PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC: Form 990, tax year 2021
View the entire original 990 at ProPublica ↗
- Organization
- PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC (EIN 58-1966822)
- Tax period
- 2021-10-01 to 2022-09-30
- Filed
- 2024-01-25
- IRS object ID
- 202430259349300848
- Schema version
- 2021v4.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule I
- Schedule J
- Schedule L
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-01-25T18:14:34-06:00 | ReturnTs |
| Tax Period End | 2022-09-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 440160260 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | FORVIS LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 500 RIDGEFIELD COURT | AddressLine1Txt |
| City | ASHEVILLE | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 28806 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2021-10-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 581966822 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PEDIATRIC BRAIN TUMOR FOUNDATION | BusinessNameLine1Txt |
| Business Name Line2 | OF THE UNITED STATES INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PEDI | BusinessNameControlTxt |
| Phone | 8286656891 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6065 ROSWELL ROAD NE STE 505 | AddressLine1Txt |
| City | ATLANTA | CityNm |
| State Abbreviation | GA | StateAbbreviationCd |
| ZIP | 30328 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | LARRY LITTLE | PersonNm |
| Person Title | SECRETARY | PersonTitleTxt |
| Phone | 8286656891 | PhoneNum |
| Signature | 2024-01-25 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | LARRY | PersonFirstNm |
| Person Last | LITTLE | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | AMY BIBBY | PreparerPersonNm |
| PTIN | P00445891 | PTIN |
| Phone | 8282542254 | PhoneNum |
| Preparation | 2024-01-25 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 3 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2021 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amended Return | Yes (X) | AmendedReturnInd |
| Principal Officer | COURTNEY DAVIES | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6065 ROSWELL ROAD NE STE 505 | AddressLine1Txt |
| City | ATLANTA | CityNm |
| State Abbreviation | GA | StateAbbreviationCd |
| ZIP | 30328 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $6,022,145 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CURETHEKIDS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1992 | FormationYr |
| Legal Domicile State | GA | LegalDomicileStateCd |
| Activity Or Mission | ELIMINATE CHILDHOOD BRAIN TUMORS AND SUPPORT FAMILIES LIVING WITH THIS DEVASTATING DISEASE. | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 26 | TotalEmployeeCnt |
| Total Volunteers | 350 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $6,015,457 | PYContributionsGrantsAmt |
| CY Contributions Grants | $6,000,577 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | -$15,461 | PYInvestmentIncomeAmt |
| CY Investment Income | $21,568 | CYInvestmentIncomeAmt |
| PY Other Revenue | $0 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $5,999,996 | PYTotalRevenueAmt |
| CY Total Revenue | $6,022,145 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $2,128,614 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,492,677 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,907,400 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,189,489 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $626,442 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,231,795 | PYOtherExpensesAmt |
| CY Other Expenses | $1,505,808 | CYOtherExpensesAmt |
| PY Total Expenses | $5,267,809 | PYTotalExpensesAmt |
| CY Total Expenses | $6,187,974 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $732,187 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$165,829 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $6,277,731 | TotalAssetsBOYAmt |
| Total Assets EOY | $5,993,060 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $846,841 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $727,999 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $5,430,890 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $5,265,061 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | VISION: A WORLD WITHOUT CHILDHOOD BRAIN TUMORS.MISSION: CARE. CURE. THRIVE. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $4,681,490 | ExpenseAmt |
| Grant | $2,492,677 | GrantAmt |
| Revenue | $6,022,145 | RevenueAmt |
| Desc | SEE SCHEDULE O | Desc |
| Total Program Service Expenses | $4,681,490 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (1) | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | Yes (1) | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 26 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 26 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | GEOFF STILL | PersonNm |
| Phone | 8284180814 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6065 ROSWELL ROAD NE STE 505 | AddressLine1Txt |
| City | ATLANTA | CityNm |
| State Abbreviation | GA | StateAbbreviationCd |
| ZIP | 30328 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| ANDREW AJ JANOWER | ||||||
| CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| KRISTIN YOUNG | ||||||
| VICE CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ANNE SUTTON | ||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| JEFF GELFAND | ||||||
