SPINA BIFIDA ASSOCIATION OF AMERICA: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- SPINA BIFIDA ASSOCIATION OF AMERICA (EIN 58-1342181)
- Tax period
- 2023-01-01 to 2023-12-31
- Filed
- 2024-10-29
- IRS object ID
- 202403039349300130
- Schema version
- 2023v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-10-29T09:36:43-05:00 | ReturnTs |
| Tax Period End | 2023-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 541498950 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RENNER AND COMPANY CPA PC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 700 NORTH FAIRFAX STREET SUITE 400 | AddressLine1Txt |
| City | ALEXANDRIA | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22314 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 581342181 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SPINA BIFIDA ASSOCIATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SPIN | BusinessNameControlTxt |
| Phone | 2026184750 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1600 WILSON BLVD 800 | AddressLine1Txt |
| City | ARLINGTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22209 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | SARA STRUWE | PersonNm |
| Person Title | PRESIDENT AND CEO | PersonTitleTxt |
| Phone | 2029443285 | PhoneNum |
| Signature | 2024-10-25 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (1) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ADRIEL HENRIQUEZ BAIRES CPA | PreparerPersonNm |
| PTIN | P01822536 | PTIN |
| Phone | 7035351200 | PhoneNum |
| Preparation | 2024-10-25 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2024-10-15 13:58:12Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | SARA STRUWE | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1600 WILSON BOULEVARD SUITE 800 | AddressLine1Txt |
| City | ARLINGTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22209 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $3,458,122 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | HTTPS://WWW.SPINABIFIDAASSOCIATION.ORG/ | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1973 | FormationYr |
| Legal Domicile State | WI | LegalDomicileStateCd |
| Activity Or Mission | THE MISSION OF THE SPINA BIFIDA ASSOCIATION IS TO BUILD A BETTER AND BRIGHTER FUTURE FOR ALL THOSE IMPACTED BY SPINA BIFIDA. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 15 | TotalEmployeeCnt |
| Total Volunteers | 680 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,092,167 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,142,601 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $67,671 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $623,689 | CYProgramServiceRevenueAmt |
| PY Investment Income | $3,478 | PYInvestmentIncomeAmt |
| CY Investment Income | $30,106 | CYInvestmentIncomeAmt |
| PY Other Revenue | $20,115 | PYOtherRevenueAmt |
| CY Other Revenue | $38,114 | CYOtherRevenueAmt |
| PY Total Revenue | $2,183,431 | PYTotalRevenueAmt |
| CY Total Revenue | $2,834,510 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $37,427 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $0 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,352,048 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,567,126 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $240,587 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $916,339 | PYOtherExpensesAmt |
| CY Other Expenses | $1,608,424 | CYOtherExpensesAmt |
| PY Total Expenses | $2,305,814 | PYTotalExpensesAmt |
| CY Total Expenses | $3,175,550 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$122,383 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$341,040 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $1,417,977 | TotalAssetsBOYAmt |
| Total Assets EOY | $1,019,508 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $403,752 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $315,468 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,014,225 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $704,040 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO PROVIDE INFORMATION ABOUT THE BIRTH DEFECT OF SPINA BIFIDA AND ITS RELATED CONDITIONS AND SUPPORT TO INDIVIDUALS LIVING WITH IT THROUGH EDUCATION, ADVOCACY, RESEARCH, AND SERVICE; TO FACILITATE RESEARCH INTO THE CAUSES, EFFECTS, AND TREATMENT OF SPINA BIFIDA; AND TO EDUCATE AND TRAIN THE PROFESSIONALS INVOLVED IN THE TREATMENT OF SPINA BIFIDA. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $691,263 | ExpenseAmt |
