STRATEGY STUDIO / PUBLIC DATA EXPLORER

AMYLOIDOSIS RESEARCH CONSORTIUM INC: Form 990, tax year 2021

View the entire original 990 at ProPublica ↗

Organization
AMYLOIDOSIS RESEARCH CONSORTIUM INC (EIN 47-2589708)
Tax period
2021-01-01 to 2021-12-31
Filed
2022-11-15
IRS object ID
202213199349316746
Schema version
2021v4.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2022-11-15T13:59:54-06:00ReturnTs
Tax Period End2021-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN203985546PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1JOHNSON OCONNOR FERON & CARUCCI LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1101 EDGEWATER DRIVE SUITE 210AddressLine1Txt
CityWAKEFIELDCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01880ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2021-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN472589708EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1AMYLOIDOSIS RESEARCH CONSORTIUM INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlAMYLBusinessNameControlTxt
Phone6178998810PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1320 NEVADA STREET SUITE 210AddressLine1Txt
CityNEWTONCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02460ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonISABELLE LOUSADAPersonNm
Person TitleCEO & CLERKPersonTitleTxt
Phone6178998810PhoneNum
Signature2022-11-15SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstISABELLEPersonFirstNm
Person LastLOUSADAPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonGREG ROGERSPreparerPersonNm
PTINP01278154PTIN
Phone7819143400PhoneNum
Preparation2022-11-15PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer0TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2021TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerISABELLE LOUSADAPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1320 NEVADA STREET SUITE 210AddressLine1Txt
CityNEWTONCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02460ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,647,972GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.ARCI.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2015FormationYr
Legal Domicile StateMALegalDomicileStateCd
Activity Or MissionACCELERATING THE DEVELOPMENT OF ADVANCED DIAGNOSTIC TOOLS AND EFFECTIVE TREATMENTS FOR SYSTEMIC AMYLOIDOSIS THROUGH COLLABORATION AND INNOVATION.ActivityOrMissionDesc
Voting Members Governing Body6VotingMembersGoverningBodyCnt
Voting Members Independent4VotingMembersIndependentCnt
Total Employee10TotalEmployeeCnt
Total Volunteers2TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,909,160PYContributionsGrantsAmt
CY Contributions Grants$1,472,339CYContributionsGrantsAmt
PY Program Service Revenue$7,472PYProgramServiceRevenueAmt
CY Program Service Revenue$2,258CYProgramServiceRevenueAmt
PY Investment Income$827PYInvestmentIncomeAmt
CY Investment Income$724CYInvestmentIncomeAmt
PY Other Revenue$208,000PYOtherRevenueAmt
CY Other Revenue$172,651CYOtherRevenueAmt
PY Total Revenue$2,125,459PYTotalRevenueAmt
CY Total Revenue$1,647,972CYTotalRevenueAmt
PY Grants And Similar Paid$0PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$75,640CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$629,450PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$888,048CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$160,865CYTotalFundraisingExpenseAmt
PY Other Expenses$604,498PYOtherExpensesAmt
CY Other Expenses$718,443CYOtherExpensesAmt
PY Total Expenses$1,233,948PYTotalExpensesAmt
CY Total Expenses$1,682,131CYTotalExpensesAmt
PY Revenues Less Expenses$891,511PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$34,159CYRevenuesLessExpensesAmt
Total Assets BOY$2,277,557TotalAssetsBOYAmt
Total Assets EOY$2,350,923TotalAssetsEOYAmt
Total Liabilities BOY$291,242TotalLiabilitiesBOYAmt
Total Liabilities EOY$154,981TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,986,315NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,195,942NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionACCELERATING THE DEVELOPMENT OF ADVANCED DIAGNOSTIC TOOLS AND EFFECTIVE TREATMENTS FOR SYSTEMIC AMYLOIDOSIS THROUGH COLLABORATION AND INNOVATION.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$808,820ExpenseAmt
Grant$75,640GrantAmt
Revenue$167,222RevenueAmt
DescRESEARCH PROGRAMSARC HAS BEEN WORKING ON A NUMBER OF RESEARCH INITIATIVES INCLUDING DATASHARING, AND PATIENT EXPERIENCE STUDIES. ARC HAS ALSO DEVELOPED AN APPOINTMENT COMPANION TOOL THAT SUPPORTS PATIENTS THROUGHOUT THEIR TREATMENT JOURNEY. THE ANONYMIZED AGGREGATED DATA PROVIDES VALUABLE REAL WORLD INCITES. ARC IS DEVELOPING A PATIENT REPORTED OUTCOMES TOOL FOR USE IN CLINICAL TRIALS AND CLINICAL PRACTICE.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$390,239ExpenseAmt
