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HYDROCEPHALUS ASSOCIATION INCORPORATED: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
HYDROCEPHALUS ASSOCIATION INCORPORATED (EIN 94-3000301)
Tax period
2023-01-01 to 2023-12-31
Filed
2024-07-15
IRS object ID
202431979349302178
Schema version
2023v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-07-15T16:59:14-05:00ReturnTs
Tax Period End2023-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN541342298PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1KOSITZKA WICKS AND COMPANYBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line14405 COX ROAD SUITE 200AddressLine1Txt
CityGLEN ALLENCityNm
State AbbreviationVAStateAbbreviationCd
ZIP23060ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2023-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN943000301EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1HYDROCEPHALUS ASSOCIATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlHYDRBusinessNameControlTxt
Phone3012023811PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line14340 EAST WEST HIGHWAY SUITE 905AddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonDIANA GRAYPersonNm
Person TitlePRESIDENT AND CEOPersonTitleTxt
Phone3012023811PhoneNum
Signature2024-07-15SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstDIANAPersonFirstNm
Person LastGRAYPersonLastNm
FieldValueIRS element (for citing)
SSN943000301SSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (1)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJENNICA JARDINE WHITFIELD CPAPreparerPersonNm
PTINP01379267PTIN
Phone8048551200PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerDIANA GRAYPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line14340 EAST WEST HIGHWAY SUITE 905AddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$3,960,989GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.HYDROASSOC.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1986FormationYr
Legal Domicile StateDELegalDomicileStateCd
Activity Or MissionFIND A CURE FOR HYDROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED BY THE CONDITION.ActivityOrMissionDesc
Voting Members Governing Body24VotingMembersGoverningBodyCnt
Voting Members Independent24VotingMembersIndependentCnt
Total Employee25TotalEmployeeCnt
Total Volunteers1600TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$4,244,362PYContributionsGrantsAmt
CY Contributions Grants$3,520,084CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$48,407PYInvestmentIncomeAmt
CY Investment Income$137,427CYInvestmentIncomeAmt
PY Other Revenue-$144,226PYOtherRevenueAmt
CY Other Revenue-$29,128CYOtherRevenueAmt
PY Total Revenue$4,148,543PYTotalRevenueAmt
CY Total Revenue$3,628,383CYTotalRevenueAmt
PY Grants And Similar Paid$715,310PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$565,398CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,738,289PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,993,111CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$199,405CYTotalFundraisingExpenseAmt
PY Other Expenses$1,163,895PYOtherExpensesAmt
CY Other Expenses$1,071,147CYOtherExpensesAmt
PY Total Expenses$3,617,494PYTotalExpensesAmt
CY Total Expenses$3,629,656CYTotalExpensesAmt
PY Revenues Less Expenses$531,049PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$1,273CYRevenuesLessExpensesAmt
Total Assets BOY$4,516,368TotalAssetsBOYAmt
Total Assets EOY$4,359,202TotalAssetsEOYAmt
Total Liabilities BOY$852,119TotalLiabilitiesBOYAmt
Total Liabilities EOY$612,422TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$3,664,249NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$3,746,780NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionFIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$1,039,030ExpenseAmt
Grant$553,398GrantAmt
DescRESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) REMAINS DEDICATED TO SUPPORTING HIGH QUALITY, HIGH-IMPACT RESEARCH THROUGH CONTINUED SUPPORT OF THE HA PATIENT POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE BASIC AND TRANSLATIONAL RESEARCH, WHILE THE PEDIATRIC FOCUSED HCRN AND ADULT FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY LINKING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,528,519ExpenseAmt