| Revenue | $331,360 | RevenueAmt |
| Desc | RESEARCH AND CLINICAL CARE THE SPINA BIFIDA ASSOCIATION (THE ASSOCIATION) DEVELOPED THE SPINA BIFIDA COLLABORATIVE CARE NETWORK (SBCCN) TO IMPROVE THE HEALTH CARE OF PEOPLE WITH SPINA BIFIDA, ENABLING THEN TO HAVE BETTER CARE. THE SBCCN, WHEN COMPLETED, WILL BUILD A SYSTEM THAT MONITORS, TRACKS, AND EVALUATES CARE PROVIDED IN SPINA BIFIDA CLINICS AND OTHER HEALTH CARE SETTINGS. THE SBCCN IS MADE UP OF PEOPLE OF DIFFERENT BACKGROUNDS AND EXPERIENCES: SPINA BIFIDA ASSOCIATION (SBA) STAFF, CHAPTER LEADERS, DOCTORS, NURSES, PSYCHOLOGIST, THE CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC), PARENTS OF CHILDREN WITH SPINA BIFIDA, AND ADULTS WITH SPINA BIFIDA. THE ASSOCIATION WORKED IN CONJUNCTION WITH THE NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES TO CONTINUE RESEARCH THROUGH THE NATIONAL SPINA BIFIDA PATIENT REGISTRY (NSBPR). THE SPINA BIFIDA COLLABORATIVE CARE NETWORK PRODUCED GUIDELINES FOR THE CARE OF PEOPLE LIVING WITH SPINA BIFIDA WHICH INCLUDED RESEARCH FROM NSBPR. IN 2023 THE WORLD CONGRESS ON SPINA BIFIDA RESEARCH AND CARE HOSTED 100 HEALTH AND RESEARCH INSTITUTES, FROM 18 COUNTRIES AND 35 STATES WITHIN THE U.S. AND THE DISTRICT OF COLUMBIA. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,272,520 | ExpenseAmt |
| Desc | EDUCATION - THE ASSOCIATION'S EDUCATION PROGRAMS PROVIDE PARENTS, CAREGIVERS AND PERSONS LIVING WITH SPINA BIFIDA WITH TOOLS AND RESOURCES AT CRITICAL POINTS IN DEVELOPMENT AND TRANSITION. EDUCATION AND INFORMATIONAL RESOURCES WERE PROVIDED TO OVER 325,000 PEOPLE WITH SPINA BIFIDA, PARENTS, AND CAREGIVERS AS WE CONTINUED TO EXPAND OUR REACH IN 2022 AS A RESULT OF INCORPORATING SOCIAL MEDIA. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $448,594 | ExpenseAmt |
| Desc | CHAPTER DEVELOPMENT THE ASSOCIATION PROMOTES THE GROWTH AND DEVELOPMENT OF ITS 14 CHAPTERS THROUGH TECHNICAL ASSISTANCE IN CAPACITY BUILDING, COMMUNICATIONS, PROGRAMMATIC RESOURCES AND GRANTS. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $272,920 | ExpenseAmt |
| Revenue | $330,443 | RevenueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $272,920 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Revenue | $330,443 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $2,685,297 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | 0 | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | 0 | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 46 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 15 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (1) | MembersOrStockholdersInd |
| Election Of Board Members | Yes (1) | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | Yes (1) | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ASSOCIATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2026184750 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1600 WILSON BLVD 800 | AddressLine1Txt |
| City | ARLINGTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22209 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| MARIA BOURNIAS ESQ CPA | ||||||
| CHAIR | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| MICHAEL HARTY JR | ||||||
| IMMEDIATE PAST CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| NANCY GORE | ||||||
| CHAIR-ELECT | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ANSHUL VARMA | ||||||
| SECRETARY/TREASURER | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ROBIN M BOWMAN MD | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DOUG BURNS | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| ELLEN FREMION MD FAAP FACP | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| TRACY DINUNZIO | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| CHASE PHILLIPS | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| KATHRYN ANN NAVARETTE SMITH RN MN | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| ERIC TOBIN | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| BRYAN VODICKA | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DAWNE WIDENER-BURROWS | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JOHN WIENER MD | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| SARA STRUWE | ||||||
| PRESIDENT AND CEO | 37.50 | Yes (X) | $141,598 | $0 | $21,879 | |
| MICHAEL WOOD | ||||||
| CHIEF OPERATING OFFICER | 37.50 | Yes (X) | $113,221 | $0 | $21,709 | |
| GLENRAE BROWN | ||||||
