LUPUS RESEARCH ALLIANCE INC: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization: LUPUS RESEARCH ALLIANCE INC (EIN 58-2492929)
Tax period: 2023-01-01 to 2023-12-31
Filed: 2024-09-20
IRS object ID: 202412649349300226
Schema version: 2023v5.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2024-09-20T12:28:42-05:00	ReturnTs
Tax Period End	2023-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	131655065	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	LUTZ AND CARR CPAS LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	551 FIFTH AVENUE SUITE 400	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10176	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2023-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	582492929	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS RESEARCH ALLIANCE INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	LUPU	BusinessNameControlTxt
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	DEBRA ROSE	PersonNm
Person Title	VP AND CHIEF FINANCIAL OFFICER	PersonTitleTxt
Phone	2122182840	PhoneNum
Signature	2024-09-17	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	0	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JENNIFER COATES	PreparerPersonNm
PTIN	P02247728	PTIN
Phone	2126972299	PhoneNum

Field	Value	IRS element (for citing)
Tax	2023	TaxYr
Build TS	2024-08-08 14:25:15Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ALBERT T ROY	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$56,240,014	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	LUPUSRESEARCH.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1999	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	FREEING THE WORLD OF LUPUS.	ActivityOrMissionDesc
Voting Members Governing Body	25	VotingMembersGoverningBodyCnt
Voting Members Independent	25	VotingMembersIndependentCnt
Total Employee	73	TotalEmployeeCnt
Total Volunteers	500	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$18,375,553	PYContributionsGrantsAmt
CY Contributions Grants	$41,038,661	CYContributionsGrantsAmt
PY Program Service Revenue	$1,232,995	PYProgramServiceRevenueAmt
CY Program Service Revenue	$1,197,560	CYProgramServiceRevenueAmt
PY Investment Income	$2,452,805	PYInvestmentIncomeAmt
CY Investment Income	$8,063,403	CYInvestmentIncomeAmt
PY Other Revenue	$638,138	PYOtherRevenueAmt
CY Other Revenue	$561,873	CYOtherRevenueAmt
PY Total Revenue	$22,699,491	PYTotalRevenueAmt
CY Total Revenue	$50,861,497	CYTotalRevenueAmt
PY Grants And Similar Paid	$17,377,279	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$16,607,966	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$7,532,779	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$9,057,340	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$65,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$72,500	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$3,718,497	CYTotalFundraisingExpenseAmt
PY Other Expenses	$7,398,867	PYOtherExpensesAmt
CY Other Expenses	$9,667,445	CYOtherExpensesAmt
PY Total Expenses	$32,373,925	PYTotalExpensesAmt
CY Total Expenses	$35,405,251	CYTotalExpensesAmt
PY Revenues Less Expenses	-$9,674,434	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$15,456,246	CYRevenuesLessExpensesAmt
Total Assets BOY	$98,907,292	TotalAssetsBOYAmt
Total Assets EOY	$111,947,130	TotalAssetsEOYAmt
Total Liabilities BOY	$35,375,707	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$36,633,486	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$63,531,585	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$75,313,644	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	PUTTING PEOPLE WITH LUPUS AT THE CENTER OF ALL WE DO, THE LUPUS RESEARCH ALLIANCE DRIVES THE DISCOVERY & DEVELOPMENT OF NEXT GENERATION LUPUS DIAGNOSTICS AND CURATIVE TREATMENTS THROUGH INNOVATIVE RESEARCH & COLLABORATIONS.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$14,963,989	ExpenseAmt
Grant	$13,851,951	GrantAmt
Desc	RESEARCH:THE LUPUS RESEARCH ALLIANCE (LRA), THE LARGEST NON-GOVERNMENTAL, PRIVATE FUNDER OF LUPUS RESEARCH WORLDWIDE: FUNDS INNOVATIVE RESEARCH THAT SPANS THE SPECTRUM FROM FOUNDATIONAL TO CLINICAL RESEARCH. FOSTERS DIVERSE SCIENTIFIC TALENT, STIMULATES COLLABORATIONS, AND DRIVES DISCOVERIES TO TRANSFORM TREATMENT WHILE ADVANCING TOWARD A CURE. HAS INVESTED NEARLY $260 MILLION IN LUPUS RESEARCH THROUGH 560+ RESEARCH GRANTS. SUPPORTS RESEARCH THAT HAS CONTRIBUTED TO THE IDENTIFICATION OR FURTHER VALIDATION OF AT LEAST 15 DIFFERENT DISEASE PATHWAYS IN LUPUS AND HAS ENABLED THE DISCOVERY, PROOF OF CONCEPT AND DEVELOPMENT OF MORE THAN A DOZEN DIFFERENT THERAPIES FOR LUPUS. THE ORGANIZATION'S RESEARCH COMMITTEE OF THE BOARD OF DIRECTORS AND SCIENTIFIC ADVISORY BOARD INCLUDE TOP SCIENTIFIC EXPERTS, AND KEY LAY MEMBERS OF THE BOARD, WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA.IN 2023 ALONE, APPROXIMATELY $13.8 MILLION WAS AWARDED IN GRANTS FOR 26 HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS AND THUS LEAD TO A CURE. BELOW IS A SUMMARY OF RESEARCH GRANTS AND PROGRAMS FUNDED BY THE LRA IN 2023: 1) THE GLOBAL TEAM SCIENCE AWARD PROGRAM AWARDED 1 GRANT FOR $3 MILLION. THIS GRANT PROVIDES FUNDING FOR A MULTIDISCIPLINARY, COLLABORATIVE AND HIGHLY SYNERGISTIC PROJECT THAT WILL PUSH THE BOUNDARIES OF INNOVATION AND BRIDGE RESEARCH AND CLINICAL EFFORTS IN LUPUS. THE TEAM WILL FOCUS ON UNRAVELING HUMAN LUPUS HETEROGENEITY WITH THE AIM TO DISCOVER NEW AVENUES TO PERSONAL TREATMENT APPROACHES; 2) THE DISTINGUISHED INNOVATOR AWARD PROGRAM PROVIDES OUTSTANDING SCIENTISTS WITH SUBSTANTIAL SUPPORT TO CONDUCT HIGHLY INNOVATIVE RESEARCH TO UNCOVER THE UNDERLYING CAUSES OF LUPUS, 1 DISTINGUISHED INNOVATOR AWARDS FOR A TOTAL OF $1 MILLION WAS AWARDED.3) 7 LUPUS MECHANISMS AND TARGETS AWARDS TOTALING $4.2 MILLION SUPPORT ESTABLISHED INVESTIGATORS FOCUSED ON CHARACTERIZING LUPUS PATHOGENESIS AND IDENTIFYING AND VALIDATING MOLECULAR PATHWAYS OR DRUGGABLE TARGETS THAT COULD LEAD TO NEW OR IMPROVED THERAPIES.4) 9 LUPUS INNOVATION AWARD GRANTS WERE AWARDED TOTALING ALMOST $3 MILLION OVER TWO YEARS, THIS PROGRAM PROVIDES EARLY-STAGE SUPPORT FOR EXCEPTIONALLY CREATIVE AND INNOVATIVE APPROACHES TO MAJOR CHALLENGES IN LUPUS RESEARCH; 5) THE PACE OF FUNDING IN THE DIVERSITY IN LUPUS RESEARCH PROGRAM GAINED MOMENTUM 2023 BY FUNDING THE FOLLOWING: A. 3 ADMINISTRATIVE DIVERSITY SUPPLEMENT GRANTS TO PROMOTE DIVERSITY IN LUPUS