FOUNDATION FIGHTING BLINDNESS INC: Form 990, tax year 2020
View the entire original 990 at ProPublica ↗
- Organization
- FOUNDATION FIGHTING BLINDNESS INC (EIN 23-7135845)
- Tax period
- 2020-07-01 to 2021-06-30
- Filed
- 2021-11-11
- IRS object ID
- 202103159349308195
- Schema version
- 2020v4.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2021-11-11T17:43:36-06:00 | ReturnTs |
| Tax Period End | 2021-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 420714325 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RSM US LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 INTERNATIONAL DRIVE SUITE 1400 | AddressLine1Txt |
| City | BALTIMORE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21202 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2020-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 237135845 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE FOUNDATION FIGHTING BLINDNESS INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | FOUN | BusinessNameControlTxt |
| Phone | 4104230600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6925 OAKLAND MILLS ROAD 701 | AddressLine1Txt |
| City | COLUMBIA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21045 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | PETER GINSBERG | PersonNm |
| Person Title | EVP/CHIEF BUSINESS OFFICER | PersonTitleTxt |
| Phone | 4104230600 | PhoneNum |
| Signature | 2021-11-11 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | PETER | PersonFirstNm |
| Person Last | GINSBERG | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JULIA FLANNERY CPA | PreparerPersonNm |
| PTIN | P00928915 | PTIN |
| Phone | 4102469301 | PhoneNum |
| Preparation | 2021-11-11 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 2 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2020 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | BENJAMIN YERXA | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6925 OAKLAND MILLS ROAD 701 | AddressLine1Txt |
| City | COLUMBIA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21045 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $77,305,349 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.FIGHTINGBLINDNESS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1971 | FormationYr |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Activity Or Mission | THE URGENT MISSION OF THE FOUNDATION FIGHTING BLINDNESS IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, AGE-RELATED MACULAR DEGENERATION, USHER SYNDROME AND THE ENTIRE SPECTRUM OF RETINAL DEGENERATIVE DISEASES. THE FOUNDATION IS A BEACON FOR THOSE AFFECTED BY THESE BLINDING DISEASES. | ActivityOrMissionDesc |
| Voting Members Governing Body | 25 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 25 | VotingMembersIndependentCnt |
| Total Employee | 67 | TotalEmployeeCnt |
| Total Volunteers | 2500 | TotalVolunteersCnt |
| Total Gross UBI | $3,268 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $31,895,116 | PYContributionsGrantsAmt |
| CY Contributions Grants | $27,741,201 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $239,962 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $145,815 | CYProgramServiceRevenueAmt |
| PY Investment Income | $3,378,679 | PYInvestmentIncomeAmt |
| CY Investment Income | $2,102,154 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$140,870 | PYOtherRevenueAmt |
| CY Other Revenue | -$197,691 | CYOtherRevenueAmt |
| PY Total Revenue | $35,372,887 | PYTotalRevenueAmt |
| CY Total Revenue | $29,791,479 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $21,163,616 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $22,388,798 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $7,253,730 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $6,942,064 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $686,365 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $924,110 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $5,831,898 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $12,030,764 | PYOtherExpensesAmt |
| CY Other Expenses | $10,473,253 | CYOtherExpensesAmt |
| PY Total Expenses | $41,134,475 | PYTotalExpensesAmt |
| CY Total Expenses | $40,728,225 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$5,761,588 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$10,936,746 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $159,573,247 | TotalAssetsBOYAmt |
| Total Assets EOY | $155,616,058 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $14,014,074 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $21,019,889 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $145,559,173 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $134,596,169 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE MISSION OF THE FOUNDATION FIGHTING BLINDNESS, INC. (FOUNDATION) IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES, FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, MACULAR DEGENERATION, USHER SYNDROME, AND THE SPECTRUM OF RETINAL DEGENERATIVE DISEASES. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $28,532,557 | ExpenseAmt |
| Grant | $22,388,798 | GrantAmt |
| Revenue | $176,315 | RevenueAmt |
| Desc | RESEARCH: THE FOUNDATION FIGHTING BLINDNESS, INC. (THE FOUNDATION) FUNDED RESEARCHERS ARE ACHIEVING REMARKABLE SUCCESS IN DISCOVERING, TESTING AND DELIVERING TO PATIENTS A WIDE RANGE OF PROMISING THERAPIES TO PREVENT, STOP THE PROGRESSION OF, AND CURE BLINDNESS DUE TO RETINAL DEGENERATIVE DISEASES. THE FOUNDATION HAS ENCUMBRANCES OF $42 MILLION, NOT INCLUDED ON OUR JUNE 30 FINANCIAL REPORT, FOR ACTIVE RESEARCH PROJECTS THAT HAVE FUTURE RESEARCH MILESTONES. OUR RESEARCH OVERSIGHT COMMITTEE'S SPENDING PLAN INCLUDES SPENDING AT AN AVERAGE OF $21 MILLION ANNUALLY TO SUPPORT FUTURE RESEARCH.AS OF THE END OF OUR FISCAL YEAR 2021, THE FOUNDATION'S RESEARCH GRANTS PROGRAM IS FUNDING 82 GRANTS BEING CONDUCTED BY MORE THAN 90 INVESTIGATORS AT 67 INSTITUTIONS, EYE HOSPITALS AND UNIVERSITIES IN THE U.S. AND AROUND THE WORLD. A SAMPLING OF THE RESEARCH PROJECTS FUNDED ARE LISTED BELOW.DEVELOPMENT OF A DRY AMD GENE THERAPYBARBEL ROHRER, PHD, MEDICAL UNIVERSITY OF SOUTH CAROLINATRANSLATIONAL RESEARCH ACCELERATION PROGRAMDR. ROHRER IS CONDUCTING AN ANIMAL STUDY OF A GENE THERAPY DESIGNED TO SELECTIVELY DELIVER A COMPONENT OF COMPLEMENT FACTOR H (CFH) TO TEMPER THE OVERACTIVE INNATE IMMUNE SYSTEM IN AGE-RELATED MACULAR DEGENERATION. THE APPROACH IS DESIGNED TO MITIGATE