CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization: CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (EIN 46-4152355)
Tax period: 2022-01-01 to 2022-12-31
Filed: 2023-10-17
IRS object ID: 202302909349301100
Schema version: 2022v5.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule F
Schedule I
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2023-10-17T09:25:06-05:00	ReturnTs
Tax Period End	2022-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	390919055	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	RITZ HOLMAN LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	330 E KILBOURN AVE SUITE 550	AddressLine1Txt
City	MILWAUKEE	CityNm
State Abbreviation	WI	StateAbbreviationCd
ZIP	53202	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2022-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	464152355	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CHILDHOOD ARTHRITIS AND RHEUMATOLOGY	BusinessNameLine1Txt
Business Name Line2	RESEARCH ALLIANCE	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	CHIL	BusinessNameControlTxt
Phone	2027721028	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1050 CONNECTICUT AVENUE NW 500	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20036	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	JAY MEHTA MD MS	PersonNm
Person Title	TREASURER	PersonTitleTxt
Phone	2027721028	PhoneNum
Signature	2023-10-17	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	JAY	PersonFirstNm
Person Last	MEHTA MD MS	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	0	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	KATY L SOMMER	PreparerPersonNm
PTIN	P00273273	PTIN
Phone	4142711451	PhoneNum
Preparation	2023-10-17	PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	2	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2022	TaxYr
Build TS	2023-04-26 12:10:37Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ROBERT COLBERT MD PHD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1050 CONNECTICUT AVENUE NW 500	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20036	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$10,561,848	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	HTTPS://WWW.CARRAGROUP.ORG/	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	2014	FormationYr
Legal Domicile State	CA	LegalDomicileStateCd
Activity Or Mission	CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES.	ActivityOrMissionDesc
Voting Members Governing Body	11	VotingMembersGoverningBodyCnt
Voting Members Independent	7	VotingMembersIndependentCnt
Total Employee	0	TotalEmployeeCnt
Total Volunteers	6	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$205,868	PYContributionsGrantsAmt
CY Contributions Grants	$648,501	CYContributionsGrantsAmt
PY Program Service Revenue	$6,231,027	PYProgramServiceRevenueAmt
CY Program Service Revenue	$9,747,478	CYProgramServiceRevenueAmt
PY Investment Income	$1,422	PYInvestmentIncomeAmt
CY Investment Income	$165,869	CYInvestmentIncomeAmt
PY Other Revenue	$29,753	PYOtherRevenueAmt
CY Other Revenue	$0	CYOtherRevenueAmt
PY Total Revenue	$6,468,070	PYTotalRevenueAmt
CY Total Revenue	$10,561,848	CYTotalRevenueAmt
PY Grants And Similar Paid	$1,041,992	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$2,002,352	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$263,470	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$1,060,475	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$0	CYTotalFundraisingExpenseAmt
PY Other Expenses	$8,719,023	PYOtherExpensesAmt
CY Other Expenses	$8,081,893	CYOtherExpensesAmt
PY Total Expenses	$10,024,485	PYTotalExpensesAmt
CY Total Expenses	$11,144,720	CYTotalExpensesAmt
PY Revenues Less Expenses	-$3,556,415	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$582,872	CYRevenuesLessExpensesAmt
Total Assets BOY	$18,755,308	TotalAssetsBOYAmt
Total Assets EOY	$17,073,918	TotalAssetsEOYAmt
Total Liabilities BOY	$4,780,755	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$3,682,237	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$13,974,553	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$13,391,681	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$7,806,542	ExpenseAmt
Revenue	$9,431,171	RevenueAmt
Desc	CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$95,048	ExpenseAmt
Revenue	$316,307	RevenueAmt
Desc	ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$2,002,352	ExpenseAmt
Grant	$2,002,352	GrantAmt
Desc	GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION.	Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

Field	Value	IRS element (for citing)
Desc	OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$9,903,942	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	0	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	0	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	0	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	0	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	0	ProfessionalFundraisingInd
Fundraising Activities	0	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	0	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	0	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	15	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	0	EmployeeCnt
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	0	QuidProQuoContributionsInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	11	GoverningBodyVotingMembersCnt
Independent Voting Member	7	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	Yes (1)	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	Yes (1)	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CARRA-STEPHEN WITTE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	2027721028	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1050 CONNECTICUT AVENUE NW STE 500	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20036	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (11 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt
EMILY VON SCHEVEN MD MAS
PAST PRESIDENT	10.00	Yes (X)	Yes (X)	$76,479	$0	$0
CHRISTY SANDBORG MD
CHAIR-SECRETARTY	3.00	Yes (X)	Yes (X)	$0	$0	$0
ROBERT COLBERT MD PHD
PRESIDENT	10.00	Yes (X)	Yes (X)	$50,000	$0	$0
CAROL WALLACE MD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
HARRY SAAL PHD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
STACY ARDOIN MD
VICE PRESIDENT	10.00	Yes (X)	Yes (X)	$68,220	$0	$0
JAY MEHTA MD MS
TREASURER	5.00	Yes (X)	Yes (X)	$32,103	$0	$0
LEIGH WHITE JD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL SOLOMON MD PHD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JOHN SUNDY MD PHD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ROBERT FUHLBRIGGE MD PHD
DIRECTOR	5.00	Yes (X)		$34,020	$0	$0