| TREASURER | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| CHUCK BODERMAN | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| CHASE JONES | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| LARRY LITTLE | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| KARL MUELLER | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| KEN MURPHY | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| JOHN RAGNONI | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| SUSIE ROSSICK | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| JILL SCOGNAMIGLIO | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| COURTNEY DAVIES | ||||||
| PRESIDENT/CEO | 50.00 | Yes (X) | $272,939 | $0 | $13,518 | |
| GEOFF STILL | ||||||
| CFO | 50.00 | Yes (X) | $146,382 | $0 | $17,765 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $419,321 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $31,283 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Government Grants | $344,679 | GovernmentGrantsAmt |
| All Other Contributions | $5,655,898 | AllOtherContributionsAmt |
| Noncash Contributions | $10,508 | NoncashContributionsAmt |
| Total Contributions | $6,000,577 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $20,874 | TotalRevenueColumnAmt |
| Exclusion | $20,874 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other | $694 | OtherAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other | $0 | OtherAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other | $694 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $694 | TotalRevenueColumnAmt |
| Exclusion | $694 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,022,145 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $21,568 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,059,678 | TotalAmt |
| Program Services | $2,059,678 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $432,999 | TotalAmt |
| Program Services | $432,999 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $450,604 | TotalAmt |
| Program Services | $296,916 | ProgramServicesAmt |
| Management And General | $116,835 | ManagementAndGeneralAmt |
| Fundraising | $36,853 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $75,000 | TotalAmt |
| Program Services | $75,000 | ProgramServicesAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,357,816 | TotalAmt |
| Program Services | $846,573 | ProgramServicesAmt |
| Management And General | $266,137 | ManagementAndGeneralAmt |
| Fundraising | $245,106 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $51,584 | TotalAmt |
| Program Services | $33,580 | ProgramServicesAmt |
| Management And General | $9,669 | ManagementAndGeneralAmt |
| Fundraising | $8,335 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $155,647 | TotalAmt |
| Program Services | $95,996 | ProgramServicesAmt |
| Management And General | $29,245 | ManagementAndGeneralAmt |
| Fundraising | $30,406 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $98,838 | TotalAmt |
| Program Services | $64,388 | ProgramServicesAmt |
| Management And General | $18,643 | ManagementAndGeneralAmt |
| Fundraising | $15,807 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $570,751 | TotalAmt |
| Program Services | $436,877 | ProgramServicesAmt |
| Management And General | $118,619 | ManagementAndGeneralAmt |
| Fundraising | $15,255 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $119,156 | TotalAmt |
| Program Services | $21,247 | ProgramServicesAmt |
| Management And General | $614 | ManagementAndGeneralAmt |
| Fundraising | $97,295 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $150,282 | TotalAmt |
| Program Services | $79,259 | ProgramServicesAmt |
| Management And General | $26,845 | ManagementAndGeneralAmt |
| Fundraising | $44,178 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,916 | TotalAmt |
| Program Services | $7,176 | ProgramServicesAmt |
| Management And General | $5,740 | ManagementAndGeneralAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $141,230 | TotalAmt |
| Program Services | $50,000 | ProgramServicesAmt |
| Management And General | $83,878 | ManagementAndGeneralAmt |
| Fundraising | $7,352 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $59,554 | TotalAmt |
| Program Services | $30,918 | ProgramServicesAmt |
| Management And General | $16,416 | ManagementAndGeneralAmt |
| Fundraising | $12,220 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,021 | TotalAmt |
| Program Services | $19,323 | ProgramServicesAmt |
| Management And General | $848 | ManagementAndGeneralAmt |
| Fundraising | $850 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,703 | TotalAmt |
| Management And General | $5,703 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,996 | TotalAmt |
| Program Services | $8,007 | ProgramServicesAmt |
| Management And General | $13,989 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| FEES & LICENSES | $334,796 | $98,893 | $155,664 | $80,239 |
| MISCELLANEOUS | $55,294 | $19,937 | $5,790 | $29,567 |
| AUTO EXPENSE | $13,109 | $4,723 | $5,407 | $2,979 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,187,974 | TotalAmt |
| Program Services | $4,681,490 | ProgramServicesAmt |
| Management And General | $880,042 | ManagementAndGeneralAmt |
| Fundraising | $626,442 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,257,178 | BOYAmt |
| EOY | $1,407,813 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $519,490 | BOYAmt |
| EOY | $618,647 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $27,545 | BOYAmt |
| EOY | $94,517 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $44,390 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $8,665 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,427 | BOYAmt |
| EOY | $35,725 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,462,091 | BOYAmt |
| EOY | $3,491,679 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $344,679 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,277,731 | BOYAmt |
