PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC: Form 990, tax year 2022
View the entire original 990 at ProPublica ↗
- Organization
- PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC (EIN 58-1966822)
- Tax period
- 2022-10-01 to 2023-09-30
- Filed
- 2024-08-12
- IRS object ID
- 202442259349300209
- Schema version
- 2022v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-08-12T11:54:26-00:00 | ReturnTs |
| Tax Period End | 2023-09-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 331037531 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Outfitters4 Inc | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 717 Coliseum Dr NW | AddressLine1Txt |
| City | Winston Salem | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27106 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2022-10-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 581966822 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Pediatric Brain Tumor Foundation of the United States Inc | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PEDI | BusinessNameControlTxt |
| Phone | 8002536530 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 380 Knollwood St STE H 125 | AddressLine1Txt |
| City | Winston Salem | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27103 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Larry Little | PersonNm |
| Person Title | Secretary | PersonTitleTxt |
| Phone | 8002536530 | PhoneNum |
| Signature | 2024-08-08 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Brittany Emery | PreparerPersonNm |
| PTIN | P02119496 | PTIN |
| Phone | 8889299499 | PhoneNum |
| Preparation | 2024-08-08 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2022 | TaxYr |
| Build TS | 2024-08-08 14:25:15Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | Courtney Davies | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 380 Knollwood St STE H 125 | AddressLine1Txt |
| City | Winston Salem | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27103 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $5,058,429 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.curethekids.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1992 | FormationYr |
| Legal Domicile State | GA | LegalDomicileStateCd |
| Activity Or Mission | Eliminate childhood brain tumors and support families living with this devastating disease. | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 27 | TotalEmployeeCnt |
| Total Volunteers | 375 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $6,000,577 | PYContributionsGrantsAmt |
| CY Contributions Grants | $4,929,228 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $21,568 | PYInvestmentIncomeAmt |
| CY Investment Income | $129,201 | CYInvestmentIncomeAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $6,022,145 | PYTotalRevenueAmt |
| CY Total Revenue | $5,058,429 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $2,492,677 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,397,216 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,189,489 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,485,381 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $668,371 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,505,808 | PYOtherExpensesAmt |
| CY Other Expenses | $1,685,929 | CYOtherExpensesAmt |
| PY Total Expenses | $6,187,974 | PYTotalExpensesAmt |
| CY Total Expenses | $6,568,526 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$165,829 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$1,510,097 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $5,993,060 | TotalAssetsBOYAmt |
| Total Assets EOY | $5,390,187 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $727,999 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,633,344 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $5,265,061 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $3,756,843 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | Vision A world without childhood brain tumors. Mission Care. Cure. Thrive. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $4,923,459 | ExpenseAmt |
| Grant | $2,397,216 | GrantAmt |
| Desc | See Schedule O | Desc |
| Total Program Service Expenses | $4,923,459 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (true) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (true) | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (true) | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | Yes (true) | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | Yes (true) | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | Yes (true) | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 29 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 27 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | Yes (true) | LocalChaptersInd |
| Policies Reference Chapters | Yes (true) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Outfitters4 Inc | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8889299499 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 717 Coliseum Drive NW | AddressLine1Txt |
