SCLERODERMA RESEARCH FOUNDATION: Form 990, tax year 2021
View the entire original 990 at ProPublica ↗
- Organization
- SCLERODERMA RESEARCH FOUNDATION (EIN 68-0087234)
- Tax period
- 2021-01-01 to 2021-12-31
- Filed
- 2022-06-09
- IRS object ID
- 202241609349300964
- Schema version
- 2021v4.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2022-06-09T08:22:14-07:00 | ReturnTs |
| Tax Period End | 2021-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Crosby & Kaneda CPAs LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1970 Broadway STE 930 | AddressLine1Txt |
| City | Oakland | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 94612 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2021-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 680087234 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Scleroderma Research Foundation | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SCLE | BusinessNameControlTxt |
| Phone | 4158349444 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 220 Montgomery St Ste 484 | AddressLine1Txt |
| City | San Francisco | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 94104 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Joanne Gold | PersonNm |
| Person Title | Executive Dir. | PersonTitleTxt |
| Signature | 2022-06-09 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | Joanne | PersonFirstNm |
| Person Last | Gold | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Felix Gorrindo | PreparerPersonNm |
| PTIN | P01658413 | PTIN |
| Phone | 5108352727 | PhoneNum |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 2 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Federated Assurance Level | FAL1 | FederatedAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2021 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Luke Evnin PhD | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 220 Montgomery St Ste 484 | AddressLine1Txt |
| City | San Francisco | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 94104 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $4,021,547 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.sclerodermaresearch.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1987 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | The SRF is laser-focused on finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the worlds top scientists and institutions to drive innovation, and raising awareness about this rare disease. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 10 | VotingMembersIndependentCnt |
| Total Employee | 5 | TotalEmployeeCnt |
| Total Volunteers | 355 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $3,743,217 | PYContributionsGrantsAmt |
| CY Contributions Grants | $3,549,644 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $15,000 | CYProgramServiceRevenueAmt |
| PY Investment Income | $347,227 | PYInvestmentIncomeAmt |
| CY Investment Income | $411,284 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$159,304 | PYOtherRevenueAmt |
| CY Other Revenue | -$206,959 | CYOtherRevenueAmt |
| PY Total Revenue | $3,931,140 | PYTotalRevenueAmt |
| CY Total Revenue | $3,768,969 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,754,825 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,253,391 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $526,829 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $668,337 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $388,434 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $676,117 | PYOtherExpensesAmt |
| CY Other Expenses | $765,575 | CYOtherExpensesAmt |
| PY Total Expenses | $2,957,771 | PYTotalExpensesAmt |
| CY Total Expenses | $3,687,303 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $973,369 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $81,666 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $9,592,172 | TotalAssetsBOYAmt |
| Total Assets EOY | $9,819,469 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $201,194 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $346,825 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $9,390,978 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $9,472,644 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | Yes (true) | SignificantChangeInd |
| Expense | $2,609,761 | ExpenseAmt |
| Grant | $2,253,391 | GrantAmt |
| Revenue | $15,000 | RevenueAmt |
| Desc | The mission of the Scleroderma Research Foundation is to find, fund, and facilitate the most promising research to cure scleroderma. We recruit the best and the brightest researchers to understand the causes, discover treatments, and ultimately eradicate this disease . At the SRF, research is at the center of all we do. The Scleroderma Research Foundation's Research Program is governed by the Board of Directors and facilitated by a volunteer Scientific Advisory Board comprised of highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing useful therapies to help patients live longer, fuller lives - and, ultimately, a cure for scleroderma.Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $445,872 | ExpenseAmt |
