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IMMUNE DEFICIENCY FOUNDATION: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization
IMMUNE DEFICIENCY FOUNDATION (EIN 52-1214782)
Tax period
2022-01-01 to 2022-12-31
Filed
2023-06-13
IRS object ID
202321649349300922
Schema version
2022v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2023-06-13T15:18:34-04:00ReturnTs
Tax Period End2022-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN251644159PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BROWN SCHULTZ SHERIDAN & FRITZBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line17420 HAYWARD ROAD SUITE 101AddressLine1Txt
CityFREDERICKCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21702ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2022-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN521214782EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1IMMUNE DEFICIENCY FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlIMMUBusinessNameControlTxt
Phone4103216647PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line17550 TEAGUE ROAD SUITE 220AddressLine1Txt
CityHANOVERCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21706ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJOREY BERRYPersonNm
Person TitlePRESIDENT & CEOPersonTitleTxt
Phone4103216647PhoneNum
Signature2023-05-24SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstJOREYPersonFirstNm
Person LastBERRYPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonWANDA K LYNN CPAPreparerPersonNm
PTINP00726749PTIN
Phone3016969449PhoneNum
Preparation2023-06-13PreparationDt
FieldValueIRS element (for citing)
Tax2022TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Principal OfficerJOREY BERRYPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line17550 TEAGUE ROADAddressLine1Txt
Address Line2SUITE 220AddressLine2Txt
CityHANOVERCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21076ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$17,534,180GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.PRIMARYIMMUNE.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1980FormationYr
Legal Domicile StateDELegalDomicileStateCd
Activity Or MissionTHE IMMUNE DEFICIENCY FOUNDATION IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITIY OF LIFE OF PEOPLE AFFECTED BY PRIMARY IMMUNODEFICIENCY THROUGH FOSTERING A COMMUNITY EMPOWERED BY ADVOCACY, EDUCATION, AND RESEARCH.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee44TotalEmployeeCnt
Total Volunteers250TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$9,152,968PYContributionsGrantsAmt
CY Contributions Grants$8,654,145CYContributionsGrantsAmt
CY Program Service Revenue$68,746CYProgramServiceRevenueAmt
PY Investment Income$785,503PYInvestmentIncomeAmt
CY Investment Income$129,557CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$9,938,471PYTotalRevenueAmt
CY Total Revenue$8,852,448CYTotalRevenueAmt
PY Grants And Similar Paid$69,977PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$158,570CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$3,562,638PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$4,283,731CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,156,100CYTotalFundraisingExpenseAmt
PY Other Expenses$4,391,000PYOtherExpensesAmt
CY Other Expenses$3,494,170CYOtherExpensesAmt
PY Total Expenses$8,023,615PYTotalExpensesAmt
CY Total Expenses$7,936,471CYTotalExpensesAmt
PY Revenues Less Expenses$1,914,856PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$915,977CYRevenuesLessExpensesAmt
Total Assets BOY$14,287,227TotalAssetsBOYAmt
Total Assets EOY$14,567,941TotalAssetsEOYAmt
Total Liabilities BOY$444,776TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,525,931TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$13,842,451NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$13,042,010NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE IMMUNE DEFICIENCY FOUNDATION (IDF) IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF PEOPLE AFFECTED BY PRIMARY IMMUNODEFICIENCY THROUGH FOSTERING A COMMUNITY EMPOWERED BY ADVOCACY, EDUCATION, AND RESEARCH. IDF SEEKS TO ENSURE THAT EVERYONE IN THE U.S. AFFECTED BY PI HAS A FULLY INFORMED UNDERSTANDING OF THE PI DIAGNOSIS THAT AFFECTS THEM, ALL AVAILABLE TREATMENT OPTIONS, THE EXPECTED STANDARD OF CARE, AND ALL OF THEIR OPPORTUNITIES FOR CONNECTION AND SUPPORT WITHIN THE PI COMMUNITY.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$2,591,621ExpenseAmt