| City | Winston Salem | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27106 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|
| Courtney Davies | |||||||
| CEO/President | 050.00 | Yes (X) | $281,109 | $0 | $18,985 | ||
| Geoff Still | |||||||
| CFO/COO | 050.00 | Yes (X) | $161,839 | $0 | $15,700 | ||
| Ian M Joyce | |||||||
| Chief Marketing Mission Experience Officer | 040.00 | $143,265 | $0 | $14,617 | Yes (X) | ||
| AJ Janower | |||||||
| Chair | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Anne Sutton | |||||||
| Secretary | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Kristin Young | |||||||
| Vice Chair | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Jeff Gelfand | |||||||
| Treasurer | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Karl Mueller | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Ken Murphy | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| John Ragnoni | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Larry Little | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Chuck Boderman | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Bryan Waddell | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Peter Krause | |||||||
| Director | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $586,213 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $49,302 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | The Pursuant Group Inc | PersonNm |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 15660 N Dallas Pkwy Suite 1000 | AddressLine1Txt |
| City | Dallas | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 75248 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | Marketing and Funraising Services | ServicesDesc |
| Compensation | $160,650 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $4,929,228 | AllOtherContributionsAmt |
| Noncash Contributions | $19,075 | NoncashContributionsAmt |
| Total Contributions | $4,929,228 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $129,201 | TotalRevenueColumnAmt |
| Exclusion | $129,201 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,058,429 | TotalRevenueColumnAmt |
| Exclusion | $129,201 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,925,733 | TotalAmt |
| Program Services | $1,925,733 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $461,483 | TotalAmt |
| Program Services | $461,483 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,000 | TotalAmt |
| Program Services | $10,000 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $686,015 | TotalAmt |
| Program Services | $424,153 | ProgramServicesAmt |
| Management And General | $153,360 | ManagementAndGeneralAmt |
| Fundraising | $108,502 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,447,137 | TotalAmt |
| Program Services | $894,743 | ProgramServicesAmt |
| Management And General | $323,511 | ManagementAndGeneralAmt |
| Fundraising | $228,882 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,721 | TotalAmt |
| Program Services | $28,269 | ProgramServicesAmt |
| Management And General | $10,221 | ManagementAndGeneralAmt |
| Fundraising | $7,231 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $159,492 | TotalAmt |
| Program Services | $98,612 | ProgramServicesAmt |
| Management And General | $35,655 | ManagementAndGeneralAmt |
| Fundraising | $25,226 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $147,016 | TotalAmt |
| Program Services | $90,898 | ProgramServicesAmt |
| Management And General | $32,866 | ManagementAndGeneralAmt |
| Fundraising | $23,252 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,865 | TotalAmt |
| Program Services | $5,865 | ProgramServicesAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $57,057 | TotalAmt |
| Management And General | $57,057 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fees For Services Prof Fundraising | FeesForServicesProfFundraising |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $485,251 | TotalAmt |
| Program Services | $354,743 | ProgramServicesAmt |
| Management And General | $84,008 | ManagementAndGeneralAmt |
| Fundraising | $46,500 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $75,884 | TotalAmt |
| Program Services | $37,090 | ProgramServicesAmt |
| Management And General | $332 | ManagementAndGeneralAmt |
| Fundraising | $38,462 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $174,396 | TotalAmt |
| Program Services | $105,018 | ProgramServicesAmt |
| Management And General | $19,270 | ManagementAndGeneralAmt |
| Fundraising | $50,108 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,562 | TotalAmt |
| Program Services | $10,562 | ProgramServicesAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $55,271 | TotalAmt |
| Program Services | $451 | ProgramServicesAmt |
| Management And General | $49,583 | ManagementAndGeneralAmt |
