STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

CUREPSP INC: Form 990, tax year 2021

View the entire original 990 at ProPublica ↗

Organization
CUREPSP INC (EIN 52-1704978)
Tax period
2021-07-01 to 2022-06-30
Filed
2023-05-10
IRS object ID
202311309349305196
Schema version
2021v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2023-05-10T17:14:08-07:00ReturnTs
Tax Period End2022-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN812950760PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1SAX LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1389 INTERPACE PARKWAY STE 3AddressLine1Txt
CityPARSIPPANYCityNm
State AbbreviationNJStateAbbreviationCd
ZIP07054ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2021-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN521704978EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CurePSP IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCUREBusinessNameControlTxt
Phone6467251453PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11216 Broadway 2nd FloorAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10001ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonKristophe DiazPersonNm
Person TitleExecutive DirectorPersonTitleTxt
Signature2023-05-10SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstKristophePersonFirstNm
Person LastDiazPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMichael SchallPreparerPersonNm
PTINP02024184PTIN
Phone2122682804PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer3TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
Federated Assurance LevelFAL1FederatedAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2021TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerKristophe DiazPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11216 Broadway 2nd FloorAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10001ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$3,918,928GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.curepsp.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1990FormationYr
Legal Domicile StateMDLegalDomicileStateCd
Activity Or MissionTo raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.ActivityOrMissionDesc
Voting Members Governing Body15VotingMembersGoverningBodyCnt
Voting Members Independent15VotingMembersIndependentCnt
Total Employee12TotalEmployeeCnt
Total Volunteers260TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$6,290,908PYContributionsGrantsAmt
CY Contributions Grants$3,585,545CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$27,438PYInvestmentIncomeAmt
CY Investment Income$217,382CYInvestmentIncomeAmt
PY Other Revenue$23,693PYOtherRevenueAmt
CY Other Revenue$3,984CYOtherRevenueAmt
PY Total Revenue$6,342,039PYTotalRevenueAmt
CY Total Revenue$3,806,911CYTotalRevenueAmt
PY Grants And Similar Paid$1,006,395PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$991,063CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,138,833PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,122,055CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$254,343CYTotalFundraisingExpenseAmt
PY Other Expenses$1,343,135PYOtherExpensesAmt
CY Other Expenses$1,348,289CYOtherExpensesAmt
PY Total Expenses$3,488,363PYTotalExpensesAmt
CY Total Expenses$3,461,407CYTotalExpensesAmt
PY Revenues Less Expenses$2,853,676PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$345,504CYRevenuesLessExpensesAmt
Total Assets BOY$8,414,669TotalAssetsBOYAmt
Total Assets EOY$7,863,202TotalAssetsEOYAmt
Total Liabilities BOY$916,524TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,105,775TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$7,498,145NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$6,757,427NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTo raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$962,230ExpenseAmt
Grant$825,439GrantAmt
DescCurePSP is a catalyst for new treatments and a cure. As such, it advances the understanding and seeks treatment and a cure for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). The science that is advanced by CurePSP also benefits the broader field of research in neurodegeneration, including Alzheimers and Parkinsons diseases, in addition to other rare neurodegenerative diseases. Continued on Schedule ODesc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$884,475ExpenseAmt
Grant$30,624GrantAmt
DescCurePSP advocates for patients, families, and caregivers living with or managing PSP, CBD, and MSA. The goal of CurePSP is to improve the quality of life and patient outcomes and to create a community to increase resilience and accelerate problem-solving. CurePSP does this through the organization of family conferences, caregiver retreats, volunteer development, professional education, online and printed resources, and the dissemination of relevant information on social media. CurePSP supports more than 50 virtual and in-person support groups and has over 250 volunteers providing online, telephone, and face-to-face support worldwide. Continued on Schedule ODesc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$784,667ExpenseAmt
DescCurePSP publishes a library of printed and online educational materials for families, patients, physicians, and other healthcare professionals. These materials are developed in collaboration with CurePSP Centers of Care, a network of hospitals and best-in-class academic centers specializing in treating patients with PSP, CBD, and MSA. CurePSP sponsors professional educational conferences in collaboration with leading institutions to increase knowledge of the disease that will lead to earlier and more accurate diagnosis and better patient care. Several dozen volunteer events annually, supported by CurePSP, further educate the public. CurePSP uses several social media platforms to communicate with its constituents, maintains an online patient and caregiver forum, and produces national webinars, online support groups, and online presentations from clinicians and researchers.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$135,000TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$135,000TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$2,766,372TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (true)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtYes (true)ConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityYes (true)DisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document23IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee12EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members15GoverningBodyVotingMembersCnt