| Desc | Many patients hear the word scleroderma for the first time when they are diagnosed.We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $3,055,633 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | Yes (true) | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 25 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 5 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Form8282 Filed | 0 | Form8282FiledCnt |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 10 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | false | MinutesOfGoverningBodyInd |
| Minutes Of Committees | false | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Kathie Lee | PersonNm |
| Phone | 4158349444 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 220 Montgomery St Ste 484 | AddressLine1Txt |
| City | San Francisco | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 94104 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (13 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|---|
| Joanne Gold | |||||||
| Executive Dir. | 40.00 | 0.00 | Yes (X) | Yes (X) | $193,236 | $0 | $11,567 |
| Cori Traub | |||||||
| Dir. Philanthropy | 40.00 | 0.00 | $108,558 | $0 | $5,379 | ||
| Luke Evnin PhD | |||||||
| Chairman | 5.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Bob Smith | |||||||
| Treasurer | 2.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Deann Wright | |||||||
| Secretary | 2.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Bob Saget | |||||||
| Board Member | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Susan Feniger | |||||||
| Board Member | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Sharon Dobie MD | |||||||
| Board Member | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Eric Kau MD | |||||||
| Board Member | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| David Knoller | |||||||
| Board Member | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Violetta Merin | |||||||
| Board Member | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Caryn Zucker | |||||||
| Board Member | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Regina Hall | |||||||
| Board Member | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $301,794 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $16,946 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (2 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| Ravix Financial Inc | |||||
| 226 Airport Pkwy Ste 400 | San Jose | CA | 95110 | Finance & HR | $118,985 |
| Browne Inc dba BrowneMusser | |||||
| 10 Rice Lane | Larkspur | CA | 94939 | Marketing & Outreach | $227,506 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 2 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $650,478 | FundraisingAmt |
| Government Grants | $64,759 | GovernmentGrantsAmt |
| All Other Contributions | $2,834,407 | AllOtherContributionsAmt |
| Noncash Contributions | $156,312 | NoncashContributionsAmt |
| Total Contributions | $3,549,644 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Research collaboration | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $15,000 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $15,000 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $15,000 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $411,284 | TotalRevenueColumnAmt |
| Exclusion | $411,284 | ExclusionAmt |
Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $45,619 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $650,478 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $252,578 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$206,959 | TotalRevenueColumnAmt |
| Exclusion | -$206,959 | ExclusionAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $0 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,768,969 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $15,000 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $204,325 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,178,391 | TotalAmt |
| Program Services | $2,178,391 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $75,000 | TotalAmt |
| Program Services | $75,000 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $224,407 | TotalAmt |
| Program Services | $100,983 | ProgramServicesAmt |
| Management And General | $56,102 | ManagementAndGeneralAmt |
| Fundraising | $67,322 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $369,918 | TotalAmt |
| Program Services | $214,624 | ProgramServicesAmt |
| Management And General | $22,937 | ManagementAndGeneralAmt |
| Fundraising | $132,357 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,626 | TotalAmt |
| Program Services | $21,135 | ProgramServicesAmt |
| Management And General | $479 | ManagementAndGeneralAmt |
| Fundraising | $12,012 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $40,386 | TotalAmt |
| Program Services | $22,047 | ProgramServicesAmt |
| Management And General | $4,600 | ManagementAndGeneralAmt |
| Fundraising | $13,739 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $104,020 | TotalAmt |
| Management And General | $104,020 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $31,874 | TotalAmt |
| Management And General | $31,874 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $159,797 | TotalAmt |
| Program Services | $118,410 | ProgramServicesAmt |
| Management And General | $2,847 | ManagementAndGeneralAmt |
