LUPUS RESEARCH ALLIANCE INC: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization: LUPUS RESEARCH ALLIANCE INC (EIN 58-2492929)
Tax period: 2022-01-01 to 2022-12-31
Filed: 2023-09-15
IRS object ID: 202322589349302062
Schema version: 2022v5.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2023-09-15T15:00:40-05:00	ReturnTs
Tax Period End	2022-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	131655065	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	LUTZ AND CARR CPAS LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	551 FIFTH AVENUE SUITE 400	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10176	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2022-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	582492929	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS RESEARCH ALLIANCE INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	LUPU	BusinessNameControlTxt
Phone	2122182840	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	DEBRA ROSE	PersonNm
Person Title	VP AND CHIEF FINANCIAL OFFICER	PersonTitleTxt
Phone	2122182840	PhoneNum
Signature	2023-09-15	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	DEBRA	PersonFirstNm
Person Last	ROSE	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	0	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JENNIFER COATES	PreparerPersonNm
PTIN	P02247728	PTIN
Phone	2126972299	PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	2	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2022	TaxYr
Build TS	2023-04-26 12:10:37Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ALBERT T ROY	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$32,841,344	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	LUPUSRESEARCH.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1999	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	FREEING THE WORLD OF LUPUS.	ActivityOrMissionDesc
Voting Members Governing Body	24	VotingMembersGoverningBodyCnt
Voting Members Independent	24	VotingMembersIndependentCnt
Total Employee	63	TotalEmployeeCnt
Total Volunteers	500	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$18,941,837	PYContributionsGrantsAmt
CY Contributions Grants	$18,375,553	CYContributionsGrantsAmt
PY Program Service Revenue	$1,036,685	PYProgramServiceRevenueAmt
CY Program Service Revenue	$1,232,995	CYProgramServiceRevenueAmt
PY Investment Income	$3,679,888	PYInvestmentIncomeAmt
CY Investment Income	$2,452,805	CYInvestmentIncomeAmt
PY Other Revenue	$121,620	PYOtherRevenueAmt
CY Other Revenue	$638,138	CYOtherRevenueAmt
PY Total Revenue	$23,780,030	PYTotalRevenueAmt
CY Total Revenue	$22,699,491	CYTotalRevenueAmt
PY Grants And Similar Paid	$15,031,432	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$17,377,279	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$6,237,294	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$7,532,779	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$65,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$65,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$3,074,858	CYTotalFundraisingExpenseAmt
PY Other Expenses	$5,438,357	PYOtherExpensesAmt
CY Other Expenses	$7,398,867	CYOtherExpensesAmt
PY Total Expenses	$26,772,083	PYTotalExpensesAmt
CY Total Expenses	$32,373,925	CYTotalExpensesAmt
PY Revenues Less Expenses	-$2,992,053	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$9,674,434	CYRevenuesLessExpensesAmt
Total Assets BOY	$110,909,946	TotalAssetsBOYAmt
Total Assets EOY	$98,907,292	TotalAssetsEOYAmt
Total Liabilities BOY	$41,423,828	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$35,375,707	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$69,486,118	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$63,531,585	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	PUTTING PEOPLE WITH LUPUS AT THE CENTER OF ALL WE DO, THE LUPUS RESEARCH ALLIANCE DRIVES THE DISCOVERY & DEVELOPMENT OF NEXT GENERATION LUPUS DIAGNOSTICS AND CURATIVE TREATMENTS THROUGH INNOVATIVE RESEARCH & COLLABORATIONS.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$18,280,972	ExpenseAmt
Grant	$17,187,962	GrantAmt
Desc	RESEARCH:THE LUPUS RESEARCH ALLIANCE (LRA) IS THE LARGEST NON-GOVERNMENTAL, NON-PROFIT FUNDER OF LUPUS RESEARCH WORLDWIDE. THE ORGANIZATION AIMS TO TRANSFORM TREATMENT BY FUNDING THE MOST INNOVATIVE LUPUS RESEARCH, FOSTERING DIVERSE SCIENTIFIC TALENT, AND DRIVING DISCOVERY TOWARD BETTER DIAGNOSTICS AND IMPROVED TREATMENTS. LRA-FUNDED RESEARCH IS LEADING TO KEY DISCOVERIES THAT ARE IMPROVING DIAGNOSIS AND THERAPIES WHILE ADVANCING TOWARD PREVENTION AND ULTIMATELY A CURE. THE ORGANIZATION'S RESEARCH COMMITTEE OF THE BOARD OF DIRECTORS AND SCIENTIFIC ADVISORY BOARD INCLUDE TOP SCIENTIFIC EXPERTS, AND KEY LAY MEMBERS OF THE BOARD, WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA. SINCE ITS INCEPTION, THE LRA HAS COMMITTED OVER $245 MILLION TO FUND LUPUS RESEARCH PROJECTS. IN 2022 ALONE, OVER $17,000,000 WAS AWARDED IN GRANTS FOR HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS AND THUS LEAD TO A CURE. BELOW IS A SUMMARY OF RESEARCH GRANTS AND PROGRAMS FUNDED BY THE LRA IN 2022: 1) 3 GLOBAL TEAM SCIENCE AWARDS WERE AWARDED FOR $3 MILLION FOR A TOTAL OF $9 MILLION OVER TWO YEARS. THESE AWARDS WILL FUND MULTIDISCIPLINARY, COLLABORATIVE AND HIGHLY SYNERGISTIC PROJECTS THAT PUSH THE BOUNDARIES OF INNOVATION AND BRIDGE RESEARCH AND CLINICAL EFFORTS IN LUPUS. THE TEAMS WILL FOCUS ON UNRAVELING HUMAN LUPUS HETEROGENEITY WITH THE AIM TO DISCOVER NEW AVENUES TO PERSONAL TREATMENT APPROACHES; 2) 7 LUPUS INNOVATION AWARD GRANTS WERE AWARDED TOTALING OVER $2 MILLION OVER TWO YEARS, THIS PROGRAM PROVIDES EARLY-STAGE SUPPORT FOR EXCEPTIONALLY CREATIVE AND INNOVATIVE APPROACHES TO MAJOR CHALLENGES IN LUPUS RESEARCH; 3) 4 LUPUS MECHANISMS AND TARGETS AWARDS TOTALING $2.4 MILLION TO SUPPORT ESTABLISHED INVESTIGATORS FOCUSED ON CHARACTERIZING LUPUS PATHOGENESIS AND IDENTIFYING AND VALIDATING MOLECULAR PATHWAYS OR DRUGGABLE TARGETS THAT COULD LEAD TO NEW OR IMPROVED THERAPIES.4) THE PACE OF FUNDING IN THE DIVERSITY IN LUPUS RESEARCH PROGRAM GAINED MOMENTUM 2022 BY FUNDING THE FOLLOWING: A. 4 ADMINISTRATIVE DIVERSITY SUPPLEMENT GRANTS TO PROMOTE DIVERSITY IN LUPUS RESEARCH WERE AWARDED TOTALING APPROXIMATELY $120,000. THESE AWARDS FUND HIGHLY QUALIFIED AND PROMISING UNDERREPRESENTED MINORITY TRAINEES TO SUPPORT THEIR RESEARCH EXPERIENCES ALIGNED WITH AN LRA PARENT AWARD. B. 3 GRANTS WERE AWARDED TO RESEARCHERS IN THE CAREER DEVELOPMENT AWARD PROGRAM THAT AIMS TO FOSTER THE DEVELOPMENT OF OUTSTANDING, UNDERREPRESENTED MINORITY SCIENTISTS AND ESTABLISH A DIVERSE COMMUNITY OF RESEARCHERS AND CLINICIANS IN THE FIELD OF LUPUS, THE PROGRAM PROVIDES UP TO $600,000 OVER FOUR YEARS TO TALENTED UNDERREPRESENTED MINORITY SCIENTISTS.C. 2 POSTDOCTORAL GRANTS FELLOWSHIP GRANTS WHICH PROVIDE FELLOWS WITH UP TO $170,000 OVER TWO YEARS TO SUPPORT THE GENERATION OF DATA AND PROGRESS NEEDED TO BECOME INDEPENDENT LUPUS RESEARCHERS.5) THE DISTINGUISHED INNOVATOR AWARD PROGRAM PROVIDES OUTSTANDING SCIENTISTS WITH SUBSTANTIAL SUPPORT TO CONDUCT HIGHLY INNOVATIVE RESEARCH TO UNCOVER THE UNDERLYING CAUSES OF LUPUS, 2 DISTINGUISHED INNOVATOR AWARDS FOR A TOTAL OF $2 MILLION WERE AWARDED OVER FOUR YEARS TO HIGHLY QUALIFIED INVESTIGATORS TO COMPLETE THE PROPOSED WORK.6) THE LUPUS INSIGHT PRIZE WAS AWARDED FOR $100,000. THIS AWARD RECOGNIZES A LEADING RESEARCHER WHO HAS MADE A MAJOR CONTRIBUTION TO THE FIELD. 