STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

CHORDOMA FOUNDATION: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
CHORDOMA FOUNDATION (EIN 20-8423943)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-05-15
IRS object ID
202501359349303455
Schema version
2024v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-05-15T09:35:23-04:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN561743537PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1LANGDON & COMPANY LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1223 US HIGHWAY 70 EAST SUITE 100AddressLine1Txt
CityGARNERCityNm
State AbbreviationNCStateAbbreviationCd
ZIP275294051ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN208423943EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHORDOMA FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCHORBusinessNameControlTxt
Phone9198096779PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 2127AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27702ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJOSH SOMMERPersonNm
Person TitleEXEC. DIR. & PRES.PersonTitleTxt
Phone9198096779PhoneNum
Signature2025-05-14SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonSUSAN DEANPreparerPersonNm
PTINP01281194PTIN
Phone9196621001PhoneNum
Preparation2025-05-15PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJOSH SOMMERPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 2127AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27702ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$5,362,824GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.CHORDOMAFOUNDATION.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2007FormationYr
Legal Domicile StateNCLegalDomicileStateCd
Activity Or MissionTHE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent12VotingMembersIndependentCnt
Total Employee16TotalEmployeeCnt
Total Volunteers45TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$7,189,579PYContributionsGrantsAmt
CY Contributions Grants$4,859,019CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$218,994PYInvestmentIncomeAmt
CY Investment Income$445,749CYInvestmentIncomeAmt
PY Other Revenue$34,045PYOtherRevenueAmt
CY Other Revenue$58,056CYOtherRevenueAmt
PY Total Revenue$7,442,618PYTotalRevenueAmt
CY Total Revenue$5,362,824CYTotalRevenueAmt
PY Grants And Similar Paid$2,007,102PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$3,731,199CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,536,923PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$2,131,135CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$609,870CYTotalFundraisingExpenseAmt
PY Other Expenses$1,053,049PYOtherExpensesAmt
CY Other Expenses$972,295CYOtherExpensesAmt
PY Total Expenses$4,597,074PYTotalExpensesAmt
CY Total Expenses$6,834,629CYTotalExpensesAmt
PY Revenues Less Expenses$2,845,544PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$1,471,805CYRevenuesLessExpensesAmt
Total Assets BOY$11,037,912TotalAssetsBOYAmt
Total Assets EOY$11,385,145TotalAssetsEOYAmt
Total Liabilities BOY$1,830,024TotalLiabilitiesBOYAmt
Total Liabilities EOY$3,665,296TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$9,207,888NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$7,719,849NetAssetsOrFundBalancesEOYAmt
MissionTHE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$5,063,579ExpenseAmt
Grant$3,655,631GrantAmt
Desc(RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED CARRYING OUT PRECLINICAL STUDIES IN OUR LABORATORY, AWARDING RESEARCH GRANTS TO ACADEMIC INVESTIGATORS, OPERATING REPOSITORIES TO SUPPLY THE RESEARCH COMMUNITY WITH KEY RESEARCH-ENABLING RESOURCES, CONVENING SCIENTIFIC MEETINGS, AND FACILITATING THE DESIGN AND INITIATION OF WELL-JUSTIFIED CLINICAL TRIALS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$738,793ExpenseAmt
Grant$75,568GrantAmt
Desc(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$5,802,372TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemYes (true)BusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document19IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee16EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member12IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJOSH SOMMERPersonNm
Phone9198096779PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 2127AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27702ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtKey EmployeeKeyEmployeeIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
KENNY BRIGHTON
HEAD OF PHIL40.00Yes (X)$216,428$0$13,189
DANIEL FREED
CHIEF SCIENT40.00Yes (X)$204,345$0$23,214
JOSH SOMMER
EXEC. DIR. &50.00$174,183$0$28,553Yes (X)Yes (X)
SARA NICK
HEAD OF ENGA40.00$142,821$0$9,699Yes (X)
SHANNON LOZINSKY
DIRECTOR OF40.00$121,708$0$17,888Yes (X)
LEE DOLAT
SCIENTIST40.00$112,452$0$15,642Yes (X)
SAI PERVEEN CHEMUDUPATI
DIRECTOR OF40.00$105,347$0$11,259Yes (X)
JESSE BONGARTZ
HEAD OF FINA40.00$100,921$0$11,209Yes (X)
LESLIE ADLER
DIRECTOR2.00$0$0$0Yes (X)
PAUL FELDMAN
DIRECTOR2.00$0$0$0Yes (X)
STEVEN GOLICK
DIRECTOR2.00$0$0$0Yes (X)
CHRISTOPHER HEERY
DIRECTOR2.00$0$0$0Yes (X)
ALICIA JEFFREYS
DIRECTOR2.00$0$0$0Yes (X)
SUSAN MAHONY
DIRECTOR2.00$0$0$0Yes (X)
STEVEN MANDEL
DIRECTOR2.00$0$0$0Yes (X)
LAUREN MULHOLLAND
DIRECTOR2.00$0$0$0Yes (X)
SHREYASKUMAR PATEL
DIRECTOR2.00$0$0$0Yes (X)
DAVID SANDAK
CHAIR2.00$0$0$0Yes (X)
MEGAN STEWART
DIRECTOR2.00$0$0$0Yes (X)
JOHN THERIEN
DIRECTOR2.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,178,205TotalReportableCompFromOrgAmt
Total Other Compensation$130,653TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K8IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1S TEXAS ACCELERATED RESEARCH THERAPEBusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line14383 MEDICAL DRIVE SUITE 4021AddressLine1Txt
CitySAN ANTONIOCityNm
State AbbreviationTXStateAbbreviationCd
ZIP78229ZIPCd
FieldValueIRS element (for citing)
ServicesRESEARCHServicesDesc
Compensation$155,885CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
All Other Contributions$4,859,019AllOtherContributionsAmt
Noncash Contributions$266,328NoncashContributionsAmt
Total Contributions$4,859,019TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$445,749TotalRevenueColumnAmt
Exclusion$445,749ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp (3 entries)

DescDescTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
CONTRACT RESEARCH$37,640$37,640
OTHER INCOME$15,790$15,790
CONFERENCE REGISTRATION$4,626$4,626
FieldValueIRS element (for citing)
Other Revenue Total$58,056OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,362,824TotalRevenueColumnAmt
Related Or Exempt Func Income$58,056RelatedOrExemptFuncIncomeAmt
Exclusion$445,749ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$2,715,621TotalAmt
Program Services$2,715,621ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$75,568TotalAmt
Program Services$75,568ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$940,010TotalAmt
Program Services$940,010ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$924,560TotalAmt
Program Services$613,127ProgramServicesAmt
Management And General$104,839ManagementAndGeneralAmt
Fundraising$206,594FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$970,173TotalAmt
Program Services$643,375ProgramServicesAmt
Management And General$110,012ManagementAndGeneralAmt
Fundraising$216,786FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$9,416TotalAmt
Program Services$6,244ProgramServicesAmt
Management And General$1,068ManagementAndGeneralAmt
Fundraising$2,104FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$95,908TotalAmt
Program Services$63,602ProgramServicesAmt
Management And General$10,875ManagementAndGeneralAmt
Fundraising$21,431FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$131,078TotalAmt
Program Services$86,925ProgramServicesAmt
Management And General$14,863ManagementAndGeneralAmt
Fundraising$29,290FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$30,508TotalAmt
Program Services$28,797ProgramServicesAmt
Management And General$73ManagementAndGeneralAmt
Fundraising$1,638FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$80,469TotalAmt
Management And General$80,469ManagementAndGeneralAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$16,582TotalAmt
Management And General$16,582ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$152,249TotalAmt
Program Services$143,706ProgramServicesAmt
Management And General$367ManagementAndGeneralAmt
Fundraising$8,176FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$17,311TotalAmt
Program Services$11,807ProgramServicesAmt
Fundraising$5,504FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$47,317TotalAmt
Program Services$10,704ProgramServicesAmt
Management And General$14,480ManagementAndGeneralAmt
Fundraising$22,133FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$223,448TotalAmt
Program Services$164,572ProgramServicesAmt
Management And General$22,958ManagementAndGeneralAmt
Fundraising$35,918FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$2,678TotalAmt
Program Services$606ProgramServicesAmt
Management And General$819ManagementAndGeneralAmt
Fundraising$1,253FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$137,969TotalAmt
Program Services$81,179ProgramServicesAmt
Management And General$14,062ManagementAndGeneralAmt
Fundraising$42,728FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$55,203TotalAmt
Program Services$49,805ProgramServicesAmt
Management And General$2,160ManagementAndGeneralAmt
Fundraising$3,238FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$21,996TotalAmt
Program Services$13,216ProgramServicesAmt
Management And General$8,197ManagementAndGeneralAmt
Fundraising$583FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
IN-KIND CONTRIBUTIONS$121,571$120,163$563$845
EVENTS$44,994$33,345$11,649
BAD DEBT EXPENSE$20,000$20,000