RETINAL DEGENERATION CAUSED BY THE IMMUNE RESPONSE, TARGETING THE DAMAGE WHERE IT IS MOST LIKELY TO OCCUR.ADVANCING A PHARMACEUTICAL THERAPY FOR RETINITIS PIGMENTOSAPAUL YANG, MD, PHD, OREGON HEALTH & SCIENCE UNIVERSITYTRANSLATIONAL RESEARCH ACCELERATION PROGRAMDR. YANG IS EVALUATING THE DRUG MYCOPHENOLATE AS A THERAPY FOR MULTIPLE FORMS OF RETINITIS PIGMENTOSA AND RELATED CONDITIONS. ALREADY APPROVED BY THE FDA FOR INFLAMMATORY CONDITIONS, MYCOPHENOLATE HAS BEEN SHOWN TO REDUCE THE ACCUMULATION OF A MOLECULE CALLED CYCLIC GUANOSINE MONOPHOSPHATE (CGMP). WHILE CGMP IS AN IMPORTANT MESSENGER MOLECULE FOR CONVERTING LIGHT INTO ELECTRICAL SIGNALS IN THE RETINA, TOO MUCH OF IT IS TOXIC AND CAUSES RETINAL DEGENERATION. DEVELOPMENT OF RNA THERAPIES FOR STARGARDT DISEASEROB COLLIN, PHD, RADBOUD UNIVERSITYTRANSLATIONAL RESEARCH ACCELERATION PROGRAM DR. COLLIN IS DEVELOPING ANTISENSE OLIGONUCLEOTIDES (AON) TINY PIECES OF DNA TO MASK SPLICING MUTATIONS IN ABCA4, THE AFFECTED GENE IN PEOPLE WITH STARGARDT DISEASE. THE AONS TARGET MUTATIONS IN RNA, THE GENETIC MESSAGES USED TO BUILD PROTEINS THAT ARE NECESSARY FOR A CELL'S HEALTH AND PROPER FUNCTIONING. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,707,983 | ExpenseAmt |
| Desc | PUBLIC HEALTH EDUCATION: DURING FISCAL YEAR 2021, THROUGH OUR CHATLOS FOUNDATION PUBLIC EDUCATION PROGRAM, THE FOUNDATION AIMED TO CONTINUE TO PROVIDE EDUCATION AND SUPPORT TO PEOPLE AFFECTED BY RETINAL DEGENERATIVE DISEASES. THE FOUNDATION ALSO FIELDS A TEAM OF PROFESSIONALS FOCUSED ON EDUCATING OPHTHALMOLOGISTS AND OPTOMETRISTS ON THE LATEST ADVANCEMENTS WITH THE FOUNDATIONS RESOURCES AND RESEARCH ON THE INHERITED RETINAL DISEASE SPACE. TO KEEP OUR CONSTITUENTS AND PROFESSIONALS INFORMED, THE FOUNDATION PUBLISHES EXTENSIVE CONTENT VIA WEBSITE AND SOCIAL MEDIA/EMAIL CHANNELS; DISTRIBUTES A NEWSLETTER ONLINE AND IN PRINT; HOLDS QUARTERLY INSIGHTS FORUM CALLS TO INFORM THE COMMUNITY ABOUT SCIENTIFIC PROGRESS. THE CONTENT PRODUCED INCLUDES THE LATEST DEVELOPMENTS IN RESEARCH AND CLINICAL TRIALS, AND PERSONAL STORIES FROM MEMBERS OF THE FIGHTING BLINDNESS COMMUNITY. ADDITIONALLY, THE FOUNDATION HOLDS CONTINUING MEDICAL EDUCATION COURSES TWICE A YEAR, FOCUSED ON PROVIDING TIMELY CONTENT TO EYECARE PROFESSIONALS. CHAPTERS BRING THE FOUNDATION'S MESSAGE AND MISSION TO LIFE. IN FY21 THE FOUNDATION SUPPORTED OVER 40 VOLUNTEER-LED CHAPTERS IN 22 STATES. THE CHAPTERS HELD 46 VIRTUAL SPEAKER PRESENTATIONS, SOCIALS, AND OTHER OUTREACH ACTIVITIES, AND CO-HOSTED SIX VIRTUAL VISION WEBINARS WITH THE FOUNDATION WITH OVER 650 PEOPLE IN ATTENDANCE FOR EACH WEBINAR. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,953,288 | ExpenseAmt |
| Desc | MY RETINA TRACKER: THE FOUNDATION MAINTAINS A RESEARCH DATABASE OF PEOPLE AND FAMILIES AFFECTED BY RARE INHERITED RETINAL DEGENERATIVE DISEASES. THE REGISTRY IS DESIGNED TO SHARE DE-IDENTIFIED INFORMATION WITHIN THE IRD RESEARCH AND CLINICAL COMMUNITIES ABOUT PEOPLE WITH AN INHERITED RETINAL DISEASE TO HELP ACCELERATE THE DISCOVERY OF TREATMENTS AND CURES. DURING FISCAL YEAR 2021 APPROXIMATELY 3,600 ADDITIONAL MEMBERS WERE ADDED TO THE REGISTRY, BRINGING TOTAL REGISTERED INDIVIDUALS UP TO 18,542. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $32,193,828 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (1) | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | 0 | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (1) | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | Yes (1) | RelatedEntityInd |
| Related Organization Ctrl Ent | Yes (1) | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | Yes (1) | TransactionWithControlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 169 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 67 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 25 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 25 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | Yes (1) | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (1) | MembersOrStockholdersInd |
| Election Of Board Members | Yes (1) | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PETER GINSBERG | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 4104230600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6925 OAKLAND MILLS ROAD 701 | AddressLine1Txt |
| City | COLUMBIA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21045 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part VII | Yes (X) | InfoInScheduleOPartVIIInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (39 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd |
|---|---|---|---|---|---|---|---|---|---|---|
| DAVID BRINT | ||||||||||
| CHAIRMAN | 10.00 | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |||
| JOEL DAVIS | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| EDWARD RUSSNOW | ||||||||||
| VICE CHAIRMAN, DEVELOPMENT | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||||
| JONATHAN STEINBERG MD | ||||||||||
| VICE CHAIRMAN, RESEARCH | 1.00 | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |||
| WARREN THALER | ||||||||||
| VICE CHAIRMAN, BOARD DEV & COMM | 1.00 | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |||
| HAYNES LEA | ||||||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||||
| YVONNE CHESTER | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| STEVEN ALPER | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| SCOTT BURT | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| WILLIAM CARTY | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| DARREN DEVOUE | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| JASON FERREIRA | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| ADRIENNE GRAVES | ||||||||||
| DIRECTOR | 1.00 | 1.00 | Yes (X) | $0 | $0 | $0 | ||||
| GORDON GUND | ||||||||||
| DIRECTOR - CHAIRMAN EMERITUS | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||||
| ROBERT HEIDENBERG | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| JANNI LEHRER-STEIN | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| LAURA MANFRE | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| BRADFORD MANNING | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| EVAN MITTMAN | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| JASON MORRIS | ||||||||||
| TREASURER | 1.00 | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |||
| KAREN PETROU | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| MARYROSE SYLVESTER | ||||||||||