7) CONTINUED FUNDING FOR TWO GRANTS AS PART OF OUR PARTNERSHIP WITH OTHER ORGANIZATIONS FOCUSED ON FINDING COMMON MECHANISMS IN AUTOIMMUNE DISEASES. THE LRA'S UNIQUE FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS WITH THE GOAL OF IMPROVING THE LIVES OF PEOPLE WITH LUPUS IN THE NEAR FUTURE. THROUGH A COMPETITIVE PEER-REVIEW PROCESS PROJECTS BY THE LRA AIM TO TRANSLATE RESULTS FROM THE RESEARCH BENCH TO THE BEDSIDE AS QUICKLY AS POSSIBLE. BECAUSE THE LUPUS RESEARCH ALLIANCE'S BOARD OF DIRECTORS FUNDS THE ADMINISTRATIVE AND FUNDRAISING EXPENSES, 100% OF ALL OTHER CONTRIBUTIONS GOES TO SUPPORT THE LRA'S LUPUS RESEARCH PROGRAMS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$7,351,943	ExpenseAmt
Grant	$107,085	GrantAmt
Revenue	$1,232,995	RevenueAmt
Desc	SCIENTIFIC PROGRAMS:LUPUS RESEARCH ALLIANCE'S (LRA) SCIENTIFIC PROGRAM CONTINUED TO GROW IN 2022. THIS GROWTH WAS SPURRED BY BUILDING ON ESTABLISHED PROGRAMS AND FINDING WAYS TO CONTINUE TO EXPAND WHILE CREATING OPPORTUNITIES FOR COLLABORATION WITH DIFFERENT SECTORS. AN EXAMPLE OF THIS YEAR'S ACCOMPLISHMENTS ARE LISTED BELOW: COLLABORATED WITH LRA RESEARCH COMMITTEE OF THE BOARD AND SCIENTIFIC ADVISORY BOARD TO CONTINUE TO IMPLEMENT EFFICIENTLY OUR RESEARCH STRATEGY INTO IMPORTANT SCIENTIFIC TOOLS, PROGRAMS, AND PARTNERSHIPS AND MOVE CLOSER TO ACHIEVING LRA'S MISSION. LAUNCHED THE DIVERSITY IN LUPUS RESEARCH PROGRAM BY FUNDING FIVE INAUGURAL GRANT AWARDS. SOLIDIFIED THE SCIENTIFIC STRENGTH AND POTENTIAL OF THE GLOBAL TEAM SCIENCE AWARD BY FUNDING THREE ADDITIONAL TEAMS REPRESENTING FIVE CONTINENTS AND TACKLING A BREADTH OF KEY ISSUES IN LUPUS FROM COGNITIVE IMPAIRMENT, DISEASE REMISSION, GUT MICROBIOME, AND ANCESTRAL DRIVERS OF DISEASE. ESTABLISHMENT OF A PUBLIC PRIVATE PARTNERSHIP WITH THE FDA ON LUPUS CALLED THE LUPUS ACCELERATING BREAKTHROUGHS CONSORTIUM (LUPUS ABC). CONTINUED TO ESTABLISH KEY INFRASTRUCTURE COMPONENTS OF THE LUPUS NEXUS (LRA'S LUPUS REGISTRY AND BIOREPOSITORY) THE CLINICAL STUDY PROTOCOL (THE LUPUS LANDMARK STUDY). WORKING WITH LUPUS THERAPEUTICS, LUPUS NEXUS WILL CAPITALIZE ON CURRENT STRATEGIC OPPORTUNITIES IN THE LUPUS FIELD BY ENABLING A COLLABORATIVE, DATA-DRIVEN PLATFORM FOR THE RESEARCH COMMUNITY. THE VISION FOR THE LUPUS NEXUS IS TO TRANSFORM LUPUS RESEARCH AND DRUG DEVELOPMENT THROUGH UNPRECEDENTED INFORMATION EXCHANGE CAPABILITIES. THE PLATFORM WILL PROVIDE A COLLABORATIVE SOLUTION THAT IS INCLUSIVE OF DIVERSE PATIENT POPULATIONS DISPROPORTIONATELY AFFECTED BY LUPUS. THE LUPUS NEXUS WILL BE A SOURCE OF HIGHLY CURATED DATA TO CATALYZE GLOBAL COLLABORATION, RESEARCH INNOVATION, AND PRECISION MEDICINE APPROACHES TO ACCELERATE LUPUS RESEARCH AND DRUG DEVELOPMENT. EXPANDED LRA'S RESEARCH PORTFOLIO WITH NEW, INNOVATIVE, AND POTENTIALLY IMPACTFUL RESEARCH PROJECTS: TWO DISTINGUISHED INNOVATOR AWARDS, FOUR LUPUS MECHANISMS AND TARGETS AWARD, AND SEVEN LUPUS INNOVATION AWARDS. ALSO FURTHER OPTIMIZED THE LUPUS INSIGHT PRIZE PROGRAM TO STIMULATE THE SUBMISSION OF A ROBUST POOL OF COMPELLING NOMINATIONS. MAINTAINED A STRONG ENGAGEMENT OF THE LUPUS INDUSTRY COUNCIL THROUGH THE LUPUS ABC, LUPUS NEXUS, AND THE BICLA/SRI-4 PROJECT. THE LATTER WAS PRESENTED AT THE NOVEMBER 2022 ANNUAL COLLEGE OF RHEUMATOLOGY MEETING. AS PART OF THE LRA'S COMMITMENT TO CROSS-SECTOR AND CROSS-DISCIPLINE PARTNERSHIPS TO FOSTER THE MOST INNOVATIVE AND PRODUCTIVE RESEARCH ENVIRONMENT, BOLSTERED LRA'S CONVENING POWER AND SPEARHEAD NEW THINKING ABOUT A KEY AREA IN LUPUS RESEARCH BY ORGANIZING AND CONVENING A HIGHLY SUCCESSFUL SCIENTIFIC MEETING ON THE "IMPACT OF ANCESTRY, RACE, AND RACIAL INEQUALITIES ON LUPUS." CONTINUED TO NURTURE COLLABORATION BY HOSTING INTERNAL AND EXTERNAL MEETINGS. THIS INCLUDED RESEARCH COMMITTEE MEETINGS WHERE MEMBERS OF OUR BOARD OF DIRECTORS AS WELL AS TOP-LEVEL RESEARCHERS DISCUSSED OUR PORTFOLIO AND UPCOMING STRATEGIC STEPS; SCIENTIFIC ADVISORY BOARD MEETINGS WHERE HIGHLY REGARDED SCIENTIFIC ADVISORS REVIEW GRANT APPLICATION SUBMISSIONS AND DISCUSS FUTURE AND OVERALL RESEARCH STRATEGY FOR THE ORGANIZATION; GRANT SPECIFIC STUDY SECTIONS WHERE INVITED RESEARCHERS DISCUSSED AND REVIEWED APPLICATIONS SUBMITTED TO THE LRA. THE LRA FOUNDED LUPUS THERAPEUTICS, LLC AS AN AFFILIATE OF THE LRA IN 2018 TO RUN LUCIN TO ADVANCE CLINICAL TRIALS AND FACILITATE THE DEVELOPMENT OF MUCH NEEDED NEW LUPUS TREATMENTS. THE LRA COMMITTED OVER $4.3 MILLION IN 1-YEAR GRANTS IN 2021 TO CONTINUE FUNDING THRU 2023 OF TOP ACADEMIC CENTERS TO FOSTER CLINICAL TRIAL PARTICIPATION IN LUCIN. LUPUS THERAPEUTICS (LT) IS COMMITTED TO DELIVERING CUSTOMIZED SERVICES AND BY PARTNERING WITH AND LEVERAGING THE EXPERTS WITHIN OUR NORTH AMERICAN-BASED LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN) AND THOSE IMPACTED BY LUPUS, LT STRIVES TO OPTIMIZE ENGAGEMENT AND DRIVE RESULTS. LT CUSTOMIZED SERVICES ARE FOCUSED ON ENGAGING THE LUPUS PATIENT AND SCIENTIFIC COMMUNITY AS KEY CONTRIBUTORS TO DRUG DEVELOPMENT ENDEAVORS TO INCREASE THE PROBABILITY OF STUDY SUCCESS. LT'S VALUE PROPOSITION INCLUDES -BROAD FOOTPRINT WITHIN THE LUPUS PATIENT COMMUNITY -PARTNERS WITH >200 LUPUS KOLS AND NORTH AMERICAN ACADEMIC CENTERS OF EXCELLENCE -FINANCIAL AND COMMUNITY INCENTIVES FOR SITES THAT PRIORITIZE LUCIN-SANCTIONED STUDIES -ACCELERATED STUDY START-UP TIMELINES AND SUPPORT THROUGHOUT STUDY CONDUCT -FACILITATION OF RELATIONSHIPS AND MUTUAL TRUST BETWEEN SITES AND SPONSORS	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$642,971	ExpenseAmt
Grant	$82,232	GrantAmt
