STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

SCLERODERMA RESEARCH FOUNDATION: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
SCLERODERMA RESEARCH FOUNDATION (EIN 68-0087234)
Tax period
2023-01-01 to 2023-12-31
Filed
2024-08-28
IRS object ID
202402419349301810
Schema version
2023v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-08-28T13:01:03-07:00ReturnTs
Tax Period End2023-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Crosby & Kaneda CPAs LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1548 Market St PMB 97503AddressLine1Txt
CitySan FranciscoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94104ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2023-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN680087234EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Scleroderma Research FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlSCLEBusinessNameControlTxt
Phone4158349444PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1220 Montgomery St Ste 484AddressLine1Txt
CitySan FranciscoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94104ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJoanne GoldPersonNm
Person TitleExecutive Dir.PersonTitleTxt
Signature2024-08-28SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonFelix GorrindoPreparerPersonNm
PTINP01658413PTIN
Phone5108352727PhoneNum
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2024-08-08 14:25:15ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerLuke Evnin PhDPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1220 Montgomery St Ste 484AddressLine1Txt
CitySan FranciscoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94104ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$8,770,386GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.srfcure.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1987FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionThe SRF is laser-focused on finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the worlds top scientists and institutions to drive innovation, and raising awareness about this rare disease.ActivityOrMissionDesc
Voting Members Governing Body11VotingMembersGoverningBodyCnt
Voting Members Independent10VotingMembersIndependentCnt
Total Employee9TotalEmployeeCnt
Total Volunteers365TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$5,376,802PYContributionsGrantsAmt
CY Contributions Grants$3,932,952CYContributionsGrantsAmt
PY Program Service Revenue$170,531PYProgramServiceRevenueAmt
CY Program Service Revenue$3,832,233CYProgramServiceRevenueAmt
PY Investment Income$116,754PYInvestmentIncomeAmt
CY Investment Income$904,546CYInvestmentIncomeAmt
PY Other Revenue$228,651PYOtherRevenueAmt
CY Other Revenue-$251,693CYOtherRevenueAmt
PY Total Revenue$5,892,738PYTotalRevenueAmt
CY Total Revenue$8,418,038CYTotalRevenueAmt
PY Grants And Similar Paid$2,442,093PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$2,482,921CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$675,017PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$891,428CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$395,928CYTotalFundraisingExpenseAmt
PY Other Expenses$1,541,492PYOtherExpensesAmt
CY Other Expenses$3,113,250CYOtherExpensesAmt
PY Total Expenses$4,658,602PYTotalExpensesAmt
CY Total Expenses$6,487,599CYTotalExpensesAmt
PY Revenues Less Expenses$1,234,136PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,930,439CYRevenuesLessExpensesAmt
Total Assets BOY$11,143,637TotalAssetsBOYAmt
Total Assets EOY$18,654,748TotalAssetsEOYAmt
Total Liabilities BOY$1,240,870TotalLiabilitiesBOYAmt
Total Liabilities EOY$7,122,391TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$9,902,767NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$11,532,357NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionThe mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for sclerodermaMissionDesc
Significant New Program SrvcYes (true)SignificantNewProgramSrvcInd
Significant ChangeYes (true)SignificantChangeInd
Expense$3,547,920ExpenseAmt
Grant$2,482,921GrantAmt
DescThe SRF Research Program: Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,513,167ExpenseAmt
Revenue$3,832,233RevenueAmt
DescCONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for scleroderma. CONQUEST is designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from phase 2b to phase 3 clinical trials. CONQUEST will make an enduring contribution to the scleroderma community by creating an ecosystem designed to enable rapid and efficient development of novel drugs for scleroderma patients.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$553,858ExpenseAmt
DescSRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed. We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date, trusted and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$5,614,945TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document26IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee9EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members11GoverningBodyVotingMembersCnt
Independent Voting Member10IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovaYes (true)DecisionsSubjectToApprovaInd
Minutes Of Governing BodyfalseMinutesOfGoverningBodyInd
Minutes Of CommitteesfalseMinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonCindy YoungPersonNm
Phone4158349444PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1220 Montgomery St Ste 484AddressLine1Txt
CitySan FranciscoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94104ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
Joanne Gold
Executive Dir.40.000.00Yes (X)Yes (X)$203,286$0$3,214
Kate Ceredona
Dir Philanthropy40.000.00$152,315$0$6,516
Gloria Blecha
Sr Dir Comm O & Ed40.000.00$129,705$0$11,123
Hannah Young
Dir Communications40.000.00$110,376$0$5,867
Luke Evnin PhD
Chairman30.000.00Yes (X)Yes (X)$0$0$0
Deann Wright
Secretary10.000.00Yes (X)Yes (X)$0$0$0
Susan Feniger
Treasurer10.000.00Yes (X)Yes (X)$0$0$0
Omar Baker MD
Board Member2.000.00Yes (X)$0$0$0
Sharon Dobie MD
Board Member2.000.00Yes (X)$0$0$0
Eric Kau MD
Board Member2.000.00Yes (X)$0$0$0
David Knoller
Board Member1.000.00Yes (X)$0$0$0
Violetta Merin
Board Member2.000.00Yes (X)$0$0$0
Caryn Zucker
Board Member1.000.00Yes (X)$0$0$0
Regina Hall
Board Member2.000.00Yes (X)$0$0$0
Jeff Seaman
Board Member2.000.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$595,682TotalReportableCompFromOrgAmt
Total Other Compensation$26,720TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K4IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
Kelly Oliver
838 61st StOaklandCA94608CONQUEST consultant$359,375
Wade Benton
870 Crestview DrSan CarlosCA94070CONQUEST consultant$310,000
Dahlia Garza
6 Giles Hill RdReddingCT06896CONQUEST consultant$230,517
Ravix Financial Inc
226 Airport Pkwy Ste 400San JoseCA95110Finance & human resources$200,121
BrowneMusser
10 Rice LnLarkspurCA94939Mktg, adv, outreach$121,376
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K7CntrctRcvdGreaterThan100KCnt
Federated Campaigns$26,279FederatedCampaignsAmt
Fundraising$1,141,288FundraisingAmt
All Other Contributions$2,765,385AllOtherContributionsAmt
Noncash Contributions$423,912NoncashContributionsAmt
Total Contributions$3,932,952TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescClinical trial platformDesc
Business900099BusinessCd
Total Revenue Column$3,832,233TotalRevenueColumnAmt
Related Or Exempt Func Income$3,832,233RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$3,832,233TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$904,546TotalRevenueColumnAmt
Exclusion$904,546ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$93,400FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,141,288ContriRptFundraisingEventAmt
Fundraising Direct Expenses$352,348FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$258,948TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescOther incomeDesc
Business900099BusinessCd
Total Revenue Column$7,255TotalRevenueColumnAmt
Exclusion$7,255ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$7,255OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$8,418,038TotalRevenueColumnAmt
Related Or Exempt Func Income$3,832,233RelatedOrExemptFuncIncomeAmt
Exclusion$911,801ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$2,482,921TotalAmt
Program Services$2,482,921ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$204,561TotalAmt
Program Services$122,737ProgramServicesAmt
Management And General$61,368ManagementAndGeneralAmt
Fundraising$20,456FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$592,227TotalAmt
Program Services$369,514ProgramServicesAmt
Management And General$62,340ManagementAndGeneralAmt
Fundraising$160,373FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$37,801TotalAmt
Program Services$21,632ProgramServicesAmt
Management And General$6,282ManagementAndGeneralAmt
Fundraising$9,887FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$56,839TotalAmt
Program Services$35,145ProgramServicesAmt
Management And General$8,503ManagementAndGeneralAmt
Fundraising$13,191FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$298,892TotalAmt
Program Services$298,892ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$236,971TotalAmt