| Fundraising | $5,237 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $117,581 | TotalAmt |
| Program Services | $61,657 | ProgramServicesAmt |
| Management And General | $33,580 | ManagementAndGeneralAmt |
| Fundraising | $22,344 | FundraisingAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,570 | TotalAmt |
| Program Services | $7,491 | ProgramServicesAmt |
| Management And General | $495 | ManagementAndGeneralAmt |
| Fundraising | $4,584 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,478 | TotalAmt |
| Management And General | $3,478 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,238 | TotalAmt |
| Program Services | $3,037 | ProgramServicesAmt |
| Management And General | $21,257 | ManagementAndGeneralAmt |
| Fundraising | $944 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| Donor Incentives | $95,651 | $95,651 | ||
| Auto Expense | $25,177 | $8,346 | $9,386 | $7,445 |
| Fees and Licenses | $383,922 | $164,191 | $139,577 | $80,154 |
| Program Supplies | $84,211 | $71,996 | $1,657 | $10,558 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $73,815 | TotalAmt |
| Program Services | $63,470 | ProgramServicesAmt |
| Management And General | $1,403 | ManagementAndGeneralAmt |
| Fundraising | $8,942 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,568,526 | TotalAmt |
| Program Services | $4,923,459 | ProgramServicesAmt |
| Management And General | $976,696 | ManagementAndGeneralAmt |
| Fundraising | $668,371 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,407,813 | BOYAmt |
| EOY | $491,074 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $618,647 | BOYAmt |
| EOY | $1,040,773 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $94,517 | BOYAmt |
| EOY | $56,927 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $229,579 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $12,144 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $35,725 | BOYAmt |
| EOY | $217,435 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,491,679 | BOYAmt |
| EOY | $3,239,299 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $344,679 | BOYAmt |
| EOY | $344,679 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,993,060 | BOYAmt |
| EOY | $5,390,187 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $289,128 | BOYAmt |
| EOY | $824,478 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $438,871 | BOYAmt |
| EOY | $808,866 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $727,999 | BOYAmt |
| EOY | $1,633,344 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,425,569 | BOYAmt |
| EOY | $1,744,416 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,839,492 | BOYAmt |
| EOY | $2,012,427 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,265,061 | BOYAmt |
| EOY | $3,756,843 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,993,060 | BOYAmt |
| EOY | $5,390,187 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$1,510,097 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $1,879 | NetUnrlzdGainsLossesInvstAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $9,927,494 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,471,860 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,836,629 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,000,577 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,929,228 | CurrentTaxYearAmt |
| Total | $31,165,788 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $9,927,494 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,471,860 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,836,629 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,000,577 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,929,228 | CurrentTaxYearAmt |
| Total | $31,165,788 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $671,000 | SubstantialContributorsTotAmt |
| Public Support Total170 | $30,494,788 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $16,620 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $45,248 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $14,534 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $21,568 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $129,201 | CurrentTaxYearAmt |
| Total | $227,171 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $31,392,959 | TotalSupportAmt |
| Public Support CY170 | 0.97140 | PublicSupportCY170Pct |
| Public Support PY170 | 0.97060 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Incl Escrow Custodial Acct Liab | false | InclEscrowCustodialAcctLiabInd |
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,473,767 | BeginningYearBalanceAmt |
| End Year Balance | $1,473,767 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,041,946 | BeginningYearBalanceAmt |
| Contributions | $431,821 | ContributionsAmt |
| End Year Balance | $1,473,767 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $816,243 | BeginningYearBalanceAmt |
| Contributions | $225,703 | ContributionsAmt |