Desc	PUBLIC POLICY:THE MAIN GOALS OF THE LUPUS RESEARCH ALLIANCE PUBLIC POLICY PROGRAM ARE TO: EDUCATE MEMBERS OF CONGRESS ABOUT ISSUES OF PRIORITY TO THE LUPUS COMMUNITY; INCREASE FEDERAL FUNDING FOR LUPUS RESEARCH BY INCREASING OVERALL NATIONAL INSTITUTES OF HEALTH (NIH) FUNDS AND SECURE ADDITIONAL FUNDING FOR LUPUS RESEARCH THROUGH OTHER KEY FEDERAL AGENCIES INCLUDING THE DEPARTMENT OF DEFENSE (DOD); AND ENSURE THE PATIENT VOICE IS INCORPORATED IN THE DRUG DEVELOPMENT PROCESS. VOLUNTEERS ACROSS THE COUNTRY HELP AMPLIFY THESE OUTREACH EFFORTS.THROUGH THE LUPUS RESEARCH ALLIANCE ONGOING PUBLIC POLICY PROGRAM EFFORTS, SIGNIFICANT FUNDING FOR LUPUS RESEARCH HAS BEEN OBTAINED UNDER THE DEPARTMENT OF DEFENSE (DOD) CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) OPERATED BY THE ARMY MEDICAL RESEARCH AND MATERIEL COMMAND. FIRST, THE LUPUS RESEARCH ALLIANCE WAS RESPONSIBLE FOR PERSUADING CONGRESS TO INCLUDE LUPUS IN ITS LIST OF DESIGNATED DISEASES ELIGIBLE FOR FUNDING IN THE PEER REVIEWED MEDICAL PROGRAM. IN 2017, LUPUS RESEARCH ALLIANCE ADVOCACY EFFORTS SUCCEEDED IN THE ESTABLISHMENT OF THE LUPUS RESEARCH PROGRAM UNDER THE CDMRP. OVER THE PROGRAM'S FIRST THREE YEARS, $5 MILLION WAS ALLOCATED EACH YEAR SPECIFICALLY FOR LUPUS; THROUGH THE LUPUS RESEARCH ALLIANCE'S CONTINUED EFFORTS, THIS AMOUNT WAS INCREASED TO $10M IN THE FISCAL YEAR (FY) 2020 DEFENSE APPROPRIATIONS BILL AND HAS CONTINUED AT THAT LEVEL THROUGH FY 2023. OVER SEVEN YEARS, $55M WAS SECURED UNDER THIS PROGRAM, AND THE LRA HAS REQUESTED AN INCREASE TO $15M FOR FY 2024.THE LRA COLLABORATED WITH THE LUPUS AND ALLIED DISEASES ASSOCIATION (LADA) AND LUPUS FOUNDATION OF AMERICA (LFA) IN 2017 ON THE LUPUS PATIENT-FOCUSED DRUG DEVELOPMENT (PFDD) INITIATIVE. THIS EFFORT CULMINATED IN A REPORT DESIGNED TO PROVIDE THE FOOD AND DRUG ADMINISTRATION (FDA) WITH PERSPECTIVES FROM PEOPLE WITH LUPUS, ADVOCATES, AND CAREGIVERS TO HELP INFORM THE FDA'S DECISIONS AND OVERSIGHT DURING THE DRUG DEVELOPMENT AND REVIEW PROCESSES. THE LRA CONTINUES TO WORK TO BRING THE VOICE OF THE COMMUNITY TO THE DRUG REVIEW PROCESS BY RESPONDING TO RELEVANT CALLS FROM THE FDA FOR COMMENTS INCLUDING THOSE FOCUSED ON ENSURING CLINICAL TRIAL PARTICIPANTS REPRESENT THE REAL-WORLD DEMOGRAPHIC CHARACTERISTICS OF PEOPLE LIVING WITH THE DISEASE. THE LRA HAS WORKED WITH MEMBERS OF CONGRESS TO INCLUDE LANGUAGE IN THE REPORT THAT ACCOMPANIES THE AGRICULTURE-RURAL DEVELOPMENT-FDA FUNDING BILL FOR FISCAL YEAR 2022 AND 2023.ONGOING ADVOCACY FOCUSES ON ENSURING LEGISLATION THAT SECURES THE FEDERAL FUNDING SUPPORT NECESSARY TO AFFORD INVESTIGATORS THE RESOURCES TO FOLLOW THROUGH WITH RESEARCH DISCOVERIES THAT WILL IMPROVE THE UNDERSTANDING OF AND TREATMENT FOR LUPUS. EVERY YEAR, THE LRA TRAINS AND ORGANIZES ADVOCATES FROM ACROSS THE COUNTRY TO MEET WITH LEGISLATORS ON CAPITOL HILL. THE GOAL IS TO INCREASE AWARENESS OF LUPUS AND THE IMPACT IT HAS ON PEOPLE'S DAILY LIVES TO MEMBERS OF CONGRESS AND TO REQUEST THEIR SUPPORT FOR INCREASED FUNDING FOR LUPUS RESEARCH FROM FEDERAL PROGRAMS SUCH AS THE NIH AND CDMRP.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$26,275,886	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	0	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	Yes (1)	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	97	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	63	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	24	GoverningBodyVotingMembersCnt
Independent Voting Member	24	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DEBRA ROSE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (35 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
IRA AKSELRAD
CO-CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
RICHARD K DESCHERER
CO-CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
JOSEPH MAURIELLO
TREASURER	1.00	Yes (X)	Yes (X)	$0	$0	$0
BRENDA BLACKMON
SECRETARY	1.00	Yes (X)	Yes (X)	$0	$0	$0
BISHOP RUDY V CARLTON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIE COLON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
THOMAS O DANIEL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIE DESCHERER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KATEY DRISCOLL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SIR MARC FELDMANN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOTI FERDER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JOE GERMANOTTA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DAVID KIES
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL LAVECCHIA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ANNA FISCH
DIRECTOR	1.00	Yes (X)		$0	$0	$0
VERONICA VARGAS LUPO
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOLLY MCCABE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NADEEM MEGHJI
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM J MULVIHILL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ROBERT SEDER MD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL J WALLACE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM WOLFE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JULIUS WILLIAMS
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SPENCER ZWICK
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ALBERT ROY
CEO AND PRESIDENT	40.00		Yes (X)	$336,203	$0	$84,123
KENNETH M FARBER
CEO AND PRESIDENT (PAST)	40.00		Yes (X)	$406,576	$0	$62,583
DEBRA ROSE
VP AND CHIEF FINANCE OFFICER	40.00		Yes (X)	$226,160	$0	$49,285
TEODORA STAEVA
VP AND CHIEF SCIENTIFIC OFFICER	40.00		Yes (X)	$319,513	$0	$68,628
ANDREA O'NEILL
VP AND CHIEF DEVELOPMENT OFFICER	40.00		Yes (X)	$278,423	$0	$51,244
PENELOPE MITCHELL
VP OF COMMUNICATIONS	40.00			$186,455	$0	$39,042	Yes (X)
JONATHAN MARKS
DIRECTOR OF CORPORATE DEVELOPMENT	40.00			$148,131	$0	$51,381		Yes (X)
DEVON KELLY
LUPUS NEXUS DIRECTOR	40.00			$159,801	$0	$37,410		Yes (X)
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANTHROPY	40.00			$177,429	$0	$40,693		Yes (X)
DIANE GROSS
NATIONAL DIRECTOR OF ADVOCACY	40.00			$145,081	$0	$47,054		Yes (X)
EBONY SCOTT
HEALTH EQUITY DIRECTOR	40.00			$136,879	$0	$34,036		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,520,651	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$565,479	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	21	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
DELOITTE CONSULTING LLP
4022 SELLS DRIVE	HERMITAGE	TN	37076	LUPUS NEXUS PLANNING CONSULTANT	$414,344
CONVERGENCY LLC
1015 15TH ST 6TH FL NW	WASHINGTON	DC	20005	FDA CONSULTANT	$300,000
EG&A CIRP DBA MCS HEALTHCARE PR
