PULMONARY FIBROSIS FOUNDATION: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- PULMONARY FIBROSIS FOUNDATION (EIN 84-1558631)
- Tax period
- 2023-07-01 to 2024-06-30
- Filed
- 2025-03-21
- IRS object ID
- 202540809349301619
- Schema version
- 2023v6.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-03-21T16:04:43-05:00 | ReturnTs |
| Tax Period End | 2024-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 362938874 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | OSTROW REISIN BERK & ABRAMS LTD | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 455 N CITYFRONT PLAZA DR SUITE 1600 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 841558631 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PULMONARY FIBROSIS FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PULM | BusinessNameControlTxt |
| Phone | 3122652182 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 230 EAST OHIO STREET 500 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | SCOTT STASZAK | PersonNm |
| Person Title | PRESIDENT & CEO | PersonTitleTxt |
| Phone | 3122652182 | PhoneNum |
| Signature | 2025-03-17 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (1) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JAMES G QUAID | PreparerPersonNm |
| PTIN | P00641738 | PTIN |
| Phone | 3126707444 | PhoneNum |
| Preparation | 2025-03-17 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | SCOTT STASZAK | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 230 EAST OHIO STREET 500 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $9,341,652 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.PULMONARYFIBROSIS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2000 | FormationYr |
| Legal Domicile State | CO | LegalDomicileStateCd |
| Activity Or Mission | TO ACCELERATE THE DEVELOPMENT OF NEW TREATMENTS AND ULTIMATELY A CURE FOR PULMONARY FIBROSIS. UNTIL THIS GOAL IS ACHIEVED, THE PFF IS COMMITTED TO ADVANCING IMPROVED CARE OF PATIENTS WITH PF AND PROVIDING UNEQUALED SUPPORT AND EDUCATION RESOURCES FOR PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTH CARE PROVIDERS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 43 | TotalEmployeeCnt |
| Total Volunteers | 4213 | TotalVolunteersCnt |
| Total Gross UBI | $2,000 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $8,462,441 | PYContributionsGrantsAmt |
| CY Contributions Grants | $6,167,449 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $3,896,008 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $2,617,915 | CYProgramServiceRevenueAmt |
| PY Investment Income | $419,803 | PYInvestmentIncomeAmt |
| CY Investment Income | $489,278 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$961,715 | PYOtherRevenueAmt |
| CY Other Revenue | -$998,425 | CYOtherRevenueAmt |
| PY Total Revenue | $11,816,537 | PYTotalRevenueAmt |
| CY Total Revenue | $8,276,217 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $562,831 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $784,888 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $4,198,627 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $4,241,412 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $1,089,462 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $5,580,357 | PYOtherExpensesAmt |
| CY Other Expenses | $3,982,701 | CYOtherExpensesAmt |
| PY Total Expenses | $10,341,815 | PYTotalExpensesAmt |
| CY Total Expenses | $9,009,001 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,474,722 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$732,784 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $16,794,445 | TotalAssetsBOYAmt |
| Total Assets EOY | $15,320,155 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $5,059,196 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $3,865,441 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $11,735,249 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $11,454,714 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO ACCELERATE THE DEVELOPMENT OF NEW TREATMENTS AND ULTIMATELY A CURE FOR PULMONARY FIBROSIS. UNTIL THIS GOAL IS ACHIEVED, THE PFF IS COMMITTED TO ADVANCING IMPROVED CARE OF PATIENTS WITH PF AND PROVIDING UNEQUALED SUPPORT AND EDUCATION RESOURCES FOR PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTH CARE PROVIDERS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $1,527,128 | ExpenseAmt |
| Revenue | $1,893,657 | RevenueAmt |
| Desc | PFF REGISTRY: THE PFF REGISTRY PROGRAM RECORDED A TOTAL REVENUE OF $1,972,389, ENCOMPASSING CONTRIBUTIONS AND SPONSORSHIPS AMOUNTING TO $78,732 AND PROGRAM SERVICE REVENUE TOTALING $1,893,657. THIS INITIATIVE SERVES AS A COLLABORATIVE RESEARCH ENDEAVOR, UNITING VARIOUS STAKEHOLDERS SUCH AS PATIENTS, CAREGIVERS, FAMILY MEMBERS, HEALTHCARE PROVIDERS, AND RESEARCHERS WITH THE GOAL OF ADVANCING RESEARCH AND ENHANCING THE QUALITY OF LIFE FOR INDIVIDUALS AFFECTED BY PULMONARY FIBROSIS (PF) AND INTERSTITIAL LUNG DISEASE (ILD).THE GOALS OF THE REGISTRY INCLUDE: ESTABLISH A COMPREHENSIVE INFORMATION SOURCE TO ASSIST RESEARCHERS IN ADDRESSING DIAGNOSTIC, TREATMENT, AND POTENTIAL CURE-RELATED QUERIES. PROVIDE A DATASET ENABLING RESEARCHERS TO ENHANCE THE QUALITY OF CARE IN US-BASED MEDICAL PRACTICES. UTILIZE INFORMATION TO SUPPORT LEGISLATIVE AND ADVOCACY INITIATIVES. ENGAGE THE PF AND ILD COMMUNITIES.THE REGISTRY INCLUDES TWO DISTINCT REGISTRIES: THE PFF PATIENT REGISTRY