| EOY | $5,993,060 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $74,542 | BOYAmt |
| EOY | $289,128 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $772,299 | BOYAmt |
| EOY | $438,871 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $846,841 | BOYAmt |
| EOY | $727,999 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,078,046 | BOYAmt |
| EOY | $2,425,569 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,352,844 | BOYAmt |
| EOY | $2,839,492 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,430,890 | BOYAmt |
| EOY | $5,265,061 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,277,731 | BOYAmt |
| EOY | $5,993,060 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$165,829 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,643,146 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,927,494 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,471,860 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,836,629 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $6,000,577 | CurrentTaxYearAmt |
| Total | $31,879,706 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,643,146 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,927,494 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,471,860 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,836,629 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $6,000,577 | CurrentTaxYearAmt |
| Total | $31,879,706 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $735,543 | SubstantialContributorsTotAmt |
| Public Support Total170 | $31,144,163 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $109,546 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $16,620 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $45,248 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $14,534 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $21,568 | CurrentTaxYearAmt |
| Total | $207,516 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $32,087,222 | TotalSupportAmt |
| Public Support CY170 | 0.97060 | PublicSupportCY170Pct |
| Public Support PY170 | 0.95740 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,187,974 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,187,974 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $459,399 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $114,850 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $404,647 | CurrentYearMinus3Amt |
| Current Year Minus2 | $506,409 | CurrentYearMinus2Amt |
| Current Year Minus1 | $413,390 | CurrentYearMinus1Amt |
| Current Year | $459,399 | CurrentYearAmt |
| Total | $1,783,845 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,675,768 | LobbyingCeilingAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $101,162 | CurrentYearMinus3Amt |
| Current Year Minus2 | $126,602 | CurrentYearMinus2Amt |
| Current Year Minus1 | $103,348 | CurrentYearMinus1Amt |
| Current Year | $114,850 | CurrentYearAmt |
| Total | $445,962 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $668,943 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,041,946 | BeginningYearBalanceAmt |
| Contributions | $431,821 | ContributionsAmt |
| End Year Balance | $1,473,767 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $816,243 | BeginningYearBalanceAmt |
| Contributions | $225,703 | ContributionsAmt |
| End Year Balance | $1,041,946 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,016,243 | BeginningYearBalanceAmt |
| Other Expenditures | $200,000 | OtherExpendituresAmt |
| End Year Balance | $816,243 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,016,243 | BeginningYearBalanceAmt |
| End Year Balance | $1,016,243 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,716,243 | BeginningYearBalanceAmt |
| Other Expenditures | $700,000 | OtherExpendituresAmt |
| End Year Balance | $1,016,243 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 1.00000 | BoardDesignatedBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $44,390 | OtherCostOrOtherBasisAmt |
| Depreciation | $8,665 | DepreciationAmt |
| Book Value | $35,725 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $35,725 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | ERC RECEIVABLE | Desc |
| Book Value | $344,679 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $344,679 | TotalBookValueOtherAssetsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $6,021,114 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Not Reported | $0 | RevenueNotReportedAmt |
| Revenue Subtotal | $6,021,114 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $337 | InvestmentExpensesNotIncldAmt |
| Other Revenues Not Included | $694 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $1,031 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $6,022,145 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $6,186,943 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $6,186,943 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $337 | InvestmentExpensesNotIncld2Amt |
| Other Expenses Not Included | $694 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $1,031 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $6,187,974 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE ENDOWMENT FUNDS ARE A BOARD DESIGNATED RESERVE FUND TO ASSURE THE FOUNDATION'S ABILITY TO RESPOND TO PROGRAM RELATED OPPORTUNITIES (BOTH RESEARCH AND FAMILY SUPPORT) THAT MAY BE BEYOND THE FUNDS AVAILABLE FROM NORMAL OPERATIONS. |
