEONS NONPROFIT ADVISORY COUNCIL FOCUSED ON DEVELOPING IMPROVED HEALTHCARE MODELS FOR CHILDREN WITH CHRONIC MEDICAL CONDITIONS TRANSITIONING TO ADULT MEDICAL CARE AND SERVICES. HA ALSO CONTINUES TO BE ACTIVE IN ADVOCACY MEETINGS AND SIGN-ON LETTERS PUT TOGETHER AS PART OF THE NATIONAL HEALTH COUNCIL (NHC), AMERICAN BRAIN COALITION (ABC), NATIONAL ORGANIZATION FOR RARE DISEASE (NORD), RESEARCH!AMERICA, AND THE NATIONAL DEFENSE HEALTH RESEARCH CONSORTIUM (DHRC).Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (2 entries)

ExpenseExpenseAmtDescDescRevenueRevenueAmt
$113,811CONFERENCES
MERCHANDISE SALES, NET-$6,218
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$113,811TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Revenue-$6,218TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$3,173,688TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (1)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming ActivitiesYes (1)GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document5IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee23EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members12GoverningBodyVotingMembersCnt
Independent Voting Member12IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonDIANA GRAYPersonNm
Phone3012023811PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line16903 ROCKLEDGE DRIVE SUITE 740AddressLine1Txt
CityNORTH BETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20817ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
KIPP COCO
DIRECTOR3.50Yes (X)$0$0$0
DEITRA MATTHEWS MPA
DIRECTOR3.50Yes (X)$0$0$0
MIKE MUHONEN MD
DIRECTOR3.50Yes (X)$0$0$0
DAVID LIMBRICK MD
DIRECTOR3.50Yes (X)$0$0$0
RAYMOND R MOSER JR JD
DIRECTOR3.50Yes (X)$0$0$0
HUGH ALLEN
FINANCE COMMITTEE CHAIR3.50Yes (X)$0$0$0Yes (X)
PETER FINLAYSON
DIRECTOR3.50Yes (X)$0$0$0
LYDIA ROSIE VALADEZ-MCSTAY
VICE CHAIR3.50Yes (X)$0$0$0Yes (X)
SALLY DUNKELBERGER DANIEL
VICE CHAIR3.50Yes (X)$0$0$0Yes (X)
STEPHANIE VOGT
CHAIR4.50Yes (X)$0$0$0Yes (X)
MICHAEL SIEGEL PHD
VICE CHAIR3.50Yes (X)$0$0$0Yes (X)
TIM HARRIS
DIRECTOR3.50Yes (X)$0$0$0
DIANA GRAY
PRESIDENT AND CEO45.00$262,460$0$23,647Yes (X)
BRIAN SAPHIER
TREASURER AND CFO45.00$145,169$0$12,976Yes (X)
AMANDA GARZON
CHIEF OPERATING OFFICER45.00$145,303$0$14,998Yes (X)
MONICA CHAU
NATIONAL DIRECTOR OF RESEARCH40.00$136,906$0$6,422Yes (X)
LINDA RILEY
NATIONAL DIRECTOR OF DEVELOPMENT40.00$142,362$0$17,497Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$832,200TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$75,540TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K5IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$1,924,623FundraisingAmt
All Other Contributions$2,353,243AllOtherContributionsAmt
Noncash Contributions$146,706NoncashContributionsAmt
Total Contributions$4,277,866TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$75,021TotalRevenueColumnAmt
Exclusion$75,021ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$1,114,523SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$980,064SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$134,459SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$134,459TotalRevenueColumnAmt
Exclusion$134,459ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,924,623ContriRptFundraisingEventAmt
Fundraising Direct Expenses$179,063FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$179,063TotalRevenueColumnAmt
Exclusion-$179,063ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$61,773GamingGrossIncomeAmt
Gaming Direct Expenses$0GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$61,773TotalRevenueColumnAmt
Exclusion$61,773ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$9,046GrossSalesOfInventoryAmt
Cost Of Goods Sold$15,264CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column-$6,218TotalRevenueColumnAmt
Related Or Exempt Func Income-$6,218RelatedOrExemptFuncIncomeAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtExclusionExclusionAmt
MISCELLANEOUS REVENUE900099$11,694$11,694