Independent Voting Member15IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonKristophe DiazPersonNm
Phone6467251453PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11216 Broadway 2nd FloorAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10001ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
David Kemp
President40.000.00Yes (X)$200,000$0$8,383
Kristophe Diaz
Executive Dir.40.000.00Yes (X)$190,885$0$15,536
William McFarland
Chair6.000.00Yes (X)$0$0$0Yes (X)
Amy Branch
Vice Chair10.000.00Yes (X)$0$0$0Yes (X)
Justin Shea
Treasurer2.000.00Yes (X)$0$0$0Yes (X)
Lawrence Levien
Secretary1.000.00Yes (X)$0$0$0Yes (X)
Everett Cook Thru 622
Director2.000.00$0$0$0Yes (X)
Jack Philips
Director5.000.00$0$0$0Yes (X)
John Sr Burhoe
Chair Emeritus3.000.00$0$0$0Yes (X)
Larry Golbe
Chair SAB12.000.00$0$0$0Yes (X)
Ileen McFarland
Director35.000.00$0$0$0Yes (X)
Brent R Bluett thru 522
Director3.000.00$0$0$0Yes (X)
Mana Bhatt Sanghvi
Director2.000.00$0$0$0Yes (X)
James McClellan
Director1.000.00$0$0$0Yes (X)
Maggie Orseth
Director1.000.00$0$0$0Yes (X)
Jessica Shurer Thru 1021
Director3.500.00$0$0$0Yes (X)
Alexander Pantelyat
Director2.000.00$0$0$0Yes (X)
Robert Hand
Director1.000.00$0$0$0Yes (X)
Andrew Maus
Director2.000.00$0$0$0Yes (X)
Paul Freeman
Director2.000.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$390,885TotalReportableCompFromOrgAmt
Total Other Compensation$23,919TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K2IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (2 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
Kiwi Partners Inc
237 West 35th Street Suite 1101New YorkNY10001Accounting Services$108,041
Regina Printing
260 Wagner StreetMiddlesexNJ08846Printing Services$433,298
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K2CntrctRcvdGreaterThan100KCnt
Fundraising$387,433FundraisingAmt
All Other Contributions$3,198,112AllOtherContributionsAmt
Total Contributions$3,585,545TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$237,008TotalRevenueColumnAmt
Exclusion$237,008ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$92,391SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$112,017SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$19,626SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$19,626TotalRevenueColumnAmt
Exclusion-$19,626ExclusionAmt
FieldValueIRS element (for citing)
Contri Rpt Fundraising Event$387,433ContriRptFundraisingEventAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescOther RevenueDesc
Total Revenue Column$3,984TotalRevenueColumnAmt
Exclusion$3,984ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$3,984OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,806,911TotalRevenueColumnAmt
Exclusion$221,366ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$60,663TotalAmt
Program Services$60,663ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$826,900TotalAmt
Program Services$826,900ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$103,500TotalAmt
Program Services$103,500ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$324,954TotalAmt
Program Services$242,268ProgramServicesAmt
Management And General$50,191ManagementAndGeneralAmt
Fundraising$32,495FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$598,358TotalAmt
Program Services$524,668ProgramServicesAmt
Management And General$42,218ManagementAndGeneralAmt
Fundraising$31,472FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$8,749TotalAmt
Program Services$8,315ProgramServicesAmt
Management And General$30ManagementAndGeneralAmt
Fundraising$404FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$121,633TotalAmt
Program Services$101,592ProgramServicesAmt
Management And General$12,332ManagementAndGeneralAmt
Fundraising$7,709FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$68,361TotalAmt
Program Services$56,614ProgramServicesAmt
Management And General$7,093ManagementAndGeneralAmt
Fundraising$4,654FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$61,530TotalAmt
Program Services$10,830ProgramServicesAmt
Management And General$49,750ManagementAndGeneralAmt
Fundraising$950FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$123,675TotalAmt
Management And General$123,675ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$12,957TotalAmt
Management And General$12,957ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$157,630TotalAmt
Program Services$117,417ProgramServicesAmt
Management And General$17,713ManagementAndGeneralAmt
Fundraising$22,500FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$20,252TotalAmt
Program Services$17,664ProgramServicesAmt
Management And General$1,620ManagementAndGeneralAmt
Fundraising$968FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$153,229TotalAmt
Program Services$124,288ProgramServicesAmt
Management And General$9,263ManagementAndGeneralAmt
Fundraising$19,678FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$66,686TotalAmt
Program Services$55,329ProgramServicesAmt
Management And General$6,867ManagementAndGeneralAmt
Fundraising$4,490FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$93,313TotalAmt
Program Services$63,007ProgramServicesAmt
Management And General$29,329ManagementAndGeneralAmt
Fundraising$977FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$5,372TotalAmt
Program Services$5,222ProgramServicesAmt
Management And General$150ManagementAndGeneralAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$3,338TotalAmt
Program Services$2,764ProgramServicesAmt
Management And General$347ManagementAndGeneralAmt
Fundraising$227FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$15,382TotalAmt
Management And General$15,382ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtFundraisingFundraisingAmtManagement And GeneralManagementAndGeneralAmt
Direct mail$364,357$307,816$56,541
Recruiting and marketing$167,203$95,469$68,520$3,214
Other expenses$78,098$19,969$1,394$56,735
Postage and Shipping$23,353$20,596$1,242$1,515

