MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization: MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period: 2022-01-01 to 2022-12-31
Filed: 2023-05-25
IRS object ID: 202341459349300649
Schema version: 2022v5.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2023-05-25T14:43:24-05:00	ReturnTs
Tax Period End	2022-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	221478099	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	COHNREZNICK LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	14 SYLVAN WAY	AddressLine1Txt
City	PARSIPPANY	CityNm
State Abbreviation	NJ	StateAbbreviationCd
ZIP	070543801	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2022-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131665552	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	MUSCULAR DYSTROPHY ASSOCIATION	BusinessNameLine1Txt
Business Name Line2	INC	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	MUSC	BusinessNameControlTxt
Phone	3122605900	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK ST 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	MICHAEL J KENNEDY	PersonNm
Person Title	CFO	PersonTitleTxt
Phone	3122605900	PhoneNum
Signature	2023-05-24	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	MICHAEL	PersonFirstNm
Person Last	KENNEDY	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	0	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	LORI ROTHE YOKOBOSKY CPA	PreparerPersonNm
PTIN	P01273422	PTIN
Phone	9732283500	PhoneNum
Preparation	2023-05-22	PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	2	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2022	TaxYr
Build TS	2023-04-26 12:10:37Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	DR DONALD S WOOD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK ST 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$68,508,927	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.MDA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1950	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	SEE SCHEDULE O	ActivityOrMissionDesc
Voting Members Governing Body	18	VotingMembersGoverningBodyCnt
Voting Members Independent	18	VotingMembersIndependentCnt
Total Employee	231	TotalEmployeeCnt
Total Volunteers	961	TotalVolunteersCnt
Total Gross UBI	$899,901	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$10,004	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$60,181,680	PYContributionsGrantsAmt
CY Contributions Grants	$59,144,929	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$3,151,404	PYInvestmentIncomeAmt
CY Investment Income	$3,244,992	CYInvestmentIncomeAmt
PY Other Revenue	$60,906	PYOtherRevenueAmt
CY Other Revenue	$837,916	CYOtherRevenueAmt
PY Total Revenue	$63,393,990	PYTotalRevenueAmt
CY Total Revenue	$63,227,837	CYTotalRevenueAmt
PY Grants And Similar Paid	$13,666,745	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$13,032,682	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$20,116,776	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$24,019,882	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$16,582,085	CYTotalFundraisingExpenseAmt
PY Other Expenses	$19,636,115	PYOtherExpensesAmt
CY Other Expenses	$21,917,743	CYOtherExpensesAmt
PY Total Expenses	$53,419,636	PYTotalExpensesAmt
CY Total Expenses	$58,970,307	CYTotalExpensesAmt
PY Revenues Less Expenses	$9,974,354	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$4,257,530	CYRevenuesLessExpensesAmt
Total Assets BOY	$75,564,994	TotalAssetsBOYAmt
Total Assets EOY	$64,403,820	TotalAssetsEOYAmt
Total Liabilities BOY	$70,843,244	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$57,595,156	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$4,721,750	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$6,808,664	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$20,061,514	ExpenseAmt
Grant	$8,150,331	GrantAmt
Desc	PLEASE SEE SCHEDULE O FOR FURTHER DISCUSSION OF PPP LOAN FORGIVENESS AS IT PERTAINS TO TOTAL CONTRIBUTION REVENUE.HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$6,422,683	ExpenseAmt
Grant	$4,869,141	GrantAmt
Desc	RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$12,223,822	ExpenseAmt
Grant	$13,210	GrantAmt
Desc	PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$38,708,019	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	Yes (1)	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	0	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	118	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	231	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	18	GoverningBodyVotingMembersCnt
Independent Voting Member	18	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ID	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WY	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	JON VAN COTT VP OF FINANCE CONTROLLER	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6467132020	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK STREET STE 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (28 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
ANJAN ARALIHALLI
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ANKUR GHIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
BENJAMIN CUMBO III
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHARLES D SCHOOR ESQ
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHRIS ROSA
VICE CHAIR	1.00	Yes (X)	$0	$0	$0	Yes (X)
DAN FRIES
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ELIZABETH MCNALLY MD PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
EUGENE WILLIAMS
DIRECTOR	1.00	Yes (X)	$0	$0	$0
GOVERNOR BRAD HENRY
CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
HON ROBERT E PIPIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JENNIFER GOTTLIEB
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN COSTANTINO
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN E HOWELL
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LILIAN WU PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LOUIS KUNKEL PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MARK SMITH
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MATT PLUMMER
DIRECTOR	1.00	Yes (X)	$0	$0	$0
NANCY KINDELAN
DIRECTOR	1.00	Yes (X)	$0	$0	$0
STEVE FARELLA
OUTGOING CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
VICTOR WRIGHT
DIRECTOR (DECD. DEC 2022)	1.00	Yes (X)	$0	$0	$0
DONALD WOOD
PRESIDENT & CEO	50.00		$522,923	$0	$26,637	Yes (X)
HENRY LANMAN
SEC. & CHIEF LEGAL OFFICER	50.00		$188,632	$0	$36,652	Yes (X)
MICHAEL KENNEDY
TREASURER & CFO	50.00		$331,534	$0	$61,822	Yes (X)
BRIAN BEIRNE
VP OF MULTI-CHANNEL MARKET	50.00		$214,346	$0	$6,820		Yes (X)
KRISTINE WELKER
CHIEF OF STAFF	50.00		$304,472	$0	$71,294		Yes (X)
ANGELA LEK
VP, RESEARCH	50.00		$186,779	$0	$10,511		Yes (X)
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	50.00		$229,015	$0	$60,219		Yes (X)
MONICA PAPPAS