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$6,834,629TotalAmt
Program Services$5,802,372ProgramServicesAmt
Management And General$422,387ManagementAndGeneralAmt
Fundraising$609,870FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$3,639,340BOYAmt
EOY$784,029EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$6,083,749BOYAmt
EOY$8,881,876EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$1,064,570BOYAmt
EOY$1,422,306EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$15,041BOYAmt
EOY$51,767EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$240,611LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$129,636LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$145,151BOYAmt
EOY$110,975EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$90,061BOYAmt
EOY$134,192EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$11,037,912BOYAmt
EOY$11,385,145EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$510,650BOYAmt
EOY$833,241EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$1,319,374BOYAmt
EOY$2,832,055EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,830,024BOYAmt
EOY$3,665,296EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,158,191BOYAmt
EOY$4,104,641EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,049,697BOYAmt
EOY$3,615,208EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$9,207,888BOYAmt
EOY$7,719,849EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$11,037,912BOYAmt
EOY$11,385,145EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$1,471,805ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$31,042NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets-$47,276OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,488,341CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,961,128CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,812,417CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$7,189,579CurrentTaxYearMinus1YearAmt
Current Tax Year$4,859,019CurrentTaxYearAmt
Total$22,310,484TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,488,341CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,961,128CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,812,417CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$7,189,579CurrentTaxYearMinus1YearAmt
Current Tax Year$4,859,019CurrentTaxYearAmt
Total$22,310,484TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$7,603,990SubstantialContributorsTotAmt
Public Support Total170$14,706,494PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$5,729CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$26,512CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$49,598CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$230,561CurrentTaxYearMinus1YearAmt
Current Tax Year$445,749CurrentTaxYearAmt
Total$758,149TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,775CurrentTaxYearMinus4YearsAmt
Total$1,775TotalAmt
FieldValueIRS element (for citing)
Total Support$23,070,408TotalSupportAmt
Gross Receipts Rltd Activities$202,883GrossReceiptsRltdActivitiesAmt
Public Support CY1700.63750PublicSupportCY170Pct
Public Support PY1700.61100PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferencePART II, LINE 10FormAndLineReferenceDesc
ExplanationCONFERENCE REGISTRATION FEES 1,775ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$177,051OtherCostOrOtherBasisAmt
Depreciation$87,264DepreciationAmt
Book Value$89,787BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$63,560OtherCostOrOtherBasisAmt
Depreciation$42,372DepreciationAmt
Book Value$21,188BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$110,975TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$5,387,847TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$31,042NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$57,839DonatedServicesAndUseFcltsAmt
Other Revenue-$47,276OtherRevenueAmt
Revenue Not Reported$41,605RevenueNotReportedAmt
Revenue Subtotal$5,346,242RevenueSubtotalAmt
Investment Expenses Not Incld$16,582InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$16,582RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$5,362,824TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$6,875,886TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$57,839DonatedServicesUseFcltsAmt
Expenses Not Reported$57,839ExpensesNotReportedAmt
Expenses Subtotal$6,818,047ExpensesSubtotalAmt
Investment Expenses Not Incld2$16,582InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$16,582ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$6,834,629TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
SCHEDULE D, PAGE 3, PART XTHE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2024 OR 2023.
SCHEDULE D, PAGE 4, PART XI, LINE 2DLOSS ON FOREIGN CURRENCY -47,276

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EUROPEGRANTSRESEARCH$745,876
SOUTH ASIAGRANTSRESEARCH$194,134
FieldValueIRS element (for citing)
Subtotal Spent$940,010SubtotalSpentAmt
Total Spent$940,010TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (6 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPERESEARCH$96,580WIRE TRANSFER
SOUTH ASIARESEARCH$194,134WIRE TRANSFER
EUROPERESEARCH$205,400WIRE TRANSFER
EUROPERESEARCH$275,000WIRE TRANSFER
EUROPERESEARCH$150,000WIRE TRANSFER
EUROPERESEARCH$18,896WIRE TRANSFER
FieldValueIRS element (for citing)
Total Other Org6TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
SCHEDULE F, PAGE 1, PART I, LINE 2MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS.
SCHEDULE F, PAGE 1, PART I, LINE 3EUROPE 745,876 0 SOUTH ASIA 194,134 0