110 ALLEN RD 300	BASKING RIDGE	NJ	07921	PUBLIC RELATIONS CONSULTANT	$236,096
NKECHINYERE ANYADIKE
907 MILTON STREET	RICHMOND	VA	23222	LUPUS NEXUS CONSULTANT	$146,240
SCHANER & LUBITZ PLLC
4550 MONTGOMERY AVE SUITE 1100 N	BETHESDA	MD	20814	LIFE SCIENCES ATTORNEY	$118,588

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	9	CntrctRcvdGreaterThan100KCnt
Fundraising	$5,206,305	FundraisingAmt
Government Grants	$294,339	GovernmentGrantsAmt
All Other Contributions	$12,874,909	AllOtherContributionsAmt
Noncash Contributions	$270,634	NoncashContributionsAmt
Total Contributions	$18,375,553	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	LUCIN CONSULTING REVENUE	Desc
Business	900099	BusinessCd
Total Revenue Column	$1,232,995	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,232,995	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$1,232,995	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,017,764	TotalRevenueColumnAmt
Exclusion	$2,017,764	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$10,028,182	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$9,593,141	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$435,041	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$435,041	TotalRevenueColumnAmt
Exclusion	$435,041	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$548,712	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$5,206,305	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$548,712	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	SUBLET INCOME	Desc
Business	900099	BusinessCd
Total Revenue Column	$638,138	TotalRevenueColumnAmt
Exclusion	$638,138	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$638,138	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$22,699,491	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,232,995	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$3,090,943	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$10,484,183	TotalAmt
Program Services	$10,484,183	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$82,232	TotalAmt
Program Services	$82,232	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$6,810,864	TotalAmt
Program Services	$6,810,864	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,882,737	TotalAmt
Program Services	$1,029,989	ProgramServicesAmt
Management And General	$399,334	ManagementAndGeneralAmt
Fundraising	$453,414	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$4,026,530	TotalAmt
Program Services	$2,278,712	ProgramServicesAmt
Management And General	$773,852	ManagementAndGeneralAmt
Fundraising	$973,966	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$290,856	TotalAmt
Program Services	$165,951	ProgramServicesAmt
Management And General	$53,041	ManagementAndGeneralAmt
Fundraising	$71,864	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$925,365	TotalAmt
Program Services	$521,636	ProgramServicesAmt
Management And General	$178,554	ManagementAndGeneralAmt
Fundraising	$225,175	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$407,291	TotalAmt
Program Services	$228,427	ProgramServicesAmt
Management And General	$80,297	ManagementAndGeneralAmt
Fundraising	$98,567	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$171,318	TotalAmt
Program Services	$112,851	ProgramServicesAmt
Management And General	$42,810	ManagementAndGeneralAmt
Fundraising	$15,657	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$66,298	TotalAmt
Management And General	$66,298	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$126,919	TotalAmt
Program Services	$126,919	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$65,000	TotalAmt
Fundraising	$65,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$226,555	TotalAmt
Management And General	$226,555	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,333,191	TotalAmt
Program Services	$1,536,431	ProgramServicesAmt
Management And General	$630,989	ManagementAndGeneralAmt
Fundraising	$165,771	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$120,275	TotalAmt
Program Services	$54,327	ProgramServicesAmt
Management And General	$44,173	ManagementAndGeneralAmt
Fundraising	$21,775	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$847,284	TotalAmt
Program Services	$599,362	ProgramServicesAmt
Management And General	$154,177	ManagementAndGeneralAmt
Fundraising	$93,745	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$948,653	TotalAmt
Program Services	$577,204	ProgramServicesAmt
Management And General	$166,752	ManagementAndGeneralAmt
Fundraising	$204,697	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$427,290	TotalAmt
Program Services	$293,239	ProgramServicesAmt
Management And General	$96,720	ManagementAndGeneralAmt
Fundraising	$37,331	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$984,350	TotalAmt
Program Services	$941,068	ProgramServicesAmt
Management And General	$10,249	ManagementAndGeneralAmt
Fundraising	$33,033	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$115,500	TotalAmt
Program Services	$64,777	ProgramServicesAmt
Management And General	$22,772	ManagementAndGeneralAmt
Fundraising	$27,951	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$56,333	TotalAmt
Program Services	$32,198	ProgramServicesAmt
Management And General	$10,835	ManagementAndGeneralAmt
Fundraising	$13,300	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
PRINTING & PUBLICATIONS	$308,530	$36,965	$12,470	$259,095
CLINICAL STUDIES	$197,416	$197,416
POSTAGE, SHIPPING & DEL	$134,996	$7,967	$21,460	$105,569
DATA PROCESSING	$127,051	$32,997	$12,835	$81,219

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$206,908	TotalAmt
Program Services	$60,171	ProgramServicesAmt
Management And General	$19,008	ManagementAndGeneralAmt
Fundraising	$127,729	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$32,373,925	TotalAmt
Program Services	$26,275,886	ProgramServicesAmt
Management And General	$3,023,181	ManagementAndGeneralAmt
Fundraising	$3,074,858	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$12,383,714	BOYAmt
EOY	$5,098,361	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$847,554	BOYAmt
EOY	$864,824	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$2,944,619	BOYAmt
EOY	$1,416,005	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$332,914	BOYAmt
EOY	$626,727	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$370,260	BOYAmt
EOY	$567,776	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,114,140	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$884,288	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$275,664	BOYAmt