GATHERED PHYSICIAN-REPORTED MEDICAL INFORMATION TWICE A YEAR FROM OVER 2000 PATIENTS RECEIVING CARE AT 42 PARTICIPATING PFF CARE CENTERS ACROSS THE UNITED STATES FROM 2016 TO 2022. THE PFF COMMUNITY REGISTRY LAUNCHED IN JULY 2022 AND RELIES ON SELF-REPORTED INFORMATION SUBMITTED BY PATIENTS, LUNG TRANSPLANT RECIPIENTS DIAGNOSED WITH PF OR ILD, AS WELL AS THEIR CAREGIVERS AND BIOLOGICAL FAMILY MEMBERS, OVER 2,100 INDIVIDUALS HAVE ENROLLED TO DATE.TOGETHER, THESE REGISTRIES COMPILE DATA IN AN ELECTRONIC DATABASE COVERING PATIENT DIAGNOSIS, MEDICAL HISTORY, TREATMENT, QUALITY OF LIFE, AS WELL AS MEDICAL AND FAMILY HISTORY FROM CAREGIVERS AND FAMILY MEMBERS. THE COLLECTED DATA ARE ANONYMIZED AND INDEPENDENTLY MANAGED BY A DATA COORDINATING CENTER. FURTHERMORE, THE PATIENT REGISTRY OBTAINED BLOOD SAMPLES WITH PATIENT CONSENT, WHICH WERE THEN ANONYMIZED AND INDEPENDENTLY MANAGED BY A MEDICAL SPECIMEN STORAGE FACILITY ASSOCIATED WITH THE DATA COORDINATING CENTER.CURRENTLY, 54 RESEARCH PROJECTS HAVE BEEN COMPLETED OR ARE UNDERWAY USING CLINICAL DATA AND SOME UTILIZED BIOSAMPLES AND/OR HRCT SCANS FROM THE PATIENT REGISTRY. MOST OF THESE STUDIES ARE CLINICAL IN NATURE, BUT BASIC/TRANSLATIONAL PROJECTS AND PATIENT-CENTERED RESEARCH ALSO ARE WELL REPRESENTED. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,213,497 | ExpenseAmt |
| Revenue | $424,708 | RevenueAmt |
| Desc | PFF SUMMIT: PFF SUMMIT 2023 IS THE PFF'S BIENNIAL INTERNATIONAL HEALTH CARE CONFERENCE ON PULMONARY FIBROSIS (PF). TOTAL REVENUE RECOGNIZED FOR THE PFF SUMMIT WAS $1,243,366, WHICH INCLUDED SPONSORSHIPS AND CONTRIBUTIONS OF $1,157,842 AND PROGRAM SERVICE FEES OF $85,524. THE GOAL OF THE PFF SUMMIT IS TO FOSTER A COLLABORATIVE ENVIRONMENT TO IMPROVE EDUCATION AND AWARENESS OF PF AND TO IDENTIFY NEW APPROACHES TO TREAT, AND ULTIMATELY CURE, THIS DEVASTATING DISEASE. THE PFF SUMMIT FEATURED AN INNOVATIVE CONTINUING MEDICAL EDUCATION (CME) AND MAINTENANCE OF CERTIFICATION (MOC) PROGRAM FOR HEALTH CARE PROFESSIONALS, RESEARCHERS, ALLIED HEALTH PROFESSIONALS, AND INDUSTRY REPRESENTATIVES AND OFFERED EDUCATIONAL SESSIONS FOR PF PATIENTS AND CAREGIVERS THAT ADDRESS THEIR GROWING EDUCATIONAL NEEDS. DURING SUMMIT 2023, THE PFF FEATURED A FULL DAY SESSION FOR COMMUNITY PULMONOLOGISTS AND ILD FELLOWS, A HALF-DAY SESSION FOR NURSES AND ALLIED HEALTH PROFESSIONALS, 20 DIFFERENT SESSIONS FOR PATIENTS, CAREGIVERS, TRANSPLANT RECIPIENTS, AND THOSE WHO HAVE LOST A LOVED ONE, 10 SESSIONS FOR PROFESSIONALS, AND TWO PLENARY SESSIONS (ALL AUDIENCE) WITH 128 MEMBERS OF FACULTY ON THE ROSTER. (NOTE: SOME EXPENSES FOR THE PFF SUMMIT 2023 WERE INCLUDED IN THE 2022 FORM 990). | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $902,681 | ExpenseAmt |
| Grant | $760,000 | GrantAmt |
| Desc | RESEARCH:TOTAL REVENUE RECOGNIZED FOR RESEARCH WAS $720,426, WHICH IS COMPRISED OF CONTRIBUTIONS AND SPONSORSHIPS. THE PULMONARY FIBROSIS FOUNDATION (PFF) PLACES ENORMOUS IMPORTANCE ON CREATING AN ENVIRONMENT THAT WILL ASSIST IN THE DEVELOPMENT OF EFFECTIVE TREATMENTS FOR PULMONARY FIBROSIS (PF). IN ADDITION TO CREATING THE PFF PATIENT REGISTRY TO PROVIDE RESEARCHERS WITH DATA TO ADDRESS SPECIFIC RESEARCH QUESTIONS, WE ARE DIRECTLY FUNDING PF RESEARCH THROUGH THE PFF SCHOLARS PROGRAM, DEVELOPING LEGISLATIVE ADVOCACY EFFORTS, ENCOURAGING COLLABORATIVE RELATIONS BETWEEN INDUSTRY AND ACADEMIC RESEARCHERS, DELIVERING KEY COMMUNICATIONS TO PATIENTS, AND DEVELOPING SOLUTIONS TO BRIDGE EXISTING GAPS IN PF RESEARCH.THE PFF SCHOLARS PROGRAM SUPPORTS PROJECTS THAT OFFER A HIGH LIKELIHOOD OF IMPROVING THE UNDERSTANDING OF PF IN THE FOLLOWING RESEARCH AREAS: BASIC SCIENCE, TRANSLATIONAL, CLINICAL, EPIDEMIOLOGICAL, AND HEALTH SERVICES. THE GOAL OF THE PFF SCHOLARS PROGRAM IS TO SUPPORT EMERGING INVESTIGATORS TO ADVANCE RESEARCH THAT COULD TRANSLATE INTO SUCCESSFUL THERAPIES, WHILE ALSO ENABLING THESE PROMISING RESEARCHERS TO OBTAIN INDEPENDENT FUNDING AND CONTINUE THEIR CUTTING-EDGE RESEARCH. THE RESEARCH REVIEW COMMITTEE ADMINISTERS THE PEER-REVIEW PROCESS, WHICH IS COMPRISED OF 25 CREDIBLE EXPERTS FROM THE US AND CANADA. AFTER THEIR REVIEW AND RECOMMENDATIONS, THE PFF FUNDED SIX GRANTS OF $100,000 EACH OVER A TWO-YEAR PERIOD IN THE 2024 CYCLE. THE PFF ALSO CONSIDERS OTHER SMALLER GRANTS THAT FIT THE PARAMETERS OF THE RESEARCH GUIDELINES. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,282,173 | ExpenseAmt |
| Grant | $24,888 | GrantAmt |
| Revenue | $299,550 | RevenueAmt |
| Desc | EDUCATION:THE PULMONARY FIBROSIS FOUNDATION (PFF) IS COMMITTED TO PROVIDING QUALITY DISEASE EDUCATION TO THE PULMONARY FIBROSIS COMMUNITY. THE PFF PROVIDES PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTH-CARE PROVIDERS WITH RESOURCES TO MORE FULLY UNDERSTAND PF AND PROVIDES PATIENTS WITH THE TOOLS NECESSARY TO LIVE WITH THE DISEASE AND IMPROVE THEIR QUALITY OF LIFE.THE PFF DISEASE EDUCATION WEBINAR SERIES PROVIDES A FREE WAY FOR PATIENTS, CAREGIVERS, AND FAMILIES TO LEARN FROM PF SPECIALISTS ON A VARIETY OF TOPICS. DURING FY23-24, THE PFF DISEASE EDUCATION WEBINAR SERIES INCLUDED SEVEN WEBINARS. THE PFF DISEASE EDUCATION WEBINAR SERIES TOPICS INCLUDED: FAMILIAL PULMONARY FIBROSIS, SLEEP DISORDERS AND PF, EMERGENCY PREPAREDNESS, PULMONARY REHABILITATION, AND MORE. THE PFF DISEASE EDUCATION WEBINAR SERIES HOSTED OVER 1,300 LIVE ATTENDEES. WEBINARS ARE RECORDED AND AVAILABLE FOR VIEWING ON BOTH