RUNX1 FOUNDATION: Form 990, tax year 2021
View the entire original 990 at ProPublica ↗
- Organization
- RUNX1 FOUNDATION (EIN 81-3557785)
- Tax period
- 2021-01-01 to 2021-12-31
- Filed
- 2022-06-15
- IRS object ID
- 202211669349301501
- Schema version
- 2021v4.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2022-06-15T10:54:35-04:00 | ReturnTs |
| Tax Period End | 2021-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 474306215 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Mullins PC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7625 Wisconsin Avenue | AddressLine1Txt |
| City | Bethesda | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2021-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 813557785 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RUNX1 Foundation dba RUNX1 Research Program | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | RUNX | BusinessNameControlTxt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1482 E Valley Rd Ste 137 | AddressLine1Txt |
| City | Santa Barbara | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 93108 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Katrin Ericson | PersonNm |
| Person Title | President | PersonTitleTxt |
| Phone | 8058804105 | PhoneNum |
| Signature | 2022-06-15 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | Katrin | PersonFirstNm |
| Person Last | Ericson | PersonLastNm |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | John Mullins | PreparerPersonNm |
| PTIN | P01429307 | PTIN |
| Phone | 2027706371 | PhoneNum |
| Preparation | 2022-06-15 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 0 | TrustedCustomerCd |
| OOB Security Verification | 00 | OOBSecurityVerificationCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2021 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Katrin Ericson | PrincipalOfficerNm |
| Gross Receipts | $5,336,089 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.runx1-fpd.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2016 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | See Schedule O. | ActivityOrMissionDesc |
| Voting Members Governing Body | 3 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 3 | VotingMembersIndependentCnt |
| Total Employee | 5 | TotalEmployeeCnt |
| Total Volunteers | 2 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $1,431,309 | PYContributionsGrantsAmt |
| CY Contributions Grants | $5,335,888 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $671 | PYInvestmentIncomeAmt |
| CY Investment Income | $0 | CYInvestmentIncomeAmt |
| PY Other Revenue | $425 | PYOtherRevenueAmt |
| CY Other Revenue | $201 | CYOtherRevenueAmt |
| PY Total Revenue | $1,432,405 | PYTotalRevenueAmt |
| CY Total Revenue | $5,336,089 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $949,500 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,500,912 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $562,232 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $762,470 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $2,706 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $118,240 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $134,696 | PYOtherExpensesAmt |
| CY Other Expenses | $345,387 | CYOtherExpensesAmt |
| PY Total Expenses | $1,649,134 | PYTotalExpensesAmt |
| CY Total Expenses | $2,608,769 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$216,729 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $2,727,320 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $310,714 | TotalAssetsBOYAmt |
| Total Assets EOY | $3,085,064 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $202,610 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $249,640 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $108,104 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $2,835,424 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | See Schedule O. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $1,077,038 | ExpenseAmt |
| Grant | $690,000 | GrantAmt |
| Desc | 2021 co-funding partnership with Alexs Lemonade Stand Foundation (ALSF), RUNX1 Familial Research Program granted $600,000 for research grants and $90,000 to Early Career Investigation (ECI) grants. Research grants were awarded to seven projects entitled Modeling Familial Platelet Disorder Mutations in Mice, Drug Screen for FPD/AML Therapeutics , Role of Inflammatory Microenvironment in Clonal Evolution and Progression from FPD to AML, Characterization of Pre-Leukemia Associated with Familial RUNX1 Mutations, Pharmacologic Enhancement of Residual Wild Type RUNX1 Protein Activity in RUNX1-FPD, and Identifying Therapeutic Targets to Prevent Progression of Familial RUNX1 Disorder to AML using Novel iPSC Models. Four early career investigators were supported. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $585,346 | ExpenseAmt |
| Grant | $375,000 | GrantAmt |