EOY	$229,852	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$92,239,618	BOYAmt
EOY	$85,820,065	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$1,025,732	BOYAmt
EOY	$1,033,847	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$489,871	BOYAmt
EOY	$3,249,835	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$110,909,946	BOYAmt
EOY	$98,907,292	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$763,708	BOYAmt
EOY	$878,056	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$39,844,509	BOYAmt
EOY	$29,652,068	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$42,880	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$772,731	BOYAmt
EOY	$4,845,583	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$41,423,828	BOYAmt
EOY	$35,375,707	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$58,936,120	BOYAmt
EOY	$61,152,445	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$10,549,998	BOYAmt
EOY	$2,379,140	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$69,486,118	BOYAmt
EOY	$63,531,585	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$110,909,946	BOYAmt
EOY	$98,907,292	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$9,674,434	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$7,913,885	NetUnrlzdGainsLossesInvstAmt
Prior Period Adjustments	$8,680,000	PriorPeriodAdjustmentsAmt
Other Changes In Net Assets	$2,953,786	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$15,396,535	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$17,673,622	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$41,539,746	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$18,941,837	CurrentTaxYearMinus1YearAmt
Current Tax Year	$18,375,553	CurrentTaxYearAmt
Total	$111,927,293	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$15,396,535	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$17,673,622	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$41,539,746	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$18,941,837	CurrentTaxYearMinus1YearAmt
Current Tax Year	$18,375,553	CurrentTaxYearAmt
Total	$111,927,293	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$44,637,444	SubstantialContributorsTotAmt
Public Support Total170	$67,289,849	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,336,303	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,445,946	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,614,390	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,025,770	CurrentTaxYearMinus1YearAmt
Current Tax Year	$2,655,902	CurrentTaxYearAmt
Total	$9,078,311	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$121,005,604	TotalSupportAmt
Gross Receipts Rltd Activities	$6,131,797	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.55610	PublicSupportCY170Pct
Public Support PY170	0.51030	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$622,162	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$622,162	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$31,751,763	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$32,373,925	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$846,235	CurrentYearMinus3Amt
Current Year Minus2	$743,966	CurrentYearMinus2Amt
Current Year Minus1	$647,293	CurrentYearMinus1Amt
Current Year	$622,162	CurrentYearAmt
Total	$2,859,656	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$61,314,537	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$3,669,040	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,659,722	OtherExpendituresAmt
End Year Balance	$53,986,019	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$56,586,437	BeginningYearBalanceAmt
Investment Earnings Or Losses	$7,839,333	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,111,233	OtherExpendituresAmt
End Year Balance	$61,314,537	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,813,456	BeginningYearBalanceAmt
Investment Earnings Or Losses	$6,226,708	InvestmentEarningsOrLossesAmt
Other Expenditures	$1,453,727	OtherExpendituresAmt
End Year Balance	$56,586,437	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$46,122,925	BeginningYearBalanceAmt
Investment Earnings Or Losses	$8,404,231	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,713,456	OtherExpendituresAmt
End Year Balance	$51,813,456	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,742,397	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$2,936,193	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,683,279	OtherExpendituresAmt
End Year Balance	$46,122,925	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	1.00000	BoardDesignatedBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$416,504	OtherCostOrOtherBasisAmt
Depreciation	$265,620	DepreciationAmt
Book Value	$150,884	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$697,636	OtherCostOrOtherBasisAmt
Depreciation	$618,668	DepreciationAmt
Book Value	$78,968	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$229,852	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	OPERATING LEASE LIABILITY	Desc
Amt	$4,845,583	Amt

Field	Value	IRS element (for citing)
Total Liability	$4,845,583	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$19,413,169	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$7,913,885	NetUnrealizedGainsInvstAmt
Recoveries Prior Year Grants	$4,854,118	RecoveriesPriorYearGrantsAmt
Revenue Not Reported	-$3,059,767	RevenueNotReportedAmt
Revenue Subtotal	$22,472,936	RevenueSubtotalAmt
Investment Expenses Not Incld	$226,555	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$226,555	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$22,699,491	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$34,047,702	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	$1,910,103	OtherExpensesIncludedAmt
Expenses Not Reported	$1,910,103	ExpensesNotReportedAmt
Expenses Subtotal	$32,137,599	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$226,555	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$9,771	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$236,326	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$32,373,925	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	BOARD DESIGNATED (QUASI) ENDOWMENT FUND INCOME TO BE USED FOR RESEARCH PROGRAM GRANTS. PRINCIPAL TO REMAIN INTACT UNLESS HIGH PRIORITY LUPUS RESEARCH PROJECTS NEED TO BE FUNDED THAT COULD NOT BE FUNDED OTHERWISE.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	IMPAIRMENT LOSS ON OPERATING LEASE RIGHT-OF-USE ASSET 1,910,103.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	RETURN OF GRANTS & ADJUSTMENTS 9,771.