Management And General$236,971ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$40,277TotalAmt
Management And General$40,277ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$1,831,562TotalAmt
Program Services$1,784,379ProgramServicesAmt
Management And General$24,664ManagementAndGeneralAmt
Fundraising$22,519FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$182,044TotalAmt
Program Services$140,141ProgramServicesAmt
Management And General$8,546ManagementAndGeneralAmt
Fundraising$33,357FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$93,632TotalAmt
Program Services$44,929ProgramServicesAmt
Management And General$7,669ManagementAndGeneralAmt
Fundraising$41,034FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$98,241TotalAmt
Program Services$39,390ProgramServicesAmt
Management And General$8,662ManagementAndGeneralAmt
Fundraising$50,189FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$84,773TotalAmt
Program Services$50,864ProgramServicesAmt
Management And General$8,477ManagementAndGeneralAmt
Fundraising$25,432FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$17,412TotalAmt
Program Services$4,559ProgramServicesAmt
Management And General$584ManagementAndGeneralAmt
Fundraising$12,269FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$207,214TotalAmt
Program Services$206,501ProgramServicesAmt
Management And General$162ManagementAndGeneralAmt
Fundraising$551FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$13,978TotalAmt
Program Services$8,388ProgramServicesAmt
Management And General$1,396ManagementAndGeneralAmt
Fundraising$4,194FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$8,254TotalAmt
Program Services$4,953ProgramServicesAmt
Management And General$825ManagementAndGeneralAmt
Fundraising$2,476FundraisingAmt

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$6,487,599TotalAmt
Program Services$5,614,945ProgramServicesAmt
Management And General$476,726ManagementAndGeneralAmt
Fundraising$395,928FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,489,493BOYAmt
EOY$3,921,428EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$174BOYAmt
EOY$12,296EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$1,207,075BOYAmt
EOY$1,071,849EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$38,910BOYAmt
EOY$56,574EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$88,950LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$57,321LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$45,607BOYAmt
EOY$31,629EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$8,215,407BOYAmt
EOY$13,488,695EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$146,971BOYAmt
EOY$72,277EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$11,143,637BOYAmt
EOY$18,654,748EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$775,777BOYAmt
EOY$2,842,768EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$20,000BOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$287,435BOYAmt
EOY$300,849EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$157,658BOYAmt
EOY$3,978,774EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,240,870BOYAmt
EOY$7,122,391EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$8,984,292BOYAmt
EOY$11,531,310EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$918,475BOYAmt
EOY$1,047EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$9,902,767BOYAmt
EOY$11,532,357EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$11,143,637BOYAmt
EOY$18,654,748EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,930,439ReconcilationRevenueExpnssAmt
Prior Period Adjustments-$300,849PriorPeriodAdjustmentsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,892,050CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,743,217CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,549,644CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$5,376,802CurrentTaxYearMinus1YearAmt
Current Tax Year$3,932,952CurrentTaxYearAmt
Total$19,494,665TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,892,050CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,743,217CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,549,644CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$5,376,802CurrentTaxYearMinus1YearAmt
Current Tax Year$3,932,952CurrentTaxYearAmt
Total$19,494,665TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$5,581,189SubstantialContributorsTotAmt
Public Support Total170$13,913,476PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$74,912CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$347,227CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$98,683CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$116,754CurrentTaxYearMinus1YearAmt