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$1,914TotalAmt
Program Services$1,481ProgramServicesAmt
Management And General$311ManagementAndGeneralAmt
Fundraising$122FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,461,407TotalAmt
Program Services$2,766,372ProgramServicesAmt
Management And General$440,692ManagementAndGeneralAmt
Fundraising$254,343FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$2,166,770BOYAmt
EOY$1,509,198EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$3,126,783BOYAmt
EOY$363,665EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$82,874BOYAmt
EOY$56,899EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$130,293BOYAmt
EOY$144,499EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$206,305LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$202,655LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$4,401BOYAmt
EOY$3,650EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$2,771,922BOYAmt
EOY$5,658,237EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$131,626BOYAmt
EOY$127,054EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$8,414,669BOYAmt
EOY$7,863,202EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$150,591BOYAmt
EOY$205,592EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$542,420BOYAmt
EOY$676,670EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$223,513BOYAmt
EOY$223,513EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$916,524BOYAmt
EOY$1,105,775EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$6,394,463BOYAmt
EOY$5,663,353EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,103,682BOYAmt
EOY$1,094,074EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,498,145BOYAmt
EOY$6,757,427EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$8,414,669BOYAmt
EOY$7,863,202EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$345,504ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$1,086,222NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Consolidated Basis Fincl StmtYes (X)ConsolidatedBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,598,398CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,845,244CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,419,168CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$6,290,908CurrentTaxYearMinus1YearAmt
Current Tax Year$3,585,545CurrentTaxYearAmt
Total$18,739,263TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$191,356CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$205,367CurrentTaxYearMinus3YearsAmt
Total$396,723TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,789,754CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,050,611CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,419,168CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$6,290,908CurrentTaxYearMinus1YearAmt
Current Tax Year$3,585,545CurrentTaxYearAmt
Total$19,135,986TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$93,594CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$74,320CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$33,051CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$82,413CurrentTaxYearMinus1YearAmt
Current Tax Year$122,202CurrentTaxYearAmt
Total$405,580TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$93,594CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$74,320CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$33,051CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$82,413CurrentTaxYearMinus1YearAmt
Current Tax Year$122,202CurrentTaxYearAmt
Total$405,580TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$18,730,406PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$12,836CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$27,191CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$76,559CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$18,990CurrentTaxYearMinus1YearAmt
Current Tax Year$237,008CurrentTaxYearAmt
Total$372,584TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$12,836CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$27,191CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$76,559CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$18,990CurrentTaxYearMinus1YearAmt
Current Tax Year$237,008CurrentTaxYearAmt
Total$372,584TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$39,664CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$16,637CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$22,737CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$23,693CurrentTaxYearMinus1YearAmt
Current Tax Year$3,984CurrentTaxYearAmt
Total$106,715TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,842,254CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,094,439CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,518,464CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$6,333,591CurrentTaxYearMinus1YearAmt
Current Tax Year$3,826,537CurrentTaxYearAmt
Total$19,615,285TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.95490PublicSupportCY509Pct
Public Support PY5090.96370PublicSupportPY509Pct
Investment Income CY0.01900InvestmentIncomeCYPct
Investment Income PY0.00790InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$397,078BeginningYearBalanceAmt
Investment Earnings Or Losses-$43,025InvestmentEarningsOrLossesAmt
Administrative Expenses$3,000AdministrativeExpensesAmt
End Year Balance$351,053EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$316,620BeginningYearBalanceAmt
Investment Earnings Or Losses$80,458InvestmentEarningsOrLossesAmt
End Year Balance$397,078EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$332,916BeginningYearBalanceAmt
Investment Earnings Or Losses-$1,296InvestmentEarningsOrLossesAmt
Administrative Expenses$15,000AdministrativeExpensesAmt
End Year Balance$316,620EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$452,650BeginningYearBalanceAmt
Investment Earnings Or Losses$9,116InvestmentEarningsOrLossesAmt
Administrative Expenses$128,850AdministrativeExpensesAmt
End Year Balance$332,916EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$403,444BeginningYearBalanceAmt
Investment Earnings Or Losses$52,826InvestmentEarningsOrLossesAmt
Administrative Expenses$3,620AdministrativeExpensesAmt
End Year Balance$452,650EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd
Related Org List Sch RfalseRelatedOrgListSchRInd