| VICE CHAIR, AT LARGE | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||||
| JEFFREY FREED | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| DAVID NIXON | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| MARTHA STEELE | ||||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||||
| BENJAMIN R YERXA | ||||||||||
| CEO | 26.00 | 14.00 | Yes (X) | $336,624 | $181,259 | $52,808 | ||||
| PATRICIA DUDLEY | ||||||||||
| CHIEF HUMAN RESOURCE OFFICER | 40.00 | Yes (X) | $210,883 | $0 | $48,983 | |||||
| JASON D MENZO | ||||||||||
| COO | 38.00 | 2.00 | Yes (X) | $357,995 | $18,842 | $57,117 | ||||
| BRIAN MANSFIELD | ||||||||||
| EVP, RESEARCH & INTERIM CSO | 40.00 | $280,052 | $0 | $41,807 | Yes (X) | |||||
| JUDY L TAYLOR | ||||||||||
| VP, DEVELOPMENT | 40.00 | $178,214 | $0 | $45,665 | Yes (X) | |||||
| NANCY M DAVENPORT | ||||||||||
| VP, FINANCE | 36.00 | 4.00 | $167,955 | $18,662 | $12,346 | Yes (X) | ||||
| RUSSELL W KELLEY | ||||||||||
| SVP, RD FUNDS | 0.00 | 40.00 | $0 | $225,588 | $49,753 | Yes (X) | ||||
| TODD A DURHAM | ||||||||||
| VP, CLINICAL & OUTCOMES RESEARCH | 40.00 | $219,921 | $0 | $27,590 | Yes (X) | |||||
| CHRISTOPHER S ADAMS | ||||||||||
| VP, COMMUNICATIONS & MARKETING | 40.00 | $169,325 | $0 | $39,324 | Yes (X) | |||||
| MICHELE C DIVINCENZO | ||||||||||
| VP, EVENTS | 40.00 | $146,567 | $0 | $29,349 | Yes (X) | |||||
| CHAD R JACKSON | ||||||||||
| DIR, PRECLINICAL TRANSLATIONAL RES | 40.00 | $154,501 | $0 | $7,364 | Yes (X) | |||||
| AMY M PALMER LASTER | ||||||||||
| VP, GRANTS & AWARDS PROGRAMS | 40.00 | $159,355 | $0 | $11,449 | Yes (X) | |||||
| JEFFRY C COLLINS | ||||||||||
| VP, DATABASE SYSTEMS & TECH | 40.00 | $138,068 | $0 | $26,792 | Yes (X) | |||||
| STEPHEN MARK ROSE | ||||||||||
| FOMER SR. SCIENTIFIC ADV (THRU 6/1/20) | 40.00 | $141,116 | $0 | $19,684 | Yes (X) | |||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $2,660,576 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $444,351 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $470,031 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 20 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | Yes (1) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt | Address Line1ContractorAddress/ForeignAddress/AddressLine1Txt | CityContractorAddress/ForeignAddress/CityNm | CountryContractorAddress/ForeignAddress/CountryCd | Foreign PostalContractorAddress/ForeignAddress/ForeignPostalCd |
|---|---|---|---|---|---|---|---|---|---|
| FUSE FUNDRAISING GROUP LLC | |||||||||
| 12355 SUNRISE VALLEY DRIVE SUITE 2 | RESTON | VA | 20191 | DIRECT MARKETING CONSULTANT | $598,893 | ||||
| RED DELUXE LLC | |||||||||
| PO BOX 3350 | MEMPHIS | TN | 38173 | FUNDRAISING CAMPAIGN CONSULTANT | $462,695 | ||||
| IQVIA TECHNOLOGY SERVICES LTD | |||||||||
| SOFTWARE INTEGRATION CONSULTANT | $317,500 | 210 PENTONVILLE ROAD | LONDON | UK | N1 9JY | ||||
| AILERON CONSULTING LLC | |||||||||
| 2111 WILSON BLVD SUITE 700 | ARLINGTON | VA | 22202 | SOFTWARE INTEGRATION CONSULTANT | $256,126 | ||||
| DP SOLUTIONS | |||||||||
| 9160 RED BRANCH ROAD SUITE W-1 | COLUMBIA | MD | 21045 | IT CONSULTANT | $165,771 | ||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 8 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $158,113 | FederatedCampaignsAmt |
| Fundraising | $5,049,239 | FundraisingAmt |
| Government Grants | $1,062,123 | GovernmentGrantsAmt |
| All Other Contributions | $21,471,726 | AllOtherContributionsAmt |
| Noncash Contributions | $14,034,939 | NoncashContributionsAmt |
| Total Contributions | $27,741,201 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONTRACT REVENUE | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $145,815 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $145,815 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $145,815 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,317,491 | TotalRevenueColumnAmt |
| Exclusion | $4,317,491 | ExclusionAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $46,955 | TotalRevenueColumnAmt |
| Exclusion | $46,955 | ExclusionAmt |
Gross Rents GrossRentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $29,767 | RealAmt |
Less Rental Expenses LessRentalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $0 | RealAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $29,767 | RealAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $29,767 | TotalRevenueColumnAmt |
| Exclusion | $29,767 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $44,880,975 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $47,096,312 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$2,215,337 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$2,215,337 | TotalRevenueColumnAmt |
| Exclusion | -$2,215,337 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $100,200 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $5,049,239 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $408,395 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$308,195 | TotalRevenueColumnAmt |
| Exclusion | -$308,195 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $12,431 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $9,163 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,268 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $3,268 | UnrelatedBusinessRevenueAmt |
Other Revenue Misc OtherRevenueMiscGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt | ExclusionExclusionAmt |
|---|---|---|---|---|
| FFB RDF SERVICE FEES | 900099 | $30,500 | $30,500 | |
| OTHER INCOME | 900099 | $14 | $14 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $30,514 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $29,791,479 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $176,315 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $3,268 | UnrelatedBusinessRevenueAmt |
| Exclusion | $1,870,695 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,228,626 | TotalAmt |
| Program Services | $18,228,626 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,160,172 | TotalAmt |
| Program Services | $4,160,172 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,856,941 | TotalAmt |
| Program Services | $757,114 | ProgramServicesAmt |
| Management And General | $604,882 | ManagementAndGeneralAmt |
| Fundraising | $494,945 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,872,661 | TotalAmt |
| Program Services | $1,287,182 | ProgramServicesAmt |
| Management And General | $727,436 | ManagementAndGeneralAmt |