THE PULMONARY FIBROSIS FOUNDATION WEBSITE AND YOUTUBE CHANNEL. WEBINARS FROM THE PFF DISEASE EDUCATION WEBINAR SERIES FROM THIS TIMEFRAME HAVE AMASSED OVER 11,000 VIEWS ON YOUTUBE. IN ADDITION TO THE PFF DISEASE EDUCATION WEBINAR SERIES, THE FOUNDATION HAS DEVELOPED A LIBRARY OF DISEASE EDUCATION MATERIALS. DURING FY23-24, THE PULMONARY FIBROSIS FOUNDATION DEVELOPED THE FOLLOWING MATERIALS: "UNDERSTANDING PULMONARY FUNCTION TESTS: A GUIDE FOR PEOPLE LIVING WITH PULMONARY FIBROSIS," "COMMON HEALTH RESEARCH TERMS: A GUIDE FOR PEOPLE LIVING WITH PULMONARY FIBROSIS," "LUNG BIOPSY FOR INTERSTITIAL LUNG DISEASE" FACT SHEET, AND "PROGRESSIVE PULMONARY FIBROSIS AND PROGRESSIVE FIBROTIC INTERSTITIAL LUNG DISEASE" FACT SHEET. MARKETING: THE MARKETING PROGRAM RECORDED TOTAL IN-KIND REVENUE OF $412,122, WHICH INCLUDED REGULAR IN-STORE ADVERTISEMENTS AT A MAJOR RETAILER ACROSS ALL STORES IN THE UNITED STATES DURING THE MONTH OF SEPTEMBER, AS WELL AS ON-LINE ADVERTISING FROM TWO OTHER COMPANIES. THIS ADVERTISING WAS TO SPREAD AWARENESS OF PULMONARY FIBROSIS AND THE FOUNDATION.IN EARLY 2023, THE FOUNDATION LAUNCHED THE MARKETING AND COMMUNICATIONS FOR THE PFF SUMMIT. OUR EFFORTS FEATURED EMAIL AND SOCIAL MEDIA CAMPAIGNS, PRINTED POSTCARDS, MEDIA OUTREACH, AND COMMUNICATION WITH ALL PFF CONSTITUENCIES. THE MARKETING AND AWARENESS EFFORTS RESULTED IN MORE THAN 800 HEALTHCARE EXPERTS, PHYSICIANS, RESEARCHERS, PATIENTS, CAREGIVERS, AND INDUSTRY LEADERS FROM 43 STATES AND 16 COUNTRIES IN ATTENDANCE AT THE CONFERENCE. IN MAY, THE PFF REGISTRY REACHED A MILESTONE OF 2,000 ENROLLEES. SURPASSING THE 2,000-PARTICIPANT MILESTONE DURING REGISTRY RECRUITMENT WEEK IN APRIL, THE PFF USED SOCIAL MEDIA AND EMAIL CAMPAIGNS TO REACH OUR AUDIENCES, AS WELL AS A BRAND-NEW LANDING PAGE ON THE FOUNDATION WEBSITE, REPLACING THE MICROSITE. THE NEW LANDING PAGE IS EASIER TO NAVIGATE, FEATURES MORE PATIENT-FRIENDLY MESSAGING, AND ADHERES TO PFF BRANDING. IN SEPTEMBER, NINE LEADING PATIENT ORGANIZATIONS UNITED TO PRESENT THE FOURTH ANNUAL ILD DAY ON SEPTEMBER 13, TO RAISE AWARENESS AND UNDERSTANDING OF INTERSTITIAL LUNG DISEASE. AN EDUCATIONAL WEBINAR, "BREATHING BETTER WITH SUPPLEMENTAL OXYGEN WAS PRESENTED TO MORE THAN 300 ATTENDEES AND HAS RECEIVED OVER 2,300 VIEWS TO DATE.PFF CARE CENTER NETWORK (CCN):THE PULMONARY FIBROSIS FOUNDATION (PFF) IS DEDICATED TO PROMOTING EARLIER RECOGNITION AND DIAGNOSIS OF PULMONARY FIBROSIS AND ENSURING THAT PATIENTS RECEIVE THE HIGHEST QUALITY HEALTHCARE. AS PART OF THAT COMMITMENT, SINCE 2013 THE PFF HAS WORKED WITH THE PF MEDICAL COMMUNITY TO ESTABLISH AND EXPAND THE PFF CARE CENTER NETWORK (CCN) TO 81 CARE CENTERS AND SEVEN CLINICAL ASSOCIATES WHERE PEOPLE WITH PF CAN FIND EXPERIENCED MEDICAL PROFESSIONALS WHO UNDERSTAND THEIR DISEASE AND SUPPORT SERVICES TO IMPROVE THE QUALITY OF THEIR LIVES. THE GOALS OF THE PFF CCN ARE TO DELIVER STATE OF THE ART, PATIENT-CENTERED CARE; TO DISSEMINATE EDUCATION TO SUPPORT OUR PATIENTS, CAREGIVERS AND PROVIDERS; TO GIVE VOICE TO THE NEEDS OF OUR COMMUNITY THROUGH ADVOCACY AND FUNDRAISING; AND TO ACCELERATE RESEARCH IN PF BOTH DIRECTLY AND THROUGH COLLABORATIONS AND NETWORKING. THE CCN BRINGS HEALTHCARE PROVIDERS TOGETHER TO ADDRESS GAPS IN CARE, RESEARCH AND EDUCATION IN PULMONARY FIBROSIS. CORPORATE PARTNERSHIPS:THE PFF SEEKS SPONSORSHIPS TO SUPPORT ITS MISSION-DRIVEN ACTIVITIES FROM PATIENT-SERVICE AND EDUCATION PROGRAMS TO RESEARCH INITIATIVES. DURING THIS FISCAL YEAR, THE PFF CORPORATE PARTNERSHIPS TEAM OBTAINED SPONSORSHIP TO SUPPORT THE PFF SUMMIT THE WORLD'S LARGEST CONFERENCE FOCUSED ON PULMONARY FIBROSIS AND INTERSTITIAL LUNG DISEASE RESEARCH AND EDUCATION, SEPTEMBER'S PULMONARY FIBROSIS AWARENESS MONTH, THE PFF EDUCATION SYMPOSIUM A VIRTUAL CONFERENCE FOR PATIENTS AND CAREGIVERS FOCUSED ON DISEASE MANAGEMENT, THE PFF CARE CENTER NETWORK, THE PFF REGISTRY, THE PFF PATIENT EDUCATION MATERIALS PROGRAM, THE PFF SUPPORT GROUP LEADERS NETWORK, THE PFF AMBASSADORS PROGRAM, AND THE PFF DISEASE EDUCATION WEBINAR SERIES.IN 2024, THE PFF LAUNCHED THE PFF CORPORATE COMMITTEE. MEMBERS OF THE PHARMACEUTICAL INDUSTRY, SPECIALTY PHARMACY, AND OTHER KEY GROUPS INVOLVED IN PULMONARY FIBROSIS AND INTERSTITIAL LUNG DISEASE TREATMENT MEET SEVERAL TIMES ANNUALLY TO DISCUSS THE NEEDS OF THE PF COMMUNITY AND IDENTIFY POTENTIAL COLLABORATIONS TO HELP IMPROVE THE LIVES OF THOSE LIVING WITH PULMONARY FIBROSIS. ADDITIONALLY, THE PFF WORKS WITH COMPANIES TO REVIEW CLINICAL TRIAL PROTOCOLS, PARTICIPATE IN PATIENT ADVISORY BOARDS, SUPPORT PATIENT RECRUITMENT FOR CLINICAL TRIALS AND MARKET RESEARCH, AND STUDIES EVALUATING DATA FROM THE PFF REGISTRY. THE PROGNOSTIC LUNG FIBROSIS CONSORTIUM (PROLIFIC) CONVENES QUARTERLY THROUGHOUT THE FISCAL YEAR TO REVIEW THE RESULTS OF THE BIOMARKER ANALYSIS AND SUBMIT THE FINDINGS FOR PUBLICATION. PROLIFIC IS A CONSORTIUM OF COMPANIES AND FOUNDATIONS DEVELOPING TESTS TO IDENTIFY IMPORTANT MARKERS FOR PULMONARY FIBROSIS (PF). TWELVE INITIAL BIOMARKERS WERE SELECTED FOR THEIR POTENTIAL TO PREDICT DISEASE COURSE OF PF AND TO ASSESS HOW WELL A DRUG WILL WORK IN A SPECIFIC INDIVIDUAL. FINDINGS WILL BE USED TO INFORM AND COMPARE RESULTS ACROSS DIFFERENT CLINICAL TRIALS TO EXPEDITE REGULATORY APPROVAL OF NEW DRUGS. SUPPORT GROUPS:THE PFF SUPPORT GROUP LEADER NETWORK (SGLN) PROVIDES A FORUM FOR PF SUPPORT GROUP LEADERS TO CONNECT, EXCHANGE IDEAS, AND SHARE BEST