Grant$12,000GrantAmt
DescSUPPORT AND EDUCATION THE HYDROCEPHALUS ASSOCIATION IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY HYDROCEPHALUS BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2023, HA STAFF PROVIDED ONE-ON-ONE SUPPORT THROUGH PHONE CALLS, EMAILS, AND INTERACTIONS ON SOCIAL MEDIA TOTALING OVER 5,500 TOUCHES. HA CONDUCTED A TOTAL OF 236 VIRTUAL SOCIAL GATHERINGS AND/OR EDUCATIONAL MEETINGS WITH MEDICAL AND OTHER PROFESSIONALS JOINING AS GUEST SPEAKERS IN OUR LOCAL SUPPORT GROUPS - COMMUNITY NETWORKS. THESE EVENTS PROVIDED OUR COMMUNITY WITH THE OPPORTUNITY TO FIND FRIENDSHIP AND RECEIVE EDUCATION. OUR PEER SUPPORT VOLUNTEERS MADE 94 CONNECTIONS TO PROVIDE FIRST-HAND KNOWLEDGE AND EXPERIENCE ON LIVING WITH HYDROCEPHALUS. NEW NATIONAL LEVEL GROUPS EMERGED ONE FOR MEN WITH HYDROCEPHALUS AND FAMILIES IMPACTED BY L1CAM. THE ASSOCIATION CONTINUES TO SUPPORT OUR YOUNG ADULTS' ACADEMIC PURSUITS THROUGH OUR SCHOLARSHIP PROGRAM. ESTABLISHED IN 1994, HA HAS AWARDED 239 SCHOLARSHIPS TO DESERVING FUTURE LEADERS OF THE HYDROCEPHALUS COMMUNITY. IN 2023, HA OFFERED 12 EDUCATIONAL SCHOLARSHIPS TO YOUNG ADULTS LIVING WITH HYDROCEPHALUS WHO EXHIBIT PROMISING LEADERSHIP SKILLS AND ARE INVOLVED IN THEIR COMMUNITIES.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$145,260ExpenseAmt
DescADVOCACY THE HYDROCEPHALUS ASSOCIATION ADVOCACY COMMITTEE HAS CONTINUED TO MONITOR AND SUPPORT KEY LEGISLATION THAT WILL BENEFIT THE HYDROCEPHALUS COMMUNITY. HYDROCEPHALUS WAS ONCE AGAIN INCLUDED ON THE LIST OF ELIGIBLE CONDITIONS TO RECEIVE FUNDING UNDER THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) ADMINISTERED BY THE DEPARTMENT OF DEFENSE (DOD). THE CDMRP HAS APPROPRIATIONS OF $15.24 BILLION, WHICH ARE USED TO FUND THE BEST SCIENTIFIC AND MEDICAL RESEARCH. WE ARE PROUD OF THIS CONTINUED ACCOMPLISHMENT. HA HIRED AN ADVOCACY ENGAGEMENT MANAGER TO LEAD THE DAILY OPERATIONS AND STRATEGY OF THE ASSOCIATION, INCLUDING DEEPENING OUR RELATIONSHIPS ON CAPITOL HILL AND BUILDING A GRASSROOTS ADVOCACY NETWORK. HA CONTINUES TO CO-LEAD WITH THE SPINA BIFIDA ASSOCIATION A COALITION FOCUSED ON ISSUES AROUND CHILDREN WITH CHRONIC MEDICAL CONDITIONS TRANSITIONING TO ADULT MEDICAL CARE AND SERVICES. HA ALSO CONTINUES TO BE ACTIVE IN ADVOCACY MEETINGS AND SIGN-ON LETTERS PUT TOGETHER AS PART OF THE NATIONAL HEALTH COUNCIL (NHC), AMERICAN BRAIN COALITION (ABC), NATIONAL ORGANIZATION FOR RARE DISEASE (NORD), RESEARCH!AMERICA, AND THE NATIONAL HEATH DEFENSE CONSORTIUM (DHRC).Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$119,806ExpenseAmt
DescCONFERENCESDesc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$119,806TotalOtherProgSrvcExpenseAmt
Total Program Service Expenses$2,832,615TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (1)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming ActivitiesYes (1)GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document5IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee25EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members24GoverningBodyVotingMembersCnt
Independent Voting Member24IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonDIANA GRAYPersonNm
Phone3012023811PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line14340 EAST WEST HIGHWAY NO 905AddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (30 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
BRETT WEITZ
PAST CHAIR3.50Yes (X)Yes (X)$0$0$0
JASON PRESTON
CHAIR4.50Yes (X)Yes (X)$0$0$0
TERESA MASTRANGELO
VICE CHAIR3.50Yes (X)Yes (X)$0$0$0
RAYMOND R MOSER JR JD
DIRECTOR3.50Yes (X)Yes (X)$0$0$0
LYDIA VALADEZ-MCSTAY
VICE CHAIR3.50Yes (X)Yes (X)$0$0$0
TESSA VAN DER WILLIGEN
VICE CHAIR3.50Yes (X)Yes (X)$0$0$0
HUGH ALLEN
DIRECTOR3.50Yes (X)$0$0$0
SALLY BALDUS
DIRECTOR3.50Yes (X)$0$0$0
SALLY DUNKELBERGER DANIEL
DIRECTOR3.50Yes (X)$0$0$0
