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ALPHA-1 FOUNDATION INC: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
ALPHA-1 FOUNDATION INC (EIN 65-0585415)
Tax period
2023-07-01 to 2024-06-30
Filed
2025-05-15
IRS object ID
202511359349305521
Schema version
2023v6.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-05-15T11:12:14-07:00ReturnTs
Tax Period End2024-06-30TaxPeriodEndDt
Return Type990ReturnTypeCd
Tax Period Begin2023-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN650585415EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1ALPHA-1 FOUNDATION INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlALPHBusinessNameControlTxt
Phone3055679888PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BlvdAddressLine1Txt
CityMiamiCityNm
State AbbreviationFLStateAbbreviationCd
ZIP331347211ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMark DelvauxPersonNm
Person TitleCFOPersonTitleTxt
Phone3056489540PhoneNum
Signature2025-05-15SignatureDt
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (1)IRSResponsiblePrtyInfoCurrInd
Tax2023TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerScott SantarellaPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BlvdAddressLine1Txt
CityMiamiCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$32,410,581GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addressalpha1.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1995FormationYr
Legal Domicile StateFLLegalDomicileStateCd
Activity Or MissionThe Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of Alphas worldwide.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee19TotalEmployeeCnt
Total Volunteers300TotalVolunteersCnt
Total Gross UBI$373,667TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$95,763NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$8,383,940PYContributionsGrantsAmt
CY Contributions Grants$8,897,971CYContributionsGrantsAmt
PY Program Service Revenue$368,000PYProgramServiceRevenueAmt
CY Program Service Revenue$373,667CYProgramServiceRevenueAmt
PY Investment Income$1,628,280PYInvestmentIncomeAmt
CY Investment Income$2,181,265CYInvestmentIncomeAmt
PY Other Revenue$73,079PYOtherRevenueAmt
CY Other Revenue$161,477CYOtherRevenueAmt
PY Total Revenue$10,453,299PYTotalRevenueAmt
CY Total Revenue$11,614,380CYTotalRevenueAmt
PY Grants And Similar Paid$2,483,684PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$3,230,157CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,950,610PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$2,245,923CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$991,401CYTotalFundraisingExpenseAmt
PY Other Expenses$4,113,649PYOtherExpensesAmt
CY Other Expenses$4,616,956CYOtherExpensesAmt
PY Total Expenses$8,547,943PYTotalExpensesAmt
CY Total Expenses$10,093,036CYTotalExpensesAmt
PY Revenues Less Expenses$1,905,356PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,521,344CYRevenuesLessExpensesAmt
Total Assets BOY$37,662,654TotalAssetsBOYAmt
Total Assets EOY$44,464,081TotalAssetsEOYAmt
Total Liabilities BOY$2,157,188TotalLiabilitiesBOYAmt
Total Liabilities EOY$2,581,193TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$35,505,466NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$41,882,888NetAssetsOrFundBalancesEOYAmt
MissionThe Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$4,056,006ExpenseAmt
Grant$2,179,284GrantAmt
Revenue$973,984RevenueAmt
DescAlpha-1 Research Network: The Alpha-1 research infrastructure provides support for a network of Alpha-1 investigators worldwide. It is one of the Foundation's most valuable assets and includes the DNA & Tissue Bank, Therapeutic Development Network, and Clinical Resource Centers. The Foundation's mission is served by scientific meetings that bring together stakeholders with the intent to promote scientific discovery, identify new approaches to the detection of Alpha-1, and educate physicians and patients on Alpha-1. The Alpha-1 Grants and Awards program is the heart of the Foundation's research activities and has established itself as the worldwide leader of Alpha-1 research support.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$618,350ExpenseAmt
Grant$258,600GrantAmt
Revenue$255,000RevenueAmt
DescAlpha-1 Registry and ACT Study: The Research Registry is a confidential database of diagnosed Alphas and carriers willing and able to participate in research studies and clinical trials for new therapies. It is comprised of both patient-supported and clinical data. The Registry represents the largest cohort of Alphas in the world. The goal of the Alpha-1 Coded Testing (ACT) Study is to provide a way for those at risk, including family members of diagnosed Alphas, to learn their genotype. The study includes a research questionnaire, a finger-stick testing kit, and is free and confidential.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$877,911ExpenseAmt
Grant$10,400GrantAmt
Revenue$1,048,462RevenueAmt
DescAlpha-1 National Conference: The 33rd annual Alpha-1 National Educational Conference was a hybrid conference held on June 7-9, 2024. As the largest annual gathering of the Alpha-1 community, the national Conference provides important opportunities for networking, education, and advocacy. The speakers included some of the leading clinicians and researchers in the Alpha-1 field to bring incredible subject matter expertise and education to the community. the program covered a wide range of medical education and supportive topics to inform, empower and motivate patients to take charge of their health. The last six years of presentations are available on the Foundation's website at www.alpha1.org.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (3 entries)