RETURNED GRANT AWARD900099$7,712$7,712
FieldValueIRS element (for citing)
Other Revenue Total$19,406OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,383,244TotalRevenueColumnAmt
Related Or Exempt Func Income-$6,218RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$111,596ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$605,535TotalAmt
Program Services$605,535ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$13,000TotalAmt
Program Services$13,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$92,757TotalAmt
Program Services$92,757ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$604,552TotalAmt
Program Services$426,825ProgramServicesAmt
Management And General$174,494ManagementAndGeneralAmt
Fundraising$3,233FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,320,090TotalAmt
Program Services$1,136,950ProgramServicesAmt
Management And General$132,388ManagementAndGeneralAmt
Fundraising$50,752FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$32,639TotalAmt
Program Services$29,052ProgramServicesAmt
Management And General$2,131ManagementAndGeneralAmt
Fundraising$1,456FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$107,986TotalAmt
Program Services$75,317ProgramServicesAmt
Management And General$28,354ManagementAndGeneralAmt
Fundraising$4,315FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$137,681TotalAmt
Program Services$112,325ProgramServicesAmt
Management And General$21,361ManagementAndGeneralAmt
Fundraising$3,995FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$10,214TotalAmt
Program Services$8,714ProgramServicesAmt
Fundraising$1,500FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$22,080TotalAmt
Management And General$22,080ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$90,670TotalAmt
Program Services$76,298ProgramServicesAmt
Management And General$12,536ManagementAndGeneralAmt
Fundraising$1,836FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$9,498TotalAmt
Program Services$9,054ProgramServicesAmt
Fundraising$444FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$174,379TotalAmt
Program Services$156,219ProgramServicesAmt
Management And General$7,673ManagementAndGeneralAmt
Fundraising$10,487FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$167,423TotalAmt
Program Services$147,628ProgramServicesAmt
Management And General$17,089ManagementAndGeneralAmt
Fundraising$2,706FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$84,687TotalAmt
Program Services$70,626ProgramServicesAmt
Management And General$12,125ManagementAndGeneralAmt
Fundraising$1,936FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$129,680TotalAmt
Program Services$119,688ProgramServicesAmt
Management And General$9,823ManagementAndGeneralAmt
Fundraising$169FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$4,210TotalAmt
Management And General$4,210ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$35,141TotalAmt
Program Services$29,306ProgramServicesAmt
Management And General$5,032ManagementAndGeneralAmt
Fundraising$803FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$14,585TotalAmt
Program Services$1,672ProgramServicesAmt
Management And General$12,867ManagementAndGeneralAmt
Fundraising$46FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtManagement And GeneralManagementAndGeneralAmtProgram ServicesProgramServicesAmtFundraisingFundraisingAmt
SERVICE CHARGES$55,926$55,926
SITE EXPENSES$33,937$33,827$110
DUES AND SUBSCRIPTIONS$16,211$1,784$14,355$72
COST OF PROGRAM INVENTO$8,929$8,929

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$13,022TotalAmt
Program Services$5,611ProgramServicesAmt
Management And General$7,410ManagementAndGeneralAmt
Fundraising$1FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,784,832TotalAmt
Program Services$3,173,688ProgramServicesAmt
Management And General$527,283ManagementAndGeneralAmt
Fundraising$83,861FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$656,749BOYAmt
EOY$2,156,745EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$210,018BOYAmt