PART PART XII, LINE 4B	UNUSED PORTIONS OF GRANTS RETURNED TO LRA THAT WERE PAID IN PREVIOUS YEARS IN THE AMOUNT OF $9,771. THESE AMOUNTS ARE RECONCILING ITEMS BETWEEN THE REVENUE AND EXPENSES FROM THE AUDITED FINANCIAL STATEMENTS AND THOSE REPORTED ON FORM 990.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	GRANTS TO RECIPIENTS	$680,000
EAST ASIA AND THE PACIFIC	GRANTS TO RECIPIENTS	$2,877,407
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	GRANTS TO RECIPIENTS	$3,253,457

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$6,810,864	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$6,810,864	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (11 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
NORTH AMERICA	LUPUS RESEARCH	$660,000	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$10,000	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$10,000	WIRE	$0
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$2,827,071	ACH	$0
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$8,611	WIRE	$0
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$41,725	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$2,821,485	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$10,000	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$8,611	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$124,834	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$288,527	WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	3	Total501c3OrgCnt
Total Other Org	5	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 2:

PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, DURING THE APPLICATION PHASE, THE SPONSORING INSTITUTION (SI) MUST AGREE THAT THEY WILL AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S GRANT-SPECIFIC POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: A. CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. B. AGREE THAT PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. C. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. D. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. E. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. F. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING - FORUM FOR DISCOVERY. G. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OR PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD PROJECT PHASE: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THAT THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE PROJECT THAT IS THE SUBJECT OF THE AWARD. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THAT THE PI WILL ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LRA. E. PI'S WILLINGNESS TO COMPLETE A BRIEF SURVEY AND SUBMIT A COPY OF THEIR UP-TO-DATE CV TO THE LRA TWO AND FIVE YEARS AFTER THE GRANT END DATE. ALL SI'S RECEIVE A PAYMENT AND DELIVERABLES SCHEDULE AND THE PROJECT IS MONITORED BY: A. PERIODIC PROGRESS REPORTS B. PERIODIC FINAL REPORTS C. ANNUAL MILESTONES SCHEDULE D. ADHERENCE TO LRA TERMS AND CONDITIONS GRANT CHANGES: WHEN EXTENSIONS ARE AWARDED, ADDITIONAL PROGRESS REPORTS AND FINANCIAL REPORTS ARE REQUIRED. AT THE END OF THE GRANT, FINAL PROGRESS AND FINANCIAL REPORTS ARE REQUIRED; UNSPENT AMOUNTS OVER $500 ARE TO BE RETURNED TO THE LRA. A. THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND ORAL OR POSTER PRESENTATIONS. B. THE SI MUST SUBMIT A COPY OF THE IRS DETERMINATION LETTER OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI.

PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DS CONSULTING GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	845 THIRD AVENUE 6TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10022	ZIPCd

Field	Value	IRS element (for citing)
Activity	SPECIAL EVENT CONSULTANT NY GALA	ActivityTxt
Fundraiser Control Of Funds	Yes (1)	FundraiserControlOfFundsInd
Gross Receipts	$3,914,302	GrossReceiptsAmt
Retained By Contractor	$65,000	RetainedByContractorAmt
Net To Organization	$3,914,302	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$3,914,302	TotalGrossReceiptsAmt
Total Retained By Contractors	$65,000	TotalRetainedByContractorsAmt
Total Net To Organization	$3,914,302	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GALA CELEBRATION	Event1Nm
Gross Receipts Event1	$4,272,623	GrossReceiptsEvent1Amt
Charitable Contri Event1	$3,897,820	CharitableContriEvent1Amt
Gross Revenue Event1	$374,803	GrossRevenueEvent1Amt
Other Direct Expenses Event1	$374,803	OtherDirectExpensesEvent1Amt
Event2	WALK-A-THONS	Event2Nm
Gross Receipts Event2	$1,482,394	GrossReceiptsEvent2Amt
Charitable Contri Event2	$1,308,485	CharitableContriEvent2Amt
Gross Revenue Event2	$173,909	GrossRevenueEvent2Amt
Rent Facility Costs Event2	$15,750	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$11,175	FoodAndBeverageEvent2Amt
Other Direct Expenses Event2	$146,984	OtherDirectExpensesEvent2Amt
Gross Receipts Total	$5,755,017	GrossReceiptsTotalAmt
Charitable Contributions Tot	$5,206,305	CharitableContributionsTotAmt
Gross Revenue Total Events	$548,712	GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events	$15,750	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$11,175	FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events	$521,787	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$548,712	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	DS CONSULTING PLANNED AND MANAGED LRA'S GALA EVENT. CONTRACT AMOUNT FOR THE PERIOD COVERING 1/1/22 - 12/31/22 WAS $65,000 PLUS REIMBURSABLE EXPENSES.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (36 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Valuation Method UsedValuationMethodUsedDesc	Purpose Of GrantPurposeOfGrantTxt