| Fundraising | $1,858,043 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $240,306 | TotalAmt |
| Program Services | $79,903 | ProgramServicesAmt |
| Management And General | $57,735 | ManagementAndGeneralAmt |
| Fundraising | $102,668 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $587,532 | TotalAmt |
| Program Services | $170,224 | ProgramServicesAmt |
| Management And General | $134,920 | ManagementAndGeneralAmt |
| Fundraising | $282,388 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $384,624 | TotalAmt |
| Program Services | $130,033 | ProgramServicesAmt |
| Management And General | $87,357 | ManagementAndGeneralAmt |
| Fundraising | $167,234 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,896,810 | TotalAmt |
| Program Services | $1,319,019 | ProgramServicesAmt |
| Management And General | $259,481 | ManagementAndGeneralAmt |
| Fundraising | $318,310 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,295 | TotalAmt |
| Program Services | $4,000 | ProgramServicesAmt |
| Management And General | $14,295 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $51,413 | TotalAmt |
| Management And General | $46,900 | ManagementAndGeneralAmt |
| Fundraising | $4,513 | FundraisingAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $924,110 | TotalAmt |
| Fundraising | $924,110 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $344,015 | TotalAmt |
| Management And General | $317,011 | ManagementAndGeneralAmt |
| Fundraising | $27,004 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $210,658 | TotalAmt |
| Program Services | $112,215 | ProgramServicesAmt |
| Management And General | $5,146 | ManagementAndGeneralAmt |
| Fundraising | $93,297 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $446,053 | TotalAmt |
| Program Services | $100,242 | ProgramServicesAmt |
| Management And General | $74,670 | ManagementAndGeneralAmt |
| Fundraising | $271,141 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $345,128 | TotalAmt |
| Program Services | $25,819 | ProgramServicesAmt |
| Management And General | $58,784 | ManagementAndGeneralAmt |
| Fundraising | $260,525 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $444,400 | TotalAmt |
| Program Services | $50,512 | ProgramServicesAmt |
| Management And General | $71,264 | ManagementAndGeneralAmt |
| Fundraising | $322,624 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,805 | TotalAmt |
| Program Services | $748 | ProgramServicesAmt |
| Management And General | $1,986 | ManagementAndGeneralAmt |
| Fundraising | $6,071 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $72,136 | TotalAmt |
| Program Services | $11,885 | ProgramServicesAmt |
| Management And General | $5,113 | ManagementAndGeneralAmt |
| Fundraising | $55,138 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $303,474 | TotalAmt |
| Program Services | $144,247 | ProgramServicesAmt |
| Management And General | $31,046 | ManagementAndGeneralAmt |
| Fundraising | $128,181 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $249,843 | TotalAmt |
| Program Services | $135,037 | ProgramServicesAmt |
| Management And General | $28,165 | ManagementAndGeneralAmt |
| Fundraising | $86,641 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | FundraisingFundraisingAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|---|
| TRIAL RELATED COSTS | $5,339,431 | $5,339,431 | ||
| PROF FUNDRAISING - OTHE | $319,496 | $319,496 | ||
| PRINTING & PRODUCTION | $139,267 | $76,491 | $26,893 | $35,883 |
| CONFERENCE FEE REFUNDS | $25,000 | $25,000 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $259,029 | TotalAmt |
| Program Services | $35,928 | ProgramServicesAmt |
| Management And General | $140,425 | ManagementAndGeneralAmt |
| Fundraising | $82,676 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $40,728,225 | TotalAmt |
| Program Services | $32,193,828 | ProgramServicesAmt |
| Management And General | $2,702,499 | ManagementAndGeneralAmt |
| Fundraising | $5,831,898 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,753,237 | BOYAmt |
| EOY | $7,041,825 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,363,837 | BOYAmt |
| EOY | $25,047,700 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $28,415,543 | BOYAmt |
| EOY | $13,668,152 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $550,430 | BOYAmt |
| EOY | $458,457 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $500,000 | BOYAmt |
| EOY | $1,000,000 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $15,170 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,012,101 | BOYAmt |
| EOY | $755,948 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $4,840,299 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $3,891,051 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,153,839 | BOYAmt |
| EOY | $949,248 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $86,180,174 | BOYAmt |
| EOY | $97,624,354 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,644,086 | BOYAmt |
| EOY | $9,055,204 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $159,573,247 | BOYAmt |
| EOY | $155,616,058 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,293,010 | BOYAmt |
| EOY | $1,700,819 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,904,636 | BOYAmt |
| EOY | $11,728,046 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $17,450 | BOYAmt |
| EOY | $265,681 | EOYAmt |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,062,123 | BOYAmt |
| EOY | $1,093,127 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $736,855 | BOYAmt |
| EOY | $6,232,216 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $14,014,074 | BOYAmt |
| EOY | $21,019,889 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $33,631,452 | BOYAmt |
| EOY | $32,481,702 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $111,927,721 | BOYAmt |
| EOY | $102,114,467 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $145,559,173 | BOYAmt |
| EOY | $134,596,169 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $159,573,247 | BOYAmt |
| EOY | $155,616,058 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | -$10,936,746 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$32,146 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $5,888 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $22,746,532 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $22,775,761 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $50,471,319 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $31,895,116 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $27,741,201 | CurrentTaxYearAmt |