PAM FINLAYSON
DIRECTOR3.50Yes (X)$0$0$0
SUSAN FIORELLA
DIRECTOR3.50Yes (X)$0$0$0
MICHAEL SIEGEL PHD
DIRECTOR3.50Yes (X)$0$0$0
MARK HAMILTON MD
DIRECTOR3.50Yes (X)$0$0$0
DAVID LIMBRICK MD
DIRECTOR3.50Yes (X)$0$0$0
MIKE MUHONEN MD
DIRECTOR3.50Yes (X)$0$0$0
JENNIFER POPE
DIRECTOR3.50Yes (X)$0$0$0
EILEEN RODGER
DIRECTOR3.50Yes (X)$0$0$0
STEPHANIE VOGT
DIRECTOR3.50Yes (X)$0$0$0
MICHAEL WILLIAMS MD
DIRECTOR3.50Yes (X)$0$0$0
DEITRA MATTHEWS MPA
DIRECTOR3.50Yes (X)$0$0$0
SHERYL ROSENBERG JD
DIRECTOR3.50Yes (X)$0$0$0
KIPP COCO
DIRECTOR3.50Yes (X)$0$0$0
TAMMY LEE
DIRECTOR3.50Yes (X)$0$0$0
JASON SPEARS
DIRECTOR3.50Yes (X)$0$0$0
DIANA GRAY
PRESIDENT AND CEO45.00Yes (X)$224,971$0$22,810
BRIAN SAPHIER
TREASURER AND CFO40.00Yes (X)$137,458$0$16,389
AMANDA GARZON
CHIEF OPERATING OFFICER45.00$137,714$0$16,433Yes (X)
LINDA RILEY
NATIONAL DIRECTOR OF DEVELOPMENT40.00$135,010$0$16,145Yes (X)
MONICA CHAU
NATIONAL DIRECTOR OF RESEARCH PROGRAMS40.00$129,492$0$15,085Yes (X)
JUDITH FROEHLICH
NATIONAL DIRECTOR OF MARKETING AND COMMUNICATIONS40.00$127,120$0$14,868Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$891,765TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$101,730TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K6IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Info In Schedule O Part VIIIYes (X)InfoInScheduleOPartVIIIInd
Fundraising$2,417,587FundraisingAmt
All Other Contributions$1,102,497AllOtherContributionsAmt
Noncash Contributions$4,067NoncashContributionsAmt
Total Contributions$3,520,084TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$137,427TotalRevenueColumnAmt
Exclusion$137,427ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$2,417,587ContriRptFundraisingEventAmt
Fundraising Direct Expenses$331,577FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$331,577TotalRevenueColumnAmt
Exclusion-$331,577ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$75,623GamingGrossIncomeAmt
Gaming Direct Expenses$0GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$75,623TotalRevenueColumnAmt
Related Or Exempt Func Income$75,623RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$3,257GrossSalesOfInventoryAmt
Cost Of Goods Sold$1,029CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,228TotalRevenueColumnAmt
Related Or Exempt Func Income$2,228RelatedOrExemptFuncIncomeAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtExclusionExclusionAmt
RETURNED GRANT AWARD900099$209,298$209,298
MISCELLANEOUS REVENUE900099$15,300$15,300
FieldValueIRS element (for citing)
Other Revenue Total$224,598OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,628,383TotalRevenueColumnAmt
Related Or Exempt Func Income$77,851RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$30,448ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$510,641TotalAmt
Program Services$510,641ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$12,000TotalAmt
Program Services$12,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$42,757TotalAmt
Program Services$42,757ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$401,628TotalAmt
Program Services$295,611ProgramServicesAmt
Management And General$84,285ManagementAndGeneralAmt
Fundraising$21,732FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,324,227TotalAmt
Program Services$1,007,342ProgramServicesAmt
Management And General$254,574ManagementAndGeneralAmt
Fundraising$62,311FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$40,221TotalAmt
Program Services$30,676ProgramServicesAmt
Management And General$7,675ManagementAndGeneralAmt
Fundraising$1,870FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$104,476TotalAmt
Program Services$62,897ProgramServicesAmt
Management And General$37,119ManagementAndGeneralAmt
Fundraising$4,460FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$122,559TotalAmt
Program Services$93,433ProgramServicesAmt
Management And General$23,056ManagementAndGeneralAmt
Fundraising$6,070FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$9,297TotalAmt
Program Services$1,590ProgramServicesAmt