Grant$16,450GrantAmt
DescIDF PROVIDED EDUCATIONAL PROGRAMS FOR PATIENTS AND FAMILIES LIVING WITH PRIMARY IMMUNODEFICIENCIES (PI). IN 2022, APPROXIMATELY 7,798 INDIVIDUALS ATTENDED MORE THAN 335 PRESENTATIONS. THESE INCLUDED IDF FORUMS AND EDUCATION MEETINGS, IDF GET CONNECTED GROUP MEETINGS, TEEN AND YOUNG ADULT ACTIVITIES, THE IDF PI CONFERENCE AND SCID COMPASS SUMMIT. MORE THAN 103,209 IDF EDUCATIONAL MATERIALS WERE DISTRIBUTED AND 881,747 USERS ACCESSED THE IDF WEBSITE FOR INFORMATION AND SUPPORT.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,078,922ExpenseAmt
DescTHE PRIMARY IMMUNODEFICIENCY COMMUNITY TURNS TO IDF FOR INDIVIDUAL ASSISTANCE TO ANSWER INSURANCE QUESTIONS, LOCATE A SPECIALIST IN THEIR AREA, FIND INFORMATION ABOUT TREATMENT, AND LEARN MORE ABOUT THEIR DIAGNOSIS. IDF'S PATIENT ADVOCACY SPECIALISTS FULFILLED INFORMATION REQUESTS FROM MORE THAN 1,453 INDIVIDUALS SEEKING EDUCATION, INFORMATION, AND ASSISTANCE REGARDING OVER 1,890 TOPICS. IDF WORKS THROUGHOUT THE YEAR AT THE FEDERAL AND STATE LEVEL TO EDUCATE LAWMAKERS AND THE PUBLIC ABOUT ISSUES THAT IMPACT THE PI COMMUNITY. A STRONG VOLUNTEER GRASSROOTS ADVOCACY NETWORK WORKS TO EDUCATE POLICYMAKERS ABOUT ISSUES AFFECTING THOSE WITH PI. IN 2022 IDF SUCCEEDED IN SECURING A PERMANENT MEDICARE BENEFIT FOR THOUSANDS OF PI PATIENTS TO RECEIVE HOME IVIG AFTER TEN YEARS OF LEGISLATIVE ADVOCACY. AT IDF ADVOCACY DAY, 240 INDIVIDUALS MET WITH AND SENT MESSAGES TO MEMBERS OF CONGRESS TO ENSURE THAT PEOPLE WITH PI ARE ABLE TO LIVE HEALTHY AND PRODUCTIVE LIVES WITH EXCELLENT TREATMENT OPTIONS AND ACCESS TO THE MOST APPROPRIATE HEALTHCARE AVAILABLE.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$950,377ExpenseAmt
Grant$139,020GrantAmt
Revenue$55,545RevenueAmt
DescIN AN EFFORT TO IMPROVE THE DIAGNOSIS, TREATMENT, AND CARE OF THOSE AFFECTED BY PI, IDF HAS SEVERAL INITIATIVES TO PROVIDE RESOURCES DIRECTLY TO THE MEDICAL COMMUNITY, INCLUDING EXHIBITING AT 7 MEDICAL CONFERENCES, PROVIDING INFORMATION AND RESOURCES TO OVER 590 MEDICAL PROFESSIONALS, AND ADMINISTERING A CONSULTING IMMUNOLOGIST PROGRAM THAT ALLOWS PHYSICIANS TO CONSULT WITH AN EXPERT CLINICAL IMMUNOLOGIST ABOUT PATIENT-SPECIFIC QUESTIONS TO OBTAIN VALUABLE DIAGNOSTIC, TREATMENT, AND DISEASE MANAGEMENT INFORMATION. IDF CONDUCTS NATIONAL SURVEYS AND FOCUS GROUPS OF PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS, BUILDING A COLLECTION OF QUANTIFIABLE DATA RELATED TO PRIMARY IMMUNODEFICIENCIES. IN 2022, THERE WERE 4 ABSTRACTS ACCEPTED AND FEATURED AT NATIONAL MEDICAL CONFERENCES AND 10 MANUSCRIPTS PUBLISHED IN PEER REVIEW SCIENTIFIC JOURNALS, ALL USING USIDNET DATA. BECAUSE MEDICAL RESEARCH IS A PRIORITY, THE IDF RESEARCH GRANT PROGRAM FUNDED 4 RESEARCH GRANTS IN 2022 TOTALING OVER 140,000.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$844,498ExpenseAmt
Grant$3,100GrantAmt
Revenue$13,201RevenueAmt
DescOTHER SERVICES TO PATIENTS AND FAMILIESDesc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$844,498TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$3,100TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue$13,201TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$5,465,418TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (true)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsYes (true)ReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document38IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee44EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonSARAH ROSEPersonNm
Phone4103216647PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line17550 TEAGUE RDAddressLine1Txt
Address Line2SUITE 220AddressLine2Txt
CityHANOVERCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21076ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
JOREY BERRY
PRESIDENT &40.00Yes (X)Yes (X)$215,354$0$27,790
SARAH ROSE
CFO40.00Yes (X)$134,904$0$24,854
TAMMY BLACK
VP COMMUNICA40.00$134,742$0$15,169Yes (X)
AIMEE SIMPSON
VP INSTITUTI40.00$132,431$0$13,974Yes (X)
LYNN ALBIZO
VP PUBLIC PO40.00$121,346$0$23,882Yes (X)
KATHY ANTILLA