PRACTICES. THE SGLN CONSISTS OF OVER 130 SUPPORT GROUPS ACROSS THE COUNTRY. THE PFF PROVIDES AN ONLINE PLATFORM FOR GROUPS TO MEET AND CONNECT WITH OTHERS ACROSS THE NATION. THE PFF PROVIDES PHONE-BASED VIRTUAL SUPPORT GROUPS FOR MEMBERS OF THE PF COMMUNITY WHO EITHER DO NOT HAVE A LOCAL SUPPORT GROUP OR ARE LOOKING FOR ADDITIONAL SUPPORT BETWEEN THEIR OTHER MEETINGS. THERE ARE THREE GROUPS INCLUDING A GROUP FOR GENERAL DISEASE EDUCATION, ONE FOR LUNG TRANSPLANTATION, AND ONE FOR CAREGIVING. THE PFF PROVIDES QUARTERLY TRAINING TO THE PFF SUPPORT GROUP LEADER NETWORK THROUGHOUT THE YEAR.IN OCTOBER 2023, THE PFF HOSTED A VIRTUAL MEETING ONLINE FOR VOLUNTEERS, INCLUDING SUPPORT GROUP LEADERS, PFF AMBASSADORS, AND PFF ADVOCATES TO RECEIVE UP-TO DATE INFORMATION ON THE FOUNDATION, RESOURCES AVAILABLE, AND TRAINING FOR THEIR ROLES. OUTREACH AND AWARENESS:THE PFF AMBASSADOR PROGRAM EMPOWERS PATIENTS, CAREGIVERS, LUNG TRANSPLANT RECIPIENTS, FAMILY MEMBERS, AND THOSE WHO HAVE LOST A LOVED ONE TO SERVE AS SPOKESPEOPLE FOR THE PF COMMUNITY. COMPRISING A DIVERSE AND DYNAMIC GROUP OF VOLUNTEERS FROM ACROSS THE UNITED STATES, PFF AMBASSADORS UNDERGO FORMAL TRAINING TO PREPARE FOR SPEAKING AND ADVOCATING ON BEHALF OF THE PULMONARY FIBROSIS FOUNDATION AND THE PULMONARY FIBROSIS COMMUNITY. PFF AMBASSADORS REPRESENT THE FOUNDATION AS THEY ATTEND EVENTS VIRTUALLY AND IN-PERSON AROUND THE COUNTRY. EVENTS INCLUDE PFF CARE CENTER NETWORK EVENTS, SUPPORT GROUP MEETINGS, EDUCATION EVENTS, FUNDRAISERS, OTHER DISEASE AWARENESS AND EDUCATION PROGRAMS, AND A VARIETY OF MEDIA OPPORTUNITIES. PFF AMBASSADORS PROMOTE DISEASE AWARENESS, PROVIDE UP-TO-DATE INFORMATION, AND OFFER HOPE AND INSPIRATION TO THOSE AFFECTED BY PULMONARY FIBROSIS. IN APRIL 2024, THE PFF WELCOMED 15 NEW PFF AMBASSADORS TO THE PROGRAM. THE PFF PROVIDES MONTHLY TRAINING TO PFF AMBASSADORS THROUGHOUT THE YEAR. ADVOCACY:THE PFF ENGAGED POLICYMAKERS TO REQUEST INCREASED FUNDING FOR PULMONARY FIBROSIS RESEARCH AND IMPROVED ACCESS TO OXYGEN FOR PATIENTS. THE PFF HOSTED A VIRTUAL HILL DAY ON MARCH 6, 2024, TO PROVIDE CONSTITUENTS WITH THE OPPORTUNITY TO MEET WITH THEIR MEMBERS OF CONGRESS AND RAISE AWARENESS ABOUT THE IMPACT OF PULMONARY FIBROSIS AND THE NEED FOR RESEARCH FUNDING. THE PFF WORKED WITH OTHER PATIENT AND PROFESSIONAL ADVOCACY GROUPS TO GET OXYGEN REFORM LEGISLATION INTRODUCED IN THE U.S. CONGRESS AND MET WITH CONGRESSIONAL OFFICES TO IDENTIFY ADDITIONAL SPONSORS FOR THE LEGISLATION. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $3,282,173 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $24,888 | TotalOtherProgSrvcGrantAmt |
| Total Other Prog Srvc Revenue | $299,550 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $6,925,479 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (1) | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 50 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 43 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SCOTT STASZAK | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3122652182 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 230 E OHIO ST SUITE 500 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (23 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| WILLIAM SCHMIDT | ||||||||
| CEO - TERM / DIRECTOR | 1.00 | Yes (X) | Yes (X) | $174,402 | $0 | $5,968 | ||
| FRANCK RAHAGHI | ||||||||
| PAST PRESIDENT & CEO - TERM | 40.00 | Yes (X) | Yes (X) | $127,225 | $0 | $7,180 | ||
| DAVID MCNINCH | ||||||||
| CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| LAURIE CHANDLER CFP | ||||||||
| VICE-CHAIR & TREASURER | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| PATRICIA ROSA | ||||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| MARTIN ATTWELL | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| KENNETH FANG MD | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| TERENCE HALES | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| JULIE HALSTON | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| JEFF HARRIS | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| SUSAN JACOBS RN MS | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| HEATHER KAGEL | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| PJ KAMANI | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| DEVI KUMAR-NAMBIAR JD MBA | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| WAYNE PAN MD PHD MBA | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| SCOTT STASZAK | ||||||||
| PRESIDENT & CEO | 40.00 | Yes (X) | $330,382 | $0 | $10,619 | |||
| JANET BIANCHETTA | ||||||||
| CHIEF FINANCIAL OFFICER | 40.00 | Yes (X) | $148,400 | $0 | $21,303 | |||
| SETH KLEIN | ||||||||
| CHIEF DEVELOPMENT OFFICER | 40.00 | $202,946 | $0 | $6,852 | Yes (X) | |||
| JESSICA SHORE | ||||||||
| SR. VP, CLINICAL AFFAIRS AND QUALITY | 40.00 | $175,210 | $0 | $6,197 | Yes (X) | |||
| ZOE BUBANY | ||||||||
| VP, BOARD AND EXTERNAL RELATIONS | 40.00 | $147,927 | $0 | $20,984 | Yes (X) | |||
| JENNIFER MEFFORD | ||||||||
| VP, CORPORATE PARTNERSHIPS | 40.00 | $153,360 | $0 | $5,486 | Yes (X) | |||
| KATHERINE BEIN | ||||||||
| VP, ADVOCACY AND PROGRAMS | 40.00 | $132,680 | $0 | $25,460 | Yes (X) | |||
| MARY KIENER | ||||||||
| SENIOR DIRECTOR, HR & ADMIN | 40.00 | $131,540 | $0 | $14,080 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,724,072 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $124,129 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 12 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| LC WILLIAMS & ASSOCIATES | |||||