ExpenseExpenseAmtGrantGrantAmtRevenueRevenueAmtDescDesc
$481,462$0$302,500Alpha-1 Education Days provide access to current medical information and resources to hundreds of Alphas, their families, and caregivers.
$301,529$25,000$260,000The Foundation's Public Policy program monitors relevant legislation and regulatory issues and publicizes the Foundation's positions on such issues.
$2,133,708$0$1,184,704Other Alpha-1 services include patient education (materials, website, etc), a Patient Support Network, and a targeted detection program.
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$2,916,699TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$25,000TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue$1,747,204TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$8,468,966TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised FundYes (1)DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtYes (1)ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl EntYes (1)RelatedOrganizationCtrlEntInd
Transaction With Control Ent0TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document27IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee19EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (1)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (1)Form990TFiledInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMark DelvauxPersonNm
Phone3055679888PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BlvdAddressLine1Txt
CityCoral GablesCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd
FieldValueIRS element (for citing)
Info In Schedule O Part VIIYes (X)InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (18 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeIndIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
Scott Santarella
President and CEO400Yes (X)$330,774$0$25,323
Randel H Plant
Sen Dir Research Progs40$143,033$0$12,642Yes (X)
Angela T McBride
Sen Dir Corp Relations400$127,368$0$18,601Yes (X)
Linda Rodriguez
Development Director400$122,295$0$6,436Yes (X)
Jeanne Kushner
Sr Dir of Communications400$100,532$0$27,513Yes (X)
Darrell Kotton
Director40$0$0$0Yes (X)
Virginia Clark
Physician Director80Yes (X)$0$0$0Yes (X)
Fred C Walsh
Vice Chair80Yes (X)$0$0$0Yes (X)
Jennifer Jopp
Director40$0$0$0Yes (X)
Jon Hagstrom
Chair80Yes (X)$0$0$0Yes (X)
Kenneth Irvine
Treasurer80Yes (X)$0$0$0Yes (X)
Peggy Iverson
Secretary80Yes (X)$0$0$0Yes (X)
Ann Knebel
Director40$0$0$0Yes (X)
Noel G McElvaney
Director40$0$0$0Yes (X)
Faron Schonfeld
Director40$0$0$0Yes (X)
Mark Brantly
Director40$0$0$0Yes (X)
Catherine Vernon
Director40$0$0$0Yes (X)
Mark B Delvaux
CFO10Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$824,002TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$90,515TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K5IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other SrcsYes (1)CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
AlphaNet Inc
3300 Ponce de Leon BlvdCoral GablesFL33134Management services$282,761
Moses & Singer LLP
405 Lexington AveNew YorkNY10174Legal Services$262,489
Sight & Sound Productions LLC
3636 Beachwood CtJacksonvilleFL32224Video Production$203,385
Speaking of Science
6916 Prince Georges AveTakoma ParkMD20912Website design$175,085
Original Impressions LLC
PO Box 31792TampaFL33631Printing and publishing$120,540
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K7CntrctRcvdGreaterThan100KCnt
Federated Campaigns$0FederatedCampaignsAmt
Membership Dues$0MembershipDuesAmt
Fundraising$0FundraisingAmt
Related Organizations$0RelatedOrganizationsAmt
Government Grants$0GovernmentGrantsAmt
All Other Contributions$8,897,971AllOtherContributionsAmt
Noncash Contributions$25,310NoncashContributionsAmt
Total Contributions$8,897,971TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescPublication IncomeDesc
Business513120BusinessCd
Total Revenue Column$373,667TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$373,667UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Total Oth Program Service Rev TotalOthProgramServiceRevGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$373,667TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$939,887TotalRevenueColumnAmt
Related Or Exempt Func Income$939,887RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Gross Rents GrossRentsGrp