| Fundraising | $38,540 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $236,035 | TotalAmt |
| Program Services | $194,810 | ProgramServicesAmt |
| Management And General | $639 | ManagementAndGeneralAmt |
| Fundraising | $40,586 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $73,385 | TotalAmt |
| Program Services | $39,408 | ProgramServicesAmt |
| Management And General | $6,624 | ManagementAndGeneralAmt |
| Fundraising | $27,353 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $59,650 | TotalAmt |
| Program Services | $29,044 | ProgramServicesAmt |
| Management And General | $3,355 | ManagementAndGeneralAmt |
| Fundraising | $27,251 | FundraisingAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $85,711 | TotalAmt |
| Program Services | $51,427 | ProgramServicesAmt |
| Management And General | $8,571 | ManagementAndGeneralAmt |
| Fundraising | $25,713 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,401 | TotalAmt |
| Program Services | $539 | ProgramServicesAmt |
| Management And General | $216 | ManagementAndGeneralAmt |
| Fundraising | $646 | FundraisingAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $249 | TotalAmt |
| Program Services | $220 | ProgramServicesAmt |
| Management And General | $7 | ManagementAndGeneralAmt |
| Fundraising | $22 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,333 | TotalAmt |
| Program Services | $8,323 | ProgramServicesAmt |
| Management And General | $753 | ManagementAndGeneralAmt |
| Fundraising | $2,257 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,120 | TotalAmt |
| Program Services | $1,272 | ProgramServicesAmt |
| Management And General | $212 | ManagementAndGeneralAmt |
| Fundraising | $636 | FundraisingAmt |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,687,303 | TotalAmt |
| Program Services | $3,055,633 | ProgramServicesAmt |
| Management And General | $243,236 | ManagementAndGeneralAmt |
| Fundraising | $388,434 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,050,225 | BOYAmt |
| EOY | $538,650 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $249 | BOYAmt |
| EOY | $174 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $120,000 | BOYAmt |
| EOY | $1,491,312 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $9,653 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $11,000 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $47,829 | BOYAmt |
| EOY | $28,972 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $89,388 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $26,412 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,365 | BOYAmt |
| EOY | $62,976 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,360,504 | BOYAmt |
| EOY | $7,676,732 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,592,172 | BOYAmt |
| EOY | $9,819,469 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $136,435 | BOYAmt |
| EOY | $167,129 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $179,696 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $64,759 | BOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $201,194 | BOYAmt |
| EOY | $346,825 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,439,559 | BOYAmt |
| EOY | $7,232,642 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,951,419 | BOYAmt |
| EOY | $2,240,002 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,390,978 | BOYAmt |
| EOY | $9,472,644 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,592,172 | BOYAmt |
| EOY | $9,819,469 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $81,666 | ReconcilationRevenueExpnssAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,049,463 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,422,421 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,892,050 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,743,217 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,549,644 | CurrentTaxYearAmt |
| Total | $20,656,795 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,049,463 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,422,421 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,892,050 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,743,217 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,549,644 | CurrentTaxYearAmt |
| Total | $20,656,795 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $7,947,444 | SubstantialContributorsTotAmt |
| Public Support Total170 | $12,709,351 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $76,911 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $100,237 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $74,912 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $347,227 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $98,683 | CurrentTaxYearAmt |
| Total | $697,970 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $21,354,765 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $15,000 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.59520 | PublicSupportCY170Pct |
| Public Support PY170 | 0.56010 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $89,388 | OtherCostOrOtherBasisAmt |
| Depreciation | $26,412 | DepreciationAmt |