| End Year Balance | $1,041,946 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,016,243 | BeginningYearBalanceAmt |
| Other Expenditures | $200,000 | OtherExpendituresAmt |
| End Year Balance | $816,243 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,016,243 | BeginningYearBalanceAmt |
| End Year Balance | $1,016,243 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 1.00000 | BoardDesignatedBalanceEOYPct |
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $14,390 | OtherCostOrOtherBasisAmt |
| Depreciation | $12,144 | DepreciationAmt |
| Book Value | $2,246 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $215,189 | OtherCostOrOtherBasisAmt |
| Book Value | $215,189 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $217,435 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (2 entries)
| DescDesc |
|---|
| Financial derivatives and other financial products |
| Closely-held equity interests |
Other Assets Org OtherAssetsOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | ERC Receivable | Desc |
| Book Value | $344,679 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $344,679 | TotalBookValueOtherAssetsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Federal income taxes | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $4,964,657 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $1,879 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $1,879 | RevenueNotReportedAmt |
| Revenue Subtotal | $4,962,778 | RevenueSubtotalAmt |
| Other Revenues Not Included | $95,651 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $95,651 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,058,429 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $6,472,875 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $6,472,875 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $95,651 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $95,651 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $6,568,526 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| V 4 | The endowment funds are a board designated reserve fund to assure the foundations ability to respond to program related opportunities both reasearch and family support that may be beyond the funds available from normal operations. |
| X 2 | The Foundation is exempt from federal income taxes under Section 501c3 of the Internal Revenue Code accordingly, the accompanying financial statements do not reflect a provision or liability for federal and state income taxes. The Foundation has determined that it does not have any material unrecognized tax benefits or obligations as of September 30, 2023. |
| XI 2d | Donor incentives expense included in revenue for audit reporting purposes. |
| XI 2d | Donor incentives expense included in revenue for audit reporting purposes. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | Europe Including Iceland and Greenland | RegionTxt |
| Purpose Of Grant | Research Grant | PurposeOfGrantTxt |
| Cash Grant | $10,000 | CashGrantAmt |
| Manner Of Cash Disbursement | Wire | MannerOfCashDisbursementTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (24 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| Brenner Children's Hospital | |||||||
| 1 Medical Center Blvd | Winston Salem | NC | 27157 | 223849199 | 501C3 | $9,920 | Vs. Cancer Grant |
| Children's Hospital of Philadelphia | |||||||
| 3401 Civic Center Blvd | Philadelphia | PA | 19104 | 232237932 | 501C3 | $245,000 | Research Grant |
| Geisinger Janet Weis Children's Hospital | |||||||
| 100 N Academy Ave MC 40-36 | Danville | PA | 17822 | 240795959 | 501C3 | $18,719 | Vs. Cancer Grant |
| Levine Children's Hospital | |||||||
| 208 East Blvd | Charlotte | NC | 28203 | 566060481 | 501C3 | $11,072 | Vs. Cancer Grant |
| Noah Brave Foundation | |||||||
| 813 Charming Court | Franklin | TN | 37064 | 862429764 | 501C3 | $10,072 | Vs. Cancer Grant |
| Children's Hospital and Medical Center Omaha | |||||||
| 8200 Dodge St | Omaha | NE | 68114 | 470979754 | 501C3 | $6,801 | Vs. Cancer Grant |
| OSF Children's Hosptial of Illinois | |||||||
| 530 NE Glen Oak Ave | Peoria | IL | 61637 | 370813229 | 501C3 | $6,873 | Vs. Cancer Grant |
| Tampa General Hospital | |||||||
| 1 Tampa General Circle | Tampa | FL | 33606 | 232354477 | 501C3 | $5,251 | Vs. Cancer Grant |
| UNC Lineberger Comprehensive Cancer Center | |||||||
| PO Box 1050 | Chapel Hill | NC | 27514 | 566001393 | 501C3 | $6,456 | Vs. Cancer Grant |
| Central Brain Tumor Registry of the United States | |||||||
| 625 South County Line Road | Hinsdale | IL | 60521 | 363918407 | 501C3 | $10,000 | Research Grant |
| Children's Healthcare of Atlanta | |||||||
| 1575 Northeast Expressway | Atlanta | GA | 30329 | 582367819 | 501C3 | $145,639 | Research Grant |
| CHOP Research Institute | |||||||
| 3401 CIVIC CENTER BLVD | PHILADELPHIA | PA | 19104 | 232237932 | 501C3 | $30,000 | Research Grant |
| Dana-Farber Cancer Institute | |||||||
