SJOGRENS FOUNDATION INC: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- SJOGRENS FOUNDATION INC (EIN 11-2779073)
- Tax period
- 2023-07-01 to 2024-06-30
- Filed
- 2024-11-05
- IRS object ID
- 202403109349301220
- Schema version
- 2023v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-11-05T08:50:14-06:00 | ReturnTs |
| Tax Period End | 2024-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 541498950 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RENNER AND COMPANY CPA PC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 700 NORTH FAIRFAX STREET SUITE 400 | AddressLine1Txt |
| City | ALEXANDRIA | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22314 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 112779073 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SJOGREN'S FOUNDATION INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SJOG | BusinessNameControlTxt |
| Phone | 3015304420 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10701 PARKRIDGE BLVD 170 | AddressLine1Txt |
| City | RESTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 20191 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JANET CHURCH | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 3015304420 | PhoneNum |
| Signature | 2024-11-04 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (1) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ANDREW E YOUNG CPA | PreparerPersonNm |
| PTIN | P01203950 | PTIN |
| Phone | 7035351200 | PhoneNum |
| Preparation | 2024-11-04 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2024-10-15 13:58:12Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | JANET CHURCH | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10701 PARKRIDGE BLVD 170 | AddressLine1Txt |
| City | RESTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 20191 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $4,694,838 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.SJOGRENS.ORG | WebsiteAddressTxt |
| Type Of Organization Other | Yes (X) | TypeOfOrganizationOtherInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | SEE SCHEDULE O FOR DESCRIPTION OF ORGANIZATION'S PRIMARY MISSION. | ActivityOrMissionDesc |
| Voting Members Governing Body | 17 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 17 | VotingMembersIndependentCnt |
| Total Employee | 19 | TotalEmployeeCnt |
| Total Volunteers | 656 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,756,148 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,964,863 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $489,669 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $442,631 | CYProgramServiceRevenueAmt |
| PY Investment Income | $44,371 | PYInvestmentIncomeAmt |
| CY Investment Income | $90,511 | CYInvestmentIncomeAmt |
| PY Other Revenue | $34,525 | PYOtherRevenueAmt |
| CY Other Revenue | -$339 | CYOtherRevenueAmt |
| PY Total Revenue | $3,324,713 | PYTotalRevenueAmt |
| CY Total Revenue | $3,497,666 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $275,678 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $390,313 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,657,790 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,699,790 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $232,968 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $908,378 | PYOtherExpensesAmt |
| CY Other Expenses | $1,084,309 | CYOtherExpensesAmt |
| PY Total Expenses | $2,841,846 | PYTotalExpensesAmt |
| CY Total Expenses | $3,174,412 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $482,867 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $323,254 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $3,694,277 | TotalAssetsBOYAmt |
| Total Assets EOY | $4,167,805 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,128,554 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,255,608 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,565,723 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $2,912,197 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE OF ALL PATIENTS THROUGH ADVOCACY AND FUND INNOVATIVE RESEARCH. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $955,672 | ExpenseAmt |
| Grant | $390,313 | GrantAmt |
| Desc | THE SJOGREN'S FOUNDATION AWARDED FOUR RESEARCH GRANTS UNDER THE ANNUAL SJOGREN'S FOUNDATION GRANT PROGRAM TO UNIVERSITY AFFILIATED RESEARCHERS IN MAY 2024. THREE PILOT GRANTS WERE AWARDED AND ONE HIGH IMPACT GRANT AWARDED. THE SJOGREN'S FOUNDATION ALSO AWARDED A DYNAMIC GRANT TO THE UNIVERSITY OF PENNSYLVANIA FOR DEVELOPMENT OF CORE OUTCOMES SET OF DOMAINS FOR SJOGREN'S DISEASE. THE FOUNDATION PAID THE SECOND PAYMENT TO SUPPORT THE FNIH AMP AIM RESEARCH PROJECT ON SJOGREN'S AND AUTOIMMUNE DISEASE, AND THE SECOND PAYMENT OF THE OKLAHOMA MEDICAL RESEARCH FOUNDATION GRANT FOR THE GENOME RESEARCH PROJECT.THE SJOGREN'S FOUNDATION ALSO WORKED CLOSELY WITH MULTIPLE PHARMA COMPANIES TO PREPARE FOR, AND BRING, PHASE 2 AND PHASE 3 MOVED CLINICAL TRIALS FORWARD. THE FOUNDATION SUPPORTED THESE PROGRAMS BY CONFERRING WITH PHARMA ON PROTOCOLS AND PATIENT NEEDS, CERTIFYING CLINICAL TRIAL INVESTIGATORS ON PROPER USE OF ESSDAI OUTCOME MEASURES, AND ENGAGED PATIENTS TO ENCOURAGE TRIAL ENROLLMENT, IN ORDER TO HELP BRING THERAPIES TO MARKET. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $236,496 | ExpenseAmt |
| Revenue | $846 | RevenueAmt |
| Desc | NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $881,830 | ExpenseAmt |