FieldValueIRS element (for citing)
Real$6,580RealAmt
Personal$0PersonalAmt

Less Rental Expenses LessRentalExpensesGrp

FieldValueIRS element (for citing)
Real$0RealAmt
Personal$0PersonalAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$6,580RealAmt
Personal$0PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$6,580TotalRevenueColumnAmt
Related Or Exempt Func Income$6,580RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$21,858,360SecuritiesAmt
Other$0OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$20,616,982SecuritiesAmt
Other$0OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$1,241,378SecuritiesAmt
Other$0OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,241,378TotalRevenueColumnAmt
Related Or Exempt Func Income$1,241,378RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$334,116FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$0ContriRptFundraisingEventAmt
Fundraising Direct Expenses$179,219FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$154,897TotalRevenueColumnAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$154,897ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$0GamingGrossIncomeAmt
Gaming Direct Expenses$0GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$0GrossSalesOfInventoryAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$11,614,380TotalRevenueColumnAmt
Related Or Exempt Func Income$2,187,845RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$373,667UnrelatedBusinessRevenueAmt
Exclusion$154,897ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$2,226,492TotalAmt
Program Services$2,226,492ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$50,000TotalAmt
Program Services$50,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$953,665TotalAmt
Program Services$953,665ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,825,860TotalAmt
Program Services$1,444,939ProgramServicesAmt
Management And General$35,982ManagementAndGeneralAmt
Fundraising$344,939FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$46,619TotalAmt
Program Services$35,401ProgramServicesAmt
Management And General$1,416ManagementAndGeneralAmt
Fundraising$9,802FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$245,870TotalAmt
Program Services$214,324ProgramServicesAmt
Management And General$2,637ManagementAndGeneralAmt
Fundraising$28,909FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$127,574TotalAmt
Program Services$100,840ProgramServicesAmt
Management And General$2,539ManagementAndGeneralAmt
Fundraising$24,195FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$162,500TotalAmt
Program Services$0ProgramServicesAmt
Management And General$162,500ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$408,771TotalAmt
Program Services$381,611ProgramServicesAmt
Management And General$24,268ManagementAndGeneralAmt
Fundraising$2,892FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$89,845TotalAmt
Program Services$0ProgramServicesAmt
Management And General$89,845ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$61,500TotalAmt
Program Services$61,500ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt
Fundraising$0FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$860,265TotalAmt
Program Services$780,321ProgramServicesAmt
Management And General$63,766ManagementAndGeneralAmt
Fundraising$16,178FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$468,854TotalAmt
Program Services$305,704ProgramServicesAmt
Management And General$39,820ManagementAndGeneralAmt
Fundraising$123,330FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$466,162TotalAmt
Program Services$458,838ProgramServicesAmt
Management And General$981ManagementAndGeneralAmt
Fundraising$6,343FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$49,779TotalAmt
Program Services$0ProgramServicesAmt
Management And General$6,900ManagementAndGeneralAmt
Fundraising$42,879FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$332,747TotalAmt
Program Services$256,875ProgramServicesAmt
Management And General$49,682ManagementAndGeneralAmt
Fundraising$26,190FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,453,803TotalAmt
Program Services$1,090,509ProgramServicesAmt
Management And General$96,803ManagementAndGeneralAmt
Fundraising$266,491FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$5,281TotalAmt
Program Services$4,133ProgramServicesAmt
Management And General$159ManagementAndGeneralAmt
Fundraising$989FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$32,959TotalAmt
Program Services$23,710ProgramServicesAmt
Management And General$3,576ManagementAndGeneralAmt
Fundraising$5,673FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Telephone$25,085$18,735$520$5,830
Repairs and Maintenance$25,524$19,975$769$4,780
Dues and subscriptions$102,253$35,155$26,523$40,575
Licenses, Fees and Taxes$63,656$0$23,743$39,913

