FOUNDATION FIGHTING BLINDNESS INC: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization: FOUNDATION FIGHTING BLINDNESS INC (EIN 23-7135845)
Tax period: 2022-07-01 to 2023-06-30
Filed: 2023-11-02
IRS object ID: 202333069349302708
Schema version: 2022v5.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2023-11-02T15:10:21-05:00	ReturnTs
Tax Period End	2023-06-30	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	420714325	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	RSM US LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	100 INTERNATIONAL DRIVE SUITE 1400	AddressLine1Txt
City	BALTIMORE	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	21202	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2022-07-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	237135845	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	THE FOUNDATION FIGHTING BLINDNESS INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	FOUN	BusinessNameControlTxt
Phone	4104230600	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6925 OAKLAND MILLS ROAD 701	AddressLine1Txt
City	COLUMBIA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	21045	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	PETER GINSBERG	PersonNm
Person Title	CHIEF OPERATING OFFICER	PersonTitleTxt
Phone	4104230600	PhoneNum
Signature	2023-11-01	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	PETER	PersonFirstNm
Person Last	GINSBERG	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	0	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JULIA FLANNERY CPA	PreparerPersonNm
PTIN	P00928915	PTIN
Phone	4102469301	PhoneNum
Preparation	2023-11-01	PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	2	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2022	TaxYr
Build TS	2023-04-26 12:10:37Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	JASON MENZO	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6925 OAKLAND MILLS ROAD 701	AddressLine1Txt
City	COLUMBIA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	21045	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$119,223,972	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.FIGHTINGBLINDNESS.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1971	FormationYr
Legal Domicile State	MD	LegalDomicileStateCd
Activity Or Mission	THE URGENT MISSION OF THE FOUNDATION FIGHTING BLINDNESS IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, AGE-RELATED MACULAR DEGENERATION, USHER SYNDROME AND THE ENTIRE SPECTRUM OF RETINAL DEGENERATIVE DISEASES. THE FOUNDATION IS A BEACON FOR THOSE AFFECTED BY THESE BLINDING DISEASES.	ActivityOrMissionDesc
Voting Members Governing Body	26	VotingMembersGoverningBodyCnt
Voting Members Independent	26	VotingMembersIndependentCnt
Total Employee	67	TotalEmployeeCnt
Total Volunteers	2500	TotalVolunteersCnt
Total Gross UBI	$112	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$39,734,129	PYContributionsGrantsAmt
CY Contributions Grants	$28,901,504	CYContributionsGrantsAmt
PY Program Service Revenue	$618,587	PYProgramServiceRevenueAmt
CY Program Service Revenue	$457,678	CYProgramServiceRevenueAmt
PY Investment Income	$2,342,428	PYInvestmentIncomeAmt
CY Investment Income	$1,346,765	CYInvestmentIncomeAmt
PY Other Revenue	$192,692	PYOtherRevenueAmt
CY Other Revenue	-$268,055	CYOtherRevenueAmt
PY Total Revenue	$42,887,836	PYTotalRevenueAmt
CY Total Revenue	$30,437,892	CYTotalRevenueAmt
PY Grants And Similar Paid	$27,487,814	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$27,872,429	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$8,006,904	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$8,954,322	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$808,586	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$605,928	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$7,026,718	CYTotalFundraisingExpenseAmt
PY Other Expenses	$12,872,305	PYOtherExpensesAmt
CY Other Expenses	$13,832,761	CYOtherExpensesAmt
PY Total Expenses	$49,175,609	PYTotalExpensesAmt
CY Total Expenses	$51,265,440	CYTotalExpensesAmt
PY Revenues Less Expenses	-$6,287,773	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$20,827,548	CYRevenuesLessExpensesAmt
Total Assets BOY	$145,877,854	TotalAssetsBOYAmt
Total Assets EOY	$130,891,355	TotalAssetsEOYAmt
Total Liabilities BOY	$24,415,527	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$30,670,536	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$121,462,327	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$100,220,819	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE MISSION OF THE FOUNDATION FIGHTING BLINDNESS, INC. (FOUNDATION) IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES, FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, MACULAR DEGENERATION, USHER SYNDROME, AND THE SPECTRUM OF RETINAL DEGENERATIVE DISEASES.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$35,798,068	ExpenseAmt
Grant	$27,872,429	GrantAmt
Revenue	$457,678	RevenueAmt