Current Tax Year$309,318CurrentTaxYearAmt
Total$946,894TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$16,529CurrentTaxYearMinus1YearAmt
Current Tax Year$7,255CurrentTaxYearAmt
Total$23,784TotalAmt
FieldValueIRS element (for citing)
Total Support$20,465,343TotalSupportAmt
Gross Receipts Rltd Activities$4,017,764GrossReceiptsRltdActivitiesAmt
Public Support CY1700.67990PublicSupportCY170Pct
Public Support PY1700.60050PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$88,950OtherCostOrOtherBasisAmt
Depreciation$57,321DepreciationAmt
Book Value$31,629BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$31,629TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
Due to partners$3,900,440
Operating lease liability$78,334
FieldValueIRS element (for citing)
Total Liability$3,978,774TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$8,377,761TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal$8,377,761RevenueSubtotalAmt
Investment Expenses Not Incld$40,277InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$40,277RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$8,418,038TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$6,447,322TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$6,447,322ExpensesSubtotalAmt
Investment Expenses Not Incld2$40,277InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$40,277ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$6,487,599TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X : FIN48 FootnoteFormAndLineReferenceDesc
ExplanationThe Internal Revenue Service and the California Franchise Tax Board have determined that the Organization is exempt from federal and state income taxes under IRC 501(c)(3) and California RTC 23701(d). The Organization has evaluated its current tax positions as of December 31, 2023 and is not aware of any significant uncertain tax positions for which a reserve would be necessary. The Organizations tax returns are generally subject to examination by federal and state taxing authorities for three and four years, respectively, after they are filed.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Agrmt Prof Fundraising ActyfalseAgrmtProfFundraisingActyInd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Cool ComedyEvent1Nm
Gross Receipts Event1$1,234,688GrossReceiptsEvent1Amt
Charitable Contri Event1$1,141,288CharitableContriEvent1Amt
Gross Revenue Event1$93,400GrossRevenueEvent1Amt
Rent Facility Costs Event1$87,336RentFacilityCostsEvent1Amt
Food And Beverage Event1$115,072FoodAndBeverageEvent1Amt
Other Direct Expenses Event1$149,940OtherDirectExpensesEvent1Amt
Gross Receipts Total$1,234,688GrossReceiptsTotalAmt
Charitable Contributions Tot$1,141,288CharitableContributionsTotAmt
Gross Revenue Total Events$93,400GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$87,336RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$115,072FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$149,940OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$352,348DirectExpenseSummaryEventsAmt
Net Income Summary-$258,948NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (22 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
Boston Childrens Hospital Co
410 Park Dr Ste 602BostonMA02215042774441501c3$15,000$0Research
Columbia University
PO Box 29789 Gen Post OfficeNew YorkNY10087135598093501c3$23,936$0Research
Duke University
PO Box 602651CharlotteNC28260560532129501c3$23,794$0Research
Georgetown Univ Medical Ctr
PO Box 571164WashingtonDC20057522218584501c3$35,194$0Research
Hospital for Special Surgery
535 E 70th StNew YorkNY10021131624135501c3$168,444$0Research
John Hopkins University
12529 Collections Center DrChicagoIL60693520595110501c3$135,090$0Research
Massachusetts GeneralHospital
55 Fruit St YAW2CBostonMA02114042697983501c3$19,135$0Research
Mayo Clinic
PO Box 860334MinneapolisMN55486416011702501c3$24,338$0Research
Medical Univ of SouthCarolina
19 Hagood Ave Ste 805 MSC 804CharlestonSC29425576028985501c3$7,653$0Research
Northwestern University
633 N St Clair 18-041ChicagoIL60611362167817501c3$45,866$0Research
NYU Grossman School Medicine
435 30th St 8th FlNew YorkNY10016135562309Gov$100,000$0Research
Regents of UCLA
1125 Murphy HallLos AngelesCA90095956006143501c3$19,757$0Research
Regents of Univ of CA-UCSF
PO Box 748872Loa AngelesCA90074946036493501c3$42,320$0Research
Regents of Univ of Michigan
Box 223131PittsburghPA15251386006309501c3$67,153$0Research
Stanford School of Medicine
PO Box 44253San FranciscoCA94144941156365501c3$673,018$0Research
Trustees of Dartmouth College
11 Rope Ferry Rd Ste 6210HanoverNH03755020222111501c3$117,950$0Research
