STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

FOUNDATION FOR SARCOIDOSIS RESEARCH: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization
FOUNDATION FOR SARCOIDOSIS RESEARCH (EIN 36-4378232)
Tax period
2022-01-01 to 2022-12-31
Filed
2023-11-10
IRS object ID
202313149349303536
Schema version
2022v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2023-11-10T11:07:19-08:00ReturnTs
Tax Period End2022-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Wieland Wallace IncBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1232 S Batavia AvenueAddressLine1Txt
CityBataviaCityNm
State AbbreviationILStateAbbreviationCd
ZIP60510ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2022-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN364378232EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FOUNDATION FOR SARCOIDOSIS RESEARCHBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlFOUNBusinessNameControlTxt
Phone3123410500PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1320 W OHIO ST 300AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60654ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonLouise M Perkins PhDPersonNm
Person TitleBoard PresidentPersonTitleTxt
Signature2023-11-10SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstLouise M PerkinsPersonFirstNm
Person LastPhDPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonLINDSAY A WALLACE CPAPreparerPersonNm
PTINP02397235PTIN
Phone6304064490PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
Federated Assurance LevelFAL1FederatedAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2022TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerLouise M Perkins PhDPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1320 W OHIO ST 300AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60654ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$2,150,951GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.STOPSARCOIDOSIS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2000FormationYr
Legal Domicile StateILLegalDomicileStateCd
Activity Or MissionThe Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, FSR has fostered over $6 million in sarcoidosis-specific research efforts.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee14TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,943,444PYContributionsGrantsAmt
CY Contributions Grants$1,291,209CYContributionsGrantsAmt
PY Program Service Revenue$188,396PYProgramServiceRevenueAmt
CY Program Service Revenue$341,425CYProgramServiceRevenueAmt
PY Investment Income$253,123PYInvestmentIncomeAmt
CY Investment Income$39,590CYInvestmentIncomeAmt
PY Other Revenue$320PYOtherRevenueAmt
CY Other Revenue$1,375CYOtherRevenueAmt
PY Total Revenue$2,385,283PYTotalRevenueAmt
CY Total Revenue$1,673,599CYTotalRevenueAmt
PY Grants And Similar Paid$367,055PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$354,750CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$825,887PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,049,644CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$253,484CYTotalFundraisingExpenseAmt
PY Other Expenses$536,025PYOtherExpensesAmt
CY Other Expenses$623,551CYOtherExpensesAmt
PY Total Expenses$1,728,967PYTotalExpensesAmt
CY Total Expenses$2,027,945CYTotalExpensesAmt
PY Revenues Less Expenses$656,316PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$354,346CYRevenuesLessExpensesAmt
Total Assets BOY$6,004,041TotalAssetsBOYAmt
Total Assets EOY$4,929,854TotalAssetsEOYAmt
Total Liabilities BOY$350,532TotalLiabilitiesBOYAmt
Total Liabilities EOY$384,856TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$5,653,509NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$4,544,998NetAssetsOrFundBalancesEOYAmt
MissionThe Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, FSR has fostered over $6 million in sarcoidosis-specific research efforts.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$870,670ExpenseAmt
DescThe organization approaches their mission of finding a cure for sarcoidosis and improving care for sarcoidosis patients through following major program areas: Patient Outreach and Education Programs, Physician Outreach Program and Scientific Research Agenda. In these programs, various resources and education are providing to the patient and their loved ones, navigation and network are built up to connect patients, physicians and peers of both communities.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$648,599ExpenseAmt
Grant$354,750GrantAmt
Revenue$171,425RevenueAmt