| 150 N MICHIGAN AVE SUITE 3800 | CHICAGO | IL | 60601 | PUBLIC RELATIONS | $146,245 |
| CORNERSTONE GOVERNMENT AFFAIRS | |||||
| 800 MAINE AVENUE SW 7TH FLOOR | WASHINGTON | DC | 20024 | LOBBYING | $120,000 |
| MATTHEW D BRETT SUBSTANCE STRATEGIC VISU | |||||
| 314 WEST SUPERIOR SUITE 300 | CHICAGO | IL | 60654 | WRITING AND GRAPHIC DESIGN | $105,037 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $1,720,670 | FundraisingAmt |
| All Other Contributions | $4,446,779 | AllOtherContributionsAmt |
| Noncash Contributions | $19,006 | NoncashContributionsAmt |
| Total Contributions | $6,167,449 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (5 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| REGISTRY SPECIFIC | 900099 | $1,893,657 | $1,893,657 |
| PFF SUMMIT | 900009 | $424,708 | $424,708 |
| CORPORATE PARTNERSHIPS | 900099 | $281,433 | $281,433 |
| CCN SPECIFIC | 900099 | $16,667 | $16,667 |
| ADVOCACY LEGISLATIVE | 900099 | $1,450 | $1,450 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $2,617,915 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $485,349 | TotalRevenueColumnAmt |
| Exclusion | $485,349 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $39,138 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $35,209 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $3,929 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,929 | TotalRevenueColumnAmt |
| Exclusion | $3,929 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $25,900 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,720,670 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $1,024,151 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$998,251 | TotalRevenueColumnAmt |
| Exclusion | -$998,251 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $3,901 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $6,075 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$2,174 | TotalRevenueColumnAmt |
| Exclusion | -$2,174 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | UBIT AD REVENUE | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $2,000 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $2,000 | UnrelatedBusinessRevenueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $2,000 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $8,276,217 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $2,617,915 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $2,000 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$511,147 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $784,888 | TotalAmt |
| Program Services | $784,888 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,196,834 | TotalAmt |
| Program Services | $694,755 | ProgramServicesAmt |
| Management And General | $207,578 | ManagementAndGeneralAmt |
| Fundraising | $294,501 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,496,225 | TotalAmt |
| Program Services | $1,664,819 | ProgramServicesAmt |
| Management And General | $488,343 | ManagementAndGeneralAmt |
| Fundraising | $343,063 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $72,730 | TotalAmt |
| Program Services | $46,987 | ProgramServicesAmt |
| Management And General | $13,784 | ManagementAndGeneralAmt |
| Fundraising | $11,959 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $223,789 | TotalAmt |
| Program Services | $125,857 | ProgramServicesAmt |
| Management And General | $62,214 | ManagementAndGeneralAmt |
| Fundraising | $35,718 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $251,834 | TotalAmt |
| Program Services | $160,188 | ProgramServicesAmt |
| Management And General | $45,132 | ManagementAndGeneralAmt |
| Fundraising | $46,514 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $46,299 | TotalAmt |
| Program Services | $20,989 | ProgramServicesAmt |
| Management And General | $15,275 | ManagementAndGeneralAmt |
| Fundraising | $10,035 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,076 | TotalAmt |
| Program Services | $27,529 | ProgramServicesAmt |
| Management And General | $4,823 | ManagementAndGeneralAmt |
| Fundraising | $12,724 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $92,618 | TotalAmt |
| Program Services | $92,618 | ProgramServicesAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $28,702 | TotalAmt |
| Management And General | $28,702 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,728,447 | TotalAmt |
| Program Services | $1,641,569 | ProgramServicesAmt |
| Management And General | $32,187 | ManagementAndGeneralAmt |
| Fundraising | $54,691 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,805 | TotalAmt |
| Program Services | $33,805 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $245,114 | TotalAmt |
| Program Services | $111,212 | ProgramServicesAmt |
| Management And General | $5,659 | ManagementAndGeneralAmt |
| Fundraising | $128,243 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $170,204 | TotalAmt |
| Program Services | $97,896 | ProgramServicesAmt |
| Management And General | $7,921 | ManagementAndGeneralAmt |
| Fundraising | $64,387 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $257,284 | TotalAmt |
| Program Services | $173,658 | ProgramServicesAmt |
| Management And General | $25,506 | ManagementAndGeneralAmt |