| Total | $155,629,929 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $22,746,532 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $22,775,761 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $50,471,319 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $31,895,116 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $27,741,201 | CurrentTaxYearAmt |
| Total | $155,629,929 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $47,661,176 | SubstantialContributorsTotAmt |
| Public Support Total170 | $107,968,753 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $4,320,989 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $4,875,189 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,503,900 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,325,536 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,394,213 | CurrentTaxYearAmt |
| Total | $24,419,827 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $100,091 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $636,502 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $867,745 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $358,160 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $130,714 | CurrentTaxYearAmt |
| Total | $2,093,212 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $182,142,968 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $1,565,751 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.59280 | PublicSupportCY170Pct |
| Public Support PY170 | 0.57110 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | FFB RD FUND SERVICE FEES - 2016 AMOUNT: $ 99,996. 2017 AMOUNT: $ 100,000. 2018 AMOUNT: $ 100,000. 2019 AMOUNT: $ 100,000. 2020 AMOUNT: $ 30,500. MISCELLANEOUS - 2016 AMOUNT: $ 95. 2017 AMOUNT: $ 1,805. 2018 AMOUNT: $ 82. 2019 AMOUNT: $ 71. 2020 AMOUNT: $ 14. FUNDRAISING EVENTS - 2017 AMOUNT: $ 534,697. 2018 AMOUNT: $ 767,663. 2019 AMOUNT: $ 258,089. 2020 AMOUNT: $ 100,200. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $3,422,374 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $939,020 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $145,067 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $15,805 | AdministrativeExpensesAmt |
| End Year Balance | $4,200,522 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $3,381,828 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $137,702 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $83,399 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $13,757 | AdministrativeExpensesAmt |
| End Year Balance | $3,422,374 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $3,256,748 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $208,731 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $74,246 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $9,405 | AdministrativeExpensesAmt |
| End Year Balance | $3,381,828 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $3,256,748 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $11,279 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $9,028 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $2,251 | AdministrativeExpensesAmt |
| End Year Balance | $3,256,748 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $3,190,000 | BeginningYearBalanceAmt |
| Contributions | $66,748 | ContributionsAmt |
| Investment Earnings Or Losses | $17,173 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $15,012 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $2,161 | AdministrativeExpensesAmt |
| End Year Balance | $3,256,748 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $149,229 | OtherCostOrOtherBasisAmt |
| Depreciation | $147,433 | DepreciationAmt |
| Book Value | $1,796 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $1,113,640 | OtherCostOrOtherBasisAmt |
| Depreciation | $898,418 | DepreciationAmt |
| Book Value | $215,222 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $3,577,430 | OtherCostOrOtherBasisAmt |
| Depreciation | $2,845,200 | DepreciationAmt |
| Book Value | $732,230 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $949,248 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp (3 entries)
| DescDesc | Book ValueBookValueAmt |
|---|---|
| BENEFICIAL INTERESTS IN REMAINDER TRUSTS | $7,816,076 |
| CHARITABLE GIFT ANNUITY | $888,072 |
| DUE FROM RELATED PARTY | $351,056 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $9,055,204 | TotalBookValueOtherAssetsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)
| DescDesc | AmtAmt |
|---|---|
| CHARITABLE GIFT ANNUITY OBLIGATION | $617,921 |
| DEFERRED RENT | $12,485 |
| DUE TO RELATED PARTY | $5,601,810 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $6,232,216 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $40,817,085 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$32,146 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $59,067 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $22,486,984 | OtherRevenueAmt |
| Revenue Not Reported | $22,513,905 | RevenueNotReportedAmt |
| Revenue Subtotal | $18,303,180 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $317,011 | InvestmentExpensesNotIncldAmt |
| Other Revenues Not Included | $11,171,288 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $11,488,299 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $29,791,479 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $31,593,270 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $59,067 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $2,319,277 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $2,378,344 | ExpensesNotReportedAmt |
| Expenses Subtotal | $29,214,926 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $317,011 | InvestmentExpensesNotIncld2Amt |
| Other Expenses Not Included | $11,196,288 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $11,513,299 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $40,728,225 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | EARNINGS CAN BE USED FOR OPERATIONS; PRINCIPAL IS DONOR RESTRICTED. |
