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NATIONAL ALOPECIA AREATA FOUNDATION: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
NATIONAL ALOPECIA AREATA FOUNDATION (EIN 94-2780249)
Tax period
2023-01-01 to 2023-12-31
Filed
2024-06-26
IRS object ID
202411789349301866
Schema version
2023v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-06-26T14:57:35-07:00ReturnTs
Tax Period End2023-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN883279586PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Hiep Pham CPA IncBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line141041 Trimboli Way 1926AddressLine1Txt
CityFremontCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94538ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2023-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN942780249EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1National Alopecia Areata FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone4154723780PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line165 Mitchell BlvdAddressLine1Txt
CitySan RafaelCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94903ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonNicole FriedlandPersonNm
Person TitleCEOPersonTitleTxt
Phone4154723780PhoneNum
Signature2024-04-02SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstNicolePersonFirstNm
Person LastFriedlandPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonHiep PhamPreparerPersonNm
PTINP01346204PTIN
Phone5107897736PhoneNum
Preparation2024-06-26PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer3TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
Federated Assurance LevelFAL1FederatedAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerNicole FriedlandPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line165 Mitchell Blvd 200BAddressLine1Txt
CitySan RafaelCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94903ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$3,838,340GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.naaf.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1981FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionProvide education & support for persons afflicated with Alopecia Areata; fund research regarding causes and treatment of Alopecia Areata.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee11TotalEmployeeCnt
Total Volunteers500TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$2,083,177PYContributionsGrantsAmt
CY Contributions Grants$2,699,475CYContributionsGrantsAmt
PY Program Service Revenue$112,939PYProgramServiceRevenueAmt
CY Program Service Revenue$256,841CYProgramServiceRevenueAmt
PY Investment Income-$79,331PYInvestmentIncomeAmt
CY Investment Income$146,088CYInvestmentIncomeAmt
PY Other Revenue$281,137PYOtherRevenueAmt
CY Other Revenue$510,946CYOtherRevenueAmt
PY Total Revenue$2,397,922PYTotalRevenueAmt
CY Total Revenue$3,613,350CYTotalRevenueAmt
PY Grants And Similar Paid$191,429PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$175,339CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,406,362PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,559,023CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$404,826CYTotalFundraisingExpenseAmt
PY Other Expenses$783,997PYOtherExpensesAmt
CY Other Expenses$810,684CYOtherExpensesAmt
PY Total Expenses$2,381,788PYTotalExpensesAmt
CY Total Expenses$2,545,046CYTotalExpensesAmt
PY Revenues Less Expenses$16,134PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,068,304CYRevenuesLessExpensesAmt
Total Assets BOY$2,724,730TotalAssetsBOYAmt
Total Assets EOY$3,489,660TotalAssetsEOYAmt
Total Liabilities BOY$473,861TotalLiabilitiesBOYAmt
Total Liabilities EOY$170,487TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,250,869NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$3,319,173NetAssetsOrFundBalancesEOYAmt
MissionProvide education & support for persons afflicated with Alopecia Areata; fund research regarding causes and treatment of Alopecia Areata.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$1,902,948ExpenseAmt
Grant$175,339GrantAmt
Revenue$256,841RevenueAmt
DescAwareness and support - provided emotional support and medical updates for persons suffering from Alopecia Areata. Services provided include newsletters, video & audio tapes, workshops and brochures. Sponsored annual patient conference which featured support sessions and which was attended by persons from the US and other countries. Ascot fund program provided hair pieces for those who cannot afford one. Fulfilled information requests from more than 10,000 people held awareness events at major and minor league ball parks to raise awareness of Alopecia Areata. Funded medical research regarding causes and treatment of Alopecia Areata. Continued development of Alopecia Areata Treatment Development Program.Desc