| Fundraising | $58,120 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $274,033 | TotalAmt |
| Program Services | $238,847 | ProgramServicesAmt |
| Management And General | $27,787 | ManagementAndGeneralAmt |
| Fundraising | $7,399 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,106 | TotalAmt |
| Program Services | $3,898 | ProgramServicesAmt |
| Management And General | $29 | ManagementAndGeneralAmt |
| Fundraising | $179 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $89,455 | TotalAmt |
| Program Services | $81,844 | ProgramServicesAmt |
| Management And General | $2,343 | ManagementAndGeneralAmt |
| Fundraising | $5,268 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $60,830 | TotalAmt |
| Program Services | $40,501 | ProgramServicesAmt |
| Management And General | $7,203 | ManagementAndGeneralAmt |
| Fundraising | $13,126 | FundraisingAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| EVENT EXPENSE | $878,694 | $865,036 | $10,558 | $3,100 |
| DUES AND SUBSCRIPTIONS | $28,034 | $18,583 | $9,016 | $435 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,009,001 | TotalAmt |
| Program Services | $6,925,479 | ProgramServicesAmt |
| Management And General | $994,060 | ManagementAndGeneralAmt |
| Fundraising | $1,089,462 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,685,874 | BOYAmt |
| EOY | $1,509,499 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,862,572 | BOYAmt |
| EOY | $3,896,540 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $124,478 | BOYAmt |
| EOY | $13,073 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $564,795 | BOYAmt |
| EOY | $447,474 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $826,272 | BOYAmt |
| EOY | $393,720 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $276,223 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $242,814 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $58,836 | BOYAmt |
| EOY | $33,409 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,056,650 | BOYAmt |
| EOY | $7,737,418 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $112,882 | BOYAmt |
| EOY | $55,667 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,502,086 | BOYAmt |
| EOY | $1,233,355 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,794,445 | BOYAmt |
| EOY | $15,320,155 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,468,962 | BOYAmt |
| EOY | $541,335 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $388,687 | BOYAmt |
| EOY | $645,813 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,776,594 | BOYAmt |
| EOY | $1,475,869 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,424,953 | BOYAmt |
| EOY | $1,202,424 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,059,196 | BOYAmt |
| EOY | $3,865,441 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,809,572 | BOYAmt |
| EOY | $8,436,792 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,925,677 | BOYAmt |
| EOY | $3,017,922 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,735,249 | BOYAmt |
| EOY | $11,454,714 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,794,445 | BOYAmt |
| EOY | $15,320,155 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$732,784 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $452,249 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,450,064 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,636,670 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,774,899 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $8,462,441 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $6,167,449 | CurrentTaxYearAmt |
| Total | $38,491,523 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,450,064 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,636,670 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,774,899 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $8,462,441 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $6,167,449 | CurrentTaxYearAmt |
| Total | $38,491,523 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $9,096,674 | SubstantialContributorsTotAmt |
| Public Support Total170 | $29,394,849 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $257,033 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $152,919 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $233,512 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $414,669 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $485,349 | CurrentTaxYearAmt |
| Total | $1,543,482 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $500 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,000 | CurrentTaxYearAmt |
| Total | $2,500 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $12,865 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $500 | CurrentTaxYearMinus2YearsAmt |
| Total | $13,367 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $40,050,872 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $14,515,177 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.73390 | PublicSupportCY170Pct |
| Public Support PY170 | 0.68920 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | MISCELLANEOUS INCOME - 2019 AMOUNT: $ 2. 2020 AMOUNT: $ 12,865. 2021 AMOUNT: $ 500. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $24,303 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $77,628 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $101,931 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,823,548 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,925,479 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $496,274 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $124,069 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $449,439 | CurrentYearMinus3Amt |
