STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

LUPUS FOUNDATION OF AMERICA INC: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
LUPUS FOUNDATION OF AMERICA INC (EIN 43-1131436)
Tax period
2019-10-01 to 2020-09-30
Filed
2021-04-16
IRS object ID
202111069349300201
Schema version
2019v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2021-04-16T05:34:22-05:00ReturnTs
Tax Period End2020-09-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN111986323PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1MARCUM LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11899 L STREET NW SUITE 850AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20036ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2019-10-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN431131436EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1LUPUS FOUNDATION OF AMERICA INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlLUPUBusinessNameControlTxt
Phone2023491155PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line12121 K STREET NW NO 200AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20037ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonSTEVAN W GIBSONPersonNm
Person TitlePRESIDENT & CEOPersonTitleTxt
Phone2023491155PhoneNum
Signature2021-04-15SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonAARON M FOXPreparerPersonNm
PTINP01365820PTIN
Phone2022274000PhoneNum
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerSTEVAN W GIBSONPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line12121 K STREET NW NO 200AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20037ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$12,154,369GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.LUPUS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1977FormationYr
Legal Domicile StateDCLegalDomicileStateCd
Activity Or MissionIMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH LUPUS THROUGH RESEARCH, EDUCATION, SUPPORT AND ADVOCACY.ActivityOrMissionDesc
Voting Members Governing Body19VotingMembersGoverningBodyCnt
Voting Members Independent19VotingMembersIndependentCnt
Total Employee64TotalEmployeeCnt
Total Volunteers2850TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$14,173,781PYContributionsGrantsAmt
CY Contributions Grants$10,961,768CYContributionsGrantsAmt
PY Program Service Revenue$2,703,797PYProgramServiceRevenueAmt
CY Program Service Revenue$1,050,075CYProgramServiceRevenueAmt
PY Investment Income$67,504PYInvestmentIncomeAmt
CY Investment Income$35,110CYInvestmentIncomeAmt
PY Other Revenue-$67,443PYOtherRevenueAmt
CY Other Revenue-$62,446CYOtherRevenueAmt
PY Total Revenue$16,877,639PYTotalRevenueAmt
CY Total Revenue$11,984,507CYTotalRevenueAmt
PY Grants And Similar Paid$1,609,710PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,307,607CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$6,369,077PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$6,544,233CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$111,639PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$107,400CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,116,899CYTotalFundraisingExpenseAmt
PY Other Expenses$8,800,462PYOtherExpensesAmt
CY Other Expenses$5,818,172CYOtherExpensesAmt
PY Total Expenses$16,890,888PYTotalExpensesAmt
CY Total Expenses$13,777,412CYTotalExpensesAmt
PY Revenues Less Expenses-$13,249PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$1,792,905CYRevenuesLessExpensesAmt
Total Assets BOY$9,027,246TotalAssetsBOYAmt
Total Assets EOY$8,259,627TotalAssetsEOYAmt
Total Liabilities BOY$3,633,327TotalLiabilitiesBOYAmt
Total Liabilities EOY$4,633,955TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$5,393,919NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$3,625,672NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionLUPUS FOUNDATION OF AMERICA, INC. (THE FOUNDATION) IS DEDICATED TO IMPROVING THE QUALITY OF LIFE FOR ALL PEOPLE AFFECTED BY LUPUS THROUGH PROGRAMS OF RESEARCH, EDUCATION, SUPPORT, AND ADVOCACY.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$5,100,940ExpenseAmt
Grant$8,247GrantAmt
Revenue$545,601RevenueAmt
DescPUBLIC INFORMATION AND EDUCATION: THE FOUNDATION EXECUTES ONGOING EFFORTS TO INCREASE PUBLIC AWARENESS AND UNDERSTANDING OF LUPUS AND ITS HEALTH CONSEQUENCES AS A TOOL TO IMPROVE EARLY DIAGNOSIS AND TREATMENT OF THE DISEASE. ONGOING EFFORTS INCLUDES PUBLIC AWARENESS CAMPAIGNS, MEDIA RELATIONS, ONLINE AND SOCIAL MARKETING, AND OUTREACH EFFORTS TO BUILD AND ENHANCE SUSTAINABLE CORPORATE AND COMMUNITY PARTNERSHIPS. LIFE AS WE KNOW IT CHANGED DRAMATICALLY THIS YEAR DUE TO THE ONSET OF THE CORONAVIRUS (COVID-19) PANDEMIC. IT CAUSED QUESTIONS, CONCERNS AND ANXIETY FOR EVERYONE WHICH WERE AMPLIFIED FOR ALL THOSE LIVING WITH LUPUS WHO ARE OFTEN MORE SUSCEPTIBLE TO INFECTIONS LIKE COVID-19. THE LUPUS FOUNDATION OF AMERICA IMMEDIATELY SET UP A CENTRAL HUB FOR COVID-19 RESOURCES IN ENGLISH AND SPANISH ON OUR NATIONAL RESOURCE CENTER ON LUPUS, WHICH HAS BEEN VIEWED MORE THAN 380K TIMES. IN TOTAL, WE NOW HAVE MORE THAN 300 PAGES OF CONTENT RELATED TO CORONAVIRUS AND THE HYDROXYCHLOROQUINE (HCQ) SHORTAGE.WE ALSO LEVERAGED SOCIAL MEDIA TO SHARE THE LATEST UPDATES ON COVID-19 BY CREATING A SERIES OF VIDEO INTERVIEWS WITH MEDICAL EXPERTS AND MEMBERS OF THE LUPUS FOUNDATION OF AMERICA TEAM. MORE THAN 160K FOLLOWERS SHARED OUR EXPERT INTERVIEWS FURTHER EXPANDING OUR REACH OF CRITICAL INFORMATION. OUR COVERAGE OF THE LATEST COVID-19 DEVELOPMENTS CONTINUE, INCLUDING THE IMPORTANCE OF THE FLU SHOT DURING THIS TIME, GOING BACK TO WORK OR SCHOOL, AND INSIGHTS ON A POTENTIAL COVID-19 VACCINE.THROUGHOUT THIS PAST YEAR, THE LUPUS FOUNDATION OF AMERICA (FOUNDATION) CONTINUED TO EXPAND ITS REACH THROUGH EDUCATION PROGRAMS (TURNED VIRTUAL DUE TO COVID-19), SOCIAL MEDIA PLATFORMS AND THE FOUNDATION'S WEBSITES, ENGAGING CELEBRITIES, AND PROMOTING NATIONAL AWARENESS CAMPAIGNS. KEY CORPORATE PARTNERSHIPS HELPED DISTRIBUTE BROCHURES ABOUT LUPUS TO PHYSICIAN OFFICES AND GARNER 12.5 MILLION EXPOSURES OF KEY TIME TO DIAGNOSIS MESSAGES. TRAINED AMBASSADORS HELPED EXPAND OUR REACH AND OUR IMPACT BY RAISING AWARENESS AND EDUCATING THEIR COMMUNITIES ABOUT LUPUS AND THE WORK OF THE LUPUS FOUNDATION OF AMERICA. THE FOUNDATION REMAINS THE NUMBER ONE ONLINE SOURCE FOR LUPUS-RELATED INFORMATION, WITH AN AUDIENCE OF 7 MILLION ANNUAL VISITS TO ITS WEBSITE PROPERTIES, AND MORE THAN 350,000 FOLLOWERS THROUGH ITS SOCIAL MEDIA PROPERTIES. WE CREATED A SERIES OF SOCIAL MEDIA CAMPAIGNS TO BRING ATTENTION TO HEALTH DISPARITIES AND HIGHLIGHT RESOURCES AVAILABLE TO ADDRESS THE UNIQUE NEEDS OF DIFFERENT AUDIENCES IMPACTED BY LUPUS. THESE CAMPAIGNS INCORPORATED VIDEOS TO SHARE LUPUS WARRIOR VOICES AND THOSE OF OUR EXPERTS. IN TOTAL ALL OF THESE CAMPAIGNS GENERATED MORE THAN ONE MILLION IMPRESSIONS ACROSS ALL CHANNELS.DURING LUPUS AWARENESS MONTH IN MAY, WE MADE LUPUS VISIBLE WITH 4.5 MILLION IMPRESSIONS, MORE THAN 182K VIEWS OF OUR VIDEOS AND A 9% INCREASE IN TRAFFIC TO OUR LUPUS AWARENESS MONTH HOMEPAGE.THIS YEAR WE CONCLUDED A FIVE-YEAR COOPERATIVE AGREEMENT WITH THE US CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC) WHICH SUPPORTED AMONG OTHER THINGS, WORKING WITH FAMILY PHYSICIANS TO IMPROVE THE TIME TO AN ACCURATE LUPUS DIAGNOSIS (SEE PROGRAM 5), RAISING AWARENESS OF LUPUS AMONG YOUNG BLACK AND LATINA WOMEN, AND THE DEVELOPMENT OF THE NATIONAL RESOURCE CENTER ON LUPUS, WHICH HAS BEEN VISITED MORE THAN 18 MILLION TIMES SINCE ITS LAUNCH IN 2017, REACHING PEOPLE IN EVERY STATE. SOME KEY ACCOMPLISHMENTS THIS YEAR INCLUDE:- BE FIERCE.TAKE CONTROL. THIS DIGITAL-BASED CAMPAIGN SEEKS TO REACH YOUNG WOMEN AT GREATEST RISK FOR LUPUS TO RECOGNIZE THE SIGNS OF LUPUS AND TO TAKE ACTION IF THEY ARE EXPERIENCING THEM (WITH THE ULTIMATE GOAL TO REDUCE THE TIME RECEIVING A LUPUS DIAGNOSIS). OUR EFFORTS THIS YEAR RESULTED IN MORE THAN 129 MILLION IMPRESSIONS AND 94,000, VISITS TO OUR CAMPAIGN WEBSITE TO LEARN MORE.