DescAWARENESS, EDUCATIONAL PROGRAMS AND ADVOCACYARC'S PATIENT AND HEALTHCARE PROFESSIONAL PROGRAMS EDUCATE PHYSICIANS AND TAILOR INFORMATION TO SUIT THE PATIENT'S NEEDS AND ARE SUCCESSFULLY MATCHING THEM TO BETTER TREATMENT CENTERS, CARE, AND CLINICAL TRIALS. ARC'S PATIENT ADVISORY BOARD ARE INSTRUMENTAL IN DEFINING AND PRIORITIZING ARC'S PATIENT PROGRAMS. ARC'S PATIENT SUPPORT SPECIALIST PROVIDES INFORMATION AND GUIDANCE FOR PATIENTS THROUGHOUT THEIR JOURNEY. ARC ALSO MAINTAINS A COMPREHENSIVE WEBSITE WITH THE LATEST INFORMATION AND NEWS ABOUT AMYLOIDOSIS. ARC'S UNIQUE AMYLOIDOSIS PATHFINDER TOOL SUPPORTS PATIENTS IN FINDING AND EVALUATING TREATMENT CENTERS AND MATCHING THEM WITH CLINICAL TRIALS. THIS TOOL HAS BEEN FURTHER ENHANCED TO SUPPORT PATIENTS WITH TELEHEALTH VISITS AND VIRTUAL CARE DURING THE PANDEMIC. ARC ALSO HOSTS ARC TALKS, A REGULAR PATIENT EDUCATIONAL WEBINAR SERIES COVERING A RANGE OF IMPORTANT TOPICS. ARC HAS DEVELOPED BOOKLETS, AND HANDOUTS TO PROVIDE PATIENTS WITH IN DEPTH INFORMATION ON AMYLOIDOSIS RELATED TOPICSDesc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$230,596ExpenseAmt
DescHEALTHCARE PROFESSIONAL EDUCATION:ARC HAS CARRIED OUT RESEARCH TO UNDERSTAND THE BARRIERS AND PATHWAYS TO EARLY DIAGNOSIS. FROM THIS RESEARCH, ARC DEVELOPED AND IMPLEMENT TARGETED SOLUTIONS. ARC RAISES AWARENESS AND PROVIDES PHYSICIAN EDUCATION ON THE SIGNS, SYMPTOMS, AND CARE OF AMYLOIDOSIS TO RAISE THE LEVEL OF SUSPICION, IMPROVE THE SPEED OF DIAGNOSIS, AND STANDARDS OF CARE. ARC HELD A MASTERCLASS FOR PHYSICIANS AND NURSES IN DALLAS, TX FOCUSED ON ADDRESSING THE CHALLENGES OF ACCURATE DIAGNOSIS AND MANAGING CARE. ARC HAS PUBLISHED PEER REVIEWED CONSENSUS GUIDELINES DEFINING PATHWAY FOR SUSPICION AND DIAGNOSIS WITH A FOCUS ON CARDIOLOGY AND GENERAL PRACTICE. ARC SPONSORED A SATELLITE SYMPOSIUM AT THE HFSA CONFERENCE ON THE DIAGNOSIS AND TREATMENT OF CARDIAC AMYLOIDOSIS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,429,655TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org MemYes (1)BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document11IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee10EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members6GoverningBodyVotingMembersCnt
Independent Voting Member4IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE ORGANIZATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone6178898810PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1320 NEVADA STREET SUITE 210AddressLine1Txt
CityNEWTONCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02460ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (8 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
ISABELLE LOUSADA
CEO & CLERK40.00Yes (X)$142,005$0$249
DR GIAMPAOLO MERLINI
BOARD MEMBER0.25Yes (X)$0$0$0
DR RAYMOND COMENZO
BOARD MEMBER0.25Yes (X)$0$0$0
DENA HEATH
BOARD MEMBER3.00Yes (X)$0$0$0
SARAH CAIRNS-SMITH
PRESIDENT/BOARD CHAIR0.50Yes (X)$0$0$0Yes (X)
JASON SHORE
TREASURER0.50Yes (X)$0$0$0Yes (X)
KRISTEN HSU
EXEC. DIR. OF CLINICAL RESEARCH40.00$120,967$0$249Yes (X)
ROBYN HIMICK
ASSOC. DIR. OF CLINICAL RESEARCH40.00$110,449$0$235Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$373,421TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$733TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K3IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (2 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
QUALITY METRIC INCORPORATED LLC
1301 ATWOOD AVENUE SUITE 311NJOHNSTONRI02919PROGRAM CONSULTANT$187,578
ANALYSIS GROUP
111 HUNTINGTON AVENUE 14TH FLOORBOSTONMA02199PROGRAM CONSULTANT$160,000
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K2CntrctRcvdGreaterThan100KCnt
Government Grants$118,220GovernmentGrantsAmt
All Other Contributions$1,354,119AllOtherContributionsAmt
Total Contributions$1,472,339TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescHONORARIUM AND CONSULTDesc
Business900099BusinessCd
Total Revenue Column$2,258TotalRevenueColumnAmt
Related Or Exempt Func Income$2,258RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$2,258TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$724TotalRevenueColumnAmt
Exclusion$724ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$164,964TotalRevenueColumnAmt
Related Or Exempt Func Income$164,964RelatedOrExemptFuncIncomeAmt