Desc	RESEARCH: THE FOUNDATION FIGHTING BLINDNESS, INC. (THE FOUNDATION) FUNDED RESEARCHERS ARE ACHIEVING REMARKABLE SUCCESS IN DISCOVERING, TESTING AND DELIVERING TO PATIENTS A WIDE RANGE OF PROMISING THERAPIES TO PREVENT, STOP THE PROGRESSION OF, AND CURE BLINDNESS DUE TO RETINAL DEGENERATIVE DISEASES. THE FOUNDATION HAS ENCUMBRANCES OF $50 MILLION, NOT INCLUDED ON OUR JUNE 30 FINANCIAL REPORT, FOR ACTIVE RESEARCH PROJECTS THAT HAVE FUTURE RESEARCH MILESTONES. OUR RESEARCH OVERSIGHT COMMITTEE'S SPENDING PLAN INCLUDES SPENDING AT AN AVERAGE OF $21 MILLION ANNUALLY TO SUPPORT FUTURE RESEARCH.AS OF THE END OF OUR FISCAL YEAR 2023, THE FOUNDATION'S RESEARCH GRANTS PROGRAM IS FUNDING 93 GRANTS BEING CONDUCTED BY MORE THAN 96 INVESTIGATORS AT 71 INSTITUTIONS, EYE HOSPITALS AND UNIVERSITIES IN THE U.S. AND AROUND THE WORLD. A SAMPLING OF THE RESEARCH PROJECTS FUNDED ARE LISTED BELOW."EVALUATING MITIGATION STRATEGIES FOR INTRAVITREAL VIRAL VECTOR-MEDIATED INFLAMMATION ACROSS ANIMAL MODELS."KATHRYN PEPPLE, MD, PHD, UNIVERSITY OF WASHINGTONDR. PEPPLE IS INVESTIGATING NOVEL STRATEGIES FOR MITIGATING OCULAR INFLAMMATION WHICH CAN RESULT FROM INTRAVITREAL INJECTION OF VIRAL GENE THERAPIES. SHE IS EVALUATING ANIMAL MODEL DATA AND PERFORMING DETAILED IMMUNOLOGIC CHARACTERIZATION OF THE NON-HUMAN PRIMATE EYES DURING OCULAR INFLAMMATION TO PROVIDE CLINICAL-PATHOLOGIC CORRELATIONS AND BIOMARKER VALIDATION FOR USE IN HUMAN CLINICAL STUDIES. A ROBUST AND EVIDENCE-BASED APPROACH TO PREVENTING OCULAR INFLAMMATION FOLLOWING INTRAVITREAL ADENO-ASSOCIATED VIRUS (AAV)-MEDIATED GENE THERAPY IS A CRITICAL UNMET NEED."A NOVEL, RATIONALLY DESIGNED PHARMACOLOGICAL APPROACH TO COUNTERING VISION LOSS IN A PRECLINICAL MODEL OF MERTK-ASSOCIATED RETINITIS PIGMENTOSA."SILVIA FINNEMANN, PHD, FORDHAM UNIVERSITYDR. FINNEMANN AND HER TEAM ARE DETERMINING IF AN EARLY-ONSET INFLAMMATORY RESPONSE IN RETINAL PIGMENT EPITHELIAL (RPE) CELLS PRECEDES PHOTORECEPTOR DEGENERATION. RPE CELLS PROVIDE PROVIDE CRITICAL SUPPORT FOR PHOTORECEPTORS. IF SUCCESSFUL IN UNCOVERING THIS NOVEL DISEASE PATHWAY, A THERAPEUTIC STRATEGY TESTING ANTI-INFLAMMATORY DRUGS FOR MERTK-ASSOCIATED RETINITIS PIGMENTOSA WILL BE PROPOSED TO PREVENT OR SIGNIFICANTLY DELAY RETINAL DEGENERATION."DECIPHERING THE IMPACT OF ABCA4 GENETIC VARIANTS OF UNKNOWN SIGNIFICANCE IN INHERITED RETINAL DISEASE PROGNOSIS."ESTHER BISWAS-FISS, MS, PHD, UNIVERSITY OF DELAWAREDR. BISWAS-FISS IS USING COMPUTATIONAL MODELING AND EXPERIMENTS TO DETERMINE WHETHER ABCA4 VARIANTS OF UNKNOWN SIGNIFICANCE (VUSS) LEAD TO ABCA4-RELATED DISEASE. RESOLVING THESE VUSS IS CRITICAL FOR PATIENTS TO MEET INCLUSION CRITERIA IN CLINICAL TRIALS FOR ABCA4 THERAPIES. MUTATIONS IN ABCA4 CAUSE THE VAST MAJORITY OF STARGARDT DISEASE CASES.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$2,782,316	ExpenseAmt
Grant	$0	GrantAmt
Revenue	$0	RevenueAmt
Desc	PUBLIC HEALTH EDUCATION:DURING FISCAL YEAR 2023, THROUGH OUR CHATLOS FOUNDATION PUBLIC EDUCATION PROGRAM, THE FOUNDATION AIMED TO CONTINUE TO PROVIDE EDUCATION AND SUPPORT TO PEOPLE AFFECTED BY RETINAL DEGENERATIVE DISEASES. THE FOUNDATION ALSO FIELDS A TEAM OF PROFESSIONALS FOCUSED ON EDUCATING OPHTHALMOLOGISTS AND OPTOMETRISTS ON THE LATEST ADVANCEMENTS WITH THE FOUNDATIONS RESOURCES AND RESEARCH ON THE INHERITED RETINAL DISEASE SPACE. TO KEEP OUR CONSTITUENTS AND PROFESSIONALS INFORMED, THE FOUNDATION PUBLISHES EXTENSIVE CONTENT VIA WEBSITE AND SOCIAL MEDIA/EMAIL CHANNELS; DISTRIBUTES A NEWSLETTER ONLINE AND IN PRINT; HOLDS QUARTERLY INSIGHTS FORUM CALLS TO INFORM THE COMMUNITY ABOUT SCIENTIFIC PROGRESS. THE CONTENT PRODUCED INCLUDES THE LATEST DEVELOPMENTS IN RESEARCH AND CLINICAL TRIALS, AND PERSONAL STORIES FROM MEMBERS OF THE FIGHTING BLINDNESS COMMUNITY. ADDITIONALLY, THE FOUNDATION HOLDS CONTINUING MEDICAL EDUCATION COURSES TWICE A YEAR, FOCUSED ON PROVIDING TIMELY CONTENT TO EYECARE PROFESSIONALS. CHAPTERS BRING THE FOUNDATION'S MESSAGE AND MISSION TO LIFE. IN FY23 THE FOUNDATION SUPPORTED OVER 45 VOLUNTEER-LED CHAPTERS IN 23 STATES. THE CHAPTERS HELD 80 IN-PERSON SPEAKER PRESENTATIONS, SOCIALS, AND OTHER OUTREACH ACTIVITIES, HOSTED 4 VISION SEMINARS, AND CO-HOSTED TWO VIRTUAL VISION WEBINARS WITH THE FOUNDATION WITH OVER 1,000 PEOPLE IN ATTENDANCE FOR EACH WEBINAR. THIS YEAR, THE CHAPTERS ARE HOSTING NEARLY 90 IN-PERSON SPEAKER PRESENTATIONS AND LAUNCHING SEVERAL NEW CHAPTERS IN NEW STATES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$2,794,276	ExpenseAmt
Grant	$0	GrantAmt
Revenue	$0	RevenueAmt
Desc	MY RETINA TRACKER REGISTRY:THE FOUNDATION MAINTAINS A RESEARCH DATABASE OF PEOPLE AND FAMILIES AFFECTED BY RARE INHERITED RETINAL DEGENERATIVE DISEASES. THE REGISTRY IS DESIGNED TO SHARE DE-IDENTIFIED INFORMATION WITHIN THE IRD RESEARCH AND CLINICAL COMMUNITIES ABOUT PEOPLE WITH AN INHERITED RETINAL DISEASE TO HELP ACCELERATE THE DISCOVERY OF TREATMENTS AND CURES. DURING FISCAL YEAR 2023 APPROXIMATELY 3,344 ADDITIONAL MEMBERS WERE ADDED TO THE REGISTRY, BRINGING TOTAL REGISTERED INDIVIDUALS UP TO 25,160.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$41,374,660	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	Yes (1)	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	0	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	Yes (1)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (1)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	Yes (1)	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	252	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	67	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	26	GoverningBodyVotingMembersCnt
Independent Voting Member	26	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	Yes (1)	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	Yes (1)	MembersOrStockholdersInd
Election Of Board Members	Yes (1)	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	PETER GINSBERG	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	4104230600	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6925 OAKLAND MILLS ROAD 701	AddressLine1Txt
City	COLUMBIA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	21045	ZIPCd