- WE LAUNCHED THE NEW EDUCATIONAL, WHAT IS LUPUS VIDEO, THAT PROVIDES AN ENGAGING EXPLANATION OF WHAT LUPUS IS, ITS IMPACT AND THE DIFFICULTY IN DIAGNOSING, TREATING AND LIVING WITH THIS COMPLEX AND UNPREDICTABLE DISEASE.- SECURED MORE THAN MORE THAN 90 NATIONAL AND LOCAL MEDIA STORIES HIGHLIGHTING THE HYDROXYCHLOROQUINE SHORTAGE AND ITS IMPACT ON PEOPLE WITH LUPUS. - LAUNCHED TAKE CHARGE 2.0, A 12-WEEK EMAIL SERIES GEARED TOWARDS GUIDING NEWLY-DIAGNOSED PEOPLE WITH LUPUS WITH KNOWLEDGE AND SKILLS TO HELP MANAGE THEIR LUPUS SYMPTOMS, WHICH HAS A TOTAL OF NEARLY 7,000 SUBSCRIBERS.- LAUNCHED THE PILOT OF AN ONLINE SELF-CARE PROGRAM. USER EXPERIENCE IS BEING GATHERED SO FURTHER ENHANCEMENTS CAN BE MADE PRIOR TO A BROAD LAUNCH IN 2021.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$2,876,830ExpenseAmt
Grant$13,375GrantAmt
Revenue$103,168RevenueAmt
DescNETWORK SUPPORT AND SERVICES:THE FOUNDATION'S NATIONAL NETWORK IS COMPOSED OF CHAPTERS, REGIONAL OFFICES, AMBASSADORS AND LOCAL SUPPORT GROUPS ACROSS THE UNITED STATES. THE NETWORK SUPPORTS THOSE LIVING WITH LUPUS THROUGH OUR PROGRAMS OF EDUCATION, RESEARCH, SUPPORT AND ADVOCACY ALL DESIGNED TO IMPROVE THE QUALITY OF LIFE FOR THOSE WHO SUFFER FROM THE IMPACT OF LUPUS.THE FOUNDATION PROVIDES CAPACITY-BUILDING SERVICES, STRATEGIC SUPPORT, CONSULTATION AND ORGANIZATIONAL DEVELOPMENT SUPPORT AND TRAINING TO OUR NETWORK, AS WELL AS PROVIDING OVERSIGHT AND RESOURCES TO THE SUPPORT GROUP FACILITATORS ACROSS THE COUNTRY WHO SERVE CONSTITUENTS. THE COVID-19 PANDEMIC MEANT MOVING TO VIRTUAL SUPPORT GROUPS, WHICH ALLOWED GREATER ACCESS TO THIS IMPORTANT RESOURCE, AT A TIME THAT WAS NEEDED MORE THAN EVER.IN 2020, DUE TO THE IMPACT OF COVID-19, OUR MORE THAN 74 IN-PERSON WALK TO END LUPUS NOW EVENTS WERE MOVED TO A NATIONAL VIRTUAL EVENT, WHICH ALLOWED FOR PARTICIPATION FROM PARTICIPANTS FROM ALL 50 STATES TO RAISE AWARENESS AND FUNDS FOR LOCAL COMMUNITIES TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH LUPUS.THE FOUNDATION ALSO IS LEADING THE WORLD LUPUS FEDERATION, A COALITION OF GLOBAL LUPUS PATIENT ADVOCACY GROUPS TO ADVANCE LUPUS AWARENESS AND ADVOCACY INITIATIVES AROUND THE WORLD THAT CONTINUES TO BRING GREATER GLOBAL ATTENTION AND RESOURCES TO THE FIGHT TO END LUPUS. THIS YEAR WE RELEASED RESULTS OF A LARGE-SCALE INTERNATIONAL SURVEY IN WHICH NEARLY 7 IN 10 PARTICIPANTS RESPONDED THAT LUPUS HAMPERS THEIR MOBILITY. THE SURVEY INCLUDED RESPONDENTS FROM MORE THAN 70 COUNTRIES, AND REINFORCES THE DEVASTATING AND LIFE-ALTERING EFFECTS LUPUS CAN CAUSE TO PHYSICAL FUNCTION FOR THE ESTIMATED FIVE MILLION PEOPLE WHO LIVE WITH THE DISEASE ACROSS THE GLOBE.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$2,777,767ExpenseAmt
Grant$1,284,021GrantAmt
Revenue$263,450RevenueAmt
DescRESEARCH: OUR NATIONAL RESEARCH PROGRAM SEEKS TO FIND SOLUTIONS TO PROBLEMS THAT FOR DECADES HAVE STALLED PROGRESS IN LUPUS RESEARCH, LUPUS TREATMENT DEVELOPMENT, PATIENT CARE AND TREATMENT ACCESS. WE AGGRESSIVELY PURSUED STRATEGIES TO INCREASE FEDERAL, STATE AND INDUSTRY SUPPORT FOR RESEARCH ON LUPUS, FACILITATED STRATEGIC COLLABORATIONS, LED GLOBAL COLLABORATIONS TO DRIVE CONSENSUS, AND PROVIDED DIRECT FINANCIAL SUPPORT TO RESEARCHERS THROUGH THE FOUNDATION'S PEER REVIEWED RESEARCH GRANT PROGRAMS.THROUGH OUR DIRECT RESEARCH FUNDING SUPPORT AND VARIOUS RESEARCH INITIATIVES, WE INVESTED MORE THAN $1.5 MILLION INTO RESEARCH THROUGH PEER-REVIEWED RESEARCH PROGRAMS, DIRECT AWARDS, AND LFA RESEARCH PARTNERSHIPS. FURTHERMORE THROUGH OUR ADVOCACY EFFORTS, THE FOUNDATION WORKED WITH CONGRESS TO SECURE MORE THAN $20 MILLION IN FUNDING SPECIFICALLY TO ADVANCE LUPUS RESEARCH AND EDUCATION PROGRAMS, IN ADDITION TO SECURING A $1.25 BILLION INCREASE IN FUNDING FOR THE NATIONAL INSTITUTES OF HEALTH, THE LARGEST PUBLIC FUNDER OF LUPUS RESEARCH IN THE WORLD. OVER THE YEARS WE HAVE LED INITIATIVES TO OVERCOME BARRIERS TO THE DEVELOPMENT AND APPROVAL OF NEW, EFFECTIVE AND TOLERABLE TREATMENTS FOR PEOPLE WITH LUPUS. THIS PAST YEAR, THE FOUNDATION:- LAUNCHED, RAY: RESEARCH ACCELERATED BY YOU, A LUPUS DATA PLATFORM WHERE PEOPLE WITH LUPUS AND CAREGIVERS SHARE ANONYMOUS INFORMATION ABOUT THEIR LUPUS EXPERIENCE TO HELP RESEARCHERS ACCELERATE THE DEVELOPMENT OF NEW TREATMENTS AND IMPROVE DISEASE OUTCOMES.- REACHED THE FIRST-EVER GLOBAL CONSENSUS ON THE BARRIERS TO LUPUS TREATMENT AND CARE AS PART OF THE FOUNDATION'S ADDRESSING LUPUS PILLARS FOR HEALTH ADVANCEMENT (ALPHA) PROJECT. THE ALPHA PROJECT WAS LAUNCHED IN 2018 AS A GLOBAL, MULTI-PHASE, CONSENSUS-DRIVEN INITIATIVE SEEKING TO IDENTIFY AND PRIORITIZE TOP URGENT AND UNMET ISSUES IN LUPUS DRUG DEVELOPMENT, CLINICAL CARE, ACCESS AND VALUE OF CARE. THE PROJECT REACHED A SIGNIFICANT MILESTONE THIS YEAR WITH THE PUBLICATION OF THE GLOBAL CONSENSUS ON THE BARRIERS TO DRUG DEVELOPMENT WHICH RECEIVED NEARLY 4,000 ABSTRACT AND PUBLICATION DOWNLOADS AND MEDIA COVERAGE IN AT LEAST 6 TOP TRADE MEDIA PUBLICATIONS.- THE LFA SIGNED A 6TH YEAR AMENDMENT WITH FNIH AND IS ON THE AMP STEERING COMMITTEE WHICH IS IN THE PROCESS OF DETERMINING WHAT THE NEXT PHASE OF AMP 2.0 WILL LOOK LIKE. THE FOUNDATION ADVOCATES FOR MORE FOCUS ON LUPUS RESEARCH AND EXPANDING THE SCOPE TO NOT ONLY LUPUS NEPHRITIS, BUT OTHER AREAS SUCH AS NEUROPSYCHIATRIC LUPUS (NPSLE).- CONTINUED TO PUBLISH PAPERS FROM IMPORTANT AND PIVOTAL BASIC, CLINICAL, TRANSLATIONAL AND EPIDEMIOLOGICAL STUDIES OF ALL ASPECTS OF LUPUS AND RELATED DISEASES IN OUR PEER REVIEWED, OPEN ACCESS JOURNAL, THE FIRST OF ITS KIND IN LUPUS, LUPUS SCIENCE & MEDICINE. THE JOURNAL PROVIDES A BARRIER-FREE FORUM FOR PUBLICATION OF GROUND-BREAKING STUDIES IN LUPUS. IT HAS BEEN ACCEPTED FOR AN IMPACT FACTOR, HAS BEGUN PODCASTS, AND HAD THE MOST SUBMISSIONS OF ANY YEAR IN 2020. - CONTINUED MULTI-YEAR EFFORTS WHICH EXPLORE MESENCHYMAL STEM CELLS AS A POTENTIAL TREATMENT FOR PEOPLE WITH THE DISEASE. ALL CLINICAL SITES ARE CURRENTLY ENROLLING PARTICIPANTS AND THE STUDY IS EXPECTED TO FINISH ON TIME ACCORDING TO THE TIMELINE DEVELOPED IN COOPERATION WITH STUDY PARTNER THE NATIONAL INSTITUTE FOR ALLERGY AND INFECTIOUS DISEASES (NIAID).- HELPED TO ADDRESS THE ONGOING DECLINE IN SCIENTIFIC MOMENTUM AND LOSS OF CURRENT AND FUTURE LUPUS INVESTIGATORS CAUSED BY A DECLINE IN FEDERAL SUPPORT FOR RESEARCH THROUGH OUR STUDENT FELLOWSHIP AND CAREER DEVELOPMENT GRANT MECHANISMS.