| PART X, LINE 2: | THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE; ACCORDINGLY, THE ACCOMPANYING FINANCIAL STATEMENTS DO NOT REFLECT A PROVISION OR LIABILITY FOR FEDERAL AND STATE INCOME TAXES. THE FOUNDATION HAS DETERMINED THAT IT DOES NOT HAVE ANY MATERIAL UNRECOGNIZED TAX BENEFITS OR OBLIGATIONS AS OF SEPTEMBER 30, 2022. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | GAIN ON SALE OF ASSETS 694. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | GAIN ON SALE OF ASSET 694. |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (36 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt | Address Line1ForeignAddress/AddressLine1Txt | CityForeignAddress/CityNm | CountryForeignAddress/CountryCd | Foreign PostalForeignAddress/ForeignPostalCd | Province Or StateForeignAddress/ProvinceOrStateNm |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| AFLAC CANCER AND BLOOD DISORDER CENTER | ||||||||||||||
| 5455 MERIDIAN MARK ROAD STE 400 | ATLANTA | GA | 30342 | 582367819 | 501(C)(3) | $65,000 | $0 | RESEARCH GRANT | ||||||
| ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO | ||||||||||||||
| 225 E CHICAGO AVE BOX 130 | CHICAGO | IL | 60611 | 362170833 | 501(C)(3) | $7,122 | $0 | VS. CANCER GRANT | ||||||
| ARMS WIDE OPEN CHILDHOOD CANCER FOUNDATION | ||||||||||||||
| PO BOX 258 | MARLBORO | NJ | 07746 | 270811733 | 501(C)(3) | $10,000 | $0 | VS. CANCER GRANT | ||||||
| CAMP RONALD MCDONALD FOR GOOD TIMES | ||||||||||||||
| 56400 APPLE CANYON RD | MOUNTAIN CENTER | CA | 92561 | 953167869 | 501(C)(3) | $8,750 | $0 | VS. CANCER GRANT | ||||||
| CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES | ||||||||||||||
| 625 S COUNTY LINE RD | HINSDALE | IL | 60521 | 363918407 | 501(C)(3) | $59,363 | $0 | RESEARCH GRANT | ||||||
| CHILDREN'S RESEARCH INSTITUTE | ||||||||||||||
| 7144 13TH PL NW | WASHINGTON | DC | 20012 | 521640403 | 501(C)(3) | $32,346 | $0 | RESEARCH GRANT | ||||||
| CHOP RESEARCH INSTITUTE | ||||||||||||||
| 3401 CIVIC CENTER BLVD ROOM P1130 | PHILADELPHIA | PA | 19104 | 231352166 | 501(C)(3) | $64,000 | $0 | SYMPOSIUM EXPENSES | ||||||
| DANA FARBER CANCER INSTITUTE | ||||||||||||||
| 450 BROOKLINE AVE | BOSTON | MA | 02215 | 422263040 | 501(C)(3) | $465,399 | $0 | RESEARCH GRANT | ||||||
| DUKE UNIVERSITY | ||||||||||||||
| OFFICE OF DEVELOPMENT AND | DURHAM | NC | 27701 | 560532129 | 501(C)(3) | $100,000 | $0 | EARLY CAREER DEVELOPMENT | COMMUNICATIONS DUMC-3828 | |||||
| EAST TENNESSEE CHILDREN'S HOSPITAL | ||||||||||||||
| 2018 W CLINCH AVE | KNOXVILLE | TN | 37916 | 626002604 | 501(C)(3) | $52,428 | $0 | VS. CANCER GRANT | ||||||
| GEORGIA STATE UNIVERSITY RESEARCH FOUNDATION | ||||||||||||||
| 30 COURTLAND ST | ATLANTA | GA | 30303 | 581845423 | 501(C)(3) | $52,239 | $0 | RESEARCH GRANT | ||||||
| INTERPLAN CONGRESS MANAGEMENT - ISPNO | ||||||||||||||
| 501(C)(3) | $35,105 | $0 | RESEARCH GRANT | LANDSBERGER STRASSE 155 | MUENCHEN | GM | 80687 | |||||||
| REGENTS OF THE UNIVERSITY OF MICHIGAN | ||||||||||||||
| 500 S STATE STREET | ANN ARBOR | MI | 48109 | 386006309 | 501(C)(3) | $349,845 | $0 | RESEARCH GRANT | ||||||
| SAINT JUDE CHILDRENS RESEARCH HOSPITAL | ||||||||||||||
| 53 PERIMETER CENTER E SUITE 100 | ATLANTA | GA | 30346 | 620646012 | 501(C)(3) | $250,000 | $0 | RESEARCH GRANT | ||||||
| SICKKIDS FOUNDATION | ||||||||||||||
| 501(C)(3) | $55,000 | $0 | RESEARCH GRANT | 525 UNIVERSITY AVE | TORONTO | CA | ON 5G 2LM3 | |||||||
| TOUGH2GETHER AGAINST DIPG CO AWOCCF | ||||||||||||||
| 1600 POYNTZ AVE STE A | MANHATTAN | KS | 66502 | 270811733 | 501(C)(3) | $10,000 | $0 | RESEARCH GRANT | ||||||
| UNIVERSITY OF CINCINNATI | ||||||||||||||
| 2600 CLIFTON AVE | CINCINNATI | OH | 45221 | 311779020 | 501(C)(3) | $100,000 | $0 | RESEARCH GRANT | ||||||
| UPMC CHILDREN'S HOSPITAL OF PITTSBURGH | ||||||||||||||
| 4401 PENN AVE | PITTSBURGH | PA | 15224 | 251865744 | 501(C)(3) | $8,512 | $0 | RESEARCH GRANT | ||||||
| WASHINGTON UNIVERSITY IN ST LOUIS | ||||||||||||||
| 1 BROOKINGS DRIVE | STLOUIS | MO | 63130 | 431519670 | 501(C)(3) | $100,000 | $0 | RESEARCH GRANT | ||||||
| UNC LINEBERGER COMPREHENSIVE CANCER CENTER | ||||||||||||||
| PO BOX 1050 | CHAPEL HILL | NC | 27514 | 566001393 | 501(C)(3) | $15,389 | $0 | VS. CANCER GRANT | ||||||
| OKLAHOMA CHILDREN'S HOSPITAL | ||||||||||||||
| 1200 EVERETT DR BOX 71 | OKLAHOMA CITY | OK | 73104 | 731200262 | 501(C)(3) | $14,089 | $0 | VS. CANCER GRANT | ||||||
| GEISINGER JANET WEIS CHILDREN'S HOSPITAL | ||||||||||||||
| 100 N ACADEMY AVE MC 40-36 | DANVILLE | PA | 178229800 | 240795959 | 501(C)(3) | $9,533 | $0 | VS. CANCER GRANT | ||||||
| BAYSTATE MEDICAL CENTER | ||||||||||||||
| 280 CHESTNUT ST | SPRINGFIELD | MA | 011043563 | 042790311 | 501(C)(3) | $9,316 | $0 | VS. CANCER GRANT | ||||||
| CHILDREN'S HOSPITAL OF ILLINOIS | ||||||||||||||
| 530 NE GLEN OAK AVE | PEORIA | IL | 616370001 | 320353954 | 501(C)(3) | $9,129 | $0 | VS. CANCER GRANT | ||||||
| CHILDREN'S HEALTHCARE OF ATLANTA | ||||||||||||||
| AFLAC CANCER CENTER 3395 NORTHEAST | ATLANTA | GA | 30341 | 582367819 | 501(C)(3) | $8,959 | $0 | VS. CANCER GRANT | EXPY NE | |||||
| UPMC CHILDREN'S HOSPITAL OF PITTSBURGH | ||||||||||||||
| 1 CHILDRENS HOSPITAL DR 4401 PENN | PITTSBURGH | PA | 152241529 | 251865744 | 501(C)(3) | $8,512 | $0 | RESEARCH GRANT | AVE | |||||
| CHILDREN'S HOSPITAL AND MEDICAL CENTER OMAHA | ||||||||||||||
| 8200 DODGE ST | OMAHA | NE | 681144113 | 470379754 | 501(C)(3) | $8,443 | $0 | VS. CANCER GRANT | ||||||
| LEVINE CHILDREN'S HOSPITAL ATRIUM HEALTH FOUNDATION | ||||||||||||||
| 208 EAST BLVD | CHARLOTTE | NC | 282034720 | 566060481 | 501(C)(3) | $8,218 | $0 | VS. CANCER GRANT | ||||||
| TAMPA GENERAL HOSPITAL | ||||||||||||||
| 1 TAMPA GENERAL CIRCLE | TAMPA | FL | 336063571 | 237354477 | 501(C)(3) | $7,661 | $0 | VS. CANCER GRANT | ||||||
| ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO | ||||||||||||||
| 225 E CHICAGO AVE BOX 130 | CHICAGO | IL | 606112991 | 362170833 | 501(C)(3) | $7,122 | $0 | VS. CANCER GRANT | ||||||