RESEARCH WERE AWARDED TOTALING APPROXIMATELY $60,000. THESE AWARDS FUND HIGHLY QUALIFIED AND PROMISING UNDERREPRESENTED MINORITY TRAINEES TO SUPPORT THEIR RESEARCH EXPERIENCES ALIGNED WITH AN LRA PARENT AWARD. B. 4 GRANTS TOTALING 2.4 MILLION WERE AWARDED TO RESEARCHERS IN THE CAREER DEVELOPMENT AWARD PROGRAM THAT AIMS TO FOSTER THE DEVELOPMENT OF OUTSTANDING, UNDERREPRESENTED MINORITY SCIENTISTS AND ESTABLISH A DIVERSE COMMUNITY OF RESEARCHERS AND CLINICIANS IN THE FIELD OF LUPUS, THE PROGRAM PROVIDES UP TO $600,000 OVER FOUR YEARS TO TALENTED UNDERREPRESENTED MINORITY SCIENTISTS. C. 1 POSTDOCTORAL GRANTS FELLOWSHIP GRANT WHICH PROVIDE FELLOWS WITH UP TO $170,000 OVER TWO YEARS TO SUPPORT THE GENERATION OF DATA AND PROGRESS NEEDED TO BECOME INDEPENDENT LUPUS RESEARCHERS.6) THE LUPUS INSIGHT PRIZE WAS AWARDED FOR $100,000. THIS AWARD RECOGNIZES A LEADING RESEARCHER WHO HAS MADE A MAJOR CONTRIBUTION RELEVANT TO LUPUS. THE LRA IS AN ORGANIZATION OF PARTNERSHIPS, BRINGING TOGETHER THE KEY PLAYERS IN THE FIGHT AGAINST LUPUS -- OUR GRANTEES, SCIENTIFIC ADVISORS, CLINICIANS, THE BIOPHARMACEUTICAL INDUSTRY, THE U.S. GOVERNMENT, AND PEOPLE LIVING WITH LUPUS. THE LRA'S UNIQUE FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS WITH THE GOAL OF IMPROVING THE LIVES OF PEOPLE WITH LUPUS SOON. THROUGH A COMPETITIVE PEER-REVIEW PROCESS PROJECTS BY THE LRA AIM TO TRANSLATE RESULTS FROM THE RESEARCH BENCH TO THE BEDSIDE AS QUICKLY AS POSSIBLE. BECAUSE THE LUPUS RESEARCH ALLIANCE'S BOARD OF DIRECTORS FUNDS THE ADMINISTRATIVE AND FUNDRAISING EXPENSES, 100% OF ALL OTHER CONTRIBUTIONS GOES TO SUPPORT THE LRA'S LUPUS RESEARCH PROGRAMS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$12,470,434	ExpenseAmt
Grant	$2,632,847	GrantAmt
Revenue	$1,197,560	RevenueAmt
Desc	SCIENTIFIC PROGRAMS:IN 2023, THE LUPUS RESEARCH ALLIANCE (LRA) MAINTAINED THE MOMENTUM OF ITS SCIENTIFIC PROGRAMS. THE LRA'S PROGRAMS' GROWTH WAS DRIVEN BY BUILDING ON ESTABLISHED PROGRAMS WHILE CREATING OPPORTUNITIES FOR COLLABORATION WITH DIFFERENT SECTORS. NOTABLE ACHIEVEMENTS FROM 2023 INCLUDE THE FOLLOWING: COLLABORATED WITH LRA RESEARCH COMMITTEE OF THE BOARD AND SCIENTIFIC ADVISORY BOARD TO BOTH IMPLEMENT EFFICIENTLY OUR EXISTING RESEARCH STRATEGY AND TO DEVELOP AN UPDATED PLAN FOR THE NEXT FIVE YEARS. DEVELOPED AN AMBITIOUS RESEARCH STRATEGIC PLAN FOR THE LRA FOR THE NEXT FIVE YEARS (2024-2028). COMPLETED THE MOST COMPREHENSIVE RESEARCH PORTFOLIO EVALUATION FOR THE LRA TO DATE GENERATING SUBSTANTIAL DATA ON THE OUTCOMES OF LRA'S RESEARCH INVESTMENTS THAT IS BEING USED TO REFINE LRA'S RESEARCH PORTFOLIO AND TO RAISE ADDITIONAL FUNDS BY DEVELOPMENT. EXPANDED LRA'S RESEARCH PORTFOLIO WITH 26 NEW, INNOVATIVE, AND POTENTIALLY IMPACTFUL RESEARCH PROJECTS. LAUNCHED CRITICAL EFFORTS TO FURTHER MAXIMIZE LRA'S RESEARCH INVESTMENTS INCLUDING A COLLABORATIVE PROGRAM ACROSS THE GTSA GRANTEES AND A DLR TRAINING PROGRAM. FURTHER OPTIMIZED THE LUPUS INSIGHT PRIZE PROGRAM TO STIMULATE THE SUBMISSION OF A ROBUST POOL OF COMPELLING NOMINATIONS. ESTABLISHED THE LUPUS ACCELERATING BREAKTHROUGHS CONSORTIUM (LUPUS ABC)-- THE FIRST PUBLIC PRIVATE PARTNERSHIP WITH THE FDA DEDICATED TO ACCELERATING THE DEVELOPMENT OF SAFER AND MORE EFFECTIVE THERAPEUTICS FOR LUPUS. SINCE ITS CREATION, LUPUS ABC HAS LAUNCHED FOUR PROJECTS WITH THE PARTICIPATION OF KEY STAKEHOLDERS--INCLUDING REPRESENTATIVES FROM ACADEMIA, INDUSTRY, PROFESSIONAL SOCIETIES, GOVERNMENTAL AGENCIES, PATIENT ADVOCACY GROUPS, AND INDIVIDUALS WITH LUPUS. CONTINUED TO ESTABLISH KEY INFRASTRUCTURE COMPONENTS OF THE LUPUS NEXUS, THE LRA'S REGISTRY, BIOREPOSITORY AND RESEARCH INFORMATION EXCHANGE PLATFORM. THE LUPUS NEXUS WILL BE A SOURCE OF HIGHLY CURATED DATA AND BIOSPECIMENS TO CATALYZE GLOBAL COLLABORATION, RESEARCH INNOVATION, AND PRECISION MEDICINE APPROACHES TO ACCELERATE LUPUS RESEARCH AND DRUG DEVELOPMENT. MAINTAINED A STRONG ENGAGEMENT WITH INDUSTRY THROUGH THE LUPUS INDUSTRY COUNCIL (LIC). LIC MEMBERS ARE INVOLVED IN VARIOUS LRA INITIATIVES INCLUDING THE LUPUS ABC, LUPUS NEXUS, AND LIC WORKING GROUPS. DURING 2023, THE (LRA) CONVENED AN ANNUAL SCIENTIFIC CONFERENCE, THE FORUM FOR DISCOVERY, TO PROVIDE AN OPPORTUNITY FOR LRA-FUNDED SCIENTISTS TO SHARE THEIR RESEARCH DISCOVERIES MADE POSSIBLE BY LRA'S SUPPORT ADDITIONAL GOALS OF THE MEETING INCLUDE PROMOTING COLLABORATIONS, STIMULATING NEW IDEAS AND PROJECTS, AND ENABLING INTERACTIONS BETWEEN INVESTIGATORS FROM ACADEMIA AND INDUSTRY. CONTINUED TO NURTURE COLLABORATION BY HOSTING INTERNAL AND EXTERNAL MEETINGS. THIS INCLUDED RESEARCH COMMITTEE MEETINGS WHERE MEMBERS OF OUR BOARD OF DIRECTORS AS WELL AS TOP-LEVEL RESEARCHERS DISCUSSED OUR PORTFOLIO AND UPCOMING STRATEGIC STEPS; SCIENTIFIC ADVISORY BOARD MEETINGS WHERE HIGHLY REGARDED SCIENTIFIC ADVISORS REVIEW GRANT APPLICATION SUBMISSIONS AND DISCUSS FUTURE AND OVERALL RESEARCH STRATEGY FOR THE ORGANIZATION; 2023 FORUM FOR DISCOVERY (ANNUAL INVESTIGATOR'S MEETING); GRANT-SPECIFIC STUDY SECTIONS WHERE INVITED RESEARCHERS DISCUSSED AND REVIEWED APPLICATIONS SUBMITTED TO THE LRA. LUPUS THERAPEUTICS, LLC:THE LRA FOUNDED LUPUS THERAPEUTICS, LLC (LT) AS THE CLINICAL RESEARCH AFFILIATE OF THE LRA IN 2018 . WITH THIS ADDITION, THE LRA IS THE ONLY ORGANIZATION LEADING LUPUS RESEARCH ACROSS THE CONTINUUM FROM ACCELERATING BASIC DISCOVERIES IN THE LAB THROUGH CLINICAL EVALUATION OF NEW THERAPIES. MANY OF THE BASIC RESEARCH BREAKTHROUGHS SUPPORTED BY THE LRA HAVE HELPED UNRAVEL THE COMPLEXITIES OF LUPUS AND ENABLED THE DEVELOPMENT OF POTENTIAL TREATMENTS AND DIAGNOSTICS NOW IN CLINICAL STUDIES. LT IS ACTIVELY SUPPORTING SEVERAL CLINICAL STUDIES FOR NEW THERAPIES THROUGH THE LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN). LT OVERSEES LUCIN, A NORTH AMERICA-BASED LUPUS CLINICAL TRIALS NETWORK OF 50+ PREMIER RESEARCH MEDICAL CENTERS. THE LRA PROVIDED OVER $2.6 MILLION IN 1-YEAR GRANTS IN 2023 TO CONTINUE FUNDING TOP ACADEMIC CENTERS TO FOSTER ROBUST, HIGH QUALITY CLINICAL TRIAL CONDUCT WITH PARTICIPATION ACROSS NORTH AMERICA.LT ALSO OFFERS EXPERTISE COMBINED WITH THAT OF 200+ LUCIN PROVIDERS AND THE LRA THROUGH COMMUNITY-BASED AND INTERNAL PROGRAMS TO ENSURE EQUITABLE ACCESS, PARTICIPATION AND REPRESENTATION OF THE DIVERSE LUPUS COMMUNITY.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$783,882	ExpenseAmt
Grant	$123,168	GrantAmt