VP, TECHNOLOGY	50.00		$188,558	$0	$27,594		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,166,259	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$301,549	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	55	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
GLC PART OF SPM GROUP
15 WEST HARRIS AVENUE SUITE 300	LA GRANGE	IL	60525	CONTENT MARKETING	$539,931
MWW GROUP LLC
PO BOX 67186	NEWARK	NJ	07101	PUBLIC RELATIONS AGENCY	$390,619
1ST DEGREE LLC
755 GRAND BOULEVARD SUITE B-105 25	MIRAMAR BEACH	FL	32550	MARKETING SERVICES	$133,675
SENTINEL TECHNOLOGIES INC
PO BOX 85080	CHICAGO	IL	60680	BUSINESS TECHNOLOGY SERVICES	$133,466
TONIC SOLUTIONS LLC KEITH GORDON
30 WEST 15TH STREET SUITE 4N	NEW YORK	NY	10011	MARKETING SERVICES	$112,835

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	6	CntrctRcvdGreaterThan100KCnt
Info In Schedule O Part VIII	Yes (X)	InfoInScheduleOPartVIIIInd
Federated Campaigns	$376,985	FederatedCampaignsAmt
Fundraising	$24,417,479	FundraisingAmt
Government Grants	$2,404,491	GovernmentGrantsAmt
All Other Contributions	$31,945,974	AllOtherContributionsAmt
Noncash Contributions	$104,664	NoncashContributionsAmt
Total Contributions	$59,144,929	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,103,942	TotalRevenueColumnAmt
Exclusion	$1,103,942	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$541,532	TotalRevenueColumnAmt
Exclusion	$541,532	ExclusionAmt

Gross Rents GrossRentsGrp

Field	Value	IRS element (for citing)
Real	$39,000	RealAmt

Less Rental Expenses LessRentalExpensesGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$39,000	RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$39,000	TotalRevenueColumnAmt
Exclusion	$39,000	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$5,340,126	SecuritiesAmt
Other	$400	OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$3,199,476	SecuritiesAmt
Other	$0	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$2,140,650	SecuritiesAmt
Other	$400	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,141,050	TotalRevenueColumnAmt
Exclusion	$2,141,050	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$1,439,097	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$24,417,479	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$2,081,614	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$642,517	TotalRevenueColumnAmt
Exclusion	-$642,517	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	QUEST ADVERTISING	Desc
Business	541800	BusinessCd
Total Revenue Column	$899,901	TotalRevenueColumnAmt
Unrelated Business Revenue	$899,901	UnrelatedBusinessRevenueAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$899,901	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$63,227,837	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$899,901	UnrelatedBusinessRevenueAmt
Exclusion	$3,183,007	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$11,829,711	TotalAmt
Program Services	$11,829,711	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,202,971	TotalAmt
Program Services	$1,202,971	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,168,200	TotalAmt
Program Services	$735,578	ProgramServicesAmt
Management And General	$25,442	ManagementAndGeneralAmt
Fundraising	$407,180	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$17,112,416	TotalAmt
Program Services	$10,775,145	ProgramServicesAmt
Management And General	$372,678	ManagementAndGeneralAmt
Fundraising	$5,964,593	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$366,891	TotalAmt
Program Services	$231,020	ProgramServicesAmt
Management And General	$7,990	ManagementAndGeneralAmt
Fundraising	$127,881	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$4,116,595	TotalAmt
Program Services	$2,592,089	ProgramServicesAmt
Management And General	$89,652	ManagementAndGeneralAmt
Fundraising	$1,434,854	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,255,780	TotalAmt
Program Services	$790,725	ProgramServicesAmt
Management And General	$27,349	ManagementAndGeneralAmt
Fundraising	$437,706	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$172,834	TotalAmt
Program Services	$109,744	ProgramServicesAmt
Management And General	$10,854	ManagementAndGeneralAmt
Fundraising	$52,236	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$161,116	TotalAmt
Management And General	$161,116	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$869,855	TotalAmt
Program Services	$869,855	ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$143,388	TotalAmt
Management And General	$143,388	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,802,464	TotalAmt
Program Services	$1,568,139	ProgramServicesAmt
Management And General	$73,881	ManagementAndGeneralAmt
Fundraising	$1,160,444	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$3,108,814	TotalAmt
Program Services	$1,973,988	ProgramServicesAmt
Management And General	$195,242	ManagementAndGeneralAmt
Fundraising	$939,584	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$3,824,069	TotalAmt
Program Services	$1,574,163	ProgramServicesAmt
Management And General	$80,154	ManagementAndGeneralAmt
Fundraising	$2,169,752	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,758,037	TotalAmt
Program Services	$1,445,789	ProgramServicesAmt
Management And General	$381,278	ManagementAndGeneralAmt
Fundraising	$930,970	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$654,219	TotalAmt
Program Services	$16,289	ProgramServicesAmt
Management And General	$519,108	ManagementAndGeneralAmt
Fundraising	$118,822	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$825,960	TotalAmt
Program Services	$197,831	ProgramServicesAmt
Management And General	$326,490	ManagementAndGeneralAmt
Fundraising	$301,639	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$66,575	TotalAmt
Program Services	$15,946	ProgramServicesAmt
Management And General	$26,316	ManagementAndGeneralAmt
Fundraising	$24,313	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$314,063	TotalAmt
Program Services	$14,901	ProgramServicesAmt
Management And General	$280,486	ManagementAndGeneralAmt
Fundraising	$18,676	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$1,143,350	TotalAmt
Program Services	$535,102	ProgramServicesAmt
Management And General	$608,248	ManagementAndGeneralAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$482,661	TotalAmt
Program Services	$174,876	ProgramServicesAmt
Management And General	$88,605	ManagementAndGeneralAmt
Fundraising	$219,180	FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	FundraisingFundraisingAmt
EVENT EXPENSES	$2,803,270	$963,667	$1,839,603
PRODUCTION COSTS	$740,810	$740,810
UBI TAX	$39,510	$39,510

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$1,006,748	TotalAmt
Program Services	$310,170	ProgramServicesAmt
Management And General	$261,926	ManagementAndGeneralAmt
Fundraising	$434,652	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$58,970,307	TotalAmt