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	Yes (X)	InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (40 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
DAVID BRINT
CHAIRMAN OF THE BOARD	10.00	1.00	Yes (X)	Yes (X)	$0	$0	$0
EDWARD RUSSNOW
VICE CHAIR, DEVELOPMENT	1.00		Yes (X)	Yes (X)	$0	$0	$0
JONATHAN STEINBERG MD
VICE CHAIR, RESEARCH	1.00	1.00	Yes (X)	Yes (X)	$0	$0	$0
KAREN PETROU
VICE CHAIR, AT LARGE	1.00		Yes (X)	Yes (X)	$0	$0	$0
MARYROSE SYLVESTER
VICE CHAIR, AT LARGE	1.00		Yes (X)	Yes (X)	$0	$0	$0
STEVEN ALPER
INTERIM VICE CHAIR, DEVELOPMENT	1.00		Yes (X)	Yes (X)	$0	$0	$0
JASON MORRIS
VICE CHAIR, BOARD COMM & DEVELOPMENT AND TREASURER	1.00		Yes (X)	Yes (X)	$0	$0	$0
BRADFORD MANNING
VICE CHAIR, MARKETING, COMM & SOCIAL MEDIA	1.00		Yes (X)	Yes (X)	$0	$0	$0
HAYNES LEA
SECRETARY	1.00		Yes (X)	Yes (X)	$0	$0	$0
GORDON GUND
DIRECTOR - CHAIRMAN EMERITUS	1.00		Yes (X)	Yes (X)	$0	$0	$0
SCOTT BURT
DIRECTOR	1.00		Yes (X)		$0	$0	$0
WILLIAM CARTY
DIRECTOR	1.00		Yes (X)		$0	$0	$0
YVONNE CHESTER
DIRECTOR	1.00		Yes (X)		$0	$0	$0
JOEL DAVIS
DIRECTOR	1.00		Yes (X)		$0	$0	$0
DARREN DEVOUE
DIRECTOR	1.00		Yes (X)		$0	$0	$0
JASON FERREIRA
DIRECTOR	1.00		Yes (X)		$0	$0	$0
ROBERT FINZI
DIRECTOR	1.00		Yes (X)		$0	$0	$0
JEFFREY FREED
DIRECTOR	1.00		Yes (X)		$0	$0	$0
ADRIENNE GRAVES PH D
DIRECTOR	1.00	1.00	Yes (X)		$0	$0	$0
ROBERT HEIDENBERG
DIRECTOR	1.00		Yes (X)		$0	$0	$0
JANICE LEHRER-STEIN
DIRECTOR	1.00		Yes (X)		$0	$0	$0
MARSHA LINK PHD
DIRECTOR	1.00		Yes (X)		$0	$0	$0
LAURA MANFRE
DIRECTOR	1.00		Yes (X)		$0	$0	$0
EVAN MITTMAN
DIRECTOR	1.00		Yes (X)		$0	$0	$0
DAVID NIXON
DIRECTOR	1.00		Yes (X)		$0	$0	$0
WARREN THALER
DIRECTOR	1.00	1.00	Yes (X)		$0	$0	$0
BENJAMIN R YERXA
CEO (THRU 7/1/22)	26.00	14.00		Yes (X)	$248,524	$331,190	$42,458
JASON D MENZO
CEO (BEG 7/1/22)	32.00	8.00		Yes (X)	$367,118	$91,780	$64,129
RICHELE DONAT
CHRO	40.00			Yes (X)	$261,155	$0	$28,752
PETER GINSBERG
COO	32.00	8.00		Yes (X)	$264,095	$66,023	$59,015
CLAIRE GELFMAN
CHIEF SCIENTIFIC OFFICER	40.00			Yes (X)	$363,370	$0	$56,491
JUDY L TAYLOR
SVP, CHIEF DEVELOPMENT OFFICER	40.00				$198,073	$0	$54,237	Yes (X)
MICHELE C DIVINCENZO
VP, EVENTS	40.00				$185,979	$0	$35,462	Yes (X)
RUSSELL W KELLEY
MANAGING DIRECTOR, RD FUND	0.00	40.00			$0	$280,543	$59,290	Yes (X)
TODD A DURHAM
VP, CLINICAL & OUTCOMES RESEARCH	40.00				$246,371	$0	$33,390	Yes (X)
CHRISTOPHER S ADAMS
VP, COMMUNICATIONS & MARKETING	40.00				$182,079	$0	$46,456		Yes (X)
AMY M PALMER LASTER
SVP, SCIENCE STRATEGY & AWARDS	40.00				$197,800	$0	$13,897		Yes (X)
JEFFRY C COLLINS
VP, DATABASE SYSTEMS & TECHNOLOGY	40.00				$177,155	$0	$37,789		Yes (X)
CHAD R JACKSON
SR DIR, PRE-CLINICAL TRANSLATIONAL PROG	40.00				$180,733	$0	$14,971		Yes (X)
ANNA WAGNER
VP, FINANCE	40.00				$166,817	$0	$12,093		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$3,039,269	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$769,536	TotReportableCompRltdOrgAmt
Total Other Compensation	$558,430	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	19	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
FUSE FUNDRAISING GROUP LLC
12355 SUNRISE VALLEY DRIVE SUITE 2	RESTON	VA	20191	DIRECT MARKETING CONSULTANT	$552,985
DISNEY DESTINATION LLC
PO BOX 10000	LAKE BUENA VISTA	FL	32830	VENUE FOR VISIONS 2022 CONFERENCE	$432,161
THE RITZ-CARLTON HALF MOON BAY
ONE MIRAMONTES POINT ROAD	HALF MOON BAY	CA	94019	VENUE FOR INVESTING IN CURES SUMMIT/BOD	$302,046
CONTEMPORARY PRODUCTIONS LLC
190 CARONDELET PLAZA SUITE 1111	SAINT LOUIS	MO	63105	ENTERTAINMENT FOR FUNDRAISING EVENTS	$275,303
GASKILL STRATEGIES LLC
1759 CENTRAL AVENUE	MEMPHIS	TN	38173	FUND RAISING CAMPAIGN CONSULTANTS	$231,785