Desc	PUBLIC POLICY:THE LUPUS RESEARCH ALLIANCE'S ADVOCACY EFFORTS FOCUS ON URGING CONGRESS TO PROVIDE THE FUNDS NEEDED TO SUPPORT RESEARCH INTO LUPUS THAT CAN LEAD TO BETTER TREATMENTS AND, ULTIMATELY, A CURE. EFFORTS ALSO INCLUDE WAYS TO ENSURE INCREASED DIVERSITY IN CLINICAL TRIALS AND REDUCING BARRIERS TO ENROLLMENT FOR ALL WHO WANT TO PARTICIPATE. THE TOP GOALS OF THE LUPUS RESEARCH ALLIANCE PUBLIC POLICY PROGRAM FOCUS MAINLY ON FUNDING FOR LUPUS RESEARCH THAT WILL LEAD TO BETTER TREATMENTS AND ELIMINATE RACIAL DISPARITIES IN HEALTHCARE. GOALS INCLUDE: INCREASING FEDERAL FUNDING FOR LUPUS RESEARCH BY RAISING OVERALL NATIONAL INSTITUTES OF HEALTH (NIH) FUNDS AND SECURE ADDITIONAL FUNDING FOR LUPUS RESEARCH THROUGH OTHER KEY FEDERAL AGENCIES INCLUDING THE DEPARTMENT OF DEFENSE (DOD); SUPPORTING THE LRA'S PARTNERSHIP WITH THE FDA, THE LUPUS ACCELERATING BREAKTHROUGHS CONSORTIUM (LUPUS ABC); AND ENSURING THE PATIENT VOICE IS INCORPORATED IN THE DRUG DEVELOPMENT PROCESS. VOLUNTEERS ACROSS THE COUNTRY HELP AMPLIFY THESE OUTREACH EFFORTS.THROUGH THE LUPUS RESEARCH ALLIANCE ONGOING PUBLIC POLICY PROGRAM EFFORTS, SIGNIFICANT FUNDING FOR LUPUS RESEARCH HAS BEEN OBTAINED UNDER THE DEPARTMENT OF DEFENSE (DOD) CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) OPERATED BY THE ARMY MEDICAL RESEARCH AND MATERIEL COMMAND. GIVEN THE HIGH DEMAND FOR NEW RESEARCH ALONGSIDE THE RISING NUMBERS OF WOMEN TREATED AT MILITARY HEALTH FACILITIES AS WELL AS THE LINK BETWEEN POST-TRAUMATIC STRESS DISORDER (PTSD) AND THE DEVELOPMENT OF AN AUTOIMMUNEDISEASE, THE LUPUS RESEARCH ALLIANCE REQUESTS THAT CONGRESS INCREASE ITS INVESTMENT AND PROVIDE $15 MILLION FOR THE LUPUS RESEARCH PROGRAM IN THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS OPERATED UNDER THE DEFENSE HEALTH PROGRAM IN THE DEFENSE APPROPRIATIONS BILL. THIS ADDITIONAL INVESTMENT IS CRITICAL FOR DISCOVERIES THAT CAN MAKE A DIFFERENCE IN PATIENTS' ABILITY TO BE THE BEST VERSION OF THEMSELVES. THE LRA LED THE PUSH FOR THE CREATION OF THE LUPUS RESEARCH PROGRAM, WHICH WAS FIRST FUNDED WITH $5 MILLION IN 2017 AND INCREASED TO $10 MILLION PER YEAR IN 2020. LRA LEADERSHIP, OUR ADVOCATES, AND ALLIED MEMBERS OF CONGRESS ARE WORKING TO ADVANCE RESEARCH PRIORITIES LIKE THIS THAT ARE CRITICAL TO THE LUPUS RESEARCH ALLIANCE AND ALL PEOPLE IMPACTED BY LUPUS.IN 2023 THE LRA INTRODUCED THE LUPUS ACCELERATING BREAKTHROUGHS CONSORTIUM (LUPUS ABC) AS THE FIRST PUBLIC-PRIVATE PARTNERSHIP WITH THE U.S. FOOD AND DRUG ADMINISTRATION (FDA) THAT FOCUSES SPECIFICALLY ON ADVANCING THE DEVELOPMENT OF SAFER AND MORE EFFECTIVE TREATMENTS URGENTLY NEEDED FOR PEOPLE WITH LUPUS. IN COLLABORATION WITH KEY STAKEHOLDERS, LUPUS ABC IS BRINGING TOGETHER PEOPLE WITH LUPUS, FEDERAL AGENCIES, MEDICAL SOCIETIES, ADVOCACY GROUPS, INDUSTRY, ACADEMIC CLINICAL RESEARCHERS, AND SCIENTISTS, WITH THE FDA, TO OVERCOME THE SCIENTIFIC HURDLES IN DRUG DEVELOPMENT THAT ARE BEYOND THE CAPACITY OF ANY SINGLE ENTITY.THE LRA ALSO WORKED TO INCLUDE LANGUAGE THAT ACCOMPANIES THE AGRICULTURE, RURAL DEVELOPMENT, FOOD AND DRUG ADMINISTRATION (FDA) BILL TO SUPPORT ACCELERATING LUPUS THERAPIES. BOTH THE HOUSE AND SENATE APPROPRIATIONS COMMITTEES HAVE INCLUDED IMPORTANT LANGUAGE RELEVANT TO LUPUS SIMILAR TO WHAT LRA REQUESTED. THE FOLLOWING LANGUAGE WAS INCLUDED IN THE SENATE REPORT:THE COMMITTEE IS AWARE OF BARRIERS THAT HAVE LONG AFFECTED THE DEVELOPMENT OF THERAPEUTICS FOR LUPUS, A DISEASE THAT PRIMARILY TARGETS WOMEN. A CHRONIC AND COMPLEX AUTOIMMUNE DISEASE, LUPUS CAN AFFECT THE JOINTS, SKIN, BRAIN, LUNGS, KIDNEYS, AND BLOOD VESSELS, CAUSING WIDESPREAD INFLAMMATION AND TISSUE DAMAGE IN THE AFFECTED ORGAN. THE COMMITTEE IS PLEASED THAT FDA PARTICIPATED IN AN EXTERNALLY-LED PATIENT-FOCUSED DRUG DEVELOPMENT MEETING WITH THE LUPUS COMMUNITY AND IDENTIFIED SOME OF THESE BARRIERS AND THAT POTENTIAL TREATMENTS ARE NOW IN CLINICAL TRIALS. THE COMMITTEE URGES FDA TO EXPEDITE ITS ONGOING WORK WITH THE LUPUS COMMUNITY TO DEVELOP SOLUTIONS TO IDENTIFIED BARRIERS THAT WILL ACCELERATE DEVELOPMENT OF NEW THERAPIES.ONGOING ADVOCACY FOCUSES ON ENSURING LEGISLATION THAT SECURES THE FEDERAL FUNDING SUPPORT NECESSARY TO AFFORD INVESTIGATORS THE RESOURCES TO FOLLOW THROUGH WITH RESEARCH DISCOVERIES THAT WILL IMPROVE THE UNDERSTANDING OF AND TREATMENT FOR LUPUS. EACH SPRING, LUPUS RESEARCH ADVOCATES MEET WITH MEMBERS OF CONGRESS AND THEIR STAFF TO DESCRIBE THEIR PERSONAL LUPUS JOURNEY AND HOW THE DISEASE HAS AFFECTED THEIR LIFE, AND TO REQUEST SPECIFIC POLICIES THAT WILL MOVE LUPUS RESEARCH FORWARD. THE GOAL IS TO INCREASE AWARENESS OF LUPUS AND THE IMPACT IT HAS ON PEOPLE'S DAILY LIVES TO MEMBERS OF CONGRESS AND TO REQUEST THEIR SUPPORT FOR INCREASED FUNDING FOR LUPUS RESEARCH FROM FEDERAL PROGRAMS SUCH AS THE NIH AND CDMRP.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$28,218,305	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	0	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	Yes (1)	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	116	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	73	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	25	GoverningBodyVotingMembersCnt
Independent Voting Member	25	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DEBRA ROSE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (38 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
IRA AKSELRAD
CO-CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
RICHARD K DESCHERER
CO-CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
JOSEPH MAURIELLO
TREASURER	1.00	Yes (X)	Yes (X)	$0	$0	$0
ANNA FISCH
SECRETARY	1.00	Yes (X)	Yes (X)	$0	$0	$0
JAMES ANDREW
DIRECTOR	1.00	Yes (X)		$0	$0	$0
BISHOP RUDY V CARLTON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIE COLON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIFER DAKIN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIE DESCHERER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KATEY DRISCOLL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SIR MARC FELDMANN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOTI FERDER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JOE GERMANOTTA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DAVID KIES
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL LAVECCHIA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
VERONICA VARGAS LUPO
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOLLY MCCABE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NADEEM MEGHJI