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$206,305OtherCostOrOtherBasisAmt
Depreciation$202,655DepreciationAmt
Book Value$3,650BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$3,650TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$2,707,732TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$1,086,222NetUnrealizedGainsInvstAmt
Revenue Not Reported-$1,086,222RevenueNotReportedAmt
Revenue Subtotal$3,793,954RevenueSubtotalAmt
Investment Expenses Not Incld$12,957InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$12,957RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$3,806,911TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,448,450TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$3,448,450ExpensesSubtotalAmt
Investment Expenses Not Incld2$12,957InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$12,957ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,461,407TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X : FIN48 FootnoteFormAndLineReferenceDesc
ExplanationThe Organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending June 30, 2019 and later are subject to examination by applicable taxing authorities.ExplanationTxt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
Europe00Grant making$93,500
Canada00Grantmaking$10,000
FieldValueIRS element (for citing)
Subtotal Spent$103,500SubtotalSpentAmt
Total Spent$103,500TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
CanadaResearch$10,000Wire
EuropeResearch$93,500Wire
FieldValueIRS element (for citing)
Total Other Org2TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside USFormAndLineReferenceDesc
ExplanationInvestigators are required to provide four progress reports during the term of the grant: two financial reports and two scientific progress reports. The scientific progress reports are sent for review and approval to the Chief Science Officer and payment may be released only after approval has been given. If progress reports are not determined to be satisfactory, payment may be withheld until the investigator can provide a satisfactory report.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Agrmt Prof Fundraising ActyfalseAgrmtProfFundraisingActyInd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Fundraising EventEvent1Nm
Gross Receipts Event1$387,433GrossReceiptsEvent1Amt
Charitable Contri Event1$387,433CharitableContriEvent1Amt
Gross Receipts Total$387,433GrossReceiptsTotalAmt
Charitable Contributions Tot$387,433CharitableContributionsTotAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (8 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
Columbia University
615 West 131st StreetNew YorkNY10027135598093$50,000$0Research
Icahn School of Medicine at M
One Gustave L Levy Place BoNew YorkNY10029136171197$75,000$0Research
Massachusetts General Hospita
55 Fruit StreetBostonMA02114042697983$90,000$0Research
North Texas Community Fdtn
777 Main Street Suite 2850Fort WorthTX76102752267767$106,900$0Research
The Regents of the UCLA
10889 Wilkshire BlvdLos AngelesCA90095956006143$90,000$0Research
University of Pennsylvania
3541 Walnut StreetPhiladelphiaPA19104231352685$100,000$0Research
UT Health Science Center at S
7703 Floyd Curl DriveSan AntonioTX78229741586031$100,000$0Research
UT Southwestern Medical Cente
Office of Devel PO Box 910888DallasTX75391756002868$90,000$0Research
FieldValueIRS element (for citing)
Total501c3 Org4Total501c3OrgCnt
Total Other Org4TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmt
Respite Care Fund36$30,624
Brain Tissue Grants28$22,450