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	16	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$150,166	FederatedCampaignsAmt
Fundraising	$6,643,082	FundraisingAmt
Related Organizations	$400,000	RelatedOrganizationsAmt
Government Grants	$469,439	GovernmentGrantsAmt
All Other Contributions	$21,238,817	AllOtherContributionsAmt
Noncash Contributions	$7,511,241	NoncashContributionsAmt
Total Contributions	$28,901,504	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
CONTRACT REVENUE	900099	$395,548	$395,548
PROGRAM FEES	900099	$62,130	$62,130

Field	Value	IRS element (for citing)
Total Program Service Revenue	$457,678	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,426,537	TotalRevenueColumnAmt
Exclusion	$3,426,537	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$63,569	TotalRevenueColumnAmt
Exclusion	$63,569	ExclusionAmt

Gross Rents GrossRentsGrp

Field	Value	IRS element (for citing)
Real	$29,767	RealAmt

Less Rental Expenses LessRentalExpensesGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$29,767	RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$29,767	TotalRevenueColumnAmt
Exclusion	$29,767	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$85,421,835	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$87,501,607	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	-$2,079,772	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$2,079,772	TotalRevenueColumnAmt
Exclusion	-$2,079,772	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$919,261	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$6,643,082	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$1,280,840	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$361,579	TotalRevenueColumnAmt
Exclusion	-$361,579	ExclusionAmt

Field	Value	IRS element (for citing)
Gross Sales Of Inventory	$3,745	GrossSalesOfInventoryAmt
Cost Of Goods Sold	$3,633	CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$112	TotalRevenueColumnAmt
Unrelated Business Revenue	$112	UnrelatedBusinessRevenueAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	OTHER INCOME	Desc
Business	900099	BusinessCd
Total Revenue Column	$76	TotalRevenueColumnAmt
Exclusion	$76	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$76	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$30,437,892	TotalRevenueColumnAmt
Related Or Exempt Func Income	$457,678	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$112	UnrelatedBusinessRevenueAmt
Exclusion	$1,078,598	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$24,421,364	TotalAmt
Program Services	$24,421,364	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$3,451,065	TotalAmt
Program Services	$3,451,065	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$2,486,009	TotalAmt
Program Services	$1,233,642	ProgramServicesAmt
Management And General	$548,870	ManagementAndGeneralAmt
Fundraising	$703,497	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$4,864,908	TotalAmt
Program Services	$1,499,518	ProgramServicesAmt
Management And General	$705,719	ManagementAndGeneralAmt
Fundraising	$2,659,671	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$319,399	TotalAmt
Program Services	$113,708	ProgramServicesAmt
Management And General	$54,951	ManagementAndGeneralAmt
Fundraising	$150,740	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$773,911	TotalAmt
Program Services	$281,723	ProgramServicesAmt
Management And General	$101,058	ManagementAndGeneralAmt
Fundraising	$391,130	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$510,095	TotalAmt
Program Services	$182,939	ProgramServicesAmt
Management And General	$84,054	ManagementAndGeneralAmt
Fundraising	$243,102	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$1,720,285	TotalAmt
Program Services	$1,297,548	ProgramServicesAmt
Management And General	$212,072	ManagementAndGeneralAmt
Fundraising	$210,665	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$40,836	TotalAmt
Program Services	$4,158	ProgramServicesAmt
Management And General	$36,678	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$65,695	TotalAmt
Management And General	$59,668	ManagementAndGeneralAmt
Fundraising	$6,027	FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$260,000	TotalAmt
Program Services	$200,000	ProgramServicesAmt
Fundraising	$60,000	FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$605,928	TotalAmt
Fundraising	$605,928	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$257,252	TotalAmt
Management And General	$233,623	ManagementAndGeneralAmt
Fundraising	$23,629	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$380,117	TotalAmt
Program Services	$197,229	ProgramServicesAmt
Fundraising	$182,888	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$404,212	TotalAmt
Program Services	$106,924	ProgramServicesAmt
Management And General	$66,215	ManagementAndGeneralAmt
Fundraising	$231,073	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$493,460	TotalAmt
Program Services	$25,161	ProgramServicesAmt
Management And General	$118,204	ManagementAndGeneralAmt
Fundraising	$350,095	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$146,857	TotalAmt
Program Services	$31,967	ProgramServicesAmt
Management And General	$65,737	ManagementAndGeneralAmt
Fundraising	$49,153	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$431,825	TotalAmt
Program Services	$176,558	ProgramServicesAmt
Management And General	$80,024	ManagementAndGeneralAmt
Fundraising	$175,243	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$1,428,257	TotalAmt
Program Services	$756,068	ProgramServicesAmt
Management And General	$286,471	ManagementAndGeneralAmt
Fundraising	$385,718	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$112,060	TotalAmt
Program Services	$87,482	ProgramServicesAmt
Management And General	$2,723	ManagementAndGeneralAmt
Fundraising	$21,855	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$207,391	TotalAmt
Program Services	$111,170	ProgramServicesAmt
Management And General	$21,934	ManagementAndGeneralAmt
Fundraising	$74,287	FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	FundraisingFundraisingAmt	Management And GeneralManagementAndGeneralAmt
TRIAL RELATED COSTS	$7,063,325	$7,063,325
PROF FUNDRAISING-OTHER	$302,369		$302,369
PRINTING & PRODUCTION	$252,055	$133,111	$89,817	$29,127