Program Services	$38,708,019	ProgramServicesAmt
Management And General	$3,680,203	ManagementAndGeneralAmt
Fundraising	$16,582,085	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$3,372,977	TotalAmt
Program Services	$1,349,191	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$2,023,786	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$7,912,128	BOYAmt
EOY	$6,490,910	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$3,720,119	BOYAmt
EOY	$3,592,054	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$3,621,220	BOYAmt
EOY	$3,820,381	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$2,183,933	BOYAmt
EOY	$2,514,895	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$7,263,393	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$4,429,581	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$3,495,647	BOYAmt
EOY	$2,833,812	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$53,532,735	BOYAmt
EOY	$45,050,644	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$1,074,301	BOYAmt
EOY	$76,213	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$24,911	BOYAmt
EOY	$24,911	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$75,564,994	BOYAmt
EOY	$64,403,820	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$5,293,050	BOYAmt
EOY	$6,841,579	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$5,380,356	BOYAmt
EOY	$2,897,572	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$2,265,058	BOYAmt
EOY	$3,023,278	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$10,500,000	BOYAmt
EOY	$7,969,067	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$47,404,780	BOYAmt
EOY	$36,863,660	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$70,843,244	BOYAmt
EOY	$57,595,156	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$980,444	BOYAmt
EOY	$3,229,419	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,741,306	BOYAmt
EOY	$3,579,245	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$4,721,750	BOYAmt
EOY	$6,808,664	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$75,564,994	BOYAmt
EOY	$64,403,820	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	$4,257,530	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$11,408,573	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$9,237,957	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$103,881,886	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$99,904,218	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$51,829,703	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$60,181,680	CurrentTaxYearMinus1YearAmt
Current Tax Year	$59,144,929	CurrentTaxYearAmt
Total	$374,942,416	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$103,881,886	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$99,904,218	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$51,829,703	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$60,181,680	CurrentTaxYearMinus1YearAmt
Current Tax Year	$59,144,929	CurrentTaxYearAmt
Total	$374,942,416	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$374,942,416	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,548,677	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,552,285	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,042,846	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$968,429	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,684,474	CurrentTaxYearAmt
Total	$6,796,711	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$373,297	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$286,145	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$410,505	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$789,094	CurrentTaxYearMinus1YearAmt
Current Tax Year	$899,901	CurrentTaxYearAmt
Total	$2,758,942	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$154,174	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$7,499	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,950	CurrentTaxYearMinus2YearsAmt
Total	$164,623	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$384,662,692	TotalSupportAmt
Public Support CY170	0.97470	PublicSupportCY170Pct
Public Support PY170	0.93590	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	FormAndLineReferenceDesc
Explanation	GAMING EVENTS - 2018 AMOUNT: $ 154,174. 2019 AMOUNT: $ 7,499. 2020 AMOUNT: $ 2,950.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$869,855	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$869,855	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$38,044,405	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$38,914,260	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$411,778	CurrentYearMinus3Amt
Current Year Minus2	$628,981	CurrentYearMinus2Amt
Current Year Minus1	$486,336	CurrentYearMinus1Amt
Current Year	$869,855	CurrentYearAmt
Total	$2,396,950	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Collection Used Pub Exhibition	Yes (X)	CollectionUsedPubExhibitionInd
Collection Used Preservation	Yes (X)	CollectionUsedPreservationInd
Coll Used Loan Or Exch Prog	Yes (X)	CollUsedLoanOrExchProgInd
Solicited Assets Sale	0	SolicitedAssetsSaleInd

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$701,316	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$208,661	InvestmentEarningsOrLossesAmt
Administrative Expenses	$177,362	AdministrativeExpensesAmt
End Year Balance	$670,017	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$684,320	BeginningYearBalanceAmt
Investment Earnings Or Losses	$113,304	InvestmentEarningsOrLossesAmt
Administrative Expenses	$96,308	AdministrativeExpensesAmt
End Year Balance	$701,316	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$662,010	BeginningYearBalanceAmt
Investment Earnings Or Losses	$148,733	InvestmentEarningsOrLossesAmt
Administrative Expenses	$126,423	AdministrativeExpensesAmt
End Year Balance	$684,320	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$639,479	BeginningYearBalanceAmt
Investment Earnings Or Losses	$150,206	InvestmentEarningsOrLossesAmt
Administrative Expenses	$127,675	AdministrativeExpensesAmt
End Year Balance	$662,010	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$790,985	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$43,248	InvestmentEarningsOrLossesAmt
Administrative Expenses	$108,258	AdministrativeExpensesAmt
End Year Balance	$639,479	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	1.00000	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$487,667	OtherCostOrOtherBasisAmt
Depreciation	$64,315	DepreciationAmt
Book Value	$423,352	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$6,775,726	OtherCostOrOtherBasisAmt
Depreciation	$4,365,266	DepreciationAmt
Book Value	$2,410,460	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$2,833,812	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ACCRUED PENSION COST	$36,321,364
OPERATING LEASE LIABILITY	$542,296

Field	Value	IRS element (for citing)