| UNIVERSITY OF VIRGINIA HEALTH SYSTEM UVA CHILDREN'S HOSPITAL | ||||||||||||||
| 1204 W MAIN ST | CHARLOTTESVILLE | VA | 229032824 | 810868533 | 501(C)(3) | $6,435 | $0 | VS. CANCER GRANT | ||||||
| NATIONWIDE CHILDREN'S | ||||||||||||||
| 525 E MOUND ST | COLUMBUS | OH | 432155540 | 311036372 | 501(C)(3) | $5,908 | $0 | VS. CANCER GRANT | ||||||
| CHILDREN'S NATIONAL MEDICAL CENTER | ||||||||||||||
| 1 INVENTA PL FL 6 | SILVER SPRING | MD | 209105176 | 521640403 | 501(C)(3) | $5,480 | $0 | VS. CANCER GRANT | ||||||
| SEATTLE CHILDREN'S | ||||||||||||||
| 4800 SAND POINT WAY NE | SEATTLE | WA | 981053901 | 910564748 | 501(C)(3) | $5,026 | $0 | VS. CANCER GRANT | ||||||
| HASBRO CHILDREN'S HOSPITAL | ||||||||||||||
| PO BOX H | PROVIDENCE | RI | 029011697 | 222538470 | 501(C)(3) | $5,015 | $0 | VS. CANCER GRANT | ||||||
| SYDNEY'S INCREDIBLE DEFEAT OF EWING'S SARCOMA | ||||||||||||||
| 1655 N COMMERCE PKWY SUITE 102 | WESTON | FL | 33331 | 453368209 | 501(C)(3) | $78,486 | $0 | GRANT | ||||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 41 | Total501c3OrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)
| Grant TypeGrantTypeTxt | RecipientRecipientCnt | Cash GrantCashGrantAmt |
|---|---|---|
| BUTTERFLY FUND, EMERGENCY FINANCIAL ASSISTANCE PROGRAM FOR FAMILIES | 381 | $424,999 |
| DIRECT AID TO MELTON FAMILY | 1 | $8,000 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ALL ANNUAL RESEARCH GRANTS ARE REVIEWED BY OUR RESEARCH ADVISORY NETWORK AND EVALUATED ON SEVERAL CRITERIA, INCLUDING SCIENTIFIC MERIT OF THE GRANT APPLICATION; SCIENTIFIC BACKGROUND OF THE RESEARCHERS; THE PEER REVIEWED RESEARCH PUBLICATIONS OF THE PRINCIPLE INVESTIGATORS APPLYING; THE SUPPORTING COLLABORATIVE RESEARCH ENVIRONMENT IN THE RESEARCH INSTITUTION; AND THE VIABILITY OF RESEARCH PROPOSED, AND FACILITIES AVAILABLE. EACH GRANT RECIPIENT IS REQUIRED TO SUBMIT PERIODIC UPDATES, AND A FINAL REPORT BEFORE THE FINAL GRANT PAYMENT IS MADE. EACH RESEARCH APPLICATION HAS TO HAVE A HYPOTHESIS DRIVEN RESEARCH PROPOSAL. EACH APPLICATION MUST HAVE A LIST OF SPECIFIC AIMS THAT ARE TO BE ACHIEVED OVER THE TIMELINE OF THE RESEARCH PROJECT. A TIME LINE IS REQUESTED FOR THE ACHIEVEMENT OF THE SPECIFIC AIMS. THE PROGRESS REPORTS REQUIRE THAT THE ACHIEVEMENT OF SPECIFIC AIMS BE DETAILED WITH A SCIENTIFIC DESCRIPTION OF THE MANNER IN WHICH THEY WERE ACHIEVED. IF AN EVENT HAS OCCURRED THAT ALTERS THE ACHIEVEMENT OF THE SPECIFIC AIMS WITHIN THE TIME LINE OF THE RESEARCH PLAN THE RESEARCHERS MUST GIVE A REASON THAT IT HAS NOT BEEN ACHIEVED AND A NO COST EXTENSION MAY BE REQUESTED AND A NEW TIMELINE IS ESTABLISHED BEFORE THE FINAL PROGRESS REPORT IS ISSUED. EACH GRANT ALLOWS FOR THE OPPORTUNITY OF A SITE VISIT BY THE PBTF AND THESE SITE VISITS ARE MADE BY THE DIRECTOR OF RESEARCH AS WELL AS THE SENIOR SCIENTIFIC RESEARCH ADVISOR, THE PBTF PRESIDENT AS WELL AS THE EXECUTIVE DIRECTOR. RESEARCHERS PRESENT THEIR RESEARCH RESULTS IN PERSON AND THE PBTF ASKS QUESTIONS ABOUT THE RESULTS. ALL GRANT APPLICATIONS AND RESEARCH PROJECTS HAVE THE SAME REQUIREMENTS ON GRANT APPROVAL AND REPORTING REGARDLESS OF THE LOCATION OF THE RESEARCHER AND HIS/HER INSTITUTION. THESE REPORTS ARE REVIEWED BY OUR DIRECTOR OF RESEARCH FUNDING AND OUR CONTRACTED SENIOR SCIENTIFIC RESEARCH ADVISOR. FINAL APPROVAL ON ALL GRANTS IS CONDITIONED ON BOARD OF DIRECTOR APPROVAL. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| COURTNEY DAVIES | ||||||||||||||
| PRESIDENT/CEO | $272,939 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $13,518 | $0 | $286,457 | $0 | $0 | $0 |
| GEOFF STILL | ||||||||||||||
| CFO | $146,382 | $0 | $0 | $0 | $0 | $0 | $7,367 | $0 | $10,398 | $0 | $164,147 | $0 | $0 | $0 |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | AMY WEINSTEIN | PersonNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | AJ JANOWER - CHAIR | RelationshipDescriptionTxt |
| Transaction | $75,000 | TransactionAmt |
| Transaction | NATIONAL DIRECTOR, RESEARCH INVESTMENTS (INDEPENDENT CONTRACTOR) | TransactionDesc |
| Sharing Of Revenues | 0 | SharingOfRevenuesInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (11 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART III LINE 4A | THE PEDIATRIC BRAIN TUMOR FOUNDATION (PBTF) LEADS THE WAY IN ENDING THE CHILDHOOD CANCER COMMUNITY'S BIGGEST CRISIS THROUGH RESEARCH FUNDING, FAMILY SUPPORT AND ADVOCACY. DEDICATED WHOLLY TO ADDRESSING THIS RARE, BUT DEVASTATING DISEASE AND GUIDED BY THE EXPERIENCES OF PATIENTS, SURVIVORS, THEIR PARENTS, AND SIBLINGS, PBTF IS THE ONLY ORGANIZATION TO MEET FAMILIES' NEEDS ALONG EVERY STEP OF THEIR CANCER JOURNEY. THE LARGEST PATIENT ADVOCACY FUNDER OF PEDIATRIC BRAIN TUMOR RESEARCH, WE ALSO FUND AND ADVOCATE FOR INNOVATIVE PROJECTS THAT LEAD TO VITAL DISCOVERIES, NEW CLINICAL TRIALS, AND BETTER TREATMENTS ALL BRINGING US CLOSER TO A CURE. 2022 RESEARCH INVESTMENTS: IN 2022, PBTF CONTINUED TO EXPAND THE BREADTH OF OUR ROBUST SCIENTIFIC PORTFOLIO BY INVESTING IN 17 NEW CUTTING-EDGE PEDIATRIC BRAIN TUMOR RESEARCH PROJECTS AT A DOZEN MEDICAL INSTITUTIONS AROUND THE COUNTRY. THE FOCUS AREA FOR THESE STUDIES TARGETED TWO OF THE RAREST AND DEADLIEST FORMS OF PEDIATRIC BRAIN TUMORS, WITH THE LAUNCH OF A NEW INFANT PINEOBLASTOMA RESEARCH FUND AND THE EXPANSION OF OUR DIPG/DMG RESEARCH INVESTMENTS, AS WELL AS CONTINUED INVESTMENTS IN THE STUDY OF THE MOST COMMON FORM OF CHILDHOOD BRAIN TUMORS, PEDIATRIC LOW-GRADE GLIOMA. PREVIOUS YEARS' SEED FUNDING ALSO CONTINUED TO DELIVER RESULTS, WITH OVER A DOZEN SCIENTIFIC MANUSCRIPTS WRITTEN AND ACCEPTED FOR PUBLICATION AND THE SUCCESSFUL APPLICATION BY PBTF-FUNDED RESEARCHERS FOR MULTI-MILLION-DOLLAR NCI/NIH GRANTS TO CONTINUE WORK WITH PROVEN EFFICACY. OUR