Management And General$7,707ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$18,580TotalAmt
Management And General$18,580ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$3,000TotalAmt
Program Services$3,000ProgramServicesAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$135,318TotalAmt
Program Services$112,695ProgramServicesAmt
Management And General$11,352ManagementAndGeneralAmt
Fundraising$11,271FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$26,038TotalAmt
Program Services$9,129ProgramServicesAmt
Fundraising$16,909FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$227,326TotalAmt
Program Services$182,053ProgramServicesAmt
Management And General$22,724ManagementAndGeneralAmt
Fundraising$22,549FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$188,497TotalAmt
Program Services$160,792ProgramServicesAmt
Management And General$20,474ManagementAndGeneralAmt
Fundraising$7,231FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$125,689TotalAmt
Program Services$96,409ProgramServicesAmt
Management And General$22,237ManagementAndGeneralAmt
Fundraising$7,043FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$148,818TotalAmt
Program Services$113,747ProgramServicesAmt
Management And General$8,771ManagementAndGeneralAmt
Fundraising$26,300FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$4,574TotalAmt
Management And General$4,574ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$16,514TotalAmt
Program Services$12,667ProgramServicesAmt
Management And General$2,922ManagementAndGeneralAmt
Fundraising$925FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$12,241TotalAmt
Management And General$12,208ManagementAndGeneralAmt
Fundraising$33FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
SERVICE CHARGES$56,346$781$49,819$5,746
SITE EXPENSES$43,044$42,906$26$112
DUES AND SUBSCRIPTIONS$42,375$36,178$1,395$4,802
BANK CHARGES$6,799$6,799

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$6,691TotalAmt
Program Services$5,311ProgramServicesAmt
Management And General$1,339ManagementAndGeneralAmt
Fundraising$41FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,629,656TotalAmt
Program Services$2,832,615ProgramServicesAmt
Management And General$597,636ManagementAndGeneralAmt
Fundraising$199,405FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,431,128BOYAmt
EOY$1,206,278EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$394,679BOYAmt
EOY$254,386EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$46,849BOYAmt
EOY$40,324EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$89,047BOYAmt
EOY$97,903EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$228,251LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$212,921LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$12,823BOYAmt
EOY$15,330EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$2,264,530BOYAmt
EOY$2,529,577EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$51,627EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$277,312BOYAmt
EOY$163,777EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$4,516,368BOYAmt
EOY$4,359,202EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$221,391BOYAmt
EOY$280,022EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$173,299BOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$457,429BOYAmt
EOY$332,400EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$852,119BOYAmt
EOY$612,422EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,568,262BOYAmt
EOY$2,532,659EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,095,987BOYAmt
EOY$1,214,121EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,664,249BOYAmt
EOY$3,746,780EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,516,368BOYAmt
EOY$4,359,202EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$1,273ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$83,804NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,694,185CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,399,671CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,038,576CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,093,067CurrentTaxYearMinus1YearAmt