| PART X, LINE 2: | THE FOUNDATION PERFORMED AN EVALUATION OF ITS UNCERTAINTY IN INCOME TAX FOR THE YEARS ENDED JUNE 30, 2021 AND 2020, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. THE FOUNDATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE CONSOLIDATED FINANCIAL STATEMENTS. UNDER THIS POLICY, THE FOUNDATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE FOUNDATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE FOUNDATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE. THE FOUNDATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR THE U.S. FEDERAL, STATE OR LOCAL TAX AUTHORITIES FOR YEARS BEFORE JUNE 30, 2018. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | REVENUE FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 22,511,984. RECLASSIFICATION OF CONFERENCE FEE REFUNDS -25,000. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS 11,171,288. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | EXPENSES FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 2,325,165. GRANT REFUNDS -5,888. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS 11,171,288. RECLASSIFICATION OF CONFERENCE FEE REFUNDS 25,000. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | 0 | 0 | GRANTMAKING | $3,835,172 |
| NORTH AMERICA | 0 | 0 | GRANTMAKING | $150,000 |
| EAST ASIA AND THE PACIFIC | 0 | 0 | GRANTMAKING | $75,000 |
| MIDDLE EAST AND NORTH AFRICA | 0 | 0 | GRANTMAKING | $100,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $4,160,172 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $4,160,172 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (13 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt |
|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $1,537,891 | CHECK | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $150,000 | CHECK | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $100,000 | CHECK | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $601,602 | CHECK | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $100,000 | CHECK | $0 |
| MIDDLE EAST AND NORTH AFRICA | RESEARCH | $100,000 | CHECK | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $94,000 | CHECK | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $218,446 | CHECK | $0 |
| NORTH AMERICA | RESEARCH | $75,000 | CHECK | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $333,233 | CHECK | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $700,000 | CHECK | $0 |
| NORTH AMERICA | RESEARCH | $75,000 | CHECK | $0 |
| EAST ASIA AND THE PACIFIC | RESEARCH | $75,000 | CHECK | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 13 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS. |
| PART III ACCOUNTING METHOD: |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (3 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| FUSE FUNDRAISING GROUP LLC | ||||||||
| 12355 SUNRISE VALLEY DRIVE | RESTON | VA | 20191 | FUNDRAISING COUNSEL | 0 | $1,258,733 | $576,618 | $682,115 |
| GASKILL STRATEGIES LLC | ||||||||
| 1759 CENTRAL AVE | MEMPHIS | TN | 38104 | FUNDRAISING COUNSEL | 0 | $0 | $178,712 | -$178,712 |
| RED DELUXE | ||||||||
| PO BOX 3350 | MEMPHIS | TN | 38173 | FUNDRAISING COUNSEL | 0 | $0 | $488,276 | -$488,276 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $1,258,733 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $1,243,606 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $15,127 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | HOPE FROM HOME (VIRTUAL) | Event1Nm |
| Gross Receipts Event1 | $795,584 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $741,334 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $54,250 | GrossRevenueEvent1Amt |
| Entertainment Event1 | $58,800 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $109,196 | OtherDirectExpensesEvent1Amt |
| Event2 | NIGHT FOR SIGHT (VIRTUAL) | Event2Nm |
| Gross Receipts Event2 | $606,992 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $586,067 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $20,925 | GrossRevenueEvent2Amt |
| Entertainment Event2 | $116,250 | EntertainmentEvent2Amt |
| Other Direct Expenses Event2 | $57,521 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 71 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $3,746,863 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $3,721,838 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $25,025 | GrossRevenueOtherEventsAmt |
| Rent Fclty Costs Other Events | $19,566 | RentFcltyCostsOtherEventsAmt |
| Entertainment Other Events | $250 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $46,812 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $5,149,439 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $5,049,239 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $100,200 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $19,566 | RentFcltyCostsTotalEventsAmt |
| Entertainment Total Events | $175,300 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $213,529 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $408,395 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$308,195 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (24 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| COLUMBIA UNIVERSITY | ||||||||
| 635 WEST 165TH STREET | NEW YORK | NY | 10032 | 135598093 | 501(C)(3) | $596,691 | $0 | RESEARCH |
| DUKE UNIVERSITY MEDICAL CENTER | ||||||||
| 2200 W MAINE STREET | DURHAM | NC | 27705 | 560532129 | 501(C)(3) | $265,000 | $0 | RESEARCH |
| EMORY UNIVERSITY | ||||||||
| 1559 CLIFTON ROAD | ATLANTA | GA | 30322 | 580566256 | 501(C)(3) | $75,000 | $0 | RESEARCH |
| FOUNDATION FIGHTING BLINDNESS RD FUND | ||||||||
| 6925 OAKLAND MILLS ROAD 701 | COLUMBIA | MD | 21045 | 450524687 | 501(C)(3) | $11,140,788 | $0 | RESEARCH |
| JACKSON LABORATORY | ||||||||
| 600 MAIN ST | BAR HARBOR | ME | 04609 | 010211513 | 501(C)(3) | $198,790 | $0 | RESEARCH |
| JOHNS HOPKINS UNIVERSITY | ||||||||
| 600 NORTH WOLFE STREET | BALTIMORE | MD | 21287 | 520595110 | 501(C)(3) | $175,000 | $0 | RESEARCH |
| MARQUETTE UNIVERSITY | ||||||||
| PO BOX 1881 | MILWAUKE | WI | 53201 | 390806251 | 501(C)(3) | $96,726 | $0 | RESEARCH |
| MASSACHUSETTS EYE AND EAR INFIRMARY | ||||||||
| 243 CHARLES STREET | BOSTON | MA | 02114 | 042103591 | 501(C)(3) | $675,000 | $0 | RESEARCH |
| MEDICAL UNIVERSITY SOUTH CAROLINA | ||||||||
| 19 HAGOOD AVE | CHARLESTON | SC | 29425 | 576028985 | 501(C)(3) | $178,385 | $0 | RESEARCH |
| OREGON HEALTH AND SCIENCE UNIVERSITY | ||||||||
| 3375 TERWILLIGER BOULEVARD SW | PORTLAND | OR | 97201 | 237083114 | 501(C)(3) | $300,000 | $0 | RESEARCH |
| REGENTS UNIV OF CALIFORNIA | ||||||||
| 10889 WILSHIRE BLVD | LOS ANGELES | CA | 90095 | 943067788 | 501(C)(3) | $180,615 | $0 | RESEARCH |
| RETINA FOUNDATION OF THE SOUTHWEST | ||||||||