| Current Year Minus2 | $509,970 | CurrentYearMinus2Amt |
| Current Year Minus1 | $536,193 | CurrentYearMinus1Amt |
| Current Year | $496,274 | CurrentYearAmt |
| Total | $1,991,876 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,987,814 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $198,655 | CurrentYearMinus3Amt |
| Current Year Minus2 | $232,675 | CurrentYearMinus2Amt |
| Current Year Minus1 | $212,891 | CurrentYearMinus1Amt |
| Current Year | $101,931 | CurrentYearAmt |
| Total | $746,152 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $112,360 | CurrentYearMinus3Amt |
| Current Year Minus2 | $127,493 | CurrentYearMinus2Amt |
| Current Year Minus1 | $134,048 | CurrentYearMinus1Amt |
| Current Year | $124,069 | CurrentYearAmt |
| Total | $497,970 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $746,955 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $37,091 | CurrentYearMinus3Amt |
| Current Year Minus2 | $39,596 | CurrentYearMinus2Amt |
| Current Year Minus1 | $29,947 | CurrentYearMinus1Amt |
| Current Year | $24,303 | CurrentYearAmt |
| Total | $130,937 | TotalAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $205,132 | OtherCostOrOtherBasisAmt |
| Depreciation | $171,744 | DepreciationAmt |
| Book Value | $33,388 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $71,091 | OtherCostOrOtherBasisAmt |
| Depreciation | $71,070 | DepreciationAmt |
| Book Value | $21 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $33,409 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp (2 entries)
| DescDesc | Book ValueBookValueAmt |
|---|---|
| OPERATING LEASE RIGHT-OF-USE-ASSETS | $1,176,724 |
| SECURITY DEPOSIT OFFICE | $56,631 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $1,233,355 | TotalBookValueOtherAssetsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OPERATING LEASE LIABILITIES | Desc |
| Amt | $1,202,424 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $1,202,424 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $10,142,112 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $452,249 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $412,122 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $864,371 | RevenueNotReportedAmt |
| Revenue Subtotal | $9,277,741 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $28,702 | InvestmentExpensesNotIncldAmt |
| Other Revenues Not Included | -$1,030,226 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | -$1,001,524 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $8,276,217 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $10,422,647 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $412,122 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $1,030,226 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $1,442,348 | ExpensesNotReportedAmt |
| Expenses Subtotal | $8,980,299 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $28,702 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $28,702 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $9,009,001 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART X, LINE 2: | THE ORGANIZATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (IRC), EXCEPT FOR NET INCOME DERIVED FROM UNRELATED BUSINESS ACTIVITIES. IN ADDITION, THE ORGANIZATION QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A) AND HAS BEEN CLASSIFIED AS AN ORGANIZATION OTHER THAN A PRIVATE FOUNDATION UNDER IRC SECTION 509(A). THE ORGANIZATION'S INCOME TAX FILINGS ARE SUBJECT TO AUDIT BY VARIOUS TAXING AUTHORITIES. IN EVALUATING THE ORGANIZATION'S ACTIVITIES, MANAGEMENT BELIEVES ITS POSITION OF TAX-EXEMPT STATUS IS BASED ON CURRENT FACTS AND CIRCUMSTANCES, AND THERE HAVE BEEN NO UNCERTAIN POSITIONS TAKEN RELATED TO RECORDING INCOME TAXES AS OF JUNE 30, 2024 AND 2023. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | SPECIAL EVENTS -1,024,151. SALE OF GOODS -6,075. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | SPECIAL EVENTS 1,024,151. SALE OF GOODS 6,075. |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | PFF WALKS | Event1Nm |
| Gross Receipts Event1 | $1,236,670 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,236,670 | CharitableContriEvent1Amt |
| Food And Beverage Event1 | $11,275 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $13,161 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $775,400 | OtherDirectExpensesEvent1Amt |
| Event2 | BROADWAY BELTS | Event2Nm |
| Gross Receipts Event2 | $509,900 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $484,000 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $25,900 | GrossRevenueEvent2Amt |
| Food And Beverage Event2 | $67,879 | FoodAndBeverageEvent2Amt |
| Other Direct Expenses Event2 | $156,436 | OtherDirectExpensesEvent2Amt |
| Gross Receipts Total | $1,746,570 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,720,670 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $25,900 | GrossRevenueTotalEventsAmt |
