UNITED MITOCHONDRIAL DISEASE FOUNDATION INC: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- UNITED MITOCHONDRIAL DISEASE FOUNDATION INC (EIN 25-1767180)
- Tax period
- 2023-07-01 to 2024-06-30
- Filed
- 2025-05-13
- IRS object ID
- 202521339349307082
- Schema version
- 2023v6.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-05-13T14:45:10-05:00 | ReturnTs |
| Tax Period End | 2024-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 251900686 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Stelmack Dobransky & Eannace LLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3328 Washington Road | AddressLine1Txt |
| City | McMurray | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 153173005 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 251767180 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | United Mitochondrial Disease Foundation | BusinessNameLine1Txt |
| Business Name Line2 | Inc | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | UNIT | BusinessNameControlTxt |
| Phone | 4127938077 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8085 Saltsburg Road 201 | AddressLine1Txt |
| City | Pittsburgh | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 15239 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Kristen Clifford | PersonNm |
| Person Title | President & CEO | PersonTitleTxt |
| Phone | 4127938077 | PhoneNum |
| Signature | 2025-05-13 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | 0 | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Vincent M Eannace CPA | PreparerPersonNm |
| PTIN | P00028352 | PTIN |
| Phone | 7242600900 | PhoneNum |
| Preparation | 2025-05-13 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Kristen Clifford | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8085 Saltsburg Road 201 | AddressLine1Txt |
| City | Pittsburgh | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 15239 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $5,023,540 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | http://www.umdf.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1995 | FormationYr |
| Legal Domicile State | PA | LegalDomicileStateCd |
| Activity Or Mission | Promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 20 | TotalEmployeeCnt |
| Total Volunteers | 856 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $4,186,139 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,903,291 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $483,027 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $486,328 | CYProgramServiceRevenueAmt |
| PY Investment Income | $125,816 | PYInvestmentIncomeAmt |
| CY Investment Income | $121,594 | CYInvestmentIncomeAmt |
| PY Other Revenue | $501,811 | PYOtherRevenueAmt |
| CY Other Revenue | $173,836 | CYOtherRevenueAmt |
| PY Total Revenue | $5,296,793 | PYTotalRevenueAmt |
| CY Total Revenue | $3,685,049 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $944,289 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,665,902 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,712,046 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,040,455 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $767,770 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,045,116 | PYOtherExpensesAmt |
| CY Other Expenses | $953,760 | CYOtherExpensesAmt |
| PY Total Expenses | $3,701,451 | PYTotalExpensesAmt |
| CY Total Expenses | $4,660,117 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,595,342 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$975,068 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $7,204,589 | TotalAssetsBOYAmt |
| Total Assets EOY | $6,427,384 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $2,346,156 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $2,190,202 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $4,858,433 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $4,237,182 | NetAssetsOrFundBalancesEOYAmt |
| Mission | To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $2,097,748 | ExpenseAmt |
| Grant | $1,665,902 | GrantAmt |
| Desc | Funding research for cures and treatments of mitochondrial disorders. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $884,135 | ExpenseAmt |
| Revenue | $486,328 | RevenueAmt |
| Desc | Providing support for affected families - parent education | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $621,550 | ExpenseAmt |
| Desc | Promoting public awareness of mitochondrial disorders | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $3,603,433 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | 0 | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | Yes (1) | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 1 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 20 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | 0 | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | The Foundation | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 4127938077 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8085 Saltsburg Road Suite 201 | AddressLine1Txt |
| City | Pittsburgh | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 15239 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd |
|---|---|---|---|---|---|---|---|---|
| Alicia M Palladino Esq | ||||||||