EOY$426,528EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$4,263BOYAmt
EOY$2,081EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$39,471BOYAmt
EOY$90,477EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$120,089BOYAmt
EOY$28,963EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$239,750LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$228,239LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$15,406BOYAmt
EOY$11,511EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$2,282,221BOYAmt
EOY$1,497,178EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$49,674BOYAmt
EOY$22,228EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$80,134BOYAmt
EOY$211,290EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$3,458,025BOYAmt
EOY$4,447,001EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$236,776BOYAmt
EOY$280,002EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
EOY$200,000EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$50,000BOYAmt
EOY$75,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$201,427BOYAmt
EOY$363,835EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$488,203BOYAmt
EOY$918,837EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,936,849BOYAmt
EOY$2,300,497EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,032,973BOYAmt
EOY$1,227,667EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,969,822BOYAmt
EOY$3,528,164EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,458,025BOYAmt
EOY$4,447,001EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$598,412ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$40,070NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,038,576CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,093,067CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,260,063CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,350,909CurrentTaxYearMinus1YearAmt
Current Tax Year$4,277,866CurrentTaxYearAmt
Total$19,020,481TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,038,576CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,093,067CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,260,063CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,350,909CurrentTaxYearMinus1YearAmt
Current Tax Year$4,277,866CurrentTaxYearAmt
Total$19,020,481TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$580,198SubstantialContributorsTotAmt
Public Support Total170$18,440,283PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,707CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$48,407CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$137,427CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$124,449CurrentTaxYearMinus1YearAmt
Current Tax Year$75,021CurrentTaxYearAmt
Total$388,011TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$15,129CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$150CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$15,300CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$49,714CurrentTaxYearMinus1YearAmt
Current Tax Year$19,406CurrentTaxYearAmt
Total$99,699TotalAmt
FieldValueIRS element (for citing)
Total Support$19,508,191TotalSupportAmt
Gross Receipts Rltd Activities$228,058GrossReceiptsRltdActivitiesAmt
Public Support CY1700.94530PublicSupportCY170Pct
Public Support PY1700.97140PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationOTHER MISCELLANEOUS INCOME - 2021 AMOUNT: $ 15,129. 2022 AMOUNT: $ 150. 2023 AMOUNT: $ 15,300. 2024 AMOUNT: $ 49,714. 2025 AMOUNT: $ 19,406.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
VolunteersYes (1)VolunteersInd
Paid Staff Or ManagementYes (1)PaidStaffOrManagementInd
Media Advertisements0MediaAdvertisementsInd
Mailings MembersYes (1)MailingsMembersInd
Mailings Members$0MailingsMembersAmt
Publications Or BroadcastYes (1)PublicationsOrBroadcastInd
Publications Or Broadcast$1,000PublicationsOrBroadcastAmt
Grants Other Organizations0GrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (1)DirectContactLegislatorsInd