- PROVIDED NEW FUNDING TO ADDRESS ISSUES CRITICALLY IMPORTANT TO PEOPLE WITH LUPUS. THIS YEAR, THREE OF OUR 10 NEW CAREER DEVELOPMENT AWARD GRANTEES ARE FOCUSING THEIR STUDIES ON LUPUS-RELATED KIDNEY DISEASE (LUPUS NEPHRITIS), AN INCREDIBLY IMPORTANT AREA OF LUPUS RESEARCH. AS WELL, THE FOUNDATION HAS BEEN WORKING TO BUILD AND SOLIDIFY KEY PARTNERSHIPS WITH ORGANIZATIONS THAT PLAY A CENTRAL ROLE TO THE ADVANCEMENT OF THE SCIENCE OF LUPUS. THIS PAST YEAR, WE EXPANDED AND LAUNCHED NEW INTERNATIONAL PARTNERSHIPS TO BRING THE LUPUS COMMUNITY CLOSER TOGETHER IN THIS GLOBAL FIGHT TO END LUPUS. KEY 2020 PARTNERSHIPS INCLUDE:- CONTINUE TO WORK WITH THE CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) IS THE FIRST OF ITS KIND TO CHARACTERIZE SPECIFIC RESEARCH QUESTIONS, BARRIERS AND FACILITATORS TO RESEARCH POTENTIAL APPROACHES FOR ADDRESSING THE TOP IDENTIFIED ISSUES. - THE SYSTEMIC LUPUS ERYTHEMATOSUS COLLABORATING CLINICS (SLICC), THE PREMIER BODY OF LUPUS EXPERTS FROM THE US AND AROUND THE GLOBE, TO FUND A MULTI-YEAR EFFORT WHICH UPDATES THE SLICC DAMAGE INDEX, ONE OF THE ONLY OUTCOMES MEASURES IN LUPUS WHICH HAS BEEN ACCEPTED BY THE FDA FOR USE IN CLINICAL TRIALS. THE NEW INDEX WILL INCLUDE KEY LEARNINGS SINCE DEVELOPMENT. IT WILL ALSO INCLUDE THE DISEASE AND IMPACT OF DAMAGE ON CHILDREN SO THAT IT MAY BE USED IN PEDIATRIC TRIALS IN THE FUTURE.- A FIRST-EVER PARTNERSHIP WITH LUPUS CANADA TO MANAGE THEIR GRANT MECHANISM, LUPUS CANADA CATALYST GRANT.THE AWARD PROVIDES FUNDING FOR ONE YEAR TO CANADIAN RESEARCHERS AT ANY STAGE IN THEIR CAREER.- THE COVID-19 GLOBAL RHEUMATOLOGY ALLIANCE'S REGISTRY, WHICH IS AN IMPORTANT INTERNATIONAL EFFORT THAT COLLECTS DE-IDENTIFIED INFORMATION FROM CLINICIANS AND PEOPLE WITH RHEUMATIC DISEASES, SUCH AS LUPUS. THE INFORMATION COLLECTED IN THE REGISTRY WILL HELP EVALUATE THE RISK OF COVID-19 AND IMPROVE THE WAY DOCTORS MANAGE RHEUMATIC PATIENTS DURING THIS TIME.- THE FOUNDATION IS WORKING ON AN AGREEMENT TO FULLY SUPPORT THE REMAINDER OF THE PHASE II TRIAL, IMPACT (IMPROVE PREGNANCY IN APS WITH CERTOLIZUMAB THERAPY), FOR THE NEXT THREE YEARS. IMPACT IS THE FIRST TRIAL OF A BIOLOGIC THERAPY TO PREVENT ADVERSE PREGNANCY OUTCOMES IN HIGH-RISK PREGNANCIES IN PATIENTS WITH APS WITH OR WITHOUT SLE AND WAS INITIALLY FUNDED BY NIAMS. FUNDING FROM NAIMS ENDED IN JULY 2020, AND THE FOUNDATION IS CURRENTLY WORKING ON AN AGREEMENT WHICH WILL FULLY SUPPORT THE REMAINDER OF THE PHASE 2 TRIAL OVER THE NEXT THREE YEARSTHROUGH OUR ADVOCACY EFFORTS IN 2020, WE HAVE:- HOSTED THE FIRST EVER DIGITAL ADVOCACY SUMMIT, BRINGING TOGETHER NEARLY 3,000 LUPUS ADVOCATES TO PARTICIPATE IN TWO DAYS OF PROGRAMMING TO EDUCATE THEM ABOUT THE TOP ISSUES IN LUPUS RESEARCH AND ADVOCACY AND JOIN TOGETHER IN ONLINE MEETINGS WITH MEMBERS OF CONGRESS.- SECURED AN ADDITIONAL $9.5 MILLION, A $1 MILLION INCREASE OVER FY20, TO SUPPORT THE NATIONAL LUPUS PATIENT REGISTRY PROGRAM AT THE CDC IN FY21, BRINGING TOTAL FUNDING FOR THE PROGRAM TO $81.8 MILLION.- SECURED AN ADDITIONAL $10 MILLION IN FUNDING FOR THE LUPUS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, FOR A TOTAL OF NEARLY $57 MILLION. - SECURED AN ADDITIONAL $2,000,000 FOR THE OFFICE OF MINORITY HEALTH'S LUPUS PROGRAM TO SUPPORT A GRANT MECHANISM SPECIFICALLY FOCUSED ON ADDRESSING THE BARRIERS TO MINORITY PARTICIPATION IN CLINICAL TRIALS.- ADVOCATED FOR AND SECURED A $1.25 BILLION INCREASE FOR THE NATIONAL INSTITUTES OF HEALTH, THE LARGEST PUBLIC FUNDER OF LUPUS RESEARCH IN THE WORLD. - PROTECTED ACCESS TO HYDROXYCHLOROQUINE FOR PEOPLE WITH LUPUS AMID THE COVID-19 PANDEMIC BY WORKING WITH THE FOOD AND DRUG ADMINISTRATION, THE WHITE HOUSE CORONAVIRUS TASK FORCE, CONGRESS, STATE OFFICIALS, THE MANUFACTURERS OF HYDROXYCHLOROQUINE AND OTHERS, INCLUDING FACILITATING MORE THAN 138,000 MESSAGES TO MEMBERS OF CONGRESS FROM LUPUS ADVOCATES.- PARTNERED WITH LEADING NATIONAL PATIENT ORGANIZATIONS TO FORM THE PROTECTING THE IMMUNOCOMPROMISED COLLABORATIVE TO ADVOCATE STATE AND FEDERAL POLICIES THAT RECOGNIZE THE UNIQUE NEEDS OF PEOPLE LIVING WITH LUPUS DURING THE COVID-19 PANDEMIC, INCLUDING POLICIES RELATED TO VACCINES, THERAPIES, REOPENING, ACCESS TO HEALTH CARE AND OTHER PUBLIC HEALTH INITIATIVES AND GUIDELINES.. - CONTINUED TO ELEVATE THE PATIENT VOICE IS DRUG DEVELOPMENT AND REGULATORY DECISION-MAKING, PROVIDING THE PUPUS PATIENT PERSPECTIVE TO CONGRESS AND THE FDA AS THEY MOVE FORWARD WITH THE REAUTHORIZATION OF THE PRESCRIPTION DRUG USER FEE ACT (PDUFA) AND PATIENT FOCUSED DRUG DEVELOPMENT. - ESTABLISHED A MARKET ACCESS WORKING GROUP, CONSISTING OF PEOPLE WITH LUPUS AND KEY OPINION LEADERS, WORKING TO DEVELOP SOLUTIONS THAT OVERCOME BARRIERS TO CARE AND ENSURE ACCESS, INCLUDING THROUGH ADVOCACY WORK RELATED TO INSURANCE, COST AND COVERAGE, HEALTH DISPARITIES AND VALUE ASSESSMENTS/THE INSTITUTE FOR CLINICAL AND ECONOMIC REVIEW (ICER) AMONG OTHERS., - CONTINUED TO LEAD THE MAPRX COALITION, A GROUP OF MORE THAN 60 NATIONAL PATIENT ADVOCACY ORGANIZATIONS DEDICATED TO PROTECTING AND STRENGTHENING THE MEDICARE PART D PRESCRIPTION DRUG BENEFIT.- BUILT A NETWORK OF NEARLY 40,000 GRASSROOTS ADVOCATES, FROM EVERY STATE AND ALL 435 CONGRESSIONAL DISTRICTS, DEDICATED TO ADVANCING LUPUS PUBLIC POLICY PRIORITIES.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (2 entries)

ExpenseExpenseAmtGrantGrantAmtDescDescRevenueRevenueAmt
$705,225$1,939PATIENT EDUCATION AND SUPPORT: WE PROVIDED EDUCATION, SUPPORT AND OTHER ASSISTANCE TO INDIVIDUALS WITH LUPUS, THEIR FAMILIES AND CAREGIVERS. THIS YEAR, THE ONSET OF THE COVID-19 PANDEMIC CREATED EVEN MORE QUESTIONS AND CONCERNS FOR PEOPLE WITH LUPUS ABOUT THE FUTURE AND HOW TO HANDLE EVERYDAY LIFE. WE TOOK NUMEROUS STEPS THROUGHOUT THE YEAR TO HELP PEOPLE AFFECTED BY LUPUS NAVIGATE THE PANDEMIC, WHILE CONTINUOUSLY ADAPTING TO THE CURRENT NEEDS AND EVOLVING SITUATION.DUE TO THE CURRENT PANDEMIC, IN-PERSON EDUCATIONAL PROGRAMS SUCH AS LUPUS: LEARNING AND LIVING, AS WELL AS OUR SUPPORT GROUPS, SHIFTED FROM IN-PERSON TO VIRTUAL. OVER 30 VIRTUAL EDUCATIONAL EVENTS WERE HELD ACROSS THE COUNTRY AND COMPLETED ATTENDEE EVALUATIONS FEATURE POSITIVE FEEDBACK IN REGARDS TO EASE OF ACCESS, VALUE AND RELEVANCE CONTENT, AND THE ABILITY TO CONNECT WITH OTHERS. WE CONTINUE TO GENERATE EDUCATIONAL CONTENT IN A VARIETY OF FORMATS, LANGUAGES, AND TOPICS IMPORTANT TO PEOPLE WITH LUPUS INCLUDING TIMELY INFORMATION ON THE COVID-19 PANDEMIC. IN 2020, WE DEVELOPED AND CONTINUOUSLY UPDATED A CORONAVIRUS AND LUPUS LANDING PAGE WHICH FEATURED THE LATEST NEWS AND INFORMATION REGARDING THE DISEASE, SAFETY PRECAUTIONS AND DEVELOPING VACCINES. OUR NATIONAL HEALTH EDUCATION SPECIALISTS RESPONDED TO MORE THAN 3,000 TELEPHONE, EMAIL AND HANDWRITTEN INQUIRIES IN BOTH ENGLISH AND SPANISH AND DIRECTED CONSTITUENTS TO THE NATIONAL RESOURCE CENTER ON LUPUS FOR FURTHER INFORMATION TO MANAGE LUPUS. THE SITE IS BEING UTILIZED MORE THAN EVER AS THE FIRST STOP FOR PEOPLE WHO ARE SEARCHING FOR BASIC INFORMATION ON LUPUS AND LOCAL RESOURCES. ADDITIONALLY, OUR INFORMATIONAL LUPUS PACKET WAS REFORMATTED TO A DIGITAL DOWNLOADABLE VERSION, WHICH EXPERIENCED A TOTAL OF 2,817 UNIQUE DOWNLOADS. IN 2020, THE EXPERT SERIES, OUR MONTHLY PATIENT EDUCATION SERIES WHERE LUPUS EXPERTS OFFER INSIGHT ON A VARIETY OF IMPORTANT TOPICS, TRANSITIONED INTO A PODCAST FORMAT. NEW EPISODES ARE RELEASED MONTHLY (EACH MONTH ON THE THIRD THURSDAY) ON LUPUS.ORG, YOUTUBE AND MULTIPLE PODCAST PLATFORMS INCLUDING ITUNES AND SPOTIFY. THE PODCAST HAS OVER 3,600 SUBSCRIBERS AND OVER 6,700 PLAYS. WE HAVE ALSO EXPERIENCED GLOBAL GROWTH WITH THE SERIES HAVING TOP LISTENERS IN THE UNITED STATES, AUSTRALIA AND THE UNITED KINGDOM.