| 9900 NORTH CENTRAL EXPRESSWAY | DALLAS | TX | 75231 | 510151514 | 501(C)(3) | $100,000 | $0 | RESEARCH |
| UNIVERSITY CALIFORNIA SAN FRANCISCO | ||||||||
| 100 STEIN PLAZA | LOS ANGELES | CA | 90095 | 956006143 | 501(C)(3) | $498,701 | $0 | RESEARCH |
| UNIVERSITY HOSPITALS | ||||||||
| UH GRANTS DEPT 781686 PO BOX 78000 | DETROIT | MI | 48278 | 341567805 | 501(C)(3) | $1,308,460 | $0 | RESEARCH |
| UNIVERSITY OF ALABAMA AT BIRMINGHAM | ||||||||
| 1670 UNIVERSITY BLVD | BIRMINGHAM | AL | 35293 | 636005396 | 501(C)(3) | $99,946 | $0 | RESEARCH |
| UNIVERSITY OF CALIFORNIA BERKELEY | ||||||||
| 2150 SHATTUCK AVENUE | BERKELEY | CA | 94720 | 946002123 | 501(C)(3) | $100,000 | $0 | RESEARCH |
| UNIVERSITY OF CALIFORNIA SAN DIEGO | ||||||||
| 9500 GILMAN DRIVE | LA JOLLA | CA | 92037 | 956006144 | 501(C)(3) | $575,000 | $0 | RESEARCH |
| UNIVERSITY OF FLORIDA | ||||||||
| PO BOX 100284 | GAINESVILLE | FL | 32610 | 592729133 | 501(C)(3) | $200,000 | $0 | RESEARCH |
| UNIVERSITY OF IOWA | ||||||||
| 2 GILMORE HALL | IOWA CITY | IA | 52242 | 237436761 | 501(C)(3) | $100,000 | $0 | RESEARCH |
| UNIVERSITY OF LOUISVILLE | ||||||||
| 300 E MARKET STREET | LOUISVILLE | KY | 40202 | 237078461 | 501(C)(3) | $167,507 | $0 | RESEARCH |
| UNIVERSITY OF PENNSYLVANIA | ||||||||
| 3451 WALNUT STREET | PHILADELPHIA | PA | 19104 | 232810852 | 501(C)(3) | $475,000 | $0 | RESEARCH |
| UNIVERSITY OF PITTSBURGH | ||||||||
| 123 UNIVERSITY PLACE | PITTSBURGH | PA | 15213 | 250965591 | 501(C)(3) | $75,000 | $0 | RESEARCH |
| UNIVERSITY OF WASHINGTON | ||||||||
| 1100 45TH ST NE | SEATTLE | WA | 98105 | 943079432 | 501(C)(3) | $485,017 | $0 | RESEARCH |
| UNIVERSITY OF WISCONSIN | ||||||||
| 21 NORTH PARK STREET | MADISON | WI | 53715 | 390743975 | 501(C)(3) | $162,000 | $0 | RESEARCH |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 24 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Idemnification Gross Up Pmts | Yes (X) | IdemnificationGrossUpPmtsInd |
| Written Policy Ref T And E Expnss | Yes (1) | WrittenPolicyRefTAndEExpnssInd |
| Substantiation Required | Yes (1) | SubstantiationRequiredInd |
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | Yes (1) | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (14 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| BENJAMIN R YERXA | ||||||||||||||
| CEO | $270,471 | $145,638 | $65,516 | $35,278 | $637 | $343 | $11,136 | $5,996 | $23,189 | $12,487 | $370,949 | $199,742 | $0 | $0 |
| JASON D MENZO | ||||||||||||||
| COO | $311,351 | $16,387 | $46,009 | $2,422 | $635 | $33 | $16,572 | $872 | $37,689 | $1,984 | $412,256 | $21,698 | $0 | $0 |
| BRIAN MANSFIELD | ||||||||||||||
| EVP, RESEARCH & INTERIM CSO | $241,383 | $0 | $35,371 | $0 | $3,298 | $0 | $15,350 | $0 | $26,457 | $0 | $321,859 | $0 | $0 | $0 |
| RUSSELL W KELLEY | ||||||||||||||
| SVP, RD FUNDS | $0 | $205,125 | $0 | $19,740 | $0 | $723 | $0 | $13,129 | $0 | $36,624 | $0 | $275,341 | $0 | $0 |
| PATRICIA DUDLEY | ||||||||||||||
| CHIEF HUMAN RESOURCE OFFICER | $179,487 | $0 | $27,217 | $0 | $4,179 | $0 | $11,833 | $0 | $37,150 | $0 | $259,866 | $0 | $0 | $0 |
| TODD A DURHAM | ||||||||||||||
| VP, CLINICAL & OUTCOMES RESEARCH | $199,955 | $0 | $19,467 | $0 | $499 | $0 | $6,712 | $0 | $20,878 | $0 | $247,511 | $0 | $0 | $0 |
| JUDY L TAYLOR | ||||||||||||||
| VP, DEVELOPMENT | $161,508 | $0 | $15,880 | $0 | $826 | $0 | $10,674 | $0 | $34,991 | $0 | $223,879 | $0 | $0 | $0 |
| CHRISTOPHER S ADAMS | ||||||||||||||
| VP, COMMUNICATIONS & MARKETING | $152,704 | $0 | $16,062 | $0 | $559 | $0 | $1,788 | $0 | $37,536 | $0 | $208,649 | $0 | $0 | $0 |
| NANCY M DAVENPORT | ||||||||||||||
| VP, FINANCE | $151,781 | $16,865 | $14,165 | $1,574 | $2,009 | $223 | $9,957 | $1,106 | $1,155 | $128 | $179,067 | $19,896 | $0 | $0 |
| MICHELE C DIVINCENZO | ||||||||||||||
| VP, EVENTS | $132,699 | $0 | $13,385 | $0 | $483 | $0 | $8,979 | $0 | $20,370 | $0 | $175,916 | $0 | $0 | $0 |
| AMY M PALMER LASTER | ||||||||||||||
| VP, GRANTS & AWARDS PROGRAMS | $145,797 | $0 | $13,384 | $0 | $174 | $0 | $8,838 | $0 | $2,611 | $0 | $170,804 | $0 | $0 | $0 |
| JEFFRY C COLLINS | ||||||||||||||
| VP, DATABASE SYSTEMS & TECH | $132,107 | $0 | $4,000 | $0 | $1,961 | $0 | $8,460 | $0 | $18,332 | $0 | $164,860 | $0 | $0 | $0 |
| CHAD R JACKSON | ||||||||||||||
| DIR, PRECLINICAL TRANSLATIONAL RES | $148,596 | $0 | $5,816 | $0 | $89 | $0 | $4,644 | $0 | $2,720 | $0 | $161,865 | $0 | $0 | $0 |
| STEPHEN MARK ROSE | ||||||||||||||
| FOMER SR. SCIENTIFIC ADV (THRU 6/1/2 | $122,742 | $0 | $0 | $0 | $18,374 | $0 | $6,473 | $0 | $13,211 | $0 | $160,800 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 4A | STEPHEN ROSE RECEIVED A SEVERANCE PAYMENT DURING THE CALENDAR YEAR. THE PAYMENT IS INCLUDED IN PART VII, COLUMN D AND SCHEDULE J, PART II, COLUMN BIII. THE TERMS AND CONDITIONS OF THE CONFIDENTIAL SEVERANCE AGREEMENT ARE AVAILABLE TO THE INTERNAL REVENUE SERVICE UPON REQUEST. |
| PART I, LINE 7 | FFB EMPLOYEES PARTICIPATE IN AN ANNUAL INCENTIVE PLAN. THE PLAN PROVIDES AN ANNUAL CASH BONUS DEPENDING UPON THE ACHIEVEMENT OF PRE-DETERMINED ORGANIZATION AND INDIVIDUAL PERFORMANCE CRITERIA. |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 97 | ContributionCnt |
| Noncash Contributions Rpt F990 | $13,864,204 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR MARKET VALUE | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | EVENT ITEMS | Desc |
| Contribution | 277 | ContributionCnt |
| Noncash Contributions Rpt F990 | $170,735 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR MARKET VALUE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 0 | Form8283ReceivedCnt |
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, COLUMN (B): | THE NUMBER IN THIS COLUMN FOR LINE 9 REPRESENTS THE NUMBER OF CONTRIBUTIONS OF STOCK. |
| PART I, LINE 32B: | WHEN DONATED STOCK IS RECEIVED, OUR BROKER MERRILL LYNCH IMMEDIATELY CONVERTS THESE CONTRIBUTIONS INTO CASH. |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (9 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 4 | THE FOUNDATION FIGHTING BLINDNESS, INC MADE THE FOLLOWING CHANGE TO THEIR BYLAWS: ARTICLE IX, SECTION 1. NAMES. THE NINE STANDING COMMITTEES SHALL BE THE AUDIT, COMPENSATION, DEVELOPMENT, FINANCE, GOVERNMENT RELATIONS, INVESTMENT, MARKETING, COMMUNICATIONS, & SOCIAL MEDIA, NOMINATING & GOVERNANCE, AND RESEARCH OVERSIGHT. THE BOARD OF DIRECTORS SHALL HAVE THE POWER TO ADD OR ELIMINATE STANDING COMMITTEES, EXCEPT THAT THE FINANCE, AUDIT, COMPENSATION, RESEARCH OVERSIGHT, AND NOMINATING AND GOVERNANCE COMMITTEES MAY NOT BE ELIMINATED. |