Gross Rents GrossRentsGrp

FieldValueIRS element (for citing)
Real$7,687RealAmt

Less Rental Expenses LessRentalExpensesGrp

FieldValueIRS element (for citing)
Real$0RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$7,687RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$7,687TotalRevenueColumnAmt
Exclusion$7,687ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,647,972TotalRevenueColumnAmt
Related Or Exempt Func Income$167,222RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$8,411ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$75,640TotalAmt
Program Services$75,640ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$142,428TotalAmt
Program Services$94,952ProgramServicesAmt
Management And General$23,738ManagementAndGeneralAmt
Fundraising$23,738FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$656,716TotalAmt
Program Services$552,962ProgramServicesAmt
Management And General$16,306ManagementAndGeneralAmt
Fundraising$87,448FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$19,345TotalAmt
Program Services$7,228ProgramServicesAmt
Management And General$317ManagementAndGeneralAmt
Fundraising$11,800FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$69,559TotalAmt
Program Services$59,034ProgramServicesAmt
Fundraising$10,525FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$12,860TotalAmt
Management And General$12,860ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$25,650TotalAmt
Management And General$25,650ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$406,185TotalAmt
Program Services$405,353ProgramServicesAmt
Management And General$441ManagementAndGeneralAmt
Fundraising$391FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$6,610TotalAmt
Program Services$6,445ProgramServicesAmt
Fundraising$165FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$5,103TotalAmt
Program Services$2,211ProgramServicesAmt
Management And General$637ManagementAndGeneralAmt
Fundraising$2,255FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$73,209TotalAmt
Program Services$62,115ProgramServicesAmt
Management And General$1,433ManagementAndGeneralAmt
Fundraising$9,661FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$46,411TotalAmt
Program Services$33,974ProgramServicesAmt
Management And General$6,325ManagementAndGeneralAmt
Fundraising$6,112FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,997TotalAmt
Program Services$1,882ProgramServicesAmt
Management And General$115ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$76,585TotalAmt
Program Services$76,585ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$24,056TotalAmt
Program Services$18,042ProgramServicesAmt
Management And General$1,203ManagementAndGeneralAmt
Fundraising$4,811FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$4,062TotalAmt
Program Services$2,329ProgramServicesAmt
Management And General$1,333ManagementAndGeneralAmt
Fundraising$400FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
PROGRAM MATERIALS AND O$20,152$20,152$0$0
DUES, FEES AND LICENSES$13,041$8,859$938$3,244
TELEPHONE$2,522$1,892$315$315