VP EDUCATION40.00$117,495$0$22,160Yes (X)
CHRISTOPHER DUCKETT
DIR OF TALEN40.00$109,265$0$28,585Yes (X)
JASON ANGELOS
TRUSTEE1.00Yes (X)$0$0$0
PETE ATHERTON
SEROC CHAIR1.00Yes (X)Yes (X)$0$0$0
JOEL BUCKBERG
VICE CHAIR1.00Yes (X)Yes (X)$0$0$0
STEVE FIETEK
FINANCE CHAI1.00Yes (X)Yes (X)$0$0$0
TERRY HALPER
TRUSTEE1.00Yes (X)$0$0$0
SETH KAUFMAN
DEVELOPMENT1.00Yes (X)Yes (X)$0$0$0
KATE SULLIVAN MD
MAC VICE-CHA1.00Yes (X)$0$0$0
REBECCA BUCKLEY MD
MAC CHAIR1.00Yes (X)$0$0$0
JOHN SEYMOUR PHD
TRUSTEE1.00Yes (X)$0$0$0
TRACY A SHAW
BOARD CHAIR1.00Yes (X)Yes (X)$0$0$0
JOHN SMITH
TRUSTEE1.00Yes (X)$0$0$0
HARPER SPERO
TRUSTEE1.00Yes (X)$0$0$0
SONIA VOHNOUT
SECRETARY1.00Yes (X)Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$965,537TotalReportableCompFromOrgAmt
Total Other Compensation$156,414TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K7IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Business Name Line2ContractorName/BusinessName/BusinessNameLine2TxtAddress Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmtAddress Line2ContractorAddress/USAddress/AddressLine2Txt
THE REGENTS OF THE UNIVERSITY
OF CALIFORNIA SAN FRANCISCO555 MISSION BLVD SOUTHSAN FRANCISCOCA94158CONSULTING$214,966
RTI INTERNATIONAL
3040 EAST CORNWALLIS RDRESEARCH TRIANGLE PARKNC27709CONSULTING$206,393
THE MT ROYAL PRINTING COMPANY
6310 BLAIR HILL LNBALTIMOREMD21209CONSULTING$181,720
FAEGRE DRINKER BIDDLE & REATH LLP
PO BOX 536777PITTSBURGHPA15253PUBLIC POLICY$162,049
IMPACT EDUCATION LLC
589 SKIPPACK PIKEBLUE BELLPA19422CONSULTING$135,009SUITE 200
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K6CntrctRcvdGreaterThan100KCnt
Government Grants$976,335GovernmentGrantsAmt
All Other Contributions$7,677,810AllOtherContributionsAmt
Total Contributions$8,654,145TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
SURVEY INCOME541700$55,545$55,545
OTHER INCOME541900$13,201$13,201
FieldValueIRS element (for citing)
Total Program Service Revenue$68,746TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$299,863TotalRevenueColumnAmt
Exclusion$299,863ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$8,511,426SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$8,641,048SecuritiesAmt
Other$40,684OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$129,622SecuritiesAmt
Other-$40,684OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$170,306TotalRevenueColumnAmt
Exclusion-$170,306ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$8,852,448TotalRevenueColumnAmt
Related Or Exempt Func Income$68,746RelatedOrExemptFuncIncomeAmt
Exclusion$129,557ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$135,763TotalAmt
Program Services$135,763ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$22,807TotalAmt
Program Services$22,807ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$402,903TotalAmt
Program Services$169,983ProgramServicesAmt
Management And General$198,256ManagementAndGeneralAmt
Fundraising$34,664FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$3,161,073TotalAmt
Program Services$1,981,879ProgramServicesAmt
Management And General$622,440ManagementAndGeneralAmt
Fundraising$556,754FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$95,977TotalAmt
Program Services$54,475ProgramServicesAmt
Management And General$28,898ManagementAndGeneralAmt
Fundraising$12,604FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$347,830TotalAmt
Program Services$213,900ProgramServicesAmt
Management And General$75,468ManagementAndGeneralAmt
Fundraising$58,462FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$275,948TotalAmt
Program Services$169,748ProgramServicesAmt
Management And General$58,214ManagementAndGeneralAmt
Fundraising$47,986FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$68,935TotalAmt
Program Services$46,248ProgramServicesAmt
Management And General$15,927ManagementAndGeneralAmt
Fundraising$6,760FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$21,886TotalAmt
Program Services$14,823ProgramServicesAmt
Management And General$4,338ManagementAndGeneralAmt
Fundraising$2,725FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$331,175TotalAmt
Program Services$331,175ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$64,722TotalAmt
Management And General$64,722ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$1,084,149TotalAmt