$8,211$25PROFESSIONAL RELATIONS AND EDUCATION: OUR PROFESSIONAL EDUCATION PROGRAMS TRANSLATE RESEARCH FINDINGS INTO PUBLIC HEALTH RECOMMENDATIONS FOR PHYSICIANS, OTHER HEALTHCARE PROFESSIONALS AND THEIR RESPECTIVE ORGANIZATIONS. IN 2020, WE CONTINUED TO FOCUS OUR EFFORTS ON EXPANDING PARTNERSHIPS WITH ORGANIZATIONS THAT SERVE MEDICAL AND OTHER HEALTH CARE PROFESSIONALS SUCH AS THE RHEUMATOLOGY NURSES SOCIETY AND THE AMERICAN ACADEMY OF FAMILY PHYSICIANS (AAFP). IN PARTICULAR, WE CONTINUED TO WORK WITH THE AAFP TO DISTRIBUTE THE CME ACTIVITY "MANAGEMENT OF LUPUS: COORDINATING YOUR APPROACH"WE DEVELOPED IN PARTNERSHIP WITH THEM IN 2019. CME TOPICS INCLUDED: RECOGNIZING THE SIGNS AND SYMPTOMS OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE); OPTIMIZING THE MANAGEMENT APPROACH FOR PATIENTS WHO HAVE SLE BY COMBINING APPROPRIATE EVIDENCE-BASED TREATMENT AND COORDINATION OF CARE WITH OTHER HEALTH CARE PROVIDERS; AND ENGAGING PATIENTS WHO HAVE SLE AS STAKEHOLDERS IN THEIR OWN CARE THROUGH IMPROVED COMMUNICATION, CONSIDERATION OF PATIENT PREFERENCES, SHARED DECISION MAKING, AND PATIENT EDUCATION. OVERALL, 86.4% OF LEARNERS WHO COMPLETED THE CME INDICATED THEY WOULD MAKE BEHAVIORAL CHANGE AS A RESULT OF COMPLETING THE ACTIVITY. MORE THAN 499 HEALTHCARE PROFESSIONALS HAVE COMPLETED THE COURSE SINCE IT'S LAUNCH IN SEPTEMBER 2020. AAFP IS CONTINUING TO SHARE THE PROGRAM TO REACH ADDITIONAL PROVIDERS IN THE COMING YEAR. OUR PARTNERSHIP WITH AAFP GREW IN 2020. WE WORKED TO DEVELOP CO-BRANDED RESOURCES, INCLUDING FACT SHEETS AND A LUPUS CARE MANAGEMENT PLAN, TO HELP BOTH FAMILY PHYSICIANS AND THE PATIENTS THEY TREAT REDUCE THE TIME IT CAN TAKE TO RECEIVE AN ACCURATE LUPUS DIAGNOSIS. THESE RESOURCES HAVE BEEN SHARED VIA AAFP AND LFA COMMUNICATIONS VEHICLES, AND WILL CONTINUE TO REACH ADDITIONAL INDIVIDUALS IN THE MONTHS AHEAD. OUR MULTIDISCIPLINARY MEDICAL-SCIENTIFIC ADVISORY COUNCIL CONTINUES TO PROVIDE INSIGHT INTO NEWLY PUBLISHED SCIENCE THAT COULD HAVE AN IMPACT ON THE FIELD. WE SHARE THIS INFORMATION WITH THE PUBLIC AND PROFESSIONAL COMMUNITY ON AN ONGOING BASIS VIA PRINT RESEARCH SUMMARIES, RESEARCH PODCASTS, THROUGH SOCIAL MEDIA CHANNELS TARGETED TO KEY AUDIENCES, AND VIDEOS. IN 2019 WE LAUNCHED INSIDE LUPUS RESEARCH, AN ONLINE SOURCE FOR LEARNING THE LATEST AND MOST IMPORTANT LUPUS RESEARCH NEWS. WE ARE REPORTING ON 9-12 RESEARCH NEWS ARTICLES PER MONTH. IN 2020 WE PROVIDED MORE THAN 6,000 PEOPLE INSIDE LUPUS RESEARCH (ILR) BI-WEEKLY EMAIL UPDATES.$137,856
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$713,436TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$1,964TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue$137,856TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$11,468,973TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (1)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document49IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee64EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Form1098 C FiledYes (1)Form1098CFiledInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members19GoverningBodyVotingMembersCnt
Independent Voting Member19IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board MembersYes (1)ElectionOfBoardMembersInd
Decisions Subject To ApprovaYes (1)DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1JULIE TUNEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone2023491155PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line12121 K STREET NW NO 200AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20037ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (36 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeIndIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
STEVAN W GIBSON
PRESIDENT & CEO40.00Yes (X)$301,678$0$23,099
SANDRA C RAYMOND
SENIOR ADVISOR40.00$226,222$0$31,4371.00Yes (X)
MARY T CRIMMINGS
VP, MARKETING & COMMUNICATIONS40.00$208,500$0$26,278Yes (X)
LESLIE HANRAHAN
VP, EDU. & RESEARCH - UNTIL 03/2040.00$206,731$0$26,172Yes (X)
DONNA GROGAN
VP, DEV. & FUNDRAISING - UNTIL 06/2040.00$199,038$0$21,681Yes (X)
SEUNG-AE CHUNG
CFO - UNTIL 11/201940.00Yes (X)$197,846$0$16,2400.25
JEANINE SMITH
VP, NETWORK DEVELOPMENT40.00$178,880$0$18,114Yes (X)
PATRICK WILDMAN
VP, ADVOCACY & GOVERNMENT40.00$175,436$0$16,400Yes (X)
SUSAN J GLOOR
REGIONAL DIRECTOR, NE40.00$150,130$0$16,524Yes (X)
LEIGH ANN CARDENAS
VP, INDIVIDUAL GIVING40.00$142,088$0$10,438Yes (X)
MATTHEW SCELZA
REGIONAL DIRECTOR, CA40.00$126,999$0$8,223Yes (X)
REID DOSSINGER
DIRECTOR OF DIGITAL STRATEGY40.00$125,505$0$4,797Yes (X)
DESIREE WIENAND
DIRECTOR, CORPORATE ENGAGEMENT40.00$121,063$0$7,744Yes (X)
JULIE TUNE
CFO - AS OF 11/201940.00Yes (X)$22,546$0$00.25
SUSAN MANZI
CHAIR5.00Yes (X)$0$0$0Yes (X)
JOSEPH A ARNOLD ESQ
VICE CHAIR5.00Yes (X)$0$0$0Yes (X)
ANDREW BROPHY
TREASURER5.00Yes (X)$0$0$0Yes (X)
BARBARA POLK
SECRETARY5.00Yes (X)$0$0$0Yes (X)
JANINE ALLEN
DIRECTOR1.00$0$0$0Yes (X)
JUDY BARLIN
DIRECTOR1.00$0$0$0Yes (X)
LYNN BLANDFORD
DIRECTOR1.00$0$0$0Yes (X)
LINDSAY CAFRITZ
DIRECTOR1.00$0$0$0Yes (X)
KAREN COSTENBADER MD MPH
DIRECTOR1.00$0$0$0Yes (X)
CONRAD GEHRMAN
DIRECTOR1.00$0$0$01.00Yes (X)
JANE HAWLEY
DIRECTOR1.00$0$0$0Yes (X)
BRIDGET JORDAN LEVY
DIRECTOR1.00$0$0$0Yes (X)
PHONG NGUYEN
DIRECTOR1.00$0$0$0Yes (X)
TIM NOLAN
DIRECTOR1.00$0$0$0Yes (X)
CHERI PERRON
DIRECTOR1.00$0$0$0Yes (X)
CAROL ANN PETREN
DIRECTOR - UNTIL 06/20201.00$0$0$0Yes (X)
STEPHEN RABINOWITZ
DIRECTOR1.00$0$0$0Yes (X)
CHRISTINE SMITH
DIRECTOR1.00$0$0$0Yes (X)
MARJORIE S SUSMAN
DIRECTOR1.00$0$0$0Yes (X)
FRAN TSIMOYIANIS
DIRECTOR - UNTIL 06/20201.00$0$0$0Yes (X)
HALLIE VANDERHIDER
DIRECTOR - UNTIL 06/20201.00$0$0$0Yes (X)
AMY YALDEN
DIRECTOR1.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$2,382,662TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$227,147TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K18IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
THE HERALD GROUP LLC
1800 M STREET NW SUITE 450 SOUTHWASHINGTONDC20036COMMUNICATIONS, MARKETING, OUTREACH AND$1,175,000
GLS COMPANIES
PO BOX 1450MINNEAPOLISMN55486POSTAGE AND MAILHOUSE SERVICES$837,091
PRODUCTION SOLUTIONS
1953 GALLOWS ROADVIENNAVA22182PRODUCTION/DESIGN OF MAILINGS$429,660
BLACKBAUD
PO BOX 930256ATLANTAGA31193DATA MANAGEMENT AND DEVELOPMENT$313,037
PRO-CHANGE BEHAVIOR SYSTEM LLC
1174 KINGSTOWN ROAD SUITE 101SOUTH KINSTOWNRI02879RESEARCH CONSULTING SERVICES$283,189
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K17CntrctRcvdGreaterThan100KCnt
Federated Campaigns$105,280FederatedCampaignsAmt
Fundraising$134,156FundraisingAmt
Related Organizations$300,000RelatedOrganizationsAmt
Government Grants$1,271,409GovernmentGrantsAmt