Current Tax Year$3,260,063CurrentTaxYearAmt
Total$18,485,562TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,694,185CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,399,671CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,038,576CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,093,067CurrentTaxYearMinus1YearAmt
Current Tax Year$3,260,063CurrentTaxYearAmt
Total$18,485,562TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$148,150SubstantialContributorsTotAmt
Public Support Total170$18,337,412PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$10,956CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$6,229CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,707CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$48,407CurrentTaxYearMinus1YearAmt
Current Tax Year$137,427CurrentTaxYearAmt
Total$205,726TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$16,150CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus2 Years$15,129CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$150CurrentTaxYearMinus1YearAmt
Current Tax Year$15,300CurrentTaxYearAmt
Total$46,729TotalAmt
FieldValueIRS element (for citing)
Total Support$18,738,017TotalSupportAmt
Gross Receipts Rltd Activities$111,624GrossReceiptsRltdActivitiesAmt
Public Support CY1700.97860PublicSupportCY170Pct
Public Support PY1700.96420PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationOTHER MISCELLANEOUS INCOME - 2019 AMOUNT: $ 16,150. 2021 AMOUNT: $ 15,129. 2022 AMOUNT: $ 150. 2023 AMOUNT: $ 15,300.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
VolunteersYes (1)VolunteersInd
Paid Staff Or ManagementYes (1)PaidStaffOrManagementInd
Media Advertisements0MediaAdvertisementsInd
Mailings MembersYes (1)MailingsMembersInd
Publications Or BroadcastYes (1)PublicationsOrBroadcastInd
Publications Or Broadcast$2,000PublicationsOrBroadcastAmt
Grants Other Organizations0GrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (1)DirectContactLegislatorsInd
Direct Contact Legislators$1,000DirectContactLegislatorsAmt
Rallies DemonstrationsYes (1)RalliesDemonstrationsInd
Other Activities0OtherActivitiesInd
Total Lobbying Expenditures$3,000TotalLobbyingExpendituresAmt
Not Described Section501c30NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART II-B, LINE 1:FormAndLineReferenceDesc
ExplanationAS PART OF OUR PROGRAM TO EDUCATE CONGRESS AND OTHERS ABOUT THE NEEDS OF HYDROCEPHALUS PATIENTS AND THEIR FAMILIES, AND TO ADVOCATE FOR MORE FUNDING FOR HYDROCEPHALUS RESEARCH, THE HYDROCEPHALUS ASSOCIATION PARTICIPATED IN A NUMBER OF COALITIONS (INCLUDING THE NATIONAL HEALTH COUNCIL, NATIONAL PARTNERSHIP FOR PEDIATRIC TO ADULT CARE TRANSITION, RESEARCH!AMERICA, AND THE AMERICAN BRAIN COALITION).ExplanationTxt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$79,544BeginningYearBalanceAmt
Investment Earnings Or Losses$11,774InvestmentEarningsOrLossesAmt
End Year Balance$91,318EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$91,318BeginningYearBalanceAmt
Investment Earnings Or Losses-$11,774InvestmentEarningsOrLossesAmt
End Year Balance$79,544EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$91,318BeginningYearBalanceAmt
Investment Earnings Or Losses$1,573InvestmentEarningsOrLossesAmt
Grants Or Scholarships$1,573GrantsOrScholarshipsAmt
End Year Balance$91,318EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$91,118BeginningYearBalanceAmt
Contributions$200ContributionsAmt
Investment Earnings Or Losses$2,973InvestmentEarningsOrLossesAmt
Grants Or Scholarships$2,973GrantsOrScholarshipsAmt
End Year Balance$91,318EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$91,118BeginningYearBalanceAmt
Investment Earnings Or Losses$3,862InvestmentEarningsOrLossesAmt
Grants Or Scholarships$3,862GrantsOrScholarshipsAmt
End Year Balance$91,118EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$110,656OtherCostOrOtherBasisAmt
Depreciation$95,326DepreciationAmt