DescRESEARCH - FSR'S SMALL GRANT PROGRAM FOCUSES ON AWARDING FUNDS TO NEW OR EARLY STAGE RESEARCH ON SARCOIDOSIS. FSR'S CLINICAL STUDIES NETWORK(CSN) AND SARCONNECT PROGRAMS CONTINUED TO ENGAGE AND PARTNER WITH PHARMACEUTICAL COMPANIES THROUGH PATIENT OUTREACH AND RECRUITMENT FOR LARGE MULTI- CENTER TRIALS. BOTH PROGRAMS HELP CARRY OUT MULTIPLE STUDIES WITH FOCUS IN CARDIAC AND PULMONARY SARCOIDOSIS. FSR CONTINUED GROWING THE PATIENT REGISTRY AND MADE SIGNIFICANT PROGRESS ON THE SCOUTENDPOINTS PROJECT, IN ADDITION TO PROVIDING SERVICES AND SUPPORT TO ADVANCE SARCOIDOSIS RESEARCH AND THE MISSION OF THE ORGANIZATION.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,519,269TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficeYes (true)ForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld CompliancefalseBackupWthldComplianceInd
Employee14EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMARY MCGOWANPersonNm
Phone3123410500PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1320 W OHIO ST STE 300AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60654ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (13 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
Mary E McGowan
CEO40.000.00Yes (X)$246,000$0$0
Louise M Perkins PhD
President10.000.00Yes (X)$0$0$0Yes (X)
Craig Lipset
Vice President5.000.00Yes (X)$0$0$0Yes (X)
Mary Cobb
Secretary5.000.00Yes (X)$0$0$0Yes (X)
Michael Kaplan
Treasurer5.000.00$0$0$0Yes (X)
Yvette Cozier Dsc MPH
Director1.000.00$0$0$0Yes (X)
Heidi Junk
Director1.000.00$0$0$0Yes (X)
Emerson Hall Jr PhD
Director1.000.00$0$0$0Yes (X)
Jim Davis Jr
Director1.000.00$0$0$0Yes (X)
Jeffrey Raich
Director1.000.00$0$0$0Yes (X)
Leslie Serchuck MD
Director1.000.00$0$0$0Yes (X)
Rev Michael Walrond Jr
Director1.000.00$0$0$0Yes (X)
Michael Klingher
Director0.000.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$246,000TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$1,291,209AllOtherContributionsAmt
Total Contributions$1,291,209TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
Membership Dues & Assessments900099$170,000$170,000
Service Provided541700$171,425$171,425
FieldValueIRS element (for citing)
Total Program Service Revenue$341,425TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$119,287TotalRevenueColumnAmt
Related Or Exempt Func Income$119,287RelatedOrExemptFuncIncomeAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$397,655SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$476,930SecuritiesAmt
Other$422OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$79,275SecuritiesAmt
Other-$422OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$79,697TotalRevenueColumnAmt
Related Or Exempt Func Income-$79,697RelatedOrExemptFuncIncomeAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescMerchandise SoldDesc
Business453000BusinessCd
Total Revenue Column$1,375TotalRevenueColumnAmt
Related Or Exempt Func Income$1,375RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$1,375OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,673,599TotalRevenueColumnAmt
Related Or Exempt Func Income$382,390RelatedOrExemptFuncIncomeAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$204,250TotalAmt
Program Services$204,250ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$150,500TotalAmt
Program Services$150,500ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$246,000TotalAmt
Program Services$185,168ProgramServicesAmt
Management And General$20,963ManagementAndGeneralAmt
Fundraising$39,869FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$733,472TotalAmt
Program Services$552,095ProgramServicesAmt
Management And General$62,503ManagementAndGeneralAmt
Fundraising$118,874FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$70,172TotalAmt
Program Services$52,819ProgramServicesAmt
Management And General$5,980ManagementAndGeneralAmt
Fundraising$11,373FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$68,792TotalAmt
Management And General$68,792ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$24,943TotalAmt
Management And General$24,943ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$10,418TotalAmt
Program Services$10,418ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$13,196TotalAmt
Management And General$13,196ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$64,667TotalAmt
Program Services$27,668ProgramServicesAmt
Management And General$14,528ManagementAndGeneralAmt
Fundraising$22,471FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$55,671TotalAmt
Program Services$30,062ProgramServicesAmt
Management And General$13,361ManagementAndGeneralAmt
Fundraising$12,248FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$28,710TotalAmt
Program Services$9,023ProgramServicesAmt
Management And General$19,687ManagementAndGeneralAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$50,272TotalAmt
Program Services$50,272ProgramServicesAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$6,041TotalAmt
Program Services$3,262ProgramServicesAmt
Management And General$1,450ManagementAndGeneralAmt
Fundraising$1,329FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$5,637TotalAmt
Program Services$3,044ProgramServicesAmt