Total Liability	$36,863,660	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$60,082,511	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$11,410,485	NetUnrealizedGainsInvstAmt
Other Revenue	$8,441,809	OtherRevenueAmt
Revenue Not Reported	-$2,968,676	RevenueNotReportedAmt
Revenue Subtotal	$63,051,187	RevenueSubtotalAmt
Investment Expenses Not Incld	$137,250	InvestmentExpensesNotIncldAmt
Other Revenues Not Included	$39,400	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	$176,650	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$63,227,837	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$57,995,597	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	-$41,312	OtherExpensesIncludedAmt
Expenses Not Reported	-$41,312	ExpensesNotReportedAmt
Expenses Subtotal	$58,036,909	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$137,250	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$796,148	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$933,398	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$58,970,307	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART III, LINE 1A:	THE ASSOCIATION DOES NOT CAPITALIZE DONATED WORKS OF ART OR RECOGNIZE THEM AS REVENUES OR GAINS. DONATIONS NEED NOT BE RECOGNIZED IF THEY ARE ADDED TO COLLECTIONS THAT ARE HELD FOR PUBLIC EXHIBITION, EDUCATION, OR RESEARCH IN FURTHERANCE OF PUBLIC SERVICE RATHER THAN FINANCIAL GAIN; AND ARE PROTECTED, KEPT UNENCUMBERED, CARED FOR, AND PRESERVED.
PART III, LINE 4:	THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
PART V, LINE 4:	THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES.
PART X, LINE 2:	MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2022, 2021, 2020, 2019 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 9,015,718. FUNDRAISING EXPENSES -573,909.
PART XI, LINE 4B - OTHER ADJUSTMENTS:	LOSS ON DISPOSAL OF FIXED ASSETS 400. SUBLEASE RENTAL 39,000.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	LOSS ON DISPOSAL OF FIXED ASSETS -400. SUBLEASE RENTAL -39,000. UNREALIZED GAIN -1,912.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	REFUND OF PREVIOUSLY REPORTED GRANTS 222,239. FUNDRAISING EXPENSES 573,909.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	0	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	PROGRAM SERVICES	RESEARCH GRANT	$247,632
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PROGRAM SERVICES	RESEARCH GRANT	$592,857
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	PROGRAM SERVICES	RESEARCH GRANT	$356,767
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,	PROGRAM SERVICES	RESEARCH GRANT	$5,714

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,202,970	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,202,970	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	RESEARCH	$247,632	CHECK/WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$592,857	CHECK/WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	RESEARCH	$356,767	CHECK/WIRE	$0
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,	RESEARCH	$5,714	CHECK/WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	0	Total501c3OrgCnt
Total Other Org	28	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 2:

UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.

PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SPECIAL EVENTS	Event1Nm
Gross Receipts Event1	$16,996,776	GrossReceiptsEvent1Amt
Charitable Contri Event1	$15,722,529	CharitableContriEvent1Amt
Gross Revenue Event1	$1,274,247	GrossRevenueEvent1Amt
Non Cash Prizes Event1	$116,735	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$32,632	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$37,582	FoodAndBeverageEvent1Amt
Entertainment Event1	$61,372	EntertainmentEvent1Amt
Other Direct Expenses Event1	$25,763	OtherDirectExpensesEvent1Amt
Event2	DISTINGUISHED EVENTS	Event2Nm
Gross Receipts Event2	$8,859,800	GrossReceiptsEvent2Amt
Charitable Contri Event2	$8,694,950	CharitableContriEvent2Amt
Gross Revenue Event2	$164,850	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$524,361	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$598,219	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$515,220	FoodAndBeverageEvent2Amt
Entertainment Event2	$130,613	EntertainmentEvent2Amt
Other Direct Expenses Event2	$39,117	OtherDirectExpensesEvent2Amt
Gross Receipts Total	$25,856,576	GrossReceiptsTotalAmt
Charitable Contributions Tot	$24,417,479	CharitableContributionsTotAmt
Gross Revenue Total Events	$1,439,097	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$641,096	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$630,851	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$552,802	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$191,985	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$64,880	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$2,081,614	DirectExpenseSummaryEventsAmt
Net Income Summary	-$642,517	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (206 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ADVENTHEALTH ORLANDO
601 E ROLLINS STREET BOX 37	ORLANDO	FL	32803	590724459	501(C)(3)	$45,000	$0	MEDICAL DIAGNOSIS
AMERICAN BRAIN FOUNDATION
201 CHICAGO AVE	MINNEAPOLIS	MN	55415	411717098	501(C)(3)	$162,500	$0	RESEARCH
AMERICAN LUNG ASSOCIATION
55 WEST WACKER DRIVESUITE 1150	CHICAGO	IL	60601	131632524	501(C)(3)	$8,000	$0	ADVOCACY AND RESEARCH
ANN AN ROBERT H LURIE CHILDRENS HOSPITAL OF CHICAGO
225 E CHICAGO BOX 4	CHICAGO	IL	60611	362170833	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
ARKANSAS CHILDREN'S HOSPITAL
1 CHILDRENS WAY SLOT 512-15	LITTLE ROCK	AR	72202	710236857	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ATRIUM HEALTH FOUNDATION
208 EAST BOULEVARD	CHARLOTTE	NC	28203	566060481	501(C)(3)	$189,278	$0	RESEARCH
BAYCARE MEDICAL GROUP
2985 DREW STREET MS 1027	CLEARWATER	FL	33759	593140335	501(C)(3)	$22,917	$0	MEDICAL DIAGNOSIS
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA MS BCM 206	HOUSTON	TX	77030	741613878	C CORP	$202,170	$0	MEDICAL DIAGNOSIS
BEAUMONT HEALTH SYSTEM
3535 WEST 13 MILE ROAD PEDIATRIC	ROYAL OAK	MI	48073	381459362		$27,875	$0	MOVR REGISTRY SUPPORT	ADMINISTRATION SUITE 709
BILLINGS CLINIC FOUNDATION
PO BOX 31031	BILLINGS	MT	59107	810407289	501(C)(3)	$14,075	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BOARD OF REGENTS NSHE OBO UNIVERSITY OF NEVADA RENO
1664 N VIRGINIA ST 204 ROSS HALL/MS	RENO	NV	89557	886000024		$47,368	$0	RESEARCH	325
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY SIU SCHOOL OF MEDICINE
PO BOX 19616	SPRINGFIELD	IL	62794	376005961	STATE OF IL	$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BOSTON CHILDREN'S HOSPITAL
PO BOX 414413	BOSTON	MA	02241	042774441	501(C)(3)	$84,997	$0	RESEARCH
BOSTON CHILDRENS HOSPITAL BOSTON CHILDRENS HOSPITAL
PO BOX 414413	BOSTON	MA	02115	042774441	501(C)(3)	$32,692	$0	MEDICAL DIAGNOSIS