Trustees of the Univ of PA
PO Box 785541PhiladelphiaPA19178231352685501c3$79,935$0Research
Univ of TX Health Science Ctr
PO Box 301418DallasTX75303741761309501c3$265,286$0Research
University of Pittsburgh
3100 Cathedral of LearningPittsburghPA15260250965591501c3$75,000$0Research
University of Utah
PO Box 581374Salt Lake CityUT84158876000525501c3$279,048$0Research
Vanderbilt University Med Ctr
PO Box 121236DallasTX75312352528741501c3$140,004$0Research
Yale University
PO Box 208011 TAC 5669New HavenCT06520060646973501c3$125,000$0Research
FieldValueIRS element (for citing)
Total501c3 Org22Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationAs part of the extensive continuing grant application process, grantees are required to provide a summary accounting of the grant from the prior funding year along with any remaining balances. This information, along with the proposed budget for the next funding cycle is reviewed by our Scientific Advisory Board (SAB) during the annual scientific workshop. The Board of Directors meets to discuss the SAB recommendations and funding decisions are agreed upon.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Written Employment ContractYes (X)WrittenEmploymentContractInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtBonus Filing OrganizationBonusFilingOrganizationAmountNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
Joanne Gold
Executive Dir.$184,786$18,500$3,214$206,500
Kate Ceredona
Dir Philanthropy$148,315$4,000$6,516$158,831

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution13ContributionCnt
Noncash Contributions Rpt F990$352,080NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescAuction itemsDesc
Contribution4ContributionCnt
Noncash Contributions Rpt F990$71,832NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsfalseReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 33, Revenues Not ReportedFormAndLineReferenceDesc
ExplanationThe Organization received a stock donation of 486,800 for a contribution receivable recognized in 2022.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part III, Line 2In August 2023, The SRF launched CONQUEST, a highly innovative clinical trial platform designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from Phase 2b to Phase 3 clinical trials. Using a model first created over a decade ago to accelerate oncology drug development, the SRF platform is the first of its kind in rare autoimmune diseases. In its initial iteration, CONQUEST will focus on Interstitial Lung Disease secondary to Scleroderma (SSc-ILD). In the future, the platform will be expanded to address other manifestations of scleroderma.
Form 990, Part VI, Section A, Line 1aA separate Finance Committee reviews monthly financial performance and previews audit and tax returns prior to full Board review.
Form 990, Part VI, Section A, Line 2Luke Evnin (Chairman) is married to Deann Wright (Secretary).
Form 990, Part VI, Section B, Line 11bA draft will be sent to the Finance Committee and once it clears their review, it will go to the full Board for approval.
Form 990, Part VI, Section B, Line 12cConflict of interest policy is discussed with all BOD members in annual review of Bylaws, members are asked to disclose any updates or changes that may conflict with the stated policy.
Form 990, Part VI, Section B, Line 15aMarket comparisons were done during initial recruitment, Recommendations for bonus/salary increases were based on industry standards and discussed/voted on during an executive session of the February 2024 BOD meeting
Form 990, Part VI, Section B, Line 15bProcess included review of publicly available compensation data, discussions with BOD to set salary max and bonus allowances as part of annual budgeting. If there is a request to exceed budgeted salary, BOD approval is required by vote.
Form 990, Part VI, Section C, Line 19Financial statements, bylaws, and conflict of interest policy are available upon request
990 Part IX, Statement of Functional ExpensesIn addition to the activity reflected in the financial statements, the Organization launched a platform clinical trial in 2023. As part of the launch, the Organization became responsible for significant clinical trial costs. Under agreements with external partnering corporations, the Organization receives funds in advance to be paid for clinical trial costs. The Organization reports such funds as Due to Clinical Trial. $25,460,149 in funds received and disbursed were related to this platform clinical trial; they were accounted for on a pass-through basis during the year ended December 31, 2023.