Direct Contact Legislators$1,000DirectContactLegislatorsAmt
Rallies DemonstrationsYes (1)RalliesDemonstrationsInd
Rallies Demonstrations$0RalliesDemonstrationsAmt
Other Activities0OtherActivitiesInd
Total Lobbying Expenditures$2,000TotalLobbyingExpendituresAmt
Not Described Section501c30NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART II-B, LINE 1, LOBBYING ACTIVITIES:FormAndLineReferenceDesc
ExplanationAS PART OF OUR PROGRAM TO EDUCATE CONGRESS AND OTHERS ABOUT THE NEEDS OF HYDROCEPHALUS PATIENTS AND THEIR FAMILIES, AND TO ADVOCATE FOR MORE FUNDING FOR HYDROCEPHALUS RESEARCH, THE HYDROCEPHALUS ASSOCIATION MET ONE-ON-ONE WITH CONGRESSIONAL OFFICES TO EDUCATE MEMBERS ON HYDROCEPHALUS AND PARTICIPATED IN A NUMBER OF COALITIONS (INCLUDING THE NATIONAL HEALTH COUNCIL, RESEARCH!AMERICA, AND THE AMERICAN BRAIN COALITION).ExplanationTxt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$91,318BeginningYearBalanceAmt
Investment Earnings Or Losses$9,280InvestmentEarningsOrLossesAmt
Grants Or Scholarships$9,280GrantsOrScholarshipsAmt
End Year Balance$91,318EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$91,318BeginningYearBalanceAmt
Investment Earnings Or Losses$13,142InvestmentEarningsOrLossesAmt
Grants Or Scholarships$13,142GrantsOrScholarshipsAmt
End Year Balance$91,318EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$79,544BeginningYearBalanceAmt
Investment Earnings Or Losses$11,774InvestmentEarningsOrLossesAmt
End Year Balance$91,318EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$91,318BeginningYearBalanceAmt
Investment Earnings Or Losses-$11,774InvestmentEarningsOrLossesAmt
End Year Balance$79,544EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$91,318BeginningYearBalanceAmt
Investment Earnings Or Losses$1,573InvestmentEarningsOrLossesAmt
Grants Or Scholarships$1,573GrantsOrScholarshipsAmt
End Year Balance$91,318EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$122,155OtherCostOrOtherBasisAmt
Depreciation$110,644DepreciationAmt
Book Value$11,511BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$117,595OtherCostOrOtherBasisAmt
Depreciation$117,595DepreciationAmt
Book Value$0BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$11,511TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
SBA LOAN$143,529
OPERATING LEASE LIABILITY$220,306
FieldValueIRS element (for citing)
Total Liability$363,835TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$4,335,462TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$40,070NetUnrealizedGainsInvstAmt
Revenue Not Reported-$40,070RevenueNotReportedAmt
Revenue Subtotal$4,375,532RevenueSubtotalAmt
Other Revenues Not Included$7,712OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$7,712RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$4,383,244TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,777,120TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$3,777,120ExpensesSubtotalAmt
Other Expenses Not Included$7,712OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$7,712ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,784,832TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:THE ASSOCIATION IS A QUALIFYING NONPROFIT ORGANIZATION AS DEFINED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND THE TAX STATUTES OF DELAWARE, AND THEREFORE IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. ACCORDINGLY, THE ACCOMPANYING FINANCIAL STATEMENTS DO NOT REFLECT A PROVISION OR LIABILITY FOR FEDERAL AND STATE INCOME TAXES. THE ASSOCIATION DOES NOT BELIEVE IT HAS ANY UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2025. FISCAL YEARS ENDING ON OR AFTER 2022 REMAIN SUBJECT TO EXAMINATION BY FEDERAL AND STATE AUTHORITIES.
PART XI, LINE 4B - OTHER ADJUSTMENTS:RETURNED GRANT AWARD
PART XII, LINE 4B - OTHER ADJUSTMENTS:RETURNED GRANT AWARD
PART V, LINE 4:THE ORGANIZATION USES ENDOWMENT FUNDS FOR EDUCATIONAL SCHOLARSHIPS TO YOUNG ADULTS WITH HYDROCEPHALUS.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES00TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK$42,757