BRIGHAM AND WOMENS HOSPITAL RESEARCH
BANK OF AMERICA NA PO BOX 3149	BOSTON	MA	02241	042312909	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
BROAD INSTITUTE INC
415 MAIN STREET	CAMBRIDGE	MA	02142	263428781	501(C)(3)	$34,710	$0	RESEARCH
CALIFORNIA PACIFIC MED CTR FOUNDATION
2015 STEINER STREET 2ND FLOOR	SAN FRANCISCO	CA	94115	940562680	501(C)(3)	$37,500	$0	MEDICAL DIAGNOSIS
CALIFORNIA PACIFIC MEDICAL CENTER
PO BOX 7999	SAN FRANCISCO	CA	94120	942728423	501(C)(3)	$15,163	$0	MEDICAL DIAGNOSIS
CALIFORNIA PACIFIC MEDICAL CENTER FOUNDATION
PO BOX 160045	SACRAMENTO	CA	95816	942728423	501(C)(3)	$12,500	$0	MEDICAL DIAGNOSIS
CARLE FOUNDATION HOSPITAL
611 WEST PARK	URBANA	IL	61801	371119538	501(C)(3)	$10,700	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CEDARS-SINAI MEDICAL CENTER OFFICE OF RESEARCH ADMINISTRATION
6500 WILSHIRE BLVD STE 1150	LOS ANGELES	CA	90048	951644600	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100	ROUND ROCK	TX	78681	742710396	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVE	TUCSON	AZ	85712	860667510	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HEALTHCARE OF ATLANTA
3585 ATLANTA AVE	HAPEVILLE	GA	30354	581710601	501(C)(3)	$58,750	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL
200 HENRY CLAY AVE	NEW ORLEANS	LA	70118	720467503	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL COLORADO MUSCLE CLINIC
13123 E 16TH AVENUE BOX 285	AURORA	CO	80045	840166760	501(C)(3)	$13,750	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL LOS ANGELES
4650 SUNSET BLVD MS 84	LOS ANGELES	CA	90027	951690977	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVE	CINCINNATI	OH	45229	310833963	501(C)(3)	$74,435	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF MICHIGAN RDM ASSOCIATES
7457 M E CAD BLVD SUITE 200	CLARKSTON	MI	48348	272845064	501(C)(3)	$22,500	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF ORANGE COUNTY
1201 W LA VETA AVE	ORANGE	CA	92868	952321786	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF PHILADELPHIA
DIVISION OF NEUROLOGY 3401 CIVIC	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS	CENTER BLVD
CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANT	PITTSBURGH	PA	15224	251865744	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	FLOOR 3
CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANE	NORFOLK	VA	23507	540506321	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDREN'S HOSPITAL OF WISCONSIN THE MEDICAL COLLEGE OF WISCONSIN INC
8701 WATERTOWN PLANK RD DEPT OF	MILWAUKEE	WI	53226	390806261	501(C)(3)	$8,925	$0	MOVR REGISTRY SUPPORT	NEUROLOGY
CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S RESEARCH INSTITUTE (CNMC)
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521654453	501(C)(3)	$84,968	$0	RESEARCH
CLINICAL NEUROLOGY PC
4221 S WESTERN SUITE 5010	OKLAHOMA	OK	73109	412141136	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS
COLUMBIA UNIVERSITY MEDICAL CENTER
COLUMBIA UNIVERSITY 630 WEST 168TH	NEW YORK	NY	10032	135598093	501(C)(3)	$153,078	$0	RESEARCH	STREET BOX 49
CONNECTICUT CHILDREN'S MEDICAL CENTER
282 WASHINGTON STREET	HARTFORD	CT	06106	060646755	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
COOK CHILDREN'S MEDICAL CENTER RESEARCH ADMINISTRATION DEPARTMENT
801 SEVENTH AVENUE	FT WORTH	TX	76104	752051646	501(C)(3)	$22,125	$0	MOVR REGISTRY SUPPORT
DELL CHILDREN'S MEDICAL CENTER
4900 MUELLER BLVD	AUSTIN	TX	78735	741109643		$15,000	$0	MEDICAL DIAGNOSIS
DENT NEUROLOGIC INSTITUTE
3980 SHERIDAN DRIVE 5TH FLOOR	AMHERST	NY	14226	161582336	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
DIGNITY HEALTH ST JOSEPHS HOSPITAL
MISC A/R CASE FILE 57431	LOS ANGELES	CA	90074	860096787	501(C)(3)	$55,000	$0	MEDICAL DIAGNOSIS
DRISCOLL CHILDRENS HOSPITAL
3533 SOUTH ALAMEDA STREET C/O	CORPUS CHRISTI	TX	78411	742577746	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS	CYNTHIA CARDIEL
DUKE UNIVERSITY MEDICAL CENTER DUKE UNIVERSITY ACCOUNTS RECEIVABLE LOCKBOX
PO BOX 602651	CHARLOTTE	NC	28260	562070036		$100,000	$0	RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501(C)(3)	$129,141	$0	RESEARCH
FEDERATION OF AMERICAN SOCIETIES FOR EXPERIMENTAL BIOLOGY
PO BOX 2288	ROCKVILLE	MD	20847	520700497	501(C)(3)	$8,000	$0	RESEARCH
GEISINGER CLINIC
100 N ACADEMY AVE	DANVILLE	PA	17822	236291113	501(C)(3)	$20,000	$0	MOVR REGISTRY SUPPORT
GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUE	STPAUL	MN	55101	363379150	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
GOOD SHEPHERD REHABILITATION HOSPITAL
850 S 5TH ST	ALLENTOWN	PA	18103	231371947	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
GORDON RESEARCH CONFERENCES
5586 POST ROAD G02	EAST GREENWICH	RI	02818	260150662		$7,500	$0	RESEARCH
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUE	NEW BRITAIN	CT	06053	060646766	501(C)(3)	$58,450	$0	MEDICAL DIAGNOSIS
HOUSTON METHODIST NEUROLOGICAL INSTITUTE
6560 FANNIN ST SUITE 802	HOUSTON	TX	77030	571201170		$6,275	$0	MOVR REGISTRY SUPPORT
HUDSON ALPHA INSTITUTE FOR BIOTECHNOLOGY
601 GENOME WAY	HUNTSVILLE	AL	35806	432059317	501(C)(3)	$49,366	$0	RESEARCH
IDAHO PHYSICAL MEDICINE AND REHABILITATION PA
PO BOX 1128	BOISE	ID	83701	820435241	501(C)(3)	$15,750	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
INDIANA UNIVERSITY - RG
509 EAST 3RD STREET	BLOOMINGTON	IN	47401	356001673	501(C)(3)	$5,833	$0	RESEARCH
INDIANA UNIVERSITY HEALTH INC
2227 RELIABLE PARKWAY	CHICAGO	IL	60686	351955872	501(C)(3)	$38,333	$0	MEDICAL DIAGNOSIS
INLAND NORTHWEST HEALTH SERVICES
PO BOX 2185	SPOKANE	WA	99210	911307555	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
IOWA STATE UNIVERSITY OF SCIENCE AND TECHNOLOGY
1350 BEARDSHEAR HALL 515 MORRILL	AMES	IA	50011	426004224		$50,000	$0	RESEARCH	ROAD
JOHN HOPKINS UNVERSITY-CG
12529 COLLECTIONS CENTER DRIVE	CHICAGO	IL	60693	520595110	501(C)(3)	$200,000	$0	MEDICAL DIAGNOSIS
JOHNS HOPKINS ALL CHILDREN'S HOSPITAL ST PETE FL
501 6TH AVENUE SOUTH	ST PETERSBURG	FL	33701	590683252	501(C)(3)	$7,500	$0	MEDICAL DIAGNOSIS
JOHNS HOPKINS UNIVERSITY
12529 COLLECTIONS CENTER DRIVE	CHICAGO	IL	60693	520595110	501(C)(3)	$8,250	$0	MOVR REGISTRY SUPPORT
JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE
733 NORTH BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)(3)	$331,243	$0	RESEARCH
KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$75,000	$0	RESEARCH
LESTER E COX MEDICAL CENTERS DBA COXHEALTH
3525 S NATIONAL AVE SUITE 204	SPRINGFIELD	MO	65807	436810485	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
LOCANABIO INC
3545 JOHN HOPKINS COURT SUITE 200	SAN DIEGO	CA	92121	812499644		$10,000	$0	RESEARCH
LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202	LOMA LINDA	CA	92350	951816009	501(C)(3)	$72,500	$0	MEDICAL DIAGNOSIS
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER-NEW ORLEANS
1542 TULANE AVE ROOM 763A	NEW ORLEANS	LA	70112	726087770	501(C)(3)	$22,625	$0	MEDICAL DIAGNOSIS