MISSION OF SUPPORTING THE BRIGHTEST MINDS IN THE FIELD TO ACCELERATE THE PACE OF TARGETED DRUG DEVELOPMENT WAS ALSO ACHIEVED THROUGH PARTICIPATION IN INTERNATIONAL CONFERENCES AND TARGETED STRATEGY FORUMS. ALL RESEARCH FUNDING AWARDS ARE GUIDED BY OUR STRATEGIC PLAN TO DRIVE BASIC SCIENCE EXPLORATION AND ACCELERATE CLINICAL RESEARCH OUTCOMES, AND THEY REFLECT OUR GOALS OF FOSTERING COLLABORATION IN THE FIELD, PROVIDING OPPORTUNITIES FOR EARLY CAREER INVESTIGATORS TO ESTABLISH PRODUCTIVE LABS, AND FUNDING INFRASTRUCTURE AND CORE RESOURCES THAT TURBOCHARGE THE PACE OF RESEARCH AROUND THE WORLD. CORE PROJECT RESOURCES: INFRASTRUCTURE, TECHNOLOGY AND CORE RESOURCES ARE AN ESSENTIAL BUT OFTEN OVERLOOKED INGREDIENT TO UNLOCKING NEW SCIENTIFIC BREAKTHROUGHS. PBTF INVESTED IN THE FOLLOWING PROJECTS IN 2022 TO SUPPORT THIS FREQUENTLY UNMET NEED: DAVID ANDRYSIAK CLINICAL RESEARCH ASSISTANT POSITION - DANA FARBER CANCER INSTITUTE - WITH SUPPORT FROM THE PLGA FUND AT PBTF, THE ORGANIZATION INVESTED IN CRITICAL RESOURCE PERSONNEL THROUGH THE EXECUTION OF A 3-YEAR FUNDING COMMITMENT. IN 2022, WE MADE A PAYMENT OF $70,666 TOWARDS OUR TOTAL $212,000 COMMITMENT. THIS STAFF POSITION IS RESPONSIBLE FOR TUMOR TISSUE COLLECTION, OBTAINING PARENTS' CONSENT PRIOR TO SURGERY AND SHEPHERDING TISSUE HARVESTING DURING SURGERIES AND BIOPSIES. WITH AN INCREASE IN VIABLE TISSUE SAMPLES, RESEARCHERS HAVE THE MATERIAL NEEDED TO TEST NEW HYPOTHESES AND POTENTIAL TREATMENT OPTIONS. CLINICAL DATA COLLECTION AND MANAGEMENT FOR LOW GRADE GLIOMA SUBJECTS - CHILDREN'S BRAIN TUMOR NETWORK (CBTN) - THIS $64,000 INVESTMENT THROUGH THE PLGA FUND AT PBTF WILL ENSURE THAT PLGG PATIENTS' CLINICAL DATA WILL BE TRACKED LONGITUDINALLY BY CONSENTING SUBJECTS AND TRACKING THEIR CLINICAL DATA. SIMILAR TO THE CLINICAL RESEARCH ASSISTANT POSITION AT DANA FARBER CANCER INSTITUTE, THIS ROLE HELPS ENSURE AN INCREASE OF VIABLE TISSUE SAMPLES FOR SCIENTIFIC RESEARCH. CHILDHOOD AND ADOLESCENT BRAIN TUMOR STATISTICAL REPORT CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES (CBTRUS) IN 2022, PBTF COMMISSIONED A FIRST-OF-ITS-KIND STATISTICAL REPORT BY CBTRUS TO INCREASE UNDERSTANDING OF THE SCOPE AND SEVERITY OF PEDIATRIC BRAIN CANCER. PUBLISHED IN NEURO-ONCOLOGY, THIS REPORT CONTAINS THE MOST UP-TO-DATE POPULATION-BASED DATA ON PRIMARY BRAIN AND OTHER CENTRAL NERVOUS SYSTEM (CNS) TUMORS IN CHILDREN AND ADOLESCENTS AVAILABLE IN THE UNITED STATES. IT IS THE FIRST OF ITS KIND TO REPRESENT THE PEDIATRIC AND ADOLESCENT POPULATION, PROVIDE STATE-LEVEL DATA, AND INCLUDE MOLECULAR DATA FOR SOME TUMOR SUBTYPES. PBTF AWARDED CBTRUS A $65,000 GRANT IN 2022 TO FUND THE REPORT. DIPG/DMG NATIONAL BRAIN TUMOR BOARD - IN PARTNERSHIP WITH THE DIPG/DMG RESEARCH FUNDERS ALLIANCE, PBTF HELPED ESTABLISH THIS TUMOR BOARD IN 2022 WITH A 1-YEAR $10,000 FUNDING COMMITMENT. MRI GOGGLES GRANT - EAST TENNESSEE CHILDREN'S HOSPITAL - PBTF INVESTED $49,225 IN 2022 TO SUPPORT THE PURCHASE OF SPECIALIZED VIDEO GOGGLES FOR PEDIATRIC PATIENTS DURING MRIS. THESE GOGGLES OFFER DISTRACTIONS AND DRAMATICALLY REDUCE UNEXPECTED LOUD MRI GRADIENT NOISE TO SOOTHE ANXIOUS CHILDREN DURING THIS IMPORTANT BUT OVERWHELMING PROCEDURE. BASIC SCIENCE INVESTMENTS: FUNDING NOVEL CONCEPTS BROUGHT FORWARD BY CLINICIANS AND SCIENTISTS AROUND THE WORLD IS AT THE VERY CORE OF PBTF'S PHILOSOPHY THAT FINDING THE NEXT TARGETED THERAPY WILL ONLY HAPPEN WHEN NEW IDEAS, NEW STRATEGIES, AND NEW HYPOTHESES HAVE AN OPPORTUNITY FOR TESTING. DURING 2022, PBTF INVESTED IN THE FOLLOWING BASIC SCIENCE INITIATIVES: OPTIMIZING TARGETED INHIBITION TO OVERCOME RESISTANCE AND/OR REBOUND GROWTH IN PLGA BRAIN TUMORS - DANA FARBER CANCER INSTITUTE $190,047 FUNDED IN 2022 OF A 1-YEAR GRANT DISSECTING CELLULAR INTERACTIONS IN PLGGS - DANA FARBER CANCER INSTITUTE - $204,686 FUNDED IN 2022 OF A 1-YEAR GRANT RAPID MOLECULAR TESTING OF HIGH GRADE BRAIN TUMORS - UNIVERSITY OF MICHIGAN MEDICAL CENTER $130,000 FUNDED IN 2022 OF A 1-YEAR GRANT DEFINING ESSENTIAL GENES AND TARGETABLE VULNERABILITIES IN INFANT PINEOBLASTOMA SICK KIDS OF TORONTO $55,000 FUNDED IN 2022 OF A 1-YEAR GRANT (TOTAL FUNDING COMMITMENT OF $105,000) INTEGRATED MOLECULAR AND CLINICAL CHARACTERIZATION OF THE DISSEMINATED PLGG VANDERBILT MEDICAL CENTER $197,500 FUNDED IN 2022 OF A 1-YEAR GRANT RARE BUT UNFORGOTTEN: PRECLINICAL MODELING & SCREENING OF HIGH-RISK PINEOBLASTOMA SUBGROUPS ST. JUDE MEDICAL CENTER $100,000 FUNDED IN 2022 OF A 1-YEAR GRANT NOVEL IMMUNE MEDIATED-GENE THERAPY FOR HIGH GRADE GLIOMA UNIVERSITY OF MICHIGAN $219,845 FUNDED IN 2022 OF A 3-YEAR GRANT (TOTAL FUNDING COMMITMENT OF $669,530) OPTIMIZING OUTCOMES FOR PLGG PATIENTS NATIONAL CHILDREN'S MEDICAL CENTER, GEORGIA STATE UNIVERSITY AND CHILDREN'S HOSPITAL OF ATLANTA $36,803 FUNDED IN 2022 OF A 3-YEAR GRANT (TOTAL FUNDING COMMITMENT OF $364,122; 2022 FUNDING INCLUDED $28,593 TO CHILDREN'S NATIONAL MEDICAL CENTER AND $8,210 TO CHILDREN'S HOSPITAL OF ATLANTA) HUMAN IPSC PLGA MODELS FOR THERAPEUTIC DRUG DISCOVERY AND EVALUATION WASHINGTON UNIVERSITY OF ST. LOUIS MEDICAL CENTER $100,000 FUNDED IN 2022 OF A 3-YEAR GRANT (TOTAL FUNDING COMMITMENT OF $300,000) HARNESSING VIRAL MIMICRY TO TARGET H3K27M DRIVEN PEDIATRIC HIGH GRADE GLIOMA ST. JUDE MEDICAL CENTER $150,000 FUNDED IN 2022 OF A 2-YEAR EARLY CAREER DEVELOPMENT GRANT (TOTAL FUNDING COMMITMENT OF $250,000) IDENTIFYING BRAINSTEM GLIOMA SUBTYPES THAT CAN BE RADIOSENSITIZED BY ATM INHIBITION - DUKE UNIVERSITY $100,000 FUNDED IN 2022 OF A 3-YEAR EARLY CAREER DEVELOPMENT GRANT (TOTAL FUNDING COMMITMENT OF $300,000) MAINTENANCE OF DIPG BLOOD-BRAIN BARRIER INTEGRITY BY ANGIOPOLETIN1 - CHILDREN'S HOSPITAL OF CINCINNATI - $100,000 FUNDED IN 2022 OF A 3-YEAR EARLY CAREER DEVELOPMENT GRANT (TOTAL FUNDING COMMITMENT OF $300,000) DATA PROJECT INVESTIGATING HGG IMMUNE MICROENVIRONMENT DURING TUMORIGENESIS AND TREATMENT IN PRIMARY MOUSE MODELS - DUKE UNIVERSITY MEDICAL CENTER $52,946 FUNDED IN 2022 OF A 1-YEAR EARLY CAREER DEVELOPMENT GRANT INTERROGATING ANTI-TUMOR T CELLS TO DEVELOP ADAPTIVE ACT IMMUNOTHERAPY FOR PEDIATRIC HIGH GRADE GLIOMA UNIVERSITY OF PITTSBURGH $150,000 FUNDED IN 2022 OF A 3-YEAR GRANT (TOTAL FUNDING COMMITMENT OF $450,000 MADE IN PARTNERSHIP WITH THE BRAIN TUMOR FUNDERS' COLLABORATIVE) |