| CHIEF FINANCIAL OFFICER | 37.50 | Yes (X) | $114,488 | $0 | $21,709 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $369,307 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $65,297 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| LOEWS HOTEL & CO FINANCIAL SVS LVC HOTEL | |||||
| 455 DUKE DRIVE SUITE 103 | FRANKLIN | TN | 37067 | CONFERENCE HOTEL | $240,953 |
| DAVINCI DIRECT INC | |||||
| PO BOX 1640 | PLYMOUTH | MA | 02362 | FUNDRAISING CONSULTANT | $130,229 |
| VENABLE LLP | |||||
| PO BOX 62727 | BALTIMORE | MD | 21264 | GOVERNMENT RELATIONS CONSULTANT | $108,500 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $70,003 | FederatedCampaignsAmt |
| Government Grants | $921,475 | GovernmentGrantsAmt |
| All Other Contributions | $1,151,123 | AllOtherContributionsAmt |
| Total Contributions | $2,142,601 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| CONFERENCE AND MEETIN | 541800 | $331,360 | $331,360 |
| SPECIAL EVENTS | 900099 | $292,329 | $292,329 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $623,689 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $15,488 | TotalRevenueColumnAmt |
| Exclusion | $15,488 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $638,230 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $623,612 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $14,618 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $14,618 | TotalRevenueColumnAmt |
| Exclusion | $14,618 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER INCOME | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $38,114 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $38,114 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $38,114 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,834,510 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $661,803 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $30,106 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $441,149 | TotalAmt |
| Program Services | $365,978 | ProgramServicesAmt |
| Management And General | $21,737 | ManagementAndGeneralAmt |
| Fundraising | $53,434 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $757,510 | TotalAmt |
| Program Services | $634,197 | ProgramServicesAmt |
| Management And General | $37,561 | ManagementAndGeneralAmt |
| Fundraising | $85,752 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $260,073 | TotalAmt |
| Program Services | $209,541 | ProgramServicesAmt |
| Management And General | $12,359 | ManagementAndGeneralAmt |
| Fundraising | $38,173 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $108,394 | TotalAmt |
| Program Services | $90,373 | ProgramServicesAmt |
| Management And General | $5,562 | ManagementAndGeneralAmt |
| Fundraising | $12,459 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $75,927 | TotalAmt |
| Management And General | $75,927 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,956 | TotalAmt |
| Program Services | $47,956 | ProgramServicesAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,780 | TotalAmt |
| Management And General | $1,780 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $675,164 | TotalAmt |
| Program Services | $661,265 | ProgramServicesAmt |
| Management And General | $7,230 | ManagementAndGeneralAmt |
| Fundraising | $6,669 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,306 | TotalAmt |
| Program Services | $4,306 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $163,485 | TotalAmt |
| Program Services | $137,115 | ProgramServicesAmt |
| Management And General | $8,849 | ManagementAndGeneralAmt |
| Fundraising | $17,521 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,698 | TotalAmt |
| Program Services | $2,224 | ProgramServicesAmt |
| Management And General | $237 | ManagementAndGeneralAmt |
| Fundraising | $237 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $32,479 | TotalAmt |
| Program Services | $22,088 | ProgramServicesAmt |
| Management And General | $6,231 | ManagementAndGeneralAmt |
| Fundraising | $4,160 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $127,187 | TotalAmt |
| Program Services | $119,880 | ProgramServicesAmt |
| Management And General | $2,109 | ManagementAndGeneralAmt |
| Fundraising | $5,198 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $324,687 | TotalAmt |
| Program Services | $323,766 | ProgramServicesAmt |
| Management And General | $542 | ManagementAndGeneralAmt |
| Fundraising | $379 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,359 | TotalAmt |
| Management And General | $7,359 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,549 | TotalAmt |