| Chair , Board of Trustees | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| William Kallaos Jr | ||||||||
| Vice Chair Board of Truste | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Shari Lopez Albertson | ||||||||
| Secretary | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Michael Friedberg | ||||||||
| Trustee-at-Large | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Richard Leach | ||||||||
| Board of Trustees | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Annette M St Pierre-Mackoul MD | ||||||||
| Board of Trustees | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Todd Lacey | ||||||||
| Treasurer | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Alan Breslow | ||||||||
| Board of Trustees | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Jana Stoudemire | ||||||||
| Board of Trustees | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Amel Karaa MD | ||||||||
| SMAB Chair | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Erica Williams | ||||||||
| Board of Trustees | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Brian T Harman | ||||||||
| President & CEO | 40.00 | Yes (X) | $208,566 | $0 | $31,366 | |||
| Mark S Campbell | ||||||||
| Chief Financial Officer | 40.00 | $118,029 | $0 | $14,115 | Yes (X) | |||
| Philip E Yeske PhD | ||||||||
| Science & Alliance Officer | 40.00 | $150,551 | $0 | $27,109 | Yes (X) | |||
| Beth Whitehouse | ||||||||
| Former Director of Development (Terminated 5/21/24 | 40.00 | $137,157 | $0 | $22,713 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $614,303 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $95,303 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 4 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | Yes (1) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $4,123 | FederatedCampaignsAmt |
| Fundraising | $767,321 | FundraisingAmt |
| All Other Contributions | $2,131,847 | AllOtherContributionsAmt |
| Total Contributions | $2,903,291 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Symposium & Seminars | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $486,328 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $486,328 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $486,328 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $141,617 | TotalRevenueColumnAmt |
| Exclusion | $141,617 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,009,544 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,029,567 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$20,023 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$20,023 | TotalRevenueColumnAmt |
| Exclusion | -$20,023 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $482,760 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $767,321 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $308,924 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $173,836 | TotalRevenueColumnAmt |
| Exclusion | $173,836 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,685,049 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $486,328 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $295,430 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,399,547 | TotalAmt |
| Program Services | $1,399,547 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $61,355 | TotalAmt |
| Program Services | $61,355 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $205,000 | TotalAmt |
| Program Services | $205,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $496,274 | TotalAmt |
| Program Services | $262,866 | ProgramServicesAmt |
| Management And General | $59,771 | ManagementAndGeneralAmt |
| Fundraising | $173,637 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,102,317 | TotalAmt |
| Program Services | $583,874 | ProgramServicesAmt |
| Management And General | $132,762 | ManagementAndGeneralAmt |
| Fundraising | $385,681 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $317,719 | TotalAmt |
| Program Services | $256,784 | ProgramServicesAmt |
| Fundraising | $60,935 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $124,145 | TotalAmt |
| Program Services | $95,441 | ProgramServicesAmt |
| Fundraising | $28,704 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,513 | TotalAmt |
| Program Services | $3,256 | ProgramServicesAmt |
| Management And General | $13,629 | ManagementAndGeneralAmt |
| Fundraising | $1,628 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $19,303 | TotalAmt |
| Management And General | $19,303 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $179,201 | TotalAmt |
| Program Services | $132,263 | ProgramServicesAmt |
| Management And General | $2,384 | ManagementAndGeneralAmt |
| Fundraising | $44,554 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,101 | TotalAmt |
| Program Services | $24,545 | ProgramServicesAmt |
| Management And General | $11,510 | ManagementAndGeneralAmt |
| Fundraising | $29,046 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,870 | TotalAmt |
| Program Services | $21,870 | ProgramServicesAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,246 | TotalAmt |
| Program Services | $5,123 | ProgramServicesAmt |
| Management And General | $2,561 | ManagementAndGeneralAmt |
| Fundraising | $2,562 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $24,484 | TotalAmt |