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$7,972TotalAmt
Program Services$6,239ProgramServicesAmt
Management And General$240ManagementAndGeneralAmt
Fundraising$1,493FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$10,093,036TotalAmt
Program Services$8,468,966ProgramServicesAmt
Management And General$632,669ManagementAndGeneralAmt
Fundraising$991,401FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,200,391BOYAmt
EOY$992,958EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$508,112BOYAmt
EOY$1,052,795EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$949,746BOYAmt
EOY$921,723EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$86,986BOYAmt
EOY$195,920EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$424,073LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$413,368LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$9,752BOYAmt
EOY$10,705EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$34,601,529BOYAmt
EOY$39,774,063EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$281,138BOYAmt
EOY$1,490,917EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$25,000BOYAmt
EOY$25,000EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$37,662,654BOYAmt
EOY$44,464,081EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$705,296BOYAmt
EOY$1,000,326EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$890,392BOYAmt
EOY$941,034EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$561,500BOYAmt
EOY$639,833EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$2,157,188BOYAmt
EOY$2,581,193EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$33,095,472BOYAmt
EOY$39,896,406EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,409,994BOYAmt
EOY$1,986,482EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$35,505,466BOYAmt
EOY$41,882,888EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$37,662,654BOYAmt
EOY$44,464,081EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$1,521,344ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$3,794,857NetUnrlzdGainsLossesInvstAmt
Donated Services And Use Fclts$0DonatedServicesAndUseFcltsAmt
Investment Expense-$148,558InvestmentExpenseAmt
Prior Period Adjustments$0PriorPeriodAdjustmentsAmt
Other Changes In Net Assets$1,209,779OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Consolidated Basis Fincl StmtYes (X)ConsolidatedBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$7,936,556CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,939,893CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,050,130CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$8,383,940CurrentTaxYearMinus1YearAmt
Current Tax Year$8,872,661CurrentTaxYearAmt
Total$42,183,180TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$7,936,556CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,939,893CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,050,130CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$8,383,940CurrentTaxYearMinus1YearAmt
Current Tax Year$8,872,661CurrentTaxYearAmt
Total$42,183,180TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$32,044,790SubstantialContributorsTotAmt
Public Support Total170$10,138,390PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$512,763CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$469,516CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$474,423CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$690,915CurrentTaxYearMinus1YearAmt
Current Tax Year$939,909CurrentTaxYearAmt
Total$3,087,526TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$73,156CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$62,038CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$137,860CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$86,623CurrentTaxYearMinus1YearAmt
Current Tax Year$95,763CurrentTaxYearAmt
Total$455,440TotalAmt
FieldValueIRS element (for citing)
Total Support$45,726,146TotalSupportAmt
Public Support CY1700.22172PublicSupportCY170Pct
Public Support PY1700.2766PublicSupportPY170Pct
Ten Pct Facts Crcmstncs Test CYYes (X)TenPctFactsCrcmstncsTestCYInd
Facts And Circumstances TestThe public support percentage for fiscal 2023 would be above 33 1/3% if the support received from AlphaNet, Inc., a Section 501(c)(3) type 2 charity, was excluded from this computation. The support received from AlphaNet has provided funding to support detection of Alpha-1 affected persons, research for improved therapies, and a cure for Alpha-1.FactsAndCircumstancesTestTxt