| PART III LINE 4A CONTINUED | CLINICAL TRIALS: WITH THE EASING OF COVID-19 PRECAUTIONS IN THE CLINICS, 2022 SAW A RAPID INCREASE IN CLINICAL TRIAL ENROLLMENT. THESE TRIALS CHALLENGE 'GOLD STANDARD' TREATMENTS AND EXPLORE NEW POSSIBILITIES FOR CHILDREN WHO HAVE RUN OUT OF OTHER EFFECTIVE TREATMENT OPTIONS. THE FOLLOWING PBTF-SUPPORTED CLINICAL TRIALS WERE ACTIVE IN 2022: PNOC021-COMBINATORIAL CLINICAL TRIAL - UNIVERSITY OF CALIFORNIA, SAN FRANCISCO AS PART OF THE PEDIATRIC PACIFIC NEURO ONCOLOGY CONSORTIUM - MULTI-YEAR AWARD TOTALING $300,000 PHASE I/II TRIAL OF MEK162 IN LOW GRADE GLIOMA - DANA FARBER CANCER INSTITUTE (DFCI) - MULTI-YEAR AWARD TOTALING $249,500 PHASE 1 TRIAL OF MARIZOMIB ALONE AND IN COMBINATION WITH PANOBINOSTAT FOR CHILDREN WITH DIFFUSE INTRINSIC PONTINE GLIOMA - PROJECT OPEN DIPG CONTINUATION OF $16,667 GRANT AWARDED IN 2019 THROUGH A NO-COST EXTENSION; STUDY REOPENED IN 2022 AFTER PAUSING FOR ENROLLMENT IN 2020 AND 2021 DUE TO COVID-19 PBTC 0533 HCQ TRIAL PEDIATRIC BRAIN TUMOR CONSORTIUM MULTI-YEAR AWARD TOTALING $350,000 ACNS1833 PHASE III CLINICAL TRIAL CHILDREN'S ONCOLOGY GROUP MULTI-YEAR AWARD TOTALING $400,000 SIOP LOGGIC PHASE III CLINICAL TRIAL GERMAN CANCER RESEARCH INSTITUTE MULTI-YEAR AWARD TOTALING $428,000 ($177,000 DISTRIBUTED IN 2022) GLOBAL TRAINING/EDUCATION: PBTF'S SUPPORT FOR ACADEMIC-DRIVEN INTERNATIONAL RESEARCH MEETINGS SPURS INNOVATION AND FACILITATES THE SHARING OF TIMELY RESEARCH DISCOVERIES ACROSS DISCIPLINES, SUB-SPECIALTIES, COUNTRIES, AND INSTITUTIONS: O INTERNATIONAL SOCIETY OF PEDIATRIC NEUROONCOLOGY'S (ISPNO) - THE BI-ANNUAL ISPNO MEETING OFFERS A CRITICAL CORNERSTONE FOR THE GLOBAL RESEARCH COMMUNITY TO CONNECT AND SHARE REAL TIME DATA AND RESULTS, BUILD RELATIONSHIPS AND BREAK DOWN SILOS IN ORDER TO ACCELERATE THE PACE OF CUTTING-EDGE RESEARCH. PBTF PROVIDED A $40,000 SPONSORSHIP GRANT FOR THE 2022 MEETING. O BRAIN TUMOR EPIDEMIOLOGY CONFERENCE (BTEC): PBTF PROVIDED A $2000 SPONSORSHIP GRANT FOR THIS 2022 MEETING FOCUSED ON PEDIATRIC BRAIN TUMOR EPIDEMIOLOGY. |
| PART III LINE 4A CONTINUED | 2022 FAMILY SUPPORT PROGRAM HIGHLIGHTS: THE EMOTIONAL AND FINANCIAL BURDEN OF A CHILD'S BRAIN TUMOR DIAGNOSIS ON FAMILIES IS PROFOUND. TO EASE THIS BURDEN, PBTF PROVIDES PROGRAMS AND SUPPORT THAT HAVE BEEN DEVELOPED IN PARTNERSHIP WITH FAMILIES, RESEARCHERS, AND HEALTH CARE EXPERTS. IN 2022, WE STRENGTHENED OUR FOCUS ON REACHING MORE FAMILIES IN MORE MEANINGFUL WAYS AND CREATING A TRUE COMMUNITY OF SUPPORT: PBTF CREATED AND IMPLEMENTED A PATIENT FAMILY JOURNEY TOOL IN 2022 THAT MAPS THE PHASES OF THE PEDIATRIC BRAIN TUMOR JOURNEY AND THE UNIQUE STRESSORS AND NEEDS THAT PATIENTS, SURVIVORS, CAREGIVERS, AND SIBLINGS EXPERIENCE DURING EACH PHASE. THIS GUIDE FOR PROGRAM DECISION-MAKING AND ASSESSMENT HAS HELPED IMPROVE HOW WE MEET FAMILIES WHERE THEY ARE IN THEIR JOURNEY. PBTF'S BUTTERFLY FUND PROVIDED $424,998.93 OF EMERGENCY FINANCIAL RELIEF IN 2022, WITH AN AVERAGE OF $1116 PROVIDED PER FAMILY. HOUSING CONTINUED TO BE FAMILIES' MOST SUBSTANTIAL NEED, WITH 49.3% OF ASSISTANCE SUPPORTING RENT AND MORTGAGE PAYMENTS. GROCERY AND GAS CARDS SAW A 46.5% YEAR-OVER-YEAR INCREASE DUE TO THE STEEP RISE IN COSTS FOR THESE EXPENSES. IN ADDITION TO THE FINANCIAL RELIEF PROVIDED THROUGH THE BUTTERFLY FUND, PBTF MOBILIZED TO IDENTIFY AREAS WHERE INCREASED TRANSPORTATION AND TRAVEL COSTS MOST SEVERELY IMPACTED PATIENT FAMILIES AND UNDERTOOK A FUNDRAISING CAMPAIGN TO PROVIDE GAS CARDS TO FAMILIES AT 7 HOSPITALS IN THOSE AREAS. THESE GIFT CARDS WERE DISTRIBUTED TO HOSPITAL PARTNERS NOT RECEIVING SUPPORT FROM THE BUTTERFLY FUND, WIDENING THE REACH OF PBTF'S FINANCIAL ASSISTANCE. VIRTUAL SUPPORT GROUPS BECAME A PRIMARY FOCUS IN PBTF'S 2022 PROGRAMMING, WITH THE CREATION OF GROUPS FOCUSED ON BEREAVED FAMILIES, FAMILIES OF CHILDREN DIAGNOSED WITHIN THE PAST 5 YEARS, AND SPANISH-SPEAKING FAMILIES. WE ALSO EXPANDED OUR PEER TO PEER MENTOR PROGRAM, RESPONDING TO THE GROWING NEED FOR MORE BEREAVED PARENT AND SURVIVOR MENTORS BY INCREASING RECRUITMENT EFFORTS AND STREAMLINING THE PROGRAM'S APPLICATION AND TRAINING PROCESS. FAMILY CAMPS RESUMED IN CALIFORNIA FOLLOWING A 2-YEAR HIATUS DUE TO COVID-19. 68 FAMILY MEMBERS ATTENDED TWO CAMPS, ONE FOR BEREAVED FAMILIES AND ONE FOR CURRENT PATIENT FAMILIES. SUPPORT WAS PROVIDED BY PBTF'S PARTNER MENTAL HEALTH PROFESSIONALS IN THE AREA, OFFERING GROUP SESSIONS FOR PARENTS/CAREGIVERS, SIBLINGS, AND PATIENTS. TOPICS INCLUDED RESILIENCY IN THE BRAIN TUMOR JOURNEY, ENDOCRINE ISSUES, AND NAVIGATING FRIENDSHIPS AFTER MY CHILD DIES. PBTF'S VS. CANCER PROGRAM FUNDED MORE THAN $190K IN GRANTS PROVIDED TO PEDIATRIC ONCOLOGY PROGRAMS ACROSS THE UNITED STATES. THIS FUNDING SAFEGUARDED PSYCHOSOCIAL SUPPORT THAT'S IMPERATIVE TO FAMILIES' WELL-BEING, SUCH AS: O UNIVERSITY OF MASSACHUSETTS MEMORIAL MEDICAL CENTER'S ANIMAL ASSISTED THERAPY (AAT) PROGRAM. THROUGH THIS PROGRAM, FULL-TIME CANINE ASSISTANTS ARE TRAINED TO MEET THE NEEDS OF PEDIATRIC PATIENTS, INCLUDING PARTICIPATING IN OR DEMONSTRATING ACTIVITIES TO REDUCE FEAR CHILDREN MAY HAVE. THESE DOGS CAN SHOW A CHILD HOW TO LIE ON AN MRI TABLE OR DEMONSTRATE THAT BLOOD PRESSURE CUFFS DON'T HURT. FOR CHILDREN WITH