| Desc | THE SJOGREN'S FOUNDATION INCREASED PATIENT SUPPORT AND EDUCATION PROGRAMS IN 2024 AS WELL AS HEALTHCARE PROVIDER EDUCATION AND AWARENESS ABOUT SJOGREN'S AND THE SYSTEMIC, MULTI-FACETED NATURE OF THE DISEASE. OF NOTE WAS THE EXPANSION OF PROVIDER OUTREACH AND CME PROGRAMS FOR SPECIALTIES AND PRIMARY CARE PROVIDERS. IN APRIL 2024, THE FOUNDATION'S WORK TO CHANGE THE DISEASE NAME FROM SJOGREN'S SYNDROME TO SJOGREN'S DISEASE WAS INTERNATIONALLY ADOPTED BY CLINICIANS AND PATIENTS. THIS NOMENCLATURE BETTER REFLECTS CURRENT RESEARCH AND INFORMATION ABOUT THE DISEASE AS WELL AS THE LIVED EXPERIENCE BY PATIENTS. THE FOUNDATION ALSO INCREASED OUR ADVOCACY EFFORTS WITH CENTERS FOR MEDICARE AND MEDICAID AND CONGRESS TO RAISE AWARENESS ABOUT SJOGREN'S. WE SUCCEEDED IN GETTING HOUSE RESOLUTION #1094 PRESENTED IN CONGRESS TO AFFIRM APRIL AS SJOGREN'S AWARENESS MONTH WHICH INCLUDED UPDATED NAME OF THE DISEASE AND CORRECT INFORMATION ABOUT THE SYSTEMIC NATURE OF THE DISEASE AND NEED FOR INCREASED RESEARCH FUNDING. WE CONTINUED TO ADVANCE OUR RELATIONSHIPS WITH CLINICIANS, RESEARCHERS, GOVERNMENT SCIENTISTS, AND CORPORATE SCIENTISTS WHO ARE INTERESTED IN SJOGREN'S. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $695,199 | ExpenseAmt |
| Revenue | $409,922 | RevenueAmt |
| Desc | OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS, CONFERENCES AND MEETINGS RELATED TO TOPICS RELEVANT TO THOSE WITH SJOGREN'S, AS WELL AS VARIOUS INDUSTRY AND MEMBERSHIP PROJECTS AND SERVICES FOR THOSE WITH SJOGREN'S OR ENTITIES PROVIDING SUPPORT TO THOSE INDIVIDUALS. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $695,199 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Revenue | $409,922 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $2,769,197 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 11 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 19 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 17 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 17 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SJOGREN'S FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3015304420 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10701 PARKRIDGE BLVD SUITE 170 | AddressLine1Txt |
| City | RESTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 20191 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (23 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| SUSAN BARAJAS | ||||||||
| CHAIRMAN | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| DONALD E THOMAS MD | ||||||||
| PAST CHAIRMAN | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| VIDYA SANKAR DMD MHS | ||||||||
| TREASURER | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| KATIE FORTE | ||||||||
| SECRETARY | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| ALAN BAER MD | ||||||||
| DIRECTOR, CHAIRMAN OF MSAC | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| ALLISSA LATHAM | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| BRENT P GOODMAN MD | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| DANIEL WALLACE MD | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| DAVID SCHRADER | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| JONATHAN MORSE MSC | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| NISHANT GUPTA MD | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| ROBYN LAUKIEN | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| SARA MCCOY MD | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| SCOTT LIEBERMAN MD | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| TAMMY DOTSON | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| TOM IATESTA | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| VATINEE BUNYA MD MSCE | ||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| JANET CHURCH | ||||||||
| PRESIDENT AND CEO | 40.00 | Yes (X) | $384,450 | $0 | $23,911 | |||
| KATHERINE MORLAND HAMMITT | ||||||||
| VP OF MEDICAL AND SCIENTIFIC AFFAIRS | 40.00 | $179,450 | $0 | $6,150 | Yes (X) | |||
| BEN BASLOE | ||||||||
| VP OF PHILANTHROPY AND OPERATIONS | 40.00 | $127,283 | $0 | $20,924 | Yes (X) | |||
| LANE DESTRO | ||||||||
| DIR OF CORPORATE RELATIONS AND INITIATIVES | 40.00 | $115,034 | $0 | $8,737 | Yes (X) | |||
| MICHELE CHAMPIGNY | ||||||||
| VP OF PATIENT SERVICES AND EDUCATION | 40.00 | $108,863 | $0 | $3,016 | Yes (X) | |||
| MATTHEW MAKARA | ||||||||
| SR. DIR OF RESEARCH AND SCIENTIFIC AFFAIRS | 40.00 | $108,211 | $0 | $8,157 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,023,291 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $70,895 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 6 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $288,711 | FundraisingAmt |
| All Other Contributions | $2,676,152 | AllOtherContributionsAmt |
| Noncash Contributions | $36,192 | NoncashContributionsAmt |
| Total Contributions | $2,964,863 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (3 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt | ExclusionExclusionAmt |
|---|---|---|---|---|
| MEMBERSHIP DUES | 541900 | $254,353 | $254,353 | |
| CONFERENCE | 541900 | $187,432 | $104,682 | $82,750 |
| NEWSLETTER | 541900 | $846 | $846 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $442,631 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $89,055 | TotalRevenueColumnAmt |
| Exclusion | $89,055 | ExclusionAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,314 | TotalRevenueColumnAmt |