| Program Services | $9,019 | ProgramServicesAmt |
| Management And General | $3,171 | ManagementAndGeneralAmt |
| Fundraising | $12,294 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $520,542 | TotalAmt |
| Program Services | $506,904 | ProgramServicesAmt |
| Management And General | $13,638 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,489 | TotalAmt |
| Program Services | $6,744 | ProgramServicesAmt |
| Management And General | $3,373 | ManagementAndGeneralAmt |
| Fundraising | $3,372 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| Repairs and maintenance | $66,117 | $22,123 | $21,997 | $21,997 |
| Miscellaneous expenses | $8,775 | $4,388 | $2,192 | $2,195 |
| Licenses and fees | $4,661 | $2,331 | $1,165 | $1,165 |
| Recruiting and relocati | $1,458 | $1,458 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,660,117 | TotalAmt |
| Program Services | $3,603,433 | ProgramServicesAmt |
| Management And General | $288,914 | ManagementAndGeneralAmt |
| Fundraising | $767,770 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $488,240 | BOYAmt |
| EOY | $368,255 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,850,695 | BOYAmt |
| EOY | $343,467 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,440,206 | BOYAmt |
| EOY | $598,320 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $136,494 | BOYAmt |
| EOY | $1,550 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $500,000 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $85,106 | BOYAmt |
| EOY | $110,667 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $0 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $0 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,096,730 | BOYAmt |
| EOY | $4,398,007 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $107,118 | BOYAmt |
| EOY | $107,118 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,204,589 | BOYAmt |
| EOY | $6,427,384 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $788,576 | BOYAmt |
| EOY | $626,577 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,557,580 | BOYAmt |
| EOY | $1,488,807 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $74,818 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,346,156 | BOYAmt |
| EOY | $2,190,202 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,111,135 | BOYAmt |
| EOY | $1,480,076 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,747,298 | BOYAmt |
| EOY | $2,757,106 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,858,433 | BOYAmt |
| EOY | $4,237,182 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,204,589 | BOYAmt |
| EOY | $6,427,384 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$975,068 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $353,817 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,579,637 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,371,861 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,963,008 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,803,347 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,077,127 | CurrentTaxYearAmt |
| Total | $15,794,980 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,579,637 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,371,861 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,963,008 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,803,347 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,077,127 | CurrentTaxYearAmt |
| Total | $15,794,980 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $15,794,980 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $88,067 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $195,498 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $263,807 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $125,816 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $121,594 | CurrentTaxYearAmt |
| Total | $794,782 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $16,589,762 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $2,050,161 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.95210 | PublicSupportCY170Pct |
| Public Support PY170 | 0.95270 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $0 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $4,328,487 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $353,817 | NetUnrealizedGainsInvstAmt |
| Other Revenue | $308,924 | OtherRevenueAmt |
| Revenue Not Reported | $662,741 | RevenueNotReportedAmt |
| Revenue Subtotal | $3,665,746 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $19,303 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $19,303 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $3,685,049 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $4,949,738 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $308,924 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $308,924 | ExpensesNotReportedAmt |
| Expenses Subtotal | $4,640,814 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $19,303 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $19,303 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $4,660,117 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part XI, Line 2d - Other Adjustments: | Fundraising expenses 308,924. |
| Part XII, Line 2d - Other Adjustments: | Fundraising Expenses 308,924. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| East Asia and the Pacific | 0 | 0 | Program Services - Research Grants | Research Grants | $5,000 |
