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NATIONAL ALOPECIA AREATA FOUNDATION: Form 990, tax year 2021

View the entire original 990 at ProPublica ↗

Organization
NATIONAL ALOPECIA AREATA FOUNDATION (EIN 94-2780249)
Tax period
2021-01-01 to 2021-12-31
Filed
2022-12-08
IRS object ID
202213429349301026
Schema version
2021v4.0
Note
A later return for the same period supersedes this one.
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2022-12-08T14:54:41-08:00ReturnTs
Tax Period End2021-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN201398210PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1R J Ricciardi IncBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11101 Fifth Avenue Suite 360AddressLine1Txt
CitySan RafaelCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94901ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2021-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN942780249EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1National Alopecia Areata FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone4154723780PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line165 Mitchell Blvd 200BAddressLine1Txt
CitySan RafaelCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94903ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonNicole FriedlandPersonNm
Person TitleCEOPersonTitleTxt
Signature2022-05-24SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstNicolePersonFirstNm
Person LastFriedlandPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonHiep PhamPreparerPersonNm
PTINP01346204PTIN
Phone4154571215PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
Federated Assurance LevelFAL1FederatedAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2021TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Amended ReturnYes (X)AmendedReturnInd
Principal OfficerNicole FriedlandPrincipalOfficerNm
Gross Receipts$2,210,307GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.NAAF.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1981FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionProvide education & support for persons afflicated with Alopecia Areata; fund research regarding causes and treatment of Alopecia Areata.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee10TotalEmployeeCnt
Total Volunteers500TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,500,043PYContributionsGrantsAmt
CY Contributions Grants$2,020,533CYContributionsGrantsAmt
PY Program Service Revenue$134,502PYProgramServiceRevenueAmt
CY Program Service Revenue$171,362CYProgramServiceRevenueAmt
PY Investment Income$16,645PYInvestmentIncomeAmt
CY Investment Income$12,651CYInvestmentIncomeAmt
PY Other Revenue-$7,061PYOtherRevenueAmt
CY Other Revenue-$17,126CYOtherRevenueAmt
PY Total Revenue$1,644,129PYTotalRevenueAmt
CY Total Revenue$2,187,420CYTotalRevenueAmt
PY Grants And Similar Paid$226,743PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$142,354CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,244,955PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,170,097CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$243,010CYTotalFundraisingExpenseAmt
PY Other Expenses$485,908PYOtherExpensesAmt
CY Other Expenses$447,582CYOtherExpensesAmt
PY Total Expenses$1,957,606PYTotalExpensesAmt
CY Total Expenses$1,760,033CYTotalExpensesAmt
PY Revenues Less Expenses-$313,477PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$427,387CYRevenuesLessExpensesAmt
Total Assets BOY$2,076,204TotalAssetsBOYAmt
Total Assets EOY$2,313,900TotalAssetsEOYAmt
Total Liabilities BOY$343,545TotalLiabilitiesBOYAmt
Total Liabilities EOY$79,165TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,732,659NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,234,735NetAssetsOrFundBalancesEOYAmt
MissionProvide education & support for persons afflicated with Alopecia Areata; fund research regarding causes and treatment of Alopecia Areata.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$758,641ExpenseAmt
Revenue$171,362RevenueAmt
DescAwareness and support - provided emotional support and medical updates for persons suffering from Alopecia Areata. Services provided include newsletters, video & audio tapes, workshops and brochures. Sponsored annual patient conference which featured support sessions and which was attended by persons from the US and other countries. Ascot fund program provided hair pieces for those who cannot afford one. Fulfilled information requests from more than 10,000 people held awareness events at major and minor league ball parks to raise awareness of Alopecia Areata.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$632,415ExpenseAmt
Grant$139,680GrantAmt
DescFunded medical research regarding causes and treatment of Alopecia Areata. Continued development of Alopecia Areata Treatment Development Program.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,391,056TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document8IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee10EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (true)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (true)Form990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersYes (true)LocalChaptersInd
Policies Reference ChaptersYes (true)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
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Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonNicole FriedlandPersonNm
Phone4154723780PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line165 Mitchell Blvd 200BAddressLine1Txt
CitySan RafaelCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94903ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
Jeanne Rappoport
CAO40.000.00Yes (X)$167,508$0$40,764
Kathleen Hanni
CDS40.000.00Yes (X)$102,000$0$34,099
Calvin A Bryant
CEO40.000.00Yes (X)$60,745$0$17,451
Ann Hollins
Dir. Chair-Part4.000.00Yes (X)$0$0$0Yes (X)
Jerry Knutson
Dir. CFO-Part4.000.00Yes (X)$0$0$0Yes (X)
Deirde Nero
Dir. Sec-Part4.000.00Yes (X)$0$0$0Yes (X)
Bonnie Chung
Director - Part2.000.00$0$0$0Yes (X)
Tyrone Folliard-Olson
Director - Part2.000.00$0$0$0Yes (X)
Ann S Hedges
Director - Part2.000.00$0$0$0Yes (X)
Salman Hussain
Director - Part2.000.00$0$0$0Yes (X)
Jonelle Massey
Director - Part2.000.00$0$0$0Yes (X)
Amanda Wagner