| 450 Brookline Avenue BP418 | Boston | MA | 02215 | 042263040 | 501C3 | $370,666 | Research Grant |
| Georgia State University Research Foundation | |||||||
| 58 Edgewood Ave 3rd floor | Atlatnta | GA | 30303 | 581845423 | 501C3 | $53,810 | Research Grant |
| Public Health Institute | |||||||
| 555 12th Street 600 | Oakland | CA | 94607 | 941646278 | 501C3 | $200,000 | Research Grant |
| Regents of the University of Michigan | |||||||
| 3003 S State St 5082 Wolverine TWR | Ann Arbor | MI | 48109 | 386006309 | 501C3 | $140,000 | Research Grant |
| Saint Jude Childrens Research Hospital | |||||||
| 262 Danny Thomas Place | Memphis | TN | 38105 | 620646012 | 501C3 | $200,000 | Research Grant |
| The Washington University | |||||||
| 7425 Forsyth Blvd MSC 1299414355 | Saint Louis | MO | 63105 | 430653611 | 501C3 | $118,079 | Research Grant |
| UPMC Children's Hospital of Pittsburgh | |||||||
| 4401 Penn Avenue | Pittsburgh | PA | 15224 | 251865744 | 501C3 | $8,181 | Vs. Cancer Grant |
| Ann & Robert H Lurie Children's Hospital | |||||||
| 225 E Chicago Ave Box 130 | Chicago | IL | 60611 | 362170833 | 501C3 | $7,388 | Vs. Cancer Grant |
| Baystate Children's Hospital | |||||||
| 759 Chestnut St 4th Floor | Springfield | MA | 01199 | 042790311 | 501C3 | $9,527 | Vs. Cancer Grant |
| Nationawide Children's Hospital | |||||||
| 525 East Mount Street | Columbus | OH | 43215 | 311036372 | 501C3 | $143,500 | Research Grant |
| Vanderbilt University Medical Center | |||||||
| 3319 West End Ave Ste 900 | Nashville | TN | 37203 | 352528741 | 501C3 | $97,500 | Research Grant |
| American Assoication for Cancer Research | |||||||
| 615 Chestnut Street Ste 1700 | Philadelphia | PA | 19106 | 236251648 | 501C3 | $66,000 | Research Grant |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 24 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | Direct Aid to Families | GrantTypeTxt |
| Recipient | 624 | RecipientCnt |
| Cash Grant | $461,483 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I Line 2 | FormAndLineReferenceDesc |
| Explanation | All annual research grants are reviewed by our research advisory network and evaluated on several criteria, including scientific merit of the grant application scientific background of the researchers the peer reviewed research publications of the principle investigators applying the supporting collaborative research environment in the research institution and the viability of research environment in the research institution and the viability of research proposed, and facilities available. Each grant recipient is required to submit periodic updates, and a final report before the final grant payment is made. Each research application has to have a hypothesis driven research proposal. Each application must have a list of specific aims that are to be achieved over the timeline of the research project. A timeline is requested for the achievement of the specific aims. The progress reports require that the achievement of the specific aims be detailed with a scientific description of the manner in which they were achieved. If an event has occurred that alters the achievement of the specific aims within the timeline of the research plan the researchers must give a reason that it has not been achieved and a no cost extensions may be requested, and a new timeline is established before the final progress report is issued. Each grant allows for the opportunity of a site visit by the PBTF and these site visits are made by the director of research as well as the senior scientific research advisor, the PBTF president as well as the executive director. Researchers present their research results in person and the PBTF asks questions about the results. All grant applications and research projects have the same requirements on grant approval and reporting regardless of the location of the researcher and his/her institution. These reports are reviewed by our Director of Research Funding and our contracted Senior Scientific Research Advisor. Final approval on all grants is conditioned on Board of Director approval. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt |
|---|---|---|---|---|
| Geoff Still | ||||
| CFO/COO | $161,839 | $10,931 | $8,054 | $180,824 |
| Courtney Davies | ||||
| CEO/President | $281,109 | $7,646 | $8,054 | $296,809 |
| Ian M Joyce | ||||
| Chief Marketing Mission Experience Officer | $143,265 | $6,563 | $8,054 | $157,882 |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Amy Weinstein | PersonNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | AJ Janower - Chair | RelationshipDescriptionTxt |
| Transaction | $75,000 | TransactionAmt |
| Transaction | See below | TransactionDesc |
| Sharing Of Revenues | false | SharingOfRevenuesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part IV Line 1 | FormAndLineReferenceDesc |
| Explanation | Business transactions involving interested persons A Name of person Amy Weinstein D Description of transaction National Director, Research Investments Independent Contractor. | ExplanationTxt |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 4 | ContributionCnt |