BENAROYA RESEARCH INSTITUTE ATVIRGINIA MASON
1201 9TH AVE	SEATTLE	WA	98101	910653422	501(C)(3)	$11,418	$0	BOOK	LUPUS RESEARCH
BOSTON CHILDREN'S HOSPTIAL
300 LONGWOOD AVENUE	BOSTON	MA	02115	042774441	501(C)(3)	$8,611	$0	BOOK	LUPUS RESEARCH
BRIGHAM AND WOMEN'S HOSPITAL
77 AVENUE LOUIS PASTEUR	BOSTON	MA	02115	042312909	501(C)(3)	$166,423	$0	BOOK	LUPUS RESEARCH
BROAD INSTITUTE INC
SEVEN CAMBRIDGE CENTER	CAMBRIDGE	MA	02142	263428781	501(C)(3)	$30,908	$0	BOOK	LUPUS RESEARCH
CHILDREN'S HOSPITAL MEDICAL CENTER CINCINNATI
3333 BURNET AVE MLC 9002	CINCINNATI	OH	45229	310833936	501(C)(3)	$277,504	$0	BOOK	LUPUS RESEARCH
DARTMOUTH-HITCHCOCK CLINIC
1 MEDICAL CENTER DR	LEBANON	NH	03756	222519596	501(C)(3)	$281,461	$0	BOOK	LUPUS RESEARCH
EMORY UNIVERSITY
1762 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501(C)(3)	$49,006	$0	BOOK	LUPUS RESEARCH
FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH INC
9650 ROCKVILLE PIKE	BETHESDA	MD	20814	521986675	501(C)(3)	$100,000	$0	BOOK	LUPUS RESEARCH
HOSPITAL FOR SPECIAL SURGERY
535 E 70TH STREET	NEW YORK	NY	10021	131624135	501(C)(3)	$11,481	$0	BOOK	LUPUS RESEARCH
JACKSON LABORATORY
600 MAIN STREET	BAR HARBOR	ME	04609	010211513	501(C)(3)	$49,006	$0	BOOK	LUPUS RESEARCH
JOHN'S HOPKINS UNIVERSITY
3910 KESWICK ROAD STE N2100	BALTIMORE	MD	21211	520595110	501(C)(3)	$582,761	$0	BOOK	LUPUS RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)(3)	$416,389	$0	BOOK	LUPUS RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	29425	576028985	SECTION 115 - SC STA	$17,221	$0	BOOK	LUPUS RESEARCH
MONTEFIORE MEDICAL CENTER
111 EAST 210TH STREET	BRONX	NY	10467	131740114	501(C)(3)	$25,000	$0	BOOK	LUPUS RESEARCH
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501(C)(3)	$474,748	$0	BOOK	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA AT BERKELEY
2200 UNIVERSITY AVE	BERKELEY	CA	94720	946002123	501(C)(3)	$8,611	$0	BOOK	LUPUS RESEARCH
ST JUDE CHILDREN'S HOSPITAL
262 DANNY THOMAS PL	MEMPHIS	TN	381053678	620646012	501(C)(3)	$929,380	$0	BOOK	LUPUS RESEARCH
STANFORD UNIVERSITY
3145 PORTER DRIVE	PALO ALTO	CA	94304	941156365	501(C)(3)	$291,389	$0	BOOK	LUPUS RESEARCH
STATE UNIVERSITY OF NY AT STONY BROOK
ONE LINCOLN CENTER	SYRACUSE	NY	13202	141368361	501(C)(3)	$8,610	$0	BOOK	LUPUS RESEARCH
TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH STREET	LUBBOCK	TX	79430	752668014	TX STATE GOVERMENT	$26,044	$0	BOOK	LUPUS RESEARCH
THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
350 COMMUNITY DRIVE	MANHASSET	NY	11030	112673595	501(C)(3)	$3,390,307	$0	BOOK	LUPUS RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE MC0934	LA JOLLA	CA	92093	956006144	501(C)(3)	$8,611	$0	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE STE 501	CHICAGO	IL	60637	362177139	501(C)(3)	$11,178	$0	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
6000 FELDWOOD ROAD	COLLEGE PARK	GA	30349	566001393	501(C)(3)	$87,085	$0	BOOK	LUPUS RESEARCH
TULANE UNIVERSITY AKA THE TULANE EDUCATIONAL FUND
200 BROADWAY ST STE 120	NEW ORLEANS	LA	70118	720423889	501(C)(3)	$29,369	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S	BIRMINGHAM	AL	35294	636005396	501(C)(3)	$29,369	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
2200 UNIVERSITY HALL	BERKELEY	CA	94720	946036493	501(C)(3)	$8,611	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS
3100 MARINE ST 6TH FL	BOULDER	CO	80309	846000555	501(C)(3)	$10,000	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF FLORIDA
207 TIGERT HALL	GAINSEVILLE	FL	32611	596002052	FL STATE GOVERMENT	$296,844	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167325	MA STATE GOVERMENT	$580,139	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF MICHIGAN
503 THOMPSON STREET	ANN ARBOR	MI	48109	386006309	501(C)(3)	$571,547	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	39216	646008520	501(C)(3)	$20,000	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501(C)(3)	$571,547	$0	BOOK	LUPUS RESEARCH
UNIVERSITY OF WASHINGTON
3917 UNIVERSITY WAY NE	SEATTLE	WA	98195	916001537	SECTION 115 - WA STA	$30,000	$0	BOOK	LUPUS RESEARCH
VANDERBILT UNIVERSITY MEDICAL CENTER
1211 MEDICAL CENTER DRIVE	NASHVILLE	TN	37232	352528741	501(C)(3)	$41,725	$0	BOOK	LUPUS RESEARCH
YALE UNIVERSITY
BOX 208239	NEW HAVEN	CT	06520	060646973	501(C)(3)	$1,029,380	$0	BOOK	LUPUS RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	23	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

Field	Value	IRS element (for citing)
Grant Type	LUPUS EMERGENCY GRANT - $500 MAX PER PERSON	GrantTypeTxt
Recipient	181	RecipientCnt
Cash Grant	$82,232	CashGrantAmt
Valuation Method Used	BILLS	ValuationMethodUsedDesc
Non Cash Assistance	LUPUS EMERGENCY GRANT - $500 MAX PER PERSON	NonCashAssistanceDesc