Program Services$1,040,195ProgramServicesAmt
Management And General$19,794ManagementAndGeneralAmt
Fundraising$24,160FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$52,717TotalAmt
Program Services$51,898ProgramServicesAmt
Fundraising$819FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$97,539TotalAmt
Program Services$43,868ProgramServicesAmt
Management And General$3,351ManagementAndGeneralAmt
Fundraising$50,320FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$265,823TotalAmt
Program Services$197,275ProgramServicesAmt
Management And General$28,427ManagementAndGeneralAmt
Fundraising$40,121FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$267,438TotalAmt
Program Services$174,657ProgramServicesAmt
Management And General$60,676ManagementAndGeneralAmt
Fundraising$32,105FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$98,794TotalAmt
Program Services$70,294ProgramServicesAmt
Management And General$4,916ManagementAndGeneralAmt
Fundraising$23,584FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$386,048TotalAmt
Program Services$248,382ProgramServicesAmt
Management And General$17,448ManagementAndGeneralAmt
Fundraising$120,218FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$1,604TotalAmt
Management And General$1,604ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$149,207TotalAmt
Program Services$101,058ProgramServicesAmt
Management And General$29,573ManagementAndGeneralAmt
Fundraising$18,576FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$38,221TotalAmt
Program Services$27,455ProgramServicesAmt
Management And General$6,228ManagementAndGeneralAmt
Fundraising$4,538FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
DUES & SUBSCRIPTIONS$183,938$144,524$26,040$13,374
SUPPLIES$176,127$109,079$13,561$53,487
BANK FEES$63,098$24,295$6,457$32,346
TELEPHONE$62,715$38,820$15,158$8,737

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$80,034TotalAmt
Program Services$52,817ProgramServicesAmt
Management And General$13,457ManagementAndGeneralAmt
Fundraising$13,760FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$7,936,471TotalAmt
Program Services$5,465,418ProgramServicesAmt
Management And General$1,314,953ManagementAndGeneralAmt
Fundraising$1,156,100FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$689,372BOYAmt
EOY$1,250,364EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,849,442BOYAmt
EOY$1,536,582EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$58,271EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$430,471BOYAmt
EOY$8,920EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$167,228BOYAmt
EOY$188,115EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$241,538LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$31,001LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$70,590BOYAmt
EOY$210,537EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$10,801,889BOYAmt
EOY$10,175,769EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$278,235BOYAmt
EOY$196,186EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$943,197EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$14,287,227BOYAmt
EOY$14,567,941EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$404,082BOYAmt
EOY$306,894EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$19,864BOYAmt
EOY$63,962EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$20,830BOYAmt
EOY$1,155,075EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$444,776BOYAmt
EOY$1,525,931EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$13,249,405BOYAmt
EOY$11,721,888EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$593,046BOYAmt
EOY$1,320,122EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$13,842,451BOYAmt
EOY$13,042,010EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$14,287,227BOYAmt
EOY$14,567,941EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$915,977ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$1,716,418NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredYes (true)FederalGrantAuditRequiredInd
Federal Grant Audit PerformedYes (true)FederalGrantAuditPerformedInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$5,305,252CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$8,943,841CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,486,028CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$9,152,968CurrentTaxYearMinus1YearAmt