| Desc | 2021 Mark Foundation Cancer Research (MFCR) Seeking Transformational Research Venture (STRIVE) - Matching Grant partnership. Sponsoring Institutes include research by Dr. Ravindra Majeti, Stanford University; Dr. Lucy Godley, University of Chicago; and Dr. Lucio Castilla, University of Massachusetts Medical School. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $329,217 | ExpenseAmt |
| Grant | $210,912 | GrantAmt |
| Desc | 2021 Independent grants include support of the research of Dr. Nancy Speck at the University of Pennsylvania in the development of a mouse model of RUNX1-FPD. Other independent grants include projects that support an International RUNX1 database to aggregate clinicial and genetic patient data, support of a retrospective study on transplant outcomes and travel grants for young investigators to attend an international clinical research conference (EWOG- MDS). | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (2 entries)
| ExpenseExpenseAmt | GrantGrantAmt | DescDesc |
|---|---|---|
| $234,138 | $150,000 | Focused Impact Research (FIRE) grant program. Co-funding partnership with EP Evans Foundation supported two projects aimed at determining the role of inflammation in the initiation and progression of hematologic malignancies driven by germline RUNX1 mutations. |
| $117,069 | $75,000 | Co-funding partnership completed with the Leukemia and Lymphoma Society (LLS) for Translational Research.Three projects were funded focused on research related to raising RUNX1 activity via a class of drugs called epi-genetic modifiers, the Interaction of RUNX1 and the cohesin complex in megakaryocyte development and myeloid disease, and RUNX1 mutations that confer exquisite sensitivity to glucocorticoids. |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $351,207 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $225,000 | TotalOtherProgSrvcGrantAmt |
| Total Program Service Expenses | $2,342,808 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 7 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 5 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 3 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 3 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | false | ConflictOfInterestPolicyInd |
| Whistleblower Policy | false | WhistleblowerPolicyInd |
| Document Retention Policy | false | DocumentRetentionPolicyInd |
| Compensation Process CEO | false | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | The Organization | PersonNm |
| Phone | 8058804105 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1482 E Valley Rd Ste 137 | AddressLine1Txt |
| City | Santa Barbara | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 93108 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (3 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|---|
| Katrin Ericson | |||||||
| President Executive Directo | 40.00 | 0.00 | Yes (X) | Yes (X) | $389,276 | $0 | $22,839 |
| Monica Babich | |||||||
| Secretary Treasurer CFO | 15.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Timothy Babich | |||||||
| Chairperson | 15.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $389,276 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $22,839 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 1 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Government Grants | $50,694 | GovernmentGrantsAmt |
| All Other Contributions | $5,285,194 | AllOtherContributionsAmt |
| Total Contributions | $5,335,888 | TotalContributionsAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Other | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $201 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $201 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $201 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,336,089 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $201 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,375,912 | TotalAmt |
| Program Services | $1,375,912 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $125,000 | TotalAmt |
| Program Services | $125,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $389,276 | TotalAmt |
| Program Services | $330,885 | ProgramServicesAmt |
| Management And General | $38,928 | ManagementAndGeneralAmt |
| Fundraising | $19,463 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $248,891 | TotalAmt |
| Program Services | $180,060 | ProgramServicesAmt |
| Fundraising | $68,831 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,916 | TotalAmt |
| Program Services | $31,158 | ProgramServicesAmt |
| Management And General | $2,374 | ManagementAndGeneralAmt |
| Fundraising | $5,384 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $51,409 | TotalAmt |
| Program Services | $41,160 | ProgramServicesAmt |
| Management And General | $3,136 | ManagementAndGeneralAmt |
| Fundraising | $7,113 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,978 | TotalAmt |
| Program Services | $27,204 | ProgramServicesAmt |
| Management And General | $2,073 | ManagementAndGeneralAmt |
| Fundraising | $4,701 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $31,712 | TotalAmt |
| Management And General | $31,712 | ManagementAndGeneralAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,302 | TotalAmt |