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,682,131TotalAmt
Program Services$1,429,655ProgramServicesAmt
Management And General$91,611ManagementAndGeneralAmt
Fundraising$160,865FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$84,392BOYAmt
EOY$474,601EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,789,173BOYAmt
EOY$1,823,368EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$347,602BOYAmt
EOY$7,963EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$14,541BOYAmt
EOY$4,080EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$3,450LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$2,990LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$1,150BOYAmt
EOY$460EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$7,235EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$40,699BOYAmt
EOY$17,333EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$15,883EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,277,557BOYAmt
EOY$2,350,923EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$91,242BOYAmt
EOY$154,981EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$200,000BOYAmt
EOY$0EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$291,242BOYAmt
EOY$154,981EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$847,579BOYAmt
EOY$1,231,465EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,138,736BOYAmt
EOY$964,477EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,986,315BOYAmt
EOY$2,195,942EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,277,557BOYAmt
EOY$2,350,923EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$34,159ReconcilationRevenueExpnssAmt
Prior Period Adjustments$243,786PriorPeriodAdjustmentsAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit Committee0AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,271,230CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,416,444CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,684,866CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,109,160CurrentTaxYearMinus1YearAmt
Current Tax Year$1,472,339CurrentTaxYearAmt
Total$7,954,039TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,271,230CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,416,444CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,684,866CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,109,160CurrentTaxYearMinus1YearAmt
Current Tax Year$1,472,339CurrentTaxYearAmt
Total$7,954,039TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$4,239,302SubstantialContributorsTotAmt
Public Support Total170$3,714,737PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$313CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$597CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$44,643CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$208,827CurrentTaxYearMinus1YearAmt
Current Tax Year$173,375CurrentTaxYearAmt
Total$427,755TotalAmt
FieldValueIRS element (for citing)
Total Support$8,381,794TotalSupportAmt
Gross Receipts Rltd Activities$33,724GrossReceiptsRltdActivitiesAmt
Public Support CY1700.44320PublicSupportCY170Pct
Public Support PY1700.43510PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$232,999CurrentYearMinus3Amt
Current Year Minus2$207,827CurrentYearMinus2Amt
Current Year Minus1$198,395CurrentYearMinus1Amt
Total$639,221TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$958,832LobbyingCeilingAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$58,250CurrentYearMinus3Amt
Current Year Minus2$51,957CurrentYearMinus2Amt
Current Year Minus1$49,599CurrentYearMinus1Amt
Total$159,806TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$239,709GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$3,450OtherCostOrOtherBasisAmt
Depreciation$2,990DepreciationAmt
Book Value$460BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$460TotalBookValueLandBuildingsAmt
Total Rev Etc Audited Fincl Stmt$1,667,972TotalRevEtcAuditedFinclStmtAmt
Donated Services And Use Fclts$20,000DonatedServicesAndUseFcltsAmt
Revenue Not Reported$20,000RevenueNotReportedAmt
Revenue Subtotal$1,647,972RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,647,972TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,702,131TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$20,000DonatedServicesUseFcltsAmt
Expenses Not Reported$20,000ExpensesNotReportedAmt
Expenses Subtotal$1,682,131ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$1,682,131TotalExpensesPerForm990Amt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable

Recipient Business Name RecipientBusinessName

FieldValueIRS element (for citing)
Business Name Line1HEART FAILURE SOCIETY OF AMERICA INCBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line19211 CORPORATE BOULEVARD 270AddressLine1Txt
CityROCKVILLECityNm
State AbbreviationMDStateAbbreviationCd
ZIP20850ZIPCd
FieldValueIRS element (for citing)
Recipient EIN061416238RecipientEIN
IRC Section501(C)(3)IRCSectionDesc
Cash Grant$75,640CashGrantAmt
Non Cash Assistance$0NonCashAssistanceAmt
Purpose Of GrantTO SUPPORT A SATELLITE SYMPOSIUM ON CARDIAC AMYLOIDOSISPurposeOfGrantTxt
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationTHE ORGANIZATION'S GRANTMAKING ACTIVITIES CONSIST OF AWARDING FUNDS ANNUALLY TO THE HEART FAILURE SOCIETY OF AMERICA (HFSA) TO SUPPORT HFSA'S MISSION. THE ORGANIZATION CO-HOSTED AN EDUCATIONAL SYMPOSIUM ON CARDIAC AMYLOIDOSIS AT THE 2021 HFSA ANNUAL SCIENTIFIC MEETING. BECAUSE OF THE JOINT COLLABORATION WITH THE GRANTEE THROUGH THIS INITIATIVE, THE ORGANIZATION WAS ABLE TO ENSURE ITS GRANT FUNDING WAS SPENT IN FURTHERANCE OF ITS MISSION.ExplanationTxt

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1PATIENT DISCOVERY SOLUTIONSBusinessNameLine1Txt
FieldValueIRS element (for citing)
Relationship DescriptionPATIENT DISCOVERY SOLUTIONS' CEO AND CO-FOUNDER SERVES AS ARC'S TREASURERRelationshipDescriptionTxt
Transaction$208,750TransactionAmt
TransactionPATIENT DISCOVERY SOLUTIONS PAYS ROYALTY INCOME FOR SALES OF A CLINICAL TRIAL FINDER TOOL ORIGINALLY DEVELOPED BY ARC. DURING THE YEAR ENDED DECEMBER 31, 2021, PATIENT DISCOVERY SOLUTIONS PAID ARC $208,750 (REVENUE RECOGNIZED WAS $164,964).TransactionDesc
Sharing Of Revenues0SharingOfRevenuesInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BA COPY OF THE ORGANIZATION'S 990 IS MADE AVAILABLE TO THE BOARD OF DIRECTORS FOR REVIEW BEFORE IT IS FINALIZED AND FILED WITH APPLICABLE STATE AND FEDERAL AUTHORITIES.
FORM 990, PART VI, SECTION B, LINE 12CEMPLOYEES AND BOARD MEMBERS ARE REQUIRED TO DISCLOSE ANY CONFLICTS OF INTEREST ON AN ANNUAL BASIS.
FORM 990, PART VI, SECTION B, LINE 15AMYLOIDOSIS RESEARCH CONSORTIUM, INC'S EXECUTIVE COMPENSATION PROGRAM IS ADMINISTERED BY THE BOARD OF DIRECTORS. THE BOARD IS RESPONSIBLE FOR ESTABLISHING AND MAINTAINING A COMPETITIVE COMPENSATION PROGRAM FOR THE KEY EXECUTIVES AND KEY EMPLOYEES OF THE ORGANIZATION. THE BOARD MEETS AS NEEDED TO REVIEW THE COMPENSATION PROGRAM AND MAKE RECOMMENDATIONS, AS APPROPRIATE. A PERFORMANCE EVALUATION IS CONDUCTED AND REVIEWED ON AN ANNUAL BASIS AND IS INTENDED TO ENSURE THAT THE COMPENSATION PROGRAM FALLS WITHIN A REASONABLE RANGE OF COMPETITIVE PRACTICES FOR COMPARABLE POSITIONS AMONG SIMILARLY SITUATED ORGANIZATIONS. FOLLOWING THIS REVIEW, COMPENSATIONS ARE APPROVED FOR SELECTED KEY EXECUTIVES AND KEY EMPLOYEES, BASE SALARIES AND ANNUAL INCENTIVE OPPORTUNITY ADJUSTMENTS, AND OBJECTIVES AND GOALS FOR THE UPCOMING YEAR'S ANNUAL INCENTIVE PLAN. THERE IS NO OTHER COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY
FORM 990, PART VI, SECTION C, LINE 19ORGANIZATION'S DOCUMENTS ARE AVAILABLE UPON REQUEST.
FORM 990, PART IX, LINE 11GOTHER: PROGRAM SERVICE EXPENSES 405,353. MANAGEMENT AND GENERAL EXPENSES 441. FUNDRAISING EXPENSES 391. TOTAL EXPENSES 406,185.