| Program Services | $8,057 | ProgramServicesAmt |
| Management And General | $1,746 | ManagementAndGeneralAmt |
| Fundraising | $1,746 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| BANK FEES | $48,243 | $28,952 | $9,710 | $9,581 |
| MISCELLANEOUS | $43,614 | $1,379 | $42,069 | $166 |
| EQUIPMENT RENTAL AND MA | $22,016 | $15,991 | $2,986 | $3,039 |
| FILING REGISTRATION | $8,693 | $6,718 | $320 | $1,655 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,281 | TotalAmt |
| Program Services | $5,511 | ProgramServicesAmt |
| Management And General | $5,352 | ManagementAndGeneralAmt |
| Fundraising | $418 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,175,550 | TotalAmt |
| Program Services | $2,685,297 | ProgramServicesAmt |
| Management And General | $249,666 | ManagementAndGeneralAmt |
| Fundraising | $240,587 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $297,686 | BOYAmt |
| EOY | $298,258 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $292,412 | BOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $193,502 | BOYAmt |
| EOY | $225,711 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $21,774 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $126,268 | BOYAmt |
| EOY | $36,941 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $233,328 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $230,896 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,119 | BOYAmt |
| EOY | $2,432 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $440,670 | BOYAmt |
| EOY | $401,165 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $58,320 | BOYAmt |
| EOY | $33,227 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,417,977 | BOYAmt |
| EOY | $1,019,508 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $73,910 | BOYAmt |
| EOY | $192,466 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $151,928 | BOYAmt |
| EOY | $20,890 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $177,914 | BOYAmt |
| EOY | $102,112 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $403,752 | BOYAmt |
| EOY | $315,468 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $774,316 | BOYAmt |
| EOY | $360,402 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $239,909 | BOYAmt |
| EOY | $343,638 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,014,225 | BOYAmt |
| EOY | $704,040 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,417,977 | BOYAmt |
| EOY | $1,019,508 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$341,040 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $30,855 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,718,305 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,460,028 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,139,236 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,092,167 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,142,601 | CurrentTaxYearAmt |
| Total | $9,552,337 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,718,305 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,460,028 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,139,236 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,092,167 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,142,601 | CurrentTaxYearAmt |
| Total | $9,552,337 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $9,552,337 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $21,806 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $14,227 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $7,879 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,808 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $15,488 | CurrentTaxYearAmt |
| Total | $61,208 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $25 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $8,850 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $20,114 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $28,995 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $38,114 | CurrentTaxYearAmt |
| Total | $96,098 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $9,709,643 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $331,360 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.98380 | PublicSupportCY170Pct |
| Public Support PY170 | 0.98970 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $45,686 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $159,496 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $205,182 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $2,968,588 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $3,173,770 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $308,689 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $77,172 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $252,712 | CurrentYearMinus3Amt |