| Book Value | $62,976 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $62,976 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $3,737,095 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Subtotal | $3,737,095 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $31,874 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $31,874 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $3,768,969 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $3,655,429 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $3,655,429 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $31,874 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $31,874 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $3,687,303 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part X : FIN48 Footnote | FormAndLineReferenceDesc |
| Explanation | The Internal Revenue Service and the California Franchise Tax Board have determined that the Organization is exempt from federal and state income taxes under IRC 501(c)(3) and California RTC 23701(d). The Organization has evaluated its current tax positions as of December 31, 2021 and is not aware of any significant uncertain tax positions for which a reserve would be necessary. The Organizations tax returns are generally subject to examination by federal and state taxing authorities for three and four years, respectively, after they are filed. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| Europe | 0 | 0 | Grants - Scleroderma Research | $50,000 |
| E Asia & Pacific | 0 | 0 | Grants - Scleroderma Research | $25,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $75,000 | SubtotalSpentAmt |
| Total Spent | $75,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| E Asia &Pacific | Research | $25,000 | EFT |
| Europe | Research | $25,000 | EFT |
| Europe | Research | $25,000 | EFT |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
| Total Other Org | 2 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US | FormAndLineReferenceDesc |
| Explanation | As part of the extensive continuing grant application process, grantees are required to provide a summary accounting of the grant from the prior funding year along with any remaining balances. This information, along with the proposed budget for the next funding cycle is reviewed by our Scientific Advisory Board (SAB) during the annual scientific workshop. The Board of Directors meets to discuss the SAB recommendations and funding decisions are agreed upon. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Agrmt Prof Fundraising Acty | false | AgrmtProfFundraisingActyInd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Cool Comedy | Event1Nm |
| Gross Receipts Event1 | $696,097 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $650,478 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $45,619 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $19,861 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $32,383 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $200,334 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $696,097 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $650,478 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $45,619 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $19,861 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $32,383 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $200,334 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $252,578 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$206,959 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (18 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| Columbia University | ||||||||
| PO Box 29789 Gen Post Office | New York | NY | 10087 | 135598093 | 501c3 | $20,097 | $0 | Research |
| Georgetown Univ Medical Ctr | ||||||||
| PO Box 571164 | Washington | DC | 20057 | 522218584 | 501c3 | $13,647 | $0 | Research |
| Hospital for Special Surgery | ||||||||
| 535 E 70th St | New York | NY | 10021 | 131624135 | 501c3 | $136,120 | $0 | Research |
| John Hopkins University | ||||||||
| 12529 Collections Center Dr | Chicago | IL | 60693 | 520595110 | 501c3 | $381,336 | $0 | Research |
| Massachusetts GeneralHospital | ||||||||
| 55 Fruit St YAW2C | Boston | MA | 02114 | 042697983 | 501c3 | $15,131 | $0 | Research |
| McGovern Med SchoolUT Health | ||||||||
| 6431 Fannin | Houston | TX | 77030 | 741761309 | 501c3 | $38,388 | $0 | Research |
| Medical Univ of SouthCarolina | ||||||||
| 19 Hagood Ave Ste 805 MSC 804 | Charleston | SC | 29425 | 576028985 | 501c3 | $6,423 | $0 | Research |
| Northwestern University | ||||||||
| 633 N St Clair 18-041 | Chicago | IL | 60611 | 362167817 | 501c3 | $19,941 | $0 | Research |
| Regents of Univ of CA-UCSF | ||||||||
| PO Box 748872 | Loa Angeles | CA | 90074 | 946036493 | 501c3 | $46,130 | $0 | Research |
| Regents of Univ of Michigan | ||||||||
| Box 223131 | Pittsburgh | PA | 15251 | 386006309 | 501c3 | $10,825 | $0 | Research |
| Stanford School of Medicine | ||||||||
| PO Box 44253 | San Francisco | CA | 94144 | 941156365 | 501c3 | $658,628 | $0 | Research |
| Trustees of Dartmouth College | ||||||||
| 11 Rope Ferry Rd Ste 6210 | Hanover | NH | 03755 | 651199443 | 501c3 | $115,669 | $0 | Research |
| Trustees of the Univ of PA | ||||||||
| PO Box 785541 | Philadelphia | PA | 19178 | 231352685 | 501c3 | $21,118 | $0 | Research |