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$266,765	TotalAmt
Management And General	$156,934	ManagementAndGeneralAmt
Fundraising	$109,831	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$51,265,440	TotalAmt
Program Services	$41,374,660	ProgramServicesAmt
Management And General	$2,864,062	ManagementAndGeneralAmt
Fundraising	$7,026,718	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$1,176,123	BOYAmt
EOY	$4,523,190	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$11,369,807	BOYAmt
EOY	$3,113,386	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$23,016,606	BOYAmt
EOY	$19,463,729	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$508,713	BOYAmt
EOY	$541,936	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$14,144	BOYAmt
EOY	$16,821	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$567,589	BOYAmt
EOY	$774,207	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$4,585,834	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$3,914,834	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$723,640	BOYAmt
EOY	$671,000	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$100,553,457	BOYAmt
EOY	$93,775,426	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$7,947,775	BOYAmt
EOY	$8,011,660	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$145,877,854	BOYAmt
EOY	$130,891,355	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$1,790,153	BOYAmt
EOY	$1,993,845	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$15,215,025	BOYAmt
EOY	$20,414,511	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$210,498	BOYAmt
EOY	$442,676	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$7,199,851	BOYAmt
EOY	$7,819,504	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$24,415,527	BOYAmt
EOY	$30,670,536	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$27,462,127	BOYAmt
EOY	$19,019,760	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$94,000,200	BOYAmt
EOY	$81,201,059	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$121,462,327	BOYAmt
EOY	$100,220,819	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$145,877,854	BOYAmt
EOY	$130,891,355	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$20,827,548	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$77,967	NetUnrlzdGainsLossesInvstAmt
Prior Period Adjustments	-$351,056	PriorPeriodAdjustmentsAmt
Other Changes In Net Assets	$15,063	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$50,471,319	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$31,895,116	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$27,741,201	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$39,734,129	CurrentTaxYearMinus1YearAmt
Current Tax Year	$28,901,504	CurrentTaxYearAmt
Total	$178,743,269	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$50,471,319	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$31,895,116	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$27,741,201	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$39,734,129	CurrentTaxYearMinus1YearAmt
Current Tax Year	$28,901,504	CurrentTaxYearAmt
Total	$178,743,269	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$59,536,132	SubstantialContributorsTotAmt
Public Support Total170	$119,207,137	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$5,503,900	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$5,325,536	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$4,394,213	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$4,142,169	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,519,873	CurrentTaxYearAmt
Total	$22,885,691	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$867,745	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$358,160	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$130,714	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,099,664	CurrentTaxYearMinus1YearAmt
Current Tax Year	$919,337	CurrentTaxYearAmt
Total	$3,375,620	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$205,004,580	TotalSupportAmt
Gross Receipts Rltd Activities	$1,693,592	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.58150	PublicSupportCY170Pct
Public Support PY170	0.60150	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	FormAndLineReferenceDesc
Explanation	FFB RD FUND SERVICE FEES - 2018 AMOUNT: $ 100,000. 2019 AMOUNT: $ 100,000. 2020 AMOUNT: $ 30,500. MISCELLANEOUS - 2018 AMOUNT: $ 82. 2019 AMOUNT: $ 71. 2020 AMOUNT: $ 14. 2021 AMOUNT: $ 65. 2022 AMOUNT: $ 76. FUNDRAISING EVENTS - 2018 AMOUNT: $ 767,663. 2019 AMOUNT: $ 258,089. 2020 AMOUNT: $ 100,200. 2021 AMOUNT: $ 349,599. 2022 AMOUNT: $ 919,261. SETTLEMENT INCOME - 2021 AMOUNT: $ 750,000.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$260,000	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$260,000	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$51,368,861	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$51,628,861	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year	$1,000,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$1,500,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year	$260,000	CurrentYearAmt
Total	$260,000	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year	$250,000	CurrentYearAmt
Total	$250,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$375,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$3,634,618	BeginningYearBalanceAmt
Investment Earnings Or Losses	$398,570	InvestmentEarningsOrLossesAmt
End Year Balance	$4,033,188	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$4,200,522	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$565,904	InvestmentEarningsOrLossesAmt
End Year Balance	$3,634,618	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$3,422,374	BeginningYearBalanceAmt
Investment Earnings Or Losses	$939,020	InvestmentEarningsOrLossesAmt
Grants Or Scholarships	$145,067	GrantsOrScholarshipsAmt
Administrative Expenses	$15,805	AdministrativeExpensesAmt
End Year Balance	$4,200,522	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$3,381,828	BeginningYearBalanceAmt
Investment Earnings Or Losses	$137,702	InvestmentEarningsOrLossesAmt
Grants Or Scholarships	$83,399	GrantsOrScholarshipsAmt
Administrative Expenses	$13,757	AdministrativeExpensesAmt
End Year Balance	$3,422,374	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$3,256,748	BeginningYearBalanceAmt
Investment Earnings Or Losses	$208,731	InvestmentEarningsOrLossesAmt
Grants Or Scholarships	$74,246	GrantsOrScholarshipsAmt
Administrative Expenses	$9,405	AdministrativeExpensesAmt
End Year Balance	$3,381,828	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	1.00000	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,008,404	OtherCostOrOtherBasisAmt
Depreciation	$942,289	DepreciationAmt
Book Value	$66,115	BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$3,577,430	OtherCostOrOtherBasisAmt
Depreciation	$2,972,545	DepreciationAmt
Book Value	$604,885	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$671,000	TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDesc	Book ValueBookValueAmt
BENEFICIAL INTERESTS IN REMAINDER TRUSTS	$7,180,648
CHARITABLE GIFT ANNUITY	$831,012

Field	Value	IRS element (for citing)
Total Book Value Other Assets	$8,011,660	TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)

DescDesc	AmtAmt
CHARITABLE GIFT ANNUITY OBLIGATION	$580,618
DEFERRED RENT	$680
DUE TO RELATED PARTY	$7,238,206

Field	Value	IRS element (for citing)
Total Liability	$7,819,504	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$25,986,193	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$77,967	NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts	$57,314	DonatedServicesAndUseFcltsAmt
Other Revenue	-$4,197,423	OtherRevenueAmt
Revenue Not Reported	-$4,218,076	RevenueNotReportedAmt
Revenue Subtotal	$30,204,269	RevenueSubtotalAmt
Investment Expenses Not Incld	$233,623	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$233,623	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$30,437,892	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$45,442,108	TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts	$57,314	DonatedServicesUseFcltsAmt
Prior Year Adjustments	$351,056	PriorYearAdjustmentsAmt
Other Expenses Included	-$5,983,016	OtherExpensesIncludedAmt
Expenses Not Reported	-$5,574,646	ExpensesNotReportedAmt
Expenses Subtotal	$51,016,754	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$233,623	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$15,063	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$248,686	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$51,265,440	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	EARNINGS CAN BE USED FOR OPERATIONS; PRINCIPAL IS DONOR RESTRICTED.
PART X, LINE 2:	THE ORGANIZATION PERFORMED AN EVALUATION OF ITS UNCERTAINTY IN INCOME TAX FOR THE YEARS ENDED JUNE 30, 2023 AND 2022, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. THE ORGANIZATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE CONSOLIDATED FINANCIAL STATEMENTS. UNDER THIS POLICY, THE ORGANIZATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE ORGANIZATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE CONSOLIDATED FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE. THE ORGANIZATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR THE U.S. FEDERAL, STATE OR LOCAL TAX AUTHORITIES FOR YEARS BEFORE JUNE 30, 2020.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	REVENUE FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 3,046,192. ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS -7,243,615.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	EXPENSES FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 9,337,258. ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS -15,320,274.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	GRANT REFUNDS 15,063.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt	Specific Services ProvidedSpecificServicesProvidedTxt
EUROPE (INCLUDING ICELAND & GREENLAND)	GRANTMAKING	$2,929,785
NORTH AMERICA	GRANTMAKING	$75,000
MIDDLE EAST AND NORTH AFRICA	GRANTMAKING	$446,280
EUROPE (INCLUDING ICELAND & GREENLAND)	PROGRAM SERVICES	$16,230	TRAVEL

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$3,467,295	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$3,467,295	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (12 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$528,407	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$294,518	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$100,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$548,360	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$622,000	WIRE	$0
MIDDLE EAST AND NORTH AFRICA	RESEARCH GRANT	$446,280	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$200,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$65,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$371,500	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$100,000	WIRE	$0
NORTH AMERICA	RESEARCH GRANT	$75,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$100,000	WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	11	Total501c3OrgCnt
Total Other Org	1	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 2:

EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS.

PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (3 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
FUSE FUNDRAISING GROUP LLC
12355 SUNRISE VALLEY DRIVE	RESTON	VA	20191	FUNDRAISING COUNSEL	0	$1,084,434	$609,094	$475,340
GASKILL STRATEGIES LLC
1759 CENTRAL AVE	MEMPHIS	TN	38104	FUNDRAISING COUNSEL	0	$0	$121,925	-$121,924
RED DELUXE
PO BOX 3350	MEMPHIS	TN	38173	FUNDRAISING COUNSEL	0	$0	$177,278	-$177,278

Field	Value	IRS element (for citing)
Total Gross Receipts	$1,084,434	TotalGrossReceiptsAmt
Total Retained By Contractors	$908,297	TotalRetainedByContractorsAmt
Total Net To Organization	$176,138	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	NIGHT FOR SIGHT NYC	Event1Nm
Gross Receipts Event1	$883,937	GrossReceiptsEvent1Amt
Charitable Contri Event1	$643,122	CharitableContriEvent1Amt
Gross Revenue Event1	$240,815	GrossRevenueEvent1Amt
Rent Facility Costs Event1	$136,240	RentFacilityCostsEvent1Amt
Entertainment Event1	$19,500	EntertainmentEvent1Amt
Other Direct Expenses Event1	$98,519	OtherDirectExpensesEvent1Amt
Event2	VISIONWALK - NEW YORK	Event2Nm
Gross Receipts Event2	$391,012	GrossReceiptsEvent2Amt
Charitable Contri Event2	$391,012	CharitableContriEvent2Amt
Other Events Total	64	OtherEventsTotalCnt
Gross Receipts Other Events	$6,287,394	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$5,608,948	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$678,446	GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events	$315,689	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$210,135	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$199,318	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$301,439	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$7,562,343	GrossReceiptsTotalAmt
Charitable Contributions Tot	$6,643,082	CharitableContributionsTotAmt
Gross Revenue Total Events	$919,261	GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events	$451,929	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$210,135	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$218,818	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$399,958	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$1,280,840	DirectExpenseSummaryEventsAmt
Net Income Summary	-$361,579	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (28 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	HOUSTON	TX	77030	741613878	501(C)(3)	$499,940	$0	RESEARCH
BIOJIVA
4300 EL CAMINO REAL SUITE 201	LOS ALTOS	CA	94022	883372722		$464,216	$0	RESEARCH
COLUMBIA UNIVERSITY
635 WEST 165TH STREET	NEW YORK	NY	10032	135598093	501(C)(3)	$896,691	$0	RESEARCH
DUKE UNIVERSITY MEDICAL CENTER
2200 W MAINE STREET	DURHAM	NC	27705	560532129	501(C)(3)	$600,000	$0	RESEARCH
EMORY UNIVERSITY
1559 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501(C)(3)	$75,000	$0	RESEARCH
FORDHAM UNIVERSITY
441 FORDHAM ROAD	BRONX	NY	10458	131740451	501(C)(3)	$480,030	$0	RESEARCH
FOUNDATION FIGHTING BLINDNESS RD FUND
6925 OAKLAND MILLS ROAD 701	COLUMBIA	MD	21045	450524687	501(C)(3)	$14,920,274	$0	RESEARCH
FOUNDATION FOR THE NIH
11400 ROCKVILLE PIKE SUITE 600	NORTH BETHESDA	MD	20852	521986675	501(C)(3)	$25,000	$0	RESEARCH
JACKSON LABORATORY
600 MAIN STREET	BAR HARBOR	ME	04609	010211513	501(C)(3)	$181,355	$0	RESEARCH
JOHNS HOPKINS UNIVERSITY
600 NORTH WOLFE STREET	BALTIMORE	MD	21287	520595110	501(C)(3)	$75,000	$0	RESEARCH
MASSACHUSETTS EYE AND EAR INFIRMARY
243 CHARLES STREET	BOSTON	MA	02114	042103591	501(C)(3)	$775,000	$0	RESEARCH
MEDICAL UNIVERSITY SOUTH CAROLINA
19 HAGOOD AVENUE	CHARLESTON	SC	29425	576028985	501(C)(3)	$140,433	$0	RESEARCH
MICHIGAN STATE UNIVERSITY
736 WILSON ROAD D208	EAST LANSING	MI	48823	386005987	501(C)(3)	$265,908	$0	RESEARCH
MITOCHEM THERAPEUTICS INC
17C FRANKLIN STREET	CHARLESTON	SC	29401	453845208		$300,000	$0	RESEARCH
OREGON HEALTH AND SCIENCE UNIVERSITY
3375 TERWILLIGER BOULEVARD SW	PORTLAND	OR	97201	237083114	501(C)(3)	$1,042,192	$0	RESEARCH
UNIVERSITY HOSPITALS
UH GRANTS DEPT 781686 PO BOX 78000	DETROIT	MI	48278	341567805	501(C)(3)	$118,500	$0	RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1670 UNIVERSITY BLVD	BIRMINGHAM	AL	35293	636005396	501(C)(3)	$199,946	$0	RESEARCH
UNIVERSITY OF CALIFORNIA IRVINE
228 ALDRICH HALL	IRVINE	CA	92697	952226406	501(C)(3)	$300,000	$0	RESEARCH
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE	LA JOLLA	CA	92037	956006144	501(C)(3)	$775,000	$0	RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
100 STEIN PLAZA	LOS ANGELES	CA	90095	956006143	501(C)(3)	$100,000	$0	RESEARCH
UNIVERSITY OF DELAWARE
590 AVENUE 1743	NEWARK	DE	19716	911955015	501(C)(3)	$100,000	$0	RESEARCH
UNIVERSITY OF FLORIDA
PO BOX 100284	GAINESVILLE	FL	32610	592729133	501(C)(3)	$100,000	$0	RESEARCH
UNIVERSITY OF ILLINOIS-CHICAGO
1855 WEST TAYLOR STREET	CHICAGO	IL	60612	376000511	501(C)(3)	$75,000	$0	RESEARCH
UNIVERSITY OF MICHIGAN
733 KELLOGG EYE CENTER 1000 WALL	ANN ARBOR	MI	48105	386006309	501(C)(3)	$75,000	$0	RESEARCH	STREET
UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	232810852	501(C)(3)	$575,000	$0	RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE	PITTSBURGH	PA	15213	250965591	501(C)(3)	$140,000	$0	RESEARCH
UNIVERSITY OF WASHINGTON
1100 45TH ST NE	SEATTLE	WA	98105	943079432	501(C)(3)	$1,023,689	$0	RESEARCH
UNIVERSITY OF WISCONSIN
21 NORTH PARK STREET	MADISON	WI	53715	390743975	501(C)(3)	$98,190	$0	RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	26	Total501c3OrgCnt
Total Other Org	2	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Idemnification Gross Up Pmts	Yes (X)	IdemnificationGrossUpPmtsInd
Written Policy Ref T And E Expnss	Yes (1)	WrittenPolicyRefTAndEExpnssInd
Substantiation Required	Yes (1)	SubstantiationRequiredInd
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (1)	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (14 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
BENJAMIN R YERXA
CEO (THRU 7/1/22)	$188,641	$298,945	$59,520	$32,049	$363	$196	$2,860	$1,540	$15,633	$22,425	$267,017	$355,155	$0	$0
JASON D MENZO
CEO (BEG 7/1/22)	$319,304	$79,826	$47,514	$11,879	$300	$75	$14,312	$3,578	$36,991	$9,248	$418,421	$104,606	$0	$0
CLAIRE GELFMAN
CHIEF SCIENTIFIC OFFICER	$324,295	$0	$37,425	$0	$1,650	$0	$11,157	$0	$45,334	$0	$419,861	$0	$0	$0
PETER GINSBERG
COO	$235,553	$58,888	$27,682	$6,920	$860	$215	$13,588	$3,397	$33,624	$8,406	$311,307	$77,826	$0	$0
RUSSELL W KELLEY
MANAGING DIRECTOR, RD FUND	$0	$260,777	$0	$19,209	$0	$557	$0	$16,971	$0	$42,319	$0	$339,833	$0	$0
RICHELE DONAT
CHRO	$219,955	$0	$18,287	$0	$22,913	$0	$12,670	$0	$16,082	$0	$289,907	$0	$0	$0
TODD A DURHAM
VP, CLINICAL & OUTCOMES RESEARCH	$228,493	$0	$17,352	$0	$526	$0	$7,495	$0	$25,895	$0	$279,761	$0	$0	$0
JUDY L TAYLOR
SVP, CHIEF DEVELOPMENT OFFICER	$182,659	$0	$14,656	$0	$758	$0	$12,350	$0	$41,887	$0	$252,310	$0	$0	$0
CHRISTOPHER S ADAMS
VP, COMMUNICATIONS & MARKETING	$164,307	$0	$17,412	$0	$360	$0	$1,883	$0	$44,573	$0	$228,535	$0	$0	$0
MICHELE C DIVINCENZO
VP, EVENTS	$168,280	$0	$17,345	$0	$354	$0	$10,363	$0	$25,099	$0	$221,441	$0	$0	$0
JEFFRY C COLLINS
VP, DATABASE SYSTEMS & TECHNOLOGY	$164,093	$0	$12,072	$0	$990	$0	$10,909	$0	$26,880	$0	$214,944	$0	$0	$0
AMY M PALMER LASTER
SVP, SCIENCE STRATEGY & AWARDS	$179,734	$0	$17,820	$0	$246	$0	$9,643	$0	$4,254	$0	$211,697	$0	$0	$0
CHAD R JACKSON
SR DIR, PRE-CLINICAL TRANSLATIONAL P	$167,322	$0	$13,264	$0	$147	$0	$10,641	$0	$4,330	$0	$195,704	$0	$0	$0
ANNA WAGNER
VP, FINANCE	$153,957	$0	$12,743	$0	$117	$0	$9,507	$0	$2,586	$0	$178,910	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 1A	SPOT BONUSES FOR EXTRAORDINARY WORK ARE PROVIDED TO EMPLOYEES. IF THE BONUS IS $1,000 OR LESS, IT IS GROSSED UP. THESE SPOT BONUSES AND GROSS UPS ARE INCLUDED IN TAXABLE COMPENSATION.
PART I, LINE 7	FFB EMPLOYEES PARTICIPATE IN AN ANNUAL INCENTIVE PLAN. THE PLAN PROVIDES AN ANNUAL CASH BONUS DEPENDING UPON THE ACHIEVEMENT OF PRE-DETERMINED ORGANIZATION AND INDIVIDUAL PERFORMANCE CRITERIA.