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM J MULVIHILL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NIDHI PATEL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ROBERT SEDER MD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL J WALLACE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JULIUS WILLIAMS
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM WOLFE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SPENCER ZWICK
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ALBERT ROY
CEO AND PRESIDENT	40.00		Yes (X)	$435,807	$0	$86,961
STACIE BELL PHD
EXECUTIVE VP, LUPUS THERAPEUTICS	40.00		Yes (X)	$276,405	$0	$36,853
DEBRA ROSE
VP AND CHIEF FINANCE OFFIC	40.00		Yes (X)	$249,684	$0	$55,112
TEODORA STAEVA
VP AND CHIEF SCIENTIFIC OF	40.00		Yes (X)	$329,890	$0	$78,407
ANDREA O'NEILL
VP AND CHIEF DEVELOPMENT O	40.00		Yes (X)	$272,633	$0	$46,781
PENELOPE MITCHELL
VP OF COMMUNICATIONS	40.00			$194,362	$0	$40,503	Yes (X)
LUKE EASLEY
VP OF HR & ADMINISTRATION	40.00			$183,964	$0	$26,408	Yes (X)
DEVON KELLY
LUPUS NEXUS DIRECTOR	40.00			$222,993	$0	$45,107		Yes (X)
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANT	40.00			$179,452	$0	$40,818		Yes (X)
DIANE GROSS
NATIONAL DIRECTOR OF ADVOC	40.00			$194,794	$0	$39,795		Yes (X)
HOANG NGUYEN
DIRECTOR OF SCIENTIFIC PARTNERSHIPS	40.00			$163,397	$0	$37,605		Yes (X)
JONATHAN MARKS
DIRECTOR OF CORPORATE DEVE	40.00			$153,067	$0	$51,584		Yes (X)
KENNETH M FABER
FORMER CEO & PRESIDENT	40.00			$400,000	$0	$0			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$3,256,448	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$585,934	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	21	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (1)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
EG&A CIRP DBA MCS HEALTHCARE PR
110 ALLEN ROAD SUITE 300	BASKING RIDGE	NJ	07921	PUBLIC RELATIONS CONSULTANT	$386,649
CONVERGENCY LLC
9117 FRIARS ROAS	BETHESDA	MD	20817	LUPUS ABC/FDA CONSULTANT	$300,000
KDH RESEARCH AND COMMUNICATION INC
145 15TH STREET NE SUITE 831	ATLANTA	GA	30309	CHANGE CONSULTANT	$197,700
BERNUTH & WILLIAMSON
13 CAMPBELTON CIRCLE	PRINCETON	NJ	08540	STRATEGIC PLANNING CONSULTANT	$176,750
SCHANER & LUBITZ PLLC
4550 MONTGOMERY AVE SUITE 1100 N	BETHESDA	MD	20814	LIFE SCIENCES ATTORNEY	$128,689

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	10	CntrctRcvdGreaterThan100KCnt
Fundraising	$4,303,717	FundraisingAmt
Government Grants	$334,880	GovernmentGrantsAmt
All Other Contributions	$36,400,064	AllOtherContributionsAmt
Noncash Contributions	$109,513	NoncashContributionsAmt
Total Contributions	$41,038,661	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	LUCIN CONSULTING REVENUE	Desc
Business	900099	BusinessCd
Total Revenue Column	$1,197,560	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,197,560	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$1,197,560	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,929,526	TotalRevenueColumnAmt
Exclusion	$1,929,526	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$11,008,109	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$4,874,232	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$6,133,877	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$6,133,877	TotalRevenueColumnAmt
Exclusion	$6,133,877	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$504,285	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$4,303,717	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$504,285	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	SUBLET INCOME	Desc
Business	900099	BusinessCd
Total Revenue Column	$561,873	TotalRevenueColumnAmt
Exclusion	$561,873	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$561,873	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$50,861,497	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,197,560	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$8,625,276	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$14,585,339	TotalAmt
Program Services	$14,585,339	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$123,168	TotalAmt
Program Services	$123,168	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,899,459	TotalAmt
Program Services	$1,899,459	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$2,313,770	TotalAmt
Program Services	$1,322,488	ProgramServicesAmt
Management And General	$492,698	ManagementAndGeneralAmt
Fundraising	$498,584	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$4,795,752	TotalAmt
Program Services	$2,909,628	ProgramServicesAmt
Management And General	$943,331	ManagementAndGeneralAmt
Fundraising	$942,793	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$312,283	TotalAmt
Program Services	$192,072	ProgramServicesAmt
Management And General	$57,477	ManagementAndGeneralAmt
Fundraising	$62,734	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$1,140,569	TotalAmt
Program Services	$685,495	ProgramServicesAmt
Management And General	$228,652	ManagementAndGeneralAmt
Fundraising	$226,422	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$494,966	TotalAmt
Program Services	$295,376	ProgramServicesAmt
Management And General	$99,553	ManagementAndGeneralAmt
Fundraising	$100,037	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$200,125	TotalAmt
Program Services	$112,170	ProgramServicesAmt
Management And General	$36,747	ManagementAndGeneralAmt
Fundraising	$51,208	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$66,669	TotalAmt
Management And General	$66,669	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$122,617	TotalAmt
Program Services	$122,617	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$72,500	TotalAmt
Fundraising	$72,500	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$253,159	TotalAmt
Management And General	$253,159	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,856,588	TotalAmt
Program Services	$1,587,861	ProgramServicesAmt
Management And General	$560,351	ManagementAndGeneralAmt
Fundraising	$708,376	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$161,707	TotalAmt
Program Services	$86,477	ProgramServicesAmt
Management And General	$51,702	ManagementAndGeneralAmt
Fundraising	$23,528	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,021,296	TotalAmt
Program Services	$1,719,031	ProgramServicesAmt
Management And General	$178,274	ManagementAndGeneralAmt