| Current Year Minus2 | $251,651 | CurrentYearMinus2Amt |
| Current Year Minus1 | $265,291 | CurrentYearMinus1Amt |
| Current Year | $308,689 | CurrentYearAmt |
| Total | $1,078,343 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $1,617,515 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $141,188 | CurrentYearMinus3Amt |
| Current Year Minus2 | $159,288 | CurrentYearMinus2Amt |
| Current Year Minus1 | $75,988 | CurrentYearMinus1Amt |
| Current Year | $205,182 | CurrentYearAmt |
| Total | $581,646 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $63,178 | CurrentYearMinus3Amt |
| Current Year Minus2 | $62,913 | CurrentYearMinus2Amt |
| Current Year Minus1 | $66,323 | CurrentYearMinus1Amt |
| Current Year | $77,172 | CurrentYearAmt |
| Total | $269,586 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $404,379 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $6,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $5,775 | CurrentYearMinus2Amt |
| Current Year Minus1 | $30,659 | CurrentYearMinus1Amt |
| Current Year | $45,686 | CurrentYearAmt |
| Total | $88,120 | TotalAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $239,909 | BeginningYearBalanceAmt |
| Contributions | $242,096 | ContributionsAmt |
| Investment Earnings Or Losses | $8,771 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $147,138 | OtherExpendituresAmt |
| End Year Balance | $343,638 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $241,479 | BeginningYearBalanceAmt |
| Contributions | $60,080 | ContributionsAmt |
| Investment Earnings Or Losses | -$4,119 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $57,531 | OtherExpendituresAmt |
| End Year Balance | $239,909 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $274,846 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $3,232 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $36,599 | OtherExpendituresAmt |
| End Year Balance | $241,479 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $312,034 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $3,339 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $40,527 | OtherExpendituresAmt |
| End Year Balance | $274,846 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $341,658 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $2,012 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $31,636 | OtherExpendituresAmt |
| End Year Balance | $312,034 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 0.17460 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.82540 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $132,484 | OtherCostOrOtherBasisAmt |
| Depreciation | $132,484 | DepreciationAmt |
| Book Value | $0 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $57,100 | OtherCostOrOtherBasisAmt |
| Depreciation | $55,121 | DepreciationAmt |
| Book Value | $1,979 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $43,744 | OtherCostOrOtherBasisAmt |
| Depreciation | $43,291 | DepreciationAmt |
| Book Value | $453 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $2,432 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OPERATING LEASE LIABILITY | Desc |
| Amt | $102,112 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $102,112 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $2,863,585 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $30,855 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $30,855 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,832,730 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $1,780 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $1,780 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,834,510 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $3,173,770 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $3,173,770 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $1,780 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $1,780 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $3,175,550 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE PERMANENT ENDOWMENT FUNDS ARE USED TO FUND SCHOLARSHIPS WITH PEOPLE WITH SPINA BIFIDA, FUND GRANTS TO PROMOTE THE PREVENTION AND SCIENTIFIC UNDERSTANDING OF SPINA BIFIDA, AND TO IMPROVE THE LIVES OF THOSE LIVING WITH SPINA BIFIDA. |