| Univ of TX Health Science Ctr | ||||||||
| PO Box 301418 | Dallas | TX | 75303 | 741761309 | 501c3 | $118,612 | $0 | Research |
| University of Pittsburgh | ||||||||
| 3100 Cathedral of Learning | Pittsburgh | PA | 15260 | 250965591 | 501c3 | $75,000 | $0 | Research |
| University of Rochester | ||||||||
| PO Box 278996 | Rochester | NY | 14627 | 160743209 | 501c3 | $85,000 | $0 | Research |
| University of Utah | ||||||||
| PO Box 581374 | Salt Lake City | UT | 84158 | 876000525 | 501c3 | $275,224 | $0 | Research |
| Yale University | ||||||||
| PO Box 208011 TAC 5669 | New Haven | CT | 06520 | 060646973 | 501c3 | $140,000 | $0 | Research |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 18 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Grantmaker's Description of How Grants are Used | FormAndLineReferenceDesc |
| Explanation | As part of the extensive continuing grant application process, grantees are required to provide a summary accounting of the grant from the prior funding year along with any remaining balances. This information, along with the proposed budget for the next funding cycle is reviewed by our Scientific Advisory Board (SAB) during the annual scientific workshop. The Board of Directors meets to discuss the SAB recommendations and funding decisions are agreed upon. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Joanne Gold | PersonNm |
| Title | Executive Dir. | TitleTxt |
| Base Compensation Filing Org | $193,236 | BaseCompensationFilingOrgAmt |
| Nontaxable Benefits Filing Org | $11,567 | NontaxableBenefitsFilingOrgAmt |
| Total Compensation Filing Org | $204,803 | TotalCompensationFilingOrgAmt |
Schedule L IRS990ScheduleL
Loans Btwn Org Interested Prsn LoansBtwnOrgInterestedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Deann Wright | PersonNm |
| Relationship With Org | Secretary | RelationshipWithOrgTxt |
| Loan Purpose | WD Error | LoanPurposeTxt |
| Loan From Organization | Yes (X) | LoanFromOrganizationInd |
| Original Principal | $11,000 | OriginalPrincipalAmt |
| Balance Due | $11,000 | BalanceDueAmt |
| Default | false | DefaultInd |
| Board Or Committee Approval | Yes (true) | BoardOrCommitteeApprovalInd |
| Written Agreement | false | WrittenAgreementInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Balance Due | $11,000 | TotalBalanceDueAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule L, Part V Supplemental Information | FormAndLineReferenceDesc |
| Explanation | A board member and substantial contributor to the Organization had a personal bank account at the same bank as the Organization. They inadvertantly executed a transaction in December 2021 that drew from the Organization's account rather than their personal account which generated a receivable at year end as reported on Form 990 - Part X - Line 5. All funds were repaid in January 2022. | ExplanationTxt |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 6 | ContributionCnt |
| Noncash Contributions Rpt F990 | $124,317 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | Auction items | Desc |
| Contribution | 17 | ContributionCnt |
| Noncash Contributions Rpt F990 | $31,995 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | false | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | false | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (8 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part III, Line 3: Ceased Conducting or Significant Changes To Services | In FY21, the SRF launched a new website design to make patient resources and disease information more engaging and user-friendly for the scleroderma community We also established the #SayScleroderma social media campaign to increase awareness about the disease. |
| Form 990, Part VI, Line 1a: Explanation of Delegated Broad Authority to Committee | A separate Finance Committee reviews monthly financial performance and previews audit and tax returns prior to full Board review. |
| Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et | Luke Evnin (Chairman) is married to Deann Wright (Secretary). |
| Form 990, Part VI, Line 11b: Form 990 Review Process | A draft will be sent to the Finance Committee and once it clears their review, it will go to the full Board for approval. |
| Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts | Conflict of interest policy is discussed with all BOD members in annual review of Bylaws, members are asked to disclose any updates or changes that may conflict with the stated policy. |
| Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management | Market comparisons were done during initial recruitment, Recommendations for bonus/salary increases were based on industry standards and discussed/voted on during an executive session of the Jan. 2021 BOD meeting. |
| Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees | Process included review of publicly available compensation data, discussions with BOD to set salary max and bonus allowances as part of annual budgeting. If there is a request to exceed budgeted salary, BOD approval is required by vote. |
| Form 990, Part VI, Line 19: Other Organization Documents Publicly Available | Financial statements, bylaws, and conflict of interest policy are available on website. |