Fundraising	$123,991	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$864,336	TotalAmt
Program Services	$515,800	ProgramServicesAmt
Management And General	$173,845	ManagementAndGeneralAmt
Fundraising	$174,691	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$577,630	TotalAmt
Program Services	$378,293	ProgramServicesAmt
Management And General	$141,483	ManagementAndGeneralAmt
Fundraising	$57,854	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$1,247,157	TotalAmt
Program Services	$1,152,729	ProgramServicesAmt
Management And General	$65,370	ManagementAndGeneralAmt
Fundraising	$29,058	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$107,185	TotalAmt
Program Services	$64,105	ProgramServicesAmt
Management And General	$21,613	ManagementAndGeneralAmt
Fundraising	$21,467	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$76,177	TotalAmt
Program Services	$49,444	ProgramServicesAmt
Management And General	$13,334	ManagementAndGeneralAmt
Fundraising	$13,399	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
PRINTING & PUBLICATIONS	$356,286	$50,184	$30,018	$276,084
CLINICAL STUDIES	$283,506	$283,506
POSTAGE, SHIPPING & DEL	$160,149	$4,339	$25,963	$129,847
DATA PROCESSING	$134,072	$33,633	$10,626	$89,813

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$178,786	TotalAmt
Program Services	$45,091	ProgramServicesAmt
Management And General	$17,584	ManagementAndGeneralAmt
Fundraising	$116,111	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$35,405,251	TotalAmt
Program Services	$28,218,305	ProgramServicesAmt
Management And General	$3,468,449	ManagementAndGeneralAmt
Fundraising	$3,718,497	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$5,098,361	BOYAmt
EOY	$4,319,024	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$864,824	BOYAmt
EOY	$255,096	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$1,416,005	BOYAmt
EOY	$21,589,284	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$626,727	BOYAmt
EOY	$336,389	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$567,776	BOYAmt
EOY	$826,852	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,039,848	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$777,103	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$229,852	BOYAmt
EOY	$262,745	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$85,820,065	BOYAmt
EOY	$80,913,435	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$1,033,847	BOYAmt
EOY	$855,454	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$3,249,835	BOYAmt
EOY	$2,588,851	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$98,907,292	BOYAmt
EOY	$111,947,130	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$878,056	BOYAmt
EOY	$1,362,369	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$29,652,068	BOYAmt
EOY	$31,537,305	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$4,845,583	BOYAmt
EOY	$3,733,812	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$35,375,707	BOYAmt
EOY	$36,633,486	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$61,152,445	BOYAmt
EOY	$47,936,256	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$2,379,140	BOYAmt
EOY	$27,377,388	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$63,531,585	BOYAmt
EOY	$75,313,644	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$98,907,292	BOYAmt
EOY	$111,947,130	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	$15,456,246	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$4,019,948	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$345,761	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$17,673,622	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$41,539,746	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$18,941,837	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$18,375,553	CurrentTaxYearMinus1YearAmt
Current Tax Year	$41,038,661	CurrentTaxYearAmt
Total	$137,569,419	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$17,673,622	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$41,539,746	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$18,941,837	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$18,375,553	CurrentTaxYearMinus1YearAmt
Current Tax Year	$41,038,661	CurrentTaxYearAmt
Total	$137,569,419	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$69,358,914	SubstantialContributorsTotAmt
Public Support Total170	$68,210,505	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,445,946	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,614,390	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,025,770	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,655,902	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,929,526	CurrentTaxYearAmt
Total	$9,671,534	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$147,240,953	TotalSupportAmt
Gross Receipts Rltd Activities	$5,994,882	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.46330	PublicSupportCY170Pct
Public Support PY170	0.55610	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$761,506	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$761,506	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$34,643,745	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$35,405,251	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$743,966	CurrentYearMinus3Amt
Current Year Minus2	$647,293	CurrentYearMinus2Amt
Current Year Minus1	$622,162	CurrentYearMinus1Amt
Current Year	$761,506	CurrentYearAmt
Total	$2,774,927	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$53,986,019	BeginningYearBalanceAmt
Investment Earnings Or Losses	$1,956,112	InvestmentEarningsOrLossesAmt
Other Expenditures	$4,017,053	OtherExpendituresAmt
End Year Balance	$51,925,078	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$61,314,537	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$3,669,040	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,659,722	OtherExpendituresAmt
End Year Balance	$53,986,019	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$56,586,437	BeginningYearBalanceAmt
Investment Earnings Or Losses	$7,839,333	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,111,233	OtherExpendituresAmt
End Year Balance	$61,314,537	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,813,456	BeginningYearBalanceAmt
Investment Earnings Or Losses	$6,226,708	InvestmentEarningsOrLossesAmt
Other Expenditures	$1,453,727	OtherExpendituresAmt
End Year Balance	$56,586,437	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$46,122,925	BeginningYearBalanceAmt