| PART X, LINE 2: | THE ASSOCIATION EVALUATED ITS UNCERTAINTY IN INCOME TAXES FOR THE YEAR ENDED DECEMBER 31, 2023, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX EXEMPT STATUS. |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | SARA STRUWE | PersonNm |
| Title | PRESIDENT AND CEO | TitleTxt |
| Base Compensation Filing Org | $141,598 | BaseCompensationFilingOrgAmt |
| Compensation Based On Rltd Orgs | $0 | CompensationBasedOnRltdOrgsAmt |
| Bonus Filing Organization | $0 | BonusFilingOrganizationAmount |
| Bonus Related Organizations | $0 | BonusRelatedOrganizationsAmt |
| Other Compensation Filing Org | $0 | OtherCompensationFilingOrgAmt |
| Other Compensation Rltd Orgs | $0 | OtherCompensationRltdOrgsAmt |
| Deferred Compensation Flng Org | $0 | DeferredCompensationFlngOrgAmt |
| Deferred Comp Rltd Orgs | $0 | DeferredCompRltdOrgsAmt |
| Nontaxable Benefits Filing Org | $21,879 | NontaxableBenefitsFilingOrgAmt |
| Nontaxable Benefits Rltd Orgs | $0 | NontaxableBenefitsRltdOrgsAmt |
| Total Compensation Filing Org | $163,477 | TotalCompensationFilingOrgAmt |
| Total Compensation Rltd Orgs | $0 | TotalCompensationRltdOrgsAmt |
| Comp Report Prior990 Filing Org | $0 | CompReportPrior990FilingOrgAmt |
| Comp Report Prior990 Rltd Orgs | $0 | CompReportPrior990RltdOrgsAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (10 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 6 | EACH CHAPTER OF THE ASSOCATION WHICH MEETS THE AFFILIATION STANDARDS OF THE ASSOCIATION AND IS IN GOOD STANDING AT THE TIME OF EACH RELEVENT MEETING IS REFERRED TO AS A MEMBER. |
| FORM 990, PART VI, SECTION A, LINE 7A | DELEGATES ARE APPOINTED BY EACH CHAPTER. THESE DELEGATES APPROVE THE SLATE OF BOARD MEMBERS. |
| FORM 990, PART VI, SECTION A, LINE 7B | ANY CHANGES IN THE ASSOCIATION'S BYLAWS AND ARTICLES OF INCORPORATION ARE REQUIRED TO BE APPROVED BY A MAJORITY OF THE CHAPTER DELEGATES PRESENT AT THE ANNUAL BOARD MEETING. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE DRAFT VERSION OF THE FEDERAL FORM 990 IS REVIEWED BY THE PRESIDENT AND CEO AS WELL AS THE CHIEF FINANCIAL OFFICER. IT IS THEN GIVEN TO THE AUDIT COMMITTEE FOR REVIEW, DISCUSSION, AND APPROVAL. A COPY OF THE DRAFT FEDERAL FORM 990 IS PROVIDED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING WITH THE INTERNAL REVENUE SERVICE. |
| FORM 990, PART VI, SECTION B, LINE 12C | ANNUAL WRITTEN CONFIRMATION IS REQUIRED FROM ALL BOARD MEMBERS WHO IDENTIFY ANY POTENTIAL CONFLICTS OF INTEREST. THE CONFIRMATION FORM STATES THAT BOARD MEMBERS FOR WHOM THERE IS A CONFLICT ON A GIVEN ISSUES WILL NOT BE INVOLVED IN ANY DISCUSSIONS NOR VOTES ON AREAS OF CONFLICT. THE ANNUAL CONFLICT OF INTEREST (COI) STATEMENTS ARE REVIEWED BY THE BOARD CHAIR AND THE CEO AND, IF ANY COI ITEMS ARE IDENTIFIED, THEY WILL BE BROUGHT TO THE BOARD FOR REVIEW. IN ADDITION, BOARD MEMBERS ARE EXPECTED TO IDENTIFY ANY POTENTIAL CONFLICTS OF INTEREST THAT MAY ARISE THROUGHOUT THE YEAR AND AFTER THE COI STATEMENTS ARE SIGNED. |
| FORM 990, PART VI, SECTION B, LINE 15A | THERE IS A FORMAL REVIEW OF THE CHIEF EXECUTIVE OFFICER'S (CEO) COMPENSATION BY THE BOARD OF DIRECTORS. A FORMAL REVIEW IS MADE BY THE CEO FOR ALL OTHER EMPLOYEES. THE BOARD OF DIRECTORS EMPLOYS A COMBINATION OF PERFORMANCE EVALUATION AND REVIEW OF BOTH LOCAL AND NATIONAL COMPENSATION SURVEYS TO ESTABLISH THE COMPENSATION OF THE CEO. SIMILARLY, THE CEO EMPLOYS PERFORMANCE REVIEWS AND DOCUMENTATION ON REGIONAL COMPENSATION STUDIES TO REVIEW ALL STAFF INCLUDING THE CONTROLLER. ALL STAFF PERFORMANCE REVIEWS AND COMPENSATION CHANGES ARE PRESENTED TO THE CEO PRIOR TO FINALIZING FOR WRITTEN APPROVAL. THE COMPENSATION STUDY LAST TOOK PLACE DURING DECEMBER 2021. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ASSOCIATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON THEIR WEBSITE. |
| FORM 990, PART IX, LINE 11G | CONSULTANTS: PROGRAM SERVICE EXPENSES 661,265. MANAGEMENT AND GENERAL EXPENSES 7,230. FUNDRAISING EXPENSES 6,669. TOTAL EXPENSES 675,164. |
| PART XII LINE 2C | THE ASSOCIATION HAS NOT CHANGED THE OVERSIGHT OR SELECTION PROCESS OF THE AUDIT COMMITTEE. |
| FORM 990, PART I, LINE 5 & PART V, LINE 2A | THE ASSOCIATION HAS CONTRACTED WITH A PROFESSIONAL EMPLOYER ORGANIZATION, COADVANTAGE, TO SERVE AS THE EMPLOYER OF RECORD FOR THE ASSOCIATION'S EMPLOYEES. AS SUCH COADVANTAGE IS RESPONSIBLE FOR TAX FILINGS RELATED TO EMPLOYEES. COADVANTAGE ISSUED 15 W-2 FORMS IN 2023 FOR THE ASSOCIATION EMPLOYEES. |