GOALS OF GETTING OUT OF BED OR WALKING, THE PROGRAM'S FULL-TIME DOG VALENTINA PROVIDES INCENTIVE AND INSPIRATION, AS WELL AS DISTRACTION FROM DISCOMFORT. WHEN VISITATION IS LIMITED AND VOLUNTEERS AREN'T ALLOWED IN, THE PROFESSIONAL CANINE ASSISTANTTHROUGH MORE STRINGENT INFECTION CONTROL PROTOCOLS AND COMPLETE KNOWLEDGE OF THE DOG'S HEALTH AND ENVIRONMENTIS STILL ABLE TO WORK WITH PATIENTS AND REDUCE THE IMPACT OF ISOLATION. O HASBRO CHILDREN'S HOSPITAL'S "FIGHT CELEBRATION" PATIENT PROM. THIS EVENING INCLUDES DINNER, DANCING, AND OTHER ACTIVITIES THAT OFFER FAMILIES A SPACE TO STEP BACK FROM TREATMENT AND CONNECT WITH ONE ANOTHER WHILE CREATING POSITIVE AND LASTING MEMORIES. FAMILIES BENEFIT FROM SOCIAL ENGAGEMENT WITH EACH OTHER AND HOSPITAL STAFF OUTSIDE OF A CLINIC SETTING AND A SPACE FOR "NORMALCY", ALL IMPORTANT TO THE MENTAL WELL-BEING OF FAMILIES IN THIS JOURNEY. THROUGH THESE AND OTHER FAMILY SUPPORT INITIATIVES, PBTF INCREASED OUR REACH TO NEW FAMILIES BY 66.7% YEAR-OVER-YEAR. 48.6% OF THOSE FAMILIES WERE WITHIN THE FIRST YEAR OF DIAGNOSIS, THE PHASE IDENTIFIED IN THE FAMILY JOURNEY MAP AS HAVING THE GREATEST NEEDS. 2022 ADVOCACY HIGHLIGHTS: WHILE RESEARCHERS SEARCH FOR A CURE FOR PEDIATRIC BRAIN TUMORS, IMMEDIATE CHANGE THAT CAN BENEFIT PATIENTS AND THEIR FAMILIES IS NEEDED. PBTF'S GRASSROOTS ADVOCACY FOCUSES ON PASSING LEGISLATION THAT BENEFITS FAMILIES AND CHANGING STATE-LEVEL HEALTH POLICY SO PEDIATRIC BRAIN TUMOR RESEARCH AND TREATMENT RECEIVE THE ATTENTION AND FUNDING THEY DESERVE. IN 2022, WE INCREASED OUR WORK WITH FEDERAL AND STATE LEGISLATORS AND POLICY MAKERS TO INFLUENCE MEANINGFUL CHANGE THAT ADDRESSES TWO URGENT NEEDS: MORE FUNDING FOR PEDIATRIC BRAIN TUMOR RESEARCH AND POLICIES THAT IMPROVE HEALTH OUTCOMES AND REDUCE THE FINANCIAL BURDEN ON FAMILIES. THESE POLICIES INCLUDE PAID FAMILY LEAVE, ACCESS TO CARE, PALLIATIVE CARE, AND CLINICAL TRIAL ACCESS. OUR 2022 EFFORTS WERE INSTRUMENTAL IN RECRUITING CO-SPONSORS IN THE HOUSE AND SENATE FOR THE STAR REAUTHORIZATION ACT, WHICH WAS SIGNED INTO LAW, AND THE GABRIELLA MILLER KIDS FIRST PEDIATRIC RESEARCH PROGRAM, WHICH RECEIVED AN ADDITIONAL YEAR OF FUNDING. INFORMED BY THE RESULTS OF THE LATEST CBTRUS STATISTICAL REPORT, WE ALSO BEGAN SPEARHEADING EFFORTS IN STATES ACROSS THE COUNTRY TO INCLUDE LANGUAGE ABOUT PEDIATRIC CANCER IN CENTERS FOR DISEASE CONTROL-MANDATED STATE CANCER PLANS. THESE PLANS ACT AS A BLUEPRINT FOR ADDRESSING THE BURDEN OF CANCER IN A SPECIFIC AREA. WHILE ALL PLANS FOCUS ON ADULT CANCERS, FEW THOUGHTFULLY ADDRESS THE UNIQUE NEEDS OF CHILDREN AND THEIR FAMILIES. IN 2022, WE EVALUATED THE QUALITY OF STATES' CANCER PLANS IN RELATION TO PEDIATRIC PATIENTS AND BEGAN ORGANIZING STATE ADVOCACY WORKGROUPS TO ADDRESS THE URGENT NEED FOR PLAN UPDATES. |
| FORM 990, PART VI, SECTION A, LINE 1A | THE BOARD OF DIRECTORS MAY, BY RESOLUTION, DESIGNATE TWO (2) OR MORE DIRECTORS TO CONSTITUTE AN EXECUTIVE COMMITTEE, WHICH COMMITTEE, TO THE EXTENT PROVIDED IN SUCH RESOLUTION, SHALL HAVE AND MAY EXERCISE ALL OF THE AUTHORITY OF THE BOARD OF DIRECTORS IN THE MANAGEMENT OF THE CORPORATION EXCEPT AS OTHERWISE REQUIRED BY LAW. ALL MEMBERS OF THE EXECUTIVE COMMITTEE SHALL BE DIRECTORS OF THE CORPORATION. VACANCIES IN THE MEMBERSHIP OF THE COMMITTEE SHALL BE FILLED BY THE BOARD OF DIRECTORS AT ANY ANNUAL OR SPECIAL MEETING OF THE BOARD OF DIRECTORS. THE EXECUTIVE COMMITTEE SHALL KEEP REGULAR MINUTES OF ITS PROCEEDINGS AND REPORT THE SAME TO THE BOARD. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE RETURN WAS PREPARED BY AN INDEPENDENT ACCOUNTANT WITH ASSISTANCE AND OVERSIGHT BY MANAGEMENT. THE CFO AND PRESIDENT REVIEWED THE RETURN WITH THE PREPARERS AT MULTIPLE STAGES OF COMPLETION. UPON RECEIVING A FINAL DRAFT, THE RETURN WAS PRESENTED AT A SCHEDULED BOARD MEETING. THE RETURN WAS PRESENTED TO THE FULL BOARD BY A MEMBER OF THE ACCOUNTING FIRM AND THE MANAGEMENT OF THE ORGANIZATION, AND A PERIOD OF TIME FOR QUESTIONS AND COMMENTS WAS ALLOWED. |
| FORM 990, PART VI, SECTION B, LINE 12C | ALL FINANCIAL TRANSACTIONS (BOTH REVENUE AND EXPENSE) ARE CONDUCTED WITH THE KNOWLEDGE AND/OR APPROVAL OF EITHER THE PRESIDENT/CEO OR THE CFO. THESE TRANSACTIONS ARE REVIEWED FOR ANY POTENTIAL CONFLICTS OF INTERESTS. ANY ISSUES ARE BROUGHT TO THE ATTENTION OF THE EXECUTIVE COMMITTEE. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE BOARD'S EXECUTIVE COMMITTEE DETERMINES COMPENSATION AND BENEFITS FOR THE PRESIDENT/CEO AFTER REVIEWING THE MOST CURRENT GUIDESTAR NONPROFIT COMPENSATION REPORT, OTHER COMPARABLE DATA, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION, RESPONSIBILITY AND BUDGET TO DETERMINE THE REASONABLENESS OF THE SALARY. |
| FORM 990, PART VI, SECTION C, LINE 18 | RECENT FILINGS OF THE FORM 990 ARE AVAILABLE ONLINE AT CURETHEKIDS.ORG, GUIDESTAR, AND CHARITY NAVIGATOR. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE THROUGH INSPECTION AT THE ADMINISTRATIVE OFFICE IN ASHEVILLE, NC. ADDITIONALLY, THESE DOCUMENTS ARE MADE AVAILABLE TO ALL STATE GOVERNMENTS THAT REQUIRE ANNUAL FILING OF CHARITABLE ORGANIZATIONS. |
| FORM 990, PART XII, LINE 2C: | THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. |
| FORM 990 HEADER - AMENDED RETURN | THE FORM 990 WAS AMENDED TO RECORD THE ERC CREDIT GRANT TO MATCH THE ORGANIZATION'S AUDITED FINANCIAL STATEMENTS. THE FOLLOWING PARTS OF THE RETURN WERE IMPACTED: PART VIII LINE 1 - ADJUSTED TO INCLUDED THE CREDIT PART X ASSETS - ADJUSTED TO REFLECT THE RECEIVABLE PART X NET ASSETS - INCREASED TO REFLECT THE IMPACT OF THE CREDIT SCHEDULE A PART II LN 1 - ADJUSTED TO REFLECT THE ERC CREDIT SCHEDULE B - ERC GRANT REPORTED ON SCHEDULE B SCHEUDLE D PART XI - ADJUSTED TO REFLECT THE CREDIT RECORDED AS INCOME. |