Investment Earnings Or Losses	$8,404,231	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,713,456	OtherExpendituresAmt
End Year Balance	$51,813,456	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	1.00000	BoardDesignatedBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,039,848	OtherCostOrOtherBasisAmt
Depreciation	$777,103	DepreciationAmt
Book Value	$262,745	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$262,745	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	OPERATING LEASE LIABILITY	Desc
Amt	$3,733,812	Amt

Field	Value	IRS element (for citing)
Total Liability	$3,733,812	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$46,934,151	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$4,019,948	NetUnrealizedGainsInvstAmt
Recoveries Prior Year Grants	$345,761	RecoveriesPriorYearGrantsAmt
Revenue Not Reported	-$3,674,187	RevenueNotReportedAmt
Revenue Subtotal	$50,608,338	RevenueSubtotalAmt
Investment Expenses Not Incld	$253,159	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$253,159	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$50,861,497	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$35,152,092	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$35,152,092	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$253,159	InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt	$253,159	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$35,405,251	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART V, LINE 4:	FormAndLineReferenceDesc
Explanation	BOARD DESIGNATED (QUASI) ENDOWMENT FUND INCOME TO BE USED FOR SUPPORTING OPERATIONS AND THE RESEARCH PROGRAM. PRINCIPAL TO REMAIN INTACT UNLESS HIGH PRIORITY LUPUS RESEARCH PROJECTS NEED TO BE FUNDED THAT COULD NOT BE FUNDED OTHERWISE.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	GRANTS TO RECIPIENTS	$682,408
EAST ASIA AND THE PACIFIC	GRANTS TO RECIPIENTS	$181,540
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	GRANTS TO RECIPIENTS	$1,025,511
SOUTH AMERICA	GRANTS TO RECIPIENTS	$10,000

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,899,459	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,899,459	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (13 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
NORTH AMERICA	LUPUS RESEARCH	$338,314	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$145,695	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$10,000	WIRE	$0
NORTH AMERICA	LUPUS RESEARCH	$182,732	CHECK	$0
SOUTH AMERICA	LUPUS RESEARCH	$10,000	WIRE	$0
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$181,540	ACH	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$178,515	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$8,523	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$100,000	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$10,000	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$291,389	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$291,389	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$145,695	WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	6	Total501c3OrgCnt
Total Other Org	6	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, DURING THE APPLICATION PHASE, THE SPONSORING INSTITUTION (SI) MUST AGREE THAT THEY WILL AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S GRANT-SPECIFIC POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: A. CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. B. AGREE THAT PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. C. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. D. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. E. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. F. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING - FORUM FOR DISCOVERY. G. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OR PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD PROJECT PHASE: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THAT THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE PROJECT THAT IS THE SUBJECT OF THE AWARD. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THAT THE PI WILL ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LRA. E. PI'S WILLINGNESS TO COMPLETE A BRIEF SURVEY AND SUBMIT A COPY OF THEIR UP-TO-DATE CV TO THE LRA TWO AND FIVE YEARS AFTER THE GRANT END DATE. ALL SI'S RECEIVE A PAYMENT AND DELIVERABLES SCHEDULE AND THE PROJECT IS MONITORED BY: A. PERIODIC PROGRESS REPORTS B. PERIODIC FINAL REPORTS C. ANNUAL MILESTONES SCHEDULE D. ADHERENCE TO LRA TERMS AND CONDITIONS GRANT CHANGES: WHEN EXTENSIONS ARE AWARDED, ADDITIONAL PROGRESS REPORTS AND FINANCIAL REPORTS ARE REQUIRED. AT THE END OF THE GRANT, FINAL PROGRESS AND FINANCIAL REPORTS ARE REQUIRED; UNSPENT AMOUNTS OVER $500 ARE TO BE RETURNED TO THE LRA. A. THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND ORAL OR POSTER PRESENTATIONS. B. THE SI MUST SUBMIT A COPY OF THE IRS DETERMINATION LETTER OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DS CONSULTING GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	845 THIRD AVENUE 6TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10022	ZIPCd

Field	Value	IRS element (for citing)
Activity	SPECIAL EVENT CONSULTANT NY GALA	ActivityTxt
Fundraiser Control Of Funds	Yes (1)	FundraiserControlOfFundsInd
Gross Receipts	$2,059,519	GrossReceiptsAmt
Retained By Contractor	$72,500	RetainedByContractorAmt
Net To Organization	$2,059,519	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$2,059,519	TotalGrossReceiptsAmt
Total Retained By Contractors	$72,500	TotalRetainedByContractorsAmt
Total Net To Organization	$2,059,519	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GALA CELEBRATION	Event1Nm
Gross Receipts Event1	$3,675,150	GrossReceiptsEvent1Amt
Charitable Contri Event1	$3,209,636	CharitableContriEvent1Amt
Gross Revenue Event1	$465,514	GrossRevenueEvent1Amt
Rent Facility Costs Event1	$68,725	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$335,825	FoodAndBeverageEvent1Amt
Entertainment Event1	$36,850	EntertainmentEvent1Amt
Other Direct Expenses Event1	$24,114	OtherDirectExpensesEvent1Amt
Event2	WALK-A-THONS	Event2Nm
Gross Receipts Event2	$1,132,852	GrossReceiptsEvent2Amt
Charitable Contri Event2	$1,094,081	CharitableContriEvent2Amt
Gross Revenue Event2	$38,771	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$6,487	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$4,360	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$13,481	FoodAndBeverageEvent2Amt