Total Program Service Expenses$1,902,948TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsYes (true)ReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document13IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee11EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (true)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (true)Form990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonNicole FriedlandPersonNm
Phone4154723780PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line165 Mitchell Blvd 200BAddressLine1Txt
CitySan RafaelCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94903ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (18 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
Ann Hollins
Chair4.00Yes (X)Yes (X)$0$0$0
Bonnie Chong
Vice Chair4.00Yes (X)Yes (X)$0$0$0
Jonelle Massey
Director2.00Yes (X)$0$0$0
Wendy Yu
Director2.00Yes (X)$0$0$0
Jim OConnell
Chief Financial Officer4.00Yes (X)Yes (X)$0$0$0
Ann S Hedges
Director2.00Yes (X)$0$0$0
Deirdre Nero
Director2.00Yes (X)$0$0$0
Tyrone Folliard-Olson
Director2.00Yes (X)$0$0$0
Simon Rubenstein
Secretary4.00Yes (X)Yes (X)$0$0$0
Maureen McGettigan
Director2.00Yes (X)$0$0$0
Ron Saca
Director2.00Yes (X)$0$0$0
Dr Brett King
Director2.00Yes (X)$0$0$0
Shamsha Damani
Director2.00Yes (X)$0$0$0
Nicole Friedland
President & CEO40.00Yes (X)$266,062$0$0
Laura Maciag
Chief Operating Officer35.00Yes (X)$154,000$0$0
Jeanne Rappoport
Chief Administrative Officer40.00Yes (X)$173,555$0$0
Robert Baker III
Chief Growth Officer40.00$128,548$0$0Yes (X)
Lisa Anderson
Senior Director, Research40.00$109,150$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$831,315TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K5IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$2,699,475AllOtherContributionsAmt
Total Contributions$2,699,475TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmtExclusionExclusionAmt
TDP Services624100$117,038$0$0
Conference Registration Fees624100$98,720$0$0
Publications and Community Services624100$41,083$0$0
FieldValueIRS element (for citing)
Total Program Service Revenue$256,841TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$146,088TotalRevenueColumnAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$146,088ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$735,936FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$0ContriRptFundraisingEventAmt
Fundraising Direct Expenses$224,990FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$510,946TotalRevenueColumnAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$510,946ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,613,350TotalRevenueColumnAmt
Related Or Exempt Func Income$256,841RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$657,034ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$175,339TotalAmt
Program Services$175,339ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$831,315TotalAmt
Program Services$665,053ProgramServicesAmt
Management And General$41,565ManagementAndGeneralAmt
Fundraising$124,697FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$389,819TotalAmt
Program Services$311,855ProgramServicesAmt
Management And General$19,491ManagementAndGeneralAmt
Fundraising$58,473FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$127,358TotalAmt
Program Services$101,886ProgramServicesAmt
Management And General$6,369ManagementAndGeneralAmt
Fundraising$19,103FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$126,498TotalAmt
Program Services$101,198ProgramServicesAmt
Management And General$6,325ManagementAndGeneralAmt
Fundraising$18,975FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$84,033TotalAmt
Program Services$67,226ProgramServicesAmt
Management And General$4,202ManagementAndGeneralAmt
Fundraising$12,605FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$2,864TotalAmt
Program Services$0ProgramServicesAmt
Management And General$2,864ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$40,840TotalAmt
Program Services$0ProgramServicesAmt
Management And General$40,840ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$114,749TotalAmt
Program Services$42,855ProgramServicesAmt
Management And General$71,324ManagementAndGeneralAmt
Fundraising$570FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$84,638TotalAmt
Program Services$67,711ProgramServicesAmt
Management And General$4,231ManagementAndGeneralAmt
Fundraising$12,696FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$122,400TotalAmt
Program Services$97,920ProgramServicesAmt
Management And General$6,120ManagementAndGeneralAmt
Fundraising$18,360FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$160,633TotalAmt
Program Services$80,317ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$80,316FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$19,037TotalAmt
Program Services$15,230ProgramServicesAmt
Management And General$951ManagementAndGeneralAmt
Fundraising$2,856FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Research Program$36,017$36,017$0$0
Scholarships$12,524$12,524$0$0
Supplies and Equipment$13,616$10,892$682$2,042
Telephone and Internet$12,578$10,063$628$1,887