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (13 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtBusiness Name Line2RecipientBusinessName/BusinessNameLine2Txt
CANCER RESEARCH INSTITUTE
29 BROADWAY FLOOR 4NEW YORKNY10006131837442501C3$250,000RESEARCH GRANT
CHILDREN'S HOSPITAL OF PHILADELPHIA
3615 CIVIC CENTER BOULEVARDPHILADELPHIAPA19104231352166501C3$84,723RESEARCH GRANTCHOP
MASSACHUSETTS GEN HOSPITAL
185 CAMBRIDGE STBOSTONMA02114041564655501C3$56,500RESEARCH GRANT
MEMORIAL SLOAN KETTERING CANCER
1275 YORK AVENUENEW YORKNY10065311485731501C3$407,935RESEARCH GRANTCENTER
START
4383 MEDICAL DRIVE SUITE 4021SAN ANTONIOTX78229208313687$275,562RESEARCH GRANT
THE BROAD INSTITUTE INC
415 MAIN STREETCAMBRIDGEMA02142263428781501C3$299,789RESEARCH GRANT
UNIVERSITY OF TEXAS MD ANDERSON CAN
1515 HOLCOMBE BLVDHOUSTONTX77030746001118$400,000RESEARCH GRANT
UPMC DEPARTMENT OF NEUROSURGERY
200 LOTHROP STREETPITTSBURGPA15213232919472501C3$50,000RESEARCH GRANT
NYU GROSSMAN SCHOOL OF MEDICINE
435 E 30TH STREET 8TH FLOORNEW YORKNY10016135562309$325,000RESEARCH GRANT
CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVDLOS ANGELESCA90048951644600501C3$50,000RESEARCH GRANT
THE MEDICAL COLLEGE OF WISCONSIN
999 N 92ND STMILWAUKEEWI53226390806261501C3$50,000RESEARCH GRANT
AMERICAN ASSN FOR CANCER RESEARCH
615 CHESTNUT STPHILADELPHIAPA19106233100004501C3$138,060RESEARCH GRANT
REDESIGN SCIENCE INC
180 VARICK ST STE 6NEW YORKNY10014823078352$15,000RESEARCH GRANT
FieldValueIRS element (for citing)
Total501c3 Org9Total501c3OrgCnt
Total Other Org4TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypePATIENT ASSISTANCEGrantTypeTxt
Recipient15RecipientCnt
Cash Grant$75,568CashGrantAmt
Valuation Method UsedFMVValuationMethodUsedDesc

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE I, PAGE 1, PART I, LINE 2FormAndLineReferenceDesc
ExplanationMONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtBonus Filing OrganizationBonusFilingOrganizationAmountOther Compensation Filing OrgOtherCompensationFilingOrgAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
KENNY BRIGHTON
HEAD OF PHILANTHROPY$168,374$48,000$54$11,203$1,986$229,617
DANIEL FREED
CHIEF SCIENTIFIC OFF$178,269$26,016$60$13,428$9,786$227,559
JOSH SOMMER
EXEC. DIR. & PRES.$148,519$25,610$54$11,852$16,701$202,736
SARA NICK
HEAD OF ENGAGEMENT$124,062$18,699$60$8,295$1,404$152,520

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1SMITH ANDERSON LLPBusinessNameLine1Txt
FieldValueIRS element (for citing)
Relationship DescriptionBOARD DIRECTORRelationshipDescriptionTxt
Transaction$57,839TransactionAmt
TransactionIN-KIND LEGAL SVCSTransactionDesc
Sharing Of RevenuesfalseSharingOfRevenuesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE L, PART VFormAndLineReferenceDesc
ExplanationTHE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution7ContributionCnt
Noncash Contributions Rpt F990$144,756NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescTECH SOLUTIONSDesc
Contribution1ContributionCnt
Noncash Contributions Rpt F990$121,572NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PAGE 6, PART VI, LINE 11BFINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR, TREASURER AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL.
FORM 990, PAGE 6, PART VI, LINE 12CEACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION.
FORM 990, PAGE 6, PART VI, LINE 15ATHE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS.
FORM 990, PAGE 6, PART VI, LINE 15BTHE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR.
FORM 990, PAGE 6, PART VI, LINE 19GOVERNING DOCUMENTS INCLUDING ARTICLES OF INCORPORATION, BY-LAWS, POLICIES, ANNUAL AUDITS, AND 990S ARE ON FILE IN THE FINANCE OFFICE AND ARE AVAILABLE TO THE PUBLIC UPON REQUEST. SOME OF THESE DOCUMENTS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE.
FORM 990, PART XI, LINE 9LOSS ON FOREIGN CURRENCY -47,276