EUROPE (INCLUDING ICELAND & GREENLAND)00TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS.$50,000
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$92,757SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$92,757TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtNon Cash AssistanceNonCashAssistanceAmt
NORTH AMERICATO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK$42,757CHECK$0
EUROPE (INCLUDING ICELAND & GREENLAND)TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK$50,000$0
FieldValueIRS element (for citing)
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1SOUTH FLORIDA WALKEvent1Nm
Gross Receipts Event1$206,597GrossReceiptsEvent1Amt
Charitable Contri Event1$206,597CharitableContriEvent1Amt
Other Direct Expenses Event1$6,902OtherDirectExpensesEvent1Amt
Event2LONG ISLAND WALKEvent2Nm
Gross Receipts Event2$181,405GrossReceiptsEvent2Amt
Charitable Contri Event2$181,405CharitableContriEvent2Amt
Other Direct Expenses Event2$9,355OtherDirectExpensesEvent2Amt
Other Events Total42OtherEventsTotalCnt
Gross Receipts Other Events$1,536,621GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$1,536,621CharitableContriOtherEventsAmt
Oth Direct Expnss Other Events$162,806OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,924,623GrossReceiptsTotalAmt
Charitable Contributions Tot$1,924,623CharitableContributionsTotAmt
Oth Direct Expnss Total Events$179,063OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$179,063DirectExpenseSummaryEventsAmt
Net Income Summary-$179,063NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$61,773GrossRevenueOtherGamingAmt
Volunteer Labor Other GamingYes (1)VolunteerLaborOtherGamingInd
Volunteer Labor Other Gaming1.00000VolunteerLaborOtherGamingPct
Gross Revenue Total Gaming$61,773GrossRevenueTotalGamingAmt
Net Gaming Income Summary$61,773NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedNCStatesWhereGamingConductedCd
States Where Gaming ConductedSCStatesWhereGamingConductedCd
States Where Gaming ConductedCOStatesWhereGamingConductedCd
States Where Gaming ConductedIAStatesWhereGamingConductedCd
States Where Gaming ConductedMIStatesWhereGamingConductedCd
States Where Gaming ConductedTXStatesWhereGamingConductedCd
States Where Gaming ConductedNYStatesWhereGamingConductedCd
States Where Gaming ConductedKYStatesWhereGamingConductedCd
States Where Gaming ConductedLAStatesWhereGamingConductedCd
States Where Gaming ConductedAZStatesWhereGamingConductedCd
States Where Gaming ConductedFLStatesWhereGamingConductedCd
States Where Gaming ConductedPAStatesWhereGamingConductedCd
LicensedYes (1)LicensedInd
License Suspended Etc0LicenseSuspendedEtcInd
Gaming With NonmembersYes (1)GamingWithNonmembersInd
Member Of Other Entity0MemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct

Persons With Books Name PersonsWithBooksName

FieldValueIRS element (for citing)
Business Name Line1LINDA RILEYBusinessNameLine1Txt

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line16903 ROCKLEDGE DRIVE SUITE 740AddressLine1Txt
CityNORTH BETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20817ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game Rev0CntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonLINDA RILEYGamingManagerPersonNm
Gaming Manager Services ProvNATIONAL DIRECTOR OF DEVELOPMENT AND MANAGES THE WALK PROGRAM WHOSE VOLUNTEERS CONDUCT THE RAFFLES.GamingManagerServicesProvTxt
Charitable Distribution RqrYes (1)CharitableDistributionRqrInd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (9 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE DESK JJ3-605CCLEVELANDOH44195912153073501(C)(3)$46,211$0TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK
PRIMARY CHILDREN'S FOUNDATION
36 SOUTH STATE STREET SUITE 1600SALT LAKE CITYUT84111870453633501(C)(3)$75,000$0TO FUND THE CLINICAL RESEARCH SITE FOR THE HYDROCEPHALUS CLINICAL RESEARCH NETWORK
UNIVERSITY OF UTAH