Current Tax Year$8,654,145CurrentTaxYearAmt
Total$38,542,234TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$5,305,252CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$8,943,841CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,486,028CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$9,152,968CurrentTaxYearMinus1YearAmt
Current Tax Year$8,654,145CurrentTaxYearAmt
Total$38,542,234TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$16,795,839SubstantialContributorsTotAmt
Public Support Total170$21,746,395PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$499,810CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$329,215CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$194,897CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$286,433CurrentTaxYearMinus1YearAmt
Current Tax Year$299,863CurrentTaxYearAmt
Total$1,610,218TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,320CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$37,061CurrentTaxYearMinus3YearsAmt
Total$38,381TotalAmt
FieldValueIRS element (for citing)
Total Support$40,190,833TotalSupportAmt
Gross Receipts Rltd Activities$808,013GrossReceiptsRltdActivitiesAmt
Public Support CY1700.54110PublicSupportCY170Pct
Public Support PY1700.51120PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferencePART II, LINE 10FormAndLineReferenceDesc
ExplanationOTHER INCOME 38,381ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$174,631FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$189,740FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$364,371FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$7,571,791FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$7,936,162FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$546,808FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$136,702FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$37,929FilingOrganizationsTotalAmt
FieldValueIRS element (for citing)
Form4720 FiledYes (true)Form4720FiledInd

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$580,081CurrentYearMinus3Amt
Current Year Minus2$476,627CurrentYearMinus2Amt
Current Year Minus1$551,181CurrentYearMinus1Amt
Current Year$546,808CurrentYearAmt
Total$2,154,697TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$3,232,046LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$227,766CurrentYearMinus3Amt
Current Year Minus2$182,043CurrentYearMinus2Amt
Current Year Minus1$225,131CurrentYearMinus1Amt
Current Year$364,371CurrentYearAmt
Total$999,311TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$145,020CurrentYearMinus3Amt
Current Year Minus2$119,157CurrentYearMinus2Amt
Current Year Minus1$137,795CurrentYearMinus1Amt
Current Year$136,702CurrentYearAmt
Total$538,674TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$808,011GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$67,906CurrentYearMinus3Amt
Current Year Minus2$74,996CurrentYearMinus2Amt
Current Year Minus1$58,108CurrentYearMinus1Amt
Current Year$174,631CurrentYearAmt
Total$375,641TotalAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$6,183,528BeginningYearBalanceAmt
Contributions$1,114,253ContributionsAmt
Investment Earnings Or Losses-$1,099,022InvestmentEarningsOrLossesAmt
End Year Balance$6,198,759EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$5,483,828BeginningYearBalanceAmt
Investment Earnings Or Losses$699,700InvestmentEarningsOrLossesAmt
End Year Balance$6,183,528EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$4,962,050BeginningYearBalanceAmt
Investment Earnings Or Losses$521,778InvestmentEarningsOrLossesAmt
End Year Balance$5,483,828EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$4,140,560BeginningYearBalanceAmt
Investment Earnings Or Losses$821,490InvestmentEarningsOrLossesAmt
End Year Balance$4,962,050EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$4,412,670BeginningYearBalanceAmt
Investment Earnings Or Losses-$272,110InvestmentEarningsOrLossesAmt
End Year Balance$4,140,560EndYearBalanceAmt
FieldValueIRS element (for citing)
Board Designated Balance EOY1.00000BoardDesignatedBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$213,957OtherCostOrOtherBasisAmt