Management And General$1,352ManagementAndGeneralAmt
Fundraising$1,241FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Contract Services$139,536$139,536
Research Programs$40,780$40,780
Printing and Publications$37,021$34,967$2,054
Bank and Transaction Fees$35,630$1,306$212$34,112

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$42,237TotalAmt
Program Services$24,099ProgramServicesAmt
Management And General$6,171ManagementAndGeneralAmt
Fundraising$11,967FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,027,945TotalAmt
Program Services$1,519,269ProgramServicesAmt
Management And General$255,192ManagementAndGeneralAmt
Fundraising$253,484FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$803,346BOYAmt
EOY$618,781EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$551,531BOYAmt
EOY$382,943EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$23,315BOYAmt
EOY$70,934EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$6,843LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$5,842LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$6,798BOYAmt
EOY$1,001EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$4,618,383BOYAmt
EOY$3,856,195EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$668BOYAmt
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$6,004,041BOYAmt
EOY$4,929,854EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$186,866BOYAmt
EOY$209,856EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$112,500BOYAmt
EOY$175,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$51,166BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$350,532BOYAmt
EOY$384,856EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,990,562BOYAmt
EOY$3,345,460EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,662,947BOYAmt
EOY$1,199,538EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,653,509BOYAmt
EOY$4,544,998EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$6,004,041BOYAmt
EOY$4,929,854EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$354,346ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$754,165NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,812,061CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,958,614CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,137,781CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,943,444CurrentTaxYearMinus1YearAmt
Current Tax Year$1,461,209CurrentTaxYearAmt
Total$10,313,109TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$188,396CurrentTaxYearMinus1YearAmt
Current Tax Year$171,425CurrentTaxYearAmt
Total$359,821TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,812,061CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,958,614CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,137,781CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,131,840CurrentTaxYearMinus1YearAmt
Current Tax Year$1,632,634CurrentTaxYearAmt
Total$10,672,930TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$16,000CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$34,000CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$47,062CurrentTaxYearMinus2YearsAmt
Total$97,062TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,900,655CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,015,240CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$721,336CurrentTaxYearMinus2YearsAmt
Total$4,637,231TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,916,655CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,049,240CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$768,398CurrentTaxYearMinus2YearsAmt
Total$4,734,293TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$5,938,637PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$217,975CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$113,633CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$446,799CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$154,644CurrentTaxYearMinus1YearAmt
Current Tax Year$119,287CurrentTaxYearAmt
Total$1,052,338TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$217,975CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$113,633CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$446,799CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$154,644CurrentTaxYearMinus1YearAmt
Current Tax Year$119,287CurrentTaxYearAmt
Total$1,052,338TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$11,027CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,440CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$470CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$320CurrentTaxYearMinus1YearAmt
Current Tax Year$1,375CurrentTaxYearAmt
Total$18,632TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,041,063CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,077,687CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,585,050CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,286,804CurrentTaxYearMinus1YearAmt