Other Direct Expenses Event2	$14,443	OtherDirectExpensesEvent2Amt
Gross Receipts Total	$4,808,002	GrossReceiptsTotalAmt
Charitable Contributions Tot	$4,303,717	CharitableContributionsTotAmt
Gross Revenue Total Events	$504,285	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$6,487	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$73,085	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$349,306	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$36,850	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$38,557	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$504,285	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	DS CONSULTING PLANNED AND MANAGED LRA'S GALA EVENT. CONTRACT AMOUNT FOR THE PERIOD COVERING 1/1/23 - 12/31/23 WAS $72,500 PLUS REIMBURSABLE EXPENSES.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (38 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Valuation Method UsedValuationMethodUsedDesc	Purpose Of GrantPurposeOfGrantTxt
ALBERT EINSTEIN COLLEGE OF MEDICINE
1300 MORRIS PARK AVE	BRONX	NY	10461	472209056	501(C)(3)	$0	$183,924	BOOK	LUPUS RESEARCH
BENAROYA RESEARCH INSTITUTE AT VIRGINIA MASON
1201 NINTH AVE	SEATTLE	WA	98101	910653422	501(C)(3)	$0	$437,084	BOOK	LUPUS RESEARCH
BOSTON CHILDREN'S HOSPTIAL
300 LONGWOOD AVENUE	BOSTON	MA	02115	042774441	501(C)(3)	$0	$1,132,373	BOOK	LUPUS RESEARCH
CHILDRENS'S HOSPITAL CORPORATION
300 LONGWOOD AVE 325	BOSTON	MA	02115	110509953	MA STATE GOVERNMENT	$0	$600,000	BOOK	LUPUS RESEARCH
CHILDREN'S HOSPITAL MEDICAL CENTER CINCINNATI
3333 BURNET AVE MLC 9002	CINCINNATI	OH	45229	310833936	501(C)(3)	$0	$22,496	BOOK	LUPUS RESEARCH
COLUMBIA UNIVERSITY MEDICAL CENTER
154 HAVEN AVE 2ND FL	NEW YORK	NY	10032	133598093	501(C)(3)	$0	$183,926	BOOK	LUPUS RESEARCH
DARTMOUTH-HITCHCOCK CLINIC
1 MEDICAL CENTER DR	LEBANON	NH	03756	222519596	501(C)(3)	$0	$8,317	BOOK	LUPUS RESEARCH
EMORY UNIVERSITY
1762 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501(C)(3)	$0	$591,220	BOOK	LUPUS RESEARCH
FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
350 COMMUNITY DRIVE	MANHASSET	NY	11030	112673595	501(C)(3)	$0	$685,191	BOOK	LUPUS RESEARCH
FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH INC
9650 ROCKVILLE PIKE	BETHESDA	MD	20814	521986675	501(C)(3)	$0	$100,000	BOOK	LUPUS RESEARCH
JOHN'S HOPKINS UNIVERSITY
3910 KESWICK ROAD STE N2100	BALTIMORE	MD	21211	520595110	501(C)(3)	$0	$17,221	BOOK	LUPUS RESEARCH
HOSPITAL FOR SPECIAL SURGERY
535 E 70TH STREET	NEW YORK	NY	10021	131624135	501(C)(3)	$0	$182,801	BOOK	LUPUS RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)(3)	$0	$12,870	BOOK	LUPUS RESEARCH
MAYO CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501(C)(3)	$0	$387,088	BOOK	LUPUS RESEARCH
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501(C)(3)	$0	$808,633	BOOK	LUPUS RESEARCH
NORTHWELL HEALTH - DIVISION OF RHEUMATOLOGY
972 BRUSH HOLLOW RD 5TH FL	WESTBURY	NY	11590	112673595	501(C)(3)	$0	$180,000	BOOK	LUPUS RESEARCH
OKLAHOMA MEDICAL RESEARCH FOUNDATION
825 NE 13TH STREET	OKLAHOMA CITY	OK	73104	730580274	501(C)(3)	$0	$184,970	BOOK	LUPUS RESEARCH
ST JUDE CHILDREN'S HOSPITAL
262 DANNY THOMAS PL	MEMPHIS	TN	381053678	620646012	501(C)(3)	$0	$70,620	BOOK	LUPUS RESEARCH
STANFORD UNIVERSITY
3145 PORTER DRIVE	PALO ALTO	CA	94304	941156365	501(C)(3)	$0	$338,885	BOOK	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE MC0934	LA JOLLA	CA	92093	956006144	501(C)(3)	$0	$133,609	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
6000 FELDWOOD ROAD	COLLEGE PARK	GA	30349	566001393	501(C)(3)	$0	$98,140	BOOK	LUPUS RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$0	$747,197	BOOK	LUPUS RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S	BIRMINGHAM	AL	35294	636005396	501(C)(3)	$0	$90,631	BOOK	LUPUS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
2200 UNIVERSITY HALL	BERKELEY	CA	94720	946036493	501(C)(3)	$0	$350,529	BOOK	LUPUS RESEARCH
UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS
3100 MARINE ST 6TH FL	BOULDER	CO	80309	846000555	501(C)(3)	$0	$2,574,107	BOOK	LUPUS RESEARCH
UNIVERSITY OF FLORIDA
207 TIGERT HALL	GAINSEVILLE	FL	32611	596002052	FL STATE GOVERNMENT	$0	$6,526	BOOK	LUPUS RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167325	MA STATE GOVERNMENT	$0	$49,951	BOOK	LUPUS RESEARCH
UNIVERSITY OF MICHIGAN
503 THOMPSON STREET	ANN ARBOR	MI	48109	386006309	501(C)(3)	$0	$1,032,494	BOOK	LUPUS RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501(C)(3)	$0	$34,094	BOOK	LUPUS RESEARCH
WASHINGTON UNIVERSITY SCHOOL OF MEDICINE MISSOURI
ONE BROOKINGS DRIVE	ST LOUIS	MO	63130	430653611	501(C)(3)	$0	$441,166	BOOK	LUPUS RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	75390	746000203	TX STATE GOVERNMENT	$0	$660,384	BOOK	LUPUS RESEARCH
YALE UNIVERSITY
BOX 208239	NEW HAVEN	CT	06520	060646973	501(C)(3)	$0	$973,539	BOOK	LUPUS RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	29425	576028985	SECTION 115 - SC STA	$0	$14,456	BOOK	LUPUS RESEARCH
RILITE FOUNDATION
530 EAST MAIN STREET	CHARLOTTESVILLE	VA	22902	472638830	501(C)(3)	$0	$30,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF HOUSTON
4800 CALHOUN ROAD	HOUSTON	TX	77004	746001399	501(C)(3)	$0	$574,987	BOOK	LUPUS RESEARCH
DUKE UNIVERSITY
2200 WEST MAIN ST STE 300	DURHAM	NC	27705	560532129	501(C)(3)	$0	$10,000	BOOK	LUPUS RESEARCH
SEATTLE CHILDREN'S HOSPITAL
818 STEWART ST	SEATTLE	WA	98145	910564748	501(C)(3)	$0	$564,987	BOOK	LUPUS RESEARCH
MICHIGAN STATE UNIVERSITY
567 WILSON ROAD	EAST LANSING	MI	48824	386005984	501(C)(3)	$0	$28,913	BOOK	LUPUS RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	39	Total501c3OrgCnt
Total Other Org	8	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

Field	Value	IRS element (for citing)
Grant Type	LUPUS EMERGENCY GRANT - $500 MAX PER PERSON	GrantTypeTxt
Recipient	249	RecipientCnt
Cash Grant	$123,168	CashGrantAmt
Valuation Method Used	BILLS	ValuationMethodUsedDesc
Non Cash Assistance	LUPUS EMERGENCY GRANT - $500 MAX PER PERSON	NonCashAssistanceDesc