75 SOUTH 2000 EAST RAB 211SALT LAKE CITYUT84108876000525501(C)(3)$149,533$0TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK
UNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION
2001 THE EMBARCADERO 3RD FLOORSAN FRANCISCOCA94133942829914501(C)(3)$85,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
YALE UNIVERSITY
PO BOX 1873NEW HAVENCT06508060646973501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVECINCINNATIOH45229310833936501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753DALLASTX75207756002868501(C)(3)$49,791$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE FOB FB4243COLUMBUSOH43205010782751501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
UNIVERSITY OF NORTH CAROLINA
9201 UNVERSITY CITY BLVDCHARLOTTENC28223566059417501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeSCHOLARSHIPGrantTypeTxt
Recipient13RecipientCnt
Cash Grant$13,000CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationMANAGEMENT OBTAINS PERIOD REPORTING FROM GRANTEES IN ACCORDANCE WITH TERMS OF THE GRANT AGREEMENT TO MONITOR TO USE OF GRANT FUNDS.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Substantiation RequiredYes (1)SubstantiationRequiredInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
DIANA GRAY
PRESIDENT AND CEO$262,460$0$0$0$0$0$10,513$0$13,134$0$286,107$0$0$0
AMANDA GARZON
CHIEF OPERATING OFFICER$145,303$0$0$0$0$0$5,892$0$9,106$0$160,301$0$0$0
LINDA RILEY
NATIONAL DIRECTOR OF DEVELOPMENT$142,362$0$0$0$0$0$5,793$0$11,704$0$159,859$0$0$0
BRIAN SAPHIER
TREASURER AND CFO$145,169$0$0$0$0$0$5,868$0$7,108$0$158,145$0$0$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution9ContributionCnt
Noncash Contributions Rpt F990$137,980NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescPROGRAM MATERIALSDesc
Contribution6ContributionCnt
Noncash Contributions Rpt F990$8,726NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, COLUMN (B):FormAndLineReferenceDesc
ExplanationTHE NUMBER OF CONTRIBUTIONS REPRESENTS THE NUMBER OF TRANSACTIONS WHERE DONORS CONTRIBUTED TO THE ASSOCIATION THROUGH STOCK DONATIONS AND DONATED GOODS AND SERVICES.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1AACCORDING TO OUR BYLAWS, THE EXECUTIVE COMMITTEE, UNLESS LIMITED IN A RESOLUTION OF THE BOARD, SHALL HAVE AND MAY EXERCISE ALL OF THE AUTHORITY OF THE BOARD IN THE MANAGEMENT OF THE BUSINESS AND AFFAIRS OF THE CORPORATION BETWEEN MEETINGS OF THE BOARD.
FORM 990, PART VI, SECTION B, LINE 11BALL BOARD MEMBERS RECEIVE AN ELECTRONIC OR PAPER COPY OF THE IRS FORM 990 PRIOR TO ITS SUBMISSION. BOARD MEMBERS MUST SUBMIT ANY QUESTIONS OR CHANGES TO THE PRESIDENT & CHIEF EXECUTIVE OFFICER, WHO SUBMITS THE CHANGES TO THE TAX PREPARER.
FORM 990, PART VI, SECTION B, LINE 12CEACH YEAR BOARD MEMBERS GET A COPY OF THE CONFLICT OF INTEREST POLICY AND A DISCLOSURE FORM TO FILL OUT WITH DETAILS OF ANY POSSIBLE CONFLICTS THAT MAY EXIST.
FORM 990, PART VI, SECTION B, LINE 15ATHE PROCESS FOR DETERMINING THE COMPENSATION FOR THE PRESIDENT & CHIEF EXECUTIVE OFFICER (WHO IS ALSO IN CHARGE OF FINANCIAL MANAGEMENT OF THE ORGANIZATION) POSITION INCLUDES THE FOLLOWING STEPS: 1) THE BOARD CHAIR AND PRESIDENT & CHIEF EXECUTIVE OFFICER EACH COLLECT COMPARABLE SALARY INFORMATION (E.G., SALARY STUDIES). 2) THE BOARD CHAIR MAKES A RECOMMENDATION FOR PRESIDENT & CEO COMPENSATION TO THE EXECUTIVE COMMITTEE. 3) EXECUTIVE COMMITTEE MEMBERS (WITHOUT A CONFLICT OF INTEREST) VOTE ON THE RECOMMENDATION BY THE BOARD CHAIR FOR PROPOSED CEO COMPENSATION, AND A RECORD OF THE VOTE IS RECORDED IN EXECUTIVE COMMITTEE MINUTES.
FORM 990, PART VI, SECTION C, LINE 18FORM 990 IS AVAILABLE ON THE HYDROCEPHALUS ASSOCIATION WEBSITE AT WWW.HYDROASSOC.ORG/ANNUAL-REPORTS-AND-FINANCIALS
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC AT THE ORGANIZATION'S OFFICE OR ON THE ORGANIZATION'S WEBSITE UPON REQUEST.
FORM 990, PART XII, LINE 2C:THE AUDIT COMMITTEE SELECTS AND OVERSEES AN INDEPENDENT ACCOUNTING FIRM TO CONDUCT THE AUDIT. NO CHANGE IN THE SELECTION METHOD OCCURRED THIS YEAR.