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationInvestigators are required to provide two progress reports during the term of the grant. The progress report is sent for review and approval to the Vice President of Scientific Affairs and payment may be released only after approval has been given. If progress reports are not determined to be satisfactory, payment may be withheld until the investigator can provide a satisfactory report.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
David Kemp
President$200,000$6,000$2,383$208,383
Kristophe Diaz
Executive Dir.$190,885$15,536$206,421

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part III, Line 4d: Other Program Services DescriptionOTHER PROGRAM SERVICES 4: CurePSP organizes and administers a CurePSP Center of Care program, a network of medical centers across the United States and Canada with the goal of connecting people diagnosed with PSP, CBD, and MSA to the best possible care to support disease management and quality of life. The mission of CurePSP Centers of Care is to enhance access to accurate and early diagnosis, state-of-the-art clinical care, and comprehensive support, serve as regional leaders, increase awareness of PSP, CBD, and MSA, optimize standards of care delivery for PSP, CBD, and MSA, and create opportunities for multi-center research initiatives. Launched in 2022, the Collaborative Approaches to Resources, Education, and Support (CARES) grant program funds clinical research projects led by two or more Centers of Care
Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, EtWilliam R. McFarland and Ileen J McFarland are husband and wife.
Form 990, Part VI, Line 11b: Form 990 Review ProcessThe 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the IRS.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsThe organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementThe Board of Directors discussed performance and uses salary data to determine. Periodically the Board also obtains an independent compensation study to determine salary levels.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableGoverning documents are made available upon request.
Part III, Line 4aCurePSP funding of research and partnerships focuses on (a) the causes and risk factors for neurodegeneration, (b) the discovery or validation of biomarkers and clinical tests that aid in diagnosis, (c) genetic variants that are associated with the diseases, (d) therapies that would prevent, stop, or reverse brain damage associated with the pathological accumulation of protein in the brain, and (e) aiding pharmaceutical companies and research institutions in the recruitment of cohorts for clinical trials and marketing of those trials. In addition, CurePSP partners with world-leading institutions, including the Mayo Clinics brain bank, to provide critical brain tissue samples to researchers and increase access to these fundamental biological resources.
Part III, Line 4bCurePSP's Quality of Life Respite grant, supported by the Cherie Levien Quality of Life Fund and many other donors, provides professional in-home care to families in need. As an example of an online resource, CurePSP organizes Ask The Experts interactive webinars during which subject matter experts in the medical and healthcare fields share their advice, knowledge, and research with patients and caregivers.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1Patient Engagement Program LLCBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line11216 BroadwayAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10001ZIPCd
FieldValueIRS element (for citing)
EIN474679085EIN
Primary ActivitiesResearchPrimaryActivitiesTxt
Legal Domicile StateNYLegalDomicileStateCd

Direct Controlling Entity Name DirectControllingEntityName

FieldValueIRS element (for citing)
Business Name Line1CurePSP IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts RyltsfalseReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth OrgfalseGiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgfalseGiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other OrgfalseLoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth OrgfalseLoansOrGuaranteesFromOthOrgInd
Div Related OrganizationfalseDivRelatedOrganizationInd
Asset Sale To Other OrgfalseAssetSaleToOtherOrgInd
Asset Purchase From Other OrgfalseAssetPurchaseFromOtherOrgInd
Asset ExchangefalseAssetExchangeInd
Rental Of Facilities To Oth OrgfalseRentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth OrgfalseRentalOfFcltsFromOthOrgInd
Perform Of Services For Oth OrgfalsePerformOfServicesForOthOrgInd
Perform Of Services By Other OrgfalsePerformOfServicesByOtherOrgInd
Sharing Of FacilitiesfalseSharingOfFacilitiesInd
Paid Employees SharingfalsePaidEmployeesSharingInd
Reimbursement Paid To Other OrgfalseReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other OrgfalseReimbursementPaidByOtherOrgInd
Transfer To Other OrgfalseTransferToOtherOrgInd
Transfer From Other OrgfalseTransferFromOtherOrgInd