| Management And General | $9,302 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,600 | TotalAmt |
| Management And General | $43,600 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $128,969 | TotalAmt |
| Program Services | $128,969 | ProgramServicesAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,985 | TotalAmt |
| Fundraising | $1,985 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,143 | TotalAmt |
| Program Services | $10,522 | ProgramServicesAmt |
| Management And General | $803 | ManagementAndGeneralAmt |
| Fundraising | $1,818 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $23,779 | TotalAmt |
| Program Services | $23,779 | ProgramServicesAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $54,577 | TotalAmt |
| Program Services | $43,697 | ProgramServicesAmt |
| Management And General | $3,329 | ManagementAndGeneralAmt |
| Fundraising | $7,551 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,070 | TotalAmt |
| Program Services | $8,062 | ProgramServicesAmt |
| Management And General | $614 | ManagementAndGeneralAmt |
| Fundraising | $1,394 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,400 | TotalAmt |
| Program Services | $1,400 | ProgramServicesAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,487 | TotalAmt |
| Management And General | $4,487 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,093 | TotalAmt |
| Management And General | $6,093 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Advisory Board | Desc |
| Total | $15,000 | TotalAmt |
| Program Services | $15,000 | ProgramServicesAmt |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,270 | TotalAmt |
| Management And General | $1,270 | ManagementAndGeneralAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,608,769 | TotalAmt |
| Program Services | $2,342,808 | ProgramServicesAmt |
| Management And General | $147,721 | ManagementAndGeneralAmt |
| Fundraising | $118,240 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $306,496 | BOYAmt |
| EOY | $3,051,994 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $28,852 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,218 | BOYAmt |
| EOY | $4,218 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $310,714 | BOYAmt |
| EOY | $3,085,064 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,915 | BOYAmt |
| EOY | $43,495 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $200,695 | BOYAmt |
| EOY | $206,145 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $202,610 | BOYAmt |
| EOY | $249,640 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $108,104 | BOYAmt |
| EOY | $2,835,424 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $108,104 | BOYAmt |
| EOY | $2,835,424 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $310,714 | BOYAmt |
| EOY | $3,085,064 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $2,727,320 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $1,543,801 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,366,353 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,431,309 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,335,888 | CurrentTaxYearAmt |
| Total | $10,677,351 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $1,543,801 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,366,353 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,431,309 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,335,888 | CurrentTaxYearAmt |
| Total | $10,677,351 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $4,684,143 | SubstantialContributorsTotAmt |
| Public Support Total170 | $5,993,208 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus2 Years | $961 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $671 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $201 | CurrentTaxYearAmt |
| Total | $1,833 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $10,679,184 | TotalSupportAmt |
| First5 Years170 | Yes (X) | First5Years170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| Forgivable Loan - PPP | $56,145 |
| EIDL Note Payable | $150,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $206,145 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $5,336,089 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Subtotal | $5,336,089 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $5,336,089 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,608,769 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $2,608,769 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $2,608,769 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Footnote for uncertain tax position under FIN 48 (Part X) | FormAndLineReferenceDesc |
| Explanation | The Organization has adopted the Financial Accounting Standards Board (FASB) Accounting Standards Codification (ASC) FASB ASC 740-10, Income Taxes, which prescribes measurement and disclosure requirements for current and deferred income tax provisions. The interpretation provides for a consistent approach in identifying and reporting uncertain tax provisions. It is managements belief that the Organization does not hold any uncertain tax positions. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|