Depreciation$3,420DepreciationAmt
Book Value$210,537BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$27,581OtherCostOrOtherBasisAmt
Depreciation$27,581DepreciationAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$210,537TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDescBook ValueBookValueAmt
RIGHT OF USE ASSET$926,067
SECURITY DEPOSIT$17,130
FieldValueIRS element (for citing)
Total Book Value Other Assets$943,197TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescOPERATING LEASESDesc
Amt$1,155,075Amt
FieldValueIRS element (for citing)
Total Liability$1,155,075TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$7,071,308TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$1,716,418NetUnrealizedGainsInvstAmt
Revenue Not Reported-$1,716,418RevenueNotReportedAmt
Revenue Subtotal$8,787,726RevenueSubtotalAmt
Investment Expenses Not Incld$64,722InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$64,722RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$8,852,448TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$7,871,749TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$7,871,749ExpensesSubtotalAmt
Investment Expenses Not Incld2$64,722InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$64,722ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$7,936,471TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE D, PAGE 3, PART XFormAndLineReferenceDesc
ExplanationTHE FOUNDATION IS INCORPORATED UNDER THE LAWS OF THE STATE OF DELAWARE AS A NONPROFIT ORGANIZATION. THE FOUNDATION HAS ELECTED UNDER PROVISIONS OF INTERNAL REVENUE CODE (IRC) SECTION 501(C)(3) AND STATE INCOME TAX STATUTES TO BE EXCLUDED FROM TAXES ON EXCEPT FUNCTION INCOME. THEREFORE, NO PROVISION IS MADE FOR TAXES ON INCOME. THE FOUNDATION IS SUBJECT TO AN EXCISE TAX ON EXCESS LOBBYING EXPENDITURES UNDER IRC SECTION 4911. THE FOUNDATION'S TAX RETURNS FOR 2022, 2021, 2020, AND 2019 ARE SUBJECT TO EXAMINATION BY THE IRS AND STATE TAX AUTHORITIES GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. THE FOUNDATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN, AND AS SUCH, DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (5 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtBusiness Name Line2RecipientBusinessName/BusinessNameLine2TxtAddress Line2USAddress/AddressLine2Txt
BAYLOR COLLEGE OF MEDICINE
1 BAYLOR PLAZAHOUSTONTX77030741613878501C3$50,000RESEARCH
CHILDREN'S HOSPITAL CORPORATION
300 LONGWOOD AVENUEBOSTONMA02115042774441501C3$40,763RESEARCHD/B/A BOSTON CHILDREN'S HOSPITAL
THE FEINSTEIN INSTITUTES
972 BRUSH HOLLOW ROADWESTBURYNY11590112673595501C3$25,000RESEARCHFOR MEDICAL RESEARCHSUITE 5TH FLOOR
ALLERGY & IMMUNOLOGY CARE CENTER
16371 NORTHWEST 67TH AVENUEMIAMI LAKESFL33014821127569$10,000WHITE PAPER AWARDOF SOUTH FL LLC
ICAHN SCHOOL OF MEDICINE
1 GUSTAVE L LEVY PLACENEW YORKNY10029136171197501C3$10,000WHITE PAPER AWARDAT MOUNT SINAI
FieldValueIRS element (for citing)
Total501c3 Org4Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeHONORARIAGrantTypeTxt
Recipient69RecipientCnt
Cash Grant$22,807CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE I, PAGE 1, PART I, LINE 2FormAndLineReferenceDesc
ExplanationEACH GRANT APPLICATION IS REVIEWED BY A COMMITTEE USING NIH SCORING CRITERIA. ONCE THE GRANT IS AWARDED, A 6-MONTH FINANCIAL AND PROGRESS REPORT IS DUE AS IS A 12-MONTH FINAL REPORT, WITH FINAL DELIVERABLES/ABSTRACT OR PUBLICATION DUE WITHIN 2 YEARS.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
JOREY BERRY
PRESIDENT & CEO$215,354$6,636$21,154$243,144
SARAH ROSE
CFO$134,904$5,648$19,206$159,758

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (11 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990 - ORGANIZATION'S MISSIONTHE IMMUNE DEFICIENCY FOUNDATION (IDF) IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF PEOPLE AFFECTED BY PRIMARY IMMUNODEFICIENCY THROUGH FOSTERING A COMMUNITY EMPOWERED BY ADVOCACY, EDUCATION, AND RESEARCH. IDF SEEKS TO ENSURE THAT EVERYONE IN THE U.S. AFFECTED BY PI HAS A FULLY INFORMED UNDERSTANDING OF THE PI DIAGNOSIS THAT AFFECTS THEM, ALL AVAILABLE TREATMENT OPTIONS, THE EXPECTED STANDARD OF CARE, AND ALL OF THEIR OPPORTUNITIES FOR CONNECTION AND SUPPORT WITHIN THE PI COMMUNITY.