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule A, Part II, Line 17aFormAndLineReferenceDesc
ExplanationThe Alpha-1 Foundation maintains an ongoing solicitation program from the general public. During the fiscal year ended June 30, 2024, the Foundation received contributions from 3408 donors from across the United States. As shown on Schedule B, 48 donors contributed amounts of $5,000 or higher. Fund raising activities include a general campaign, special events, and other fundraising appeals.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$6,500FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$55,000FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$61,500FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$10,225,508FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$10,287,008FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$664,350FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$166,088FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$462,805CurrentYearMinus3Amt
Current Year Minus2$468,710CurrentYearMinus2Amt
Current Year Minus1$504,166CurrentYearMinus1Amt
Current Year$664,350CurrentYearAmt
Total$2,100,031TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$3,150,047LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$10,000CurrentYearMinus3Amt
Current Year Minus2$10,000CurrentYearMinus2Amt
Current Year Minus1$10,000CurrentYearMinus1Amt
Current Year$61,500CurrentYearAmt
Total$91,500TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$115,701CurrentYearMinus3Amt
Current Year Minus2$117,178CurrentYearMinus2Amt
Current Year Minus1$126,042CurrentYearMinus1Amt
Current Year$166,088CurrentYearAmt
Total$525,009TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$787,514GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$10,000CurrentYearMinus3Amt
Current Year Minus2$10,000CurrentYearMinus2Amt
Current Year Minus1$10,000CurrentYearMinus1Amt
Current Year$6,500CurrentYearAmt
Total$36,500TotalAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Donor Advised Funds Held1DonorAdvisedFundsHeldCnt
Funds And Other Accounts Held0FundsAndOtherAccountsHeldCnt
Donor Advised Funds Contri$0DonorAdvisedFundsContriAmt
Funds And Other Accounts Contri$0FundsAndOtherAccountsContriAmt
Donor Advised Funds Grants$0DonorAdvisedFundsGrantsAmt
Funds And Other Accounts Grants$0FundsAndOtherAccountsGrantsAmt
Donor Advised Funds Vl EOY$28,369DonorAdvisedFundsVlEOYAmt
Funds And Other Accounts Vl EOY$0FundsAndOtherAccountsVlEOYAmt
Disclosed Org Leg CtrlYes (1)DisclosedOrgLegCtrlInd
Disclosed For Charitable PrpsYes (1)DisclosedForCharitablePrpsInd

Land LandGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$0InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Book Value$0BookValueAmt

Buildings BuildingsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$0InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$0DepreciationAmt
Book Value$0BookValueAmt

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$200,825InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$200,825DepreciationAmt
Book Value$0BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$223,248InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$212,543DepreciationAmt
Book Value$10,705BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$0InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$0DepreciationAmt
Book Value$0BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$10,705TotalBookValueLandBuildingsAmt
Total Liability$0TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$15,439,898TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$3,794,857NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$0DonatedServicesAndUseFcltsAmt
Recoveries Prior Year Grants$0RecoveriesPriorYearGrantsAmt
Other Revenue$0OtherRevenueAmt
Revenue Not Reported$3,794,857RevenueNotReportedAmt
Revenue Subtotal$11,645,041RevenueSubtotalAmt
Investment Expenses Not Incld$148,558InvestmentExpensesNotIncldAmt
Other Revenues Not Included-$179,219OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt-$30,661RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$11,614,380TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$10,272,255TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$0DonatedServicesUseFcltsAmt
Prior Year Adjustments$0PriorYearAdjustmentsAmt
Losses Reported$0LossesReportedAmt
Other Expenses Included$179,219OtherExpensesIncludedAmt
Expenses Not Reported$179,219ExpensesNotReportedAmt
Expenses Subtotal$10,093,036ExpensesSubtotalAmt
Investment Expenses Not Incld2$0InvestmentExpensesNotIncld2Amt
Other Expenses Not Included$0OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$10,093,036TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Schedule D, Part X, Line 2The Foundation has adopted the provisions of ASC No. 740 "Income Taxes." Under ASC 740, the Foundation must recognize the tax liability (or benefit) associated with tax positions taken for tax return purposes when it is more-likely-than-not that the position will be sustained. The adoption of ASC 740 had no impact on the Foundation's consolidated financial statements. management of the Foundation does not believe there are any material uncertain tax positions and accordingly has not recorded any liability for unrecognized tax benefits.
Schedule D, Part XI, Line 4bThis amount reflects special event expenses that are reported at gross in the audited financial statements, rather than netted against special event revenues as is the case on the Form 990.
Schedule D, Part XII, Line 2dThis amount reflects special event expenses that are reported at gross in the audited financial statements, rather than netted against special event revenues as is the case on the Form 990.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp

FieldValueIRS element (for citing)
RegionEurope (including Iceland and Greenland)RegionTxt
Offices0OfficesCnt
Employee1EmployeeCnt
Type Of Activities ConductedProgram ServicesTypeOfActivitiesConductedTxt
Specific Services ProvidedEuropean public policySpecificServicesProvidedTxt
Region Total Expenditures$35,093RegionTotalExpendituresAmt
FieldValueIRS element (for citing)
Total Office0TotalOfficeCnt
Total Employee1TotalEmployeeCnt
Total Spent$35,093TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (9 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
Europe (including Iceland and Greenland)Research$18,614Wire
Europe (including Iceland and Greenland)Research$74,625Wire
Europe (including Iceland and Greenland)Research$49,723wire
Europe (including Iceland and Greenland)Research$49,849wire
Europe (including Iceland and Greenland)Research$24,875wire
Europe (including Iceland and Greenland)Research$204,973wire
Europe (including Iceland and Greenland)Research$224,094wire
Europe (including Iceland and Greenland)Research$288,458wire
East Asia and the PacificResearch$18,453wire
FieldValueIRS element (for citing)
Total501c3 Org9Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Schedule F, Part I, Line 2Please see Schedule I, Part IV. The grant-making processes are the same as those for organizations in the United States.
Schedule F, Part I, Line 3The organization uses the accrual method to account for its expenditures.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Building Friends for a CureEvent1Nm
Gross Receipts Event1$535,152GrossReceiptsEvent1Amt
Charitable Contri Event1$201,036CharitableContriEvent1Amt
Gross Revenue Event1$334,116GrossRevenueEvent1Amt
Cash Prizes Event1$0CashPrizesEvent1Amt
Non Cash Prizes Event1$0NonCashPrizesEvent1Amt
Rent Facility Costs Event1$40,475RentFacilityCostsEvent1Amt
Food And Beverage Event1$3,740FoodAndBeverageEvent1Amt
Entertainment Event1$0EntertainmentEvent1Amt
Other Direct Expenses Event1$135,004OtherDirectExpensesEvent1Amt
Food And Beverage Other Events$0FoodAndBeverageOtherEventsAmt
Entertainment Other Events$0EntertainmentOtherEventsAmt
Gross Receipts Total$535,152GrossReceiptsTotalAmt
Charitable Contributions Tot$201,036CharitableContributionsTotAmt
Gross Revenue Total Events$334,116GrossRevenueTotalEventsAmt
Cash Prizes Total Events$0CashPrizesTotalEventsAmt
Non Cash Prizes Total Events$0NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$40,475RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$3,740FoodAndBeverageTotalEventsAmt
Entertainment Total Events$0EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$135,004OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$179,219DirectExpenseSummaryEventsAmt
Net Income Summary$154,897NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (14 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2TxtBusiness Name Line2RecipientBusinessName/BusinessNameLine2Txt
University of Florida
1600 SW Archer RoadGainesvilleFL32610596002052501 (c) (3)$523,817Research
Brigham & Women's Hospital
75 Francis StBostonMA02115042312909501 (c) (3)$397,375
Boston Medical Center
600 Harrison AveBostonMA02118043314093501 (c) (3)$99,500Gambro 2
Boston University
25 Buick StreetBostonMA02215042103547501 (c) (3)$185,6182nd Floor
University of Alabama
1720 2nd Ave SouthBirminghamAL35294636001138501 (c) (3)$124,500St AB 1170
Columbia University
630 West 168th StNew YorkNY10027135598093501 (c) (3)$234,375Ste 39
National Jewish Health
1400 Jackson StDenverCO80206742044647501 (c) (3)$40,000
University of Colorado
1600 BroadwayDenverCO80202846000555501 (c) (3)$70,000
University of Chicago
5801 South Ellis AvenueChicagoIL60637362177139501 (c) (3)$62,148
Clemson University
391 College AveClemsonSC29634576000254501 (c) (3)$99,452Ste 302
Baylor College of Medicine
PO Box 201361HoustonTX77216741613878501 (c) (3)$124,350
NORD
Dept 5430WoburnMA01888133223946501 (c) (3)$30,000PO Box 4110
University of Kansas Medical Center
3901 Rainbow BlvdKansas CityKS66160480680117501 (c) (3)$16,004MS 1039Research Institute
Regents of the University of California Los Angeles
10920 Wilshire BlvdLos AngelesCA90024956006143501 (c) (3)$233,749ResearchSuite 600
FieldValueIRS element (for citing)
Total501c3 Org14Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmtValuation Method UsedValuationMethodUsedDesc
Educational Scholarships-The Educational Scholarship program is designed to assist those in need to further their education and the opportunities available to them to support their families. This program is available to Alphas and their immediate family members. Scholarship recipients are selected by an Alpha-1 Foundation Scholarship Review Committee. Must be an accredited college or trade school.10$100,000FMV
National Conference Scholarships-These scholarships are provided to Alphas nationwide to attend the National Conference. Those with financial need and first-time attendees are prioritized. The scholarship covers $500 airfare, hotel and parking for three nights, conference registration.100$50,000FMV