LSUHSC-SHREVEPORT NEUROLOGY
1501 KINGS HWY ROOM 3-408C	SHREVEPORT	LA	71103	720702002	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
LUDWIG INSTITUTE FOR CANCER RESEARCH LTD
8950 VILLA LA JOLLA DRIVESTE C135	LA JOLLA	CA	92037	237121131		$40,513	$0	RESEARCH
MAINE MEDICAL CENTER
92 CAMPUS DRIVE	SCARBOROUGH	ME	04074	010238552	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL
165 CAMBRIDGE STREET SUITE 600	BOSTON	MA	02114	041564655	501(C)(3)	$227,716	$0	MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NAPO BOX 414876	BOSTON	MA	02241	042697983	501(C)(3)	$170,000	$0	MEDICAL DIAGNOSIS	BOSTON
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVENUE	CAMBRIDGE	MA	02139	042103594	501(C)(3)	$8,135	$0	RESEARCH
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$47,692	$0	RESEARCH
MAYO CLINIC MAYO CLINIC RESEARCH
PO BOX 860334	MINNEAPOLIS	MN	55486	416011702	501(C)(3)	$25,000	$0	RESEARCH
MCKINNON MEDICAL GROUP PLLC
7575 WEST WASHINGTON AVE127-160	LAS VEGAS	NV	89128	453720025	501(C)(3)	$11,425	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MCV ASSOCIATED PHYSICIANS
VCU HEALTHPO BOX 786546	PHILADELPHIA	PA	19178	541581185	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
MDA CLINIC AT DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222140	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
MDA CLINIC AT RAPIDES SPECIALTY CLINIC DIVISION OF RRMC
BOX 30101 211 FOURTH STREET	ALEXANDRIA	LA	71301	611267229		$15,000	$0	MEDICAL DIAGNOSIS
MEDICAL COLLEGE OF WISCONSIN CONTROLLER'S OFFICE
8701 WATERTOWN PLANK RD	MILWAUKEE	WI	53226	390806261	501(C)(3)	$31,750	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MEDICAL UNIVERSITY OF SOUTH CAROLINA RESEARCH AND SPONSORED PROGRAMS
19 HAGOOD AVENUE SUITE 606 MSC 808	CHARLESTON	SC	29425	576000722	501(C)(3)	$20,400	$0	MOVR REGISTRY SUPPORT
MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL
3800 RESERVOIR RD NW 7TH FLOOR PHC	WASHINGTON	DC	20007	522218584	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
METHODIST LE BONHEUR COMMUNITY OUTREACH
600 JEFFERSON AVE	MEMPHIS	TN	38105	621251288	501(C)(3)	$59,425	$0	MEDICAL DIAGNOSIS
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2	EAST LANSING	MI	48824	386005984	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
MILLER SCHOOL OF MEDICINE OF THE UNIVERSITY OF MIAMI
OFFICE OF RESEARCH ADMINISTRATION	ATLANTA	GA	30384	590624458	501(C)(3)	$456,085	$0	RESEARCH	PO BOX 405803
MITOCHONDRIA IN MOTION INC
4440 LINDELL BOULEVARD SUITE 1202	STLOUIS	MO	63108	832455511	S CORP	$10,086	$0	RESEARCH
MONTEFIORE MEDICAL CENTER
555 S BROADWAY BLDG A 1ST FL RM	TARRYTOWN	NY	10591	131740114	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS	A1-R61
MYOGENE BIO LLC
907 WESTWOOD BOULEVARD 376	LOS ANGELES	CA	90024	831507489		$199,940	$0	RESEARCH
MYOSANA THERAPEUTICS INC
8502 30TH AVENUE NW	SEATTLE	WA	98117	831430775		$650,000	$0	RESEARCH
NATIONWIDE CHILDREN'S HOSPITAL FOUNDATION
700 CHILDRENS DRIVE	COLUMBUS	OH	43205	311036370		$10,000	$0	RESEARCH
NEMOURS CHILDREN'S HOSPITAL
10140 CENTURION PARKWAY N	JACKSONVILLE	FL	32256	590634433	501(C)(3)	$36,525	$0	MOVR REGISTRY SUPPORT
NEMOURS FOUNDATION
10140 CENTURION PARKWAY N 3 EAST	JACKSONVILLE	FL	32256	590634433	501(C)(3)	$65,000	$0	MEDICAL DIAGNOSIS
NEUROLOGY LLPC
1919 S WHEELING AVENUE SUITE 707	TULSA	OK	74104	731502318		$25,000	$0	MEDICAL DIAGNOSIS
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026	BOSTON	MA	02241	135562308	STATE OF NY	$60,000	$0	MEDICAL DIAGNOSIS
NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
259 E ERIE ST SUITE 1900	CHICAGO	IL	60611	363097297	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
OLIVE VIEW-UCLA EDUCATION AN RESEARCH INSTITUTE
14445 OLIVE VIEW DRIVE RESEARCH	SYLMAR	CA	91342	952249539	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	ADMINISTRATION OFFICE
OREGON HEALTH AND SCIENCE UNIVERSITY
0690 SW BANCROFT ST L106OPAM	PORTLAND	OR	97239	931176109	STATE OF OR	$25,000	$0	MEDICAL DIAGNOSIS
OSF MULTI-SPECIALTY GROUP
800 NE GLEN OAK AVE	PEORIA	IL	61603	383852646	501(C)(3)	$8,333	$0	MEDICAL DIAGNOSIS
OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL
INSTITUTE 800 NE GLEN OAK AVE	PEORIA	IL	61603	383852646	501(C)(3)	$6,667	$0	MEDICAL DIAGNOSIS
PHOENIX CHILDRENS HOSPITAL
1919 EAST THOMAS RD	PHOENIX	AZ	85016	860422559	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
PONCE HEALTH SCIENCES UNIVERSITY WELLNESS CENTER
PO BOX 7004	PONCE	PR	00732	660379122	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
PRISMA HEALTH GRANTS AND TRIALS
PO BOX 748580	ATLANTA	GA	30374	811723202		$30,000	$0	MEDICAL DIAGNOSIS
RADY CHILDRENS HOSPITAL FOUNDATION - SAN DIEGO
3020 CHILDRENS WAY MC 5005	SAN DIEGO	CA	92123	330170626	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
REGENTS OF THE UNIVERSITY OF MINNESOTA
2221 UNIVERSITY AVE SE SUITE 100	MINNEAPOLIS	MN	55485	416007513	501(C)(3)	$105,050	$0	MEDICAL DIAGNOSIS AND RESEARCH
REGENTS OF THE UNIVERSITY OF MINNESOTA - TWIN CITIES
450 MCNAMARA ALUMNI CENTER200 OAK	MINNEAPOLIS	MN	55455	416007513	501(C)(3)	$88,903	$0	RESEARCH	STREET SE
RESEARCH TRIANGLE INSTITUTE
PO BOX 900002	RALEIGH	NC	27265	560686338	501(C)(3)	$75,000	$0	ADVOCACY
RHODE ISLAND HOSPITAL RESEARCH ADMINISTRATION GRANTS AND CONTRACTS
PO BOX H	PROVIDENCE	RI	02901	050468736	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
RUSH UNIVERSITY MEDICAL CENTER
1700 W VAN BUREN STREET SUITE 250	CHICAGO	IL	60612	362174823	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY - RBHS - NJMS
33 KNIGHTSBRIDGE ROAD2ND FLOOR EAST	PISCATAWAY	NJ	08854	462354111	501(C)(3)	$50,200	$0	RESEARCH
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY-RBHS-NJMS
65 BERGEN STREET SUITE 538	NEWARK	NJ	07103	462354111	501(C)(3)	$7,692	$0	RESEARCH
SAINT LOUIS UNIVERSITY
221 NORTH GRAND BOULEVARD	STLOUIS	MO	63103	430654872	501(C)(3)	$5,170	$0	RESEARCH
SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
10901 NORTH TORREY PINES ROAD	LA JOLLA	CA	92037	911770748	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
SANFORD CHILDRENS SPECIALTY CLINIC
1305 W 18TH STREET ROUTE 2145	SIOUX FALLS	SD	57105	460227855	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
SANFORD MEDICAL CENTER FARGO
415 NORTH 3RD AVENUE	FARGO	ND	58102	450226909	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAIL	SARASOTA	FL	34239	596012500	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SEATTLE CHILDRENS HOSPITAL
4300 ROOSEVELT WAY NE MS RC 507	SEATTLE	WA	98105	911770749	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
SEMMES-MURPHEY CLINIC
PO BOX 1000 DEPT 575	MEMPHIS	TN	38148	911770750	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS
SHRINERS HOSPITAL FOR CHILDREN
3101 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	362193608	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
SHRINERS HOSPITAL FOR CHILDREN