Book Value$15,330BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$117,595OtherCostOrOtherBasisAmt
Depreciation$117,595DepreciationAmt
Book Value$0BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$15,330TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
SBA LOAN$150,926
OPERATING LEASE LIABILITY$181,474
FieldValueIRS element (for citing)
Total Liability$332,400TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$3,502,889TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$83,804NetUnrealizedGainsInvstAmt
Revenue Not Reported$83,804RevenueNotReportedAmt
Revenue Subtotal$3,419,085RevenueSubtotalAmt
Other Revenues Not Included$209,298OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$209,298RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$3,628,383TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,420,358TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$3,420,358ExpensesSubtotalAmt
Other Expenses Not Included$209,298OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$209,298ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,629,656TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:THE ASSOCIATION IS A QUALIFYING NONPROFIT ORGANIZATION AS DEFINED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND THE TAX STATUTES OF DELAWARE, AND THEREFORE IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. ACCORDINGLY, THE ACCOMPANYING FINANCIAL STATEMENTS DO NOT REFLECT A PROVISION OR LIABILITY FOR FEDERAL AND STATE INCOME TAXES. THE ASSOCIATION DOES NOT BELIEVE IT HAS ANY UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2023. FISCAL YEARS ENDING ON OR AFTER 2020 REMAIN SUBJECT TO EXAMINATION BY FEDERAL AND STATE AUTHORITIES.
PART XI, LINE 4B - OTHER ADJUSTMENTS:RETURNED GRANT AWARD
PART XII, LINE 4B - OTHER ADJUSTMENTS:RETURNED GRANT AWARD
PART V, LINE 4:THE ORGANIZATION USES ENDOWMENT FUNDS FOR EDUCATIONAL SCHOLARSHIPS TO YOUNG ADULTS WITH HYDROCEPHALUS.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp

FieldValueIRS element (for citing)
RegionNORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATESRegionTxt
Offices0OfficesCnt
Employee0EmployeeCnt
Type Of Activities ConductedTO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORKTypeOfActivitiesConductedTxt
Region Total Expenditures$42,757RegionTotalExpendituresAmt
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$42,757SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$42,757TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionNORTH AMERICARegionTxt
Purpose Of GrantTO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORKPurposeOfGrantTxt
Cash Grant$42,757CashGrantAmt
Manner Of Cash DisbursementCHECKMannerOfCashDisbursementTxt
Non Cash Assistance$0NonCashAssistanceAmt
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1SOUTH FLORIDA WALKEvent1Nm
Gross Receipts Event1$162,625GrossReceiptsEvent1Amt
Charitable Contri Event1$162,625CharitableContriEvent1Amt
Other Direct Expenses Event1$8,383OtherDirectExpensesEvent1Amt
Event2HA 40TH ANNIVERSARY GALAEvent2Nm
Gross Receipts Event2$436,703GrossReceiptsEvent2Amt
Charitable Contri Event2$436,703CharitableContriEvent2Amt
Other Direct Expenses Event2$161,349OtherDirectExpensesEvent2Amt
Other Events Total40OtherEventsTotalCnt
Gross Receipts Other Events$1,596,974GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$1,596,974CharitableContriOtherEventsAmt
Oth Direct Expnss Other Events$155,685OthDirectExpnssOtherEventsAmt
Gross Receipts Total$2,196,302GrossReceiptsTotalAmt
Charitable Contributions Tot$2,196,302CharitableContributionsTotAmt
Oth Direct Expnss Total Events$325,417OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$325,417DirectExpenseSummaryEventsAmt
Net Income Summary-$325,417NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$73,623GrossRevenueOtherGamingAmt
Volunteer Labor Other GamingYes (1)VolunteerLaborOtherGamingInd
Volunteer Labor Other Gaming1.00000VolunteerLaborOtherGamingPct
Gross Revenue Total Gaming$73,623GrossRevenueTotalGamingAmt
Net Gaming Income Summary$73,623NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedNCStatesWhereGamingConductedCd
States Where Gaming ConductedSCStatesWhereGamingConductedCd
States Where Gaming ConductedCOStatesWhereGamingConductedCd
States Where Gaming ConductedIAStatesWhereGamingConductedCd
States Where Gaming ConductedMIStatesWhereGamingConductedCd
States Where Gaming ConductedTXStatesWhereGamingConductedCd
States Where Gaming ConductedNYStatesWhereGamingConductedCd
States Where Gaming ConductedKYStatesWhereGamingConductedCd
States Where Gaming ConductedLAStatesWhereGamingConductedCd
States Where Gaming ConductedAZStatesWhereGamingConductedCd
States Where Gaming ConductedFLStatesWhereGamingConductedCd
States Where Gaming ConductedPAStatesWhereGamingConductedCd
LicensedYes (1)LicensedInd
License Suspended Etc0LicenseSuspendedEtcInd
Gaming With NonmembersYes (1)GamingWithNonmembersInd
Member Of Other Entity0MemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct

Persons With Books Name PersonsWithBooksName

FieldValueIRS element (for citing)
Business Name Line1LINDA RILEYBusinessNameLine1Txt

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line14340 EAST WEST HIGHWAY SUITE 905AddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game Rev0CntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonLINDA RILEYGamingManagerPersonNm
Gaming Manager Services ProvNATIONAL DIRECTOR OF DEVELOPMENT AND MANAGES THE WALK PROGRAM WHOSE VOLUNTEERS CONDUCT THE RAFFLES.GamingManagerServicesProvTxt
Charitable Distribution RqrYes (1)CharitableDistributionRqrInd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (9 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE DESK JJ36CLEVELANDOH44195912153073501(C)(3)$46,211$0TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK
PRIMARY CHILDREN'S FOUNDATION
36 SOUTH STATE STREET SUITE 1600SALT LAKE CITYUT84111870453633501(C)(3)$25,000$0TO FUND THE CLINICAL RESEARCH SITE FOR THE HYDROCEPHALUS CLINICAL RESEARCH NETWORK
UNIVERSITY OF UTAH
75 SOUTH 2000 EAST RAB 211SALT LAKE CITYUT84108876000525501(C)(3)$140,614$0TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUEST LOUISMO63112430653611501(C)(3)$48,816$0MECHANISMS OF HYDROCEPHALUS RESEARCH GRANT - TO FUND BASIC RESEARCH ON HYDROCEPHALUS
BOSTON CHILDREN'S HOSPITAL
300 LONGWOOD AVENUEBOSTONMA02115501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA BCM 200HOUSTONTX770303498741613878501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
UNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION
2001 THE EMBARCADERO 3RD FLOORSAN FRANCISCOCA94133942829914501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREETANN HARBORMI48109454135256501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371 MS 818-FISEATTLEWA981455005910564748501(C)(3)$50,000$0MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeSCHOLARSHIPGrantTypeTxt
Recipient12RecipientCnt
Cash Grant$12,000CashGrantAmt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Substantiation RequiredYes (1)SubstantiationRequiredInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
DIANA GRAY
PRESIDENT AND CEO$224,971$0$0$0$0$0$9,616$0$13,194$0$247,781$0$0$0
AMANDA GARZON
CHIEF OPERATING OFFICER$137,714$0$0$0$0$0$5,566$0$10,867$0$154,147$0$0$0
BRIAN SAPHIER
TREASURER AND CFO$137,458$0$0$0$0$0$5,542$0$10,847$0$153,847$0$0$0
LINDA RILEY
NATIONAL DIRECTOR OF DEVELOPMENT$135,010$0$0$0$0$0$5,472$0$10,673$0$151,155$0$0$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution8ContributionCnt
Noncash Contributions Rpt F990$78,203NoncashContributionsRptF990Amt
Method Of Determining RevenuesNYSE VALUEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, COLUMN (B):FormAndLineReferenceDesc
ExplanationTHE NUMBER OF CONTRIBUTIONS REPRESENTS THE NUMBER OF DONORS THAT GAVE STOCK.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1AACCORDING TO OUR BYLAWS, THE EXECUTIVE COMMITTEE, UNLESS LIMITED IN A RESOLUTION OF THE BOARD, SHALL HAVE AND MAY EXERCISE ALL OF THE AUTHORITY OF THE BOARD IN THE MANAGEMENT OF THE BUSINESS AND AFFAIRS OF THE CORPORATION BETWEEN MEETINGS OF THE BOARD.