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$260,822	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$0	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	0	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	0	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
DUKE CLINICAL RESEARCH INSTITUTE
2400 PRATT ST	DURHAM	NC	27705	CARRA REGISTRY MANAGEMENT	$6,617,845
HARVARD MEDICAL SCHOOL
300 LONGWOOD AVE	BOSTON	MA	02115	INFORMATICS SUPPORT FOR REGISTRY	$555,468
EXECUTIVE DIRECTOR INC
555 E WELLS ST STE 1100	MILWAUKEE	WI	53202	MANAGEMENT SERVICES	$378,403
BOSTON CHILDREN'S HOSPITAL
300 LONGWOOD AVE	BOSTON	MA	02115	INFORMATICS SUPPORT FOR REGISTRY	$290,124
CONSTRAT SERVICES
150 WEST 55TH STREET	NEW YORK	NY	10019	MANAGEMENT SERVICES	$289,049

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	6	CntrctRcvdGreaterThan100KCnt
All Other Contributions	$648,501	AllOtherContributionsAmt
Total Contributions	$648,501	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
RESEARCH STUDIES & COLLAB	541900	$9,696,363	$9,696,363
MEMBERSHIP DUES	541900	$51,115	$51,115

Field	Value	IRS element (for citing)
Total Program Service Revenue	$9,747,478	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$165,869	TotalRevenueColumnAmt
Exclusion	$165,869	ExclusionAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$10,561,848	TotalRevenueColumnAmt
Related Or Exempt Func Income	$9,747,478	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$165,869	ExclusionAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part IX	Yes (X)	InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$2,002,352	TotalAmt
Program Services	$2,002,352	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$260,822	TotalAmt
Program Services	$260,822	ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$657,603	TotalAmt
Program Services	$343,202	ProgramServicesAmt
Management And General	$314,401	ManagementAndGeneralAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$94,318	TotalAmt
Program Services	$43,386	ProgramServicesAmt
Management And General	$50,932	ManagementAndGeneralAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$47,732	TotalAmt
Program Services	$21,957	ProgramServicesAmt
Management And General	$25,775	ManagementAndGeneralAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$378,403	TotalAmt
Program Services	$283,802	ProgramServicesAmt
Management And General	$94,601	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$28,464	TotalAmt
Management And General	$28,464	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$1,561,703	TotalAmt
Program Services	$1,047,603	ProgramServicesAmt
Management And General	$514,100	ManagementAndGeneralAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$6,580	TotalAmt
Management And General	$6,580	ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$5,837	TotalAmt
Management And General	$5,837	ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$157,854	TotalAmt
Program Services	$28,731	ProgramServicesAmt
Management And General	$129,123	ManagementAndGeneralAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$2,994	TotalAmt
Program Services	$1,497	ProgramServicesAmt
Management And General	$1,497	ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$95,048	TotalAmt
Program Services	$95,048	ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$7,250	TotalAmt
Management And General	$7,250	ManagementAndGeneralAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$33,949	TotalAmt
Management And General	$33,949	ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt
REGISTRY OPERATIONS	$5,466,804	$5,466,804
SUBSTUDIES RESEARCH PRO	$249,997	$249,997
MANUSCRIPTS	$54,267	$54,267
MEMBERSHIP RECRUITMENT	$21,098		$21,098