| North America Not the United States | Program services | Research | $25,000 |
| Europe including Iceland and Greenland | Program services | Research | $100,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $125,000 | SubtotalSpentAmt |
| Total Spent | $125,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt |
|---|---|---|
| Europe including Iceland and Greenland | Research in partnership with ALSF | $100,000 |
| North America Not the United States | Research in partnership with LLS | $25,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 2 | Total501c3OrgCnt |
| Total Other Org | 2 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Use of grant monitoring procedures (Part I, line 2) | FormAndLineReferenceDesc |
| Explanation | EACH GRANTEE PROVIDES AN ANNUAL FINANCIAL REPORT SHOWING HOW THE MONEY GRANTED WAS SPENT FOR THAT SPECIFIC YEAR AS WELL AS CHECK-INS WITH FUNDING PARTNERS AND DIRECTORS SEMI-ANNUALLY. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (13 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| BOSTON CHILDRENS HOSPITAL | |||||||
| 300 LONGWOOD AVE | Boston | MA | 02115 | 042774441 | 501c3 | $100,000 | Research in partnership with ALSF |
| BROAD INSTITUTE | |||||||
| 415 MAIN STREET | Cambridge | MA | 02142 | 263428781 | 501c3 | $30,000 | Research in partnership with ALSF |
| CHILDRENS HOSPITAL OF PHILADELPHIA | |||||||
| 3615 CIVIC CENTER | Philadelphia | PA | 19101 | 232237932 | 501c3 | $100,000 | Research in partnership with ALSF |
| DANA FARBER CANCER INSTITUTE | |||||||
| 450 BROOKLINE AVE | Boston | MA | 02215 | 042263030 | 501c3 | $55,000 | Research in pship with ALSF LLS |
| ICAHN SCHOOL OF MEDICINE AT MOUNT S | |||||||
| 1 GUSTAVE L LEVY PLACE | New York | NY | 10029 | 136171197 | 501c3 | $50,000 | Research in partnership with ALSF |
| LELAND STANFORD JUNIOR UNIVERSITY | |||||||
| 215 PANAMA STREET BUILDING D | Stanford | CA | 94305 | 941156365 | 501c3 | $175,000 | Research in pship with ALSF MFCR |
| MEMORIAL SLOAN KETTERING CANCER CTR | |||||||
| 1275 YORK AVENUE | New York | NY | 10065 | 131624082 | 501c3 | $30,000 | Research in partnership with ALSF |
| OREGON HEALTH & SCIENCE UNIV FOUNDA | |||||||
| 1121 SW SALMON STREET SUITE 100 | Portland | OR | 97205 | 237083114 | 501c3 | $100,000 | Research in partnership with ALSF |
| UNIVERSITY OF MASSACHUSETTS MEDICAL | |||||||
| 55 LAKE AVENUE | Worcester | MA | 01655 | 043108190 | 501c3 | $225,000 | Research in pship with ALSF MFCR |
| UNIVERSITY OF PENNSYLVANIA | |||||||
| 338 SOUTH 19TH STREET | Philadelphia | PA | 19103 | 231352685 | 501c3 | $200,000 | Independent Research |
| UNIVERSITY OF CHICAGO | |||||||
| 5841 S MARYLAND AVE | Chicago | IL | 60637 | 363488183 | 501c3 | $125,000 | Research in partnership with MFCR |
| UNIVERSITY OF MIAMI | |||||||
| 1320 S DIXIE HWY GABLES ONE | Miami | FL | 33146 | 590624458 | 501c3 | $25,000 | Research in partnership with LLS |
| EDWARD P EVANS FOUNDATION | |||||||
| 300 BRICKSTONE SQUARE STE 201 | Andover | MA | 01810 | 256232129 | 501c3 | $150,000 | Research in partnership w EP Evans Fdn |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 13 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Monitoring procedures (Part I, line 2) | FormAndLineReferenceDesc |
| Explanation | EACH GRANTEE PROVIDES AN ANNUAL FINANCIAL REPORT SHOWING HOW THE MONEY GRANTED WAS SPENT FOR THAT SPECIFIC YEAR AS WELL AS CHECK-INS WITH FUNDING PARTNERS AND DIRECTORS SEMI-ANNUALLY. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Katrin Ericson | PersonNm |
| Title | President Executive Director | TitleTxt |
| Base Compensation Filing Org | $278,496 | BaseCompensationFilingOrgAmt |
| Bonus Filing Organization | $110,780 | BonusFilingOrganizationAmount |
| Deferred Compensation Flng Org | $19,500 | DeferredCompensationFlngOrgAmt |
| Nontaxable Benefits Filing Org | $3,339 | NontaxableBenefitsFilingOrgAmt |
| Total Compensation Filing Org | $412,115 | TotalCompensationFilingOrgAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Officer directors etc family relationship Part VI line 2 | Timothy and Monica Babich, the two co-directors, are married. |
| Form 990 governing body review Part VI line 11 | The Voting Members of the Organization have reviewed the form 990 and all schedules and have unanimously agreed on its accuracy. All members have received a copy for their records. |
| Governing documents etc available to public Part VI line 19 | The Organization will publish financial information, governing documents and conflict of interest policy on the Organizations website. |
| Part III response or note to any other line in Part III | Part I - Summary and Part III - Organizations Mission StatementTo provide grants for relevant research projects to find a cure for RUNX1-FPD, to raise public awareness, and to strengthen the community by providing a forum to help connect, inform and educate RUNX1-FPD patients and their families. |