FORM 990, PART VI, SECTION B, LINE 11BALL BOARD MEMBERS RECEIVE AN ELECTRONIC OR PAPER COPY OF THE IRS FORM 990 PRIOR TO ITS SUBMISSION. BOARD MEMBERS MUST SUBMIT ANY QUESTIONS OR CHANGES TO THE PRESIDENT & CHIEF EXECUTIVE OFFICER, WHO SUBMITS THE CHANGES TO THE TAX PREPARER.
FORM 990, PART VI, SECTION B, LINE 12CEACH YEAR BOARD MEMBERS GET A COPY OF THE CONFLICT OF INTEREST POLICY AND A DISCLOSURE FORM TO FILL OUT WITH DETAILS OF ANY POSSIBLE CONFLICTS THAT MAY EXIST.
FORM 990, PART VI, SECTION B, LINE 15ATHE PROCESS FOR DETERMINING THE COMPENSATION FOR THE PRESIDENT & CHIEF EXECUTIVE OFFICER (WHO IS ALSO IN CHARGE OF FINANCIAL MANAGEMENT OF THE ORGANIZATION) POSITION INCLUDES THE FOLLOWING STEPS: 1) THE BOARD CHAIR AND PRESIDENT & CHIEF EXECUTIVE OFFICER EACH COLLECT COMPARABLE SALARY INFORMATION (E.G., SALARY STUDIES). 2) THE BOARD CHAIR MAKES A RECOMMENDATION FOR PRESIDENT & CEO COMPENSATION TO THE EXECUTIVE COMMITTEE. 3) EXECUTIVE COMMITTEE MEMBERS (WITHOUT A CONFLICT OF INTEREST) VOTE ON THE RECOMMENDATION BY THE BOARD CHAIR FOR PROPOSED CEO COMPENSATION, AND A RECORD OF THE VOTE IS RECORDED IN EXECUTIVE COMMITTEE MINUTES.
FORM 990, PART VI, SECTION C, LINE 18FORM 990 IS AVAILABLE ON THE HYDROCEPHALUS ASSOCIATION WEBSITE AT WWW.HYDROASSOC.ORG/ANNUAL-REPORTS-AND-FINANCIALS
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC AT THE ORGANIZATION'S OFFICE OR ON THE ORGANIZATION'S WEBSITE UPON REQUEST.
FORM 990, STATEMENT OF REVENUE LINE 11ACONSISTS OF AN UNSPENT GRANT AWARD RETURNED TO THE ASSOCIATION IN 2023.
FORM 990, PART XII, LINE 2C:THE AUDIT COMMITTEE SELECTS AND OVERSEES AN INDEPENDENT ACCOUNTING FIRM TO CONDUCT THE AUDIT. NO CHANGE IN THE SELECTION METHOD OCCURRED THIS YEAR.