FORM 990, PAGE 2, PART III, LINE 4BTHE PRIMARY IMMUNODEFICIENCY COMMUNITY TURNS TO IDF FOR INDIVIDUAL ASSISTANCE TO ANSWER INSURANCE QUESTIONS, LOCATE A SPECIALIST IN THEIR AREA, FIND INFORMATION ABOUT TREATMENT, AND LEARN MORE ABOUT THEIR DIAGNOSIS. IDF'S PATIENT ADVOCACY SPECIALISTS FULFILLED INFORMATION REQUESTS FROM MORE THAN 1,453 INDIVIDUALS SEEKING EDUCATION, INFORMATION, AND ASSISTANCE REGARDING OVER 1,890 TOPICS. IDF WORKS THROUGHOUT THE YEAR AT THE FEDERAL AND STATE LEVEL TO EDUCATE LAWMAKERS AND THE PUBLIC ABOUT ISSUES THAT IMPACT THE PI COMMUNITY. A STRONG VOLUNTEER GRASSROOTS ADVOCACY NETWORK WORKS TO EDUCATE POLICYMAKERS ABOUT ISSUES AFFECTING THOSE WITH PI. IN 2022 IDF SUCCEEDED IN SECURING A PERMANENT MEDICARE BENEFIT FOR THOUSANDS OF PI PATIENTS TO RECEIVE HOME IVIG AFTER TEN YEARS OF LEGISLATIVE ADVOCACY. AT IDF ADVOCACY DAY, 240 INDIVIDUALS MET WITH AND SENT MESSAGES TO MEMBERS OF CONGRESS TO ENSURE THAT PEOPLE WITH PI ARE ABLE TO LIVE HEALTHY AND PRODUCTIVE LIVES WITH EXCELLENT TREATMENT OPTIONS AND ACCESS TO THE MOST APPROPRIATE HEALTHCARE AVAILABLE.
FORM 990, PAGE 2, PART III, LINE 4CIN AN EFFORT TO IMPROVE THE DIAGNOSIS, TREATMENT, AND CARE OF THOSE AFFECTED BY PI, IDF HAS SEVERAL INITIATIVES TO PROVIDE RESOURCES DIRECTLY TO THE MEDICAL COMMUNITY, INCLUDING EXHIBITING AT 7 MEDICAL CONFERENCES, PROVIDING INFORMATION AND RESOURCES TO OVER 590 MEDICAL PROFESSIONALS, AND ADMINISTERING A CONSULTING IMMUNOLOGIST PROGRAM THAT ALLOWS PHYSICIANS TO CONSULT WITH AN EXPERT CLINICAL IMMUNOLOGIST ABOUT PATIENT-SPECIFIC QUESTIONS TO OBTAIN VALUABLE DIAGNOSTIC, TREATMENT, AND DISEASE MANAGEMENT INFORMATION. IDF CONDUCTS NATIONAL SURVEYS AND FOCUS GROUPS OF PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS, BUILDING A COLLECTION OF QUANTIFIABLE DATA RELATED TO PRIMARY IMMUNODEFICIENCIES. IN 2022, THERE WERE 4 ABSTRACTS ACCEPTED AND FEATURED AT NATIONAL MEDICAL CONFERENCES AND 10 MANUSCRIPTS PUBLISHED IN PEER REVIEW SCIENTIFIC JOURNALS, ALL USING USIDNET DATA. BECAUSE MEDICAL RESEARCH IS A PRIORITY, THE IDF RESEARCH GRANT PROGRAM FUNDED 4 RESEARCH GRANTS IN 2022 TOTALING OVER 140,000.
FORM 990, PAGE 2, PART III, LINE 4DOTHER SERVICES TO PATIENTS AND FAMILIES
FORM 990, PAGE 6, PART VI, LINE 11BTHE 990 IS REVIEWED BY THE CHIEF FINANCIAL OFFICER ONCE COMPLETED BY THE OUTSIDE CPA FIRM. ONCE THE CHIEF FINANCIAL OFFICER IS SATISFIED WITH THE ACCURACY, THE 990 IS THEN PASSED ON TO THE PRESIDENT & CEO FOR REVIEW. AFTER THAT LEVEL OF REVIEW IS COMPLETE, IT IS THEN PASSED ON TO THE FINANCE COMMITTEE FOR APPROVAL. ONCE THAT HAPPENS IT IS REVIEWED AND ONCE ACCURATE, APPROVED BY THE BOARD OF TRUSTEES.
FORM 990, PAGE 6, PART VI, LINE 12CEACH YEAR IDF REQUESTS THAT ALL BOARD OF TRUSTEE MEMBERS AND STAFF COMPLETE A CONFLICT OF INTEREST STATEMENT DISCLOSING ANY POTENTIAL CONFLICT THAT MAY EXIST. THESE ARE KEPT ON FILE IN THE IDF OFFICE. THE BOARD LIAISON/CFO DISTRIBUTES THE STATEMENT ANNUALLY FOR SIGNATURES TO THE BOARD. THE BOARD LIAISON/CFO, WOULD DISTRIBUTE TO ANY STAFF NECESSARY. THE BOARD LIAISON/CFO WOULD REVIEW AND WOULD BRING IT TO THE PRESIDENT & CEO'S ATTENTION IS THERE ARE CONFLICTS. ANY RESTRICTIONS, IF NECESSARY, WOULD BE MADE AT HIS LEVEL OR ABOVE, DEPENDING ON WHO/WHAT THE CONFLICT IS.