All Other Contributions$9,150,923AllOtherContributionsAmt
Noncash Contributions$91,146NoncashContributionsAmt
Total Contributions$10,961,768TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
PROG. EVENTS/OTHER900099$915,906$915,906
MEMBERSHIP DUES900099$103,168$103,168
PUBLICATIONS900099$31,001$31,001
FieldValueIRS element (for citing)
Total Program Service Revenue$1,050,075TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$35,110TotalRevenueColumnAmt
Exclusion$35,110ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$13,622TotalRevenueColumnAmt
Exclusion$13,622ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$93,750FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$134,156ContriRptFundraisingEventAmt
Fundraising Direct Expenses$169,862FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$76,112TotalRevenueColumnAmt
Exclusion-$76,112ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescREFUNDSDesc
Business900099BusinessCd
Total Revenue Column$44TotalRevenueColumnAmt
Exclusion$44ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$44OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$11,984,507TotalRevenueColumnAmt
Related Or Exempt Func Income$1,050,075RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion-$27,336ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,109,061TotalAmt
Program Services$1,109,061ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$30,000TotalAmt
Program Services$30,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$168,546TotalAmt
Program Services$168,546ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,788,246TotalAmt
Program Services$1,529,518ProgramServicesAmt
Management And General$220,714ManagementAndGeneralAmt
Fundraising$38,014FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$3,745,694TotalAmt
Program Services$3,110,413ProgramServicesAmt
Management And General$339,893ManagementAndGeneralAmt
Fundraising$295,388FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$179,021TotalAmt
Program Services$143,065ProgramServicesAmt
Management And General$15,997ManagementAndGeneralAmt
Fundraising$19,959FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$464,000TotalAmt
Program Services$390,144ProgramServicesAmt
Management And General$42,359ManagementAndGeneralAmt
Fundraising$31,497FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$367,272TotalAmt
Program Services$309,610ProgramServicesAmt
Management And General$34,891ManagementAndGeneralAmt
Fundraising$22,771FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$38,219TotalAmt
Program Services$35,322ProgramServicesAmt
Management And General$1,239ManagementAndGeneralAmt
Fundraising$1,658FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$86,939TotalAmt
Program Services$140ProgramServicesAmt
Management And General$86,799ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$107,400TotalAmt
Fundraising$107,400FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$1,322,938TotalAmt
Program Services$1,290,100ProgramServicesAmt
Management And General$24,051ManagementAndGeneralAmt
Fundraising$8,787FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$800,995TotalAmt
Program Services$797,065ProgramServicesAmt
Management And General$2,377ManagementAndGeneralAmt
Fundraising$1,553FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$226,152TotalAmt
Program Services$129,358ProgramServicesAmt
Management And General$87,898ManagementAndGeneralAmt
Fundraising$8,896FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$810,164TotalAmt
Program Services$647,237ProgramServicesAmt
Management And General$87,876ManagementAndGeneralAmt
Fundraising$75,051FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$611,304TotalAmt
Program Services$520,392ProgramServicesAmt
Management And General$55,007ManagementAndGeneralAmt
Fundraising$35,905FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$212,260TotalAmt
Program Services$176,879ProgramServicesAmt
Management And General$9,802ManagementAndGeneralAmt
Fundraising$25,579FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$403,759TotalAmt
Program Services$290,779ProgramServicesAmt
Management And General$3,712ManagementAndGeneralAmt
Fundraising$109,268FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$2,133TotalAmt
Program Services$1,798ProgramServicesAmt
Management And General$203ManagementAndGeneralAmt
Fundraising$132FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$2,238TotalAmt
Program Services$2,238ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$243,945TotalAmt
Program Services$215,587ProgramServicesAmt
Management And General$17,159ManagementAndGeneralAmt
Fundraising$11,199FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$65,057TotalAmt
Program Services$46,712ProgramServicesAmt
Management And General$14,909ManagementAndGeneralAmt
Fundraising$3,436FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
POSTAGE & MAILHOUSE$520,938$184,121$68,692$268,125
PRINTING & PUBLICATIONS$345,412$287,062$7,045$51,305
BAD DEBT EXPENSE$70,000$70,000
MEMBERSHIP DUES$55,719$53,826$917$976

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$13,777,412TotalAmt
Program Services$11,468,973ProgramServicesAmt
Management And General$1,191,540ManagementAndGeneralAmt
Fundraising$1,116,899FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$1,391,497TotalAmt
Program Services$743,280ProgramServicesAmt
Management And General$70,350ManagementAndGeneralAmt
Fundraising$577,867FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,517,365BOYAmt
EOY$1,961,878EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$3,844,343BOYAmt
EOY$2,963,721EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$1,586,390BOYAmt
EOY$1,349,278EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$268,668BOYAmt
EOY$166,879EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$57,352BOYAmt
EOY$219,650EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$1,953,438LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$1,037,231LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$1,151,029BOYAmt
EOY$916,207EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$304,726BOYAmt
EOY$331,754EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$297,373BOYAmt
EOY$350,260EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$9,027,246BOYAmt
EOY$8,259,627EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,140,575BOYAmt
EOY$1,151,376EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$859,339BOYAmt
EOY$1,021,218EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$76,095BOYAmt
EOY$11,078EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$975,100EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,557,318BOYAmt
EOY$1,475,183EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$3,633,327BOYAmt
EOY$4,633,955EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,393,054BOYAmt
EOY$1,680,866EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,000,865BOYAmt
EOY$1,944,806EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,393,919BOYAmt
EOY$3,625,672EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$9,027,246BOYAmt
EOY$8,259,627EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$1,792,905ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$24,658NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit RequiredYes (1)FederalGrantAuditRequiredInd