| Food And Beverage Total Events | $79,154 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $13,161 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $931,836 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $1,024,151 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$998,251 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (7 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|---|
| JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE | |||||||||
| 733 N BROADWAY SUITE 117 | BALTIMORE | MD | 21205 | 520595110 | 501(C)(3) | $100,000 | $0 | UNDERSTANDING CURRENT ATTITUDES TOWARD ADVANCE CARE PLANNING AND EVALUATION OF THE IMPACT OF AN EDUCATIONAL TOOL IN PATIENTS WITH PULMONARY FIBROSIS | |
| THE REGENTS OF THE UNIVERSITY OF MICHIGAN | |||||||||
| 1109 GEDDES AVE | ANN ARBOR | MI | 481091274 | 386006309 | 501(C)(3) | $100,000 | $0 | ROLE OF NON-CANONICAL AHR SIGNALING IN CORONAVIRUS EXACERBATIONS OF PULMONARY FIBROSIS | |
| UNIVERSITY OF WISCONSIN-MADISON | |||||||||
| 21 NORTH PARK STREET SUITE 6301 | MADISON | WI | 53715 | 396006492 | 501(C)(3) | $100,000 | $0 | FIBRONECTIN-TARGETING PEPTIDE AS A PET-BASED PROBE FOR ACTIVE PULMONARY FIBROSIS | |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO | |||||||||
| 9500 GILMAN DRIVE DEPT 0934 | LA JOLLA | CA | 920930934 | 943067788 | 501(C)(3) | $100,000 | $0 | CHARACTERIZATION OF PHENOTYPIC PLASTICITY OF IPF ALVEOLAR EPITHELIAL TYPE II CELLS | |
| THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY | |||||||||
| 485 BROADWAY ST | REDWOOD | CA | 94063 | 941156365 | 501(C)(3) | $100,000 | $0 | TERT EXPRESSING ALVEOLAR TYPE II CELLS AS UNIPOTENT PROGENITORS WITH EXPANDED PROLIFERATIVE CAPACITIES | |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | |||||||||
| OFFICE OF THE UNIVERSITY SECRETARY | PHILADELPHIA | PA | 191046303 | 231352685 | 501(C)(3) | $125,000 | $0 | NANOTECHNOLOGY TARGETING OF ALVEOLAR EPITHELIAL PROTEOSTASIS IN PULMONARY FIBROSIS | 1 COLLEGE HALL ROOM 211 |
| TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | |||||||||
| 211 LOW LIBRARY MC 43324 535 WEST | NEW YORK | NY | 10027 | 135598093 | 501(C)(3) | $125,000 | $0 | INVESTIGATION OF KIF15 AS A NOVEL FAMILIAL PULMONARY FIBROSIS GENE | 116TH ST |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 7 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | FOR LARGER GRANTS, THE ORGANIZATION REQUESTS SEMI-ANNUAL REPORTS DETAILING THE USE OF GRANT FUNDS FROM THE RECIPIENT ORGANIZATIONS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| SCOTT STASZAK | ||||||||||||||
| PRESIDENT & CEO | $280,860 | $0 | $49,522 | $0 | $0 | $0 | $9,900 | $0 | $719 | $0 | $341,001 | $0 | $0 | $0 |
| SETH KLEIN | ||||||||||||||
| CHIEF DEVELOPMENT OFFICER | $202,446 | $0 | $500 | $0 | $0 | $0 | $6,133 | $0 | $719 | $0 | $209,798 | $0 | $0 | $0 |
| JESSICA SHORE | ||||||||||||||
| SR. VP, CLINICAL AFFAIRS AND QUALITY | $174,710 | $0 | $500 | $0 | $0 | $0 | $5,478 | $0 | $719 | $0 | $181,407 | $0 | $0 | $0 |
| WILLIAM SCHMIDT | ||||||||||||||
| CEO - TERM / DIRECTOR | $116,053 | $0 | $58,349 | $0 | $0 | $0 | $5,249 | $0 | $719 | $0 | $180,370 | $0 | $0 | $0 |
| JANET BIANCHETTA | ||||||||||||||
| CHIEF FINANCIAL OFFICER | $147,900 | $0 | $500 | $0 | $0 | $0 | $4,839 | $0 | $16,464 | $0 | $169,703 | $0 | $0 | $0 |
| ZOE BUBANY | ||||||||||||||
| VP, BOARD AND EXTERNAL RELATIONS | $147,427 | $0 | $500 | $0 | $0 | $0 | $4,721 | $0 | $16,263 | $0 | $168,911 | $0 | $0 | $0 |
| JENNIFER MEFFORD | ||||||||||||||
| VP, CORPORATE PARTNERSHIPS | $152,860 | $0 | $500 | $0 | $0 | $0 | $4,767 | $0 | $719 | $0 | $158,846 | $0 | $0 | $0 |
| KATHERINE BEIN | ||||||||||||||
| VP, ADVOCACY AND PROGRAMS | $132,180 | $0 | $500 | $0 | $0 | $0 | $4,352 | $0 | $21,108 | $0 | $158,140 | $0 | $0 | $0 |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | A COPY OF FORM 990 IS REVIEWED BY THE FINANCE COMMITTEE BEFORE FILING. THE FORM 990 IS AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING THE FORM. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY WITHIN THE EMPLOYEE HANDBOOK AND ALL EMPLOYEES ARE REQUIRED TO ADHERE TO THE POLICY. EMPLOYEES SIGN A DISCLOSURE FORM EACH YEAR. ANNUALLY, BOARD MEMBERS ARE SENT A FORM TO FILL OUT STATING WHETHER THEY HAVE ANY CONFLICTS OF INTEREST. IF SUCH CONFLICTS EXIST, THEN THEY FILL OUT AN ADDITIONAL FORM OUTLINING THOSE CONFLICTS. THE EXECUTIVE COMMITTEE REVIEWS ANY CONFLICTS THAT ARISE. |
| FORM 990, PART VI, SECTION B, LINE 15 | CHIEF EXECUTIVE OFFICER AND CHIEF OPERATING OFFICER'S COMPENSATION WAS APPROVED BY THE EXECUTIVE COMMITTEE, WHICH SERVES AS THE COMPENSATION COMMITTEE. THIS APPROVAL WAS BASED ON A REVIEW BY AN INDEPENDENT COMPENSATION CONSULTANT AND IS SUPPORTED BY A WRITTEN EMPLOYMENT CONTRACT. THE COMMITTEE ALSO REVIEWED COMPENSATION SURVEYS AND FORM 990S OF OTHER ORGANIZATIONS TO ENSURE THE COMPENSATION WAS APPROPRIATE. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION MAKES ITS FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST AND ON THE ORGANIZATION'S WEBSITE. THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. |
| FORM 990, PART IX, LINE 11G | CONSULTING: PROGRAM SERVICE EXPENSES 1,523,294. MANAGEMENT AND GENERAL EXPENSES 20,145. FUNDRAISING EXPENSES 52,263. TOTAL EXPENSES 1,595,702. OUTSIDE SERVICES: PROGRAM SERVICE EXPENSES 106,907. MANAGEMENT AND GENERAL EXPENSES 9,074. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 115,981. EMPLOYEE ADMINISTRATION FEES: PROGRAM SERVICE EXPENSES 11,368. MANAGEMENT AND GENERAL EXPENSES 2,968. FUNDRAISING EXPENSES 2,428. TOTAL EXPENSES 16,764. |