12502 PINE DR	TAMPA	FL	33612	362193608	501(C)(3)	$8,333	$0	MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN
2211 NORTH OAK PARK AVE	CHICAGO	IL	60707	362193608	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN NE MC 004	GRAND RAPIDS	MI	49503	322752328	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
ST LUKES HEALTH SYSTEM
PO BOX 1663	BOISE	ID	83701	452716222	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROAD	PORT JEFFERSON	NY	11777	412076312	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ST VINCENT HOSPITAL
PREVEA HEALTH 2710 EXECUTIVE DRIVE	GREEN BAY	WI	54304	390817529	501(C)(3)	$10,000	$0	MOVR REGISTRY SUPPORT
STANFORD CHILD HEALTH RESEARCH INSTITUTE CHILDRENS HEALTH INITIATIVE
4100 BOHANNON RD MAIL CODE 5894	MENLO PARK	CA	94025	911770752	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
TEMPLE UNIVERSITY TEMPLE UNIVERSITY RESEARCH ACCOUNTING SERVICE
PO BOX 22432	NEW YORK	NY	10087	231365971	501(C)(3)	$46,300	$0	MOVR REGISTRY SUPPORT
TEXAS NEUROLOGY PA
8131 LYNDON B JOHNSON FREEWAY 440	DALLAS	TX	75251	752654757		$5,317	$0	RESEARCH
TEXAS NEUROLOGY PA
MD 6080 NORTH CENTRAL EXPRESSWAY	DALLAS	TX	75206	752654757	501(C)(3)	$32,383	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT	SUITE 100
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
615 WEST 131 ST ROOM 254 MAIL CODE	NEW YORK	NY	10027	911770755	501(C)(3)	$20,833	$0	MEDICAL DIAGNOSIS	8725
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
OFFICE FOR RESEARCH SPONSORED	MILWAUKEE	WI	53278	911770756	501(C)(3)	$20,002	$0	MEDICAL DIAGNOSIS	PROGRAMS DRAWER 538
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
PO BOX 742835	LOS ANGELES	CA	90074	911770757	501(C)(3)	$85,000	$0	MEDICAL DIAGNOSIS
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
28395 NETWORK PLACE	CHICAGO	IL	60673	376000511	501(C)(3)	$109,136	$0	RESEARCH
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS AT URBANA-CHAMPAIGN
1901 S FIRST STREET SUITE A	CHAMPAIGN	IL	61820	376000511	501(C)(3)	$30,891	$0	RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
RESEARCH INSTITUTE3615 CIVIC CENTER	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$16,667	$0	MEDICAL DIAGNOSIS	BLVD
THE CURATORS OF THE UNIVERSITY MISSOURI
UNIVERSITY OF MISSOURI ARPO BOX	KANSAS CITY	MO	64180	436003859	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT	807012
THE HOSPITAL OF SPECIAL SURGERY
535 EAST 70TH STREET	NEW YORK	NY	10021	131624135	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
THE METHODIST HOSPITAL FOUNDATION METHODIST NEUROLOGICAL INSTITUTE
6560 FANNIN STREET 802	HOUSTON	TX	77030	571201170	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
THE METHODIST HOSPITAL RESEARCH INSTITUTE
6565 FANNIN MGJ4-024	HOUSTON	TX	77030	870721923	501(C)(3)	$63,123	$0	RESEARCH
THE METROHEALTH SYSTEM
PO BOX 73308	CLEVELAND	OH	44193	346004382	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD 4TH FLOOR	COLUMBUS	OH	43210	316025986	501(C)(3)	$105,587	$0	RESEARCH
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	STATE OF PA	$35,000	$0	RESEARCH
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195	CHARLOTTESVILLE	VA	22904	546001796	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
4860 Y STREET SUITE 3850	SACRAMENTO	CA	95817	946036494	501(C)(3)	$168,538	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
120 THEORY SUITE 200	IRVINE	CA	92697	952226406	501(C)(3)	$235,000	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA BERKELEY
1608 FOURTH STREET SUITE 220	BERKELEY	CA	94710	946002123	501(C)(3)	$71,428	$0	RESEARCH	UNIVERSITY OF CALIFORNIA
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
BOX 957089 1125 MURPHY HALL 405	LOS ANGELES	CA	90095	956006143	501(C)(3)	$125,000	$0	RESEARCH	HILGARD AVENUE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVEDEPT 0934	LA JOLLA	CA	92093	956006144	501(C)(3)	$30,000	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO UCSF MAIN DEPOS
PO BOX 748872	LOS ANGELES	CA	90074	946036493	501(C)(3)	$151,575	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE REGENTS OF THE UNIVERSITY OF COLORADO
3100 MARINE STROOM 481 572 UCB	BOULDER	CO	80309	846000555	501(C)(3)	$55,248	$0	RESEARCH
THE RESEARCH FOUNDATION FOR THE SUNY ON BEHALF OF UNIVERSITY AT BUFFALO
THE UB COMMONS 520 LEE	AMHERST	NY	14228	141368361	501(C)(3)	$7,143	$0	RESEARCH	ENTRANCESUITE 211
THE RESEARCH FOUNDATION ON BEHALF OF SUNY
CAB209 750 EAST ADAMS STREET	SYRACUSE	NY	13210	141368361	501(C)(3)	$25,000	$0	RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
DEPT 781653PO BOX 78000	DETROIT	MI	48278	316056230	501(C)(3)	$50,000	$0	RESEARCH
THE RYR-1 FOUNDATION
PO BOX 13312	PITTSBURGH	PA	15243	911770762	501(C)(3)	$6,000	$0	RESEARCH
THE SCRIPPS RESEARCH INSTITUTE
10550 NORTH TORREY PINES ROAD	LA JOLLA	CA	92037	330435954	501(C)(3)	$7,692	$0	RESEARCH
THE TOLEDO HOSPITAL DBA PROMEDICA TOLEDO CHILDREN'S HOSPITAL
100 MADISON AVENUE	TOLEDO	OH	43604	911770763	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
710 W 168TH STREETROOM 9-103	NEW YORK	NY	10032	135598093	501(C)(3)	$62,500	$0	RESEARCH
THE TRUSTEES OF COLUMBIA UNIVERSITY SPONSORED PROJECTS FINANCE
FINANCE PO BOX 29789 GENERAL POST	NEW YORK	NY	10087	911770764	501(C)(3)	$91,667	$0	MEDICAL DIAGNOSIS	OFFICE
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
PO BOX 785541	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$50,000	$0	RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUE S LOWDER 608	BIRMINGHAM	AL	35233	636005396		$25,000	$0	RESEARCH
THE UNIVERSITY OF IOWA UNIVERSITY OF IOWA
2410 UCC 201 ST CLINTON	STLOWA CITY	IA	52242	426004813	STATE OF IOWA	$84,700	$0	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
BANK OF AMERICA LOCKBOX SERVICES PO	ATLANTA	GA	30384	566001393	501(C)(3)	$27,500	$0	RESEARCH	BOX 402420
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER (UT SOUTHWESTERN)
5323 HARRY HINES BLVD	DALLAS	TX	75390	911770765	501(C)(3)	$50,000	$0	RESEARCH
THOMAS JEFFERSON UNIVERSITY
1101 MARKET STREET 29TH FLOOR	PHILADELPHIA	PA	19107	231352651	501(C)(3)	$55,263	$0	RESEARCH
TRINITY HEALTH DBA MERCY HEALTH SAINT MARY'S
200 JEFFERSON SE	GRAND RAPIDS	MI	49503	272491974	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
UMASS CHAN MEDICAL SCHOOL
55 LAKE AVE NORTH	WORCESTER	MA	01655	911770766	501(C)(3)	$7,500	$0	MEDICAL DIAGNOSIS
UNIVERSITY HOSPITAL BROOKLYN SUNY DOWNSTATE MED CTR
450 CLARKSON AVENUE BOX 35	BROOKLYN	NY	11203	911770767	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY NEUROLOGY INC
77 GOODELL ST SUITE 310	BUFFALO	NY	14203	911770768	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 7TH AVENUE SOUTH SC 460A	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$25,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM STREET 812	LITTLE ROCK	AR	72205	716046242	STATE OF AR	$25,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF CINCINNATI PHYSICIANS
260 STETSON STREET SUITE 2300 ML	CINCINNATI	OH	45219	273850988	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS	0525