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	34	ContributionCnt
Noncash Contributions Rpt F990	$7,196,835	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FAIR MARKET VALUE	MethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	EVENT ITEMS	Desc
Contribution	819	ContributionCnt
Noncash Contributions Rpt F990	$314,406	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FAIR MARKET VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Form8283 Received	0	Form8283ReceivedCnt
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, COLUMN (B):	THE NUMBER IN THIS COLUMN FOR LINE 9 REPRESENTS THE NUMBER OF CONTRIBUTIONS OF STOCK.
PART I, LINE 32B:	WHEN DONATED STOCK IS RECEIVED, OUR BROKER MERRILL LYNCH IMMEDIATELY CONVERTS THESE CONTRIBUTIONS INTO CASH.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 4	THE FOUNDATION FIGHTING BLINDNESS, INC MADE THE FOLLOWING CHANGES TO THEIR BYLAWS: AT THE END OF ARTICLE XI, SECTION 4 (ON VICE CHAIRS) THE FOLLOWING WAS ADDED: FURTHER, IF THE BOARD OF DIRECTORS ELECTS TWO OR MORE VICE CHAIRS, THE BOARD OF DIRECTORS MAY DESIGNATE ONE OF THE VICE CHAIRS AS EXECUTIVE VICE CHAIR. IF SO ELECTED, THE EXECUTIVE VICE CHAIR WILL SERVE AS THE PRIMARY SUPPORT TO THE CHAIR FOR ADDITIONAL SERVICES ON BEHALF OF THE FOUNDATION, WILL BE THE VICE CHAIR FIRST RESPONSIBLE TO PERFORM THE DUTIES OF THE CHAIR OF THE BOARD IN THE CHAIR'S ABSENCE, AND WILL CARRY OUT SUCH OTHER DUTIES AS MAY BE PRESCRIBED BY THE CHAIR OR THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION A, LINE 6	MEMBERS OF FFB ARE KNOWN AS NATIONAL TRUSTEES. THE QUALIFICATIONS AND ELIGIBILITY FOR MEMBERSHIP AND THE MANNER OF ADMISSION INTO MEMBERSHIP IS PRESCRIBED BY RESOLUTION OF THE BOARD OF DIRECTORS. THE NATIONAL TRUSTEES ARE ENTITLED TO VOTE ON ELECTION OF DIRECTORS.
FORM 990, PART VI, SECTION A, LINE 7A	DURING THE ANNUAL MEETING OF THE NATIONAL TRUSTEES, MEMBERS OF THE BOARD OF DIRECTORS ARE ELECTED.
FORM 990, PART VI, SECTION B, LINE 11B	DATA TO PREPARE THE FEDERAL FORM 990 IS PROVIDED TO OUR OUTSIDE ACCOUNTING FIRM FOR PREPARATION AND GUIDANCE. AFTER IT HAS BEEN COMPLETED, A DRAFT OF THE FEDERAL FORM 990 IS REVIEWED BY THE VP, FINANCE AND CHIEF OPERATING OFFICER. WITH THE COO'S APPROVAL, THE DRAFT FEDERAL FORM 990 IS THEN MADE AVAILABLE TO ALL BOARD MEMBERS. ALL BOARD MEMBERS ARE INVITED TO ATTEND A SPECIAL MEETING OF THE FINANCE COMMITTEE TO REVIEW THE FEDERAL FORM 990. A FINAL DRAFT IS MADE AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING.
FORM 990, PART VI, SECTION B, LINE 12C	IN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST, AN INTERESTED PERSON (INCLUDING OFFICERS, DIRECTORS, AND KEY EMPLOYEES) MUST DISCLOSE, IN WRITING PRIOR TO ANY DISCUSSION OR VOTE UPON A PROPOSAL, THE EXISTENCE AND NATURE OF HIS OR HER PERSONAL INTEREST TO THE CHAIR OF THE BOARD AND CHAIR OF THE BOARD COMMITTEE CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, THE INTERESTED PERSON SHALL LEAVE THE BOARD OR COMMITTEE MEETING WHILE THE FINANCIAL INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS, AND IF SO, WHETHER THERE IS A COMPELLING REASON TO RECOMMEND TO THE BOARD THAT THE CONFLICT OF INTEREST POLICY BE OVERRIDDEN. A QUORUM IS NEEDED FOR VOTING AND THE VOTE TO OVERRIDE SHALL BE BY MAJORITY AND DULY NOTED IN THE MINUTES.
FORM 990, PART VI, SECTION B, LINE 15	THE COMPENSATION COMMITTEE AND THE BOARD OF DIRECTORS APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER. THE COMPENSATION COMMITTEE APPROVES THE COMPENSATION OF THE OTHER CHIEF OFFICERS. ON A ROUTINE BASIS, EXTERNAL DATA PROVIDED BY OUTSIDE EXPERT COMPENSATION CONSULTANTS IS USED TO MEASURE REASONABLENESS OF SALARIES TO THE MARKET PLACE AND RESULTS ARE COMMUNICATED BY OUTSIDE CONSULTANTS TO THE BOARD CHAIR/COMPENSATION COMMITTEE.
FORM 990, PART VI, SECTION C, LINE 19	FFB'S FEDERAL FORM 990 AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE AVAILABLE AT WWW.FIGHTBLINDNESS.ORG. OTHER PUBLIC DOCUMENTS INCLUDING THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST THROUGH THE CONTACT INFORMATION DISCLOSED ON FFB'S WEB SITE. THESE DOCUMENTS ARE AVAILABLE FOR THE SAME PERIOD OF DISCLOSURE AS SET FORTH IN SECTION 6104(D).
FORM 990, PART VII, SECTION A:	FFB ACTS AS THE COMMON PAYMASTER FOR THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND, A RELATED ORGANIZATION. BENJAMIN YERXA'S COMPENSATION INCLUDED IN PART VII, COLUMNS D, E, AND F INCLUDES HIS COMPENSATION PAID AS THE CEO OF FFB AND FFB RD FUND FOR THE PERIOD JANUARY 2022 THROUGH JULY 2022. IT ALSO INCLUDES HIS COMPENSATION PAID AS THE CEO OF RELATED ORGANIZATION, OPUS GENETICS, FROM JULY 2022 THROUGH DECEMBER 2022.
FORM 990, PART XI, LINE 9:	GRANT REFUNDS 15,063.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (3 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	EINEIN	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile StateLegalDomicileStateCd	Exempt Code SectionExemptCodeSectionTxt	Public Charity StatusPublicCharityStatusTxt	Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt	Controlled OrganizationControlledOrganizationInd
FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND
6925 OAKLAND MILLS ROAD 701	COLUMBIA	MD	21045	450524687	FUNDS RESEARCH AND CLINICAL TRIALS TO FIND TREATMENTS FOR RETINAL DISEASES	DE	501(C)(3)	LINE 12A, I	FOUNDATION FIGHTING BLINDNESS INC	Yes (1)
MACULAR DEGENERATION INTERNATIONAL INC
6925 OAKLAND MILLS ROAD 701	COLUMBIA	MD	21045	363923922	FUNDRAISING	IL	501(C)(3)	LINE 7	FOUNDATION FIGHTING BLINDNESS INC	Yes (1)
NATIONAL RETINITIS PIGMENTOSA FOUNDATION INC
6925 OAKLAND MILLS ROAD 701	COLUMBIA	MD	21045	522072391	FUNDRAISING	MD	501(C)(3)	LINE 12A, I	FOUNDATION FIGHTING BLINDNESS INC	Yes (1)

Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp

Related Organization Name RelatedOrganizationName

Field	Value	IRS element (for citing)
Business Name Line1	OPUS GENETICS INC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	8 DAVIS DRIVE SUITE 220	AddressLine1Txt
City	DURHAM	CityNm
State Abbreviation	NC	StateAbbreviationCd
ZIP	27709	ZIPCd

Field	Value	IRS element (for citing)
EIN	863335973	EIN
Primary Activities	GENE THERAPY	PrimaryActivitiesTxt
Legal Domicile State	DE	LegalDomicileStateCd

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	FOUNDATION FIGHTING BLINDNESS INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Entity Type	C	EntityTypeTxt
Share Of Total Income	$5,327	ShareOfTotalIncomeAmt
Share Of EOY Assets	$305,208	ShareOfEOYAssetsAmt
Ownership	0.06350	OwnershipPct
Controlled Organization	Yes (1)	ControlledOrganizationInd

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	0	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	Yes (1)	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	Yes (1)	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	0	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	0	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	0	DivRelatedOrganizationInd
Asset Sale To Other Org	0	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	0	AssetPurchaseFromOtherOrgInd
Asset Exchange	0	AssetExchangeInd
Rental Of Facilities To Oth Org	0	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	0	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	0	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	0	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	0	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (1)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	0	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	0	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	0	TransferToOtherOrgInd
Transfer From Other Org	0	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (3 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
FOUNDATION FIGHTING BLINDNESS RD FUND
B	$14,920,274	FAIR MARKET VALUE
FOUNDATION FIGHTING BLINDNESS RD FUND
O	$845,458	FAIR MARKET VALUE
OPUS GENETICS INC
C	$400,000	FAIR MARKET VALUE

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART IV, IDENTIFICATION OF RELATED ORGANIZATION TAXABLE AS A CORPORATION:	FormAndLineReferenceDesc
Explanation	OPUS GENETICS, INC., A FOR-PROFIT COMPANY BACKED BY THE FOUNDATION AND THE RD FUND, WHEREBY THE FOUNDATION AND THE RD FUND HELD A COMBINED OWNERSHIP OF OVER 50% UNTIL DECEMBER 31, 2022. ON DECEMBER 31, 2022, ADDITIONAL INVESTMENTS FROM THIRD PARTIES REDUCED THE COMBINED OWNERSHIP BY THE FOUNDATION AND THE RD FUND TO BELOW 50%. AT JUNE 30, 2023, THE COMBINED OWNERSHIP IS 43.28% AND IS NO LONGER A CONTROLLED ORGANIZATION.	ExplanationTxt