Federal Grant Audit PerformedYes (1)FederalGrantAuditPerformedInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$11,096,055CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$12,484,585CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$13,324,163CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$14,173,781CurrentTaxYearMinus1YearAmt
Current Tax Year$10,961,768CurrentTaxYearAmt
Total$62,040,352TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$11,096,055CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$12,484,585CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$13,324,163CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$14,173,781CurrentTaxYearMinus1YearAmt
Current Tax Year$10,961,768CurrentTaxYearAmt
Total$62,040,352TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$3,711,475SubstantialContributorsTotAmt
Public Support Total170$58,328,877PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$40,257CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$24,753CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$50,482CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$124,871CurrentTaxYearMinus1YearAmt
Current Tax Year$48,732CurrentTaxYearAmt
Total$289,095TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$10,799CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,000CurrentTaxYearMinus3YearsAmt
Total$14,799TotalAmt
FieldValueIRS element (for citing)
Total Support$62,344,246TotalSupportAmt
Gross Receipts Rltd Activities$9,452,585GrossReceiptsRltdActivitiesAmt
Public Support CY1700.93560PublicSupportCY170Pct
Public Support PY1700.94880PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationMISCELLANEOUS - 2015 AMOUNT: $ 10,799. 2016 AMOUNT: $ 4,000.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$47,306FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$47,306FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$13,622,706FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$13,670,012FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$833,501FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$208,375FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$807,522CurrentYearMinus3Amt
Current Year Minus2$926,440CurrentYearMinus2Amt
Current Year Minus1$988,962CurrentYearMinus1Amt
Current Year$833,501CurrentYearAmt
Total$3,556,425TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$5,334,638LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$71,597CurrentYearMinus3Amt
Current Year Minus2$49,884CurrentYearMinus2Amt
Current Year Minus1$61,406CurrentYearMinus1Amt
Current Year$47,306CurrentYearAmt
Total$230,193TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$201,881CurrentYearMinus3Amt
Current Year Minus2$231,610CurrentYearMinus2Amt
Current Year Minus1$247,241CurrentYearMinus1Amt
Current Year$208,375CurrentYearAmt
Total$889,107TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$1,333,661GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$45,252CurrentYearMinus3Amt
Total$45,252TotalAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$379,279BeginningYearBalanceAmt
Investment Earnings Or Losses$30,200InvestmentEarningsOrLossesAmt
Other Expenditures$4,637OtherExpendituresAmt
End Year Balance$404,842EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$377,127BeginningYearBalanceAmt
Investment Earnings Or Losses$4,745InvestmentEarningsOrLossesAmt
Other Expenditures$2,593OtherExpendituresAmt
End Year Balance$379,279EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$359,750BeginningYearBalanceAmt
Investment Earnings Or Losses$21,234InvestmentEarningsOrLossesAmt
Other Expenditures$3,857OtherExpendituresAmt
End Year Balance$377,127EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$338,723BeginningYearBalanceAmt
Investment Earnings Or Losses$24,657InvestmentEarningsOrLossesAmt
Other Expenditures$2,253OtherExpendituresAmt
Administrative Expenses$1,377AdministrativeExpensesAmt
End Year Balance$359,750EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$327,808BeginningYearBalanceAmt
Investment Earnings Or Losses$15,228InvestmentEarningsOrLossesAmt
Other Expenditures$3,344OtherExpendituresAmt
Administrative Expenses$969AdministrativeExpensesAmt
End Year Balance$338,723EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated OrgYes (1)EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$1,061,513OtherCostOrOtherBasisAmt
Depreciation$322,081DepreciationAmt
Book Value$739,432BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$427,704OtherCostOrOtherBasisAmt
Depreciation$332,116DepreciationAmt
Book Value$95,588BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$464,221OtherCostOrOtherBasisAmt
Depreciation$383,034DepreciationAmt
Book Value$81,187BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$916,207TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)

DescDescAmtAmt
CAPITAL LEASE OBLIGATIONS$10,188
DEFERRED LEASE INCENTIVE$700,795
DEFERRED RENT$764,200
FieldValueIRS element (for citing)
Total Liability$1,475,183TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$12,067,350TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$24,658NetUnrealizedGainsInvstAmt
Other Revenue$58,185OtherRevenueAmt
Revenue Not Reported$82,843RevenueNotReportedAmt
Revenue Subtotal$11,984,507RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$11,984,507TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$13,835,597TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$58,185OtherExpensesIncludedAmt
Expenses Not Reported$58,185ExpensesNotReportedAmt
Expenses Subtotal$13,777,412ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$13,777,412TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART V, LINE 4:THE EARNINGS ON THE DONOR-RESTRICTED ENDOWMENT ARE FOR GENERAL OPERATIONS AND RESEARCH. THE FOUNDATION'S BOARD APPROVES THE SPENDING OF THE EARNINGS ON THE ENDOWMENT FUND ON AN ANNUAL BASIS WHEN IT APPROVES THE ANNUAL BUDGET.
PART X, LINE 2:THE FOUNDATION PERFORMED AN EVALUATION OF UNCERTAINTY IN TAXES FOR THE YEARS ENDED SEPTEMBER 30, 2020 AND 2019, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:ADDITIONAL SPECIAL EVENT EXPENSE 58,185.
PART XII, LINE 2D - OTHER ADJUSTMENTS:ADDITIONAL SPECIAL EVENT EXPENSE 58,185.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EUROPE (INCLUDING ICELAND & GREENLAND)06PROGRAM SERVICESCONSULTING$38,667
NORTH AMERICA00GRANTMAKING$168,546
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees6SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee6TotalEmployeeCnt
Subtotal Spent$207,213SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$207,213TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
NORTH AMERICARESEARCH GRANT$140,000CHECK
NORTH AMERICARESEARCH GRANT$24,546CHECK
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt
Transfer To Foreign CorpYes (1)TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 2:ALL GRANT RECIPIENTS ARE REQUIRED TO SIGN THE FOUNDATION'S GRANT AWARD AGREEMENT AND MEET THE FOLLOWING CONDITIONS: - MEET ALL APPLICABLE AND RELEVANT GUIDELINES REGARDING THE USE OF ANIMAL AND HUMAN SUBJECTS. - MEET ALL INSTITUTIONAL POLICIES AND LOCAL, STATE, AND FEDERAL REGULATIONS GOVERNING THE CONDUCT OF RESEARCH. - SUBMIT INTERNAL REVIEW BOARD AND INSTITUTIONAL ANIMAL CARE AND USE COMMITTEE (IF APPLICABLE) APPROVAL FROM THE GRANT RECIPIENT'S INSTITUTION. - COMPLETE AND SUBMIT THE "PROPOSED BUDGET". - ADHERE TO THE FOUNDATION'S POLICY ON INVENTIONS AND DISCOVERIES. - NOTIFY THE FOUNDATION OF ANY PUBLICATION OR PROFESSIONAL PRESENTATION BASED ON FOUNDATION-FUNDED RESEARCH PROJECT AND PROVIDE THE FOUNDATION WITH ELECTRONIC COPIES OF ANY PUBLICATION OR PROFESSIONAL PRESENTATION MADE POSSIBLE, FACILITATED, EXPEDITED, OR SUPPORTED IN ANY WAY BY THE AWARD, EVEN IF DEVELOPED, INITIATED, OR FINALIZED AFTER THE AWARD PERIOD HAS EXPIRED, WITHIN 30 DAYS OF FINAL PRODUCTION. - ACKNOWLEDGE THE FOUNDATION IN ANY AND ALL PUBLICATIONS OR PRESENTATIONS BASED, PARTIALLY OR WHOLLY, ON OR DEVELOPED UNDER THE AWARD MUST, UNLESS OTHERWISE REQUESTED BY THE FOUNDATION, WITH THE FOLLOWING STATEMENT: "THIS RESEARCH WAS SUPPORTED BY THE LUPUS FOUNDATION OF AMERICA, INC." - ALL FUNDS ARE USED EXCLUSIVELY TOWARD EXPENDITURES FOR THE SAID RESEARCH, AND NO AMOUNT OF THE RESEARCH GRANT FUNDS CAN BE USED TO FINANCE INDIRECT COSTS. - KEEP COMPLETE AND ACCURATE RECORDS ON THE RECEIPT AND DISBURSEMENT OF ALL AWARD FUNDS, AND MAY NOT CO-MINGLE ANY FUNDS FROM OTHER SOURCES. MUST RETAIN ALL SUCH RECORDS FOR A PERIOD OF AT LEAST TWO YEARS AFTER THE EXPIRATION DATE OF THE AGREEMENT AND THE FOUNDATION HAS THE RIGHT TO REVIEW SUCH RECORDS UPON REQUEST. IN ADDITION, ALL GRANT RECIPIENTS ARE REQUIRED TO SUBMIT INTERIM AND FINAL REPORTS WITH A GRANT INSTALLMENT PAYMENT TIED TO REPORT SUBMISSION. THE FOUNDATION'S EDUCATION & RESEARCH TEAM REVIEWS THE INTERIM AND FINAL REPORTS TO CONFIRM THAT THE INVESTIGATOR ACHIEVED THE ORIGINAL STUDY OBJECTIVE. - AGREE THAT EITHER PARTY MAY TERMINATE THE AGREEMENT FOR CONVENIENCE UPON THIRTY (30) DAYS PRIOR WRITTEN NOTICE TO THE OTHER PARTY. THE FOUNDATION RESERVES THE RIGHT TO TERMINATE THE AGREEMENT EFFECTIVE IMMEDIATELY, UPON WRITTEN NOTICE, IF THE GRANT RECIPIENT (I) IS UNABLE TO COMPLETE THE STUDY; (II) MATERIALLY ALTER THE STUDY; (III) USES THE AWARD GRANT FOR PROHIBITED EXPENSES OR; (IV) BREACHES OF THE AGREEMENT AND FAILS TO CURE SUCH BREACH WITHIN TEN (10) DAYS FOLLOWING RECIPIENT'S OR INSTITUTION'S RECEIPT OF WRITTEN NOTICE THEREOF. - ACKNOWLEDGE THAT NEITHER THE FOUNDATION, THE INSTITUTION, NOR INVESTIGATOR SHALL BE LIABLE FOR ANY FAILURE TO PERFORM ANY OBLIGATIONS UNDER THE AGREEMENT IF SUCH FAILURE RESULTS FROM CAUSES BEYOND ITS REASONABLE CONTROL. - ACKNOWLEDGE THAT THE AGREEMENT SHALL BE GOVERNED BY THE LAWS OF THE DISTRICT OF COLUMBIA, WITHOUT REGARD TO ITS CONFLICT OF LAW RULES. - ACKNOWLEDGE THAT THE AGREEMENT MAY NOT BE ASSIGNED OR TRANSFERRED WITHOUT THE FOUNDATION'S PRIOR WRITTEN CONSENT.
PART I, LINE 3:THE FOUNDATION REPORTED THE EXPENDITURES BASED ON THE ACCOUNTING METHOD USED IN ITS AUDITED FINANCIAL STATEMENTS WHICH IS ON AN ACCRUAL BASIS.
PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Phone SolicitationsYes (X)PhoneSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Solicitation Of Govt GrantsYes (X)SolicitationOfGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (1)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdActivityActivityTxtFundraiser Control Of FundsFundraiserControlOfFundsIndGross ReceiptsGrossReceiptsAmtRetained By ContractorRetainedByContractorAmtNet To OrganizationNetToOrganizationAmt
JOHN MINI CONSULTING INC
707 SAVANNAH ROADLEWESDE199581521DIRECT MAIL0$773,015$67,400$705,615
THE WEBSTER GROUP
5185 MACARTHUR BOULEVARD NW 250WASHINGTONDC20016GALA PRODUCTION & MGMT0$0$40,000-$40,000
FieldValueIRS element (for citing)
Total Gross Receipts$773,015TotalGrossReceiptsAmt
Total Retained By Contractors$107,400TotalRetainedByContractorsAmt
Total Net To Organization$665,615TotalNetToOrganizationAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDCLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1NYC EVENING OF HOPE GALAEvent1Nm
Gross Receipts Event1$227,906GrossReceiptsEvent1Amt
Charitable Contri Event1$134,156CharitableContriEvent1Amt
Gross Revenue Event1$93,750GrossRevenueEvent1Amt
Food And Beverage Event1$91,810FoodAndBeverageEvent1Amt
Entertainment Event1$20,000EntertainmentEvent1Amt
Other Direct Expenses Event1$58,052OtherDirectExpensesEvent1Amt
Gross Receipts Total$227,906GrossReceiptsTotalAmt
Charitable Contributions Tot$134,156CharitableContributionsTotAmt
Gross Revenue Total Events$93,750GrossRevenueTotalEventsAmt
Food And Beverage Total Events$91,810FoodAndBeverageTotalEventsAmt
Entertainment Total Events$20,000EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$58,052OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$169,862DirectExpenseSummaryEventsAmt
Net Income Summary-$76,112NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE G, PART I:FormAndLineReferenceDesc
ExplanationTHE FOUNDATION ENGAGES A PROFESSIONAL FUNDRAISER, THE WEBSTER GROUP, TO PROVIDE EVENT MANAGEMENT AND PRODUCTION, AND REGISTRATION AND SEATING SERVICES FOR OUR ANNUAL GALA. THEY DO NOT SOLICIT CONTRIBUTIONS ON OUR BEHALF.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (4 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 805CHARLESTONSC29425576000722501(C)(3)$756,000STEM CELL RESEARCH
CINCINNATI CHILDREN'S HOSPITAL
3333 BURNET AVENUECINCINNATIOH45229310833936501(C)(3)$140,000CAREER DEVELOPMENT AWARD
NORTHWESTERN UNIVERSITY
240 EAST HURONCHICAGOIL60611362167817501(C)(3)$140,000CAREER DEVELOPMENT AWARD
THE OHIO STATE UNIVERSITY
1960 KENNY ROADCOLUMBUSOH43210316025986501(C)(3)$70,000CAREER DEVELOPMENT AWARD
FieldValueIRS element (for citing)
Total501c3 Org4Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmt
FELLOWSHIP AWARDS5$20,000
RESEARCH AWARD2$10,000

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationALL GRANT RECIPIENTS ARE REQUIRED TO SIGN THE FOUNDATION'S GRANT AWARD AGREEMENT AND MEET THE FOLLOWING CONDITIONS: - MEET ALL APPLICABLE AND RELEVANT GUIDELINES REGARDING THE USE OF ANIMAL AND HUMAN SUBJECTS. - MEET ALL INSTITUTIONAL POLICIES AND LOCAL, STATE, AND FEDERAL REGULATIONS GOVERNING THE CONDUCT OF RESEARCH. - SUBMIT INTERNAL REVIEW BOARD AND INSTITUTIONAL ANIMAL CARE AND USE COMMITTEE (IF APPLICABLE) APPROVAL FROM THE GRANT RECIPIENT'S INSTITUTION. - COMPLETE AND SUBMIT THE "PROPOSED BUDGET". - ADHERE TO THE FOUNDATION'S POLICY ON INVENTIONS AND DISCOVERIES. - NOTIFY THE FOUNDATION OF ANY PUBLICATION OR PROFESSIONAL PRESENTATION BASED ON FOUNDATION-FUNDED RESEARCH PROJECT AND PROVIDE THE FOUNDATION WITH ELECTRONIC COPIES OF ANY PUBLICATION OR PROFESSIONAL PRESENTATION MADE POSSIBLE, FACILITATED, EXPEDITED, OR SUPPORTED IN ANY WAY BY THE AWARD, EVEN IF DEVELOPED, INITIATED, OR FINALIZED AFTER THE AWARD PERIOD HAS EXPIRED, WITHIN 30 DAYS OF FINAL PRODUCTION. - ACKNOWLEDGE THE FOUNDATION IN ANY AND ALL PUBLICATIONS OR PRESENTATIONS BASED, PARTIALLY OR WHOLLY, ON OR DEVELOPED UNDER THE AWARD MUST, UNLESS OTHERWISE REQUESTED BY THE FOUNDATION, WITH THE FOLLOWING STATEMENT: "THIS RESEARCH WAS SUPPORTED BY THE LUPUS FOUNDATION OF AMERICA, INC." - ALL