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, DURING THE APPLICATION PHASE, THE SPONSORING INSTITUTION (SI) MUST AGREE THAT THEY WILL AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S GRANT-SPECIFIC POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: A. CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. B. AGREE THAT THE PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. C. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. D. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. E. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. F. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING - FORUM FOR DISCOVERY. G. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OR PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD PROJECT PHASE: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THAT THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE PROJEC TTHAT IS THE SUBJECT OF THE AWARD. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THAT THE PI WILL ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LRA. E. PI'S WILLINGNESS TO COMPLETE A BRIEF SURVEY AND SUBMIT A COPY OF THEIR UP-TO-DATE CV TO THE LRA TWO AND FIVE YEARS AFTER THE GRANT END DATE. ALL SI'S RECEIVE A PAYMENT AND DELIVERABLES SCHEDULE AND THE PROJECT IS MONITORED BY: A. PERIODIC PROGRESS REPORTS B. PERIODIC FINAL REPORTS C. ANNUAL MILESTONE SCHEDULE D. ADHERENCE TO LRA TERMS AND CONDITIONS GRANT CHANGES: WHEN EXTENSIONS ARE AWARDED, ADDITIONAL PROGRESS REPORTS AND FINANCIAL REPORTS ARE REQUIRED. AT THE END OF THE GRANT, FINAL PROGRESS AND FINANCIAL REPORTS ARE REQUIRED; UNSPENT AMOUNTS OVER $500 ARE TO BE RETURNED TO THE LRA. THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND ORAL OR POSTER PRESENTATIONS. THE SI MUST SUBMIT A COPY OF THE IRS DETERMINATION LETTER OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
ALBERT ROY
CEO AND PRESIDENT	$364,000	$0	$70,000	$0	$1,807	$0	$33,000	$0	$53,961	$0	$522,768	$0	$0	$0
STACIE BELL PHD
EXECUTIVE VP, LUPUS THERAPEUTICS	$244,792	$0	$30,000	$0	$1,613	$0	$10,733	$0	$26,120	$0	$313,258	$0	$0	$0
DEBRA ROSE
VP AND CHIEF FINANCE OFFIC	$227,115	$0	$20,000	$0	$2,569	$0	$29,582	$0	$25,530	$0	$304,796	$0	$0	$0
TEODORA STAEVA
VP AND CHIEF SCIENTIFIC OF	$277,824	$0	$50,000	$0	$2,066	$0	$32,782	$0	$45,625	$0	$408,297	$0	$0	$0
ANDREA O'NEILL
VP AND CHIEF DEVELOPMENT O	$235,700	$0	$35,000	$0	$1,933	$0	$29,777	$0	$17,004	$0	$319,414	$0	$0	$0
PENELOPE MITCHELL
VP OF COMMUNICATIONS	$181,600	$0	$10,000	$0	$2,762	$0	$14,736	$0	$25,767	$0	$234,865	$0	$0	$0
LUKE EASLEY
VP OF HR & ADMINISTRATION	$158,333	$0	$25,000	$0	$631	$0	$7,017	$0	$19,391	$0	$210,372	$0	$0	$0
DEVON KELLY
LUPUS NEXUS DIRECTOR	$208,000	$0	$12,480	$0	$2,513	$0	$19,162	$0	$25,945	$0	$268,100	$0	$0	$0
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANT	$176,000	$0	$0	$0	$3,452	$0	$19,360	$0	$21,458	$0	$220,270	$0	$0	$0
DIANE GROSS
NATIONAL DIRECTOR OF ADVOC	$151,153	$0	$0	$0	$43,641	$0	$6,046	$0	$33,749	$0	$234,589	$0	$0	$0
HOANG NGUYEN
DIRECTOR OF SCIENTIFIC PARTNERSHIPS	$150,000	$0	$12,000	$0	$1,397	$0	$12,960	$0	$24,645	$0	$201,002	$0	$0	$0
JONATHAN MARKS
DIRECTOR OF CORPORATE DEVE	$152,100	$0	$0	$0	$967	$0	$16,731	$0	$34,853	$0	$204,651	$0	$0	$0
KENNETH M FABER
FORMER CEO & PRESIDENT	$400,000	$0	$0	$0	$0	$0	$0	$0	$0	$0	$400,000	$0	$0	$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	7	ContributionCnt
Noncash Contributions Rpt F990	$109,513	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG STOCK VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 32B:	FormAndLineReferenceDesc
Explanation	LRA HAS AN ACCOUNT WITH MORGAN STANLEY, WHICH LRA USES TO SELL THE CONTRIBUTIONS IT RECEIVES THOUGH STOCKS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1A	EXECUTIVE COMMITTEE IS COMPRISED OF THE BOARD CO-CHAIRS, PRESIDENT, BOARD SECRETARY AND ONE ADDITIONAL VOTING BOARD MEMBER. THE EXECUTIVE COMMITTEE APPROVES DETAILS OF PROGRAMS ALREADY APPROVED BY THE BOARD, STAFF COMPENSATION AND LARGE CONTRACT NEGOTIATIONS.
FORM 990, PART VI, SECTION A, LINE 2	IRA AKSELRAD AND ROBERT WOOD JOHNSON, IV (PAST CHAIRMAN OF THE BOARD), HAVE A BUSINESS RELATIONSHIP. RICHARD K. DESCHERER (CO-CHAIR) AND JENNIE DESCHERER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11B	AFTER PREPARATION OF FORM 990 BY LRA'S AUDITOR, LUTZ AND CARR, THE 990 IS REVIEWED BY THE LRA'S EXECUTIVE OFFICERS, THE CHIEF FINANCIAL OFFICER AND THE PRESIDENT. THE FINANCE AND AUDIT COMMITTEE OF THE BOARD THEN MEETS TO REVIEW THE 990 BEFORE FILING AND APPROVES FOR FILING WITH ANY NOTED CHANGES. A DRAFT OF THE 990 IS THEN SENT OUT TO THE FULL BOARD FOR COMMENT PRIOR TO FILING WITH THE IRS. THE FINAL FORM 990 IS PRESENTED TO THE FULL BOARD AT THE NEXT SCHEDULED MEETING.
FORM 990, PART VI, SECTION B, LINE 12C	THE EXECUTIVE COMMITTEE OF THE BOARD IS RESPONSIBLE FOR MONITORING CONFLICTS OF INTEREST. AN ANNUAL CONFLICT OF INTEREST DISCLOSURE FORM IS REQUIRED TO BE FILLED OUT EACH YEAR BY BOARD MEMBERS, OFFICERS AND KEY EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15	THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS ASSISTED THE BOARD IN FULFILLING ITS OVERSIGHT RESPONSIBILITIES RELATING TO THE COMPENSATION AND BENEFITS OF THE PRESIDENT AND OTHER EXECUTIVE OFFICERS; AND PROVIDED RECOMMENDATIONS REGARDING MANAGEMENT SUCCESSORS. ANNUALLY THE COMMITTEE REVIEWS AND RECOMMENDS TO THE BOARD THE SALARY FOR THE PRESIDENT AND OTHER OFFICERS/KEY EMPLOYEES. IN 2023, THE COMMITTEE REVIEWED AND APPROVED BASE SALARIES, 2024 COMPENSATION PLAN INCLUDING THE 2023 YEAR-END BONUS POOL FOR ALL STAFF AND THE 403B NON-ELECTIVE EMPLOYER CONTRIBUTION TO ALL ELIGIBLE STAFF.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANIZATION'S GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST, THE CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE ALSO AVAILABLE UPON REQUEST AND ARE ON THE FINANCIALS PAGE OF OUR WEBSITE AND ON GUIDESTAR.ORG
FORM 990, PART XI, LINE 9:	CANCELLED GRANTS 345,761.
FORM 990, PART V, QUESTION 2A	THE LRA CONTRACTS WITH TRINET, A PROFESSIONAL EMPLOYER ORGANIZATION (PEO), TO PROVIDE PAYROLL AND BENEFITS AS A CO-EMPLOYER WITH THE LRA. LRA PAYROLL AND BENEFITS ARE ADMINISTERED BY TRINET AS APPROVED BY LRA OFFICERS. LRA PAYROLL IS THEREFORE UNDER THE TRINET EIN: 13-3867443 AND W-2'S ARE PREPARED UNDER THAT EIN BY TRINET.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS THERAPEUTICS LLC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
EIN	823984908	EIN
Primary Activities	LRA'S CLINICAL TRIAL AFFILIATE, OVERSEEING CLINICAL RESEARCH ACTIVITY	PrimaryActivitiesTxt
Legal Domicile State	NY	LegalDomicileStateCd
Total Income	$2,333,551	TotalIncomeAmt
End Of Year Assets	$884,491	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	YES	BusinessNameLine1Txt