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$190,788TotalAmt
Program Services$106,862ProgramServicesAmt
Management And General$31,680ManagementAndGeneralAmt
Fundraising$52,246FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,545,046TotalAmt
Program Services$1,902,948ProgramServicesAmt
Management And General$237,272ManagementAndGeneralAmt
Fundraising$404,826FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$471,291BOYAmt
EOY$1,119,503EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,499,296BOYAmt
EOY$1,642,234EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$51,679BOYAmt
EOY$30,974EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$12,671LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$12,671LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$546,543BOYAmt
EOY$620,904EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$155,921BOYAmt
EOY$76,045EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,724,730BOYAmt
EOY$3,489,660EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$139,824BOYAmt
EOY$91,471EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$175,000BOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$159,037BOYAmt
EOY$79,016EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$473,861BOYAmt
EOY$170,487EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,862,966BOYAmt
EOY$2,935,664EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$387,903BOYAmt
EOY$383,509EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,250,869BOYAmt
EOY$3,319,173EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,724,730BOYAmt
EOY$3,489,660EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,068,304ReconcilationRevenueExpnssAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind
Other Support Sum$0OtherSupportSumAmt

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,535,813CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,500,043CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,734,122CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,036,555CurrentTaxYearMinus1YearAmt
Current Tax Year$2,699,475CurrentTaxYearAmt
Total$9,506,008TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,535,813CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,500,043CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,734,122CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,036,555CurrentTaxYearMinus1YearAmt
Current Tax Year$2,699,475CurrentTaxYearAmt
Total$9,506,008TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$0SubstantialContributorsTotAmt
Public Support Total170$9,506,008PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$58,758CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$15,907CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$12,227CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year-$79,331CurrentTaxYearMinus1YearAmt
Current Tax Year$146,088CurrentTaxYearAmt
Total$153,649TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$20,147CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,600CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$0CurrentTaxYearMinus1YearAmt
Current Tax Year$0CurrentTaxYearAmt
Total$21,747TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Total Support$9,681,404TotalSupportAmt
Public Support CY1700.98190PublicSupportCY170Pct
Public Support PY1700.98180PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind
Public Support Total509$0PublicSupportTotal509Amt
Public Support CY5090PublicSupportCY509Pct
Investment Income CY0InvestmentIncomeCYPct

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$12,671InvestmentCostOrOtherBasisAmt
Depreciation$12,671DepreciationAmt
Book Value$0BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp

FieldValueIRS element (for citing)
DescOperating Lease Right-of Use AssetDesc
Book Value$76,045BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Other Assets$76,045TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescOperating Lease LiabilityDesc
Amt$79,016Amt
FieldValueIRS element (for citing)
Total Liability$79,016TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$3,613,350TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal$3,613,350RevenueSubtotalAmt
Total Revenue Per Form990$3,613,350TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,545,046TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,545,046ExpensesSubtotalAmt
Total Expenses Per Form990$2,545,046TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePt X, Line 2FormAndLineReferenceDesc
ExplanationThe Organization is exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code. The Organization is also exempt from California franchise taxes under Section 23701(d) of the Revenue and Taxation Code and, therefore, has made no provision for Federal or California income taxes. Contributors, donors, and grantors may obtain tax benefits. In addition, the Organization has been determined by the Internal Revenue Service not to be a private foundation within the meaning of Section 509(a) of the Code. The Organization adopted the recognition requirements for uncertain income tax positions as required by generally accepted accounting principles, with no cumulative effect adjustment required. Income tax benefits are recognized for income tax positions taken or expected to be taken in a tax return, only when it is determined that the income tax position will more-likely-thannot be sustained upon examination by taxing authorities. The Organization has analyzed tax positions taken for filing with the Internal Revenue Service and all state jurisdictions where it operates. The Organization believes that income tax filing positions will be sustained upon examination and does not anticipate any adjustments that would result in a material adverse effect on the Organizations financial condition, results of operations, or cash flows. Accordingly, the Organization has not recorded any reserves, or related accruals for interest and penalties for uncertain income tax positions at December 31, 2023. The Organization is subject to routine audits by taxing jurisdictions; however, there are currently no audits for any tax periods in progress.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Awareness EventEvent1Nm
Gross Receipts Event1$735,936GrossReceiptsEvent1Amt
Charitable Contri Event1$510,946CharitableContriEvent1Amt
Gross Revenue Event1$224,990GrossRevenueEvent1Amt
Other Direct Expenses Event1$224,990OtherDirectExpensesEvent1Amt
Gross Receipts Total$735,936GrossReceiptsTotalAmt
Charitable Contributions Tot$510,946CharitableContributionsTotAmt
Gross Revenue Total Events$224,990GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$224,990OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$224,990DirectExpenseSummaryEventsAmt
Net Income Summary$0NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (4 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
Cerner Enviza LLC
2800 Rock Creek ParkwayKansas CityMO64117134172170LLC$60,000Research
University of Miami
PO Box 405803AtlantaGA30384590624458501(c)(3)$20,000Research
Icahn School of Medicine at Mount Sinai
1 Gustave L Levy PlNew YorkNY10029136171197501(c)(3)$43,000Research
PeDRA
205 SE Spokane StSuite 300PortlandOR97202842173231501(c)(3)$24,728Research
FieldValueIRS element (for citing)
Total501c3 Org3Total501c3OrgCnt
Total Other Org4TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)

Base Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Nicole Friedland
$266,062$0$0$0$47,612$0$0$0$0$0$313,674$0$0$0
Laura Maciag
$154,000$0$0$0$30,037$0$0$0$0$0$184,037$0$0$0
Jeanne Rappoport
$173,555$0$0$0$17,508$0$0$0$0$0$191,063$0$0$0

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Pt VI, Line 11bForm 990 is reviewed by Directors at meeting scheduled for that purpose - return preparer is available to explain form and answer questions.
Pt VI, Line 12cOfficers & directors & staff complete annual disclosure statement.
Pt VI, Line 15aWhen hiring the Executive Director and other key employees, and thereafter on an annual basis, the Board performs a thorough review to determine suitable compensation. This process includes a review of comparability data by the Board of Directors including compensation surveys and Forms 990 of similar organizations.
Pt VI, Line 19Governing documents are available through the California Secretary of State. Financial statements, Form 990, and Conflict of Int erest policy are available on the organization website.
Pt XII, Line 2cThe Organization has a separate audit and finance committee. The Audit committee selects the auditor and has audit oversight. The Finance commitee reviews financial statements.