UNIVERSITY OF COLORADO DENVER
170801-SR PO BOX 910238	DENVER	CO	80291	846000555	STATE OF CO	$100,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF FLORIDA
33 TIGERT HALL	GAINESVILLE	FL	32611	596002052	STATE OF FLORIDA	$128,000	$0	RESEARCH
UNIVERSITY OF FLORIDA - OFFICE OF CLINICAL RESEARCH - MOVR
BOX 1001581300 CENTER DRIVE SUITE	GAINESVILLE	FL	32611	596002052	501(C)(3)	$5,600	$0	MOVR REGISTRY SUPPORT	106
UNIVERSITY OF FLORIDA - RANUMWANG
207 GRINTER HALL	GAINESVILLE	FL	03001	911770769	501(C)(3)	$12,666	$0	RESEARCH
UNIVERSITY OF IOWA
118 S CLINTON STREET	LOWA CITY	IA	52242	426004813	STATE OF IOWA	$100,125	$0	RESEARCH
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARDMS 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$257,741	$0	RESEARCH
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300	LOUISVILLE	KY	40202	611014882	501(C)(3)	$22,008	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGTON STREET 4TH FLOOR	BALTIMORE	MD	21201	526002033	501(C)(3)	$5,769	$0	RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	STATE OF MA	$91,922	$0	RESEARCH
UNIVERSITY OF MIAMI
PO BOX 405803	ATLANTA	GA	30384	590624458	501(C)(3)	$125,000	$0	RESEARCH
UNIVERSITY OF MIAMI SPONSORED PROGRAMS OFFICE OF RESEARCH ADMINISTRATION
PO BOX 405803	ATLANTA	GA	30384	590624458	STATE OF FLORIDA	$54,640	$0	RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	39216	646008520	STATE OF MS	$20,000	$0	MEDICAL DIAGNOSIS RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF NEBRASKA MEDICAL CENTER
TOVA SAFFORD 988435 NEBRASKA	OMAHA	NE	68198	470049123	STATE OF NE	$35,000	$0	MEDICAL DIAGNOSIS	MEDICAL CENTER
UNIVERSITY OF NEW MEXICO HSC
1700 LOMAS BLVD NE	ALBUQUERQUE	NM	87131	856000642	STATE OF NM	$35,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF OREGON
SPONSORED PROJECTS SERVICES 5219	EUGENE	OR	97403	464727800	501(C)(3)	$22,040	$0	RESEARCH	UNIVERSITY OF OREGON
UNIVERSITY OF PITTSBURGH
S547 BIOMEDICAL SCIENCE TOWER200	PITTSBURGH	PA	15261	232919472	STATE OF PA	$100,376	$0	RESEARCH	LATHROP STREET
UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES
CLINICA LAS AMERICAS 400 FD	SAN JUAN	PR	00918	660433762	501(C)(3)	$40,075	$0	MEDICAL DIAGNOSIS	ROOSEVELT AVE
UNIVERSITY OF ROCHESTER
601 ELMWOOD AVENUE BOX 673	ROCHESTER	NY	14642	160743209	501(C)(3)	$378,997	$0	RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828	SAN ANTONIO	TX	78229	741586031	STATE OF TX	$75,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF UTAH
PO BOX 581374	SALT LAKE CITY	UT	84158	876000525	STATE OF UT	$85,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902	BURLINGTON	VT	05401	030219309	STATE OF VT	$20,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
UNIVERSITY OF WASHINGTON - RG
4300 ROOSEVELT WAY NE BOX 354965	SEATTLE	WA	98105	911770770	501(C)(3)	$50,000	$0	RESEARCH
UNIVERSITY OF WASHINGTON OFFICE OF SPONSORED PROGRAMS
4333 BROOKLYN AVE NE BOX 359472	SEATTLE	WA	98195	916001537	501(C)(3)	$220,237	$0	RESEARCH
UNIVERSITY OF WISCONSIN
4410 SOUTH 3RD STREET	RIVER FALLS	WI	54022	391805963	501(C)(3)	$29,167	$0	RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753	DALLAS	TX	75284	756002868	STATE OF TX	$190,000	$0	MEDICAL DIAGNOSIS
UW HOSPITAL AN CLINICS AUTHORITY
DRAWER 853	MILWAUKEE	WI	53278	391835630	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
VALLEY CHILDREN'S HOSPITAL
9300 VALLEY CHILDRENS PLACE	MADERA	CA	93636	911770771	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
VANDERBILT UNIVERSITY MEDICAL CENTER DEPT OF FINANCE
PO BOX 121236	DALLAS	TX	75312	352528741	501(C)(3)	$125,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
VIRGINIA COMMONWEALTH UNIVERSITY
800 EAST LEIGH STREETSUITE 3100	RICHMOND	VA	23284	546001758	501(C)(3)	$75,000	$0	RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
OFFICE OF SPONSORED PROGRAMSMEDICAL	WINSTONSALEM	NC	27157	223849199	501(C)(3)	$25,000	$0	RESEARCH	CENTER BLVD
WASHINGTON UNIVERSITY IN ST LOUIS
700 ROSEDALE AVENUECAMPUS BOX 1034	STLOUIS	MO	63112	430653611	501(C)(3)	$159,918	$0	RESEARCH
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE	NEW YORK	NY	10065	911770772	501(C)(3)	$55,289	$0	RESEARCH
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION OFFICE OF SPONSORED PROGRAMS
886 CHESTNUT RIDGE ROAD	MORGANTOWN	WV	26506	911770773	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
WRIGHT STATE UNIVERSITY
201J UNIVERSITY HALL 3640 COLONEL	DAYTON	OH	45435	310732831	501(C)(3)	$7,692	$0	RESEARCH	GLENN HWY
YALE UNIVERSITY
PO BOX 208327	NEW HAVEN	CT	06520	060646973	C CORP	$127,769	$0	RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	186	Total501c3OrgCnt
Total Other Org	20	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (1)	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
DONALD WOOD
PRESIDENT & CEO	$494,959	$0	$27,964	$0	$0	$0	$0	$0	$26,637	$0	$549,560	$0	$0	$0
MICHAEL KENNEDY
TREASURER & CFO	$289,534	$0	$42,000	$0	$0	$0	$27,000	$0	$34,822	$0	$393,356	$0	$0	$0
KRISTINE WELKER
CHIEF OF STAFF	$292,472	$0	$12,000	$0	$0	$0	$27,000	$0	$44,294	$0	$375,766	$0	$0	$0
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	$229,015	$0	$0	$0	$0	$0	$27,000	$0	$33,219	$0	$289,234	$0	$0	$0
HENRY LANMAN
SEC. & CHIEF LEGAL OFFICER	$188,632	$0	$0	$0	$0	$0	$12,923	$0	$23,729	$0	$225,284	$0	$0	$0
BRIAN BEIRNE
VP OF MULTI-CHANNEL MARKET	$204,346	$0	$10,000	$0	$0	$0	$5,182	$0	$1,638	$0	$221,166	$0	$0	$0
MONICA PAPPAS
VP, TECHNOLOGY	$188,558	$0	$0	$0	$0	$0	$27,000	$0	$594	$0	$216,152	$0	$0	$0
ANGELA LEK
VP, RESEARCH	$186,779	$0	$0	$0	$0	$0	$9,917	$0	$594	$0	$197,290	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 7	FormAndLineReferenceDesc
Explanation	INCLUDED ON SCHEDULE J, PART II, COLUMN B(II) REPRESENTS EMPLOYEE BONUSES BASED ON INDIVIDUAL AND ORGANIZATIONAL PERFORMANCE METRICS. THESE PAYMENTS ARE SUBJECT TO FINAL BOARD APPROVAL.	ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	2186	ContributionCnt
Noncash Contributions Rpt F990	$104,664	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	0	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, COLUMN (B):	FormAndLineReferenceDesc
Explanation	COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART I, LINE 1	MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.
FORM 990, PART VI, SECTION B, LINE 11B	ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C	THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE.
FORM 990, PART VIII, LINE 1E:	BOTH TAX YEAR 2021 AND 2022 TOTAL CONTRIBUTIONS INCLUDE AMOUNTS RELATED TO FORGIVENESS OF PPP LOAN, IN ACCORDANCE WITH THE IRS 990 INSTRUCTIONS, $8,659,377, AND $2,000,000, RESPECTIVELY. NOT INCLUDING THESE AMOUNTS THE TOTAL CONTRIBUTIONS GREW BY $5,622,626 (10.9%) FROM $51,522,303 TO $57,144,929.
FORM 990, PART XI, LINE 9:	CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 9,015,718. REFUND OF PREVIOUSLY REPORTED GRANTS 222,239.