FORM 990, PAGE 6, PART VI, LINE 15ATHE PRESIDENT & CEO'S COMPENSATION IS REVIEWED AND DOCUMENTED BY THE EXECUTIVE COMMITTEE. THE COMMITTEE REVIEWS WEBSITES SUCH AS SALARY.COM AND/OR REVIEWS OF MATERIALS SUCH AS ASAE'S COMPENSATION AND BENEFITS STUDY BOOK TO DETERMINE THE CORRECT SALARY FOR THE POSITION. THE COMPENSATION IS PRESENTED AND APPROVED BY THE FULL BOARD. THE EXECUTIVE COMMITTEE INFORMS THE PRESIDENT & CEO, HUMAN RESOURCES, AND ACCOUNTING. FOR ALL EMPLOYEES, AN ANNUAL REVIEW IS CONDUCTED BY THE EMPLOYEE'S SUPERVISOR. BASED ON THIS REVIEW, IT IS DETERMINED IF THE PERSON GETS AN ANNUAL INCREASE BEYOND THE COST OF LIVING. REVIEW OF WEBSITES SUCH AS SALARY.COM AND/OR REVIEW OF MATERIALS SUCH AS ASAE'S COMPENSATION AND BENEFITS STUDY BOOK HELPS DETERMINE THE CORRECT SALARY FOR THE POSITION. IF THE SUPERVISOR APPROVES AN INCREASE, PAPERWORK IS DRAWN UP AND SUBMITTED TO THE PRESIDENT & CEO FOR APPROVAL AND IS ALSO REVIEWED BY THE EXECUTIVE COMMITTEE. ONCE APPROVAL IS COMPLETE, HUMAN RESOURCES AND ACCOUNTING ARE INFORMED OF THE INCREASE. THE EMPLOYEE IS NOTIFIED AS WELL.
FORM 990, PAGE 6, PART VI, LINE 15BTHE PRESIDENT & CEO'S COMPENSATION IS REVIEWED AND DOCUMENTED BY THE PERSONNEL COMMITTEE. THE COMMITTEE REVIEWS WEBSITES SUCH AS SALARY.COM AND/OR REVIEWS OF MATERIALS SUCH AS ASAE'S COMPENSATION AND BENEFITS STUDY BOOK TO DETERMINE THE CORRECT SALARY FOR THE POSITION. THE COMPENSATION IS PRESENTED AND APPROVED BY THE FULL BOARD. THE PERSONNEL COMMITTEE INFORMS THE PRESIDENT & CEO, HUMAN RESOURCES, AND ACCOUNTING. FOR ALL EMPLOYEES, AN ANNUAL REVIEW IS CONDUCTED BY THE EMPLOYEE'S SUPERVISOR. BASED ON THIS REVIEW, IT IS DETERMINED IF THE PERSON GETS AN ANNUAL INCREASE BEYOND THE COST OF LIVING. REVIEW OF WEBSITES SUCH AS SALARY.COM AND/OR REVIEW OF MATERIALS SUCH AS ASAE'S COMPENSATION AND BENEFITS STUDY BOOK HELPS DETERMINE THE CORRECT SALARY FOR THE POSITION. IF THE SUPERVISOR APPROVES AN INCREASE, PAPERWORK IS DRAWN UP AND SUBMITTED TO THE PRESIDENT & CEO FOR APPROVAL AND IS ALSO REVIEWED BY THE PERSONNEL COMMITTEE. ONCE APPROVAL IS COMPLETE, HUMAN RESOURCES AND ACCOUNTING ARE INFORMED OF THE INCREASE. THE EMPLOYEE IS NOTIFIED AS WELL.
FORM 990, PAGE 6, PART VI, LINE 17NORTH DAKOTA, NEW HAMPSHIRE, NEW JERSEY, NEW YORK, OHIO, PENNSYLVANIA, RHODE ISLAND, TENNESSEE, VIRGINIA, WASHINGTON, WISCONSIN
FORM 990, PAGE 6, PART VI, LINE 19THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. IN ADDITION, THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE WEBSITE.
FORM 990, PART IX, LINE 11GMEDICAL CONSULTANT 93,500 0 0 OTHER CONSULTING 946,695 19,794 24,160 TOTAL 1,040,195 19,794 24,160