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$11,645	TotalAmt
Program Services	$4,474	ProgramServicesAmt
Management And General	$7,171	ManagementAndGeneralAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$11,144,720	TotalAmt
Program Services	$9,903,942	ProgramServicesAmt
Management And General	$1,240,778	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$5,149,688	BOYAmt
EOY	$563,474	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$11,025,195	BOYAmt
EOY	$11,191,064	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$2,548,898	BOYAmt
EOY	$5,176,447	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$30,467	BOYAmt
EOY	$27,724	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$1,060	BOYAmt
EOY	$115,209	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$18,755,308	BOYAmt
EOY	$17,073,918	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$2,700,890	BOYAmt
EOY	$1,005,549	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$365,747	BOYAmt
EOY	$1,249,062	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$1,714,118	BOYAmt
EOY	$1,427,626	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$4,780,755	BOYAmt
EOY	$3,682,237	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$13,974,553	BOYAmt
EOY	$13,376,681	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
EOY	$15,000	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$13,974,553	BOYAmt
EOY	$13,391,681	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$18,755,308	BOYAmt
EOY	$17,073,918	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	-$582,872	ReconcilationRevenueExpnssAmt
Other Changes In Net Assets	$0	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$6,025,669	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$7,209,074	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$3,005,647	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$205,868	CurrentTaxYearMinus1YearAmt
Current Tax Year	$648,500	CurrentTaxYearAmt
Total	$17,094,758	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$6,025,669	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$7,209,074	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$3,005,647	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$205,868	CurrentTaxYearMinus1YearAmt
Current Tax Year	$648,500	CurrentTaxYearAmt
Total	$17,094,758	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$17,094,758	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$19,852	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$167,009	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$46,432	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,422	CurrentTaxYearMinus1YearAmt
Current Tax Year	$165,869	CurrentTaxYearAmt
Total	$400,584	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$46,030	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$10,269	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$65,475	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$29,753	CurrentTaxYearMinus1YearAmt
Total	$151,527	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$17,646,869	TotalSupportAmt
Gross Receipts Rltd Activities	$26,221,393	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.96870	PublicSupportCY170Pct
Public Support PY170	0.98580	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	FormAndLineReferenceDesc
Explanation	GRANT SUPPORT REFUNDS - 2018 AMOUNT: $ 46,030. 2019 AMOUNT: $ 4,693. 2020 AMOUNT: $ 48,875. 2021 AMOUNT: $ 29,346. REBATES/COMMISSIONS - 2019 AMOUNT: $ 5,576. 2020 AMOUNT: $ 900. 2021 AMOUNT: $ 407. IRS REFUNDS - 2020 AMOUNT: $ 15,700.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$0	TotalBookValueLandBuildingsAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$10,561,848	TotalRevEtcAuditedFinclStmtAmt
Revenue Not Reported	$0	RevenueNotReportedAmt
Revenue Subtotal	$10,561,848	RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt	$0	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$10,561,848	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$11,144,720	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$11,144,720	ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt	$0	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$11,144,720	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART X, LINE 2:	FormAndLineReferenceDesc
Explanation	THE ORGANIZATION IS EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF INTERNAL REVENUE CODE AND IS CLASSIFIED AS OTHER THAN A PRIVATE FOUNDATION. MANAGEMENT HAS REVIEWED ALL TAX POSITIONS RECOGNIZED IN PREVIOUSLY FILED TAX RETURNS AND THOSE EXPECTED TO BE TAKEN IN FUTURE TAX RETURNS. AS OF DECEMBER 31, 2022, THE ORGANIZATION HAD NO AMOUNTS RELATED TO UNRECOGNIZED INCOME TAX BENEFITS AND NO AMOUNTS RELATED TO ACCRUED INTEREST AND PENALTIES. THE ORGANIZATION DOES NOT ANTICIPATE ANY SIGNIFICANT CHANGES TO UNRECOGNIZED INCOME TAX BENEFITS OVER THE NEXT YEAR.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$0	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$0	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
NORTH AMERICA (CANADA)	LADA	$97,406	WIRE	$0
UNITED KINGDOM	HEALTH EQUITY	$81,970	WIRE	$0
CANADA	SMALL GRANT	$49,500	WIRE	$0

Field	Value	IRS element (for citing)
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 2:	CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD.
PART III ACCOUNTING METHOD:

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (15 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Valuation Method UsedValuationMethodUsedDesc	Purpose Of GrantPurposeOfGrantTxt
DUKE MEDICAL CENTER
10 DUKE MEDICINE CIR	DURHAM	NC	27710	560532129	501(C)(3)	$54,575	$0	FMV	LARGE GRANT
REGENTS OF THE UNIVERSITY OF MINNESOTA
200 OAK STREET SE	MINNEAPOLIS	MN	55455	416007513	501(C)(3)	$14,982	$0	FMV	SMALL GRANT
UNIVERSITY OF UTAH
201 PRESIDENTS CIR	SALT LAKE CITY	UT	84112	876000525	501(C)(3)	$49,948	$0	FMV	LARGE GRANT
BOSTON CHILDREN'S HOSPITAL
300 LONGWOOD AVE	BOSTON	MA	02115	042774441	501(C)(3)	$149,830	$0	FMV	HEALTH EQUITY GRANT
CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVE	CINCINNATI	OH	45229	316026285	501(C)(3)	$26,460	$0	FMV	LADA GRANT
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$100,000	$0	FMV	LARGE GRANT
HACKENSACK UMC RESEARCH
				221487576	501(C)(3)	$10,000	$0	FMV	DATA ANALYSIS GRANT
NEMOURS FOUNDATION
				590634433	501(C)(3)	$50,000	$0	FMV	LARGE GRANT
UNIVERSITY OF MICHIGANCS MOTT CHILDREN'S HOSPITAL
				386006309	501(C)(3)	$100,000	$0	FMV	LARGE GRANT
COHEN CHILDREN'S MEDICAL CENTER OF NEW YORK-FEINSTEIN
				112673595	501(C)(3)	$25,000	$0	FMV	FELLOWS GRANT
UNIVERSITY OF ALABAMA AT BIRMINGHAM
				636005396	501(C)(3)	$150,000	$0	FMV	HEALTH EQUITY GRANT
INDIANA UNIVERSITY
				356001673	501(C)(3)	$48,399	$0	FMV	SMALL GRANT
NATIONWIDE CHILDREN'S HOSPITAL
				316056230	501(C)(3)	$49,995	$0	FMV	SMALL GRANT
UNIVERSITY OF PITTSBURGH
				250965591	501(C)(3)	$50,000	$0	FMV	SMALL GRANT
STONY BROOK CHILDREN'S HOSPITAL
				274504501	501(C)(3)	$10,180	$0	FMV	PUBLICATION SUPPORT GRANT

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 3	LINE 3 EXPLANATION - CARRA CONTRACTS WITH EXECUTIVE DIRECTOR INC. (A FOR-PROFIT MANAGEMENT COMPANY) TO PROVIDE OFFICE FACILITIES, MANAGEMENT, RECORD KEEPING, ACCOUNTING, STORAGE, OTHER SIGNIFICANT SERVICES, PLUS RELATED OVERHEAD COSTS. THE ORGANIZATION ENDED THE CONTRACTUAL RELATIONSHIP IN MARCH 2022.
FORM 990, PART VI, SECTION A, LINE 6	LINE 6 EXPLANATION - THE ORGANIZATION HAS MEMBERS.
FORM 990, PART VI, SECTION B, LINE 11B	LINE 11B EXPLANATION - PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY MANAGEMENT AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW.
FORM 990, PART VI, SECTION B, LINE 12C	THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE ETHICS COMMITTEE AND REVIEWED AND SIGNED AT THE BEGINNING OF EACH FISCAL YEAR BY ALL STAFF AND BOARD MEMBERS WITH SIGNIFICANT DECISION MAKING AUTHORITY. IT IS EACH SIGNATOR'S OBLIGATION TO DISCLOSE ANY POTENTIAL CONFLICT AS SOON AS IT IS KNOWN, OR REASONABLY SHOULD BE KNOWN.
FORM 990, PART VI, SECTION B, LINE 15	THE BOARD OF DIRECTORS SHALL REVIEW ANY COMPENSATION PACKAGES AND SHALL APPROVE SUCH COMPENSATION ONLY AFTER DETERMINING THAT THE COMPENSATION IS REASONABLE. COMPENSATION IS DETERMINED USING INFORMATION ABOUT COMPENSATION PAID BY SIMILARLY SITUATED TAXABLE AND TAX-EXEMPT ORGANIZATIONS FOR SIMILAR SERVICES. SUCH INFORMATION MAY INCLUDE UP-TO-DATE COMPENSATION SURVEYS COMPILED BY INDEPENDENT FIRMS OR ACTUAL WRITTEN OFFERS FROM SIMILARLY SITUATED ORGANIZATIONS. APPROVALS OF ALL COMPENSATION MUST BE DOCUMENTED IN WRITING WITH THE DATES AND TERMS OF THE AGREEMENT, A RECORD OF ALL INDIVIDUALS WHO VOTED IN CONSIDERATION, ALONG WITH ALL INFORMATION AND THE INFORMATION'S SOURCE.
FORM 990, PART VI, SECTION C, LINE 19	THE MOST RECENT FORM 990S (INCLUDING FINANCIAL INFORMATION), THE BYLAWS, ARTICLES OF INCORPORATION, FORM 1023 APPLICATION FOR EXEMPTION, AND CONFLICT OF INTEREST POLICY ARE PROVIDED TO THE PUBLIC UPON REQUEST
FORM 990, PART IX, LINE 11G	STEERING COMMITTEE CONTRACTS: PROGRAM SERVICE EXPENSES 368,474. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 368,474. INFORMATIC CONTRACTS: PROGRAM SERVICE EXPENSES 555,468. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 555,468. EXECUTIVE LEADERSHIP RESEARCH: PROGRAM SERVICE EXPENSES 37,979. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 37,979. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 85,682. MANAGEMENT AND GENERAL EXPENSES 514,100. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 599,782.