| FORM 990, PART VI, SECTION A, LINE 6 | MEMBERS OF FFB ARE KNOWN AS NATIONAL TRUSTEES. THE QUALIFICATIONS AND ELIGIBILITY FOR MEMBERSHIP AND THE MANNER OF ADMISSION INTO MEMBERSHIP IS PRESCRIBED BY RESOLUTION OF THE BOARD OF DIRECTORS. THE NATIONAL TRUSTEES ARE ENTITLED TO VOTE ON ELECTION OF DIRECTORS. |
| FORM 990, PART VI, SECTION A, LINE 7A | DURING THE ANNUAL MEETING OF THE NATIONAL TRUSTEES, MEMBERS OF THE BOARD OF DIRECTORS ARE ELECTED. |
| FORM 990, PART VI, SECTION B, LINE 11B | DATA TO PREPARE THE FEDERAL FORM 990 IS PROVIDED TO OUR OUTSIDE ACCOUNTING FIRM FOR PREPARATION AND GUIDANCE. AFTER IT HAS BEEN COMPLETED, A DRAFT OF THE FEDERAL FORM 990 IS REVIEWED BY THE CONTROLLER AND CHIEF BUSINESS OFFICER. WITH THE CBO'S APPROVAL, THE DRAFT FEDERAL FORM 990 IS THEN MADE AVAILABLE TO ALL BOARD MEMBERS. ALL BOARD MEMBERS ARE INVITED TO ATTEND A SPECIAL MEETING OF THE FINANCE COMMITTEE TO REVIEW THE FEDERAL FORM 990. A FINAL DRAFT IS MADE AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING. |
| FORM 990, PART VI, SECTION B, LINE 12C | IN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST, AN INTERESTED PERSON (INCLUDING OFFICERS, DIRECTORS, AND KEY EMPLOYEES) MUST DISCLOSE, IN WRITING PRIOR TO ANY DISCUSSION OR VOTE UPON A PROPOSAL, THE EXISTENCE AND NATURE OF HIS OR HER PERSONAL INTEREST TO THE CHAIR OF THE BOARD AND CHAIR OF THE BOARD COMMITTEE CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, THE INTERESTED PERSON SHALL LEAVE THE BOARD OR COMMITTEE MEETING WHILE THE FINANCIAL INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS, AND IF SO, WHETHER THERE IS A COMPELLING REASON TO RECOMMEND TO THE BOARD THAT THE CONFLICT OF INTEREST POLICY BE OVERRIDDEN. A QUORUM IS NEEDED FOR VOTING AND THE VOTE TO OVERRIDE SHALL BE BY MAJORITY AND DULY NOTED IN THE MINUTES. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE COMPENSATION COMMITTEE AND THE BOARD OF DIRECTORS APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER. THE COMPENSATION COMMITTEE APPROVES THE COMPENSATION OF THE OTHER CHIEF OFFICERS. ON A ROUTINE BASIS, EXTERNAL DATA PROVIDED BY OUTSIDE EXPERT COMPENSATION CONSULTANTS IS USED TO MEASURE REASONABLENESS OF SALARIES TO THE MARKET PLACE AND RESULTS ARE COMMUNICATED BY OUTSIDE CONSULTANTS TO THE BOARD CHAIR/COMPENSATION COMMITTEE. |
| FORM 990, PART VI, SECTION C, LINE 19 | FFB'S FEDERAL FORM 990 AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE AVAILABLE AT WWW.FIGHTBLINDNESS.ORG. OTHER PUBLIC DOCUMENTS INCLUDING THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST THROUGH THE CONTACT INFORMATION DISCLOSED ON FFB'S WEB SITE. THESE DOCUMENTS ARE AVAILABLE FOR THE SAME PERIOD OF DISCLOSURE AS SET FORTH IN SECTION 6104(D). |
| FORM 990, PART VII, SECTION A: | FFB ACTS AS THE COMMON PAYMASTER FOR THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND, A RELATED ORGANIZATION. |
| FORM 990, PART XI, LINE 9: | GRANT REFUNDS 5,888. |
Schedule R IRS990ScheduleR
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (3 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | EINEIN | Primary ActivitiesPrimaryActivitiesTxt | Legal Domicile StateLegalDomicileStateCd | Exempt Code SectionExemptCodeSectionTxt | Public Charity StatusPublicCharityStatusTxt | Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt | Controlled OrganizationControlledOrganizationInd |
|---|---|---|---|---|---|---|---|---|---|---|
| FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND | ||||||||||
| 6925 OAKLAND MILLS ROAD 701 | COLUMBIA | MD | 21045 | 450524687 | FUNDS RESEARCH AND CLINICAL TRIALS TO FIND TREATMENTS FOR RETINAL DISEASES | DE | 501(C)(3) | LINE 12A, I | FOUNDATION FIGHTING BLINDNESS INC | Yes (1) |
| MACULAR DEGENERATION INTERNATIONAL INC | ||||||||||
| 6925 OAKLAND MILLS ROAD 701 | COLUMBIA | MD | 21045 | 363923922 | FUNDRAISING | IL | 501(C)(3) | LINE 7 | FOUNDATION FIGHTING BLINDNESS INC | Yes (1) |
| NATIONAL RETINITIS PIGMENTOSA FOUNDATION INC | ||||||||||
| 6925 OAKLAND MILLS ROAD 701 | COLUMBIA | MD | 21045 | 522072391 | FUNDRAISING | MD | 501(C)(3) | LINE 12A, I | FOUNDATION FIGHTING BLINDNESS INC | Yes (1) |
Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp
Related Organization Name RelatedOrganizationName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | OPUS GENETICS INC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 223 SOUTH WEST STREET SUITE 900 | AddressLine1Txt |
| City | RALEIGH | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27603 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 863335973 | EIN |
| Primary Activities | GENE THERAPY | PrimaryActivitiesTxt |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Direct Controlling NA | N/A | DirectControllingNACd |
| Entity Type | C | EntityTypeTxt |
| Controlled Organization | 0 | ControlledOrganizationInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | 0 | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | Yes (1) | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | 0 | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | 0 | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | 0 | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | 0 | DivRelatedOrganizationInd |
| Asset Sale To Other Org | 0 | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | 0 | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | 0 | AssetExchangeInd |
| Rental Of Facilities To Oth Org | 0 | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | 0 | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | Yes (1) | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | 0 | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | 0 | SharingOfFacilitiesInd |
| Paid Employees Sharing | Yes (1) | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | 0 | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | 0 | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | 0 | TransferToOtherOrgInd |
| Transfer From Other Org | 0 | TransferFromOtherOrgInd |
Transactions Related Org TransactionsRelatedOrgGrp (3 entries)
| Transaction TypeTransactionTypeTxt | InvolvedInvolvedAmt | Method Of Amount DeterminationMethodOfAmountDeterminationTxt |
|---|---|---|
| FOUNDATION FIGHTING BLINDNESS RD FUND | ||
| B | $11,140,788 | FAIR MARKET VALUE |
| FOUNDATION FIGHTING BLINDNESS RD FUND | ||
| L | $30,500 | FAIR MARKET VALUE |
| FOUNDATION FIGHTING BLINDNESS RD FUND | ||
| O | $849,141 | FAIR MARKET VALUE |