| Noncash Contributions Rpt F990 | $19,075 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (8 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part III, Line 4 | The Pediatric Brain Tumor Foundation PBTF leads the way in ending the childhood cancer communitys biggest crisis through research funding, family support and advocacy. Dedicated wholly to addressing this rare, but devastating disease and guided by the experiences of patients, survivors, their parents, and siblings, PTBF is the only organization to meet families needs along every step of their cancer journey. The largest patient advocacy funder of pediatric brain tumor research, we also fund and advocate for innovative projects that lead to vital discoveries, new clinical trials, and better treatments all bringing us closer to a cure. Research PBTF funds scientific research, provides educational, emotional and financial resources, and advocates for policies that improve outcomes and quality of life for pediatric brain tumor patients and survivors, and their families. In 2023, PBTF invested in 14 new research projects at 12 medical institutions in the US, funding basic science exploration, fostering collaboration in the field, creating opportunities for early career investigators to establish productive labs, and supporting key infrastructure, networks and consortia. Previous years seed funding also continued to deliver results, with investments in diagnostic advances, more translatable animal models, and the development of novel treatment approaches leading to researchers continuing to win multi-million dollar National Institutes of Health and other government and industry funders ensuring every donor dollar achieves its fullest potential to improve kids lives. Clinical Trials PBTFs funding of MEK pathway related studies from basic science through clinical trials has contributed to the discoveries of new targeted therapies for children with brain tumors, such as Novartis Tafinlar Mekinist, a targeted therapy approved by the FDA in 2023 for children with low grade gliomas with a BRAF V600E mutation. Low grade gliomas are the most common pediatric brain tumor, and children with the BRAF V600 mutation typically experience poor survival outcomes and a less favorable response to chemotherapy. As a first line treatment, children with this tumor type and mutation will now be given the opportunity to take Tafinlar Mekinist without having to first go through other treatments like chemotherapy and its toxic side effects. As survival rates for medulloblastoma and other types of pediatric brain tumors rise, its critical that researchers, patient advocacy organizations, and families understand how different treatments will affect survivors cognitive, physical, social, and emotional well-being over time. Studying a treatments long term impact can help determine its true effectiveness and ultimately lead to improved quality of life for survivors and their families. In 2023, PBTF and the Christopher Brandle Joy of Life Foundation teamed up to fund a prospective international SIOPE/CONNECT phase-III study that will compare the outcomes for two highly effective medulloblastoma treatment regimens, defining the new gold standard of treatment for young children with this malignant and fast-growing form of brain cancer. Delays in diagnosis lead to delays in treatment time that kids with brain cancer dont have. In 2023, PBTF partnered with Catching Up With Jack to bring the QIAcube, an advanced centrifuge technology, to the University of Michigans Koschmann Lab, accelerating their development of liquid biopsy tests. These tests offer a potentially game changing approach to diagnosing and monitoring pediatric brain tumors that would screen patients cerebrospinal fluid, blood, or plasma for the presence of circulating tumor DNA. Building on PBTFs previous funding of this faster and more accurate way to detect pediatric brain tumors, the technology funded through our most recent investment will help get this promising screening method out of the lab and into clinics faster. 