FUNDS ARE USED EXCLUSIVELY TOWARD EXPENDITURES FOR THE SAID RESEARCH, AND NO AMOUNT OF THE RESEARCH GRANT FUNDS CAN BE USED TO FINANCE INDIRECT COSTS. - KEEP COMPLETE AND ACCURATE RECORDS ON THE RECEIPT AND DISBURSEMENT OF ALL AWARD FUNDS, AND MAY NOT CO-MINGLE ANY FUNDS FROM OTHER SOURCES. MUST RETAIN ALL SUCH RECORDS FOR A PERIOD OF AT LEAST TWO YEARS AFTER THE EXPIRATION DATE OF THE AGREEMENT AND THE FOUNDATION HAS THE RIGHT TO REVIEW SUCH RECORDS UPON REQUEST. IN ADDITION, ALL GRANT RECIPIENTS ARE REQUIRED TO SUBMIT INTERIM AND FINAL REPORTS WITH A GRANT INSTALLMENT PAYMENT TIED TO REPORT SUBMISSION. THE FOUNDATION'S EDUCATION & RESEARCH TEAM REVIEWS THE INTERIM AND FINAL REPORTS TO CONFIRM THAT THE INVESTIGATOR ACHIEVED THE ORIGINAL STUDY OBJECTIVE. - AGREE THAT EITHER PARTY MAY TERMINATE THE AGREEMENT FOR CONVENIENCE UPON THIRTY (30) DAYS PRIOR WRITTEN NOTICE TO THE OTHER PARTY. THE FOUNDATION RESERVES THE RIGHT TO TERMINATE THE AGREEMENT EFFECTIVE IMMEDIATELY, UPON WRITTEN NOTICE, IF THE GRANT RECIPIENT (I) IS UNABLE TO COMPLETE THE STUDY; (II) MATERIALLY ALTER THE STUDY; (III) USES THE AWARD GRANT FOR PROHIBITED EXPENSES OR; (IV) BREACHES OF THE AGREEMENT AND FAILS TO CURE SUCH BREACH WITHIN TEN (10) DAYS FOLLOWING RECIPIENT'S OR INSTITUTION'S RECEIPT OF WRITTEN NOTICE THEREOF. - ACKNOWLEDGE THAT NEITHER THE FOUNDATION, THE INSTITUTION, NOR INVESTIGATOR SHALL BE LIABLE FOR ANY FAILURE TO PERFORM ANY OBLIGATIONS UNDER THE AGREEMENT IF SUCH FAILURE RESULTS FROM CAUSES BEYOND ITS REASONABLE CONTROL. - ACKNOWLEDGE THAT THE AGREEMENT SHALL BE GOVERNED BY THE LAWS OF THE DISTRICT OF COLUMBIA, WITHOUT REGARD TO ITS CONFLICT OF LAW RULES. - ACKNOWLEDGE THAT THE AGREEMENT MAY NOT BE ASSIGNED OR TRANSFERRED WITHOUT THE FOUNDATION'S PRIOR WRITTEN CONSENT.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (10 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
STEVAN W GIBSON
PRESIDENT & CEO$300,809$0$0$0$869$0$14,000$0$9,099$0$324,777$0$0$0
SANDRA C RAYMOND
SENIOR ADVISOR$225,611$0$0$0$611$0$20,250$0$11,187$0$257,659$0$0$0
MARY T CRIMMINGS
VP, MARKETING & COMMUNICATIONS$207,751$0$0$0$749$0$18,636$0$7,642$0$234,778$0$0$0
LESLIE HANRAHAN
VP, EDU. & RESEARCH - UNTIL 03/20$206,030$0$0$0$701$0$19,041$0$7,131$0$232,903$0$0$0
DONNA GROGAN
VP, DEV. & FUNDRAISING - UNTIL 06/20$198,289$0$0$0$749$0$14,039$0$7,642$0$220,719$0$0$0
SEUNG-AE CHUNG
CFO - UNTIL 11/2019$197,846$0$0$0$0$0$16,036$0$204$0$214,086$0$0$0
JEANINE SMITH
VP, NETWORK DEVELOPMENT$178,011$0$0$0$869$0$9,015$0$9,099$0$196,994$0$0$0
PATRICK WILDMAN
VP, ADVOCACY & GOVERNMENT$174,687$0$0$0$749$0$9,018$0$7,382$0$191,836$0$0$0
SUSAN J GLOOR
REGIONAL DIRECTOR, NE$149,314$0$0$0$816$0$7,425$0$9,099$0$166,654$0$0$0
LEIGH ANN CARDENAS
VP, INDIVIDUAL GIVING$141,464$0$0$0$624$0$3,548$0$6,890$0$152,526$0$0$0

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 7FormAndLineReferenceDesc
ExplanationTHE PRESIDENT & CEO'S BONUS IS AWARDED BY THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BASED ON A PERFORMANCE EVALUATION. OTHER OFFICERS, KEY EMPLOYEES, AND HIGHEST COMPENSATED EMPLOYEES' BONUSES ARE AWARDED AT THE DISCRETION OF THE PRESIDENT & CEO.ExplanationTxt

Schedule M IRS990ScheduleM

Clothing And Household Goods ClothingAndHouseholdGoodsGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Noncash Contributions Rpt F990$1,200NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt

Cars And Other Vehicles CarsAndOtherVehiclesGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution51ContributionCnt
Noncash Contributions Rpt F990$23,290NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution11ContributionCnt
Noncash Contributions Rpt F990$66,656NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, COLUMN (B):FormAndLineReferenceDesc
ExplanationTHE FOUNDATION REPORTS THE NUMBER OF CONTRIBUTIONS IN PART I, COLUMN (B).ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 7ATHE CHAPTERS HAVE THE AUTHORITY TO ELECT THE MEMBERS OF THE NATIONAL COUNCIL REPRESENTATIVES OF THE BOARD OF THE DIRECTORS.
FORM 990, PART VI, SECTION A, LINE 7BTHE CHAPTERS HAVE THE AUTHORITY TO VOTE ON ANY PROPOSED CHANGES BY THE BOARD OF THE DIRECTORS TO THE FOUNDATION'S BYLAWS.
FORM 990, PART VI, SECTION B, LINE 11BTHE FOUNDATION HIRES AN INDEPENDENT ACCOUNTING FIRM TO PREPARE THE FORM 990. A COPY OF THE FINAL DRAFT OF THE FORM 990 IS REVIEWED AND APPROVED BY THE FINANCE COMMITTEE VIA A TELEPHONE CONFERENCE. ONCE APPROVED BY THE FINANCE COMMITTEE, A COMPLETE COPY OF THE FORM 990 IS DISTRIBUTED TO ALL MEMBERS OF THE BOARD OF DIRECTORS BEFORE FILING THE FORM WITH THE INTERNAL REVENUE SERVICE.
FORM 990, PART VI, SECTION B, LINE 12CAT THE FOUNDATION'S BOARD MEETING IN THE FALL, THE CONFLICT OF INTEREST STATEMENT AND QUESTIONNAIRE ARE COMPLETED AND SIGNED BY EACH OFFICER, DIRECTOR, COMMITTEE MEMBER AND KEY EMPLOYEE. ALL CONFLICT OF INTEREST STATEMENTS AND QUESTIONNAIRES ARE REVIEWED BY THE PRESIDENT & CEO AND CHIEF FINANCIAL OFFICER WHO NOTE ANY ACTUAL OR POTENTIAL CONFLICTS. WHEN THERE IS A DOUBT AS TO WHETHER A CONFLICT OF INTEREST EXISTS, THE MATTER SHALL BE RESOLVED BY A VOTE OF THE BOARD OF DIRECTORS (OR ITS COMMITTEE), EXCLUDING THE PERSON CONCERNING WHOSE SITUATION THE DOUBT HAS ARISEN. THERE HAVE BEEN NO CONFLICTS NOTED DURING THE YEAR.
FORM 990, PART VI, SECTION B, LINE 15THE EXECUTIVE COMMITTEE OF THE BOARD (EC) CONDUCTS AN ANNUAL PERFORMANCE EVALUATION OF THE PRESIDENT & CEO AND RECOMMENDS SALARY LEVEL CHANGES TO THE BOARD OF DIRECTORS FOR APPROVAL. THE RECOMMENDED CHANGES ARE BASED ON THE MOST CURRENTLY AVAILABLE COMPARABILITY DATA FROM THE MANAGEMENT COMPENSATION SURVEY STUDY PUBLISHED JOINTLY BY THE NATIONAL HEALTH COUNCIL AND THE NATIONAL HUMAN SERVICES ASSEMBLY. ONCE APPROVED, ONE OF THE MEMBERS OF THE EC, GENERALLY THE CHAIRMAN OR THE TREASURER, NOTIFIES THE CHIEF FINANCIAL OFFICER OF THE NEW APPROVED COMPENSATION ARRANGEMENT FOR THE PRESIDENT & CEO. ALL OTHER KEY EMPLOYEES' ANNUAL PERFORMANCE EVALUATIONS ARE CONDUCTED BY THE PRESIDENT & CEO AND THEIR APPROVED ANNUAL SALARY INCREASES ARE DOCUMENTED ON THEIR ANNUAL PERFORMANCE EVALUATION FORM.
FORM 990, PART VI, SECTION C, LINE 19THE FOUNDATION MAKES ITS FINANCIAL STATEMENTS, FEDERAL FORM 990, AND ANNUAL REPORT AVAILABLE TO THE PUBLIC UPON REQUEST AND BY POSTING THEM ON ITS WEBSITE. ALL OTHER GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1LUPUS AMERICA COMMUNITIESBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line12121 K STREET NW SUITE 200AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20037ZIPCd
FieldValueIRS element (for citing)
EIN900870868EIN
Primary ActivitiesSUPPORTING ORGANIZATIONPrimaryActivitiesTxt
Legal Domicile StateDCLegalDomicileStateCd
Exempt Code Section501(C)(3)ExemptCodeSectionTxt
Public Charity StatusLINE 12C, III-FIPublicCharityStatusTxt
Direct Controlling NAN/ADirectControllingNACd
Controlled Organization0ControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org0GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgYes (1)GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of FacilitiesYes (1)SharingOfFacilitiesInd
Paid Employees Sharing0PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd