CYSTIC FIBROSIS RESEARCH FUND: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- CYSTIC FIBROSIS RESEARCH FUND (EIN 45-3768161)
- Tax period
- 2024-01-01 to 2024-12-31
- Filed
- 2025-05-15
- IRS object ID
- 202501359349306080
- Schema version
- 2024v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-05-15T11:43:22-00:00 | ReturnTs |
| Tax Period End | 2024-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 232808145 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Michael Rosen & Company | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 261 Old York Road Suite 511 | AddressLine1Txt |
| City | Jenkintown | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19046 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 453768161 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Cystic Fibrosis Research Fund Inc | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CYST | BusinessNameControlTxt |
| Phone | 2153416720 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 St Georges Road STE G1 | AddressLine1Txt |
| City | Ardmore | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19003 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Michael Golinkoff | PersonNm |
| Person Title | President | PersonTitleTxt |
| Phone | 2153416720 | PhoneNum |
| Signature | 2025-05-15 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Michael Rosen | PreparerPersonNm |
| PTIN | P00793659 | PTIN |
| Phone | 2158866060 | PhoneNum |
| Preparation | 2025-05-15 | PreparationDt |
| Self Employed | Yes (X) | SelfEmployedInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Emily's Entourage | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Michael Golinkoff | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 St Georges Road STE G1 | AddressLine1Txt |
| City | Ardmore | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19003 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $3,661,302 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.emilysentourage.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1987 | FormationYr |
| Legal Domicile State | PA | LegalDomicileStateCd |
| Activity Or Mission | Research and drug development for the 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 9 | TotalEmployeeCnt |
| Total Volunteers | 80 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $2,632,221 | PYContributionsGrantsAmt |
| CY Contributions Grants | $3,250,951 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $162,753 | PYInvestmentIncomeAmt |
| CY Investment Income | $225,287 | CYInvestmentIncomeAmt |
| PY Other Revenue | $4,983 | PYOtherRevenueAmt |
| CY Other Revenue | -$25,071 | CYOtherRevenueAmt |
| PY Total Revenue | $2,799,957 | PYTotalRevenueAmt |
| CY Total Revenue | $3,451,167 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $959,956 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,656,187 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $541,342 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $895,352 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $254,402 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $618,511 | PYOtherExpensesAmt |
| CY Other Expenses | $407,884 | CYOtherExpensesAmt |
| PY Total Expenses | $2,119,809 | PYTotalExpensesAmt |
| CY Total Expenses | $2,959,423 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $680,148 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $491,744 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $5,004,389 | TotalAssetsBOYAmt |
| Total Assets EOY | $5,958,828 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $170,036 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $632,731 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $4,834,353 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $5,326,097 | NetAssetsOrFundBalancesEOYAmt |
| Mission | The organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $2,553,786 | ExpenseAmt |
| Revenue | $1,814,147 | RevenueAmt |
| Desc | The organization raises money for cystic fibrosis research through direct solicitation activities. | Desc |
| Total Program Service Expenses | $2,553,786 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 13 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 9 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Excs Tax Sect4951 Or4952 Or4953 | false | ExcsTaxSect4951Or4952Or4953Ind |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | false | ConflictOfInterestPolicyInd |
| Whistleblower Policy | false | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | false | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Michael Golinkoff | PersonNm |
| Phone | 2153416720 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 St Georges Road | AddressLine1Txt |
| City | Ardmore | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19003 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd |
|---|---|---|---|---|---|---|
| Greg Reh | ||||||
| Director | 000.50 | Yes (X) | $0 | $0 | $0 | |
| Jessica Rutstein Lazarus | ||||||
| Director | 000.50 | Yes (X) | $0 | $0 | $0 | |
| Beth Shapiro Lavin | ||||||
| Director | 002.00 | Yes (X) | $0 | $0 | $0 | |
| Julie Wertheimer | ||||||
| Director | 000.20 | Yes (X) | $0 | $0 | $0 | |
| Coby Kramer Golinkoff | ||||||
| Director | 005.00 | Yes (X) | $0 | $0 | $0 | |
| Danielle Selber | ||||||
| Director | 000.50 | Yes (X) | $0 | $0 | $0 | |
| Doug Young | ||||||
| Director | 000.20 | Yes (X) | $0 | $0 | $0 | |
| Nickie Boston | ||||||
| Director | 001.00 | Yes (X) | $0 | $0 | $0 | |
| Emily Kramer Golinkoff | ||||||
| Director | 010.00 | Yes (X) | $0 | $0 | $0 | |
| Nick Dinges | ||||||
| Director | 001.00 | Yes (X) | $0 | $0 | $0 | |
| Joan Denenberg | ||||||
| Director | 002.00 | Yes (X) | $0 | $0 | $0 | |
| Michael Golinkoff | ||||||
| President | 010.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| Elizabeth Kramer | ||||||
| Secretary | 020.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| Nancy Astor Fox | ||||||
| Director | 000.20 | Yes (X) | $0 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $1,436,804 | FundraisingAmt |
| All Other Contributions | $1,814,147 | AllOtherContributionsAmt |
| Total Contributions | $3,250,951 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $225,287 | TotalRevenueColumnAmt |
| Exclusion | $225,287 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contri Rpt Fundraising Event | $1,436,804 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $210,135 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$210,135 | TotalRevenueColumnAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Other | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $185,064 | TotalRevenueColumnAmt |
| Exclusion | $185,064 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $185,064 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,451,167 | TotalRevenueColumnAmt |
| Exclusion | $410,351 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,271,187 | TotalAmt |
| Program Services | $1,271,187 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $385,000 | TotalAmt |
| Program Services | $385,000 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $862,112 | TotalAmt |
| Program Services | $578,999 | ProgramServicesAmt |
| Management And General | $120,601 | ManagementAndGeneralAmt |
| Fundraising | $162,512 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,240 | TotalAmt |
| Program Services | $15,796 | ProgramServicesAmt |
| Management And General | $8,316 | ManagementAndGeneralAmt |
| Fundraising | $9,128 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fees For Services Prof Fundraising | FeesForServicesProfFundraising |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,450 | TotalAmt |
| Program Services | $35,681 | ProgramServicesAmt |
| Management And General | $4,109 | ManagementAndGeneralAmt |
| Fundraising | $3,660 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $34,651 | TotalAmt |
| Program Services | $25,980 | ProgramServicesAmt |
| Management And General | $236 | ManagementAndGeneralAmt |
| Fundraising | $8,435 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,102 | TotalAmt |
| Program Services | $6,935 | ProgramServicesAmt |
| Management And General | $10,006 | ManagementAndGeneralAmt |
| Fundraising | $9,161 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,725 | TotalAmt |
| Program Services | $7,419 | ProgramServicesAmt |
| Fundraising | $1,306 | FundraisingAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,950 | TotalAmt |
| Program Services | $2,160 | ProgramServicesAmt |
| Management And General | $325 | ManagementAndGeneralAmt |
| Fundraising | $465 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| Contract Services | $90,852 | $40,680 | $4,072 | $46,100 |
| Science Subcontracting | $116,989 | $115,589 | $1,400 | |
| Recruitment | $41,438 | $36,539 | $1,350 | $3,549 |
| Scientific Conferences | $14,342 | $14,342 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $28,385 | TotalAmt |
| Program Services | $17,479 | ProgramServicesAmt |
| Management And General | $820 | ManagementAndGeneralAmt |
| Fundraising | $10,086 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,959,423 | TotalAmt |
| Program Services | $2,553,786 | ProgramServicesAmt |
| Management And General | $151,235 | ManagementAndGeneralAmt |
| Fundraising | $254,402 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $65,163 | BOYAmt |
| EOY | $55,951 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,928,051 | BOYAmt |
| EOY | $5,872,817 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,175 | BOYAmt |
| EOY | $30,060 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,004,389 | BOYAmt |
| EOY | $5,958,828 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $170,036 | BOYAmt |
| EOY | $575,231 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $57,500 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $170,036 | BOYAmt |
| EOY | $632,731 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,734,353 | BOYAmt |
| EOY | $5,326,097 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $100,000 | BOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,834,353 | BOYAmt |
| EOY | $5,326,097 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,004,389 | BOYAmt |
| EOY | $5,958,828 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $491,744 | ReconcilationRevenueExpnssAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | false | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,781,373 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,094,534 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,898,859 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,324,905 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,814,147 | CurrentTaxYearAmt |
| Total | $8,913,818 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,781,373 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,094,534 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,898,859 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,324,905 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,814,147 | CurrentTaxYearAmt |
| Total | $8,913,818 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $8,913,818 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $276,983 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $28,868 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $21,442 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $162,753 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $225,287 | CurrentTaxYearAmt |
| Total | $715,333 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $9,629,151 | TotalSupportAmt |
| Public Support CY170 | 0.92570 | PublicSupportCY170Pct |
| Public Support PY170 | 0.90530 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Incl Escrow Custodial Acct Liab | false | InclEscrowCustodialAcctLiabInd |
Other Securities OtherSecuritiesGrp (2 entries)
| DescDesc |
|---|
| Financial derivatives and other financial products |
| Closely-held equity interests |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Federal income taxes | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Rev Etc Audited Fincl Stmt | $3,451,167 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Subtotal | $3,451,167 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $3,451,167 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,959,423 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $2,959,423 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $2,959,423 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|
| Europe Including Iceland and Greenland | Grant making | Medical Research | $110,000 |
| Europe Including Iceland and Greenland | Grant making | Medical Research | $55,000 |
| Europe Including Iceland and Greenland | Grant making | Medical Research | $110,000 |
| Europe Including Iceland and Greenland | Grant making | Medical Research | $110,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $385,000 | SubtotalSpentAmt |
| Total Spent | $385,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| Europe Including Iceland and Greenland | Medical Research | $110,000 | Check / Ach |
| Europe Including Iceland and Greenland | Medical Research | $55,000 | Check / Ach |
| Europe Including Iceland and Greenland | Medical Research | $110,000 | Check / Ach |
| Europe Including Iceland and Greenland | Medical Research | $110,000 | Check / Ach |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 4 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Annual Gala | Event1Nm |
| Gross Receipts Event1 | $1,436,804 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,436,804 | CharitableContriEvent1Amt |
| Rent Facility Costs Event1 | $32,700 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $47,531 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $5,000 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $124,904 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $1,436,804 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,436,804 | CharitableContributionsTotAmt |
| Rent Fclty Costs Total Events | $32,700 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $47,531 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $5,000 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $124,904 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $210,135 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$210,135 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (8 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt |
|---|---|---|---|---|---|---|
| Case Western Reserve University | ||||||
| 10900 Euclid Avenue | Cleveland | OH | 44106 | 341018992 | 501c3 | $110,000 |
| Childrens Hospital of Philadelphia Research Institute | ||||||
| 3401 Civic Center Blvd | Philadelphia | PA | 19104 | 231352166 | 501c3 | $185,138 |
| University of IA | ||||||
| 105 Jessup Hall | Iowa City | IA | 52242 | 426004813 | 501c3 | $80,314 |
| Regents of the University of Michigan | ||||||
| 500 S State Street | Ann Arbor | MI | 48109 | 386006309 | 501c3 | $110,000 |
| Trustees of Boston University | ||||||
| 1 Silber Way | Boston | MA | 02215 | 042103547 | 501c3 | $110,000 |
| University of CA San Diego | ||||||
| 9500 Gilman Dr | La Jolla | CA | 92093 | 943067788 | 501c3 | $497,500 |
| University of Pittsburgh | ||||||
| 116 Atwood Street Suite 201 | Pittsburgh | PA | 15260 | 250965591 | 501c3 | $55,000 |
| University of Rochester | ||||||
| 500 Joseph C Wilson Blvd | Rochester | NY | 14627 | 160743209 | 501c3 | $84,922 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 8 | TotalOtherOrgCnt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section A, Line 2 | Four Board Members are related, 2 Parents and 2 Children. |
| Form 990, Part VI, Line 11 | Form 990 is distributed to Board Members prior to its filing with the Internal Revenue Service |
| Form 990, Part VI, Line 19 | Documents are issued to the public upon request. |