| Exclusion | $5,314 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,131,343 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,129,887 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,456 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,456 | TotalRevenueColumnAmt |
| Exclusion | $1,456 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $288,711 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $56,540 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$56,540 | TotalRevenueColumnAmt |
| Exclusion | -$56,540 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $24,738 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $10,745 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $13,993 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $13,993 | RelatedOrExemptFuncIncomeAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | MISCELLANEOUS INCOME | Desc |
| Business | 541900 | BusinessCd |
| Total Revenue Column | $36,894 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $36,894 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $36,894 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,497,666 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $410,768 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $122,035 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $390,313 | TotalAmt |
| Program Services | $390,313 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $593,961 | TotalAmt |
| Program Services | $511,875 | ProgramServicesAmt |
| Management And General | $36,410 | ManagementAndGeneralAmt |
| Fundraising | $45,676 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $881,165 | TotalAmt |
| Program Services | $759,389 | ProgramServicesAmt |
| Management And General | $54,015 | ManagementAndGeneralAmt |
| Fundraising | $67,761 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $125,537 | TotalAmt |
| Program Services | $108,189 | ProgramServicesAmt |
| Management And General | $7,695 | ManagementAndGeneralAmt |
| Fundraising | $9,653 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $99,127 | TotalAmt |
| Program Services | $85,428 | ProgramServicesAmt |
| Management And General | $6,076 | ManagementAndGeneralAmt |
| Fundraising | $7,623 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,054 | TotalAmt |
| Management And General | $5,054 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $32,747 | TotalAmt |
| Management And General | $32,747 | ManagementAndGeneralAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,898 | TotalAmt |
| Management And General | $7,898 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $68,285 | TotalAmt |
| Program Services | $62,860 | ProgramServicesAmt |
| Management And General | $2,406 | ManagementAndGeneralAmt |
| Fundraising | $3,019 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $23,866 | TotalAmt |
| Program Services | $20,568 | ProgramServicesAmt |
| Management And General | $1,463 | ManagementAndGeneralAmt |
| Fundraising | $1,835 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $90,050 | TotalAmt |
| Program Services | $77,606 | ProgramServicesAmt |
| Management And General | $5,519 | ManagementAndGeneralAmt |
| Fundraising | $6,925 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,581 | TotalAmt |
| Program Services | $43,581 | ProgramServicesAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,246 | TotalAmt |
| Management And General | $2,246 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $42,834 | TotalAmt |
| Program Services | $36,911 | ProgramServicesAmt |
| Management And General | $2,629 | ManagementAndGeneralAmt |
| Fundraising | $3,294 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,563 | TotalAmt |
| Program Services | $12,551 | ProgramServicesAmt |
| Management And General | $892 | ManagementAndGeneralAmt |
| Fundraising | $1,120 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| AWARENESS ACTIVITIES | $287,953 | $287,953 | $0 | $0 |
| MISCELLANEOUS | $113,308 | $108,577 | $474 | $4,257 |
| PRINTING, DUPLICATING, | $112,420 | $88,771 | $363 | $23,286 |
| POSTAGE AND DELIVERY | $66,962 | $54,585 | $452 | $11,925 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $172,542 | TotalAmt |
| Program Services | $120,040 | ProgramServicesAmt |
| Management And General | $5,908 | ManagementAndGeneralAmt |
| Fundraising | $46,594 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,174,412 | TotalAmt |
| Program Services | $2,769,197 | ProgramServicesAmt |
| Management And General | $172,247 | ManagementAndGeneralAmt |
| Fundraising | $232,968 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $226,724 | BOYAmt |
| EOY | $697,030 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $469,995 | BOYAmt |
| EOY | $220,026 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,473 | BOYAmt |
| EOY | $223,294 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,185 | BOYAmt |
| EOY | $17,109 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,879 | BOYAmt |
| EOY | $20,159 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $262,407 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $212,415 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $77,324 | BOYAmt |
| EOY | $49,992 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,657,226 | BOYAmt |
| EOY | $2,833,654 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $23,126 | BOYAmt |
| EOY | $9,911 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $194,345 | BOYAmt |
| EOY | $96,630 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,694,277 | BOYAmt |
| EOY | $4,167,805 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $92,492 | BOYAmt |
| EOY | $66,425 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $350,150 | BOYAmt |
| EOY | $475,000 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $394,017 | BOYAmt |
| EOY | $561,934 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $291,895 | BOYAmt |
| EOY | $152,249 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,128,554 | BOYAmt |
| EOY | $1,255,608 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,564,827 | BOYAmt |
| EOY | $1,911,301 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,000,896 | BOYAmt |
| EOY | $1,000,896 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,565,723 | BOYAmt |
| EOY | $2,912,197 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,694,277 | BOYAmt |
| EOY | $4,167,805 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $323,254 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $23,220 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,004,952 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,505,185 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,391,109 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,756,148 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,964,863 | CurrentTaxYearAmt |
| Total | $12,622,257 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $357,683 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $368,639 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $434,297 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $425,594 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $384,619 | CurrentTaxYearAmt |
| Total | $1,970,832 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,362,635 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,873,824 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,825,406 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,181,742 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,349,482 | CurrentTaxYearAmt |
| Total | $14,593,089 | TotalAmt |
Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,361,236 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $791,081 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $742,203 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $960,014 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,050,899 | CurrentTaxYearAmt |
| Total | $4,905,433 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,361,236 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $791,081 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $742,203 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $960,014 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,050,899 | CurrentTaxYearAmt |
| Total | $4,905,433 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $9,687,656 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $30,736 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $20,326 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $27,789 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $22,161 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $94,369 | CurrentTaxYearAmt |
| Total | $195,381 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $30,736 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $20,326 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $27,789 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $22,161 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $94,369 | CurrentTaxYearAmt |
| Total | $195,381 | TotalAmt |
Other Income509 OtherIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,798 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $12,486 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,768 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $37,718 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $36,894 | CurrentTaxYearAmt |
| Total | $95,664 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,395,169 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,906,636 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,859,963 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,241,621 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,480,745 | CurrentTaxYearAmt |
| Total | $14,884,134 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.65090 | PublicSupportCY509Pct |
| Public Support PY509 | 0.57030 | PublicSupportPY509Pct |
| Investment Income CY | 0.01310 | InvestmentIncomeCYPct |
| Investment Income PY | 0.00850 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,000,896 | BeginningYearBalanceAmt |
| End Year Balance | $1,000,896 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,000,896 | BeginningYearBalanceAmt |
| End Year Balance | $1,000,896 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,000,896 | BeginningYearBalanceAmt |
| End Year Balance | $1,000,896 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,000,896 | BeginningYearBalanceAmt |
| End Year Balance | $1,000,896 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $1,072,896 | BeginningYearBalanceAmt |
| Other Expenditures | $72,000 | OtherExpendituresAmt |
| End Year Balance | $1,000,896 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Term Endowment Balance EOY | 1.00000 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $166,103 | OtherCostOrOtherBasisAmt |
| Depreciation | $145,513 | DepreciationAmt |
| Book Value | $20,590 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $96,304 | OtherCostOrOtherBasisAmt |
| Depreciation | $66,902 | DepreciationAmt |