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule I, Part I, Line 2FormAndLineReferenceDesc
ExplanationThe Foundation has a Grants Advisory Committee consisting of 25 members and 2 staff members assigned to the committee. The membership of the committee consists of medical doctors who are Alpha-1 experts and researchers. The committee reviews grant applications for quality and applicability of research funds. Prior to acceptance, the prospective grantee is checked against the US Treasury's OFAC list. On a quarterly basis, all grants are peer-reviewed for progress before subsequent payments are made. Final research reports are submitted and peer-reviewed before final grant payments are made.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Scott Santarella
President and CEO$330,774$0$0$0$0$0$0$0$25,323$0$356,097$0$0$0
Mark B Delvaux
CFO$0$0$0$0$0$0$0$0$0$0$0$0$0$0

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule J, Part IIFormAndLineReferenceDesc
ExplanationAlphaNet, Inc., another 501 (c) (3) organization, provided the fiscal 2024 services of the CFO under an administrative services agreement in the amount of $100,000. the amount is based on a reasonable estimate of the services provided to the Alpha-1 Foundation.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution1ContributionCnt
Noncash Contributions Rpt F990$25,310NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescOffice rentDesc
Contribution1ContributionCnt
Noncash Contributions Rpt F990$222,500NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Form8283 Received0Form8283ReceivedCnt
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11bThe Form 990 is provided to members of management and the Board of Directors for review prior to filing.
Form 990, Part VI, Section B, Line 12cWritten conflict of interest statements are obtained from all officers, board members, and committee members on an annual basis.
Form 990, Part VI, Section B, Line 15Compensation levels are developed using salary surveys and a review of 990s for comparable not-for-profit organizations.
Form 990, Part VI, Section C, Line 17The Alpha-1 Foundation is registered to accept charitable donations in all states that require it.
Form 990, Part VI, Section C, Line 18Form 990 is available on www.alpha1.org, and also upon request.
Form 990, Part VI, Section C, Line 19Audited financial statements are available on www.alpha1.org. Governing documents and the conflict of interest policy are available upon request.
Form 990, Part VII, Section A, Line 1aThe Chief Financial Officer is an employee of AlphaNet, Inc., an unrelated not-for-profit organization which provides its services through an administrative services agreement.
Form 990, Part VII, Section A, Line 5AlphaNet, Inc., another 501 (c) (3) organization, provides the services of the Chief Financial Officer under an administrative services agreement in the amount of $100,000. the amount is based on the reasonable estimate of the value of the services provided to the Alpha-1 Foundation.
Form 990, Part XI, Line 9This amount refers to an audit adjustment made to reflect the value of Alpha-1 Foundation's wholly owned subsidiary, The Alpha-1 Project.

Schedule R IRS990ScheduleR

Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp

Related Organization Name RelatedOrganizationName

FieldValueIRS element (for citing)
Business Name Line1The Alpha-1 ProjectBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BlvdAddressLine1Txt
CityCoral GablesCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd
FieldValueIRS element (for citing)
EIN272040293EIN
Primary ActivitiesDrug therapiesPrimaryActivitiesTxt
Legal Domicile StateFLLegalDomicileStateCd

Direct Controlling Entity Name DirectControllingEntityName

FieldValueIRS element (for citing)
Business Name Line1Alpha-1 FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Entity TypeCEntityTypeTxt
Ownership1OwnershipPct
Controlled OrganizationYes (1)ControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org0GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org0GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees Sharing0PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

Reasonable Cause Explanation ReasonableCauseExplanation

FieldValueIRS element (for citing)
ExplanationExtension was timely filedExplanationTxt