Current Tax Year$1,753,296CurrentTaxYearAmt
Total$11,743,900TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.50570PublicSupportCY509Pct
Public Support PY5090.41040PublicSupportPY509Pct
Investment Income CY0.08960InvestmentIncomeCYPct
Investment Income PY0.08150InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$6,843OtherCostOrOtherBasisAmt
Depreciation$5,842DepreciationAmt
Book Value$1,001BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,001TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$894,491TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$754,165NetUnrealizedGainsInvstAmt
Revenue Not Reported-$754,165RevenueNotReportedAmt
Revenue Subtotal$1,648,656RevenueSubtotalAmt
Investment Expenses Not Incld$24,943InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$24,943RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,673,599TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,003,002TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,003,002ExpensesSubtotalAmt
Investment Expenses Not Incld2$24,943InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$24,943ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$2,027,945TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X : FIN48 FootnoteFormAndLineReferenceDesc
ExplanationThe Organization is tax exempt under Internal Revenue Code Section 501(c)(3), is classified as a public charity under Section 170 (b)(1)(A)(vi) and has no unrelated business income. Accordingly, no provision for income taxes is reported. The financial statement effects of a tax position taken or expected to be taken are recognized when it is more likely than not, based on technical merits, that the position will be sustained upon examination. As of December 31, 2022, the Organization had no uncertain tax positions that qualify for recognition or disclosure in the financial statements.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (11 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVEALBANYNY12208141338310$8,300$0RESEARCH
AMERICAN THORACIC SOCIETY
25 BROADWAY 4TH FLOORNEW YORKNY10004800759367$13,500$0RESEARCH
CLEVELAND CLINIC
6801 BRECKSVILLE RDINDEPENDENCEOH44131340714585$12,800$0RESEARCH
NATIONAL JEWISH HEALTH
1400 JACKSON STREETDENVERCO80206742044647$11,400$0RESEARCH
NATIONAL JEWISH HOSPITAL
1400 JACKSON STDENVERCO80206742044647$150,000$0FELLOWSHIP
NORTHWESTERN UNIVERSITY
633 CLARK STEVANSTONIL60208362167817$14,900$0RESEARCH
UNIVERSITY OF CINCINNATI
2600 CLIFTON AVENUECINCINNATIOH45220316000989$7,250$0RESEARCH
UNIVERSITY OF COLORADO DENVER
1201 LARIMER STDENVERCO80204846000555$25,000$0RESEARCH
UNIVERSITY OF ILLINOIS
506 S WRIGHT STURBANAIL61801376000511$9,150$0RESEARCH
UNIVERSITY OF IOWA
118 S CLINTON STIOWA CITYIA52242426004813$89,800$0RESEARCH
UPLIFTING ATHLETES
8 ATKINSON DRIVEDOYLESTOWNPA18901341986485$10,000$0RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org8Total501c3OrgCnt
Total Other Org3TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationFSR HAS A WELL DOCUMENTED, THOROUGH PROGRAM FOR SOLICITATING AND EVALUATING REQUESTS FOR RESEARCH AND RESEARCH FELLOWSHIP GRANTS. THE PROCESS IS OVERSEEN BY FSR'S SCIENTIFIC ADVISORY BOARD. THEIR EVALUATIONS OF RESEARCH APPLICATIONS AND RECOMMENDATIONS FOR FUNDING ARE PRESENTED TO THE FSR GOVERNING BOARD OF DIRECTORS WHICH DETERMINES WHICH REQUESTS WILL BE FUNDED. FOR ALL MULTIYEAR FUNDING, THE COMMITMENT BEYOND THE INITIAL YEAR(S) IS CONTINGENT UPON RECEIPT AND EVALUATION BY FSR OF A SATISFACTORY ANNUAL PROGRESS REPORT. FSR REQUIRES ONGOING REPORTING PROGRESS OF RECRUITMENT/ENROLLMENT IN RESEARCH STUDIES.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonMary E McGowanPersonNm
TitleCEOTitleTxt
Base Compensation Filing Org$234,000BaseCompensationFilingOrgAmt
Bonus Filing Organization$12,000BonusFilingOrganizationAmount
Total Compensation Filing Org$246,000TotalCompensationFilingOrgAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11bTHE 990 IS DISTRIBUTED TO THE BOARD FOR REVIEW BEFORE BEING FILED.
Form 990, Part VI, Section B, Line 12cTHE CONFLICT OF INTEREST POLICY IS REVIEWED AND SIGNED ON AN ANNUAL BASIS AS PART OF THE ORGANIZATION'S DUE DILIGENCE.
Form 990, Part VI, Section B, Line 15aTHE BOARD OF DIRECTORS SHALL ANNUALLY REVIEW IN WRITING, THE PERFORMANCE OF THE CHIEF EXECUTIVE OFFICER (CEO) AGAINST PERFORMANCE CRITERIA THAT ARE LINKED TO THE ORGANIZATION'S LONG-TERM PLAN. THE CEO SHALL PARTICIPATE IN THE EVALUATION PROCESS AND REVIEWS, SIGNS AND RESPONDS TO THE EVALUATION BEFORE IT IS ENTERED INTO HIS OR HER RECORD. THE BOARD OF DIRECTORS SHALL ALSO REVIEW THE FAIRNESS OF THE CEO'S COMPENSATION AND BENEFITS IN RELATIONSHIP TO INDUSTRY PRACTICES AND FEDERAL REQUIREMENTS.
Form 990, Part VI, Section C, Line 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.