Director - Part2.000.00$0$0$0Yes (X)
Maureen McGettigan
Director - Part2.000.00$0$0$0Yes (X)
Simon Rubenstein
Director - Part2.000.00$0$0$0Yes (X)
Jim OConnell
Director - Part2.000.00$0$0$0Yes (X)
Robert Flint
Director-Part2.000.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$330,253TotalReportableCompFromOrgAmt
Total Other Compensation$92,314TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K2IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$286,411FundraisingAmt
All Other Contributions$1,734,122AllOtherContributionsAmt
Total Contributions$2,020,533TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
Patience Conference624100$16,802$16,802
Public. & Comm. Service624100$11,068$11,068
TDP Services624100$143,492$143,492
FieldValueIRS element (for citing)
Total Program Service Revenue$171,362TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$12,227TotalRevenueColumnAmt
Exclusion$12,227ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$6,185SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$5,761SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$424SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$424TotalRevenueColumnAmt
Exclusion$424ExclusionAmt
FieldValueIRS element (for citing)
Contri Rpt Fundraising Event$286,411ContriRptFundraisingEventAmt
Fundraising Direct Expenses$17,126FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$17,126TotalRevenueColumnAmt
Exclusion-$17,126ExclusionAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,187,420TotalRevenueColumnAmt
Related Or Exempt Func Income$171,362RelatedOrExemptFuncIncomeAmt
Exclusion-$4,475ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$139,680TotalAmt
Program Services$139,680ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$2,674TotalAmt
Program Services$2,674ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$422,566TotalAmt
Program Services$324,523ProgramServicesAmt
Management And General$30,393ManagementAndGeneralAmt
Fundraising$67,650FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$483,990TotalAmt
Program Services$415,524ProgramServicesAmt
Management And General$21,828ManagementAndGeneralAmt
Fundraising$46,638FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$95,813TotalAmt
Program Services$73,450ProgramServicesAmt
Management And General$7,014ManagementAndGeneralAmt
Fundraising$15,349FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$112,175TotalAmt
Program Services$85,993ProgramServicesAmt
Management And General$8,211ManagementAndGeneralAmt
Fundraising$17,971FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$55,553TotalAmt
Program Services$42,586ProgramServicesAmt
Management And General$4,067ManagementAndGeneralAmt
Fundraising$8,900FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$8,165TotalAmt
Management And General$8,165ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$20,812TotalAmt
Management And General$20,812ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$32,067TotalAmt
Program Services$5,624ProgramServicesAmt
Management And General$12,531ManagementAndGeneralAmt
Fundraising$13,912FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$23,150TotalAmt
Program Services$18,983ProgramServicesAmt
Management And General$925ManagementAndGeneralAmt
Fundraising$3,242FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$52,218TotalAmt
Program Services$42,818ProgramServicesAmt
Management And General$2,090ManagementAndGeneralAmt
Fundraising$7,310FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$83,616TotalAmt
Program Services$68,565ProgramServicesAmt
Management And General$3,345ManagementAndGeneralAmt
Fundraising$11,706FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$3,316TotalAmt
Program Services$2,720ProgramServicesAmt
Management And General$132ManagementAndGeneralAmt
Fundraising$464FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$52,050TotalAmt
Program Services$26,025ProgramServicesAmt
Fundraising$26,025FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$13,727TotalAmt
Program Services$11,256ProgramServicesAmt
Management And General$549ManagementAndGeneralAmt
Fundraising$1,922FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Printing and Publications$44,089$36,153$1,763$6,173
Research Program$36,997$36,997
Equipment Maintence & Leasing$26,371$21,624$1,055$3,692
Postage and Shipping$20,209$16,572$808$2,829

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$30,795TotalAmt
Program Services$19,289ProgramServicesAmt
Management And General$2,279ManagementAndGeneralAmt
Fundraising$9,227FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,760,033TotalAmt
Program Services$1,391,056ProgramServicesAmt
Management And General$125,967ManagementAndGeneralAmt
Fundraising$243,010FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$651,761BOYAmt
EOY$507,684EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$640,359BOYAmt
EOY$1,108,755EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$187,700BOYAmt
EOY$11,100EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$41,448BOYAmt
EOY$46,147EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$12,671LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$12,671LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$554,936BOYAmt
EOY$640,214EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,076,204BOYAmt
EOY$2,313,900EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$108,727BOYAmt
EOY$70,165EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$9,450BOYAmt
EOY$9,000EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$225,368BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$343,545BOYAmt
EOY$79,165EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,540,364BOYAmt
EOY$2,020,956EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$192,295BOYAmt
EOY$213,779EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,732,659BOYAmt
EOY$2,234,735EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,076,204BOYAmt
EOY$2,313,900EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$427,387ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$74,689NetUnrlzdGainsLossesInvstAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,726,420CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,759,650CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,535,813CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,500,043CurrentTaxYearMinus1YearAmt