| Europe (Including Iceland & Greenland) | 0 | 0 | Program Services - Research Grants | Research Grants | $200,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $205,000 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $205,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|---|
| East Asia and the Pacific | Research | $5,000 | Check | $0 | FMV |
| Europe (Including Iceland & Greenland) | Research | $50,000 | Check | $0 | FMV |
| Europe (Including Iceland & Greenland) | Research | $50,000 | Check | $0 | FMV |
| Europe (Including Iceland & Greenland) | Research | $100,000 | Check | $0 | FMV |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part I, Line 2: | Final research papers and results must be submitted before the final grant payment is made. |
| Part I, line 3: | Check |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | EFL Walk - Seattle | Event1Nm |
| Gross Receipts Event1 | $52,748 | GrossReceiptsEvent1Amt |
| Gross Revenue Event1 | $52,748 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $1,765 | OtherDirectExpensesEvent1Amt |
| Event2 | EFL Walk - Chicago | Event2Nm |
| Gross Receipts Event2 | $49,793 | GrossReceiptsEvent2Amt |
| Gross Revenue Event2 | $49,793 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $4,005 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 29 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $1,147,540 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $767,321 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $380,219 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $303,154 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,250,081 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $767,321 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $482,760 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $308,924 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $308,924 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $173,836 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (8 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| The Childrens Hospital of Philadelphia | ||||||||
| 3401 Civic Center Boulevard | Philadelphia | PA | 191044318 | 231352166 | 501(c)(3) | $821,627 | $0 | Research |
| Childrens Hospital of Los Angeles | ||||||||
| 4650 Sunset Blvd MS 29 | Los Angeles | CA | 90027 | 951690977 | 501(c)(3) | $35,000 | $0 | Research |
| Across Healthcare | ||||||||
| 306 B Rome Street | Carrollton | GA | 30117 | 465218351 | $26,400 | $0 | Patient Registry | |
| Perlara PBC | ||||||||
| 2625 Alcatraz Ave 435 | Berkeley | CA | 94705 | 465080858 | $71,250 | $0 | Research | |
| University of Texas Health Science Center at Houston | ||||||||
| 7000 Fannin St | Houston | TX | 77030 | 741761309 | 501(c)(3) | $19,750 | $0 | Research |
| AIWA Health Inc dba Probably Genetic Inc | ||||||||
| 2261 Market Street 4003 | San Francisco | CA | 94114 | 832771057 | $105,000 | $0 | Research | |
| Columbia University | ||||||||
| 630 West 168th S PS 4-423 | New York | NY | 10032 | 135598093 | 501(c)(3) | $73,000 | $0 | Research & Patient Registry |
| Labcorp | ||||||||
| 10 Moore Drive | Durham | NC | 27703 | 473459045 | $198,150 | $0 | Research | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
| Total Other Org | 4 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)
| Grant TypeGrantTypeTxt | RecipientRecipientCnt | Cash GrantCashGrantAmt |
|---|---|---|
| Education Grants | 9 | $45,000 |
| Travel Grants | 9 | $16,355 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2: | FormAndLineReferenceDesc |
| Explanation | Final research papers and results must be submitted before the final grant payment is made. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Brian T Harman | ||||||||||||||
| President & CEO | $208,566 | $0 | $0 | $0 | $0 | $0 | $12,514 | $0 | $18,852 | $0 | $239,932 | $0 | $0 | $0 |
| Philip E Yeske PhD | ||||||||||||||
| Science & Alliance Officer | $150,551 | $0 | $0 | $0 | $0 | $0 | $8,695 | $0 | $18,414 | $0 | $177,660 | $0 | $0 | $0 |
| Beth Whitehouse | ||||||||||||||
| Former Director of Development (Term | $137,157 | $0 | $0 | $0 | $0 | $0 | $7,915 | $0 | $14,798 | $0 | $159,870 | $0 | $0 | $0 |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | William Kallaos | PersonNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | Vice-Chairman Board of Trustees | RelationshipDescriptionTxt |
| Transaction | $500,000 | TransactionAmt |
| Transaction | Pledge Receivable | TransactionDesc |
| Sharing Of Revenues | 0 | SharingOfRevenuesInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section B, line 11b | The 990 is shared with the Board of Trustees. |
| Form 990, Part VI, Section B, line 15 | The Executive Committe of the Board of Trustees is responsible for determining the Executive Director's and Key Employees compensation and benefits. |
| Form 990, Part VI, Section C, line 19 | The organization's governing documents and conflict of interest policy are made available to the public upon request. The organization's financial statements are made available to the public through the organization's website. |
| Form 990, Part XI, Line 2c | The Executive and Finance Committees review and have responsibility for oversight of the audit. |