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, DURING THE APPLICATION PHASE, THE SPONSORING INSTITUTION (SI) MUST AGREE THAT THEY WILL AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S GRANT-SPECIFIC POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: A. CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. B. AGREE THAT THE PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. C. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. D. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. E. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. F. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING - FORUM FOR DISCOVERY. G. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OR PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD PROJECT PHASE: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THAT THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE PROJEC TTHAT IS THE SUBJECT OF THE AWARD. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THAT THE PI WILL ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LRA. E. PI'S WILLINGNESS TO COMPLETE A BRIEF SURVEY AND SUBMIT A COPY OF THEIR UP-TO-DATE CV TO THE LRA TWO AND FIVE YEARS AFTER THE GRANT END DATE. ALL SI'S RECEIVE A PAYMENT AND DELIVERABLES SCHEDULE AND THE PROJECT IS MONITORED BY: A. PERIODIC PROGRESS REPORTS B. PERIODIC FINAL REPORTS C. ANNUAL MILESTONE SCHEDULE D. ADHERENCE TO LRA TERMS AND CONDITIONS GRANT CHANGES: WHEN EXTENSIONS ARE AWARDED, ADDITIONAL PROGRESS REPORTS AND FINANCIAL REPORTS ARE REQUIRED. AT THE END OF THE GRANT, FINAL PROGRESS AND FINANCIAL REPORTS ARE REQUIRED; UNSPENT AMOUNTS OVER $500 ARE TO BE RETURNED TO THE LRA. THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND ORAL OR POSTER PRESENTATIONS. THE SI MUST SUBMIT A COPY OF THE IRS DETERMINATION LETTER OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (11 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
ALBERT ROY
CEO AND PRESIDENT	$274,569	$0	$60,000	$0	$1,634	$0	$30,500	$0	$53,623	$0	$420,326	$0	$0	$0
KENNETH M FARBER
CEO AND PRESIDENT (PAST)	$393,795	$0	$0	$0	$12,781	$0	$31,000	$0	$31,583	$0	$469,159	$0	$0	$0
DEBRA ROSE
VP AND CHIEF FINANCE OFFICER	$193,200	$0	$30,000	$0	$2,960	$0	$25,116	$0	$24,169	$0	$275,445	$0	$0	$0
TEODORA STAEVA
VP AND CHIEF SCIENTIFIC OFFICER	$267,534	$0	$50,000	$0	$1,979	$0	$24,800	$0	$43,828	$0	$388,141	$0	$0	$0
ANDREA O'NEILL
VP AND CHIEF DEVELOPMENT OFFICER	$226,600	$0	$50,000	$0	$1,823	$0	$30,426	$0	$20,818	$0	$329,667	$0	$0	$0
PENELOPE MITCHELL
VP OF COMMUNICATIONS	$173,933	$0	$10,000	$0	$2,522	$0	$14,123	$0	$24,919	$0	$225,497	$0	$0	$0
JONATHAN MARKS
DIRECTOR OF CORPORATE DEVELOPMENT	$146,200	$0	$1,000	$0	$931	$0	$16,192	$0	$35,189	$0	$199,512	$0	$0	$0
DEVON KELLY
LUPUS NEXUS DIRECTOR	$155,175	$0	$2,500	$0	$2,126	$0	$13,192	$0	$24,218	$0	$197,211	$0	$0	$0
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANTHROPY	$169,200	$0	$5,000	$0	$3,229	$0	$19,162	$0	$21,531	$0	$218,122	$0	$0	$0
DIANE GROSS
NATIONAL DIRECTOR OF ADVOCACY	$142,946	$0	$750	$0	$1,385	$0	$15,807	$0	$31,247	$0	$192,135	$0	$0	$0
EBONY SCOTT
HEALTH EQUITY DIRECTOR	$133,900	$0	$2,500	$0	$479	$0	$10,507	$0	$23,529	$0	$170,915	$0	$0	$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	10	ContributionCnt
Noncash Contributions Rpt F990	$270,634	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG STOCK VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 32B:	FormAndLineReferenceDesc
Explanation	LRA HAS AN ACCOUNT WITH MORGAN STANLEY, WHICH LRA USES TO SELL THE CONTRIBUTIONS IT RECEIVES THOUGH STOCKS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2	IRA AKSELRAD AND ROBERT WOOD JOHNSON, IV (PAST CHAIRMAN OF THE BOARD), HAVE A BUSINESS RELATIONSHIP. RICHARD K. DESCHERER (CO-CHAIR) AND JENNIE DESCHERER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11B	AFTER PREPARATION OF FORM 990 BY LRA'S AUDITOR, LUTZ AND CARR, THE 990 IS REVIEWED BY THE LRA'S EXECUTIVE OFFICERS, THE CHIEF FINANCIAL OFFICER AND THE PRESIDENT. THE FINANCE AND AUDIT COMMITTEE OF THE BOARD THEN MEETS TO REVIEW THE 990 BEFORE FILING AND APPROVES FOR FILING WITH ANY NOTED CHANGES. A DRAFT OF THE 990 IS THEN SENT OUT TO THE FULL BOARD FOR COMMENT PRIOR TO FILING WITH THE IRS. THE FINAL FORM 990 IS PRESENTED TO THE FULL BOARD AT THE NEXT SCHEDULED MEETING.
FORM 990, PART VI, SECTION B, LINE 12C	THE GOVERNANCE COMMITTEE OF THE BOARD IS RESPONSIBLE FOR MONITORING CONFLICTS OF INTEREST. AN ANNUAL CONFLICT OF INTEREST DISCLOSURE FORM IS REQUIRED TO BE FILLED OUT EACH YEAR BY BOARD MEMBERS, OFFICERS AND KEY EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15	THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS ASSISTED THE BOARD IN FULFILLING ITS OVERSIGHT RESPONSIBILITIES RELATING TO THE COMPENSATION AND BENEFITS OF THE PRESIDENT AND OTHER EXECUTIVE OFFICERS; AND PROVIDED RECOMMENDATIONS REGARDING MANAGEMENT SUCCESSORS. ANNUALLY THE COMMITTEE REVIEWS AND RECOMMENDS TO THE BOARD THE SALARY FOR THE PRESIDENT AND OTHER OFFICERS/KEY EMPLOYEES. IN 2022, THE COMMITTEE REVIEWED AND APPROVED BASE SALARIES, ANNUAL COST OF LIVING ADJUSTMENTS AND BONUSES FOR ALL STAFF.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANIZATION'S GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST, THE CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE ALSO AVAILABLE UPON REQUEST AND ARE ON THE FINANCIALS PAGE OF OUR WEBSITE AND ON GUIDESTAR.ORG
FORM 990, PART XI, LINE 9:	REFUND OF GRANTS 9,771. CANCELLED GRANTS 4,854,118. IMPAIRMENT LOSS ON OPERATING LEASE RIGHT-OF0USE ASSET -1,910,103.
FORM 990, PART V, QUESTION 2A	THE LRA CONTRACTS WITH TRINET, A PROFESSIONAL EMPLOYER ORGANIZATION (PEO), TO PROVIDE PAYROLL AND BENEFITS AS A CO-EMPLOYER WITH THE LRA. LRA PAYROLL AND BENEFITS ARE ADMINISTERED BY TRINET AS APPROVED BY LRA OFFICERS. LRA PAYROLL IS THEREFORE UNDER THE TRINET EIN: 13-3867443 AND W-2'S ARE PREPARED UNDER THAT EIN BY TRINET.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS THERAPEUTICS LLC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
EIN	823984908	EIN
Primary Activities	LRA'S CLINICAL TRIAL AFFILIATE, OVERSEEING CLINICAL RESEARCH ACTIVITY	PrimaryActivitiesTxt
Legal Domicile State	NY	LegalDomicileStateCd
Total Income	$1,942,523	TotalIncomeAmt
End Of Year Assets	$1,314,491	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	YES	BusinessNameLine1Txt