Current Tax Year$1,734,122CurrentTaxYearAmt
Total$8,256,048TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,726,420CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,759,650CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,535,813CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,500,043CurrentTaxYearMinus1YearAmt
Current Tax Year$1,734,122CurrentTaxYearAmt
Total$8,256,048TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$0SubstantialContributorsTotAmt
Public Support Total170$8,256,048PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$88,485CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$114,381CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$58,758CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$15,907CurrentTaxYearMinus1YearAmt
Current Tax Year$12,227CurrentTaxYearAmt
Total$289,758TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$14,834CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$15,187CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$20,147CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,600CurrentTaxYearMinus1YearAmt
Current Tax Year-$524CurrentTaxYearAmt
Total$51,244TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Total Support$8,597,050TotalSupportAmt
Public Support CY1700.96030PublicSupportCY170Pct
Public Support PY1700.95090PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$12,671OtherCostOrOtherBasisAmt
Depreciation$12,671DepreciationAmt
FieldValueIRS element (for citing)
Total Rev Etc Audited Fincl Stmt$2,279,235TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$74,689NetUnrealizedGainsInvstAmt
Other Revenue$17,126OtherRevenueAmt
Revenue Not Reported$91,815RevenueNotReportedAmt
Revenue Subtotal$2,187,420RevenueSubtotalAmt
Total Revenue Per Form990$2,187,420TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,777,159TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$17,126OtherExpensesIncludedAmt
Expenses Not Reported$17,126ExpensesNotReportedAmt
Expenses Subtotal$1,760,033ExpensesSubtotalAmt
Total Expenses Per Form990$1,760,033TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990Fundraising Expenses $17126
Part XII, Line 2d: Other expenses and losses per audited F/SFundraising Expenses $17126

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Agrmt Prof Fundraising ActyfalseAgrmtProfFundraisingActyInd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Alopecia Areata Awareness MonthEvent1Nm
Gross Receipts Event1$263,905GrossReceiptsEvent1Amt
Charitable Contri Event1$263,905CharitableContriEvent1Amt
Other Direct Expenses Event1$7,626OtherDirectExpensesEvent1Amt
Event2Reitz Golf EventEvent2Nm
Gross Receipts Event2$22,506GrossReceiptsEvent2Amt
Charitable Contri Event2$22,506CharitableContriEvent2Amt
Rent Facility Costs Event2$6,500RentFacilityCostsEvent2Amt
Food And Beverage Event2$3,000FoodAndBeverageEvent2Amt
Gross Receipts Total$286,411GrossReceiptsTotalAmt
Charitable Contributions Tot$286,411CharitableContributionsTotAmt
Rent Fclty Costs Total Events$6,500RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$3,000FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$7,626OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$17,126DirectExpenseSummaryEventsAmt
Net Income Summary-$17,126NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (5 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxtAddress Line1ForeignAddress/AddressLine1TxtCityForeignAddress/CityNmProvince Or StateForeignAddress/ProvinceOrStateNmCountryForeignAddress/CountryCdForeign PostalForeignAddress/ForeignPostalCd
Columbia University
615 West 131st Street 4th FlNew YorkNY10032135598093501(c) 3$42,857$0Research
Monasterium Laboratory GmbH
$25,000$0ResearchN/ASan RafaelMendelstrasse 17GM48149 Muenster
The Regents of Uni CA Irvine
120 Theory Suite 200IrvineCA92697952226406501(c) 3$33,333$0Research
The Regents of Univ of CA SF
3333 California St Room 315San FranciscoCA94117946036493501(c) 3$40,000$0Research
University of Miami
PO Box 405803AtlantaGA30384590624458501(c) 3$20,000$0Research
FieldValueIRS element (for citing)
Total501c3 Org4Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceAdditional Supplemental InformationFormAndLineReferenceDesc
ExplanationGrants are awarded based upon recommendations of independent peer review committee which evaluates responses to requests for proposals. One fourth of the grant award is paid when contract is signed and the remaining three fourths are paid upon submission of interim and final reports. Final payment is not made until peer review committee approves final report.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Substantiation RequiredYes (true)SubstantiationRequiredInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonJeanne RappoportPersonNm
TitleCAOTitleTxt
Base Compensation Filing Org$167,508BaseCompensationFilingOrgAmt
Nontaxable Benefits Filing Org$40,764NontaxableBenefitsFilingOrgAmt
Total Compensation Filing Org$208,272TotalCompensationFilingOrgAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Line 11b: Form 990 Review ProcessForm 990 is reviewed by Directors at meeting scheduled for that purpose - return preparer is available to explain form and answer questions.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsOfficers & directors & staff complete annual disclosure statement.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementWhen hiring the Executive Director and other key employees, and thereafter on an annual basis, the Board performs a thorough review to determine suitable compensation. This process includes a review of comparability data by the Board of Directors including compensation surveys and Forms 990 of similar organizations.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableGoverning documents are available through the California Secretary of State. Financial statements, Form 990, and Conflict of Interest policy are available on the organization website.
Form 990, Part XII, Line 2: Change of Oversight or Selection ProcessOversight process for audit & financial review changed in 2017.Organization now has separate audit and finance committees.Audit committee selects auditor and has audit oversight.Finance committee reviews financial statements.