| Book Value | $29,402 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $49,992 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | LEASE LIABILITY | Desc |
| Amt | $152,249 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $152,249 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $3,523,733 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $23,220 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $23,220 | RevenueNotReportedAmt |
| Revenue Subtotal | $3,500,513 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $7,898 | InvestmentExpensesNotIncldAmt |
| Other Revenues Not Included | -$10,745 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | -$2,847 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $3,497,666 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $3,177,259 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $10,745 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $10,745 | ExpensesNotReportedAmt |
| Expenses Subtotal | $3,166,514 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $7,898 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $7,898 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $3,174,412 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE FOUNDATION'S ENDOWMENT FUNDS CONSIST OF A BEQUEST THAT WAS RESTRICTED FOR THE PURPOSES OF RESEARCH. |
| PART X, LINE 2: | IN ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, ACCOUNTING STANDARDS REQUIRE AN ENTITY TO RECOGNIZE THE FINANCIAL STATEMENT IMPACT OF A TAX POSITION WHEN IT IS MORE-LIKELY-THAN-NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION. MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | RECLASSIFICATION OF COSTS OF GOODS SOLD -10,745. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | RECLASSIFICATION OF COSTS OF GOODS SOLD 10,745. |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | WALKS AND SIPS EVENTS | Event1Nm |
| Gross Receipts Event1 | $288,521 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $288,521 | CharitableContriEvent1Amt |
| Other Direct Expenses Event1 | $56,540 | OtherDirectExpensesEvent1Amt |
| Event2 | PARTNER PROGRAMS | Event2Nm |
| Gross Receipts Event2 | $190 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $190 | CharitableContriEvent2Amt |
| Gross Receipts Total | $288,711 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $288,711 | CharitableContributionsTotAmt |
| Oth Direct Expnss Total Events | $56,540 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $56,540 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$56,540 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (5 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Valuation Method UsedValuationMethodUsedDesc | Non Cash AssistanceNonCashAssistanceDesc | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|---|---|
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA | ||||||||||
| 7408 BOELTER HALL BOX 951600 | LOS ANGELES | CA | 90095 | 956006143 | SECTION 501(C)(3) | $50,000 | $0 | FMV | N/A | RESEARCH GRANT |
| OKLAHOMA MEDICAL RESEARCH FOUNDATION | ||||||||||
| 825 NE 13TH STREET | OKLAHOMA CITY | OK | 73104 | 730580274 | SECTION 501(C)(3) | $200,000 | $0 | FMV | N/A | RESEARCH GRANT |
| NORTHEASTERN UNIVERSITY | ||||||||||
| 360 HUNTINGTON AVENUE | BOSTON | MA | 02115 | 041679980 | SECTION 501(C)(3) | $50,000 | $0 | FMV | N/A | RESEARCH GRANT |
| NATIONAL INSTITUTE OF DENTAL AND CRANIOFACIA | ||||||||||
| 31 CENTER DRIVE | BETHESDA | MD | 20892 | 520858115 | FEDERAL GOVERNMENT | $50,000 | $0 | FMV | N/A | RESEARCH GRANT |
| THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | ||||||||||
| 3900 WALNUT ST | PHILADELPHIA | PA | 19104 | 231352685 | SECTION 501(C)(3) | $25,000 | $0 | FMV | N/A | RESEARCH GRANT |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 5 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE SJOGREN'S FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S BY OFFERING ANNUAL RESEARCH GRANTS. THERE ARE TWO ANNUAL AWARDS: A HIGH IMPACT GRANT AND A PILOT GRANT. THE FOUNDATION ADDED TWO NEW RESEARCH GRANT POLICIES CALLED DYNAMIC GRANT POLICY AND PARTNER GRANT POLICY, TO ENCOURAGE ADDITIONAL PROPOSALS THAT FALL OUTSIDE OF THE SCOPE OF OUR ANNUAL GRANTS. ALL GRANT OPPORTUNITIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| JANET CHURCH | ||||||||||||||
| PRESIDENT AND CEO | $309,450 | $0 | $75,000 | $0 | $0 | $0 | $9,375 | $0 | $14,536 | $0 | $408,361 | $0 | $0 | $0 |
| KATHERINE MORLAND HAMMITT | ||||||||||||||
| VP OF MEDICAL AND SCIENTIFIC AFFAIRS | $169,450 | $0 | $10,000 | $0 | $0 | $0 | $5,175 | $0 | $975 | $0 | $185,600 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 4 | ContributionCnt |
| Noncash Contributions Rpt F990 | $36,192 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART I, LINE 1 | THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE OF ALL PATIENTS THROUGH ADVOCACY AND FUND INNOVATIVE RESEARCH. |
| FORM 990, PART VI, SECTION B, LINE 11B | BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. |
| FORM 990, PART VI, SECTION B, LINE 12C | EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. |
| FORM 990, PART VI, SECTION B, LINE 15A | BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. |
| FORM 990, PART VI, SECTION C, LINE 19 | FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BY CONTACTING THE MAIN OFFICE. |
| FORM 990, PART XII, LINE 2C | THE FOUNDATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR. THE BOARD OF DIRECTORS IS RESPONSIBLE FOR OVERSIGHT OVER THE INDEPENDENT AUDIT AND SELECTION OF THE INDEPENDENT AUDITORS. |