2023 Family Support Program Highlights Because pediatric brain tumors are a rare disease, it can be difficult for patients, survivors, and their families to meet other people who share the same experiences. Through resources like our online support groups and peer-to-peer mentoring, the Pediatric Brain Tumor Foundation connects family members with a welcoming and understanding community where they can learn and find support from other families like them. In 2023, we saw this community grow, with more families reaching out to help others facing the same challenges they once endured. Feedback from patient families and healthcare partners identified a significant need among native Spanish-speaking parents and caregivers for easier to understand information in Spanish. In response, PBTF expanded Spanish-language resources and outreach efforts in 2023, resulting in a 98 percent year over year increase in families accessing Spanish language support. Participation in online support groups expanded, with support groups for newly diagnosed, bereaved, and Spanish speaking families now meeting monthly. With the 2023 launch of our Sibling Space Art Support Group, siblings of children with brain tumors also have a haven to connect with one another and express their feelings through art. 2023 saw a significant increase in the number of parents and caregivers volunteering to offer one on one support to other families. Because of this, more families can now access peer to peer mentoring, including bereaved parents, with the number of bereaved mentors doubling year over year in 2023. Parents and caregivers of children with brain tumors are essential members of their childs care team and deserve to feel confident in their ability to advocate for their children. But because practical resources are limited and can be hard to find, families often spend time they dont have finding information they need. Thats why PBTFs new website, launched in 2023, is one place where any family impacted by a childs or teens brain tumor diagnosis can find reliable information for every phase of their cancer journey. The new curethekids.org, which also introduced a new look for PBTF, offers robust resource centers in English and Spanish guided by families feedback on the topics that matter most to them. Newly Diagnosed resource center offers information to help parents and caregivers anticipate whats needed in the first few months after their childs diagnosis. Life After a Brain Tumor Diagnosis provides resources to help survivors, family members and caregivers navigate long term effects, concerns about recurrence and progression, and ongoing care in the months and years following treatment. Support for Families focuses on connecting parents and caregivers with information and programs that address the medical, psychosocial, financial, and practical challenges families face. PBTFs new website and visual identity come at a time when diagnoses, mortality rates, and the number of survivors living with pediatric brain tumors long term side effects are on the rise. Its more important than ever for families to have the information they need to make critical decisions for the health of their child, and for supporters to help them along that path. Our new online presence provides families, donors, volunteers, and all other stakeholders invested in patients and survivors well being a place where they can find answers, inspiration, and community and support PBTFs efforts to cure the kids. |
| Form 990, Part VI, Section A, Line 1A | The Board of Directors may, by resolution, designate two 2 or more Directors to constitute an Executive Committee, which the Committee, to the extent provided in such resolution, shall have and may exercise all of the authority of the Board of Directors in the management of the corporation except as otherwise required by law. All members of the Executive Committee shall be Directors of the corporation. Vacancies in the membership of the Committee shall be filled by the Board of Directors at any annual or special meeting of the Board of Directors. The Executive Committee shall keep regular minutes of its proceedings and report the same to the Board. |
| Form 990, Part VI, Section B, Line 11B | Upon receiving a final draft, the return was presented at a scheduled Board meeting. The return was presented to the full Board by the management of the organization, and a period of time for questions and comments was allowed. |
| Form 990, Part VI, Section B, Line 12C | All financial transactions both revenue and expenses are conducted with the knowledge and/or approval of either the President/CEO or the CFO. These transactions are reviewed for any potential conflicts of interest. Any interests are brought to the attention of the Executive Committee. |
| Form 990, Part VI, Section B, Line 15 | The Boards Executive Committee determines compensation and benefits for the President/CEO after reviewing the most current Guidestar nonprofit compensation report, other comparable data, scope of responsibility, size of organization, responsibility and budget to determine the reasonableness of the salary. |
| Form 990, Part VI, Section C, Line 18 | Recent filings of the Form 990 are available online at curethekids.org, Guidestar, and charity navigator. |
| Form 990, Part VI, Section C, Line 19 | The Foundation makes its governing documents, conflict of interests policy, and financial statements available via written request. Additionally, these documents are made available to all state governments that require annual filling of charitable organizations. |
| Form 990, Part XII, Line 2C | The process has not changed from the prior year. |